Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 Try this view: cholesteatoma/messages/21776?xm=1 & o=1 & m=p & tidx=1 I think it's OK - if it ain't broke no real need to fix it. Just my 2 cents. From: gitzit_2 <poopship14@...>Subject: feedback neededcholesteatoma Date: Wednesday, November 12, 2008, 5:41 PM I had a question that i have wanted to ask the group. How would everyone feel about a c-toma related message board community? I was thinking a bout this the other day while i was sifting thru about a weeks worth of back emails. My thought process is with a forum things could be broken down by subject with various boards for various topics and subjects would be threaded instead of a giant email chain. I think that would make it a lot easier to find information especially for newcomers and save everyone the task of sifting thru emails.I was wondering what everyone thought of this idea? My goal is not to undermine anything that this group has done or setup or anything like that. Im thinking it could make it even better then it already is. Thoughts? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 I am sorry that you are having such a bad time.. Do you have any meds for depression?? You probably should.. The shots you are getting seem to me to be a bit too close together.. I would only have them maybe once every three months and they would only help about three weeks, so they are not a long term answer.. It is hard to acknowledge but the people you work with/for do not care about your pain.. They really only care that you are being paid and need to do whatever the job requires.. I was on that treadmill for over four years before I had to admit I could not keep up.. It is especially hard given that you are your sole source of income, but it does sound like you need to prepare for the inevitable.. Best wished Tom In a message dated 11/1/2009 4:49:33 P.M. Mountain Standard Time, sulaws9@... writes: I have recently began to see a pain specialist.I had fusion at C5 & 6 in March this year,I continue to have pain there as well as thorasic pain due to herniated disc at T10.Over the past two months I have had one epidural steroid injection to cervical spine and two to thorasic spine.She says I can have one more to the thorasic region and two more cervical.She does them in as little as a week apart.this seems like alot to me and the steroids make me feel so gross......the pain is about 30% better.Do ya'll think this is too much steroid,too close together? I know the surgery to repair the thorasic disc is major and I don't want to do it,but......I know the surgery to repair the thorasic disc is major and I don't want toI know the surgery to repair the thorasic disc is major and I don't want to do it,but......<WBR>..is it really wise to wait,knowing the degeneration will only progress....<WBR>...right now I'am still relatively young at 52 and general health is good,some HTN controlled with meds......I guess mI know the surgery to repair the thorasic disc is major and I don't want to do it,but......<WBR>..is it really wise to wait,knowing the degeneration will only progress....<WBR>...right now I'am still relatively young at 52 and general health is good,some HTN controlled with meds......I guess my thought process is what if my health does decline with age and by the time I can't stand the pain anymore and want surgery I'll be too old and too much of a risk medically...<WBR>..I can't take I know the surgery to repair the thorasic disc is major and I don't want to do i Sometimes I wonder why God is punishing me..........Sometimes I wonder why God is punishing me..........<WBR>. yes,I feel sorry for myself today.I can't spend as much time with S There are a few Nurses here,me too.Home Health.The driving is rough,causes the pain to be worse,but now that I'm on my own,it's the best money to be made out here for an LVN.Been Nursing 30 years....hospital,There are a few Nurses There are a few Nurses here,me too.Home Health.The driving is rough,causes the pain to be worse,but now that I'm on my own,it's the best money to be made out here for an LVN.Been Nursing 30 years....hospital,<WBR>long term care,hospice,<WBR>been there,done that,including Thanks for listening.It helps to vent. Suzy in Dallas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 hi suzy, i get 6 epidurals each year, 3 cervical, 3 lumbar. i am told this is the max allowed as more will destroy my bones. when i started getting them 5 years ago i only got 3 a year. i have never gotten them closer than 2 months apart, however, they are only effective with me for 4-6 weeks. i am wondering what your doctor expects you to do for the rest of the year without more injections. i am 51 but often feel about 80 years old but have other health problems, nerve damage, severe arthritis, DDD, RSD.CRPS. i will soon be having my c5/c6 fused. i would suggest getting a second opinion. this is the place to vent, we all understand, you are safe here, and we do care. here's to better days, wyld From: tomhfsu@... <tomhfsu@...> Subject: Re: Feedback needed neck pain Date: Monday, November 2, 2009, 7:28 AM I am sorry that you are having such a bad time.. Do you have any meds for depression?? You probably should.. The shots you are getting seem to me to be a bit too close together.. I would only have them maybe once every three months and they would only help about three weeks, so they are not a long term answer.. It is hard to acknowledge but the people you work with/for do not care about your pain.. They really only care that you are being paid and need to do whatever the job requires.. I was on that treadmill for over four years before I had to admit I could not keep up.. It is especially hard given that you are your sole source of income, but it does sound like you need to prepare for the inevitable.. Best wished Tom In a message dated 11/1/2009 4:49:33 P.M. Mountain Standard Time, sulaws9 (DOT) com writes: I have recently began to see a pain specialist.I had fusion at C5 & 6 in March this year,I continue to have pain there as well as thorasic pain due to herniated disc at T10.Over the past two months I have had one epidural steroid injection to cervical spine and two to thorasic spine.She says I can have one more to the thorasic region and two more cervical.She does them in as little as a week apart.this seems like alot to me and the steroids make me feel so gross......the pain is about 30% better.Do ya'll think this is too much steroid,too close together? I know the surgery to repair the thorasic disc is major and I don't want to do it,but...... I know the surgery to repair the thorasic disc is major and I don't want toI know the surgery to repair the thorasic disc is major and I don't want to do it,but...... <WBR>..is it really wise to wait,knowing the degeneration will only progress.... <WBR>...right now I'am still relatively young at 52 and general health is good,some HTN controlled with meds......I guess mI know the surgery to repair the thorasic disc is major and I don't want to do it,but...... <WBR>..is it really wise to wait,knowing the degeneration will only progress.... <WBR>...right now I'am still relatively young at 52 and general health is good,some HTN controlled with meds......I guess my thought process is what if my health does decline with age and by the time I can't stand the pain anymore and want surgery I'll be too old and too much of a risk medically... <WBR>..I can't take I know the surgery to repair the thorasic disc is major and I don't want to do i Sometimes I wonder why God is punishing me.......... Sometimes I wonder why God is punishing me.......... <WBR>. yes,I feel sorry for myself today.I can't spend as much time with S There are a few Nurses here,me too.Home Health.The driving is rough,causes the pain to be worse,but now that I'm on my own,it's the best money to be made out here for an LVN.Been Nursing 30 years....hospital, There are a few Nurses There are a few Nurses here,me too.Home Health.The driving is rough,causes the pain to be worse,but now that I'm on my own,it's the best money to be made out here for an LVN.Been Nursing 30 years....hospital, <WBR>long term care,hospice, <WBR>been there,done that,including Thanks for listening.It helps to vent. Suzy in Dallas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 hi suzy, i get 6 epidurals each year, 3 cervical, 3 lumbar. i am told this is the max allowed as more will destroy my bones. when i started getting them 5 years ago i only got 3 a year. i have never gotten them closer than 2 months apart, however, they are only effective with me for 4-6 weeks. i am wondering what your doctor expects you to do for the rest of the year without more injections. i am 51 but often feel about 80 years old but have other health problems, nerve damage, severe arthritis, DDD, RSD.CRPS. i will soon be having my c5/c6 fused. i would suggest getting a second opinion. this is the place to vent, we all understand, you are safe here, and we do care. here's to better days, wyld From: tomhfsu@... <tomhfsu@...