Jump to content
RemedySpot.com

seizures

Rate this topic


Guest guest

Recommended Posts

Guest guest

I still think one of the chickens - producing eggs - are the traumas. Did you treat them? NLP / unconscious react. AND NLP / Brain scan / Hamer Herds. If you understand what QX is coming up with, envision the pain / stress being accepted by you and dissolved by the treatment, I think you cleared your cause / one of them allergies or even seizure gerd! because Hamer herd is - almost - the same as seizure herd... Tried Viscum album for easing the symptoms already ? Noel

Re: Re: seizures

Hi,I have seizures and have learned alot through careful observance in EVERYTHING I eat, breath and touch(and experience) and the subsequent correlations between cetain exposures and this problem. It would take a book to discuss what I have learned and discovered. What I want to convey right now is there will be noticable improvement by foregoing eggs and chicken(and all red and purple fruits). I have found the eggs and chicken more significant, however. These items contain malvin which is a kown seizure trigger(malvin is also a neurotransmitter). This past January I thought I was getting better so I ate some chicken wings and had seizure problems for the next five days. Even though I had a head injury from a car accident(which I first blamed the seizures on--though they began 1 1/2 yrs. later) I did not experience seizures til I obtained an "unknown" gut infection(which still persists). With leaky gut following, I started getting massive allergies and chemical sensitivities(as an added note of interest---I have met several practitioners who have told me that ALL their head trauma clents have MANY allergies and chemical sensitivities----and an intolerance of casein and gluten----including myself in this generality). Many items for which I have a sensitivity trigger(various types of) seizures. I get treated by a woman who is not well known(perhaps by only a few)who once had grand mal seizures and she is now seizure-free. She cured herself. I now use her method to clear the items for which I react and the seizures are lessing steadily with time. Seizures are not the only benefit----also, ADD, ADHD, autistic behaviors, anxiety, depression, sleep disorders, memory, concentration, and the list of symptoms(for that is what they truly are---and not conditions for which doctors label--such as lupus, MS, cancer, etc.)goes on. I believe most conditions have their origin in an allergy that went untreated(interestingly, I found this same belief--conviction---mentioned in the book, Vibrational Medicine). Have your client try NAET(or they could get help from the same woman who has helped me). I have owned a QX for 4 years. The QX has not helped this problem, but a simple technique has. I use each in conjunction. Laurel............................................

Link to comment
Share on other sites

Guest guest

It was quite a while ago, but I know I had hammerherds come up)over and over) and I treated them. Nlp, I can't remember. Thanks for the input, and will do more once i settle into my new move.

Laurel

In a message dated 6/9/03 12:57:10 PM Eastern Daylight Time, N.vandermullen@... writes:

Subj:Re: Re: seizures

Date:6/9/03 12:57:10 PM Eastern Daylight Time

From:N.vandermullen@...

Reply-to:qxci-english

To:qxci-english

Sent from the Internet

I still think one of the chickens - producing eggs - are the traumas. Did you treat them? NLP / unconscious react. AND NLP / Brain scan / Hamer Herds. If you understand what QX is coming up with, envision the pain / stress being accepted by you and dissolved by the treatment, I think you cleared your cause / one of them allergies or even seizure gerd! because Hamer herd is - almost - the same as seizure herd... Tried Viscum album for easing the symptoms already ? Noel

Re: Re: seizures

Hi,

I have seizures and have learned alot through careful observance in

EVERYTHING I eat, breath and touch(and experience) and the subsequent correlations

between cetain exposures and this problem. It would take a book to discuss what I

have learned and discovered.

What I want to convey right now is there will be noticable improvement by

foregoing eggs and chicken(and all red and purple fruits). I have found the eggs

and chicken more significant, however. These items contain malvin which is a

kown seizure trigger(malvin is also a neurotransmitter). This past January I

thought I was getting better so I ate some chicken wings and had seizure

problems for the next five days.

