Guest guest Posted July 8, 2006 Report Share Posted July 8, 2006 " Doyon " wrote: > > Sara, I have a very strong suspician that the Insurance Companies had there hand in creating the criteria for the diagnosis used for CFS in the USA - since they realize that this epidemic could in fact bankrupt their companies. Dr. Gerald Goldberg is predicting that within the next 5-6 years the health-care systems of most industrialied countries will collapse. I have a feeling that he is right. > paul As someone who was standing there when " CFS " was created, I can tell you that the insurance companies had no hand in it, although they recognized it and starting writing disclaimers right away. It was pretty unfair that a doctor could tell you that " CFS doesn't exist " and yet you couldn't use that argument to get an insurance company from cancelling your coverage for being diagnosed with CFS: " How can I be disqualified for having CFS if CFS doesn't even exist? " This whole " CFS " thing has gone a long way from when it was about twenty of us in Incline, hasn't it? Who'd a thunk it? - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2006 Report Share Posted July 8, 2006 " Doyon " wrote: > > Sara, I have a very strong suspician that the Insurance Companies had there hand in creating the criteria for the diagnosis used for CFS in the USA - since they realize that this epidemic could in fact bankrupt their companies. Dr. Gerald Goldberg is predicting that within the next 5-6 years the health-care systems of most industrialied countries will collapse. I have a feeling that he is right. > paul As someone who was standing there when " CFS " was created, I can tell you that the insurance companies had no hand in it, although they recognized it and starting writing disclaimers right away. It was pretty unfair that a doctor could tell you that " CFS doesn't exist " and yet you couldn't use that argument to get an insurance company from cancelling your coverage for being diagnosed with CFS: " How can I be disqualified for having CFS if CFS doesn't even exist? " This whole " CFS " thing has gone a long way from when it was about twenty of us in Incline, hasn't it? Who'd a thunk it? - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2006 Report Share Posted July 8, 2006 It's a fact however that CFS existed long before Incline Village, with outbreaks in the 1930's in the UK, and the one in Punta Gorda (sp) Florida in 1956-57... Some suggest it goes back hundreds of years, but of course there is little to document those cases... > > > > Sara, I have a very strong suspician that the Insurance Companies > had there hand in creating the criteria for the diagnosis used for > CFS in the USA - since they realize that this epidemic could in fact > bankrupt their companies. Dr. Gerald Goldberg is predicting that > within the next 5-6 years the health-care systems of most > industrialied countries will collapse. I have a feeling that he is > right. > > paul > > > As someone who was standing there when " CFS " was created, I can > tell you that the insurance companies had no hand in it, although > they recognized it and starting writing disclaimers right away. > It was pretty unfair that a doctor could tell you that " CFS doesn't > exist " and yet you couldn't use that argument to get an insurance > company from cancelling your coverage for being diagnosed with > CFS: " How can I be disqualified for having CFS if CFS doesn't even > exist? " > > This whole " CFS " thing has gone a long way from when it was about > twenty of us in Incline, hasn't it? > Who'd a thunk it? > - > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2006 Report Share Posted July 8, 2006 Wow, this is the first time I have heard this about the EMF-caused 'flu' that triggered CFS. I was definitely part of this cohort group, as I got this exact flu in November of 1996, which started my CFS onset. I believe it was a bug as well as the EMF, somehow they formed a binary type of situation. Maybe what we are discovering on this EMF thread is that microwave EMF can be a trigger for chronic CFS. Probably everything else we know about CFS is still true, we still have glutathione depletion and mercury poisoning bad mold genes, hypercoag defects, etc. And for some people they may not get CFS until something like EMF plus some bug push them over the edge. I don't really care whether we ever untangle this mess, only whether we can find out how to get well. And if that includes chelating mercury, then great. If it includes building glutathione, killing lyme, avoiding mold and EMF, then that is great too. If it includes genetic profiling for methylation and treating weak areas, that is fine. Whatever it takes. All of this info is important I think, this is not a contest. --Kurt Re: EMF > How close to a cell tower would one have to be? I lived in a small town and > don't recall any towers anywhere around in the mid 90s. a, that's a difficult