Guest guest Posted June 9, 2003 Report Share Posted June 9, 2003 I still think one of the chickens - producing eggs - are the traumas. Did you treat them? NLP / unconscious react. AND NLP / Brain scan / Hamer Herds. If you understand what QX is coming up with, envision the pain / stress being accepted by you and dissolved by the treatment, I think you cleared your cause / one of them allergies or even seizure gerd! because Hamer herd is - almost - the same as seizure herd... Tried Viscum album for easing the symptoms already ? Noel Re: Re: seizures Hi,I have seizures and have learned alot through careful observance in EVERYTHING I eat, breath and touch(and experience) and the subsequent correlations between cetain exposures and this problem. It would take a book to discuss what I have learned and discovered. What I want to convey right now is there will be noticable improvement by foregoing eggs and chicken(and all red and purple fruits). I have found the eggs and chicken more significant, however. These items contain malvin which is a kown seizure trigger(malvin is also a neurotransmitter). This past January I thought I was getting better so I ate some chicken wings and had seizure problems for the next five days. Even though I had a head injury from a car accident(which I first blamed the seizures on--though they began 1 1/2 yrs. later) I did not experience seizures til I obtained an "unknown" gut infection(which still persists). With leaky gut following, I started getting massive allergies and chemical sensitivities(as an added note of interest---I have met several practitioners who have told me that ALL their head trauma clents have MANY allergies and chemical sensitivities----and an intolerance of casein and gluten----including myself in this generality). Many items for which I have a sensitivity trigger(various types of) seizures. I get treated by a woman who is not well known(perhaps by only a few)who once had grand mal seizures and she is now seizure-free. She cured herself. I now use her method to clear the items for which I react and the seizures are lessing steadily with time. Seizures are not the only benefit----also, ADD, ADHD, autistic behaviors, anxiety, depression, sleep disorders, memory, concentration, and the list of symptoms(for that is what they truly are---and not conditions for which doctors label--such as lupus, MS, cancer, etc.)goes on. I believe most conditions have their origin in an allergy that went untreated(interestingly, I found this same belief--conviction---mentioned in the book, Vibrational Medicine). Have your client try NAET(or they could get help from the same woman who has helped me). I have owned a QX for 4 years. The QX has not helped this problem, but a simple technique has. I use each in conjunction. Laurel............................................ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2003 Report Share Posted June 11, 2003 It was quite a while ago, but I know I had hammerherds come up)over and over) and I treated them. Nlp, I can't remember. Thanks for the input, and will do more once i settle into my new move. Laurel In a message dated 6/9/03 12:57:10 PM Eastern Daylight Time, N.vandermullen@... writes: Subj:Re: Re: seizures Date:6/9/03 12:57:10 PM Eastern Daylight Time From:N.vandermullen@... Reply-to:qxci-english To:qxci-english Sent from the Internet I still think one of the chickens - producing eggs - are the traumas. Did you treat them? NLP / unconscious react. AND NLP / Brain scan / Hamer Herds. If you understand what QX is coming up with, envision the pain / stress being accepted by you and dissolved by the treatment, I think you cleared your cause / one of them allergies or even seizure gerd! because Hamer herd is - almost - the same as seizure herd... Tried Viscum album for easing the symptoms already ? Noel Re: Re: seizures Hi, I have seizures and have learned alot through careful observance in EVERYTHING I eat, breath and touch(and experience) and the subsequent correlations between cetain exposures and this problem. It would take a book to discuss what I have learned and discovered. What I want to convey right now is there will be noticable improvement by foregoing eggs and chicken(and all red and purple fruits). I have found the eggs and chicken more significant, however. These items contain malvin which is a kown seizure trigger(malvin is also a neurotransmitter). This past January I thought I was getting better so I ate some chicken wings and had seizure problems for the next five days. Even though I had a head injury from a car accident(which I first blamed the seizures on--though they began 1 1/2 yrs. later) I did not experience seizures til I obtained an "unknown" gut infection(which still persists). With leaky gut following, I started getting massive allergies and chemical sensitivities(as an added note of interest---I have met several practitioners who have told me that ALL their