Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 In a message dated 12/16/2001 4:58:35 PM Central Standard Time, tae-bo_on writes: > , welcome back! How are things going with you? > > Elena > Hi Elena, Thanks for asking....well...if you remember...I was the one who couldn't get enough of Tae Bo..well...I have been very, very bad the last couple of months. Having some health issues with my youngest son (3 1/2) they are thinking he may be Autistic. He will be going through a bunch of tests in the next couple of weeks. He will be having a MRI on Wed., and then the next week and EEG, etc. I will have to wait and see what happens after that. He is currently " labeled " with Sensory Integration Dysfunction. So of course, that is pretty depressing for me. But...I came to realize that God will only give me what he thinks I can handle and he obviously thinks that I can handle this. I am a very dedicated " mommy " to my 3 boys and I just have to deal with this and do whatever I can for him. Well, to make a long story short. has gotten me back in the mood for Tae Bo after watching all of them on QVC. I ordered the tapes to add to my collection and guess what...Monday morning, back on comes the Tae Bo tapes. I am going to start back with the Inspirational. I really liked that one. Maybe I will alternate with the Get Ripped and Live and of course when I get the Total workout, put those into my routine. Again, thanks for asking, and it is great to get back in the groove. Sincerely, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 ----- Original Message ----- I have been very, very bad the last couple of > months. Having some health issues with my youngest son (3 1/2) they are > thinking he may be Autistic. He will be going through a bunch of tests in > the next couple of weeks. He will be having a MRI on Wed., and then the next > week and EEG, etc. I will have to wait and see what happens after that. He > is currently " labeled " with Sensory Integration Dysfunction. So of course, > that is pretty depressing for me. But...I came to realize that God will only > give me what he thinks I can handle and he obviously thinks that I can handle > this. I am a very dedicated " mommy " to my 3 boys and I just have to deal > with this and do whatever I can for him. > , I'm sorry you and your family are going through this! I'll be thinking about you during all of his tests. Good for you for picking up taebo again. It's normal to exercise less when there are family concerns, but maybe taebo will give you some release. Elena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 ----- Original Message ----- I have been very, very bad the last couple of > months. Having some health issues with my youngest son (3 1/2) they are > thinking he may be Autistic. He will be going through a bunch of tests in > the next couple of weeks. He will be having a MRI on Wed., and then the next > week and EEG, etc. I will have to wait and see what happens after that. He > is currently " labeled " with Sensory Integration Dysfunction. So of course, > that is pretty depressing for me. But...I came to realize that God will only > give me what he thinks I can handle and he obviously thinks that I can handle > this. I am a very dedicated " mommy " to my 3 boys and I just have to deal > with this and do whatever I can for him. > , I'm sorry you and your family are going through this! I'll be thinking about you during all of his tests. Good for you for picking up taebo again. It's normal to exercise less when there are family concerns, but maybe taebo will give you some release. Elena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 ----- Original Message ----- I have been very, very bad the last couple of > months. Having some health issues with my youngest son (3 1/2) they are > thinking he may be Autistic. He will be going through a bunch of tests in > the next couple of weeks. He will be having a MRI on Wed., and then the next > week and EEG, etc. I will have to wait and see what happens after that. He > is currently " labeled " with Sensory Integration Dysfunction. So of course, > that is pretty depressing for me. But...I came to realize that God will only > give me what he thinks I can handle and he obviously thinks that I can handle > this. I am a very dedicated " mommy " to my 3 boys and I just have to deal > with this and do whatever I can for him. > , I'm sorry you and your family are going through this! I'll be thinking about you during all of his tests. Good for you for picking up taebo again. It's normal to exercise less when there are family concerns, but maybe taebo will give you some release. Elena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 Hi , I am sorry to hear that you are going through such a tough time right now. Hugs to you.. Please keep us posted on how you and your family are doing. We are hear for you anytime you need us! Darcy > In a message dated 12/16/2001 4:58:35 PM Central Standard Time, > tae-bo_on@y... writes: > > > > , welcome back! How are things going with you? > > > > Elena > > > > Hi Elena, > > Thanks for