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Hi Marty,

Thanks for writing, I like the way that you always lay

everything out so clearly.

>Then, the shimmering started.

>I had heard of it but didn't know what it meant until

>it happened to me - weird!)

I thought it was only me!

>I had a neck injury about 1 year ago so I guess I

>should look into

>chiari/cervical stenosis.

I cricked my neck when I was a kid doing Sunday

morning acrobatics of my bed head.

>QUESTION: If I had a chiari malformation or

>stenosis, would it be logical to assume nothing would

>help? (as in

>help from

>the glut injections, reaction to whey, effects of

>antioxidants?)

No, in my opinion. The chiari/stenosis (if you have

it) is a congenital condition maybe aggravated by an

old injury that has become symptomatic following a

trigger (infection?). You have demonstrated immune

abnormalities which have been helped by ATP/Glut

supplements etc, but this doesn't neccessarily rule

out chiari, you'll need an MRI to do that. The chiari

effects the performance of the ANS with the possiblity

of various sx, for example, some have gut symptoms

such as poor motility. If you can imaging these sx

could be helped by digestive enzymes, HCL Betain,

rotation diet, etc when infact chiari is at the root

of the problem. Most people with chiari also have

NMH, this can be largely aleviated by surgery.

Anyway must go now as I am fading fast and confusing

myself!

=====

on in Hampshire, England.

jamesinspace@...

__________________________________________________

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  • 3 years later...
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Im no Doctor, but they sound to me like floaters. (look up transient

visual scotomata on google )

I also have them to varying degrees of intensity (varying with the

level of symptoms at the time) and they seem to pulse to my heartbeat.

They only really stand out if I make an effort to look for them,

however, and I can remember seeing them when I looked in the sky when

I was a young child as well.

Personally, I dont think that they are anything major (ie a sign of

visual deterioation), or anything to worry about, and you'll probably

find that most people (even the healthy ones) have the same thing.

That being said, it is still best to check any health issues with your

doctor.

Sincerely,

.

>

> I am asking for some help identifying a visual irregularity that I

am

> experiencing. When I look at a high contrast background, such as a

> bright blue sky, I am seeing small `sperm like' objects in my

vision.

> They vary in number from under a hundred to many hundreds, their

> number correlating with the severity of my Chronic Fatigue Symptoms.

> They dart around, change direction, and their velocity is

synchronized

> with my heart beat (i.e. they surge forward in pulses). I have thus

> far been unable to tell if they follow repeating paths, which might

> indicate flow through fixed structures.

>

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Neurotoxins? Check Shoemaker's website about the visual contrast

sensitivity test.

www.chronicneurotoxins.com

penny

> Hi,

>

>

>

>

> I am asking for some help identifying a visual irregularity that I

am

> experiencing. When I look at a high contrast background, such as a

> bright blue sky, I am seeing small `sperm like' objects in my

vision.

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Hi ,

> I am asking for some help identifying a visual irregularity that I am

> experiencing. When I look at a high contrast background, such as a

> bright blue sky, I am seeing small `sperm like' objects in my vision.

> They vary in number from under a hundred to many hundreds, their

> number correlating with the severity of my Chronic Fatigue Symptoms.

> They dart around, change direction, and their velocity is synchronized

> with my heart beat (i.e. they surge forward in pulses). I have thus

> far been unable to tell if they follow repeating paths, which might

> indicate flow through fixed structures.

What you're seeing are the blood cells in the capiilaries in your eyes.

This is *perfectly normal* and nothing to worry about. Lots of people

notice them when the lighting is just right. It has nothing to do with

CFIDS, as far as the reason you see them.

> I have been able to find out very little about this phenomenon, with

> only a few references on the web, and these are only anecdotal with no

> analysis or discussion of causes. I am thinking that they might be

> viral, bacterial or fungal particles in my blood, but I'm not sure how

> to confirm or refute this supposition. I am, however, quite certain

> that they are not traditional `floaters'.

No. And they're not floaters.