head trauma clents have MANY allergies and chemical sensitivities----and an intolerance of casein and gluten----including myself in this generality). Many items for which I have a sensitivity trigger(various types of) seizures. I get treated by a woman who is not well known(perhaps by only a few)who once had grand mal seizures and she is now seizure-free. She cured herself. I now use her method to clear the items for which I react and the seizures are lessing steadily with time. Seizures are not the only benefit----also, ADD, ADHD, autistic behaviors, anxiety, depression, sleep disorders, memory, concentration, and the list of symptoms(for that is what they truly are---and not conditions for which doctors label--such as lupus, MS, cancer, etc.)goes on. I believe most conditions have their origin in an allergy that went untreated(interestingly, I found this same belief--conviction---mentioned in the book, Vibrational Medicine). Have your client try NAET(or they could get help from the same woman who has helped me). I have owned a QX for 4 years. The QX has not helped this problem, but a simple technique has. I use each in conjunction. Laurel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 Please, stop the Rhytmical movement imedeatly - we find several other very close cases after these movements for children with close diagnosis. We are very successful with reflex reparrening and sisures. Start for your grandson with Hands Supporting in cha-cha rhythm. This will exchange the Rhythmical movements. Start with 30-40 second for each part. - three time a week, At the begining he can give the sigh close to the same reaction - later it will let go. I hope you know this exercise. And work on Fear paralyses pattern - twicw a week. If you don't know the exercises - you need to learn them. Please, call - she is the person that comes to my mind at the moment who describes these well. All the best, Svetlana. Rae <raeofhope1@...> wrote: Question for Svetlana, et al Our grandson, has Tuberous Sclerosis and has seizures. It seems every time we are in the middle of giving him the Rhythmic exercises, he has a seizure. Should we cut back? He was the one with the extensive issues in the MRI I posted. History: CNS malformation associated with tuberous sclerosis. A follow-up comparison 6/24/05 and 4/25/05. Findings: Technique: Sagittal T1, axial T2, axial Flair, coronal flair, axial diffusion images. Coronal MPGR, coronal SPGR. Axial T!. Post gadolinium axial and coronal T1. Patient has a mild enlargement of the third ventricle with normal size of other ventricles. There are several sub ependymal nodular densities some of which display enhancement in the frontal and right postero parietal region of the lateral ventricle. In the right parieto-occipital region of the lateral ventricle. In the right parieto-occipital region there is extensive abnormality of cortex and subcortical white matter with thickening and abnormal signal associated with the cortex and a laminar decrease in signal on long TR sequences at the gray-white junction. Similar finding is evident in the right insular lobe superiorly with more extensive loss of signal than was present previously. Patient has subtle areas of linear subcortical increased signal near the parietal vertex and in the left temporal lobe. Abnormality of the white matter adjacent to the atrium of the right lateral ventricle with mass effect upon the atrium and slight enhancement are again noted. Impression: Extensive changes of tuberous sclerosis with sub ependymal nodules and regions of cortical tuber formation with laminar calcification more extensive than previous. Other subtle subcortical white matter signal abnormalities are evident as is typical of this entity. There is no evidence of development of dominant mass of the brain. No abnormality of the orbit or retina is visible. Rizzo M MD DD: 07/06/2007 Rae On 10/11/07, Sandya Sandya <sandya_prasad67@...> wrote: > > Hi, > I am Sandya from Singapore. I have a 5 year old Autistic son. Recently I > attended Dr Svetlana's free talk & came to know some of her methods. > regards, > Sandya > > --------------------------------- > Movies - Search movie info and celeb profiles and photos. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2007 Report Share Posted October 14, 2007 Thank you so much, Svetlana. Rae On 10/13/07, Svetlana Masgutova <masgutova@...