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Hi Kris-

Pertussis CAN be dangerous in infants. I don’t think that

babies necessarily need ALL of the vaccines that are recommended, but for a baby

w/a heart defect, my personal opinion is that two important ones to have

are the pertussis and hepatitis vaccinations. When I was a Peds nurse (long

ago;-) I saw a 6 month old baby who had pertussis…she had such severe

coughing paroxysm that she sustained brain damage due to lack of oxygen.(this

child did not have a heart defect) I think that some of the mistakes are

giving too many vaccines at once or when the child’s immune system

is already overworked with fighting off a cold or something…plus, I think

that some of the recommended vaccines are not really necessary (flu,

rotovirus,chickenpox, to name a few) Vaccines are lumped together for

convenience (parent and doc) not necessarily because they HAVE to be given at

the same time.

When Danny was a baby, we made lots of mistakes..giving

too many at one time to ‘catch up’, giving them when he had a cold…

he did get the flu and chickenpox shots when he was an infant, but that was

before I knew better…I would not give those to him if I had it to do over.

Thank God, Danny did not have any lasting damage from the vaccines (he

did get huge knots in his groin area after he got several vaccines at once, but

that is the only thing) but I would definitely do it differently if I had to do

it today.

None of my other kids got the hepatitis vaccination when they

were infants because the doc and I agreed that it wasn’t necessary for

them, but we got it for Danny since he was going to have a blood transfusion

during his heart surgery.

A good book to read is:

What Your Doctor May Not Tell You

About Children's Vaccinations

http://www.amazon.com/What-Doctor-About-Childrens-Vaccinations/dp/0446677078

‘Absolutely the best book I've read on this topic,

June 7, 2003

By

Heath

B e " heathc888 " (Corona del Mar, CA United States) - See

all my reviews

Being a new parent, I wanted to review thorough, objective

scientific data based on up-to-date and sound research principles before taking

the plunge and making vaccination decisions on my child's behalf. This book

provides all of that, and then some. I cannot recommend this book highly

enough. It is extremely well laid out and complete with all the facts necessary

to make your choices.

After

reading this book all parents will understand 1) what vaccines are required for

your children, and when; 2) what the different vaccines are made of; 3) the

efficacy of the vaccines (and for how long they remain effective); 4) the range

and rates of reactions to the vaccines; 5) your options related to the timing

of the vaccines; 6) precautions that you can take on behalf of your children

(including commercially available vaccine alternatives free of controversial

additives); 7) an alternative vaccine schedule that Dr. Cave developed based on

her experience (that really helped me a lot). Finally, if you choose to be a

'conscientious objector', the author provides information on how to prevent

your child being jabbed without your consent.

In

addition, all of Dr. Cave's research is referenced at the end of each paragraph

should you wish to do additional research (I personally found that this was

unnecessary however!). I am very relieved to have found this book prior to my

daughter's first vaccination - I now feel completely educated on the (sometimes

very emotional) topic of vaccinations. Whether you ultimately elect to have

your child vaccinated to the extent that is recommended by health departments

is up to you - but with this book you will be armed to the gills with the

information you need to be confident about making those important decisions.

This book is definitely a keeper. Once again, HIGHLY RECOMMENDED! “ end

quote.

KathyR(mom

to Danny, almost 9 yrs old (repaired AV canal) and his 6 older sibs

From:

Down Syndrome Treatment

[mailto:Down Syndrome Treatment ] On Behalf Of Kris

Delaney

Sent: Saturday, June 30, 2007 7:30 AM

Down Syndrome Treatment

Subject: vaccinations

Hello!

A little background, since I rarely post: , almost 4 mo has a vsd

(which was miscommunicated and downplayed by our NICU docs, and missed entirely

by our pediatrician) which will require open-heart surgery sometime in Sept. or

Oct. It was this site, and another friend, that encouraged me to dig

deeper and to read 's medical records (for a different issue).

That's when I saw the vsd....it was on the med records as unclosed. Funny

how the parents are the last to know these things! Anyway, thank you for

helping us. Yesterday we saw the cardiologist, which leads me to my

new set of questions. This time it's on vaccinations. I've read thru some

archives, which was helpful. Our intension was to delay all vaccinations, then

give some, but not all, at a later date. This cardiologist really

pushed them, however, and frankly, really scared me, which I'm sure was her

intension. So, with having open-heart this fall, my questions are:

1)

DPT. There has been an outbreak of pertussis in WI. The

cardiologist said that getting it, with her condition, would be so so much

worse than the risk of the vaccination. I'd like to hear your opinions

based on medical studies and also personal experience.