question to answer since I believe different people to different levels of microwave radiaiton. I saw an experiment here in Japan where I doctor used a Foma cell phone (by DoCoMo) and held it up and walked toward a woman who had her eyes closed. As he got closer the women sensed something and fell backwards. Women, generally, seem to be more sensitive to the microwave radiation than men. (This might also explain why more women get CFS than men.) Also, different towers emit different amounts of radiation. Japan uses short-range, American uses mid-range, and Europe uses long-range antennas. Naturally, Europe's antennas are stronger since they have to emit further. In 1996, cell phones towers were put up about every 10 square miles across the majority of the USA - which would place that in the mid 90s. Please read the following, EMF Killing Fields, by Arthur Firstenburg: http://www.mindfull <http://www.mindfully.org/Technology/2004/Electromagnetic-Fields-EMF1jun 04.htm> y.org/Technology/2004/Electromagnetic-Fields-EMF1jun04.htm _ " But in July 1996, to my dismay, I learned that an innovation was coming to my city, which threatened to make it impossible to avoid exposure any more. At that time, cell phones were still a luxury item that only worked in some locations. People were not accustomed to staying connected whenever they left their home, and even at home most still had a cord, not an antenna, attached to their telephone. Most were not accustomed to holding devices that emit microwave radiation next to their brain. In 1996, the telecommunications industry began a marketing campaign designed to change all that. For Christmas that year, all over the country, digital cell phones were going to be on a lot of shopping lists. And to make them more practical, tens of thousands of antennae were going to be erected on towers, buildings, church steeples and lampposts all over the country before Christmas, and hundreds of thousands more during the next few years._ " " _.....on November 14 1996, Omnipoint, New York City's first digital cellular provider, did open for business, broadcasting from thousands of antennae newly erected on the rooftops of apartment buildings. According to the health authorities, an early flu hit New York City - but not Boston, and not Philadelphia - on about 15 November. The flu was severe and ran a prolonged course, often dragging on for months instead of the usual two weeks. At Christmas time, the Cellular Phone Task Force placed a small classified ad in a free weekly newspaper. It read: 'If you have been ill since 11/15/96 with any of the following: eye pain, insomnia, dry lips, swollen throat, pressure or pain in the chest, headaches, dizziness, nausea, shakiness, other aches and pains, or flu that won't go away, you may be a victim of a new microwave system blanketing the city. We need to hear from you.' And we did hear from them. Hundreds called, men, women, whites, blacks, Asians, Latinos, doctors, lawyers, teachers, stockbrokers, airline stewards, computer operators. Most had woken up suddenly in mid-November, thinking they were having a stroke or a heart attack or a nervous breakdown, and were relieved to know they were not alone and not crazy. Later, I analysed weekly mortality statistics, which the Centres for Disease Control publish for122 US cities. Each of dozens of cities recorded a 10-25 per cent increase in mortality, lasting two to three months, beginning on the day in 1996 or 1997 on which that city's first digital cell phone network began commercial service...._ " " _...I learned that in February 1996, Congress had passed a law prohibiting local governments from denying permits for cell phone antennae because of environmental concerns - so long as they comply with Federal Communications Commission (FCC) rules. I also learned that the FCC had just issued regulations setting public exposure limits for microwave radiation at levels at least ten thousand times higher than levels which, according to the Environmental Protection Agency, were causing reports of illness from all over the world. Levels that are at least ten thousand times higher than the levels that had forced me to leave behind my home, my family, and my friends, and to run for my life, never to be able to return home again....._ " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2006 Report Share Posted July 8, 2006 a, You may have had radar and/or microwave exposures then from other sources as well, it was not just cell phones. Radar exposure was significant in the 60s. I grew up on military bases in the 60s and probably had plenty of that exposure, along with all types of toxins, and military kids do have higher illness rates. The military and large communications carriers also started placing large microwave transmission/repeater systems up in the early 80s. In fact a major system was installed around Tahoe/Incline also in the early 80s. And people in the exposure line