> wrote: > > Please, stop the Rhytmical movement imedeatly - we find several other > very close cases after these movements for children with close diagnosis. We > are very successful with reflex reparrening and sisures. Start for your > grandson with Hands Supporting in cha-cha rhythm. This will exchange the > Rhythmical movements. Start with 30-40 second for each part. - three time a > week, At the begining he can give the sigh close to the same reaction - > later it will let go. I hope you know this exercise. And work on Fear > paralyses pattern - twicw a week. If you don't know the exercises - you need > to learn them. Please, call - she is the person that comes to my > mind at the moment who describes these well. > All the best, Svetlana. > > > Rae <raeofhope1@... <raeofhope1%40gmail.com>> wrote: > Question for Svetlana, et al > > Our grandson, has Tuberous Sclerosis and has seizures. It seems > every time we are in the middle of giving him the Rhythmic exercises, he > has > a seizure. Should we cut back? > > He was the one with the extensive issues in the MRI I posted. > History: > CNS malformation associated with tuberous sclerosis. A follow-up > comparison > 6/24/05 and 4/25/05. > > Findings: > Technique: Sagittal T1, axial T2, axial Flair, coronal flair, axial > diffusion images. Coronal MPGR, coronal SPGR. Axial T!. Post gadolinium > axial and coronal T1. > > Patient has a mild enlargement of the third ventricle with normal size of > other ventricles. There are several sub ependymal nodular densities some > of > which display enhancement in the frontal and right postero parietal region > of the lateral ventricle. In the right parieto-occipital region of the > lateral ventricle. In the right parieto-occipital region there is > extensive > abnormality of cortex and subcortical white matter with thickening and > abnormal signal associated with the cortex and a laminar decrease in > signal > on long TR sequences at the gray-white junction. Similar finding is > evident > in the right insular lobe superiorly with more extensive loss of signal > than > was present previously. Patient has subtle areas of linear subcortical > increased signal near the parietal vertex and in the left temporal lobe. > Abnormality of the white matter adjacent to the atrium of the right > lateral > ventricle with mass effect upon the atrium and slight enhancement are > again > noted. > > Impression: > Extensive changes of tuberous sclerosis with sub ependymal nodules and > regions of cortical tuber formation with laminar calcification more > extensive than previous. Other subtle subcortical white matter signal > abnormalities are evident as is typical of this entity. There is no > evidence of development of dominant mass of the brain. No abnormality of > the orbit or retina is visible. > > Rizzo M MD > > DD: 07/06/2007 > Rae > > On 10/11/07, Sandya Sandya <sandya_prasad67@...<sandya_prasad67%40.sg>> > wrote: > > > > Hi, > > I am Sandya from Singapore. I have a 5 year old Autistic son. Recently I > > attended Dr Svetlana's free talk & came to know some of her methods. > > regards, > > Sandya > > > > --------------------------------- > > Movies - Search movie info and celeb profiles and photos. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2010 Report Share Posted March 30, 2010 Hi : I hope that I understand your question. The reason why food is important is because some people who are prone to seizures, find that certain foods trigger seizures in them, It somehow irritates the brain by upsetting the chemistry and causing electrical trouble. You can experiment by withdrawing all those foods from your diet and then introduce them one at the time. Keep a journal and see if any of them affect you. remember that the effects could be felt the next morning or day. So be careful! Food is also important to nourish your brain! The right kind of food! good luck linda From: <douglasbraunworth@...> Subject: [ ] Seizures Date: Friday, March 12, 2010, 8:12 AM  After reading a few of the commments/questions about my question about seizures, and reading others questions, I do have one more I would like to ask. I was asked about my diet and I have read others questions about this same thing. I am wondering how diet works into this, as far as being the reason for a seizure. If I was missing something in my diet causing this it would seem to make sense that if I go to a third world country where they are lucky to be alive because of poor nutrition, I would think epilepsy would be running rampant there. Yet I have not heard this ever being brought up as a national epidemic anywhere, especially when they are asking for food for some of those countries. I have helped pack food for some of those countries and never once was epilepsy brought up as the reason as why they need to get the food to them. Can somebody explain what I might be missing on this? thanks again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2010 Report Share Posted November 14, 2010 Hello, my son has grand mal seizures. He seems to have them in response to certain foods (gluten, dairy, vegetable oils, nuts) and chemical exposures (perfumes, paints, etc). Has anyone ever had their seizures go away on this diet? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2010 Report Share Posted November 14, 2010 Hi , Bee's diet is the perfect for anyone with epilepsy. Did you know that the preferred treatment for epilepsy is a ketogenic diet and has been used since the 1920s to cure epilepsy? A ketogenic diet is called that because it puts the body into ketosis (fat burning) by eating low carbs and high fat. In October, I attended a parent's conference for kids with epilepsy using the ketogenic diet for treatment. It was a medical-based conference, but a lot the same ideas apply to Bee's program. One thing that I took away from that conference that I was surprised to hear the medical community say was that a ketogenic diet (Bee's diet) has neuro-protective qualities, meaning that eating this way and being in ketosis actually helps to protect the nerves. If you Google epilepsy and ketogenic diet, you will find a lot of information about it. In particular, you can read up on the treatment of epilepsy through a website called The Charlie Foundation and another one called 's Friends. For the most part, the traditional ketogenic diet is very similar to Bee's. The main difference is that it allows cream and cheese as well as aspartame and other artificial sweeteners. Bee's program is much more about using healthy foods to heal the whole body, not just reduce seizures. I hope that helps. If you have more questions, I'm happy to help. Group Moderator > > Hello, my son has grand mal seizures. He seems to have them in response to certain foods (gluten, dairy, vegetable oils, nuts) and chemical exposures (perfumes, paints, etc). Has anyone ever had their seizures go away on this diet? > > Thanks, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2010 Report Share Posted November 15, 2010 Hi , My daughter was not epileptic but was severely poorly before we intervened with her diet. She would become severely and life threateningly poorly when exposed to certain foods, allergens and chemicals (anaphylasis and extreme asthma). We couldn't in the end take her to shops, public buildings, museums, other people's houses etc, and could only tolerate a tiny ammount of foods. She also suffered severe inflamation of the brain; autism, hyperactivity, psycosis, OCD, etc. She was also painfully skinny. All of these things are healing, except when in a major detox she is symptom free. Many autistic kids suffer from epilepsy, I've read research that it is one of the many ways a very poorly body responds to toxicity. As with my daughter you will have to go VERY slowly and I will be more than happy to help you with that, you do not want him to detox too fast. It will take a while to heal but it will be so worth the work, you are indeed fortunate to find Bee at this stage and before he went on meds. This is a marvelous way to heal the brain so try not to worry too much. My daughter was totally debilitated mentally but is now way ahead of her peers - and not skinny at all! Hope this helps. > > Hello, my son has grand mal seizures. He seems to have them in response to certain foods (gluten, dairy, vegetable oils, nuts) and chemical exposures (perfumes, paints, etc). Has anyone ever had their seizures go away on this diet? > > Thanks, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2011 Report Share Posted May 5, 2011 We use Rubin for our son's seizure management. She's worked well with us. On Thu, 5 May 2011 03:59:48 +0000 " Beata Kruss " <beatajoanna@...> writes: > Can anybody suggest an excellent neurologist specializing in seizures > at Children's? > Thank you! > B. Kruss > Beata Kruss > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2011 Report Share Posted May 5, 2011 My son saw Dr. Katerji when he was younger for ADHD and behavioal issues. Dr. Katerji was excellent. Seizures Can anybody suggest an excellent neurologist specializing in seizures at Children's? Thank you! B. Kruss Beata Kruss ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2011 Report Share Posted May 5, 2011 My son still sees Dr Katerji and he is 21 yrs old..... He has a few offices. If your interested his number is 630-717-0228. I have his card infront of me. I just talked to him the other day. Liz Y  PS:  He is at Advocate Hope Childrens Hospital. My son saw Dr. Katerji when he was younger for ADHD and behavioal issues. Dr. Katerji was excellent. Seizures Can anybody suggest an excellent neurologist specializing in seizures at Children's? Thank you! B. Kruss Beata Kruss ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2011 Report Share Posted May 5, 2011 My son has a great neurologist at Loyola. ________________________________ From: " grzywa@... " <grzywa@...> IPADDUnite Sent: Thu, May 5, 2011 5:26:37 AM Subject: Re: Seizures We use Rubin for our son's seizure management. She's worked well with us. On Thu, 5 May 2011 03:59:48 +0000 " Beata Kruss " <beatajoanna@...