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I had a doctor's appointment today. He had read the info I sent him on flatback

and stated that he did not feel competent to make a diagnosis. He has referred

me to a Dr. Harvell in Greenville, NC. Someone please send me the website

listing scoliosis doctors so I can see if he's on the list. I already know that

if I am diagnosed with flatback, I will go to one of the 6 doctors that are

experienced in doing the surgery.

Here are some other questions I need advice on. When my doctor's nurse called

Dr. Harvell's office to make the appointment, she told them I wanted to find out

if I had flatback syndrome. The response was, What's that? Should I send them

copies of the information I have on flatback syndrome?

I explained that it was a condition developed by people that had scoliosis

surgery years ago. I told them I had surgery when I was 12 and that I hadn't

had any x-rays done in 20 years. They asked, Do you still have scoliosis? I

said, I don't know how to answer that question. I honestly don't know what

curvature I may still have. How do I explain it to them?

I also plan to let them know that I have osteoporosis and that I'm concerned

about the rod staying in place. I have had a lot of pain off and on recently.

The pain is located when the rod ends in my lumbar region. I'm wondering if

something is going wrong in that area.

I appreciate all the advice I know you all will share with me!

Peggy Greene

JPG Unlimited

Antiques & Collectibles

jpgreene@...

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Hi Peggy...

You'll find the list of SRS members at:

http://www.srs.org/htm/mbrlst/mbrlst.htm

I would be worried about a scoliosis doctor who didn't know about

flatback. However, it's entirely possible that the message never got to

the doctor. I don't think it would help or hurt to bring him any

information you have, as he either knows about flatback already, or you

don't want him as your doctor.

I do not have the answer to the question " do you still have scoliosis. "

I've never quite known how to answer that myself. When people ask

what's wrong with my spine, I never know quite how to answer. I think

that the technical answer would be that we still have scoliosis.

Good luck with your appointment.

Regards,

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I agree with . I think you would be best served by finding

someone that knows what flatback syndrome is because you may be mis-

diagnosed.

I remember that I went to my ex-family doctor who I asked if he ever

heard of flat back syndrome. He said " I don't need to know about it,

you seem to be the only one in this province that has it... " Good bye

doctor. I found another doctor who got out the books and read about

it.

Good luck.

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Peggy...

Who were you talking to in the hospital? It seems unlikely to me that

some administrative person in the orthopaedic department would know much

about the specific types of problems that are being treated.

The one thing I think it's important for you to find out, is how many

scoliosis revision surgeries your surgeon does/has done. Get the names

and phone numbers of as many as you can, and call those people to

discuss their experiences.

Good luck.

Regards,

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In a message dated 11/08/2000 11:04:03 PM Eastern Standard Time,

jpgreene@... writes:

> I called the specialist's office today and found out that he is strictly a

> spinal surgeon. I spoke with his nurse and even though she had not heard

> the term " flatback " , she quickly figured out what it was and said the

> doctor would be familiar with it.

Peggy,

But is he a SCOLIOSIS spinal surgeon? From what you stated in your post, it

sounds a bit fishy to me. Refer to the Scoliosis Research Society's web site

at

WWW.SRS.ORG, and go to the subheading " Doctors Listing " . See if this surgeon

is listed. SRS members are spinal orthopedic surgeons who sub-specialize in

the treatment of scoliosis.

S.

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The doctor I am seeing is not strictly a scoliosis doctor. But I am only

seeing him to determine if I have flatback and to see how the Harrington rod

implant is after 25 years. He does have experience with these things. If I

will need surgery for flatback or anything else, I will see one of six

specialists listed on the flatback sites.

Peggy Greene

JPG Unlimited

Antiques & Collectibles

jpgreene@...

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  • 8 years later...

Hi Bee and everyone,

I have a doctor appt next week for my yearly pap smear but I'm a little nervous

being I haven't had my period in over 10 months now. Obviously they're going to

ask when my last period was. Should I lie or tell them it was 10 months ago?

Just not sure how they may react to that.

Thanks for any advice!

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>

> Hi Bee and everyone,

> I have a doctor appt next week for my yearly pap smear but I'm a little

nervous being I haven't had my period in over 10 months now. Obviously they're

going to ask when my last period was. Should I lie or tell them it was 10 months

ago? Just not sure how they may react to that.

+++Hi . I haven't had a pap smear in 15 years and I have never had a

mammogram. I believe doctors promote such tests, as well as annual physical

exams, in order to make more money. The " scare tactic " they use is: " Something

may be killing you but you won't know about it until it is too late! " I think

I'd know if something is out of whack with my body.

If you go ahead with the test, I suggest you lie, or you may get adverse

reactions from your doctor.

My diet isn't the only one that causes women to stop menstruating; even the GAPS

diet (Gut and Psychology Syndrome) causes it too, as well as many others. I've

been reading about experiments done on animals, and the same thing happens to

them - it's in the book Good Calories, Bad Calories, p. 436.

All the best, Bee

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Hi ,

I thought you might be interested in this article I read on the front page of

the newspaper today. Even the American Cancer Society is now saying that annual

screenings overdiagnose harmless cancer. Surprising but true!

Rethinking stance on screening for cancer

Organization sees risk in overtreating disease

http://tinyurl.com/ygkc66r

Chris

>

> Hi Bee and everyone,

> I have a doctor appt next week for my yearly pap smear but I'm a little

nervous being I haven't had my period in over 10 months now. Obviously they're

going to ask when my last period was. Should I lie or tell them it was 10 months

ago? Just not sure how they may react to that.

> Thanks for any advice!

>

>

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