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Dear -

I have been diagnosed with flatback and also have knee problems. I

never connected the two (my knee problems seem insignificant compared to my

back pain, so I have never mentioned it to my doctors), but I have seen

several other posts here talking about knee problems. I believe the way in

which the rod/fusion affects our posture puts undue pressure on the knees.

mary b

leg problems

Hi All, though I have not been officially diagnosed, I am sure I have

flatback. (Harrington Rods, double curve) I have nerve damage due to

surgery. Had torn cartledge in my knee that had to be fixed a couple

of years ago. Lately, I have had some knee pain again, tingling down

the leg, but mostly fairly normal stuff. Today I fell twice going up

stairs because I don't think my leg moved as well as it used to.

Maybe I'm just clumsy. Anyway, It's always the same leg with the

problems. Anyone have similar issues?

Thanks - and God Bless -

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Hi ,

I too, have flatback (Harrington rods in 1966 at the age of 12) and

experience terrible problems with my legs and knees. While I have not seen

an ortho about this particular pain, I have talked to my Pain Mgmt. Dr. and

read extensively on this. One of the main reasons the knee problems are so

prevelent in flatback sufferers is we usually stand, walk, etc. with our

knees bent to help relieve the pain in our backs. Years of standing with our

knees bent will sooner or later take a toll on the knee joint. I also have a

lot of pain in my legs, ankles and hips. One thing I have found helps me

with my knee is to wear a brace (the sort that basketball and other sports

players wear) on my knee when I am walking or standing for any length of

time. My husband picked a couple up for me at the local sporting goods store

(I think they were only about $15-$20) I hope this has been of some help.

Be safe and God Bless,

Debbie

>From: " lhodges240 " <lhodges240@...>

>Reply-Scoliosis Treatment

>Scoliosis Treatment

>Subject: leg problems

>Date: Tue, 26 Aug 2003 02:33:41 -0000

>

>Hi All, though I have not been officially diagnosed, I am sure I have

>flatback. (Harrington Rods, double curve) I have nerve damage due to

>surgery. Had torn cartledge in my knee that had to be fixed a couple

>of years ago. Lately, I have had some knee pain again, tingling down

>the leg, but mostly fairly normal stuff. Today I fell twice going up

>stairs because I don't think my leg moved as well as it used to.

>Maybe I'm just clumsy. Anyway, It's always the same leg with the

>problems. Anyone have similar issues?

>Thanks - and God Bless -

>

>

_________________________________________________________________

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Dear , your symptoms are serious. See your GP asap.

Lana

lhodges240 wrote:

> Hi All, though I have not been officially diagnosed, I am sure I have

>

> flatback. (Harrington Rods, double curve) I have nerve damage due to

> surgery. Had torn cartledge in my knee that had to be fixed a couple

> of years ago. Lately, I have had some knee pain again, tingling down

> the leg, but mostly fairly normal stuff. Today I fell twice going up

> stairs because I don't think my leg moved as well as it used to.

> Maybe I'm just clumsy. Anyway, It's always the same leg with the

> problems. Anyone have similar issues?

> Thanks - and God Bless -

>

>

>

>

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  • 3 years later...

Hi Matt,

None of us can tell what is medically going on with your legs but having had

those symptoms myself, I can suggest things to check out with your doctor, or if

available, a doctor who has had multiple successful experiences treating people

with achondroplasia.

Two things that came to my mind when reading your e-mail are

1. that the cartilage in your knee may be wearing away which would cause

numbness in your knee and the areas above and below it, and

2. that your experiencing stenosis which is when the spinal column impinges on

the spinal cord.

Each of these have completely different treatments. I've had both problems and

I underwent leg straightening for item #1, and I underwent a laminectomy for

item #2.

My primary suggestion would be to first contact a doctor familiar with dwarfism.

If you e-mail the list with where you live, you might receive some names of

doctors that others have used.

I hope this helps. If you have any questions, please write again.

Hillary

Leg problems

>

>Hi,

>

> I was just wondering if there are any achon's who have had promblems

>with their legs going numb and if there is name for that condition?

>

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  • 2 years later...

>

> Bee or anyone else,

>

> I have been battling leg issues since I started the diet. At times they will

be heavy than they will be so tired and unsteady I think I'm going to tip over.

They will also ache, throb, and feel like they are vibrating. Sometimes I will

have all these symptoms in one day. The bottom of my feet will also feel so

swollen/sensitive they hurt to walk on. Is this simply die off toxins? Thank

you.

>

+++Hi Shaila. If you are a newcomer Welcome to our group!

Yes, those symptoms are caused by toxins, and this program is very effective for

helping your body detoxify, particularly because of the high " good " fats and

supplements that work with the fats, etc.

Please ensure you read two important articles so you understand candida, and

know what you need to do and why:

1) How to Successfully Overcome Candida

http://www.healingnaturallybybee.com/articles/intro2.php

2) Curing Candida, How to Get Started

http://www.healingnaturallybybee.com/articles/intro1.php

For encouragement and inspiration see these wonderful Success Stories by members

of this group: http://www.healingnaturallybybee.com/success/index.php

All the best, Bee

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  • 6 months later...
Guest guest

My son, , is in a brace and has been for a while now. He complains frequently about his legs, foot and the little spot right behind your ankle. I have never taken him to the doctor because it does usually go away. Most of the time it is during th night. He will wake up crying. I always felt it was growing pains. I usually give him Motrin.