asking....well...if you remember...I was the one who couldn't get > enough of Tae Bo..well...I have been very, very bad the last couple of > months. Having some health issues with my youngest son (3 1/2) they are > thinking he may be Autistic. He will be going through a bunch of tests in > the next couple of weeks. He will be having a MRI on Wed., and then the next > week and EEG, etc. I will have to wait and see what happens after that. He > is currently " labeled " with Sensory Integration Dysfunction. So of course, > that is pretty depressing for me. But...I came to realize that God will only > give me what he thinks I can handle and he obviously thinks that I can handle > this. I am a very dedicated " mommy " to my 3 boys and I just have to deal > with this and do whatever I can for him. > > Well, to make a long story short. has gotten me back in the mood for > Tae Bo after watching all of them on QVC. I ordered the tapes to add to my > collection and guess what...Monday morning, back on comes the Tae Bo tapes. > I am going to start back with the Inspirational. I really liked that one. > Maybe I will alternate with the Get Ripped and Live and of course when I get > the Total workout, put those into my routine. > > Again, thanks for asking, and it is great to get back in the groove. > > Sincerely, > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 Hi , I am sorry to hear that you are going through such a tough time right now. Hugs to you.. Please keep us posted on how you and your family are doing. We are hear for you anytime you need us! Darcy > In a message dated 12/16/2001 4:58:35 PM Central Standard Time, > tae-bo_on@y... writes: > > > > , welcome back! How are things going with you? > > > > Elena > > > > Hi Elena, > > Thanks for asking....well...if you remember...I was the one who couldn't get > enough of Tae Bo..well...I have been very, very bad the last couple of > months. Having some health issues with my youngest son (3 1/2) they are > thinking he may be Autistic. He will be going through a bunch of tests in > the next couple of weeks. He will be having a MRI on Wed., and then the next > week and EEG, etc. I will have to wait and see what happens after that. He > is currently " labeled " with Sensory Integration Dysfunction. So of course, > that is pretty depressing for me. But...I came to realize that God will only > give me what he thinks I can handle and he obviously thinks that I can handle > this. I am a very dedicated " mommy " to my 3 boys and I just have to deal > with this and do whatever I can for him. > > Well, to make a long story short. has gotten me back in the mood for > Tae Bo after watching all of them on QVC. I ordered the tapes to add to my > collection and guess what...Monday morning, back on comes the Tae Bo tapes. > I am going to start back with the Inspirational. I really liked that one. > Maybe I will alternate with the Get Ripped and Live and of course when I get > the Total workout, put those into my routine. > > Again, thanks for asking, and it is great to get back in the groove. > > Sincerely, > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 Hi , I am sorry to hear that you are going through such a tough time right now. Hugs to you.. Please keep us posted on how you and your family are doing. We are hear for you anytime you need us! Darcy > In a message dated 12/16/2001 4:58:35 PM Central Standard Time, > tae-bo_on@y... writes: > > > > , welcome back! How are things going with you? > > > > Elena > > > > Hi Elena, > > Thanks for asking....well...if you remember...I was the one who couldn't get > enough of Tae Bo..well...I have been very, very bad the last couple of > months. Having some health issues with my youngest son (3 1/2) they are > thinking he may be Autistic. He will be going through a bunch of tests in > the next couple of weeks. He will be having a MRI on Wed., and then the next > week and EEG, etc. I will have to wait and see what happens after that. He > is currently " labeled " with Sensory Integration Dysfunction. So of course, > that is pretty depressing for me. But...I came to realize that God will only > give me what he thinks I can handle and he obviously thinks that I can handle > this. I am a very dedicated " mommy " to my 3 boys and I just have to deal > with this and do whatever I can for him. > > Well, to make a long story short. has gotten me back in the mood for > Tae Bo after watching all of them on QVC. I ordered the tapes to add to my > collection and guess what...Monday morning, back on comes the Tae Bo tapes. > I am going to start back with the Inspirational. I really liked that one. > Maybe I will alternate with the Get Ripped and Live and of course when I get > the Total workout, put those into my routine. > > Again, thanks for asking, and it is great to get back in the groove. > > Sincerely, > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2003 Report Share Posted January 30, 2003 Hey, Donna : ) You know I'd love to have you guys over. Your boys especially, I'm sure, would really love to explore our island. But ... you might want to wait