Even though I had a head injury from a car accident(which I first blamed the

seizures on--though they began 1 1/2 yrs. later) I did not experience seizures

til I obtained an "unknown" gut infection(which still persists). With leaky

gut following, I started getting massive allergies and chemical

sensitivities(as an added note of interest---I have met several practitioners who have told

me that ALL their head trauma clents have MANY allergies and chemical

sensitivities----and an intolerance of casein and gluten----including myself in this

generality). Many items for which I have a sensitivity trigger(various types of)

seizures. I get treated by a woman who is not well known(perhaps by only a

few)who once had grand mal seizures and she is now seizure-free. She cured

herself. I now use her method to clear the items for which I react and the seizures

are lessing steadily with time. Seizures are not the only benefit----also,

ADD, ADHD, autistic behaviors, anxiety, depression, sleep disorders, memory,

concentration, and the list of symptoms(for that is what they truly are---and not

conditions for which doctors label--such as lupus, MS, cancer, etc.)goes on.

I believe most conditions have their origin in an allergy that went

untreated(interestingly, I found this same belief--conviction---mentioned in the book,

Vibrational Medicine).

Have your client try NAET(or they could get help from the same woman who has

helped me). I have owned a QX for 4 years. The QX has not helped this

problem, but a simple technique has. I use each in conjunction.

Laurel

Link to comment
Share on other sites

  • 4 years later...

Please, stop the Rhytmical movement imedeatly - we find several other very close

cases after these movements for children with close diagnosis. We are very

successful with reflex reparrening and sisures. Start for your grandson with

Hands Supporting in cha-cha rhythm. This will exchange the Rhythmical movements.

Start with 30-40 second for each part. - three time a week, At the begining he

can give the sigh close to the same reaction - later it will let go. I hope you

know this exercise. And work on Fear paralyses pattern - twicw a week. If you

don't know the exercises - you need to learn them. Please, call - she is

the person that comes to my mind at the moment who describes these well.

All the best, Svetlana.

Rae <raeofhope1@...> wrote:

Question for Svetlana, et al

Our grandson, has Tuberous Sclerosis and has seizures. It seems

every time we are in the middle of giving him the Rhythmic exercises, he has

a seizure. Should we cut back?

He was the one with the extensive issues in the MRI I posted.

History:

CNS malformation associated with tuberous sclerosis. A follow-up comparison

6/24/05 and 4/25/05.

Findings:

Technique: Sagittal T1, axial T2, axial Flair, coronal flair, axial

diffusion images. Coronal MPGR, coronal SPGR. Axial T!. Post gadolinium

axial and coronal T1.

Patient has a mild enlargement of the third ventricle with normal size of

other ventricles. There are several sub ependymal nodular densities some of

which display enhancement in the frontal and right postero parietal region

of the lateral ventricle. In the right parieto-occipital region of the

lateral ventricle. In the right parieto-occipital region there is extensive

abnormality of cortex and subcortical white matter with thickening and

abnormal signal associated with the cortex and a laminar decrease in signal

on long TR sequences at the gray-white junction. Similar finding is evident

in the right insular lobe superiorly with more extensive loss of signal than

was present previously. Patient has subtle areas of linear subcortical

increased signal near the parietal vertex and in the left temporal lobe.

Abnormality of the white matter adjacent to the atrium of the right lateral

ventricle with mass effect upon the atrium and slight enhancement are again

noted.

Impression:

Extensive changes of tuberous sclerosis with sub ependymal nodules and

regions of cortical tuber formation with laminar calcification more

extensive than previous. Other subtle subcortical white matter signal

abnormalities are evident as is typical of this entity. There is no

evidence of development of dominant mass of the brain. No abnormality of

the orbit or retina is visible.

Rizzo M MD

DD: 07/06/2007

Rae

On 10/11/07, Sandya Sandya <sandya_prasad67@...> wrote:

>

> Hi,

> I am Sandya from Singapore. I have a 5 year old Autistic son. Recently I

> attended Dr Svetlana's free talk & came to know some of her methods.