> Subject: Re: Feedback needed neck pain Date: Monday, November 2, 2009, 7:28 AM I am sorry that you are having such a bad time.. Do you have any meds for depression?? You probably should.. The shots you are getting seem to me to be a bit too close together.. I would only have them maybe once every three months and they would only help about three weeks, so they are not a long term answer.. It is hard to acknowledge but the people you work with/for do not care about your pain.. They really only care that you are being paid and need to do whatever the job requires.. I was on that treadmill for over four years before I had to admit I could not keep up.. It is especially hard given that you are your sole source of income, but it does sound like you need to prepare for the inevitable.. Best wished Tom In a message dated 11/1/2009 4:49:33 P.M. Mountain Standard Time, sulaws9 (DOT) com writes: I have recently began to see a pain specialist.I had fusion at C5 & 6 in March this year,I continue to have pain there as well as thorasic pain due to herniated disc at T10.Over the past two months I have had one epidural steroid injection to cervical spine and two to thorasic spine.She says I can have one more to the thorasic region and two more cervical.She does them in as little as a week apart.this seems like alot to me and the steroids make me feel so gross......the pain is about 30% better.Do ya'll think this is too much steroid,too close together? I know the surgery to repair the thorasic disc is major and I don't want to do it,but...... I know the surgery to repair the thorasic disc is major and I don't want toI know the surgery to repair the thorasic disc is major and I don't want to do it,but...... <WBR>..is it really wise to wait,knowing the degeneration will only progress.... <WBR>...right now I'am still relatively young at 52 and general health is good,some HTN controlled with meds......I guess mI know the surgery to repair the thorasic disc is major and I don't want to do it,but...... <WBR>..is it really wise to wait,knowing the degeneration will only progress.... <WBR>...right now I'am still relatively young at 52 and general health is good,some HTN controlled with meds......I guess my thought process is what if my health does decline with age and by the time I can't stand the pain anymore and want surgery I'll be too old and too much of a risk medically... <WBR>..I can't take I know the surgery to repair the thorasic disc is major and I don't want to do i Sometimes I wonder why God is punishing me.......... Sometimes I wonder why God is punishing me.......... <WBR>. yes,I feel sorry for myself today.I can't spend as much time with S There are a few Nurses here,me too.Home Health.The driving is rough,causes the pain to be worse,but now that I'm on my own,it's the best money to be made out here for an LVN.Been Nursing 30 years....hospital, There are a few Nurses There are a few Nurses here,me too.Home Health.The driving is rough,causes the pain to be worse,but now that I'm on my own,it's the best money to be made out here for an LVN.Been Nursing 30 years....hospital, <WBR>long term care,hospice, <WBR>been there,done that,including Thanks for listening.It helps to vent. Suzy in Dallas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 drs give the shots due they can bill as a procedure, getting a lot more money ....about 600% more. they only care about getting paid. your pain is the least of their concern. source: billing workers at my wife place of emp. who have worked else where. now this isnt true of all drs but many. GHEII ________________________________ From: wyld hunny <wyld_hunny@...> neck pain Sent: Mon, November 2, 2009 9:00:03 AM Subject: Re: Feedback needed hi suzy, i get 6 epidurals each year, 3 cervical, 3 lumbar. i am told this is the max allowed as more will destroy my bones. when i started getting them 5 years ago i only got 3 a year. i have never gotten them closer than 2 months apart, however, they are only effective with me for 4-6 weeks. i am wondering what your doctor expects you to do for the rest of the year without more injections. i am 51 but often feel about 80 years old but have other health problems, nerve damage, severe arthritis, DDD, RSD.CRPS. i will soon be having my c5/c6 fused. i would suggest getting a second opinion. this is the place to vent, we all understand, you are safe here, and we do care. here's to better days, wyld From: tomhfsuaol (DOT) com <tomhfsuaol (DOT) com> Subject: Re: [PainInTheNeck- Back] Feedback needed PainInTheNeck- Back@groups .com Date: Monday, November 2, 2009, 7:28 AM I am sorry that you are having such a bad time.. Do you have any meds for depression?? You probably should.. The shots you are getting seem to me to be a bit too close together.. I would only have them maybe once every three months and they would only help about three weeks, so they are not a long term answer.. It is hard to acknowledge but the people you work with/for do not care about your pain.. They really only care that you are being paid and need to do whatever the job requires.. I was on that treadmill for over four years before I had to admit I could not keep up.. It is especially hard given that you are your sole source of income, but it does sound like you need to prepare for the inevitable.. Best wished Tom In a message dated 11/1/2009 4:49:33 P.M. Mountain Standard Time, sulaws9 (DOT) com writes: I have recently began to see a pain specialist.I had fusion at C5 & 6 in March this year,I continue to have pain there as well as thorasic pain due to herniated disc at T10.Over the past two months I have had one epidural steroid injection to cervical spine and two to thorasic spine.She says I can have one more to the thorasic region and two more cervical.She does them in as little as a week apart.this seems like alot to me and the steroids make me feel so gross......the pain is about 30% better.Do ya'll think this is too much steroid,too close together? I know the surgery to repair the thorasic disc is major and I don't want to do it,but...... I know the surgery to repair the thorasic disc is major and I don't want toI know the surgery to repair the thorasic disc is major and I don't want to do it,but...... <WBR>..is it really wise to wait,knowing the degeneration will only progress.... <WBR>...right now I'am still relatively young at 52 and general health is good,some HTN controlled with meds......I guess mI know the surgery to repair the thorasic disc is major and I don't want to do it,but...... <WBR>..is it really wise to wait,knowing the degeneration will only progress.... <WBR>...right now I'am still relatively young at 52 and general health is good,some HTN controlled with meds......I guess my thought process is what if my health does decline with age and by the time I can't stand the pain anymore and want surgery I'll be too old and too much of a risk medically... <WBR>..I can't take I know the surgery to repair the thorasic disc is major and I don't want to do i Sometimes I wonder why God is punishing me.......... Sometimes I wonder why God is punishing me.......... <WBR>. yes,I feel sorry for myself today.I can't spend as much time with S There are a few Nurses here,me too.Home Health.The driving is rough,causes the pain to be worse,but now that I'm on my own,it's the best money to be made out here for an LVN.Been Nursing 30 years....hospital, There are a few Nurses There are a few Nurses here,me too.Home Health.The driving is rough,causes the pain to be worse,but now that I'm on my own,it's the best money to be made out here for an LVN.Been Nursing 30 years....hospital, <WBR>long term care,hospice, <WBR>been there,done that,including Thanks for listening.It helps to vent. Suzy in Dallas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 drs give the shots due they can bill as a procedure, getting a lot more money ....about 600% more. they only care about getting paid. your pain is the least of their concern. source: billing workers at my wife place of emp. who have worked else where. now this isnt true of all drs but many. GHEII ________________________________ From: wyld hunny <wyld_hunny@...> neck pain Sent: Mon, November 2, 2009 9:00:03 AM Subject: Re: Feedback needed hi suzy, i get 6 epidurals each year, 3 cervical, 3 lumbar. i am told this is the max allowed as more will destroy my bones. when i started getting them 5 years ago i only got 3 a year. i have never gotten them closer than 2 months apart, however, they are only effective with me for 4-6 weeks. i am wondering what your doctor expects you to do for the rest of the year without more injections. i am 51 but often feel about 80 years old but have other health problems, nerve damage, severe arthritis, DDD, RSD.CRPS. i will soon be having my c5/c6 fused. i would suggest getting a second opinion. this is the place to vent, we all understand, you are safe here, and we do care. here's to better days, wyld From: tomhfsuaol (DOT) com <tomhfsuaol (DOT) com> Subject: Re: [PainInTheNeck- Back] Feedback needed PainInTheNeck- Back@groups .com Date: Monday, November 2, 2009, 7:28 AM I am sorry that you are having such a bad time.. Do you have any meds for depression?? You probably should.. The shots you are getting seem to me to be a bit too close together.. I would only have them maybe once every three months and they would only help about three weeks, so they are not a long term answer.. It is hard to acknowledge but the people you work with/for do not care about your pain.. They really only care that you are being paid and need to do whatever the job requires.. I was on that treadmill for over four years before I had to admit I could not keep up.. It is especially hard given that you are your sole source of income, but it does sound like you need to prepare for the inevitable.. Best wished Tom In a message dated 11/1/2009 4:49:33 P.M. Mountain Standard Time, sulaws9 (DOT) com writes: I have recently began to see a pain specialist.I had fusion at C5 & 6 in March this year,I continue to have pain there as well as thorasic pain due to herniated disc at T10.Over the past two months I have had one epidural steroid injection to cervical spine and two to thorasic spine.She says I can have one