were not informed of that fact. You could be rural and be in a direct exposure line, impossible to say unless you had inside information. Also, even ordinary household currents can be a factor for some people, so you had that exposure all along. And as the EMF studies show, there are individual and probably genetic factors in EMF susceptibility. So if you are susceptible, you may have been reacting to this for decades, which might have lowered resistance to the other triggers. But this is not universal, EMF probably is a subset situation with CFS, like most of the other significant co-factors we are finding. One way to tell is to get out of EMF exposure and see how you feel after a few days/weeks. --Kurt Re: EMF Kurt, Here are more likely triggers following the exposure to borrelia in 1972. Further tick bites. Mycoplasma infection with walking pneumonia. Airplane trip to Europe Working in a mold contaminated building How close to a cell tower would one have to be? I lived in a small town and don't recall any towers anywhere around in the mid 90s. a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2006 Report Share Posted July 8, 2006 " kdrbrill " wrote: > > It's a fact however that CFS existed long before Incline Village, with outbreaks in the 1930's in the UK, and the one in Punta Gorda (sp) Florida in 1956-57... > > Some suggest it goes back hundreds of years, but of course there is little to document those cases... > There were certainly many illnesses in the past that people suspect were probably CFS, but they went under various names which run the gamut from " Soldiers Heart " to " Akureyri disease " to " Infectious Venulitis " to " Neurasthenia " - and a few hundred more. There was no " CFS " until the Holmes study 1988 when the syndrome parameters were collated into an medical entity and given that term. All the people who say " CFS existed before... " heard about CFS after that time, and reached the conclusion that whatever they called their illness is the same thing that Dr Cheney and Dr were describing. If you trace the history of CFS, you'll find that the syndrome collation and creation goes back to a very specific event and certain individuals who put it together. " CFS " was not originally created as a " catchall " that the CDC just vaguely sat down one day and decided to apply to anyone who complains of being persistently tired. That came later. Don't forget, everyone in Incline also " had CFS " before CFS was created: " Truckee Crud " " Tahoe Mystery Disease " " Incline Village Disease " " Yuppie Flu " " CEBV " - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2006 Report Share Posted July 8, 2006 Anyone else out there with onset in 1996? paul > > Wow, this is the first time I have heard this about the EMF-caused 'flu' > that triggered CFS. I was definitely part of this cohort group, as I > got this exact flu in November of 1996, which started my CFS onset. I > believe it was a bug as well as the EMF, somehow they formed a binary > type of situation. > > Maybe what we are discovering on this EMF thread is that microwave EMF > can be a trigger for chronic CFS. Probably everything else we know > about CFS is still true, we still have glutathione depletion and mercury > poisoning bad mold genes, hypercoag defects, etc. And for some people > they may not get CFS until something like EMF plus some bug push them > over the edge. > > I don't really care whether we ever untangle this mess, only whether we > can find out how to get well. And if that includes chelating mercury, > then great. If it includes building glutathione, killing lyme, avoiding > mold and EMF, then that is great too. If it includes genetic profiling > for methylation and treating weak areas, that is fine. Whatever it > takes. All of this info is important I think, this is not a contest. > > --Kurt > > > > Re: EMF > > > > How close to a cell tower would one have to be? I lived in a small > town and > > don't recall any towers anywhere around in the mid 90s. > > a, that's a difficult question to answer since I believe different > people to different > levels of microwave radiaiton. I saw an experiment here in Japan where I > doctor used a > Foma cell phone (by DoCoMo) and held it up and walked toward a woman who > had her > eyes closed. As he got closer the women sensed something and fell > backwards. Women, > generally, seem to be more sensitive to the microwave radiation than > men. (This might > also explain why more women get CFS than men.) > > Also, different towers emit different amounts of radiation. Japan uses > short-range, > American uses mid-range, and Europe uses long-range antennas. Naturally, > Europe's > antennas are stronger since they have to emit further. > > In 1996, cell phones towers were put up about every 10 square miles > across the majority > of the USA - which would place that in the mid 90s. > > Please read the following, EMF Killing Fields, by Arthur Firstenburg: > > http://www.mindfull > <http://www.mindfully.org/Technology/2004/Electromagnetic-Fields- EMF1jun > 04.htm> y.org/Technology/2004/Electromagnetic-Fields-EMF1jun04.htm > > _ " But in July 1996, to my dismay, I learned that an innovation was > coming to my city, > which threatened to make it impossible to avoid exposure any more. > > At that time, cell phones were still a luxury item that only worked in > some locations. > People were not accustomed to staying connected whenever they left their > home, and even > at home most still had a cord, not an antenna, attached to their > telephone. Most were not > accustomed to holding devices that emit microwave radiation next to > their brain. In 1996, > the telecommunications industry began a marketing campaign designed to > change all that. > For Christmas that year, all over the country, digital cell phones were > going to be on a lot > of shopping lists. And to make them more practical, tens of thousands of > antennae were > going to be erected on towers, buildings, church steeples and lampposts > all over the > country before Christmas, and hundreds of thousands more during the next > few years._ " > > " _.....on November 14 1996, Omnipoint, New York City's first digital > cellular provider, did > open for business, broadcasting from thousands of antennae newly erected > on the > rooftops of apartment buildings. According to the health authorities, an > early flu hit New > York City - but not Boston, and not Philadelphia - on about 15 November. > The flu was > severe and ran a prolonged course, often dragging on for months instead > of the usual two > weeks. > > At Christmas time, the Cellular Phone Task Force placed a small > classified ad in a free > weekly newspaper. It read: 'If you have been ill since 11/15/96 with any > of the following: > eye pain, insomnia, dry lips, swollen throat, pressure or pain in the > chest, headaches, > dizziness, nausea, shakiness, other aches and pains, or flu that won't > go away, you may be > a victim of a new microwave system blanketing the city. We need to hear > from you.' And > we did hear from them. Hundreds called, men, women, whites, blacks, > Asians, Latinos, > doctors, lawyers, teachers, stockbrokers, airline stewards, computer > operators. Most had > woken up suddenly in mid-November, thinking they were having a stroke or > a heart attack > or a nervous breakdown, and were relieved to know they were not alone > and not crazy. > > Later, I analysed weekly mortality statistics, which the Centres for > Disease Control publish > for122 US cities. Each of dozens of cities recorded a 10-25 per cent > increase in mortality, > lasting two to three months, beginning on the day in 1996 or 1997 on > which that city's > first digital cell phone network began commercial service...._ " > > " _...I learned that in February 1996, Congress had passed a law > prohibiting local > governments from denying permits for cell phone antennae because of > environmental > concerns - so long as they comply with Federal Communications Commission > (FCC) rules. > I also learned that the FCC had just issued regulations setting public > exposure limits for > microwave radiation at levels at least ten thousand times higher than > levels which, > according to the Environmental Protection Agency, were causing reports > of illness from all > over the world. Levels that are at least ten thousand times higher than > the levels that had > forced me to leave behind my home, my family, and my friends, and to run > for my life, > never to be able to return home again....._ " > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2006 Report Share Posted July 8, 2006 Kurt, Wow! There's the " possible " key for the Incline outbreak. Can you tell us more about this microwave transmission/repeater system set up around Tahoe/Incline? It's seems like an important piece of the puzzle. It seems like the military is always up to some kind of evil. : ( paul > > a, > > The military and large > communications carriers also started placing large microwave > transmission/repeater systems up in the early 80s. In fact a major > system was installed around Tahoe/Incline also in the early 80s. And > people in the exposure line were not informed of that fact. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2006 Report Share Posted July 8, 2006 >> Wow! There's the " possible " key for the Incline outbreak. Can you tell us more about this microwave transmission/repeater system set up around Tahoe/Incline? It's seems like an important piece of the puzzle. It seems like the military is always up to some kind of evil. : I don't know if this is a key for Incline, but did read this awhile back. There was apparently some local discussion about the new towers going up at the time and some people thought there was a connection. Don't know if I can find the website again where this was discussed, it was awhile ago. --Kurt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2006 Report Share Posted July 9, 2006 >>>>One way to tell is to get out of EMF exposure and see how you feel after > a few days/weeks.