> For the record, I have tested positive for `Stealth Virus', CMV, EBV,

> Rickettsia, and staphylococci in nasal swabs. I am very interested in

> finding out what this visual anomaly is. If anyone has any thoughts or

> information, I would greatly appreciate a response. Please send

> replies to adelaideboi@... .

Go to any optometrist or ophthamologist and they'll tell you exactly

what I just did.

People have to stop thinking *everything* is CFIDS-related. Many things

aren't. Remember Occam's Razor.

Teewinot

@>--}-- * --{--<@

Teewinot13@...

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Yes, my father was an ophthalmologist, and I remember a lot of his

golfing buddies asking about visual irregularities. Remember, the

inside of the eye is filled with liquid as well as capilaries, so it

could be arterial related or not. But almost always, the

irregularities resolve on their own.

Mike C.

> Hi ,

>

> > I am asking for some help identifying a visual irregularity that

I am

> > experiencing. When I look at a high contrast background, such as a

> > bright blue sky, I am seeing small `sperm like' objects in my

vision.

> > They vary in number from under a hundred to many hundreds, their

> > number correlating with the severity of my Chronic Fatigue

Symptoms.

> > They dart around, change direction, and their velocity is

synchronized

> > with my heart beat (i.e. they surge forward in pulses). I have

thus

> > far been unable to tell if they follow repeating paths, which

might

> > indicate flow through fixed structures.

>

> What you're seeing are the blood cells in the capiilaries in your

eyes.

> This is *perfectly normal* and nothing to worry about. Lots of

people

> notice them when the lighting is just right. It has nothing to do

with

> CFIDS, as far as the reason you see them.

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  • 3 years later...
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Ya know you might want to have your sugar checked. Also they could be floaters, tiny tears in the retina, they occur naturally, just part of being human and fallible. Dang it, too bad we can't wear a armor to make us invincible like superman. LoL Love JanetSHARON CROSBY <csharonxoxo@...> wrote: I'm having some problems with my vision and don't know whether I

should be worried or not. I suppose the wisest thing is to see my doc, but I'll ask if anyone has had this first. I have cataracts, about mid range in development. Lately, I've had floating spots of "fogged" areas on my eyes. They don't sit still and do pass, but I keep thinking I have a film in my eyes and I don't. Is this something any one else has had relating to the tx? Sharon Take the ordinary

things of life, and make them your own. Do the impossible with a smile

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Ya know you might want to have your sugar checked. Also they could be floaters, tiny tears in the retina, they occur naturally, just part of being human and fallible. Dang it, too bad we can't wear a armor to make us invincible like superman. LoL Love JanetSHARON CROSBY <csharonxoxo@...> wrote: I'm having some problems with my vision and don't know whether I

should be worried or not. I suppose the wisest thing is to see my doc, but I'll ask if anyone has had this first. I have cataracts, about mid range in development. Lately, I've had floating spots of "fogged" areas on my eyes. They don't sit still and do pass, but I keep thinking I have a film in my eyes and I don't. Is this something any one else has had relating to the tx? Sharon Take the ordinary

things of life, and make them your own. Do the impossible with a smile

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I had almost the same problems while on treatment the safest thing I think for you to do is to see an eye doc .Treatment can cause damage to the eyes

Vision problems

I'm having some problems with my vision and don't know whether I should be worried or not. I suppose the wisest thing is to see my doc, but I'll ask if anyone has had this first.

I have cataracts, about mid range in development. Lately, I've had floating spots of "fogged" areas on my eyes. They don't sit still and do pass, but I keep thinking I have a film in my eyes and I don't. Is this something any one else has had relating to the tx?

Sharon

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I had almost the same problems while on treatment the safest thing I think for you to do is to see an eye doc .Treatment can cause damage to the eyes

Vision problems

I'm having some problems with my vision and don't know whether I should be worried or not. I suppose the wisest thing is to see my doc, but I'll ask if anyone has had this first.

I have cataracts, about mid range in development. Lately, I've had floating spots of "fogged" areas on my eyes. They don't sit still and do pass, but I keep thinking I have a film in my eyes and I don't. Is this something any one else has had relating to the tx?