more to the thorasic region and two more cervical.She does them in as little as a week apart.this seems like alot to me and the steroids make me feel so gross......the pain is about 30% better.Do ya'll think this is too much steroid,too close together? I know the surgery to repair the thorasic disc is major and I don't want to do it,but...... I know the surgery to repair the thorasic disc is major and I don't want toI know the surgery to repair the thorasic disc is major and I don't want to do it,but...... <WBR>..is it really wise to wait,knowing the degeneration will only progress.... <WBR>...right now I'am still relatively young at 52 and general health is good,some HTN controlled with meds......I guess mI know the surgery to repair the thorasic disc is major and I don't want to do it,but...... <WBR>..is it really wise to wait,knowing the degeneration will only progress.... <WBR>...right now I'am still relatively young at 52 and general health is good,some HTN controlled with meds......I guess my thought process is what if my health does decline with age and by the time I can't stand the pain anymore and want surgery I'll be too old and too much of a risk medically... <WBR>..I can't take I know the surgery to repair the thorasic disc is major and I don't want to do i Sometimes I wonder why God is punishing me.......... Sometimes I wonder why God is punishing me.......... <WBR>. yes,I feel sorry for myself today.I can't spend as much time with S There are a few Nurses here,me too.Home Health.The driving is rough,causes the pain to be worse,but now that I'm on my own,it's the best money to be made out here for an LVN.Been Nursing 30 years....hospital, There are a few Nurses There are a few Nurses here,me too.Home Health.The driving is rough,causes the pain to be worse,but now that I'm on my own,it's the best money to be made out here for an LVN.Been Nursing 30 years....hospital, <WBR>long term care,hospice, <WBR>been there,done that,including Thanks for listening.It helps to vent. Suzy in Dallas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 hi suzy, i have met some wonderful people as a result of being disabled. but the best blessing given me by far was the 18 months i was able to babysit my grandson. had i not been disabled, i would have been working. as i am no longer able to see my little love bug, those 18 months were worth every bit of pain i have ever been in. also, honestly, being disabled has made me a better person, more compassionate, more loving, and more appreciative of simple pleasures. i don't think of it as a punishment at all. i have not always thought this way but this has been a long 27 year road so far of chronic pain. sure, i might have not been able to do all the things i had planned to or wanted to do, but does anyone? i have days when i feel sorry for myself but try to remember there are others that have it worse off then i do and when i do feel better i try to help others, it always lifts my spirits.i cannot do much volunteer work anymore but i can pick up the phone and call someone that i know is lonely and make their day a little brighter. take care, wyld From: tomhfsuaol (DOT) com <tomhfsuaol (DOT) com> Subject: Re: [PainInTheNeck- Back] Feedback needed PainInTheNeck- Back@groups .com Date: Monday, November 2, 2009, 7:28 AM I am sorry that you are having such a bad time.. Do you have any meds for depression?? You probably should.. The shots you are getting seem to me to be a bit too close together.. I would only have them maybe once every three months and they would only help about three weeks, so they are not a long term answer.. It is hard to acknowledge but the people you work with/for do not care about your pain.. They really only care that you are being paid and need to do whatever the job requires.. I was on that treadmill for over four years before I had to admit I could not keep up.. It is especially hard given that you are your sole source of income, but it does sound like you need to prepare for the inevitable.. Best wished Tom In a message dated 11/1/2009 4:49:33 P.M. Mountain Standard Time, sulaws9 (DOT) com writes: I have recently began to see a pain specialist.I had fusion at C5 & 6 in March this year,I continue to have pain there as well as thorasic pain due to herniated disc at T10.Over the past two months I have had one epidural steroid injection to cervical spine and two to thorasic spine.She says I can have one more to the thorasic region and two more cervical.She does them in as little as a week apart.this seems like alot to me and the steroids make me feel so gross......the pain is about 30% better.Do ya'll think this is too much steroid,too close together? I know the surgery to repair the thorasic disc is major and I don't want to do it,but...... I know the surgery to repair the thorasic disc is major and I don't want toI know the surgery to repair the thorasic disc is major and I don't want to do it,but...... <WBR>..is it really wise to wait,knowing the degeneration will only progress.... <WBR>...right now I'am still relatively young at 52 and general health is good,some HTN controlled with meds......I guess mI know the surgery to repair the thorasic disc is major and I don't want to do it,but...... <WBR>..is it really wise to wait,knowing the degeneration will only progress.... <WBR>...right now I'am still relatively young at 52 and general health is good,some HTN controlled with meds......I guess my thought process is what if my health does decline with age and by the time I can't stand the pain anymore and want surgery I'll be too old and too much of a risk medically... <WBR>..I can't take I know the surgery to repair the thorasic disc is major and I don't want to do i Sometimes I wonder why God is punishing me.......... Sometimes I wonder why God is punishing me.......... <WBR>. yes,I feel sorry for myself today.I can't spend as much time with S There are a few Nurses here,me too.Home Health.The driving is rough,causes the pain to be worse,but now that I'm on my own,it's the best money to be made out here for an LVN.Been Nursing 30 years....hospital, There are a few Nurses There are a few Nurses here,me too.Home Health.The driving is rough,causes the pain to be worse,but now that I'm on my own,it's the best money to be made out here for an LVN.Been Nursing 30 years....hospital, <WBR>long term care,hospice, <WBR>been there,done that,including Thanks for listening.It helps to vent. Suzy in Dallas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Hi everyone, Thanks for the feedback.I appreciate it.Wyld,so sorry about your Mom and what all of you went through.So sad.Tom I know you're right,my job is only asking me to do what I'm paid to do.I really can't and don't get upset with them.When you say prepare yourself for the inevitable,do you mean surgery or disability?I think I know the answer,but I would like to hear what you think.I really have given it some thought.If I could hang in there for 5 more years of working,I would love to do that.My ex ruined us financially,there is no nest egg.It would be Social security disabilty and nothing else for me.I did sign up for short term disability at work.Pays 60% of my salary for 3 months.We are coming up on open enrollement at work,I plan on doing the long term disability,same thing,60% of my salary only long term.Do ya'll know if I can add disabilty insurance to an exsisting car loan?What about credit cards that have balances?Can you add the insurance anytime? I'm pissed at the surgeon who did the cervical fusion.About 3 months after the fusion is when I first had symptoms of the herniated thorasic disc.I kept complaining about the pain and even asked him if there was a possibilty that there was something going on below that fusion.He phoo phooed me and said " You'll be ok " Didn't order any post op MRI's,nothing.I finally told his PA that it was unacceptable for me to have this much pain.By now thay had cut me off the post op pain meds as well.She sent me for trigger point injections.After 3 injections the Doc said " these aren't helping you there is no point doing anymore " I asked " what's next then,cause I can't live in this pain " She told me I would have to stop whatever repetive movements I was doing and " get a tennis ball,put it on the wall and give yourself a massage " ...... I suffered for months because they would not listen to my symptoms.That is just wrong in so many ways.I finally went to the pain specialist,she was shocked no one had done follow up MRI and ordered one of the cervical and thorasic spine,that is when I found out about the herniated thorasic disc.She said it was unusual unless there had been severe trauma,like a car wreck or something.I've never been in a wreck but was physically abused when I was little......then again 30 years of lifting patients probably contributed alot. You're a nice group of people.I'm glad to know you,but sorry any of us has to be here. I did try effexor when I found out the ex was cheating and going through money like crazy.It made my BP go sky high.I know there are others,but my reaction to the effexor was so bad I,m still a little gun shy.Take care guys and thanks again for the ear. Suzy From: tomhfsuaol (DOT) com <tomhfsuaol (DOT) com> Subject: Re: [PainInTheNeck- Back] Feedback needed PainInTheNeck- Back@groups .com Date: Monday, November 2, 2009, 7:28 AM I am sorry that you are having such a bad time.. Do you have any meds for depression?? You probably should.. The shots you are getting seem to me to be a bit too close together.. I would only have them maybe once every three months and they would only help about three weeks, so they