Mitch

[Guest guest]

In a message dated 04/17/2000 6:41:49 PM Eastern Daylight Time,

cbmueller@... writes:

<< (shhhhh, don't tell him, but i think i'm developing a little crush on

mitch......)

cindylv, who's whispering >>

shhhhh, I think we all are

but let's try to keep it quiet

bad enough hubby competes with

Barb

who thinks husbands who resent TB tape buying resent their wives oogling

another man too and don't think they feel the same way about

[Guest guest]

> Good job to all you losers. You are all doing so great. Can you hear

me applauding

> Till later

> Mitch

(shhhhh, don't tell him, but i think i'm developing a little crush on

mitch......)

cindylv, who's whispering

sss, stya and rtl

[Guest guest]

I am Whispering too---

I say!

Hello!

Is there a Mrs Mitch?

Janet

who is Happily Married and Luckily Living A Long way away from

there....

In tae-bo_onegroups, " and Bob Mueller " <cbmueller@l...>

wrote:

> > Good job to all you losers. You are all doing so great. Can you

hear

> me applauding

> > Till later

> > Mitch

>

> (shhhhh, don't tell him, but i think i'm developing a little crush

on

> mitch......)

>

> cindylv, who's whispering

> sss, stya and rtl

[Guest guest]

>

> Barb

> who thinks husbands who resent TB tape buying resent their wives

oogling

> another man too and don't think they feel the same way about

HA-HA-HA!

I should think Not--hee-hee! But WHAT A sweet Guy!

Is he quite as Energetic in The Flash?

Janet

Who Thinks is JUST LIKE Leo Sayer---You make me feel

like Dancing!

[Guest guest]

I 3rd or 4th or 5th (or whatever number we are on by now) the thing about having a crush on Mitch..lol I am sure Mitch is happy now...women drooling all over HIM!

MGTFD

Re: Re: mitch

In a message dated 04/17/2000 6:41:49 PM Eastern Daylight Time, cbmueller@... writes:<< (shhhhh, don't tell him, but i think i'm developing a little crush on mitch......) cindylv, who's whispering >>shhhhh, I think we all arebut let's try to keep it quietbad enough hubby competes with Barbwho thinks husbands who resent TB tape buying resent their wives oogling another man too and don't think they feel the same way about ------------------------------------------------------------------------Your high school sweetheart-where is he now? With 4.4 million alumnialready registered at Classmates.com, there's a good chance you'llfind her here. Visit your online high school class reunion at:1/3139/1/_/21226/_/956011764/------------------------------------------------------------------------As Deb has said: "Fitness is a journey and it begins with the first step."Visit our new vault site http://taeboon.isportsdot.com/

[Guest guest]

I 3rd or 4th or 5th (or whatever number we are on by now) the thing about having a crush on Mitch..lol I am sure Mitch is happy now...women drooling all over HIM!

MGTFD

Re: Re: mitch

In a message dated 04/17/2000 6:41:49 PM Eastern Daylight Time, cbmueller@... writes:<< (shhhhh, don't tell him, but i think i'm developing a little crush on mitch......) cindylv, who's whispering >>shhhhh, I think we all arebut let's try to keep it quietbad enough hubby competes with Barbwho thinks husbands who resent TB tape buying resent their wives oogling another man too and don't think they feel the same way about ------------------------------------------------------------------------Your high school sweetheart-where is he now? With 4.4 million alumnialready registered at Classmates.com, there's a good chance you'llfind her here. Visit your online high school class reunion at:1/3139/1/_/21226/_/956011764/------------------------------------------------------------------------As Deb has said: "Fitness is a journey and it begins with the first step."Visit our new vault site http://taeboon.isportsdot.com/

[Guest guest]

> Maybe someday I'll share with you my philosophy about my fiance's

> role in my life and why he was taken from me. I have bored the group

> with it before, so I will spare them right now.

ummmmm, Susi? I think I speak for the whole group here when I say.....You

have NEVER bored us!

who loves listening to Susi and her philosophy

[Guest guest]

> Maybe someday I'll share with you my philosophy about my fiance's

> role in my life and why he was taken from me. I have bored the group

> with it before, so I will spare them right now.

ummmmm, Susi? I think I speak for the whole group here when I say.....You

have NEVER bored us!

who loves listening to Susi and her philosophy

[Guest guest]

We'd all like to follow in mitch's footstep but

most of us don't chase our dreams even when faced with

hep c, you may feel he's copping out, but it takes

guts to chuck it all and follow your dream, way to go

mitch!