<<<< Being around more or less exposure has a striking effect on me in a very short time...minutes, now. And every hour, it becomes even clearer. Total absence gets trickier as the atmosphere is being permeated, and some equipment themselves emit waves even when turned off. But the degree does make a difference. As far as " electro-smog " , in general...electricity, for instance...one way to tell it's impact is how your system feels in a total blackout...power failure. (You could do it yourself, of course). Psychologically, I hate these. But the peace/calm in every cell in my body is stunning. Others know the Science and mechanics far better than me, but I think there's alot more running through or attracting to electrical wiring these days. Plus the way things are wired has a big impact on the body too. Even furnishings, such as metal bedsprings make a difference. I wish I understood it all better, plus had the resources {and discipline} to fully transform my environment accordingly. This has become significant for me, in the way that chemicals and mold are for alot of us, and all are becoming greater issue for me. I think these are greater issues for entire Planet and Human Race, even when effects are not known, evident, or extreme. Because cells and organs are being damaged, even in a stealth way, then causing suceptibility to further ill health. Because all of the above are accumulating, the accumulated load issue matters, and the synergy among them. Effects and degree differs based on genetics, and other general health conditions. Then we have pathogens, which have been around since the beginning of time. But even here, environmental changes alone are greatly altering their presence and evolution. Another fascinating area to study. The destruction of the Rain Forest has had an effect on release of " new " pathogens, As, I'm sure is true with altering of Nature/Ecological system all around us. I think this might include the tick/Lyme issue. So, the severe messing with Nature, plus proliferation of man-made materials and gadgets is IMO compromising everyone's health dramatically. These are causal for some of us, and further complicating the rest. Then, of course, there is the experimentation and weaponizing issue which is vastly more extensive than we can even imagine. The results exposing us in *documented* and undocumented accidents {and some would say other exposure on purpose.} Once you start looking, there are reams and reams of data for all of the above. Again, personal choice, abilites, tolerance, priorities. Learning about harming elements, and praticing avoidance, and riddance, as much as we are willing and able is the best. Meanwhile, in reality, pristine, bad-pathogen free surroundings are diminishing. SOOOOOO, I like the work being done on genetics and healing/altering/strengthening the " terrain " of the body. Many promising areas, from the most simplistic to the very complex. Transforming the inner environment to better handle the outer . Other than that, healing the Psyche, Heart and Soul to handle the wild ride. Katrina > In , " Kurt R. " <kurt@...> wrote: > > a, > > You may have had radar and/or microwave exposures then from other > sources as well, it was not just cell phones. Radar exposure was > significant in the 60s. I grew up on military bases in the 60s and > probably had plenty of that exposure, along with all types of toxins, > and military kids do have higher illness rates. The military and large > communications carriers also started placing large microwave > transmission/repeater systems up in the early 80s. In fact a major > system was installed around Tahoe/Incline also in the early 80s. And > people in the exposure line were not informed of that fact. You could > be rural and be in a direct exposure line, impossible to say unless you > had inside information. > > Also, even ordinary household currents can be a factor for some people, > so you had that exposure all along. And as the EMF studies show, there > are individual and probably genetic factors in EMF susceptibility. So > if you are susceptible, you may have been reacting to this for decades, > which might have lowered resistance to the other triggers. But this is > not universal, EMF probably is a subset situation with CFS, like most of > the other significant co-factors we are finding. > > One way to tell is to get out of EMF exposure and see how you feel after > a few days/weeks. > > --Kurt > > Re: EMF > > Kurt, > > Here are more likely triggers following the exposure to borrelia in > 1972. > > Further tick bites. > > Mycoplasma infection with walking pneumonia. > > Airplane trip to Europe > > Working in a mold contaminated building > > How close to a cell tower would one have to be? I lived in a small town > and > don't recall any towers anywhere around in the mid 90s. > > a > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2006 Report Share Posted July 9, 2006 Katrina, One other factor to consider is that power plants run current through the GROUND, and not only through wires. In other words, while they push one charge out the 'hot' wire, then pull the opposite back through BOTH the return wire and the actual ground, meaning the soil around the power plant. I read once that some power plants pull more return current back from the ground than from their return wires. So during a blackout you also lose the current running through the ground. One reason given for this is the amount of current leakage from underground wiring, now very popular. The list of stupid practices and outright deceptions related to our health is very, very long, and I suspect growing longer each day. --Kurt Re: EMF >>>>One way to tell is to get out of EMF exposure and see how you feel after > a few days/weeks.<<<< Being around more or less exposure has a striking effect on me in a very short time...minutes, now. And every hour, it becomes even clearer. Total absence gets trickier as the atmosphere is being permeated, and some equipment themselves emit waves even when turned off. But the degree does make a difference. As far as " electro-smog " , in general...electricity, for instance...one way to tell it's impact is how your system feels in a total blackout...power failure. (You could do it yourself, of course). Psychologically, I hate these. But the peace/calm in every cell in my body is stunning. Others know the Science and mechanics far better than me, but I think there's alot more running through or attracting to electrical wiring these days. Plus the way things are wired has a big impact on the body too. Even furnishings, such as metal bedsprings make a difference. I wish I understood it all better, plus had the resources {and discipline} to fully transform my environment accordingly. This has become significant for me, in the way that chemicals and mold are for alot of us, and all are becoming greater issue for me. I think these are greater issues for entire Planet and Human Race, even when effects are not known, evident, or extreme. Because cells and organs are being damaged, even in a stealth way, then causing suceptibility to further ill health. Because all of the above are accumulating, the accumulated load issue matters, and the synergy among them. Effects and degree differs based on genetics, and other general health conditions. Then we have pathogens, which have been around since the beginning of time. But even here, environmental changes alone are greatly altering their presence and evolution. Another fascinating area to study. The destruction of the Rain Forest has had an effect on release of " new " pathogens, As, I'm sure is true with altering of Nature/Ecological system all around us. I think this might include the tick/Lyme issue. So, the severe messing with Nature, plus proliferation of man-made materials and gadgets is IMO compromising everyone's health dramatically. These are causal for some of us, and further complicating the rest. Then, of course, there is the experimentation and weaponizing issue which is vastly more extensive than we can even imagine. The results exposing us in *documented* and undocumented accidents {and some would say other exposure on purpose.} Once you start looking, there are reams and reams of data for all of the above. Again, personal choice, abilites, tolerance, priorities. Learning about harming elements, and praticing avoidance, and riddance, as much as we are willing and able is the best. Meanwhile, in reality, pristine, bad-pathogen free surroundings are diminishing. SOOOOOO, I like the work being done on genetics and healing/altering/strengthening the " terrain " of the body. Many promising areas, from the most simplistic to the very complex. Transforming the inner environment to better handle the outer . Other than that, healing the Psyche, Heart and Soul to handle the wild ride. Katrina > In @ <mailto:%40> , " Kurt R. " <kurt@...> wrote: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2006 Report Share Posted July 24, 2006 VERY WELL STATED..and I hope, in the future, that Psychologists and other " shrinks " can distinquish THIS DD from Clinical Depression, Somatization Disorder, Hypochondriasis, etc., when properly educated by Dr. Cheney, who we all owe a great debt to, for having recognized and addressed this disease over the years. Amelia A former Psychologist, MS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 Ken, Interesting and I'm sure it helps a lot with the AL vapor barrier, but you aren't really in a Faraday cage if you have windows. The easy way to test is to see if you get cell phone reception indoors. Once the EMF gets in through the windows it reflects around inside quite a bit. You can check the signal strength indicator