I need help

[Guest guest]

Hi Helen:

<<has been having fevers to 104.4 for a week. He has a high white count,

night

sweats and abdominal pain.>>

When Caitlin was admitted to the hospital she had these symptoms and more.

She had the fevers (105) for a month. Although she is not yet diagnosed, they

are thinking systemic JRA. I do not know to much about poly JRA, except what

I have read from this list.

I can't offer many words of wisdom. Just that some of what you describe is

what Caitlin first experienced. I hope you hear from the rheumy soon and he

can offer some answers.

What about a different ER? Maybe they could figure out what is going on.

Will keep you and Teddy in my thoughts and prayers. Let us know what you

find out.

Take care.

Patty

[Guest guest]

I dont want to scare you but these are not good signs.. It could be as simple as a bad infection or something as serious as cancer or the JRA.. I would take him to a teaching hospital that has a pediatric facility.. if he has a high WBC and fevers then its important to find out what it is causing that.. Sending you lots of prayers

(poly JRA and Spondy, 19)

[Guest guest]

Hi. Just my opinion, but this does not seem like the normal fluctuation

of jra, in that he has had these symptoms for 5 days. Kids with systemic

have the fevers, I think, more at certain times of the day, and they

come and go. My ped's advice was always, how is the child acting? If he

is lethargic and not acting normal (beyond any joint pain) then the

child is sick. Could he be dehydrating? At his age it is tougher to

tell, because you are not aware of what the urine output is. Make sure

you push fluids to make sure he is getting enough fluid with this fever.

Every five minutes he needs to take a sip of something for at least an

hour. This has helped my kids when they are fevered and I worry about

dehydration.(We have had 2 hospitalizations because of it and I am

always worried now about it) My son does not have systemic, so I have no

experience with those types of fevers. Hopefully someone here will chime

in soon. Do you have one ped you see most of the time? One thing my ped

always told me too was to go with my feelings. If I believe something is

wrong, she will see my kids. Go with what you think is best. Take him

back to the ER if necessary and see what a different dr thinks. Call and

ask the dr who wants him admitted why he is thinking that is best.

Fevers are not a normal part of poly JRA. Good luck, hope this has

helped some. You know what's best for your son. Michele (16,pauci

& spondy)

I need help

Maybe some one can offer me reassurance. My son Teddy (age 12, poly),

has been having fevers to 104.4 for a week. He has a high white count,

night sweats and abdominal pain. We've been to the ER and to the

pediatrician several times this week. At first they thought he had

bronchitis, and

put him on antibiotics. He's been on this for 5 days now, but no

change

in symptoms. The pediatric rheumy is out of town till Wed, and his

office has been told it is urgent, but I haven't heard from him yet. The

ped group has 2 docs, one wants to admit him, the other says this is

just part of the normal fluctuation of jra. He has never ever had a

fever before, nor does he have joint pain. I don't know who to listen

to. The one advocating waiting is much more of a strong personality.

He got us in with an adult rheum who set up a CT and Indium scan for

next week.

That gets us another week of being sick, without anything being done to

help him. I really don't know what to do, and I am beside myself right

now. hh

[Guest guest]

Helen,

Who are you seeing? If it’s Dr G I

have some ideas. Let me know and if it is I’ll call you with my input.

Liz

I need help

Maybe some one can offer me reassurance. My son

Teddy (age 12, poly), has

been having fevers to 104.4 for a week. He

has a high white count, night

sweats and abdominal pain. We've been to the

ER and to the pediatrician

several times this week. At first they

thought he had bronchitis, and

put him on antibiotics. He's been on

this for 5 days now, but no change

in symptoms. The pediatric

rheumy is out of town till Wed, and his

office has been told it is urgent, but I haven't

heard from him yet. The

ped group has 2 docs, one wants to admit him, the

other says this is just

part of the normal fluctuation of jra. He

has never ever had a fever

before, nor does he have joint pain. I don't

know who to listen to. The

one advocating waiting is much more of a strong

personality. He got us

in with an adult rheum who set up a CT and Indium

scan for next week.

That gets us another week of being sick, without

anything being done to

help him. I really don't know what to

do, and I am beside myself right

now. hh

[Guest guest]

Helen,

I am in the same situation with your about waiting.