Sharon

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sharon, you should check with your doc,, but what Im thinking is that you may be experiencing "Ocular Migraines".. they cause a blurring of the vision but it does pass,, what I saw was like looking through 'cracked glass',, and I did occasionally have floaters. You can expect that your cataracts might fully blossum from treatment.. Please call your eye doc and have him take a look.. it may just be a simple "Ocular Migraine" and they are nothing to really worry about ,, but IM glad that they dont hurt! lol we have enough that hurts!SHARON CROSBY <csharonxoxo@...> wrote: I'm having some problems with my vision and don't know whether I should be worried or not. I suppose the wisest thing is to see my doc, but I'll ask if anyone has had this first. I have cataracts, about mid range in development. Lately, I've had floating spots of "fogged" areas on my eyes. They don't sit still and do pass, but I keep thinking I have a film in my eyes and I don't. Is this something any one else has had relating to the tx? Sharon Jackie

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sharon, you should check with your doc,, but what Im thinking is that you may be experiencing "Ocular Migraines".. they cause a blurring of the vision but it does pass,, what I saw was like looking through 'cracked glass',, and I did occasionally have floaters. You can expect that your cataracts might fully blossum from treatment.. Please call your eye doc and have him take a look.. it may just be a simple "Ocular Migraine" and they are nothing to really worry about ,, but IM glad that they dont hurt! lol we have enough that hurts!SHARON CROSBY <csharonxoxo@...> wrote: I'm having some problems with my vision and don't know whether I should be worried or not. I suppose the wisest thing is to see my doc, but I'll ask if anyone has had this first. I have cataracts, about mid range in development. Lately, I've had floating spots of "fogged" areas on my eyes. They don't sit still and do pass, but I keep thinking I have a film in my eyes and I don't. Is this something any one else has had relating to the tx? Sharon Jackie

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Yes, the cotton wool sounds like what's happening. I already have cataracts and now suspected glaucoma. Also have a lot of free floating protein in my eyes. Can you explain the cotton wool better?

Sharon

Re: Vision problems

sharon, you should check with your doc,, but what Im thinking is that you may be experiencing "Ocular Migraines".. they cause a blurring of the vision but it does pass,, what I saw was like looking through 'cracked glass',, and I did occasionally have floaters. You can expect that your cataracts might fully blossum from treatment..

Please call your eye doc and have him take a look.. it may just be a simple "Ocular Migraine" and they are nothing to really worry about ,, but IM glad that they dont hurt! lol

we have enough that hurts!

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Yes, the cotton wool sounds like what's happening. I already have cataracts and now suspected glaucoma. Also have a lot of free floating protein in my eyes. Can you explain the cotton wool better?

Sharon

Re: Vision problems

sharon, you should check with your doc,, but what Im thinking is that you may be experiencing "Ocular Migraines".. they cause a blurring of the vision but it does pass,, what I saw was like looking through 'cracked glass',, and I did occasionally have floaters. You can expect that your cataracts might fully blossum from treatment..

Please call your eye doc and have him take a look.. it may just be a simple "Ocular Migraine" and they are nothing to really worry about ,, but IM glad that they dont hurt! lol

we have enough that hurts!

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Well, it's unanimous. Guess I'll call him. My dh also is ragging me to go see him. I already have so much trouble with my eyes, it makes sense not to take chances.

Thanks, Sharon

I had almost the same problems while on treatment the safest thing I think for you to do is to see an eye doc .Treatment can cause damage to the eyes

I'm having some problems with my vision and don't know whether I should be worried or not. I suppose the wisest thing is to see my doc, but I'll ask if anyone has had this first.

I have cataracts, about mid range in development. Lately, I've had floating spots of "fogged" areas on my eyes. They don't sit still and do pass, but I keep thinking I have a film in my eyes and I don't. Is this something any one else has had relating to the tx?

Sharon

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Well, it's unanimous. Guess I'll call him. My dh also is ragging me to go see him. I already have so much trouble with my eyes, it makes sense not to take chances.

Thanks, Sharon

I had almost the same problems while on treatment the safest thing I think for you to do is to see an eye doc .Treatment can cause damage to the eyes

I'm having some problems with my vision and don't know whether I should be worried or not. I suppose the wisest thing is to see my doc, but I'll ask if anyone has had this first.