> writes: > Can anybody suggest an excellent neurologist specializing in seizures > at Children's? > Thank you! > B. Kruss > Beata Kruss > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2011 Report Share Posted May 5, 2011 We just went through Dr. Swisher at Children's Memorial Hospital less than a month ago. I would say it's not about the doctor. It's about understanding the types of seizures, medication management and being an educated consumer of the professionals. IF we would have followed the instant direction of the neurologist and not questioned the fellow's report and his findings, my son would have been getting a medication that would not have benefited his health or future. He has classic ADHD, ODD and a moderate speech disorder. I think each experience is different and the findings, your questions, your efforts to become educated in their language are the driving force for your child's future. I hesitate to say any doctor is excellent. They are only people with their individual experiences too. You are the expert of your child! We have seen Dr. Katerji as well. Just a thought.  Visser 708/296-2812 Cellular Phone Let no debt remain outstanding, except the continuing debt to love one another, for he who loves his fellowman has fulfilled the law. Romans 13:8 (Please note: I provide general information regarding medical research, treatment options, seminars, workshops, therapies and nutrition to the special needs community.The information comes from a variety of sources, and I do not independently verify any of it. No emails should be construed as medical or legal advice. Always consult your child's doctor regarding his or her individual needs.) From: Jerue Family <jeruefamily@...> Subject: Re: Seizures IPADDUnite Date: Thursday, May 5, 2011, 7:51 AM Does it have to be Children's? Because Rush has some excellent neurologists who specialize in epilepsy/seizure management. Seizures Can anybody suggest an excellent neurologist specializing in seizures at Children's? Thank you! B. Kruss Beata Kruss ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2011 Report Share Posted May 5, 2011 This is what I exactly meant-- " my " current drs find my son's seizures " mysterious " I would like a Dr who can answer my questions when I find myself scared and frustrated. This is so new to me, and I'm educating myself in this new experience... Dr. Swisher saw us too, but then we were " transferred " to a young Dr who doesn't call me back... Thanks to all for suggestions! B. Beata Kruss Seizures Can anybody suggest an excellent neurologist specializing in seizures at Children's? Thank you! B. Kruss Beata Kruss ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2011 Report Share Posted May 5, 2011 I took my son to Dr. Swisher in 1996, is this Swisher? He must be 80 by now, LOL H. Re: Seizures We just went through Dr. Swisher at Children's Memorial Hospital less than a onth ago. I would say it's not about the doctor. It's about understanding the ypes of seizures, medication management and being an educated consumer of the rofessionals. IF we would have followed the instant direction of the eurologist and not questioned the fellow's report and his findings, my son ould have been getting a medication that would not have benefited his health or uture. He has classic ADHD, ODD and a moderate speech disorder. I think each xperience is different and the findings, your questions, your efforts to become ducated in their language are the driving force for your child's future. I esitate to say any doctor is excellent. They are only people with their ndividual experiences too. You are the expert of your child! We have seen Dr. aterji as well. Just a thought. hannon Visser 08/296-2812 Cellular Phone et no debt remain outstanding, except the continuing debt to love one another, or he who loves his fellowman has fulfilled the law. Romans 13:8 Please note: I provide general information regarding medical research, reatment options, seminars, workshops, therapies and nutrition to the special eeds community.The information comes from a variety of sources, and I do not ndependently verify any of it. No emails should be construed as medical or egal advice. Always consult your child's doctor regarding his or her individual eeds.) rom: Jerue Family <jeruefamily@...> ubject: Re: Seizures o: IPADDUnite ate: Thursday, May 5, 2011, 7:51 AM oes it have to be Children's? Because Rush has some excellent neurologists ho specialize in epilepsy/seizure management. -----Original Message----- rom: Beata Kruss ent: Wednesday, May 04, 2011 10:59 PM o: IPADDUnite ubject: Seizures Can anybody suggest an excellent neurologist specializing in seizures at hildren's? hank you! .. Kruss eata Kruss ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2011 Report Share Posted May 5, 2011 lol...I was thinking the same thing. My daughter saw him back in the 90's too.  Dana ________________________________ From: " sunshinebeaches3@... " <sunshinebeaches3@...