a while. I've got a brand new box of tissues beside me as I sit here reading and typing ... and I'm, literally, going to need another soon! Sneezes and sniffles, galore. At least I've made it downstairs today. The children and I had been hibernating upstairs for the past week, coming down only for the barest of essentials. Yup. I finally got what they both had. Including two days of fever. Not fun. Both kids went back to school today. I guess we're on the road to recovery. Sort of : ) Thanks for your input on the list matter. I think it'll work out better going back to the way it used to be, too. Aloha, Georgina ----- Original Message ----- From: faces1999@... Georginna..I hope you are well and the kiddos get better real soon. I agree with this idea to post all on one list..I know I miss info from the other list but I can only manage a few lists ya know..By the way are you ready for company? I am so ready to escape these frigid temps mother nature is dealing us here in KY...lol..be warm and be well...Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2003 Report Share Posted January 31, 2003 Glad to hear you are slowly getting better, Georgina. This one does seem to take a while to get through the body. I want to thank you for the info you posted. I forward so much of this to Chris. Just love the story about the book. How inspiring! Just a quick update on he is in his 2nd week of Track and doing well. Once he got over the fever and cold of this whatever it is, he has been feeling great. He ran (well, most of the way!) two miles with the team. They are also running the stairs and doing weight lifting. I was so worried about all this. He is having no problems so far!! This from a kid who little over a year ago still could not run. I know we have MTX to thank for alot of this and only hope it will continue to work. He goes to the rheumy next week so we shall see what he thinks of all this. Sitting here with my fingers crossed (not easy to type this way! LOL) for his (and all the kids here) continued success, Michele (15, pauci & spondy) -----Original Message-----From: Georgina [mailto:gmckin@...] Sent: Thursday, January 30, 2003 3:08 PM Subject: Re: Digest Number 1866 Hey, Donna : ) You know I'd love to have you guys over. Your boys especially, I'm sure, would really love to explore our island. But ... you might want to wait a while. I've got a brand new box of tissues beside me as I sit here reading and typing ... and I'm, literally, going to need another soon! Sneezes and sniffles, galore. At least I've made it downstairs today. The children and I had been hibernating upstairs for the past week, coming down only for the barest of essentials. Yup. I finally got what they both had. Including two days of fever. Not fun. Both kids went back to school today. I guess we're on the road to recovery. Sort of : ) Thanks for your input on the list matter. I think it'll work out better going back to the way it used to be, too. Aloha, Georgina ----- Original Message ----- From: faces1999@... Georginna..I hope you are well and the kiddos get better real soon. I agree with this idea to post all on one list..I know I miss info from the other list but I can only manage a few lists ya know..By the way are you ready for company? I am so ready to escape these frigid temps mother nature is dealing us here in KY...lol..be warm and be well...Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2003 Report Share Posted August 28, 2003 In a message dated 8/28/03 5:55:01 AM Central Daylight Time, writes: > To the meat.... I am working with a new mother of a baby girl with DS > who is 8 months old as her advocate (apart from working full time). > This women has been walked all over. She is a young mother (22) and > is an extreme minority in our area... and has been taken total > advantage of by the EI system. They are continuing to deny her baby > girl services. At 8 months old her beautiful baby girl has just > recovered from heart surgery (done two months ago) and is still not > showing head control, an extremely poor suck, no verbal sounds at > all, no differentation in cry pitches, no attempts to reach for toys > or objects, etc... She is pretty much at the newborn level. I do not > mean to only state " negatives " ... believe me... this is a beautiful > child who is a true trooper! Anyway, her suck is terrible ... all > attempts to breastfeed have failed (even with a lactation specialist) > and she sucks the nipple with tongue out. She has very little mouth > control and at 8 months... she is labeled " failure to thrive " due to > only taking about 1 oz at a time (every hour, round the clock) before > she tires. Her heart got the final OK by a great cardiologist. But EI > is denying her ST (she get PT once a week and PT has stated to mom > that she does not feel comfortable doing ST things). EI is insisting > that babies do not get ST until they are of " talking age. " We need > help. I need two things... I need a professional that can provide me > with statistics on babies with DS and speech (when to get it, what to > do with a baby with