I have cataracts, about mid range in development. Lately, I've had floating spots of "fogged" areas on my eyes. They don't sit still and do pass, but I keep thinking I have a film in my eyes and I don't. Is this something any one else has had relating to the tx?

Sharon

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Good hon,, ask him about 'occular migraines' too,, SHARON CROSBY <csharonxoxo@...> wrote: Well, it's unanimous. Guess I'll call him. My dh also is ragging me to go see him. I already have so much trouble with my eyes, it makes sense not to take chances. Thanks, Sharon I had almost the same problems while on treatment the safest thing I think for you to do is to see an eye doc .Treatment can cause damage to the eyes I'm having some problems with my vision and don't know whether I should be worried or not. I suppose the wisest thing is to see my doc, but I'll ask if anyone has had this first. I have cataracts, about mid range in development. Lately, I've had floating spots of "fogged" areas on my eyes. They don't sit still and do pass, but I keep thinking I have a film in my eyes and I don't. Is this something any one else has had relating to the tx? Sharon Jackie

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Im not sure exactly WHY they happen or what the pathophysiology is,, but interferon seems to cause them and they usually clear up after treatment ends.. Why do you have free floating protein in your eyes? never heard of that before..Try this site, it explains it and has pictures too! dro.hs.columbia.edu/ctwool.htmSHARON CROSBY <csharonxoxo@...> wrote: Yes,

the cotton wool sounds like what's happening. I already have cataracts and now suspected glaucoma. Also have a lot of free floating protein in my eyes. Can you explain the cotton wool better? Sharon Re: Vision problems sharon, you should check with your doc,, but what Im thinking is that you may be

experiencing "Ocular Migraines".. they cause a blurring of the vision but it does pass,, what I saw was like looking through 'cracked glass',, and I did occasionally have floaters. You can expect that your cataracts might fully blossum from treatment.. Please call your eye doc and have him take a look.. it may just be a simple "Ocular Migraine" and they are nothing to really worry about ,, but IM glad that they dont hurt! lol we have enough that hurts! Jackie

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The specks of protein are common, I'm told and nothing can be done about them. Just specks of dark matter that float around on the surface of my eye and cause me to go nuts. lol It might be part of what forms the cataracts, I don't know. Then I have a couple of dark scars on the surface of the eye from injuries.

Then I am prone to irisitis and shingles in my eyes as well as in my mouth. He tells me I've lost a line of vision in the last year. The cataracts don't have to ripen to be removed now, they are shattered or something like that with lasers now. I don't know if it's a regular surgery or not, but I don't think it is.

Sharon

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thats how my sarcoidosis started,, with my odd vision and floaters,, and iritis,, and I also have shingles on my 3rd cranial nerve that feeds my eye and my nose,, so I KNOW what THAT IS LIKE,, AWFUL,, in fact Im just getting over a small breakout now,, its been awful,, Since you are prone to these problems,, please have the doc keep a close watch on your eyes while you are on tx,, My blood test for Sarco is negative but the film that keeps forming over my retina is sarcoid... so who knows,, but IM glad its NOT in my lungs which is where Sarco usually ends up... Interferon causes Sarcoidosis,,, SHARON CROSBY <csharonxoxo@...> wrote: The specks of protein are common, I'm told and nothing can be done about them. Just specks of dark matter that float around on the surface of my eye and cause me to go nuts. lol It might be part of what forms the cataracts, I don't know. Then I have a couple of dark scars on the surface of the eye from injuries. Then I am prone to irisitis and shingles in my eyes as well as in my mouth. He tells me I've lost a line of vision in the last year. The cataracts don't have to ripen to be removed now, they are shattered or something like that with lasers now. I don't know if it's a regular surgery or not, but I don't think it is. Sharon Jackie

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Your advice carries more weight with me, Jax. Since you have the experience to back it up. I was pretty down today but will call him tomorrow and make an appointment. I don't want another outbreak in my eyse. It's horribly painful and I just have to patch the affected eye til it heals.