[Guest guest]

Excellent work, Mitch! Congratulations on what must have been a lot of

hard work and taken a lot of spirit and determination. You set a great

example for anyone, not just kids with jra. Well done.

Lynn

mom to Mickey, 11, systemic jra since 3

and Kinsey, 8, healthy, great sister to Mickey!

On Feb 20, 2005, at 9:50 AM, bobtilk wrote:

Hello.  I haven't posted for quite awhile but here is an update for

Mitch Tilk.  He is amost 18 now and had Systemic JRA for 12 years. 

We have all learned to live with it and taken it day to day.  In the

last year he has had a total hip replacement (very successful) and

has managed to become President of his senior high school (+500

students).  He recently was awarded 2005 'Yes I can' Manitoba

Provincial award for extra curricular activity.  For those of you

that are new to this disease it can be overwhelming but ask for help

and remarkable things can happen.  Thanks for listening

Bob Tilk

[Guest guest]

Bob, tell Mitch I send many congrats from Kentucky! I am glad the hip

replacement was a success and it seems he is doing great! Congrats again!

Donna

[Guest guest]

--Wow..

Sounds like Mitch is taking this disease by the horns and not

letting it get him down. Good for him for achieving so much. Just

goes to show what a " can do " attitude will do.

Hugs Helen and (7,systemic)

- In , " bobtilk " <btilk@e...> wrote:

>

> Hello. I haven't posted for quite awhile but here is an update

for

> Mitch Tilk. He is amost 18 now and had Systemic JRA for 12

years.

> We have all learned to live with it and taken it day to day. In

the

> last year he has had a total hip replacement (very successful) and

> has managed to become President of his senior high school (+500

> students). He recently was awarded 2005 'Yes I can' Manitoba

> Provincial award for extra curricular activity. For those of you

> that are new to this disease it can be overwhelming but ask for

help

> and remarkable things can happen. Thanks for listening

>

> Bob Tilk

[Guest guest]

More proof of what we already know ---- JRA kids accoomplish great

things!!!! Congratulations on all his success.

Stacia and Hunter 8 systemic, iritis

>

> Hello. I haven't posted for quite awhile but here is an update

for

> Mitch Tilk. He is amost 18 now and had Systemic JRA for 12

years.

> We have all learned to live with it and taken it day to day. In

the

> last year he has had a total hip replacement (very successful) and

> has managed to become President of his senior high school (+500

> students). He recently was awarded 2005 'Yes I can' Manitoba

> Provincial award for extra curricular activity. For those of you

> that are new to this disease it can be overwhelming but ask for

help

> and remarkable things can happen. Thanks for listening

>

> Bob Tilk

[Guest guest]

Hi Mitch,

Ian did 2 seasons of t-ball also. He loves baseball, but can't make it around

the bases anymore, and is too heavy for me to carry that distance. He is out of

t-ball age here, and I don't trust him in real baseball either. My oldest son

did that last year, and is not in it this year. For one they are too much for

winning the game, and not for the fun of it. Also Mitchel got hit with the ball

too many times from the pitcher. I don't want to put Ian in that dangeer.

Now for horseback riding, Ian breaks my heart with this this year. He did great

last year, just reg horseback riding, not theroputic. We held on to him and he

did the rest on his own. He has about 4 first place ribbons from the horse

shows he did last year. It got too cold so he stopped for the winter. Now why

he breaks my heart is because he doesn't want to do it this year again. He did

so good, just like a real cowboy that he wants to be when he grows up. He said

he already knows how, and doesn't need to take anymore lessons. So I can't

force him, but the opportunity is always there if he wants to go back. I hope

he does because that is the one thing that put a huge smile on his face, and he

truly loved to do.

I think it is because he can't do t-ball/baseball this year and he is just upset

about that, so doesn't want to do anything. I feel bad though because Mitch is

in Karate, and I would like to have Ian doing something also. We are trying to

find a place around here that does guitar lessons because Ian has talked about

wanting to learn how to do that.

Ian is also very upset with things this year too because so many changes have

happend recently. He is now using the cough assist, bipap, neb when needed, and

has a pulse ox on him all night. He went just about 5 years being diagnosed

with just a manual chair and a walker. Now he gets all these new machines and

can't even get the power chair through ins yet, which he is upset about.