> IPADDUnite Sent: Thu, May 5, 2011 12:46:23 PM Subject: Re: Seizures  I took my son to Dr. Swisher in 1996, is this Swisher? He must be 80 by now, LOL H. Re: Seizures We just went through Dr. Swisher at Children's Memorial Hospital less than a onth ago. I would say it's not about the doctor. It's about understanding the ypes of seizures, medication management and being an educated consumer of the rofessionals. IF we would have followed the instant direction of the eurologist and not questioned the fellow's report and his findings, my son ould have been getting a medication that would not have benefited his health or uture. He has classic ADHD, ODD and a moderate speech disorder. I think each xperience is different and the findings, your questions, your efforts to become ducated in their language are the driving force for your child's future. I esitate to say any doctor is excellent. They are only people with their ndividual experiences too. You are the expert of your child! We have seen Dr. aterji as well. Just a thought. hannon Visser 08/296-2812 Cellular Phone et no debt remain outstanding, except the continuing debt to love one another, or he who loves his fellowman has fulfilled the law. Romans 13:8 Please note: I provide general information regarding medical research, reatment options, seminars, workshops, therapies and nutrition to the special eeds community.The information comes from a variety of sources, and I do not ndependently verify any of it. No emails should be construed as medical or egal advice. Always consult your child's doctor regarding his or her individual eeds.) rom: Jerue Family <jeruefamily@...> ubject: Re: Seizures o: IPADDUnite ate: Thursday, May 5, 2011, 7:51 AM oes it have to be Children's? Because Rush has some excellent neurologists ho specialize in epilepsy/seizure management. -----Original Message----- rom: Beata Kruss ent: Wednesday, May 04, 2011 10:59 PM o: IPADDUnite ubject: Seizures Can anybody suggest an excellent neurologist specializing in seizures at hildren's? hank you! .. Kruss eata Kruss ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2011 Report Share Posted May 5, 2011 I think he was about the only one around then who saw kids. I just came across his report to my pediatrician when going through old files! never had seizures and I remember him saying that he didn't like to give kids a " label " at such a young age. Re: Seizures lol...I was thinking the same thing. My daughter saw him back in the 90's too. Dana _______________________________ rom: " sunshinebeaches3@... " <sunshinebeaches3@...> o: IPADDUnite ent: Thu, May 5, 2011 12:46:23 PM ubject: Re: Seizures I took my son to Dr. Swisher in 1996, is this Swisher? He must be 80 by ow, LOL ary H. -----Original Message----- rom: shannon visser <shannonvisser@...> o: IPADDUnite <IPADDUnite > ent: Thu, May 5, 2011 11:59 am ubject: Re: Seizures We just went through Dr. Swisher at Children's Memorial Hospital less than a nth ago. I would say it's not about the doctor. It's about understanding the pes of seizures, medication management and being an educated consumer of the ofessionals. IF we would have followed the instant direction of the urologist and not questioned the fellow's report and his findings, my son uld have been getting a medication that would not have benefited his health or ture. He has classic ADHD, ODD and a moderate speech disorder. I think each perience is different and the findings, your questions, your efforts to become ucated in their language are the driving force for your child's future. I sitate to say any doctor is excellent. They are only people with their dividual experiences too. You are the expert of your child! We have seen Dr. terji as well. Just a thought. hannon Visser 8/296-2812 Cellular Phone t no debt remain outstanding, except the continuing debt to love one another, r he who loves his fellowman has fulfilled the law. Romans 13:8 lease note: I provide general information regarding medical research, eatment options, seminars, workshops, therapies and nutrition to the special eds community.The information comes from a variety of sources, and I do not dependently verify any of it. No emails should be construed as medical or gal advice. Always consult your child's doctor regarding his or her individual eds.) -- On Thu, 5/5/11, Jerue Family <jeruefamily@...> wrote: rom: Jerue Family <jeruefamily@...> bject: Re: Seizures : IPADDUnite te: Thursday, May 5, 2011, 7:51 AM oes it have to be Children's? Because Rush has some excellent neurologists o specialize in epilepsy/seizure management. ----Original Message----- om: Beata Kruss nt: Wednesday, May 04, 2011 10:59 PM : IPADDUnite bject: Seizures an anybody suggest an excellent neurologist specializing in seizures at ildren's? ank you! Kruss ata Kruss ------------------------------------ ahoo! Groups Links ------------------------------------ ahoo! Groups Links Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2011 Report Share Posted May 5, 2011 My neighbor came to me,She has a friend who son (under age 18) who has seizures.He is on meds that cost 1800.00 a month.There insurance Blue Cross Blue Shields has stopped paying for the med saying he is out of benefits,capped out.As of this date,they pay for the meds because their son needs them.They make too much money for medicaid or any prescription programs with the maker.This has been a financial buren on them. Please any suggestions how they can get help or where to go to get help paying for this medication????? Switch to: Text-Only , Daily Digest • Unsubscribe • Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2011 Report Share Posted May 5, 2011 Bridges to Access 1866-728-4368 ________________________________ From: " bethdamen@... " <bethdamen@...