Better to do prentative medicine in this case. I have been procrastinating, but you make it soune potentially quite serious and I promis I WILL call tomorrow for sure.

Thanks for the info, Sharon

Re: Vision problems

thats how my sarcoidosis started,, with my odd vision and floaters,, and iritis,, and I also have shingles on my 3rd cranial nerve that feeds my eye and my nose,, so I KNOW what THAT IS LIKE,, AWFUL,, in fact Im just getting over a small breakout now,, its been awful,,

Since you are prone to these problems,, please have the doc keep a close watch on your eyes while you are on tx,, My blood test for Sarco is negative but the film that keeps forming over my retina is sarcoid... so who knows,, but IM glad its NOT in my lungs which is where Sarco usually ends up... Interferon causes Sarcoidosis,,, SHARON CROSBY <csharonxoxo@...> wrote:

The specks of protein are common, I'm told and nothing can be done about them. Just specks of dark matter that float around on the surface of my eye and cause me to go nuts. lol It might be part of what forms the cataracts, I don't know. Then I have a couple of dark scars on the surface of the eye from injuries.

Then I am prone to irisitis and shingles in my eyes as well as in my mouth. He tells me I've lost a line of vision in the last year. The cataracts don't have to ripen to be removed now, they are shattered or something like that with lasers now. I don't know if it's a regular surgery or not, but I don't think it is.

Sharon

click the link--

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Thank you Sharon... I always try to "impress:" how important things are WITHOUT trying to scare the folks Im trying to help...Dont you have anti-virals on hand for break outs for the shingles? I have bottles of it and whenever I feel that area itching,, I start taking the pills and so far, have really reduced the number of outbreaks I have had.. this last time, for some reason I didnt recognize the tingling and itching because it had been so long since I broke out... so I paid for it this time..lol.. I think the worst part, and yeah, I can be pretty vain, but the worst part is when its drying up and all scabby and ugly, I hate to have to go out in public with it.. I look like I have been drug with my face on the pavement,, but its now almost gone. Interferon CAN cause Sarcoidosis and its rare that it doesnt go to the lungs and ends up in the eyes but it does happen... BUT.. WOULD I have NOT taken treatment IF I HAD KNOWN that I would have ended up

with all these permanent side effects??? NO, NO, NO... I WOULD have taken tx anyway because these things Im dealing with now are NOT really LIFE threatening,, the HEP WAS... I was stage 3-4 with early cirrhosis.. my live was completely tan and it was really sick when I found my hep... and THAT WAS going to kill me or put me on a transplant list... so I would always have treated AND IF I were to relapse, ID TAKE TX AGAIN.. in a drop of the hat, I'd start it again... because I AM a responder, I would in all likelihood respond again.... speaking of that, I NEED to get a call into my doc and get my PCR drawn.........lol,, oh I CAN BE such a procrastinator..lol Please feel free to email me off line if you have any questions that you want answered in private,, Im always available hon! jaxSHARON CROSBY <csharonxoxo@...> wrote: Your advice carries more weight with me, Jax. Since you have the experience to back it up. I was pretty down today but will call him tomorrow and make an appointment. I don't want another outbreak in my eyse. It's horribly painful and I just have to patch the affected eye til it heals. Better to do prentative medicine in this case. I have been procrastinating, but you make it soune potentially quite serious and I promis I WILL call tomorrow for sure. Thanks for the info, Sharon Re: Vision problems thats how my sarcoidosis started,, with my odd vision and floaters,, and iritis,, and I also have shingles on my 3rd cranial nerve that feeds my eye and my nose,, so I KNOW what THAT IS LIKE,, AWFUL,, in fact Im just getting over a small breakout now,, its been awful,, Since you are prone to these problems,, please have the doc keep a close watch on your eyes while you are on tx,, My blood test for Sarco is negative but the film that keeps forming over my retina is sarcoid... so who knows,, but IM glad its NOT in my lungs which is where Sarco usually ends up... Interferon causes Sarcoidosis,,, SHARON CROSBY <csharonxoxomsn> wrote: The specks of protein are common, I'm told and nothing can be done about them. Just specks of dark matter that float around on the surface of my eye and cause me to go nuts. lol It might be part of what forms the cataracts, I don't know. Then I have a couple of dark scars on the surface of the eye from injuries. Then I am prone to irisitis and shingles in my eyes as well as in my mouth. He tells me I've lost a line of vision in the last year. The cataracts don't have to ripen to be removed now, they are shattered or something like that with lasers now. I don't know if it's a regular surgery or not, but I don't think it is. Sharon click the link-- Jackie