> regards,

> Sandya

>

> ---------------------------------

> Movies - Search movie info and celeb profiles and photos.

>

>

Link to comment
Share on other sites

Thank you so much, Svetlana.

Rae

On 10/13/07, Svetlana Masgutova <masgutova@...> wrote:

>

> Please, stop the Rhytmical movement imedeatly - we find several other

> very close cases after these movements for children with close diagnosis. We

> are very successful with reflex reparrening and sisures. Start for your

> grandson with Hands Supporting in cha-cha rhythm. This will exchange the

> Rhythmical movements. Start with 30-40 second for each part. - three time a

> week, At the begining he can give the sigh close to the same reaction -

> later it will let go. I hope you know this exercise. And work on Fear

> paralyses pattern - twicw a week. If you don't know the exercises - you need

> to learn them. Please, call - she is the person that comes to my

> mind at the moment who describes these well.

> All the best, Svetlana.

>

>

> Rae <raeofhope1@... <raeofhope1%40gmail.com>> wrote:

> Question for Svetlana, et al

>

> Our grandson, has Tuberous Sclerosis and has seizures. It seems

> every time we are in the middle of giving him the Rhythmic exercises, he

> has

> a seizure. Should we cut back?

>

> He was the one with the extensive issues in the MRI I posted.

> History:

> CNS malformation associated with tuberous sclerosis. A follow-up

> comparison

> 6/24/05 and 4/25/05.

>

> Findings:

> Technique: Sagittal T1, axial T2, axial Flair, coronal flair, axial

> diffusion images. Coronal MPGR, coronal SPGR. Axial T!. Post gadolinium

> axial and coronal T1.

>

> Patient has a mild enlargement of the third ventricle with normal size of

> other ventricles. There are several sub ependymal nodular densities some

> of

> which display enhancement in the frontal and right postero parietal region

> of the lateral ventricle. In the right parieto-occipital region of the

> lateral ventricle. In the right parieto-occipital region there is

> extensive

> abnormality of cortex and subcortical white matter with thickening and

> abnormal signal associated with the cortex and a laminar decrease in

> signal

> on long TR sequences at the gray-white junction. Similar finding is

> evident

> in the right insular lobe superiorly with more extensive loss of signal

> than

> was present previously. Patient has subtle areas of linear subcortical

> increased signal near the parietal vertex and in the left temporal lobe.

> Abnormality of the white matter adjacent to the atrium of the right

> lateral

> ventricle with mass effect upon the atrium and slight enhancement are

> again

> noted.

>

> Impression:

> Extensive changes of tuberous sclerosis with sub ependymal nodules and

> regions of cortical tuber formation with laminar calcification more

> extensive than previous. Other subtle subcortical white matter signal

> abnormalities are evident as is typical of this entity. There is no

> evidence of development of dominant mass of the brain. No abnormality of

> the orbit or retina is visible.

>

> Rizzo M MD

>

> DD: 07/06/2007

> Rae

>

> On 10/11/07, Sandya Sandya

<sandya_prasad67@...<sandya_prasad67%40.sg>>

> wrote:

> >

> > Hi,

> > I am Sandya from Singapore. I have a 5 year old Autistic son. Recently I

> > attended Dr Svetlana's free talk & came to know some of her methods.

> > regards,

> > Sandya

> >

> > ---------------------------------

> > Movies - Search movie info and celeb profiles and photos.

> >

> >

Link to comment
Share on other sites

  • 2 years later...
Guest guest

Hi :

I hope that I understand your question. The reason why food is important is

because

some people who are prone to seizures, find that certain foods trigger seizures

in them,

It somehow irritates the brain by upsetting the chemistry and causing electrical

trouble.

You can experiment by withdrawing all those foods from your diet and then

introduce them one at the time.  Keep a journal and see if any of them affect

you.  remember that the effects could be felt the next morning or day.  So be

careful!