are not a long term answer.. It is hard to acknowledge but the people you work with/for do not care about your pain.. They really only care that you are being paid and need to do whatever the job requires.. I was on that treadmill for over four years before I had to admit I could not keep up.. It is especially hard given that you are your sole source of income, but it does sound like you need to prepare for the inevitable.. Best wished Tom In a message dated 11/1/2009 4:49:33 P.M. Mountain Standard Time, sulaws9 (DOT) com writes: I have recently began to see a pain specialist.I had fusion at C5 & 6 in March this year,I continue to have pain there as well as thorasic pain due to herniated disc at T10.Over the past two months I have had one epidural steroid injection to cervical spine and two to thorasic spine.She says I can have one more to the thorasic region and two more cervical.She does them in as little as a week apart.this seems like alot to me and the steroids make me feel so gross......the pain is about 30% better.Do ya'll think this is too much steroid,too close together? I know the surgery to repair the thorasic disc is major and I don't want to do it,but...... I know the surgery to repair the thorasic disc is major and I don't want toI know the surgery to repair the thorasic disc is major and I don't want to do it,but...... <WBR>..is it really wise to wait,knowing the degeneration will only progress.... <WBR>...right now I'am still relatively young at 52 and general health is good,some HTN controlled with meds......I guess mI know the surgery to repair the thorasic disc is major and I don't want to do it,but...... <WBR>..is it really wise to wait,knowing the degeneration will only progress.... <WBR>...right now I'am still relatively young at 52 and general health is good,some HTN controlled with meds......I guess my thought process is what if my health does decline with age and by the time I can't stand the pain anymore and want surgery I'll be too old and too much of a risk medically... <WBR>..I can't take I know the surgery to repair the thorasic disc is major and I don't want to do i Sometimes I wonder why God is punishing me.......... Sometimes I wonder why God is punishing me.......... <WBR>. yes,I feel sorry for myself today.I can't spend as much time with S There are a few Nurses here,me too.Home Health.The driving is rough,causes the pain to be worse,but now that I'm on my own,it's the best money to be made out here for an LVN.Been Nursing 30 years....hospital, There are a few Nurses There are a few Nurses here,me too.Home Health.The driving is rough,causes the pain to be worse,but now that I'm on my own,it's the best money to be made out here for an LVN.Been Nursing 30 years....hospital, <WBR>long term care,hospice, <WBR>been there,done that,including Thanks for listening.It helps to vent. Suzy in Dallas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 I too am sorry you're feeling so poorly. I'm no expert but I've had two epidurals for lumbar and was told it may flare up, up to 10 days afterwards. Also that it may not start to improve for about two weeks, if it does improve from that treatment. I'm scheduled for a third soon and mine have been a good 3 months apart. You mentioned that the steroids make you feel 'gross'... Could I ask in what way? I felt feverish for about 3-4 days and was told that was from the anaesthetic, not the steroids... Sending hugs, Laurel ________________________________ From: " tomhfsu@... " <tomhfsu@...> neck pain Sent: Mon, November 2, 2009 7:28:21 AM Subject: Re: Feedback needed I am sorry that you are having such a bad time.. Do you have any meds for depression?? You probably should.. The shots you are getting seem to me to be a bit too close together.. I would only have them maybe once every three months and they would only help about three weeks, so they are not a long term answer.. It is hard to acknowledge but the people you work with/for do not care about your pain.. They really only care that you are being paid and need to do whatever the job requires.. I was on that treadmill for over four years before I had to admit I could not keep up.. It is especially hard given that you are your sole source of income, but it does sound like you need to prepare for the inevitable.. Best wished Tom In a message dated 11/1/2009 4:49:33 P.M. Mountain Standard Time, sulaws9 (DOT) com writes: I have recently began to see a pain specialist.I had fusion at C5 & 6 in March this year,I continue to have pain there as well as thorasic pain due to herniated disc at T10.Over the past two months I have had one epidural steroid injection to cervical spine and two to thorasic spine.She says I can have one more to the thorasic region and two more cervical.She does them in as little as a week apart.this seems like alot to me and the steroids make me feel so gross......the pain is about 30% better.Do ya'll think this is too much steroid,too close together? I know the surgery to repair the thorasic disc is major and I don't want to do it,but...... I know the surgery to repair the thorasic disc is major and I don't want toI know the surgery to repair the thorasic disc is major and I don't want to do it,but...... <WBR>..is it really wise to wait,knowing the degeneration will only progress.... <WBR>...right now I'am still relatively young at 52 and general health is good,some HTN controlled with meds......I guess mI know the surgery to repair the thorasic disc is major and I don't want to do it,but...... <WBR>..is it really wise to wait,knowing the degeneration will only progress.... <WBR>...right now I'am still relatively young at 52 and general health is good,some HTN controlled with meds......I guess my thought process is what if my health does decline with age and by the time I can't stand the pain anymore and want surgery I'll be too old and too much of a risk medically... <WBR>..I can't take I know the surgery to repair the thorasic disc is major and I don't want to do i Sometimes I wonder why God is punishing me.......... Sometimes I wonder why God is punishing me.......... <WBR>. yes,I feel sorry for myself today.I can't spend as much time with S There are a few Nurses here,me too.Home Health.The driving is rough,causes the pain to be worse,but now that I'm on my own,it's the best money to be made out here for an LVN.Been Nursing 30 years....hospital, There are a few Nurses There are a few Nurses here,me too.Home Health.The driving is rough,causes the pain to be worse,but now that I'm on my own,it's the best money to be made out here for an LVN.Been Nursing 30 years....hospital, <WBR>long term care,hospice, <WBR>been there,done that,including Thanks for listening.It helps to vent. Suzy in Dallas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 Hi all,Thanks for responding.Laurel,it is hard to describe the way the steroids make me feel.After about the first 3 days,tired,debiltating tiredness,shaky inside,disconnected and the BP climbs.Wyld so sorry about your Mom and what you all had to go through.So sad the way things happen and the turn of events.Tom,I know you are right,my job is only asking me to do what they are paying me for.I really don't get too upset with them.Tom when you say I should prepare for the inevitable,do you mean surgery or disability?I think I know the answer,but would like your opinion.I have begun to seriously make plans.We have open enrollment at work right now,instead of the short term disability,I'll do the long term,pays 60% of my salary.There is no nest egg,the ex went through everything and then some.Do ya'll know if you can add disability insurance to an exsisting car loan or credit cards with balances?What about Social Security disability?Don't you have to be off work two years before they will even talk to you?I would love to get at least 5 more years in working.....but somedays,I don't think I can get through the week.I never call in sick,but when I get off work,I got nothing left in me.I,m mad at the surgeon that did the cervical fusion.I started having symptoms of the T10 herniation about 3 months after the cervical fusion.I kept telling him about the pain and kept telling him.I even asked if it was possible there was something below the fusion going on.He said " No,you'll be ok " By then they had stopped all post op pain meds.I kept telling them about the pain.Finally I told his PA the pain was unacceptable and she ordered trigger point injections.After3 of those the Doc said they weren't helping so no point continuing.I said " Well then whats next,cause I can't live with this pain " She said " you are just going to have to stop whatever repetitive movement you are doing,go get a tennis ball and put it on the wall so you can give yourself a massage " The way they wouldn't listen to my symptoms and let me suffer all those months,it's wrong on so many levels.Thats when I sought the help of the pain Doc.She was shocked no follow up MRI had been done postoperatively.Thats when the T10 herniated disc was found.She said the surgeon phoo phooed me cause it's rare without severe trauma.I have tried antidepressants,effexor.I hated it,bad side effects.I know there are others out there,just a little gun shy.You are a good group of people.I,m sorry any of us have to be here.Thank you all. Suzy From: Laurel <critters909@...