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The prescription for the anti virus for shingles costs over $200 dollars. I cannot afford to keep it around without needing it. I DO have a written prescription on hand tho and I won't hesitate to get it filled if I feel the beginning of a return visit.

Re: Vision problems

Thank you Sharon... I always try to "impress:" how important things are WITHOUT trying to scare the folks Im trying to help...Dont you have anti-virals on hand for break outs for the shingles? I have bottles of it and whenever I feel that area itching,, I start taking the pills and so far, have really reduced the number of outbreaks I have had.. this last time, for some reason I didnt recognize the tingling and itching because it had been so long since I broke out... so I paid for it this time..lol.. I think the worst part, and yeah, I can be pretty vain, but the worst part is when its drying up and all scabby and ugly, I hate to have to go out in public with it.. I look like I have been drug with my face on the pavement,, but its now almost gone.

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Wow, thats alot hon,, I sent you an email,, privately.. SHARON CROSBY <csharonxoxo@...> wrote: The prescription for the anti virus for shingles costs over $200 dollars. I cannot afford to keep it around without needing it. I DO have a written prescription on hand tho and I won't hesitate to get it filled if I feel the beginning of a return visit. Re: Vision problems Thank you Sharon... I always try to "impress:" how important things are WITHOUT trying to scare the folks Im trying to help...Dont you have anti-virals on hand for break outs for the shingles? I have bottles of it and whenever I feel that area itching,, I start taking the pills and so far, have really reduced the number of outbreaks I have had.. this last time, for some

reason I didnt recognize the tingling and itching because it had been so long since I broke out... so I paid for it this time..lol.. I think the worst part, and yeah, I can be pretty vain, but the worst part is when its drying up and all scabby and ugly, I hate to have to go out in public with it.. I look like I have been drug with my face on the pavement,, but its now almost gone. Jackie

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  • 2 years later...

>

> My 2 year old has one brown eye and one blue/grey eye. He was tilting his

head back to watch tv for about 2 weeks then he stopped and was back to normal.

I told his dr and he went to an eye dr. He now wears glasses because his brown

eye is weaker than his blue eye. Anyone else have vision problems?

>

I have sectoral heterochromia. (both eyes are brown and blue) And I wear

glasses. As a matter of fact, I'm pretty useless without them. My father,

grandmother, AND great grandmother also have heterochromia and also have poor

eyesight. I have a pair of 6 year old twins and the optometrst told me that

most likely they will need glasses. Even though my eyesight sucks I wouldnt

trade my blue brown eyes for 20/20 vision. Your son will adjust and learn to

live with it. besides, there is always lasik surgery in the future.

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Just as a counterpoint to this, I have heterochromia and still have perfect

vision at age 31. So, there is not necessarily a perfect correlation between

vision problems and heterochromia.

> >

> > My 2 year old has one brown eye and one blue/grey eye. He was tilting his

head back to watch tv for about 2 weeks then he stopped and was back to normal.

I told his dr and he went to an eye dr. He now wears glasses because his brown

eye is weaker than his blue eye. Anyone else have vision problems?

> >

>

> I have sectoral heterochromia. (both eyes are brown and blue) And I wear

glasses. As a matter of fact, I'm pretty useless without them. My father,

grandmother, AND great grandmother also have heterochromia and also have poor

eyesight. I have a pair of 6 year old twins and the optometrst told me that

most likely they will need glasses. Even though my eyesight sucks I wouldnt

trade my blue brown eyes for 20/20 vision. Your son will adjust and learn to

live with it. besides, there is always lasik surgery in the future.

>

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