Food is also important to nourish your brain!  The right kind of food!

good luck

linda

From: <douglasbraunworth@...>

Subject: [ ] Seizures

Date: Friday, March 12, 2010, 8:12 AM

 

After reading a few of the commments/questions about my question about

seizures, and reading others questions, I do have one more I would like to ask.

I was asked about my diet and I have read others questions about this same

thing. I am wondering how diet works into this, as far as being the reason for

a seizure. If I was missing something in my diet causing this it would seem to

make sense that if I go to a third world country where they are lucky to be

alive because of poor nutrition, I would think epilepsy would be running rampant

there. Yet I have not heard this ever being brought up as a national epidemic

anywhere, especially when they are asking for food for some of those countries.

I have helped pack food for some of those countries and never once was epilepsy

brought up as the reason as why they need to get the food to them. Can somebody

explain what I might be missing on this? thanks again.

Link to comment
Share on other sites

  • 7 months later...

Hello, my son has grand mal seizures. He seems to have them in response to

certain foods (gluten, dairy, vegetable oils, nuts) and chemical exposures

(perfumes, paints, etc). Has anyone ever had their seizures go away on this

diet?

Thanks,

Link to comment
Share on other sites

Hi ,

Bee's diet is the perfect for anyone with epilepsy. Did you know that the

preferred treatment for epilepsy is a ketogenic diet and has been used since the

1920s to cure epilepsy? A ketogenic diet is called that because it puts the

body into ketosis (fat burning) by eating low carbs and high fat.

In October, I attended a parent's conference for kids with epilepsy using the

ketogenic diet for treatment. It was a medical-based conference, but a lot the

same ideas apply to Bee's program. One thing that I took away from that

conference that I was surprised to hear the medical community say was that a

ketogenic diet (Bee's diet) has neuro-protective qualities, meaning that eating

this way and being in ketosis actually helps to protect the nerves.

If you Google epilepsy and ketogenic diet, you will find a lot of information

about it. In particular, you can read up on the treatment of epilepsy through a

website called The Charlie Foundation and another one called 's Friends.

For the most part, the traditional ketogenic diet is very similar to Bee's. The

main difference is that it allows cream and cheese as well as aspartame and

other artificial sweeteners. Bee's program is much more about using healthy

foods to heal the whole body, not just reduce seizures.

I hope that helps. If you have more questions, I'm happy to help.

Group Moderator

>

> Hello, my son has grand mal seizures. He seems to have them in response to

certain foods (gluten, dairy, vegetable oils, nuts) and chemical exposures

(perfumes, paints, etc). Has anyone ever had their seizures go away on this

diet?

>

> Thanks,

>

Link to comment
Share on other sites

Hi , My daughter was not epileptic but was severely poorly before we

intervened with her diet. She would become severely and life threateningly

poorly when exposed to certain foods, allergens and chemicals (anaphylasis and

extreme asthma). We couldn't in the end take her to shops, public buildings,

museums, other people's houses etc, and could only tolerate a tiny ammount of

foods. She also suffered severe inflamation of the brain; autism, hyperactivity,

psycosis, OCD, etc. She was also painfully skinny. All of these things are

healing, except when in a major detox she is symptom free. Many autistic kids

suffer from epilepsy, I've read research that it is one of the many ways a very

poorly body responds to toxicity. As with my daughter you will have to go VERY

slowly and I will be more than happy to help you with that, you do not want him

to detox too fast. It will take a while to heal but it will be so worth the

work, you are indeed fortunate to find Bee at this stage and before he went on

meds. This is a marvelous way to heal the brain so try not to worry too much. My

daughter was totally debilitated mentally but is now way ahead of her peers -

and not skinny at all! Hope this helps.

>

> Hello, my son has grand mal seizures. He seems to have them in response to

certain foods (gluten, dairy, vegetable oils, nuts) and chemical exposures

(perfumes, paints, etc). Has anyone ever had their seizures go away on this

diet?