Next week is spring break here so most of the Dr. are out. So that

puts one of the test back a couple of weeks, which we really need to

the will start treatment.

I am usually a really assertive person and don't take much crap, but

they have worn me down.

However, I am on the rampage now, but its Friday, and all the Dr.

leave early.

I have said a prayer for you for peace.

Jeanine

[Guest guest]

Helen H. first of all I send my thoughts and PRAYERS for young Teddy! I

was and have always been given to high fevers with my JRA during flares.

I wish I knew if my white count had been elavated during these periods,

but I was never really taking in that often when I was first diagnossed

with my jra. Not as much was know about the treatment of it at that time.

As for the conflict of opinion of the 2 doc's! whether to hospitalize or

wait for testing!

I guess you got to go with your gut on that! and dang the doctor with the

strong personality! If you feel Teddy would be better servered in the

hospital now!!!

Wish I could offer more or hope it has given you some help, I will be

PRAYING for your young fellow!

Hugs, Prayers, Love to All,

Rusty

[Guest guest]

I guess you have to weigh the benefits of hospitalization versus the

benefits of waiting. Will the testing be able to be done sooner if

hospitalized? Are both pediatricians convinced this is not an emergency

situation? If the testing could be done sooner if he were put in the

hospital, I would tend to go that route. Please keep us posted on what

you decide. We are all here for you.

and Rob 14 Spondy

PS Is he on prednisone? That could account for the high white count. If

not on prednisone and his white count is high, I would definately opt for

hospitalization.

On Fri, 12 Mar 2004 04:51:32 -0500 Helen C Hollingsworth

<helenchollingsworth@...> writes:

>

> Maybe some one can offer me reassurance. My son Teddy (age 12,

> poly), has

> been having fevers to 104.4 for a week. He has a high white count,

> night

> sweats and abdominal pain. We've been to the ER and to the

> pediatrician

> several times this week. At first they thought he had bronchitis,

> and

> put him on antibiotics. He's been on this for 5 days now, but no

> change

> in symptoms. The pediatric rheumy is out of town till Wed, and

> his

> office has been told it is urgent, but I haven't heard from him yet.

> The

> ped group has 2 docs, one wants to admit him, the other says this is

> just

> part of the normal fluctuation of jra. He has never ever had a

> fever

> before, nor does he have joint pain. I don't know who to listen to.

> The

> one advocating waiting is much more of a strong personality. He got

> us

> in with an adult rheum who set up a CT and Indium scan for next

> week.

> That gets us another week of being sick, without anything being done

> to

> help him. I really don't know what to do, and I am beside myself

> right

> now. hh

>

>

>

>

[Guest guest]

Thank you all for your advice and prayers. I did finally get in

touch with the rheumy, who thinks that we can sit tight unless there

is a major change. He is going to see Teddy on Sunday while at an

Arthritis Foundation event in DC. If that's not dedication, I don't

know what is. We are scheduled for the CT on Monday and Indium scan

on Tuesday, but if things change this weekend I'm going to go to the

hospital. Everyone seems to agree with me that this isn't typical

for a poly kid, and that I am right to be concerned. Thanks again

for all your help. I'll update you when I know more. Thanks to

and Liz who called to offer help within minutes of my

sending the post!!! hh

[Guest guest]

Good morning,

I first want to thank you for being of service to us and guiding us

to wellness. I'm having and full blown flare up. I currently have a yeast

infection and I feel pretty. I was on a car accident which caused me to stress

out because it effected me in many areas of my life. So i started to cheat and

now I'm payin the price. I started a new diet. The Body ecology diet and soon I

figured out why it didn't work for me. I couldn't seem to have small portion of

buckwheat and other subt grains. The body ecology claim not to mix grains with

protein until three hours later and it won't feed the candida.Now I know why

it's best to stay completly away from them. I also came across some information

of a prescription medication that is " very effective " in killing candida. The

name is Amphotericin B. I looked it up and discoverd the side effects were mild.

Would this help me. I just want my life back. I'm tired of the symptoms and acne

rash on my face along with the yeast infections. I want them gone forever. Can

you help please?

[Guest guest]

Hello, what is your name? We prefer to go by names on the group, rather than

email addresses.

Amphotericin B is an antifungal and therefore not recommended on this program.