on most cell phones to estimate the shielding relative to outdoors. I'd be interested in your results since they built a new cell tower 1000 feet from my house. I'm currently wearing shielding long johns from LessEMF.com and sleep and sit with AL foil between me and the tower but unsure if that affects my symptoms or not. Best, Edgar On Nov 4, 2007, at 1:04 PM, Ken wrote: > Good points, > My model has hypercoagulation being a significant factor and thus > part of recovery is removing coagulation triggers. > EMF is documented on PUBMED as being a coagulation trigger. > Usually at a non-issue level, but if you are just below a threshold > then if may be just enough to push it over. > (Mercury -- amalgams, is another known trigger) > > Yes, in our new house ( < 900 sq ft, major downsizing) the entire > house has aluminum vapor barrier (so we are in a faraday cage) and has > wired internet drops in each room. The house was also built without a > single piece of HDF or MDF or fibre board or any formaldehyde > products. No carpets: just tile or solid wood floors. Hospital grade > air filters, The house was designed to be the safest for CFIDS that we > could design and our builder have been fantastic. The cost is high for > these protections, we are moving from a urban large house to a rural > small house and hoping to break even. The resell value of this house > is well below it's cost. > > The reality is that we are talking remission --- and remission means > working at preventing triggering events on a life-long basis. Think of > it as diabetes that can be controlled by diet alone. > > It's a matter of facing some tough choices and then making the right > choices. > > > > > I understand that Ken was working in a very high EMR environment and > I am > > guessing that he probably most likely also had a WiFi system in his > house > > when he became sick. I also understand from a previous post that > he was > > looking at shielding materials for his home. > > > > Peace > > > > paul > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 Will do, the purpose is to reduce (not eliminate). We picked the lot AFTER checking the location of all radio masts in the area. I believe we were 2 miles from the closest site. If you are in the UK http://www.sitefinder.ofcom.org.uk/ There was one (can't find it at the moment) for US towers. If you plan to move, you may wish to verify that the location is no worst than your current location. Note, in the city you will be hard pressed to get a mile, in the country side you can get several miles. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2007 Report Share Posted November 5, 2007 > Posted by: " Ken " ken.lassesen@... in our new house ( < 900 sq ft, major downsizing) the entire > house has aluminum vapor barrier (so we are in a faraday cage) and has wired internet drops in each room. The house was also built without a single piece of HDF or MDF or fibre board or any formaldehyde products. No carpets: just tile or solid wood floors. Hospital grade air filters, The house was designed to be the safest for CFIDS that we could design> The reality is that we are talking remission > working at preventing triggering events on a life-long basis. Think of it as diabetes that can be controlled by diet alone. > > It's a matter of facing some tough choices and then making the right > choices. > Ken, Your house sounds similar to the construction methods in my customized RV, except that I dismantled the Hepa Filtration systems in 2002 in favor of simply parking in places where they are unnecessary. In terms of remission, just as I described to Dr while in the 1999 " Original CFS cohort NIH follow-up study " : " I have permits to climb Mt Whitney, and that's not too shabby for a person with Chronic Fatigue Syndrome " . Last Nov. I celebrated the results of this method by climbing Mt Whitney for the ninth time after leaving the ampligen program. I was out in the " pristine deseert " climbing the Churchill buttes yesterday. And Cort, considering that you attempted this same strategy years ago with that van of yours which burned up, seems that we've all agree some level of " escapism " is therapeutic. It's all in the old messages, and I stand behind every word I wrote. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2007 Report Share Posted November 5, 2007 , Since you consider yourself recovered by avoidance of offenders, do you work for a living now? are you on disability? sounds like climbing mountains like that is a huge achievement, one most 'healthy' working people could not do, so wondered if you've returned to the work world. Marcia Re: EMF > > > Posted by: " Ken " ken.lassesen@... > in our new house ( < 900 sq ft, major downsizing) the entire > > house has aluminum vapor barrier (so we are in a faraday cage) and > has wired internet drops in each room. The house was also built without > a single piece of HDF or MDF or fibre board or any formaldehyde > products. No carpets: just tile or solid wood floors. Hospital grade > air filters, The house was designed to be the safest for CFIDS that we > could design> The reality is that we are talking remission > > working at preventing triggering events on a life-long basis. > Think of it as diabetes that can be controlled by diet alone. > > > > It's a matter of facing some tough choices and then making the right > > choices. > > > > > Ken, Your house sounds similar to the construction methods in my > customized RV, except that I dismantled the Hepa Filtration systems in > 2002 in favor of simply parking in places where they are unnecessary. > In terms of remission, just as I described to Dr while in the > 1999 " Original CFS cohort NIH follow-up study " : " I have permits to > climb Mt Whitney, and that's not too shabby for a person with Chronic > Fatigue Syndrome " . > Last Nov. I celebrated the results of this method by climbing Mt > Whitney for the ninth time after leaving the ampligen program. > I was out in the " pristine deseert " climbing the Churchill buttes > yesterday. And Cort, considering that you attempted this same > strategy years ago with that van of yours which burned up, seems that > we've all agree some level of " escapism " is therapeutic. > It's all in the old messages, and I stand behind every word I wrote. > - > > > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2007 Report Share Posted November 5, 2007 " Marcia " <mgrahn@...> wrote: > > , > > Since you consider yourself recovered by avoidance of offenders, do you work for a living now? are you on disability? sounds like climbing mountains like that is a huge achievement, one most 'healthy' working people could not do, so wondered if you've returned to the work world. > > Marcia Not only am I working, but it's in a building that used to knock me flat many years ago. Nobody thought I could recover to this extent. It was more than I dared hope for. So... considering that I saw the same clues that suggested this strategy in other CFSers, the question is " How far does this go in applying to CFS as an illness? " and " Why are doctors disinterested in this effect? " Even if they do not understand the mechanism for any improvement, one would think it is incumbent upon researchers to manifest some degree of curiosity to anyone who proposes a concept WHILE in the ampligen program - and comes back with pictures of themselves on top of some reasonably high mountains. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2007 Report Share Posted November 6, 2007 hey ken if one buys a cloth covered couch at a regular furniture store how long do you think there could be bad outgassing? it sounds so hard to set up life protectively, i do it halfheartedly. ever see that movie " safe " , sort of disheartening..... > > > > Posted by: " Ken " ken.lassesen@ > in our new house ( < 900 sq ft, major downsizing) the entire > > house has aluminum vapor barrier (so we are in a faraday cage) and > has wired internet drops in each room. The house was also built without > a single piece of HDF or MDF or fibre board or any formaldehyde > products. No carpets: just tile or solid wood floors. Hospital grade > air filters, The house was designed to be the safest for CFIDS that we > could design> The reality is that we are talking remission > > working at preventing triggering events on a life-long basis. > Think of it as diabetes that can be controlled by diet alone. > > > > It's a matter of facing some tough choices and then making the right > > choices. > > > > > Ken, Your house sounds similar to the construction methods in my > customized RV, except that I dismantled the Hepa Filtration systems in > 2002 in favor of simply parking in places where they are unnecessary. > In terms of remission, just as I described to Dr while in the > 1999 " Original CFS cohort NIH follow-up study " : " I have permits to > climb Mt Whitney, and that's not too shabby for a person with Chronic > Fatigue Syndrome " . > Last Nov. I celebrated the results of this method by climbing Mt > Whitney for the ninth time after leaving the ampligen program. > I was out in the " pristine deseert " climbing the Churchill buttes > yesterday. And Cort, considering that you attempted this same > strategy years ago with that van of yours which burned up, seems that > we've all agree some level of " escapism " is therapeutic. > It's all in the old messages, and I stand behind every word I wrote. > - > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2009 Report Share Posted September 14, 2009 Hi Everyone , I was lurking and reading the posts . I was wondering , isn't burning beeswax candles also good for lowering EMFs ? By the way this is a great group and thank you so much Bee for sharing your extensive wisdom with us all . The best , Jack Quote Link to comment Share on other sites More sharing options...
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