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Does anyone else on this list have PCOS?

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Does anyone else on this list have PCOS?

MARKETPLACE

Going Green: Your resource for green living

Going Green: Your resource for green living

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I do. Have had it ever since I started having a period even at a perfect weight.

It does make losing weight a good bit more difficult, but I try to focus on my

body fat % instead of my actual weight which makes me feel a little better and

to see more progress. My body also has a bizarre stress response where I gain

around 10 lbs if I allow my stress to get too high within 2-3 days (no change in

food intake or exercise). That would be fine if it would come back down when my

stress goes back down, but instead I have to fight to lose each of those lbs. :P

I love 's podcasts as they do help me get through this as instead of

getting mad at my body I thank it for trying to protect me. One of these days my

body and I will work this out then the lbs will start coming off faster. :)

Jen

On Dec 29, 2009, at 11:46 AM, Joanne wrote:

>

> Does anyone else on this list have PCOS?

>

> MARKETPLACE

> Going Green: Your resource for green living

>

> Going Green: Your resource for green living

>

> Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use

> .

>

>

>

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Share on other sites

I do. Have had it ever since I started having a period even at a perfect weight.

It does make losing weight a good bit more difficult, but I try to focus on my

body fat % instead of my actual weight which makes me feel a little better and

to see more progress. My body also has a bizarre stress response where I gain

around 10 lbs if I allow my stress to get too high within 2-3 days (no change in

food intake or exercise). That would be fine if it would come back down when my

stress goes back down, but instead I have to fight to lose each of those lbs. :P

I love 's podcasts as they do help me get through this as instead of

getting mad at my body I thank it for trying to protect me. One of these days my

body and I will work this out then the lbs will start coming off faster. :)

Jen

On Dec 29, 2009, at 11:46 AM, Joanne wrote:

>

> Does anyone else on this list have PCOS?

>

> MARKETPLACE

> Going Green: Your resource for green living

>

> Going Green: Your resource for green living

>

> Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use

> .

>

>

>

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Hi Jen,

Yes, It is hard to shift this weight and with all the other " symptoms " that run

along with it. I find that if I focus on my exercise and really use that as my

stress reliever everything else falls into place. However, there was always a

missing link for me. Something that I couldn't quite identify.

I kept trying the same thing over and over and it wasn't until today that I got

it. I was listening to talking about doing the same thing even though you

knew it had " failed " before and it suddenly clicked. I haven't had this kind of

spiritual support before. It was one of those lightbulb moments.

Anyway, I feel as though this is such a positive step for me. I hear 's

words in my head and the support of all you other fellow IOWL folks on here and

I know I am not on my own.

I am also approaching this differently too. I am making this FUN. I am not

looking at this as something I have to SUFFER through. Quite a novel concept

uh?

I wish you light, love and happiness in this coming year.

Joanne

>

> I do. Have had it ever since I started having a period even at a perfect

weight. It does make losing weight a good bit more difficult, but I try to focus

on my body fat % instead of my actual weight which makes me feel a little better

and to see more progress. My body also has a bizarre stress response where I

gain around 10 lbs if I allow my stress to get too high within 2-3 days (no

change in food intake or exercise). That would be fine if it would come back

down when my stress goes back down, but instead I have to fight to lose each of

those lbs. :P I love 's podcasts as they do help me get through this as

instead of getting mad at my body I thank it for trying to protect me. One of

these days my body and I will work this out then the lbs will start coming off

faster. :)

>

> Jen

>

>

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  • 2 years later...
Guest guest

Interesting, I was also " diagnosed " (in my case, misdiagnosed) with

PCOS/metabolic syndrome and prescribed Met by an endo, even though unlike most

PCOS cases, I had polymenorrhea rather than amenorrhea. I stopped taking the Met

after a year or so because it didn't seem to have any impact other than to make

me nauseated.

My labs for the metabolic issues were always borderline high. Since the

adrenalectomy, they are now midrange normal.

>

> Brief History -

>

> Age 49 - I have been having symptoms for at least 15 years. Began with sudden

on-set hypertension. 1st internist refused to test for PA when I requested

because " we don't need to chase zebras " . Hypertension would alternate between

states of control and episodes of instability. 2 cm Adrenal adenoma discovered

in 2006. Sent to first endo tested for Cushings results inconclusive - treated

with metformin for PCOS despite lack of results to indicate same (I now know).

Blood pressure continued with periods of instability. Developed periods of

extreme fatigue and muscle pain and weakness along with tachycardia. 2010 heart

attack and flash pulmonary edema during heart cath followed by emergency CABG.

Good recovery for 2 months. Sudden collapse during cardiac rehab and began

episodes of unstable blood pressure, tachycardia, fatigue and muscle weakness.

Since 2010 I have been on at least 10 different BP meds - testing during these

periods has revealed nothing conclusive. As these periods resolved I would

reach a state of over medication. 2nd Endo seen in 2010 screened for PA with

inconclusive results.

> January 2011 I was referred to nephrologist during my second bout with Kidney

stones. Revealed a state of acidosis. 6 month follow-up normal aldosterone

levels. 1 year follow-up very high plasma level of aldosterone. AVS revealed

extremely high levels of Aldosterone but did not have good results on one

adrenal. 2nd AVS - successful on both adrenals- shows functioning adenoma.

Will have left adrenalectomy March 23rd.