2)

What is it, exactly, that's in the vaccines that leads some parents to suspect

the autism connection? It's been years since I've looked into this. The

cardio said mercury is no longer used.

3)

This is probably my most important questions... How do these vaccinations

effect ds children as opposed to typical children?

I'm

sorry if this is too controversial.....I just really need help in making a

decision by next week. It will be 's 4 mo check and that's when her

vaccines would be done.

Thanks!

Kris

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Hi,

Look at www.generationrescue.org/pdf/user_friendly.pdf. This is a

site about autism and vaccines. There is advice on this site as how

to safely administer vaccines to your child. Of course, the Dr. is

suggesting waiting until your child is 2 years old. It's a hard

decision.

Marsha

>

> Hello! A little background, since I rarely post: , almost 4

mo has a vsd (which was miscommunicated and downplayed by our NICU

docs, and missed entirely by our pediatrician) which will require

open-heart surgery sometime in Sept. or Oct. It was this site, and

another friend, that encouraged me to dig deeper and to read 's

medical records (for a different issue). That's when I saw the

vsd....it was on the med records as unclosed. Funny how the parents

are the last to know these things! Anyway, thank you for helping

us. Yesterday we saw the cardiologist, which leads me to my new set

of questions. This time it's on vaccinations. I've read thru some

archives, which was helpful. Our intension was to delay all

vaccinations, then give some, but not all, at a later date.

This cardiologist really pushed them, however, and frankly, really

scared me, which I'm sure was her intension. So, with having

open-heart this fall, my questions are:

>

> 1) DPT. There has been an outbreak of pertussis in WI. The

cardiologist said that getting it, with her condition, would be

so so much worse than the risk of the vaccination. I'd like to hear

your opinions based on medical studies and also personal experience.

>

> 2) What is it, exactly, that's in the vaccines that leads some

parents to suspect the autism connection? It's been years since I've

looked into this. The cardio said mercury is no longer used.

>

> 3) This is probably my most important questions... How do these

vaccinations effect ds children as opposed to typical children?

>

> I'm sorry if this is too controversial.....I just really need help

in making a decision by next week. It will be 's 4 mo check and

that's when her vaccines would be done.

>

> Thanks!

> Kris

>

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Guest guest

Kris, I was so worried about the whole vaccination decision too. Like we don't have enough with heart surgery looming.....I tried to strike a happy medium with the whole issue. She did receive the Hep, HIB and DTP pre-op. None of my other kids have gotten the HIB or HEP ( though I am rethinking the Hep that for my current teens - even if yours are controlled, others are not and it only takes one really stupid thing to get it.) Anyway- HIB came to be when more babies were in day care centers and none of mine were, but did spend a lot of time in the hospital before the age of 5, so she got that one too.We had a big outbreak of whooping cough here in N IL a few years back. It's hits the teen population pretty hard when they are in school, well when out too as they tend to

congregate in groups and like to avoid Drs. ;-) Anyway, my caught it and brought it home, spread it to all his friends who spread it to their friends and so on and so on. None of the younger kids came down with it here though. Thank goodness too as has lots of resp issues and this was a nasty cough even for . The vaccines wears off in about 10 years and you never get lifetime immunity to it even if you catch it. It's most commonly passed on to babies and younger children by an infected adult/teen who just thinks they have a nasty cold. Some of Tom's friends who tested positive, had no more then a stuffy nose. had the cough since he has very mild asthma. I could never imagine having this, and since just a common little cold landed her in the hospital with ventilation hanging over her head for a week pre-repair, I am sure that if she had picked up whooping cough, it would have not gone well for her at all. So for us, in