>

> Thanks,

>

Link to comment
Share on other sites

  • 5 months later...
Guest guest

We use Rubin for our son's seizure management. She's worked

well with us.

On Thu, 5 May 2011 03:59:48 +0000 " Beata Kruss "

<beatajoanna@...> writes:

> Can anybody suggest an excellent neurologist specializing in seizures

> at Children's?

> Thank you!

> B. Kruss

> Beata Kruss

>

>

>

> ------------------------------------

>

>

Link to comment
Share on other sites

Guest guest

My son saw Dr. Katerji when he was younger for ADHD and behavioal issues. Dr.

Katerji was excellent.

Seizures

Can anybody suggest an excellent neurologist specializing in seizures at

Children's?

Thank you!

B. Kruss

Beata Kruss

------------------------------------

Link to comment
Share on other sites

Guest guest

My son still sees Dr Katerji and he is 21 yrs old.....

He has a few offices.  If your interested his number is 630-717-0228.  I have

his card infront of me.

I just talked to him the other day.

Liz Y

 

PS:   He is at Advocate Hope Childrens Hospital.

My son saw Dr. Katerji when he was younger for ADHD and behavioal issues. Dr.

Katerji was excellent.

Seizures

Can anybody suggest an excellent neurologist specializing in seizures at

Children's?

Thank you!

B. Kruss

Beata Kruss

------------------------------------

Link to comment
Share on other sites

Guest guest

My son has a great neurologist at Loyola.

________________________________

From: " grzywa@... " <grzywa@...>

IPADDUnite

Sent: Thu, May 5, 2011 5:26:37 AM

Subject: Re: Seizures

We use Rubin for our son's seizure management.  She's worked

well with us.

On Thu, 5 May 2011 03:59:48 +0000 " Beata Kruss "

<beatajoanna@...> writes:

> Can anybody suggest an excellent neurologist specializing in seizures

> at Children's?

> Thank you!

> B. Kruss

> Beata Kruss

>

>

>

> ------------------------------------

>

>

Link to comment
Share on other sites

Guest guest

We just went through Dr. Swisher at Children's Memorial Hospital less than a

month ago. I would say it's not about the doctor. It's about understanding the

types of seizures, medication management and being an educated consumer of the

professionals. IF we would have followed the instant direction of the

neurologist and not questioned the fellow's report and his findings, my son

would have been getting a medication that would not have benefited his health or

future. He has classic ADHD, ODD and a moderate speech disorder. I think each

experience is different and the findings, your questions, your efforts to become

educated in their language are the driving force for your child's future. I

hesitate to say any doctor is excellent. They are only people with their

individual experiences too. You are the expert of your child! We have seen Dr.

Katerji as well. Just a thought.  

Visser

708/296-2812 Cellular Phone

Let no debt remain outstanding, except the continuing debt to love one another,

for he who loves his fellowman has fulfilled the law. Romans 13:8

(Please note: I provide general information regarding medical research,

treatment options, seminars, workshops, therapies and nutrition to the special

needs community.The information comes from a variety of sources, and I do not

independently verify any of it. No emails should be construed as medical or

legal advice. Always consult your child's doctor regarding his or her individual

needs.)

From: Jerue Family <jeruefamily@...>

Subject: Re: Seizures

IPADDUnite

Date: Thursday, May 5, 2011, 7:51 AM

Does it have to be Children's?  Because Rush has some excellent neurologists

who specialize in epilepsy/seizure management.

Seizures

Can anybody suggest an excellent neurologist specializing in seizures at

Children's?

Thank you!

B. Kruss

Beata Kruss

------------------------------------

Link to comment
Share on other sites

Guest guest

This is what I exactly meant-- " my " current drs find my son's seizures

" mysterious " I would like a Dr who can answer my questions when I find myself

scared and frustrated.

This is so new to me, and I'm educating myself in this new experience...

Dr. Swisher saw us too, but then we were " transferred " to a young Dr who doesn't

call me back...