> Subject: Re: Feedback needed neck pain Date: Monday, November 2, 2009, 11:19 PM I too am sorry you're feeling so poorly. I'm no expert but I've had two epidurals for lumbar and was told it may flare up, up to 10 days afterwards. Also that it may not start to improve for about two weeks, if it does improve from that treatment. I'm scheduled for a third soon and mine have been a good 3 months apart. You mentioned that the steroids make you feel 'gross'... Could I ask in what way? I felt feverish for about 3-4 days and was told that was from the anaesthetic, not the steroids... Sending hugs, Laurel ____________ _________ _________ __ From: " tomhfsuaol (DOT) com " <tomhfsuaol (DOT) com> PainInTheNeck- Back@groups .com Sent: Mon, November 2, 2009 7:28:21 AM Subject: Re: [PainInTheNeck- Back] Feedback needed I am sorry that you are having such a bad time.. Do you have any meds for depression?? You probably should.. The shots you are getting seem to me to be a bit too close together.. I would only have them maybe once every three months and they would only help about three weeks, so they are not a long term answer.. It is hard to acknowledge but the people you work with/for do not care about your pain.. They really only care that you are being paid and need to do whatever the job requires.. I was on that treadmill for over four years before I had to admit I could not keep up.. It is especially hard given that you are your sole source of income, but it does sound like you need to prepare for the inevitable.. Best wished Tom In a message dated 11/1/2009 4:49:33 P.M. Mountain Standard Time, sulaws9 (DOT) com writes: I have recently began to see a pain specialist.I had fusion at C5 & 6 in March this year,I continue to have pain there as well as thorasic pain due to herniated disc at T10.Over the past two months I have had one epidural steroid injection to cervical spine and two to thorasic spine.She says I can have one more to the thorasic region and two more cervical.She does them in as little as a week apart.this seems like alot to me and the steroids make me feel so gross......the pain is about 30% better.Do ya'll think this is too much steroid,too close together? I know the surgery to repair the thorasic disc is major and I don't want to do it,but...... I know the surgery to repair the thorasic disc is major and I don't want toI know the surgery to repair the thorasic disc is major and I don't want to do it,but...... <WBR>..is it really wise to wait,knowing the degeneration will only progress.... <WBR>...right now I'am still relatively young at 52 and general health is good,some HTN controlled with meds......I guess mI know the surgery to repair the thorasic disc is major and I don't want to do it,but...... <WBR>..is it really wise to wait,knowing the degeneration will only progress.... <WBR>...right now I'am still relatively young at 52 and general health is good,some HTN controlled with meds......I guess my thought process is what if my health does decline with age and by the time I can't stand the pain anymore and want surgery I'll be too old and too much of a risk medically... <WBR>..I can't take I know the surgery to repair the thorasic disc is major and I don't want to do i Sometimes I wonder why God is punishing me.......... Sometimes I wonder why God is punishing me.......... <WBR>. yes,I feel sorry for myself today.I can't spend as much time with S There are a few Nurses here,me too.Home Health.The driving is rough,causes the pain to be worse,but now that I'm on my own,it's the best money to be made out here for an LVN.Been Nursing 30 years....hospital, There are a few Nurses There are a few Nurses here,me too.Home Health.The driving is rough,causes the pain to be worse,but now that I'm on my own,it's the best money to be made out here for an LVN.Been Nursing 30 years....hospital, <WBR>long term care,hospice, <WBR>been there,done that,including Thanks for listening.It helps to vent. Suzy in Dallas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 I was able to get on in about 1 and a half years, but hire a lawyer right out of the gates... If for no other reason you will know how good of a case you have.. They do not really get pain unless you win.. I am sure though that the length of the wait depends on where you are but a good lawyer really is a must Tom In a message dated 11/3/2009 3:32:33 A.M. Mountain Standard Time, wyld_hunny@... writes: hi, my epidurals give me the sweats for about a week, and they are total chemical smell. i usually have to change bedding and pj's 4-5 times a nite because i am just soaked. but i have relief of pain within 2-3 days and as i said it lasts from 4-6 weeks. it removes the feeling of an axe in my neck or hatchet in my lumbar and i can walk without aid of a cane or walker, unless it is winter and my arthritis is flaming. thank you for your kind words regarding my family. it took me 5 years to get on ssi and i finally had to hire a lawyer and had to be on welfare so i could get medical care and survive on $335 a month plus food stamps. then i had to pay back welfare when i got my settlement and the lawyer, so there was not much left. there is currently a 3 year wait for a court date on claims in oregon and washington, i am not sure about other regions of the country. i had to appeal 4 times and had not worked in 5 years. they do not care what you have to do to survive, get medical care, or lose everything you have ever worked for or owned. we had already sold everything when my husband got sick in montana and there was no help unless you had a kid under 18 except food stamps. he got a bacterial blood infection from a bad tooth that went to his brain causing brain damage and the bacteria ate part his aortic heart valve and had to be replaced. we did not have insurance and by the time the va stepped up he would have been dead. i could not work and we were living on $187 a month back child support and both of us were waiting for social security claims. just his antibiotics were $300/day. nothing is impossible as i have personally witnessed miracles though those were some pretty dark days. i guess what does not kill us only makes us stronger. take care, wyld From: Laurel <critters909@ > Subject: Re: [PainInTheNeck- Back] Feedback needed PainInTheNeck- Back@groups .com Date: Monday, November 2, 2009, 11:19 PM I too am sorry you're feeling so poorly. I'm no expert but I've had two epidurals for lumbar and was told it may flare up, up to 10 days afterwards. Also that it may not start to improve for about two weeks, if it does improve from that treatment. I'm scheduled for a third soon and mine have been a good 3 months apart. You mentioned that the steroids make you feel 'gross'... Could I ask in what way? I felt feverish for about 3-4 days and was told that was from the anaesthetic, not the steroids... Sending hugs, Laurel ____________ _________ _________ __ From: " tomhfsuaol (DOT) com " <tomhfsuaol (DOT) com> PainInTheNeck- Back@groups .com Sent: Mon, November 2, 2009 7:28:21 AM Subject: Re: [PainInTheNeck- Back] Feedback needed I am sorry that you are having such a bad time.. Do you have any meds for depression?? You probably should.. The shots you are getting seem to me to be a bit too close together.. I would only have them maybe once every three months and they would only help about three weeks, so they are not a long term answer.. It is hard to acknowledge but the people you work with/for do not care about your pain.. They really only care that you are being paid and need to do whatever the job requires.. I was on that treadmill for over four years before I had to admit I could not keep up.. It is especially hard given that you are your sole source of income, but it does sound like you need to prepare for the inevitable.. Best wished Tom In a message dated 11/1/2009 4:49:33 P.M. Mountain Standard Time, sulaws9 (DOT) com writes: I have recently began to see a pain specialist.I had fusion at C5 & 6 in March this year,I continue to have pain there as well as thorasic pain due to herniated disc at T10.Over the past two months I have had one epidural steroid injection to cervical spine and two to thorasic spine.She says I can have one more to the thorasic region and two more cervical.She does them in as little as a week apart.this seems like alot to me and the steroids make me feel so gross......the pain is about 30% better.Do ya'll think this is too much steroid,too close together? I know the surgery to repair the thorasic disc is major and I don't want to do it,but...... I know the surgery to repair the thorasic disc is major and I don't want toI know the surgery to repair the thorasic disc is major and I don't want to do it,but...... <WBR>..is it really wise to wait,knowing the degeneration will only progress.... <WBR>...right now I'am still relatively young at 52 and general health is good,some HTN controlled with meds......I guess mI know the surgery to repair the thorasic disc is major and I don't want to do it,but...... <WBR>..is it really wise to wait,knowing the degeneration will only progress.... <WBR>...right now I'am still relatively young at 52 and general health is good,some HTN controlled with meds......I guess my thought process is what if my health does decline with age and by the time I can't stand the pain anymore and want surgery I'll be too old and too much of a risk medically... <WBR>..I can't take I know the surgery to repair the thorasic disc is major and I don't want to do i Sometimes I wonder why God is punishing me.......... Sometimes I wonder why God is punishing me.......... <WBR>. yes,I feel sorry for myself today.I can't spend as much time with S There are a few Nurses here,me too.Home Health.The driving is rough,causes the pain to be worse,but now that I'm on my own,it's the best money to be made out here for an LVN.Been Nursing 30 years....hospital, There are a few Nurses There are a few Nurses here,me too.Home Health.The driving is