real life, the benefits did out weigh the risk for the DPT. We did do chicken pox almost a year ago now- for her and my younger kids who are even older because they still haven't come down with it. She needs her second booster for the MMR , which we just started last fall with news of an outbreak in Chicago colleges. ( we have college aged kids).I don't remember whether or not we did rotovirus?? I would be inclined to again, if spending a lot of time in the hospital. The hospital is a great place to pick up all kinds of nasty bugs.She hasn't had any problems with the shots. The first ones are always symptom less, with each one after causing a bit more of a reaction which is a good thing! Means her immunity it building up and fighting back. I have been giving her the flu shot each fall and when she was very little RSV as well.I looked up all the vaccines here : http://www.cdc.gov/vaccines/pubs/pinkbook/pink-chapters.htm and calculated the risks to her pre-op and while in the hospital. Some you can't have during certain time frames either side of surgery, so be aware of that. The MMR can't be given for 6-8 weeks post op if platelets were used in surgery. If you give it then, no immunity will be built up against it. I don't know of any current out breaks, so for me, that would go on the back burner for a while. The ones that were a threat to her while IN the hospital or because of her weakened cardiopulmonary status, she got. I have learned that Drs try to scare you because it scares THEM to think of the risks to that child. It's like when you get to be a Grandma... you just know a lot more and are more cautious now.As for what is in the shots that causes allegedly causes ASD- no one knows and it seems to change. Now that

the mercury is out and the incidence of ASD is NOT falling as it should, they are turning their attentions to other things. The MMR was also suspect with the thinking being that the combination of pathogens were causing gut problems in kids. Even though I did put mine off cause you can't take it back once you give it- there is no legitimate research out there proving any of this, even though they have done many studies. There are risks, that is certain. But ASD has not been *proven* to be one of them. I am sure you will the other side here too ,which we all welcome as parents need as much info as they can get. :-) You *have* to feel 100% comfortable with your choices.As for immunity issues- it's been proven over and over gain that the healthiest among us are those who are exposed to things that allow our immune system to build an arsenal to protect us. It starts as we journey down the birth canal and are exposed to all those germs in

out mother, then nurse and still more germs on her skin. If you are kept too clean, never allowed to play in the dirt, kept away from other people etc- you are not going to have a very strong immune system. Studies have shown the healthiest immunities belong the youngest sibs of large families of boys. :-)That would be me, and btw. Vaccinations also boost immunity and don't by pass any of the bodies defenses. If they did by pass your normal immune responses somehow, they would kill you. :-) As would any puncture or scratch. It's pretty much all the same to your body immune wise. http://www.apologia.com/vaccines.htmThe above link has lots of sites regarding vaccines from a science point of view. Carol in IL AIM doihavtasay1Mom to seven including , 6 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.My problem is not how I look. It's how you see me. Join our Down Syndrome information group - Down Syndrome Treatment/ Listen to oldest dd's music http://www.myspace.com/vennamusic----- Original Message ----From: Kris Delaney <kdelaney@...>Down Syndrome Treatment Sent: Saturday, June 30, 2007 6:29:31 AMSubject: vaccinations

Hello! A little background, since I rarely post: , almost 4 mo has a vsd (which was miscommunicated and downplayed by our NICU docs, and missed entirely by our pediatrician) which will require open-heart surgery sometime in Sept. or Oct. It was this site, and another friend, that encouraged me to dig deeper and to read 's medical records (for a different issue). That's when I saw the vsd....it was on the med records as unclosed. Funny how the parents are the last to know these things! Anyway, thank you for helping us. Yesterday we saw the cardiologist, which leads me to my new set of questions. This time it's on vaccinations. I've read thru some archives, which was helpful. Our intension was to delay all vaccinations, then give some, but not all, at a later date. This cardiologist really pushed them, however, and frankly, really scared me, which I'm sure was her intension. So, with having open-heart this fall, my questions are:

1) DPT. There has been an outbreak of pertussis in WI. The cardiologist said that getting it, with her condition, would be so so much worse than the risk of the vaccination. I'd like to hear your opinions based on medical studies and also personal experience.

2) What is it, exactly, that's in the vaccines that leads some parents to suspect the autism connection? It's been years since I've looked into this. The cardio said mercury is no longer used.

3) This is probably my most important questions... How do these vaccinations effect ds children as opposed to typical children?

I'm sorry if this is too controversial. ....I just really need help in making a decision by next week. It will be 's 4 mo check and that's when her vaccines would be done.

Thanks!

Kris

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Kris,

Wow, what a good thing you looked into your daughter's records more. That could have been a bad situation had you not found out about it!

I was just going to suggest the book that Kathy R. recommended. We just got that book. It is written by an M.D. and is the best book that we've seen on the vaccine subject yet.