Since you are new to the program, it is important for you to read the following

two articles, so you know what you need to do and why:

How to Successfully Overcome Candida:

http://www.healingnaturallybybee.com/articles/intro2.php

Curing Candida, How to Get Started:

http://www.healingnaturallybybee.com/articles/intro1.php

For encouragement and inspiration see these wonderful Success Stories by members

of this group: http://www.healingnaturallybybee.com/success/index.php

I know it seems like a lot of information, but these articles will really answer

a lot of questions you may have. Also, this program is a self-help program, so

the more you know, the more powerful you are! Get back to us with any questions

after you've had a look through, we'll be happy to help you.

Best,

andra

group moderator

>

> Good morning,

> I first want to thank you for being of service to us and guiding us

to wellness. <snip>

I also came across some information of a prescription medication that is " very

effective " in killing candida. The name is Amphotericin B. I looked it up and

discoverd the side effects were mild. Would this help me. I just want my life

back. I'm tired of the symptoms and acne rash on my face along with the yeast

infections. I want them gone forever. Can you help please?

>

[Guest guest]

>

> Hello my name is victor and i am having trouble concentrating foggy or cloudy

thinking and having a hard time discerning fantasy from reality. The Doctors

think i have schizophremia. They have me on an anti psychotic and anti

depressant and klonopin. Ive (bee)n (pun intended) part of your group for about

a year. I live in an assisted living facility and so i would not be completely

able to follow your program. Ive started to cut back on sugar and bread. i do

crave it alot i have to admit. starting to exercise more. I want to get better.

enough of this rat race cycle. if i bring supplements here they have to have a

doctor's order, and the doctors wont always order natural things. but i heard

about baking soda. Would that help me? any other home remedies that i might be

able to use? I love you and appreciate your work.

> -Victor

>

@@ Hi Victor,

What country do you live in?

Victor,the description of difficulty discerning fantasy from reality is called

depersonalization-derealization and is related in the spectrum of anxiety and

/or depression.

All those medications you are on, I guarantee will make your problems you

describe worse. Those combination of drugs, not even a chemist could tell you

what possible reactions you could experience. Little lone a Doctor lining his

pockets, obliviously. Victor, whenever we play with the chemistry of our body

with drugs, we tend to run into eventual problems.

You need to buffer off those medications, my friend.

My brother suffered years with Bipolar, taking a cocktail of drugs and did not

get better. When he got off them and started following my instruction (via

Bee's diet) for better nutrition, exercise and lifestyle modifications he only

then began to regain his health. My sister did not listen to me and her anxiety

condition has amplified with depression as well as her meds have increased in

dose & number.

That's great you are lowering your sugar and bread / grains. Dairy is another

you may also wish to work on eliminating. If you cannot get organic spices, its

better to use none, since they will probably be zapped with radiation. Use

garlic, onions and so forth from the produce section to enhance the flavor of

your food if you have no access to organic spices.

Also hopefully you are avoiding caffeine i.e coffee, tea ... and alcohol

sources which will also aggravate your particular symptoms.

I know, because I was a former anxiety suffer & with a perfectionist type

persona ( which didn't help) for a few years. So, I have experience with the

triggers. Of course anxiety / depression are symptoms of a bigger picture.

Hopefully you are increasing your good fats butter, olive oil , coconut oil and

of course meats, eggs, fish. If all you can afford is butter or coconut oil as

fats with meat & eggs, then that's better than none. Do the best you can with

what you can get / have.

Baking soda has its purposes. However, it cannot take the place of supplements.

Can you order your supplements online? I see no reason you would require a

Doctor's approval for this route. You can also make some of your own

supplements. You can order your supplements from iHerb.

http://www.healingnaturallybybee.com/resource/iherb.php

I'm pressed for time, so perhaps another member / moderator will chime in and

point you in the direction how to make some of your own supplements.

Best in Health

Ed

group moderator

[Guest guest]

Victor,

As you say, I know from personal experience that you aren't allowed any

herbs, medicine, supplements, etc. in your ALF room. Their rules are

endless. I insisted that my mother's doctor order many things for her while

she was in rehab. Consider a relative who can contact your doctor directly

and get it done on your behalf if you can't get it done yourself. You need

someone that will be a real pest at the doctor's office and not take no for

an answer. Rita