rough,causes the pain to be worse,but now that I'm on my own,it's the best money to be made out here for an LVN.Been Nursing 30 years....hospital, <WBR>long term care,hospice, <WBR>been there,done that,including Thanks for listening.It helps to vent. Suzy in Dallas [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 hi, my epidurals give me the sweats for about a week, and they are total chemical smell. i usually have to change bedding and pj's 4-5 times a nite because i am just soaked. but i have relief of pain within 2-3 days and as i said it lasts from 4-6 weeks. it removes the feeling of an axe in my neck or hatchet in my lumbar and i can walk without aid of a cane or walker, unless it is winter and my arthritis is flaming. thank you for your kind words regarding my family. it took me 5 years to get on ssi and i finally had to hire a lawyer and had to be on welfare so i could get medical care and survive on $335 a month plus food stamps. then i had to pay back welfare when i got my settlement and the lawyer, so there was not much left. there is currently a 3 year wait for a court date on claims in oregon and washington, i am not sure about other regions of the country. i had to appeal 4 times and had not worked in 5 years. they do not care what you have to do to survive, get medical care, or lose everything you have ever worked for or owned. we had already sold everything when my husband got sick in montana and there was no help unless you had a kid under 18 except food stamps. he got a bacterial blood infection from a bad tooth that went to his brain causing brain damage and the bacteria ate part his aortic heart valve and had to be replaced. we did not have insurance and by the time the va stepped up he would have been dead. i could not work and we were living on $187 a month back child support and both of us were waiting for social security claims. just his antibiotics were $300/day. nothing is impossible as i have personally witnessed miracles though those were some pretty dark days. i guess what does not kill us only makes us stronger. take care, wyld From: Laurel <critters909> Subject: Re: [PainInTheNeck- Back] Feedback needed PainInTheNeck- Back@groups .com Date: Monday, November 2, 2009, 11:19 PM I too am sorry you're feeling so poorly. I'm no expert but I've had two epidurals for lumbar and was told it may flare up, up to 10 days afterwards. Also that it may not start to improve for about two weeks, if it does improve from that treatment. I'm scheduled for a third soon and mine have been a good 3 months apart. You mentioned that the steroids make you feel 'gross'... Could I ask in what way? I felt feverish for about 3-4 days and was told that was from the anaesthetic, not the steroids... Sending hugs, Laurel ____________ _________ _________ __ From: " tomhfsuaol (DOT) com " <tomhfsuaol (DOT) com> PainInTheNeck- Back@groups .com Sent: Mon, November 2, 2009 7:28:21 AM Subject: Re: [PainInTheNeck- Back] Feedback needed I am sorry that you are having such a bad time.. Do you have any meds for depression?? You probably should.. The shots you are getting seem to me to be a bit too close together.. I would only have them maybe once every three months and they would only help about three weeks, so they are not a long term answer.. It is hard to acknowledge but the people you work with/for do not care about your pain.. They really only care that you are being paid and need to do whatever the job requires.. I was on that treadmill for over four years before I had to admit I could not keep up.. It is especially hard given that you are your sole source of income, but it does sound like you need to prepare for the inevitable.. Best wished Tom In a message dated 11/1/2009 4:49:33 P.M. Mountain Standard Time, sulaws9 (DOT) com writes: I have recently began to see a pain specialist.I had fusion at C5 & 6 in March this year,I continue to have pain there as well as thorasic pain due to herniated disc at T10.Over the past two months I have had one epidural steroid injection to cervical spine and two to thorasic spine.She says I can have one more to the thorasic region and two more cervical.She does them in as little as a week apart.this seems like alot to me and the steroids make me feel so gross......the pain is about 30% better.Do ya'll think this is too much steroid,too close together? I know the surgery to repair the thorasic disc is major and I don't want to do it,but...... I know the surgery to repair the thorasic disc is major and I don't want toI know the surgery to repair the thorasic disc is major and I don't want to do it,but...... <WBR>..is it really wise to wait,knowing the degeneration will only progress.... <WBR>...right now I'am still relatively young at 52 and general health is good,some HTN controlled with meds......I guess mI know the surgery to repair the thorasic disc is major and I don't want to do it,but...... <WBR>..is it really wise to wait,knowing the degeneration will only progress.... <WBR>...right now I'am still relatively young at 52 and general health is good,some HTN controlled with meds......I guess my thought process is what if my health does decline with age and by the time I can't stand the pain anymore and want surgery I'll be too old and too much of a risk medically... <WBR>..I can't take I know the surgery to repair the thorasic disc is major and I don't want to do i Sometimes I wonder why God is punishing me.......... Sometimes I wonder why God is punishing me.......... <WBR>. yes,I feel sorry for myself today.I can't spend as much time with S There are a few Nurses here,me too.Home Health.The driving is rough,causes the pain to be worse,but now that I'm on my own,it's the best money to be made out here for an LVN.Been Nursing 30 years....hospital, There are a few Nurses There are a few Nurses here,me too.Home Health.The driving is rough,causes the pain to be worse,but now that I'm on my own,it's the best money to be made out here for an LVN.Been Nursing 30 years....hospital, <WBR>long term care,hospice, <WBR>been there,done that,including Thanks for listening.It helps to vent. Suzy in Dallas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 Suzy, Just a bit of encouragement; I was 7 months post surgery when I won my SSDI.I'd love to know what my neuro surgeon put in his report but won on 1st attempt Deb Deb Babcock Watkins Assoc:382608 www.agape1947.com From: Laurel <critters909> Subject: Re: [PainInTheNeck- Back] Feedback needed PainInTheNeck- Back@groups .com Date: Monday, November 2, 2009, 11:19 PM I too am sorry you're feeling so poorly. I'm no expert but I've had two epidurals for lumbar and was told it may flare up, up to 10 days afterwards. Also that it may not start to improve for about two weeks, if it does improve from that treatment. I'm scheduled for a third soon and mine have been a good 3 months apart. You mentioned that the steroids make you feel 'gross'... Could I ask in what way? I felt feverish for about 3-4 days and was told that was from the anaesthetic, not the steroids... Sending hugs, Laurel ____________ _________ _________ __ From: " tomhfsuaol (DOT) com " <tomhfsuaol (DOT) com> PainInTheNeck- Back@groups .com Sent: Mon, November 2, 2009 7:28:21 AM Subject: Re: [PainInTheNeck- Back] Feedback needed I am sorry that you are having such a bad time.. Do you have any meds for depression?? You probably should.. The shots you are getting seem to me to be a bit too close together.. I would only have them maybe once every three months and they would only help about three weeks, so they are not a long term answer.. It is hard to acknowledge but the people you work with/for do not care about your pain.. They really only care that you are being paid and need to do whatever the job requires.. I was on that treadmill for over four years before I had to admit I could not keep up.. It is especially hard given that you are your sole source of income, but it does sound like you need to prepare for the inevitable.. Best wished Tom In a message dated 11/1/2009 4:49:33 P.M. Mountain Standard Time, sulaws9 (DOT) com writes: I have recently began to see a pain specialist.I had fusion at C5 & 6 in March this year,I continue to have pain there as well as thorasic pain due to herniated disc at T10.Over the past two months I have had one epidural steroid injection to cervical spine and two to thorasic spine.She says I can have one more to the thorasic region and two more cervical.She does them in as little as a week apart.this seems like alot to me and the steroids make me feel so gross......the pain is about 30% better.Do ya'll think this is too much steroid,too close together? I know the surgery to repair the thorasic disc is major and I don't want to do it,but...... I know the surgery to repair the thorasic disc is major and I don't want toI know the surgery to repair the thorasic disc is major and I don't want to do it,but...... <WBR>..is it really wise to wait,knowing the degeneration will only progress.... <WBR>...right now I'am still relatively young at 52 and general health is good,some HTN controlled with meds......I guess mI know the surgery to repair the thorasic disc is major and I don't want to do it,but...... <WBR>..is it really wise to wait,knowing the degeneration will only progress.... <WBR>...right now I'am still relatively young at 52 and general health is good,some HTN controlled with meds......I guess my thought process is what if my health does decline with age and by the time I can't stand the pain anymore and want surgery I'll be too old and too much of a risk medically... <WBR>..I can't take I know the surgery to repair the thorasic disc