We have not done any vaccinations with any of the of the kids in my family. The vaccine subject came up again when my brother was younger. I'm glad we did not vaccinate him, because his body and health was not in good shape when he was younger. But, my brother did not have any heart defects, so I know that's a different situation.

~~ Qadoshyah ~~Got Down Syndrome?www.gotdownsyndrome.netBlog: http://gotdownsyndrome.blogspot.com

RE: vaccinations

Hi Kris-

Pertussis CAN be dangerous in infants. I don’t think that babies necessarily need ALL of the vaccines that are recommended, but for a baby w/a heart defect, my personal opinion is that two important ones to have are the pertussis and hepatitis vaccinations. When I was a Peds nurse (long ago;-) I saw a 6 month old baby who had pertussis…she had such severe coughing paroxysm that she sustained brain damage due to lack of oxygen.(this child did not have a heart defect) I think that some of the mistakes are giving too many vaccines at once or when the child’s immune system is already overworked with fighting off a cold or something…plus, I think that some of the recommended vaccines are not really necessary (flu, rotovirus,chickenpox, to name a few) Vaccines are lumped together for convenience (parent and doc) not necessarily because they HAVE to be given at the same time.

When Danny was a baby, we made lots of mistakes..giving too many at one time to ‘catch up’, giving them when he had a cold… he did get the flu and chickenpox shots when he was an infant, but that was before I knew better…I would not give those to him if I had it to do over. Thank God, Danny did not have any lasting damage from the vaccines (he did get huge knots in his groin area after he got several vaccines at once, but that is the only thing) but I would definitely do it differently if I had to do it today.

None of my other kids got the hepatitis vaccination when they were infants because the doc and I agreed that it wasn’t necessary for them, but we got it for Danny since he was going to have a blood transfusion during his heart surgery.

A good book to read is:

What Your Doctor May Not Tell You About Children's Vaccinations

http://www.amazon.com/What-Doctor-About-Childrens-Vaccinations/dp/0446677078

‘Absolutely the best book I've read on this topic, June 7, 2003

By

Heath B e "heathc888" (Corona del Mar, CA United States) - See all my reviews

Being a new parent, I wanted to review thorough, objective scientific data based on up-to-date and sound research principles before taking the plunge and making vaccination decisions on my child's behalf. This book provides all of that, and then some. I cannot recommend this book highly enough. It is extremely well laid out and complete with all the facts necessary to make your choices.

After reading this book all parents will understand 1) what vaccines are required for your children, and when; 2) what the different vaccines are made of; 3) the efficacy of the vaccines (and for how long they remain effective); 4) the range and rates of reactions to the vaccines; 5) your options related to the timing of the vaccines; 6) precautions that you can take on behalf of your children (including commercially available vaccine alternatives free of controversial additives); 7) an alternative vaccine schedule that Dr. Cave developed based on her experience (that really helped me a lot). Finally, if you choose to be a 'conscientious objector', the author provides information on how to prevent your child being jabbed without your consent.

In addition, all of Dr. Cave's research is referenced at the end of each paragraph should you wish to do additional research (I personally found that this was unnecessary however!). I am very relieved to have found this book prior to my daughter's first vaccination - I now feel completely educated on the (sometimes very emotional) topic of vaccinations. Whether you ultimately elect to have your child vaccinated to the extent that is recommended by health departments is up to you - but with this book you will be armed to the gills with the information you need to be confident about making those important decisions. This book is definitely a keeper. Once again, HIGHLY RECOMMENDED! “ end quote.

KathyR(mom to Danny, almost 9 yrs old (repaired AV canal) and his 6 older sibs

From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of Kris DelaneySent: Saturday, June 30, 2007 7:30 AMDown Syndrome Treatment Subject: vaccinations

Hello! A little background, since I rarely post: , almost 4 mo has a vsd (which was miscommunicated and downplayed by our NICU docs, and missed entirely by our pediatrician) which will require open-heart surgery sometime in Sept. or Oct. It was this site, and another friend, that encouraged me to dig deeper and to read 's medical records (for a different issue). That's when I saw the vsd....it was on the med records as unclosed. Funny how the parents are the last to know these things! Anyway, thank you for helping us. Yesterday we saw the cardiologist, which leads me to my new set of questions. This time it's on vaccinations. I've read thru some archives, which was helpful. Our intension was to delay all vaccinations, then give some, but not all, at a later date. This cardiologist really pushed them, however, and frankly, really scared me, which I'm sure was her intension. So, with having open-heart this fall, my questions are:

1) DPT. There has been an outbreak of pertussis in WI. The cardiologist said that getting it, with her condition, would be so so much worse than the risk of the vaccination. I'd like to hear your opinions based on medical studies and also personal experience.