>

> Have been in a period of unstable blood pressure, tachycardia, extreme

fatigue, weakness since December 2011 - This has been an episodic debilitating

problem that I feel was finally caught by chance.

> Current BP meds - Bystolic 10 mg, Digoxin .25 mg, Spironilactone 100 mg

> other meds - Byetta 10 mg x2, Cymbalta 120 mg, deplin 7.5 mg

>

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Guest guest

Hey! What is an Endocrinologist to do in a woman with HTN, increased BMI, or waist circumference or increased glucose and a good drug salesman calling on them to teach them about metabolic syndrome. Esp if they have never seen a case of PA or skipped school on PA day."Give a carpenter a hammer etc"CE Grim MDOn Mar 14, 2012, at 10:26 AM, msmith_1928 wrote: Interesting, I was also "diagnosed" (in my case, misdiagnosed) with PCOS/metabolic syndrome and prescribed Met by an endo, even though unlike most PCOS cases, I had polymenorrhea rather than amenorrhea. I stopped taking the Met after a year or so because it didn't seem to have any impact other than to make me nauseated. My labs for the metabolic issues were always borderline high. Since the adrenalectomy, they are now midrange normal. > > Brief History - > > Age 49 - I have been having symptoms for at least 15 years. Began with sudden on-set hypertension. 1st internist refused to test for PA when I requested because "we don't need to chase zebras". Hypertension would alternate between states of control and episodes of instability. 2 cm Adrenal adenoma discovered in 2006. Sent to first endo tested for Cushings results inconclusive - treated with metformin for PCOS despite lack of results to indicate same (I now know). Blood pressure continued with periods of instability. Developed periods of extreme fatigue and muscle pain and weakness along with tachycardia. 2010 heart attack and flash pulmonary edema during heart cath followed by emergency CABG. Good recovery for 2 months. Sudden collapse during cardiac rehab and began episodes of unstable blood pressure, tachycardia, fatigue and muscle weakness. Since 2010 I have been on at least 10 different BP meds - testing during these periods has revealed nothing conclusive. As these periods resolved I would reach a state of over medication. 2nd Endo seen in 2010 screened for PA with inconclusive results. > January 2011 I was referred to nephrologist during my second bout with Kidney stones. Revealed a state of acidosis. 6 month follow-up normal aldosterone levels. 1 year follow-up very high plasma level of aldosterone. AVS revealed extremely high levels of Aldosterone but did not have good results on one adrenal. 2nd AVS - successful on both adrenals- shows functioning adenoma. Will have left adrenalectomy March 23rd. > > Have been in a period of unstable blood pressure, tachycardia, extreme fatigue, weakness since December 2011 - This has been an episodic debilitating problem that I feel was finally caught by chance. > Current BP meds - Bystolic 10 mg, Digoxin .25 mg, Spironilactone 100 mg > other meds - Byetta 10 mg x2, Cymbalta 120 mg, deplin 7.5 mg >

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Guest guest

Hey! What is an Endocrinologist to do in a woman with HTN, increased BMI, or waist circumference or increased glucose and a good drug salesman calling on them to teach them about metabolic syndrome. Esp if they have never seen a case of PA or skipped school on PA day."Give a carpenter a hammer etc"CE Grim MDOn Mar 14, 2012, at 10:26 AM, msmith_1928 wrote: Interesting, I was also "diagnosed" (in my case, misdiagnosed) with PCOS/metabolic syndrome and prescribed Met by an endo, even though unlike most PCOS cases, I had polymenorrhea rather than amenorrhea. I stopped taking the Met after a year or so because it didn't seem to have any impact other than to make me nauseated. My labs for the metabolic issues were always borderline high. Since the adrenalectomy, they are now midrange normal. > > Brief History - > > Age 49 - I have been having symptoms for at least 15 years. Began with sudden on-set hypertension. 1st internist refused to test for PA when I requested because "we don't need to chase zebras". Hypertension would alternate between states of control and episodes of instability. 2 cm Adrenal adenoma discovered in 2006. Sent to first endo tested for Cushings results inconclusive - treated with metformin for PCOS despite lack of results to indicate same (I now know). Blood pressure continued with periods of instability. Developed periods of extreme fatigue and muscle pain and weakness along with tachycardia. 2010 heart attack and flash pulmonary edema during heart cath followed by emergency CABG. Good recovery for 2 months. Sudden collapse during cardiac rehab and began episodes of unstable blood pressure, tachycardia, fatigue and muscle weakness. Since 2010 I have been on at least 10 different BP meds - testing during these periods has revealed nothing conclusive. As these periods resolved I would reach a state of over medication. 2nd Endo seen in 2010 screened for PA with inconclusive results. > January 2011 I was referred to nephrologist during my second bout with Kidney stones. Revealed a state of acidosis. 6 month follow-up normal aldosterone levels. 1 year follow-up very high plasma level of aldosterone. AVS revealed extremely high levels of Aldosterone but did not have good results on one adrenal. 2nd AVS - successful on both adrenals- shows functioning adenoma. Will have left adrenalectomy March 23rd. > > Have been in a period of unstable blood pressure, tachycardia, extreme fatigue, weakness since December 2011 - This has been an episodic debilitating problem that I feel was finally caught by chance. > Current BP meds - Bystolic 10 mg, Digoxin .25 mg, Spironilactone 100 mg > other meds - Byetta 10 mg x2, Cymbalta 120 mg, deplin 7.5 mg >

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