is major and I don't want to do i Sometimes I wonder why God is punishing me.......... Sometimes I wonder why God is punishing me.......... <WBR>. yes,I feel sorry for myself today.I can't spend as much time with S There are a few Nurses here,me too.Home Health.The driving is rough,causes the pain to be worse,but now that I'm on my own,it's the best money to be made out here for an LVN.Been Nursing 30 years....hospital, There are a few Nurses There are a few Nurses here,me too.Home Health.The driving is rough,causes the pain to be worse,but now that I'm on my own,it's the best money to be made out here for an LVN.Been Nursing 30 years....hospital, <WBR>long term care,hospice, <WBR>been there,done that,including Thanks for listening.It helps to vent. Suzy in Dallas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 Tom, employers need to pay more attention to what back, or neck injuries can cost their company, especially if someone has pre existing issues like we do. I am a strong advocate of the American Disability Act. Employers need to allow restrictions, or modifications, in the work setting if the individual can perform their job satisfactorily, according to the job description with the modifications. Unfortunately some of us are self supporting, & can't even afford to be out of work without pay. I am not eligible for any benefits like disability insurance, sick time, or personal days until next May 2010, because I work part time Thank God I have wonderful health insurance through the state of Mass. I wanted to work 2 more years as nurse, so I could pay my outstanding bills, but nobody wants to hire an older nurse with certain issues, namely my DDD, & prior complaints against my license. Eventually disability will be the route to go. I can not see risking my health for such a low paying job, when I can have twice the income with disability. June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 Tom, employers need to pay more attention to what back, or neck injuries can cost their company, especially if someone has pre existing issues like we do. I am a strong advocate of the American Disability Act. Employers need to allow restrictions, or modifications, in the work setting if the individual can perform their job satisfactorily, according to the job description with the modifications. Unfortunately some of us are self supporting, & can't even afford to be out of work without pay. I am not eligible for any benefits like disability insurance, sick time, or personal days until next May 2010, because I work part time Thank God I have wonderful health insurance through the state of Mass. I wanted to work 2 more years as nurse, so I could pay my outstanding bills, but nobody wants to hire an older nurse with certain issues, namely my DDD, & prior complaints against my license. Eventually disability will be the route to go. I can not see risking my health for such a low paying job, when I can have twice the income with disability. June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 I hear ya, Suzie. I'm havin such a hard time lately just staying positive. I'm 34 and I try so hard to think that my accident could've been much worse and I'm lucky to be where I am. But when the pain just takes over and it's all I can think about and everything I do revolves around trying not to be in pain.... it's very depressing. I completely understand. I'm just trying my darndest to not fall into a deep depression and keep hoping with each new doctor that someone will make the pain better. I'm sorry you're going through this, Suzie. Sending happy healthy pain-free thoughts Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 I hear ya, Suzie. I'm havin such a hard time lately just staying positive. I'm 34 and I try so hard to think that my accident could've been much worse and I'm lucky to be where I am. But when the pain just takes over and it's all I can think about and everything I do revolves around trying not to be in pain.... it's very depressing. I completely understand. I'm just trying my darndest to not fall into a deep depression and keep hoping with each new doctor that someone will make the pain better. I'm sorry you're going through this, Suzie. Sending happy healthy pain-free thoughts Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 Amy, dont ever worry, you are not alone and we understand what you are going thru. I am only 42 and in the same boat, am sick of pain but think I'm finially excepting, although not a all happier that this is the way it is now and I'm having to change what I do and my outlook of life. Works most of the time but it still gets the better of me, pain all the time is no fun and saps all your energy. susan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 Amy, dont ever worry, you are not alone and we understand what you are going thru. I am only 42 and in the same boat, am sick of pain but think I'm finially excepting, although not a all happier that this is the way it is now and I'm having to change what I do and my outlook of life. Works most of the time but it still gets the better of me, pain all the time is no fun and saps all your energy. susan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 I had quite an eye opening experience recently that really convinced me that this knew existence is in fact my life now and forever. I have been in pain for years. It has gotten a lot worse over the last couple of years as the degeneration and accompanying problems have become more severe. I have muddled through, dealing with the pain and I knew I could not move some of my body as well as I once had. Social Security sent me to my orthopedists for a motion review and to fill out a group of forms with the results. My movement was measured in degrees with a special tool. He would have me move parts and then measured how far they moved. I had less than 50% in many and less than 10% in most. I gave it my all and pushed my joints further than they ever go these days. I felt like an old woman. I just turned 47 years old. I had gotten so used to this new life of mine I had forgotten how I used to be able to move and what is the norm for most people. I asked the doctor if there is any way to regain some of that movement? He said no, not without replacing joints, which is not an option for me. He said PT was an option but since I had relatively good muscle tone there wasn't much that it would do. I guess now is the time to give up the " one day " dreams and settle in to old age with as much dignity as possible. g Off the Rocking Chair, Jane H. From: <caesareacattery@...> Subject: Re: Feedback needed neck pain Date: Tuesday, November 3, 2009, 5:58 PM Amy, dont ever worry, you are not alone and we understand what you are going thru. I am only 42 and in the same boat, am sick of pain but think I'm finially excepting, although not a all happier that this is the way it is now and I'm having to change what I do and my outlook of life. Works most of the time but it still gets the better of me, pain all the time is no fun and saps all your energy. susan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 I had quite an eye opening experience recently that really convinced me that this knew existence is in fact my life now and forever. I have been in pain for years. It has gotten a lot worse over the last couple of years as the degeneration and accompanying problems have become more severe. I have muddled through, dealing with the pain and I knew I could not move some of my body as well as I once had. Social Security sent me to my orthopedists for a motion review and to fill out a group of forms with the results. My movement was measured in degrees with a special tool. He would have me move parts and then measured how far they moved. I had less than 50% in many and less than 10% in most. I gave it my all and pushed my joints further than they ever go these days. I felt like an old woman. I just turned 47 years old. I had gotten so used to this new life of mine I had forgotten how I used to be able to move and what is the norm for most people. I asked the doctor if there is any way to regain some of that movement? He said no, not without replacing joints, which is not an option for me. He said PT was an option but since I had relatively good muscle tone there wasn't much that it would do. I guess now is the time to give up the " one day " dreams and settle in to old age with as much dignity as possible. g Off the Rocking Chair, Jane H. From: <caesareacattery@...