Let me know what the doctor says. I am curious. TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, TexasSeries of 6 casts for 14 months followed by bracing since September 2007You can read 's story at.... http://www.infantilescoliosis.org/stories.html

From: laur92en <laur92en@...>infantile scoliosis treatment Sent: Tue, June 15, 2010 9:43:20 PMSubject: Leg Problems

My daughter has gone through 9 casts and last month the doctor decided to give her a summer break from her cast so she is currently in a brace. She wears the brace all day, except for baths. Recently she starting limping and complaining her foot hurts. She will be going to the doctor by the end of this week, but was wondering if anyone else has had any similar problems.Thanks

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Guest guest

Hello,

My son also had this issue. The ortho doc said it was just growing pains and not to worry. He did even limp for awhile and I was very concerned. The peditrican took x-rays, but didn't see anything. I had the ortho check the x-rays too and he wasn't concerned. My son has been an off-and-on toe-walker though so they thought perhaps he was just going through a phase with the limping as well. They had me give him Ibprophen and said to follow-up in a month if it didn't stop. Sure enough about a month later he was walking normal again. The pain complaints continued though off and on for quite awhile though (I can't remember how long, but I want to say the complaints lasted about a year.) He's 4 now and never complains anymore.

I think you're doing the right thing though by seeing the doc. Good luck and let us know what you find out.~Noah 4 1/2 years old9 months of casting in SLC; 2 1/2 years of bracing; Currently treatment-free at 8*And Mariella 16 months old - resolved Infantile Scoliosis

infantile scoliosis treatment From: ryanswalk@...Date: Wed, 16 Jun 2010 03:33:09 -0700Subject: Re: Leg Problems

My son, , is in a brace and has been for a while now. He complains frequently about his legs, foot and the little spot right behind your ankle. I have never taken him to the doctor because it does usually go away. Most of the time it is during th night. He will wake up crying. I always felt it was growing pains. I usually give him Motrin.

Let me know what the doctor says. I am curious. TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, TexasSeries of 6 casts for 14 months followed by bracing since September 2007You can read 's story at.... http://www.infantilescoliosis.org/stories.html

From: laur92en <laur92en >infantile scoliosis treatment Sent: Tue, June 15, 2010 9:43:20 PMSubject: Leg Problems

My daughter has gone through 9 casts and last month the doctor decided to give her a summer break from her cast so she is currently in a brace. She wears the brace all day, except for baths. Recently she starting limping and complaining her foot hurts. She will be going to the doctor by the end of this week, but was wondering if anyone else has had any similar problems.Thanks

The New Busy is not the old busy. Search, chat and e-mail from your inbox. Get started.

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Guest guest

Thanks for replying. My daughter was seen by her doctor yesterday and he

thought that the brace was too long and perhaps pinching a nerve. The brace was

shortened a bit and this morning she was still limping a bit. But by the

afternoon she seemed a whole lot better. The other good news is that the doctor

is going to keep her at least one more month in the brace since there were no

changes in the curve. She was really excited about that since she starts

swimming classes in a few weeks.

>

>

> Hello,

>

> My son also had this issue. The ortho doc said it was just growing pains and

not to worry. He did even limp for awhile and I was very concerned. The

peditrican took x-rays, but didn't see anything. I had the ortho check the

x-rays too and he wasn't concerned. My son has been an off-and-on toe-walker

though so they thought perhaps he was just going through a phase with the

limping as well. They had me give him Ibprophen and said to follow-up in a

month if it didn't stop. Sure enough about a month later he was walking normal

again. The pain complaints continued though off and on for quite awhile though

(I can't remember how long, but I want to say the complaints lasted about a

year.) He's 4 now and never complains anymore.

>

>

>

> I think you're doing the right thing though by seeing the doc. Good luck and

let us know what you find out.

>

> ~

> Noah 4 1/2 years old

> 9 months of casting in SLC; 2 1/2 years of bracing; Currently treatment-free

at 8*

> And Mariella 16 months old - resolved Infantile Scoliosis

>

>

>

>

>

>

>

> infantile scoliosis treatment

> From: ryanswalk@...

> Date: Wed, 16 Jun 2010 03:33:09 -0700

> Subject: Re: Leg Problems

>

>

>

>

>

>

>

>

> My son, , is in a brace and has been for a while now. He complains

frequently about his legs, foot and the little spot right behind your ankle. I

have never taken him to the doctor because it does usually go away. Most of the

time it is during th night. He will wake up crying. I always felt it was

growing pains. I usually give him Motrin.

> Let me know what the doctor says. I am curious.

> Tasha

> Mommy of 5 year old twin boys- and

> Fort Worth, Texas

> is treated at Texas ish Rite Hospital in Dallas, Texas

> Series of 6 casts for 14 months followed by bracing since September 2007

> You can read 's story at....

http://www.infantilescoliosis.org/stories.html

>

>

>

>

>

>

>

>

>

>

> From: laur92en <laur92en@...>

> infantile scoliosis treatment

> Sent: Tue, June 15, 2010 9:43:20 PM

> Subject: Leg Problems

>

>

>

> My daughter has gone through 9 casts and last month the doctor decided to give

her a summer break from her cast so she is currently in a brace. She wears the

brace all day, except for baths. Recently she starting limping and complaining

her foot hurts. She will be going to the doctor by the end of this week, but was

wondering if anyone else has had any similar problems.

>

> Thanks

>

>

>

>

>

>

>

>

> _________________________________________________________________

> The New Busy is not the old busy. Search, chat and e-mail from your inbox.

>

http://www.windowslive.com/campaign/thenewbusy?ocid=PID28326::T:WLMTAGL:ON:WL:en\

-US:WM_HMP:042010_3

>

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