2) What is it, exactly, that's in the vaccines that leads some parents to suspect the autism connection? It's been years since I've looked into this. The cardio said mercury is no longer used.

3) This is probably my most important questions... How do these vaccinations effect ds children as opposed to typical children?

I'm sorry if this is too controversial.....I just really need help in making a decision by next week. It will be 's 4 mo check and that's when her vaccines would be done.

Thanks!

Kris

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  • 2 years later...

Sharron yes the ACA has a position

statement that they produced sometime ago that revolved around informed consent

or better said how the public needs to have an informed choice meaning that

they need to be made aware of the literature that points to a risk/injury

vaccinations can cause. That in step with the bioethical constructs of

informed consent that mandated vaccinations are not appropriate that

individuals should have a choice after hearing the up side and the down side of

being vaccinated or not. The the ACA doesn’t say “don’t

get vaccinated.” I can’t imagine that the ICA doesn’t have something similar.

Further the Association of American Physicians and Surgeons also have a

position statement also against mandatory vaccinations and support a patient’s/consumer’s

choice after being given all the information…..go to www.aapsonline.org

Vern Saboe

From:

[mailto: ] On Behalf Of Sharron Fuchs

Sent: Wednesday, October 28, 2009

12:28 PM

Subject:

vaccinations

Does the ACA or any other national Chiropractic trade association

have a position paper on the subject of vaccinations? I just searched the ACA

website and found nothing.

s. fuchs dc

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.423 / Virus Database: 270.14.36/2465 - Release Date: 10/28/09 09:34:00

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Any chance that you can find the link for

the ACA position paper? I could find nothing on their website.

s. fuchs dc

From: vsaboe

[mailto:vsaboe@...]

Sent: Wednesday, October 28, 2009

12:54 PM

Sharron Fuchs;

Subject: RE:

vaccinations

Sharron yes the ACA has a position

statement that they produced sometime ago that revolved around informed consent

or better said how the public needs to have an informed choice meaning that

they need to be made aware of the literature that points to a risk/injury

vaccinations can cause. That in step with the bioethical constructs of

informed consent that mandated vaccinations are not appropriate that

individuals should have a choice after hearing the up side and the down side of

being vaccinated or not. The the ACA doesn’t say “don’t

get vaccinated.” I can’t imagine that the ICA doesn’t have something similar.

Further the Association of American Physicians and Surgeons also have a

position statement also against mandatory vaccinations and support a

patient’s/consumer’s choice after being given all the

information…..go to www.aapsonline.org

Vern Saboe

From:

[mailto: ] On Behalf Of Sharron Fuchs

Sent: Wednesday, October 28, 2009

12:28 PM

Subject:

vaccinations

Does the ACA or any other national Chiropractic trade association

have a position paper on the subject of vaccinations? I just searched the ACA

website and found nothing.

s. fuchs dc

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.423 / Virus Database: 270.14.36/2465 - Release Date: 10/28/09 09:34:00

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  • 2 weeks later...

There you go, Dan. I posted some of this in the many, maybe too many, posts I

have done on this here.

The Baxter incident was in the Barbara Le Fisher article.

http://www.whale.to/a/politics_profits.html

http://www.whale.to/vaccines/nvic.html

Glad you posted this, very informative and right on!

G. Smalling, D.C.

____________________

>

> Hi all

>

> This was sent to me by a patient... well worth the listen

>

> Danno

> -----

> http://protocatholic.blogspot.com/

>

>

>

>

>

>

>

>

>

--------------------------------------------------------------------------------

>

>

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 8.5.424 / Virus Database: 270.14.51/2482 - Release Date: 11/05/09

07:37:00

>

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  • 9 months later...

Hi Bee,

I saw your reply to another message on vaccinations. I recently signed a

personal choice affidavit so my daughter, who just entered kindergarten, could

be exempted from all vaccinations. Are there any that you would recommend? what

about rubella for girls?

Regards,

Samia

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