Thanks to all for suggestions!

B.

Beata Kruss

Seizures

Can anybody suggest an excellent neurologist specializing in seizures at

Children's?

Thank you!

B. Kruss

Beata Kruss

------------------------------------

Link to comment
Share on other sites

Guest guest

I took my son to Dr. Swisher in 1996, is this Swisher? He must be 80 by

now, LOL

H.

Re: Seizures

We just went through Dr. Swisher at Children's Memorial Hospital less than a

onth ago. I would say it's not about the doctor. It's about understanding the

ypes of seizures, medication management and being an educated consumer of the

rofessionals. IF we would have followed the instant direction of the

eurologist and not questioned the fellow's report and his findings, my son

ould have been getting a medication that would not have benefited his health or

uture. He has classic ADHD, ODD and a moderate speech disorder. I think each

xperience is different and the findings, your questions, your efforts to become

ducated in their language are the driving force for your child's future. I

esitate to say any doctor is excellent. They are only people with their

ndividual experiences too. You are the expert of your child! We have seen Dr.

aterji as well. Just a thought.

hannon Visser

08/296-2812 Cellular Phone

et no debt remain outstanding, except the continuing debt to love one another,

or he who loves his fellowman has fulfilled the law. Romans 13:8

Please note: I provide general information regarding medical research,

reatment options, seminars, workshops, therapies and nutrition to the special

eeds community.The information comes from a variety of sources, and I do not

ndependently verify any of it. No emails should be construed as medical or

egal advice. Always consult your child's doctor regarding his or her individual

eeds.)

rom: Jerue Family <jeruefamily@...>

ubject: Re: Seizures

o: IPADDUnite

ate: Thursday, May 5, 2011, 7:51 AM

oes it have to be Children's? Because Rush has some excellent neurologists

ho specialize in epilepsy/seizure management.

-----Original Message-----

rom: Beata Kruss

ent: Wednesday, May 04, 2011 10:59 PM

o: IPADDUnite

ubject: Seizures

Can anybody suggest an excellent neurologist specializing in seizures at

hildren's?

hank you!

.. Kruss

eata Kruss

------------------------------------

Link to comment
Share on other sites

Guest guest

lol...I was thinking the same thing. My daughter saw him back in the 90's too.

 Dana

________________________________

From: " sunshinebeaches3@... " <sunshinebeaches3@...>

IPADDUnite

Sent: Thu, May 5, 2011 12:46:23 PM

Subject: Re: Seizures

 

I took my son to Dr. Swisher in 1996, is this Swisher? He must be 80 by

now, LOL

H.

Re: Seizures

We just went through Dr. Swisher at Children's Memorial Hospital less than a

onth ago. I would say it's not about the doctor. It's about understanding the

ypes of seizures, medication management and being an educated consumer of the

rofessionals. IF we would have followed the instant direction of the

eurologist and not questioned the fellow's report and his findings, my son

ould have been getting a medication that would not have benefited his health or

uture. He has classic ADHD, ODD and a moderate speech disorder. I think each

xperience is different and the findings, your questions, your efforts to become

ducated in their language are the driving force for your child's future. I

esitate to say any doctor is excellent. They are only people with their

ndividual experiences too. You are the expert of your child! We have seen Dr.

aterji as well. Just a thought.

hannon Visser

08/296-2812 Cellular Phone

et no debt remain outstanding, except the continuing debt to love one another,

or he who loves his fellowman has fulfilled the law. Romans 13:8

Please note: I provide general information regarding medical research,

reatment options, seminars, workshops, therapies and nutrition to the special

eeds community.The information comes from a variety of sources, and I do not

ndependently verify any of it. No emails should be construed as medical or

egal advice. Always consult your child's doctor regarding his or her individual

eeds.)

rom: Jerue Family <jeruefamily@...>

ubject: Re: Seizures

o: IPADDUnite

ate: Thursday, May 5, 2011, 7:51 AM

oes it have to be Children's? Because Rush has some excellent neurologists

ho specialize in epilepsy/seizure management.