DS, what impact it has on a baby who starts early > with ST, etc..) ... we have provided EI with the resources (Libby > Kumin's books and articles, etc..), but they do not even take the > time to read them or listen about them. Also... I need letters > (emails) from parents stating when their babies with DS got ST, how > often, and how it helped. > > Any help would mean the world to this mother!!!! Thank you soooo much! > > Cheers! > Sara Greenberg > Caseworker: Special Needs Adoptions and Advocacy > Sara, She needs a feeding specialist. It may be an OT or ST. It depends on their training. if there is a local children's hosp. they may be able to direct her. karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2005 Report Share Posted March 25, 2005 In a message dated 3/25/05 1:44:47 PM Eastern Standard Time, writes: > Dad has been in the hospital this week so I'm mostly unavailable these > days. It's been a very difficult time for us---prayers are MOST > welcome. Thanks for all your well wishes my friends. > > love to you all, > > > HI -sending love and prayers to you and your family as you deal with your dad's illness. We are all here for you. :-) Carol J Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2005 Report Share Posted June 2, 2005 In a message dated 6/2/2005 9:01:07 PM Eastern Daylight Time, writes: From: " baileyham2003 " <kelly.hamilton@...> Subject: Dr. Donna s/Reiter/new to group Good morning, I am new to the group, but my 7 year old son began having 30 partial/tonic seizures at day at 3.5 yrs old. He is developmently on track, sweet as pie, resiliant, and very polite. He has tried, failed, and honeymooned on almost every AED out there and is currently on the keto diet for the past 8 months. He either has full or no control. No inbetween. Seizures have returned and while searching epilepsy.com I ran across information on Dr. Donna and Reiter in Califoria (Epilepsy, a New Approach) http://www.andrewsreiter.com/protocol.html and was wondering if anyone on this site has had experience with them. I am very skeptical, so thought I would ask. Any feedback would be greatly appreciated. Thank you all!! (Mom to ) .. ..>>> Mom Don't be skeptical, do it. We've consulted with them off and on since the late 1980's. And, why are you skeptical? mjh http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2005 Report Share Posted June 2, 2005 I would wean VERY SLOWLY..... about a month between dose changes and make sure that there is good vitamin and mineral and dietary support during this period. We found Lobelia inflata extract to be very helpful in stopping gran mal seizures. We used this first and then, if still necessary, would we use epam/Diastat. Status ain't no walk in the park. mjh In a message dated 6/2/2005 9:01:07 PM Eastern Daylight Time, writes: ssage: 8 Date: Sun, 29 May 2005 03:13:42 -0000 From: " mi42779 " <mi42779@...> Subject: Re: Weaning Depakote Tracey, I am about to start weaning my daughter off Depakote, and I would like to know how is doing so far, hope really well. My daughter has been in status twice, even with Diastat I know what it is about...When was in status did she get any Diastat or equivalent? Mickey > Hi everyone, > Just wanted to share with you, we went to our regular six month checkup with > the neuro today and she has recently been to a conference where the speaker > has urged everyone to take women of childbearing years off Depakote. A " new > study " suggests it causes problems in the fetus. > However, so we are going to be weaning starting on June the 12th. Last time > we weaned a med, went into status, so I do not look forward to this > event. > Has anyone in this group weaned Depakote? If so how many mg were weaned per > week? > We are decreasing 125mg per week so she will be Depakote free after 4 weeks, > if everything goes right. > Sincerely, > Tracey > mjh http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2005 Report Share Posted June 6, 2005 Thanks for your feedback! Why am I skeptical? Not quite sure! Just in my blood I guess. I've lost a lot of hope through this ordeal, so I seem to be a bit more skeptical of things. ~ Dr. Donna s/Reiter/new to group Good morning, I am new to the group, but my 7 year old son began having 30 partial/tonic seizures at day at 3.5 yrs old. He is developmently on track, sweet as pie, resiliant, and very polite. He has tried, failed, and honeymooned on almost every AED out there and is currently on the keto diet for the past 8 months. He either has full or no control. No inbetween. Seizures have returned and while searching epilepsy.com I ran across information on Dr. Donna and Reiter in Califoria (Epilepsy, a New Approach) http://www.andrewsreiter.com/protocol.html and was wondering if anyone on this site has had experience with them. I am very skeptical, so thought I would ask. Any feedback would be greatly appreciated. Thank you all!! (Mom to ) . .>>> Mom Don't be skeptical, do it. We've consulted with them off and on since the late 1980's. And, why are you skeptical? mjh http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.