Guest guest Posted April 22, 2009 Report Share Posted April 22, 2009 I think it is important to point out that you don't have SMA as the original poster asked about people with SMA. From what I learned here, it's not a good idea for SMA'ers to load up on protein as we have difficult processing them. I don't want Kathy to get the wrong idea. Lori ________________________________ From: Dina Abramson <dinaa68@...> Sent: Wednesday, April 22, 2009 11:55:12 AM Subject: Re: Re: calories I have seen a nutritionist a few times as referred by my pulmonologist. I had an extremely hard time gaining weight my whole life. I was fifty pounds forever, then sixty pounds forever, etc. I think when I started working with this pulmonologist about three years ago, I weighed around sixty five pounds and I was about in my mid to late thirties. The nutitionist loaded me up with all kinds of protein powder and pills..way more than I could keep up with on a daily basis. I used one or two things for awhile, but I don't use any of that stuff now, except the calcium and vitamin D. I believe what has caused me to gain weight is a combination of the bi-pap and the medication for osteoporosis. The medication has caused me to regrow some bone, and the bi-pap is giving me more energy, so I'm more active and I eat more. Some of it may also be the fact that women often gain weight as they age. I have been amazed to see the scale tipping every time I go to the doctor. I went yesterday, and my weight was 77.6 pounds! While overall that is good news, at the same time I am somewhat weaker than I used to be before the weight. I am still predominantly ambulatory. My main problems are not being to get up from the floor like I used to, and lifting things seem to be a little harder. My balance is definitely getting worse. I am having a lot of pain currently in my shoulders and neck. But I don't know if that is from the weight gain. I would rather not gain much more weight at this point, but it is hard because I've never had to try to limit my food! I always ate whatever I wanted whenever I wanted, and didn't pay attention to fat grams, calories, etc. But now that I'm in my early forties, I'm thinking about cholesterol, etc. My blood pressure is still good, but its creeping up. So I'm trying to slowly cut down on fat and eat lower fat alternatives. I never thought I'd have to think about dieting. My doctor would like me to be about 85 pounds, but I think that's too much. Dina From: rdubin86 <rdubin86 (DOT) com> Subject: Re: calories @gro ups.com Date: Tuesday, April 21, 2009, 11:49 PM Hi, I used to see a dietician when I went to my pulmonologist. I am not sure how many calories I eat. I am 40 pounds and 22 years old. They added powered protien to my feeding recently to make sure I was getting enough nutrients. I eat during the day though and am worried that if I gained too much weight it might affect my ability to move around like I can now. I would ask your doctor if they have a dietician on staff or they can recommend one. Even though I am underweight for my age I am pretty healthy overall. If I were to get too heavy it would be harder for my caregivers to lift me. Hope this helps, > > does anyone have experience with seeing dieticians for patients with sma? my daughter just got her g-tube and we are trying to regulate her diet. she is 45 lbs and 16 years old. do you know what her required caloric intake should be? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010 Hi All, I was wondering if anybody knew of a good reference debunking the myth of calories. I read somewhere that they are 'made up' in order to serve the politically correct food pyramid. Is there an online reference or book where this is expanded? Best, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2010 Report Share Posted January 16, 2010 > > Hi All, > I was wondering if anybody knew of a good reference debunking the myth of > calories. I read somewhere that they are 'made up' in order to serve the > politically correct food pyramid. Is there an online reference or book where > this is expanded? +++Hi . Good Calories, Bad Calories by Taube totally debunks the myth of calories, which is available at Amazon through my website: http://www.healingnaturallybybee.com/resource/amazon2.php It is very well documented, with medical studies and references, that will satisfy anyone who needs that kind of proof/evidence. Bee Quote Link to comment Share on other sites More sharing options...
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