Thank you Georgina

[Guest guest]

Absolutely, totally agree. Georgina, thank you for posting thought

provoking articles. I do not always agree with the drs findings, or

sometimes find myself saying " Duh, you could have saved a lot of time

and money on this research by asking any parent here who has been

through this or a patient who has this " , but your articles by and large

have never failed to inform. Often they provoke much good discussion and

we can all learn something new. Thank you again for all you do. You

are, as said, the glue that binds us. Please keep up the good

work. Michele ( 20, spondy)

________________________________

From: [mailto: ] On

Behalf Of katherineknbl

Sent: Friday, March 28, 2008 6:55 AM

Subject: Thank You Georgina

Georgina,

When my child was first sick, finding this site and connecting with

people at the Arthritis Foundation (like Liz )were an incredible

blessing to me. I doubt you will ever fully know how much your

efforts help us, both in education and support. I bet, many are like

me, and totally take advantage of reading the articles you send and

in that moment think " thank God for Georgina " but we never follow

through and contact you with our thanks. So, here is my small effort

to let you know that every day I am thankful for the articles you

send and for forming this board that is so helpful. Without you and

your endless hours of work, we would be less educated and less

supported. You are the glue that binds us and I thank you.

In light of this recent misunderstanding I especially wanted you to

know that the research you send, is taken as I think it's meant. Not

as an affirmation of approval by you, but as legitament research in

the field. We will all agree or disagree with research based on our

experiences, education or " mom feeling " . I would rather read all

that is out there then for you to begin screening research in fear it

might offend some of us. I don't want this board to censure

information or research, I really feel more knowledge is good

knowledge and again, I don't feel you sending reseach out to us is in

any way giving your stamp of approval on it's content.

Georgina, thanks again for all your work. It doesn't seem enough to

just say thank you for all you do! My husband and I might be taking

a trip to Hawaii soon, so in that case, count on me taking you out to

dinner at the very least.

You are a gem.

( 16, syetemic)

[Guest guest]

Georgina, I am with you 100%.

I run the Australian online support group for JIA, which Issadora

obviously took such offense to. I am now sitting here licking my

wounds, feeling the same way Georgina appears to be feeling...it

takes a lot of extra time to run a group such as this, especially to

run it impartially and cover all topics, whether they apply directly

to your own family situation or not.

To feel that you are perhaps wasting your time, or posting

information that is not really appreciated is heartbreaking. I know

that we when started the JIA Australian group, our sole intention was

to spread the info and share the support. For the most part, it works

beautifully.

We try to present all sides of a discussion so that people can make

up their own mind based on what they read. Nobody makes anyone read

anything.

To be 'bagged out' on one group is bad enough, to then be bagged out

again on another, is deeply hurtful.

But we will try to work through it and keep researching and posting

articles, for the benefit of the whole group.

A misunderstanding is all this may be. But we must always remain

aware of each other's feelings, especially when we are all already

dealing with the emotions that these medical conditions bring with

them.

I apologise, again, if any article that I have ever posted, or any

comments I have ever made, have offended anyone. It has most

certainly never been my intention to do so.

Jo

Bayly, 5, extended oligo

>> Georgina,

> When my child was first sick, finding this site and connecting with

> people at the Arthritis Foundation (like Liz )were an

incredible > blessing to me. I doubt you will ever fully know how

much your > efforts help us, both in education and support. I bet,

many are like > me, and totally take advantage of reading the

articles you send and > in that moment think " thank God for Georgina "

but we never follow > through and contact you with our thanks. So,

here is my small effort > to let you know that every day I am

thankful for the articles you > send and for forming this board that

is so helpful. Without you and > your endless hours of work, we

would be less educated and less > supported. You are the glue that

binds us and I thank you.

> > In light of this recent misunderstanding I especially wanted you

to > know that the research you send, is taken as I think it's

meant. Not > as an affirmation of approval by you, but as legitament

research in > the field. We will all agree or disagree with research

based on our > experiences, education or " mom feeling " . I would

rather read all > that is out there then for you to begin screening

research in fear it > might offend some of us. I don't want this

board to censure > information or research, I really feel more

knowledge is good> knowledge and again, I don't feel you sending

reseach out to us is in > any way giving your stamp of approval on

it's content.

> > Georgina, thanks again for all your work. It doesn't seem enough

to > just say thank you for all you do! My husband and I might be

taking > a trip to Hawaii soon, so in that case, count on me taking

you out to > dinner at the very least.

> > You are a gem.

> ( 16, syetemic)