> Subject: Re: Feedback needed neck pain Date: Tuesday, November 3, 2009, 5:58 PM Amy, dont ever worry, you are not alone and we understand what you are going thru. I am only 42 and in the same boat, am sick of pain but think I'm finially excepting, although not a all happier that this is the way it is now and I'm having to change what I do and my outlook of life. Works most of the time but it still gets the better of me, pain all the time is no fun and saps all your energy. susan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 I agree with you. But I have seen what reality is... Last month 2 more people I worked with were let go from Discover Card. They both had cancer and were in remission. But both had a very high probability that eventually it would kill them... It certainly sounds like an obvious case of discrimination but the company went through an exhaustive learning program to learn how to bend the rule.. What does a person who is living close to the vest do against a company of lawyers ?? I have to say that I am glad that I no longer work in corporate america because it has become a terrible place.. : ( Tom In a message dated 11/3/2009 12:38:10 P.M. Mountain Standard Time, birdcrazy624@... writes: Tom, employers need to pay more attention to what back, or neck injuries can cost their company, especially if someone has pre existing issues like we do. I am a strong advocate of the American Disability Act. Employers need to allow restrictions, or modifications, in the work setting if the individual can perform their job satisfactorily, according to the job description with the modifications. Unfortunately some of us are self supporting, & can't even afford to be out of work without pay. I am not eligible for any benefits like disability insurance, sick time, or personal days until next May 2010, because I work part time Thank God I have wonderful health insurance through the state of Mass. I wanted to work 2 more years as nurse, so I could pay my outstanding bills, but nobody wants to hire an older nurse with certain issues, namely my DDD, & prior complaints against my license. Eventually disability will be the route to go. I can not see risking my health for such a low paying job, when I can have twice the income with disability. June [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 I agree with you. But I have seen what reality is... Last month 2 more people I worked with were let go from Discover Card. They both had cancer and were in remission. But both had a very high probability that eventually it would kill them... It certainly sounds like an obvious case of discrimination but the company went through an exhaustive learning program to learn how to bend the rule.. What does a person who is living close to the vest do against a company of lawyers ?? I have to say that I am glad that I no longer work in corporate america because it has become a terrible place.. : ( Tom In a message dated 11/3/2009 12:38:10 P.M. Mountain Standard Time, birdcrazy624@... writes: Tom, employers need to pay more attention to what back, or neck injuries can cost their company, especially if someone has pre existing issues like we do. I am a strong advocate of the American Disability Act. Employers need to allow restrictions, or modifications, in the work setting if the individual can perform their job satisfactorily, according to the job description with the modifications. Unfortunately some of us are self supporting, & can't even afford to be out of work without pay. I am not eligible for any benefits like disability insurance, sick time, or personal days until next May 2010, because I work part time Thank God I have wonderful health insurance through the state of Mass. I wanted to work 2 more years as nurse, so I could pay my outstanding bills, but nobody wants to hire an older nurse with certain issues, namely my DDD, & prior complaints against my license. Eventually disability will be the route to go. I can not see risking my health for such a low paying job, when I can have twice the income with disability. June [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 I live in Utah and we are not an " at will " state. I knew someone who was let go while on long term disability and he was successful getting a settlement.. What they do is they start with a not favorable review and within months you can be gone... They have done this to over 60 people in Information Technology.. They start by saying that they are " raising the bar " for performance. To show how bogus this is they did it to people who had the year before won awards for their performance.. They then ship the jobs to India.. Tom In a message dated 11/4/2009 7:16:31 A.M. Mountain Standard Time, rosedragon@... writes: Tom...what reason did they give for letting those people go? Is your state an " at will " work state? Mine is. They can let you go without even giving you a good reason. I had a stroke Nov 2008, was out on company temporary disability (getting $133 a week...$150 after taxes.. whoo hoo) was in physical therapy and was let go...they said my position was " eliminated " position was " elimina I called multiple lawyers and was told the same thing... in Michigan, an at will employer can just " let you go " whenever " just because " . I had no recourse. I know they let me go because they knew I had spinal issues and now with a stroke and being at high risk for more they considered me a medical liability. But try and prove it. ine .. Re: [Pai I agree with you. But I have seen what reality is... Last month 2 more people I worked with were let go from Discover Card. They both had cancer and were in remission. But both had a very high probability that eventually it would kill them... It certainly sounds like an obvious case of discrimination but the company went through an exhaustive learning program to learn how to bend the rule.. What does a person who is living close to the vest do against a company of lawyers ?? I have to say that I am glad that I no longer work in corporate america because it has become a terrible place.. : ( Tom In a message dated 11/3/2009 12:38:10 P.M. Mountain Standard Time, _birdcrazy624@birdcra_ (mailto:birdcrazy624@...) writes: Tom, employers need to pay more attention to what back, or neck injuries can cost their company, especially if someone has pre existing issues like we do. I am a strong advocate of the American Disability Act. Employers need to allow restrictions, or modifications, in the work setting if the individual can perform their job satisfactorily, according to the job description with the modifications. Unfortunately some of us are self supporting, & can't even afford to be out of work without pay. I am not eligible for any benefits like disability insurance, sick time, or personal days until next May 2010, because I work part time Thank God I have wonderful health insurance through the state of Mass. I wanted to work 2 more years as nurse, so I could pay my outstanding bills, but nobody wants to hire an older nurse with certain issues, namely my DDD, & prior complaints against my license. Eventually disability will be the route to go. I can not see risking my health for such a low paying job, when I can have twice the income with disability. June [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] ------------------------------------ Groups Links [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 I live in Utah and we are not an " at will " state. I knew someone who was let go while on long term disability and he was successful getting a settlement.. What they do is they start with a not favorable review and within months you can be gone... They have done this to over 60 people in Information Technology.. They start by saying that they are " raising the bar " for performance. To show how bogus this is they did it to people who had the year before won awards for their performance.. They then ship the jobs to India.. Tom In a message dated 11/4/2009 7:16:31 A.M. Mountain Standard Time, rosedragon@... writes: Tom...what reason did they give for letting those people go? Is your state an " at will " work state? Mine is. They can let you go without even giving you a good reason. I had a stroke Nov 2008, was out on company temporary disability (getting $133 a week...$150 after taxes.. whoo hoo) was in physical therapy and was let go...they said my position was " eliminated " position was " elimina I called multiple lawyers and was told the same thing... in Michigan, an at will employer can just " let you go " whenever " just because " . I had no recourse. I know they let me go because they knew I had spinal issues and now with a stroke and being at high risk for more they considered me a medical liability. But try and prove it. ine .. Re: [Pai I agree with you. But I have seen what reality is... Last month 2 more people I worked with were let go from Discover Card. They both had cancer and were in remission. But both had a very high probability that eventually it would kill them... It certainly sounds like an obvious case of discrimination but the company went through an exhaustive learning program to learn how to bend the rule.. What does a person who is living close to the vest do against a company of lawyers ?? I have to say that I am glad that I no longer work in corporate america because it has become a terrible place.. : ( Tom In a message dated 11/3/2009 12:38:10 P.M. Mountain Standard Time, _birdcrazy624@birdcra_ (mailto:birdcrazy624@...) writes: Tom, employers need to pay more attention to what back, or neck injuries can cost their company, especially if someone has pre existing issues like we do. I am a strong advocate of the American Disability Act. Employers need to allow restrictions, or modifications, in the work setting if the individual can perform their job satisfactorily, according to the job description with the modifications. Unfortunately some of us are self supporting, & can't even afford to be out of work without pay. I am not eligible for any benefits like disability insurance, sick time, or personal days until next May 2010, because I work part time Thank God I have wonderful health insurance through the state of Mass. I wanted to work 2 more years as nurse, so I could pay my outstanding bills, but nobody wants to hire an older nurse with certain issues, namely my DDD, & prior complaints against my license. Eventually disability will be the route to go. I can not see risking my health for such a low paying job, when I can have twice the income with disability. June [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] ------------------------------------ Groups Links [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
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