-----Original Message-----

rom: Beata Kruss

ent: Wednesday, May 04, 2011 10:59 PM

o: IPADDUnite

ubject: Seizures

Can anybody suggest an excellent neurologist specializing in seizures at

hildren's?

hank you!

.. Kruss

eata Kruss

------------------------------------

Link to comment
Share on other sites

Guest guest

I think he was about the only one around then who saw kids. I just came across

his report to my pediatrician when going through old files! never had

seizures and I remember him saying that he didn't like to give kids a " label " at

such a young age.

Re: Seizures

lol...I was thinking the same thing. My daughter saw him back in the 90's too.

Dana

_______________________________

rom: " sunshinebeaches3@... " <sunshinebeaches3@...>

o: IPADDUnite

ent: Thu, May 5, 2011 12:46:23 PM

ubject: Re: Seizures

I took my son to Dr. Swisher in 1996, is this Swisher? He must be 80 by

ow, LOL

ary H.

-----Original Message-----

rom: shannon visser <shannonvisser@...>

o: IPADDUnite <IPADDUnite >

ent: Thu, May 5, 2011 11:59 am

ubject: Re: Seizures

We just went through Dr. Swisher at Children's Memorial Hospital less than a

nth ago. I would say it's not about the doctor. It's about understanding the

pes of seizures, medication management and being an educated consumer of the

ofessionals. IF we would have followed the instant direction of the

urologist and not questioned the fellow's report and his findings, my son

uld have been getting a medication that would not have benefited his health or

ture. He has classic ADHD, ODD and a moderate speech disorder. I think each

perience is different and the findings, your questions, your efforts to become

ucated in their language are the driving force for your child's future. I

sitate to say any doctor is excellent. They are only people with their

dividual experiences too. You are the expert of your child! We have seen Dr.

terji as well. Just a thought.

hannon Visser

8/296-2812 Cellular Phone

t no debt remain outstanding, except the continuing debt to love one another,

r he who loves his fellowman has fulfilled the law. Romans 13:8

lease note: I provide general information regarding medical research,

eatment options, seminars, workshops, therapies and nutrition to the special

eds community.The information comes from a variety of sources, and I do not

dependently verify any of it. No emails should be construed as medical or

gal advice. Always consult your child's doctor regarding his or her individual

eds.)

-- On Thu, 5/5/11, Jerue Family <jeruefamily@...> wrote:

rom: Jerue Family <jeruefamily@...>

bject: Re: Seizures

: IPADDUnite

te: Thursday, May 5, 2011, 7:51 AM

oes it have to be Children's? Because Rush has some excellent neurologists

o specialize in epilepsy/seizure management.

----Original Message-----

om: Beata Kruss

nt: Wednesday, May 04, 2011 10:59 PM

: IPADDUnite

bject: Seizures

an anybody suggest an excellent neurologist specializing in seizures at

ildren's?

ank you!

Kruss

ata Kruss

------------------------------------

ahoo! Groups Links

------------------------------------

ahoo! Groups Links

Link to comment
Share on other sites

Guest guest

My neighbor came to me,She has a friend who son (under age 18) who has

seizures.He is on meds

that cost 1800.00 a month.There insurance Blue Cross Blue Shields has stopped

paying for the med

saying he is out of benefits,capped out.As of this date,they pay for the meds

because their son needs them.They

make too much money for medicaid or any prescription programs with the

maker.This has been a financial

buren on them.  Please any suggestions how they can get help or where to go to

get help paying for

this medication?????

Switch to: Text-Only , Daily Digest • Unsubscribe • Terms of Use

..