> IPADDUnite Sent: Thu, May 5, 2011 2:13:29 PM Subject: Re: Seizures  My neighbor came to me,She has a friend who son (under age 18) who has seizures.He is on meds that cost 1800.00 a month.There insurance Blue Cross Blue Shields has stopped paying for the med saying he is out of benefits,capped out.As of this date,they pay for the meds because their son needs them.They make too much money for medicaid or any prescription programs with the maker.This has been a financial buren on them. Please any suggestions how they can get help or where to go to get help paying for this medication????? Switch to: Text-Only , Daily Digest • Unsubscribe • Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2011 Report Share Posted May 5, 2011 Would there be a possibility that the family could contact the drug company directly? You hear (don't know if it is true), that some drug companies offer assistance to obtain their drugs. From: bethdamen@... <bethdamen@...> Subject: Re: Seizures IPADDUnite Date: Thursday, May 5, 2011, 7:13 PM  My neighbor came to me,She has a friend who son (under age 18) who has seizures.He is on meds that cost 1800.00 a month.There insurance Blue Cross Blue Shields has stopped paying for the med saying he is out of benefits,capped out.As of this date,they pay for the meds because their son needs them.They make too much money for medicaid or any prescription programs with the maker.This has been a financial buren on them. Please any suggestions how they can get help or where to go to get help paying for this medication????? Switch to: Text-Only , Daily Digest • Unsubscribe • Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2011 Report Share Posted May 5, 2011 We used to see D. Ritacco. From: Beata Kruss <beatajoanna@...> Subject: Seizures " IPADDUnite " <IPADDUnite > Date: Thursday, May 5, 2011, 3:59 AM Can anybody suggest an excellent neurologist specializing in seizures at Children's? Thank you! B. Kruss Beata Kruss ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2011 Report Share Posted May 5, 2011 Beatta Evan goes to dr kohrman at university of Chicago medical center. He's always very interested in Evan, stops talking to listen to whatever evan has to say. He's the head of the pediatric neurology dept. He usually has a team that follows him, but he always remembers Evan and he always sees him. I've been very happy with him. On May 5, 2011, at 12:05, " Beata Kruss " <beatajoanna@...> wrote: > This is what I exactly meant-- " my " current drs find my son's seizures " mysterious " I would like a Dr who can answer my questions when I find myself scared and frustrated. > This is so new to me, and I'm educating myself in this new experience... > Dr. Swisher saw us too, but then we were " transferred " to a young Dr who doesn't call me back... > Thanks to all for suggestions! > B. > Beata Kruss > > Seizures > > Can anybody suggest an excellent neurologist specializing in seizures at > Children's? > Thank you! > B. Kruss > Beata Kruss > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2011 Report Share Posted May 6, 2011 We see Dr out of North Shore.. he follows peds patients into adult and helps with transition. like him a lot Sent from my iPad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2011 Report Share Posted May 6, 2011 We saw Dr. Heydemann at Rush for several years. Of the three neurologists we've seen, he took the most time with us, answered the most questions and seemed to be the most thorough. We were very happy under his care. Holly > > Can anybody suggest an excellent neurologist specializing in seizures at Children's? > Thank you! > B. Kruss > Beata Kruss > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2011 Report Share Posted May 6, 2011 We started with Swisher too, years ago and he was old then. :-) There is a Dr. Nordli at Children's. A Dr. Kent Kelley used to be there and is now at Northshore/ ton Hospital etc. My son sees him now. We are dealing with a rare seizure disorder. Good luck. > > Does it have to be Children's? Because Rush has some excellent neurologists > who specialize in epilepsy/seizure management. > > Seizures > > Can anybody suggest an excellent neurologist specializing in seizures at > Children's? > Thank you! > B. Kruss > Beata Kruss > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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