Link to comment
Share on other sites

Guest guest

Bridges to Access

1866-728-4368

________________________________

From: " bethdamen@... " <bethdamen@...>

IPADDUnite

Sent: Thu, May 5, 2011 2:13:29 PM

Subject: Re: Seizures

 

My neighbor came to me,She has a friend who son (under age 18) who has

seizures.He is on meds

that cost 1800.00 a month.There insurance Blue Cross Blue Shields has stopped

paying for the med

saying he is out of benefits,capped out.As of this date,they pay for the meds

because their son needs them.They

make too much money for medicaid or any prescription programs with the

maker.This has been a financial

buren on them.  Please any suggestions how they can get help or where to go to

get help paying for

this medication?????

Switch to: Text-Only , Daily Digest • Unsubscribe • Terms of Use

..

Link to comment
Share on other sites

Guest guest

Would there be a possibility that the family could contact the drug company

directly?  You hear (don't know if it is true), that some drug companies offer

assistance to obtain their drugs.

From: bethdamen@... <bethdamen@...>

Subject: Re: Seizures

IPADDUnite

Date: Thursday, May 5, 2011, 7:13 PM

 

My neighbor came to me,She has a friend who son (under age 18) who has

seizures.He is on meds

that cost 1800.00 a month.There insurance Blue Cross Blue Shields has stopped

paying for the med

saying he is out of benefits,capped out.As of this date,they pay for the meds

because their son needs them.They

make too much money for medicaid or any prescription programs with the

maker.This has been a financial

buren on them.  Please any suggestions how they can get help or where to go to

get help paying for

this medication?????

Switch to: Text-Only , Daily Digest • Unsubscribe • Terms of Use

..

Link to comment
Share on other sites

Guest guest

We used to see D. Ritacco.

From: Beata Kruss <beatajoanna@...>

Subject: Seizures

" IPADDUnite " <IPADDUnite >

Date: Thursday, May 5, 2011, 3:59 AM

Can anybody suggest an excellent neurologist specializing in seizures at

Children's?

Thank you!

B. Kruss

Beata Kruss

------------------------------------

Link to comment
Share on other sites

Guest guest

Beatta

Evan goes to dr kohrman at university of Chicago medical center. He's

always very interested in Evan, stops talking to listen to whatever evan has to

say. He's the head of the pediatric neurology dept. He usually has a team that

follows him, but he always remembers Evan and he always sees him. I've been

very happy with him.

On May 5, 2011, at 12:05, " Beata Kruss " <beatajoanna@...> wrote:

> This is what I exactly meant-- " my " current drs find my son's seizures

" mysterious " I would like a Dr who can answer my questions when I find myself

scared and frustrated.

> This is so new to me, and I'm educating myself in this new experience...

> Dr. Swisher saw us too, but then we were " transferred " to a young Dr who

doesn't call me back...

> Thanks to all for suggestions!

> B.

> Beata Kruss

>

> Seizures

>

> Can anybody suggest an excellent neurologist specializing in seizures at

> Children's?

> Thank you!

> B. Kruss

> Beata Kruss

>

> ------------------------------------

>

>

Link to comment
Share on other sites

Guest guest

We saw Dr. Heydemann at Rush for several years. Of the three neurologists

we've seen, he took the most time with us, answered the most questions and

seemed to be the most thorough. We were very happy under his care.

Holly

>

> Can anybody suggest an excellent neurologist specializing in seizures at

Children's?

> Thank you!

> B. Kruss

> Beata Kruss

>

Link to comment
Share on other sites

Guest guest

We started with Swisher too, years ago and he was old then. :-)

There is a Dr. Nordli at Children's. A Dr. Kent Kelley used to be there

and is now at Northshore/ ton Hospital etc. My son sees him now. We are

dealing with a rare seizure disorder.

Good luck.

>

> Does it have to be Children's? Because Rush has some excellent neurologists

> who specialize in epilepsy/seizure management.

>

> Seizures

>

> Can anybody suggest an excellent neurologist specializing in seizures at

> Children's?

> Thank you!

> B. Kruss

> Beata Kruss

>

>

>

> ------------------------------------

>

>

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...