Sorry this is so long. I just hope that after he gets use to it all and excepts

it all that he will be interested in doing something again. Hopefuly horseback

riding. He is a natural at it!!!

Thank you for your reply. I am glad your son is doing good with all that. It

is nice to see them out there doing the things like tball and all. I just think

Ian is at that hard time with the SMA that he doesn't want to except the facts

that he is weakening so fast and all of a sudden. I don't want to except it, so

I can't even imagein how he feels. Thanks to that stupid school this is all

happening so fast.

Thanks again I will stop now before I bor you if I didn't already.

Missy

<mongomustgolf@...> wrote:

Hi Missy: I read your email and immediately thought

of my son Bryce. Bryce is in the midsts of his second

season of T-ball. Yes, he isn't the quickest one

around the bases, but he seems to have fun - though he

seems to know he can't do some of the things the other

kids can - but he tries like hell! Aside from the

baseball, he also rides a horse once a week at a

therapeutic riding center and he loves it. I highly

recommend horseback riding for anyone willing to give

it a try. For Bryce in particular, it helps him tone

and learn to control his hip & thigh muscles and to

work on good posture (all things of particular

significance to him and how SMA has affected his

body). Those in chairs can ride " Chariot Style " and

many kids do. Anyway, its a sport like any other -

one that most supposed " normal " kids don't ever get to

do - much less become proficient at it. Also, it is

something where for the most part, you are equal with

all other riders - SMA or not. Bryce's favorite part

of his hour long lessons is the part where they get to

trot & go fast! I see us involved with this for a

long, long time - as it provides so many positives

they can't all really be fully described. Anyway, if

you have any q's about " hippotherapy " (which is the

term for therapeutic horseback riding lessons)...just

let me know...Mitch

--- missy <ianpaul2@...> wrote:

> Hi sounds like you make a lot out of your

> life, and very active with things. That is great.

>

> I am Mom to Ian age 7.5 type 2/3. He can walk some,

> not any real distance or anything and falls a lot,

> but he is still going. He has some resp problems

> that just have come up this year. But over all he

> is doing good. I sure hope he looks at life the way

> you do and finds ways to be apart of sports and all

> like you have. He loves baseball, and soccer,

> basketball also, but really no way of him being on a

> reall team anymore. We still play as a family and

> all so the kids can have fun, but to Ian its not the

> real thing. I sure hope he looks at life the way

> you do when he gets older. Right now with him it is

> just more of a mental struggle on him dealing with

> the fact he can't do things like the other kids, and

> that is the hardest part of the whole SMA for him.

> Anyways Thank you for sharing about yourself. I

> like to here things like this, to here that there is

> those chances out there for my son when he is older.

> Thanks again.

> Missy

>

> Lemieux <iambacon@...> wrote:

> Hey

>

> I'm I'm 23 from Windsor, Ontario (5 mins from

> Detroit, Mich.),

> single male, I have SMA II and have never walked.

> I've lived in

> Western & Eastern Canada and England. I love to

> travel and meet new

> people and I am a Baseball and Basketball addict

> (Toronto).

>

> I'm at college for advertising and I work for the

> college basketball

> team as a statistician and announcer. I also coach

> a girls (13 & 14)

> softball team.

>

> I play in and am the president of a wheelchair floor

> hockey league in

> Michigan that allowed males and females aged 10+

> (one player is 60) to

> play competitive floor hockey.

>

> I'm a movie and music addict and also like art,

> drawing etc.

>

> I've added my photos (wolfmanjoe25 aka Chris)

>

> Feel free to add me to any IM program:

>

> AIM: WCHLLemieux

> Y!: wolfmanjoe25

> MSN: iambacon at gmail dot com

>

>

>

>

> A FEW RULES

>

> * The list members come from many backgrounds, ages

> and beliefs So all

> members most be tolerant and respectful to all

> members.

>

> * Some adult language and topics (like sexual

> health, swearing..) may

> occur occasionally in emails. Over use of

> inappropriate language will

> not be allowed. If your under 16 ask your

> parents/gaurdian before you

> join the list.

>

> * No SPAMMING or sending numerous emails unrelated

> to the topics of

> spinal muscular atrophy, health, and the daily

> issues of the disabled.

>

> Post message:

> Subscribe:

> -subscribe

> Unsubscribe:

> -unsubscribe

>

> List manager: (Sexy Mature Artist) Email:

> Esma1999@...

>

>

>

>

> oogroups.com

>

> List manager: (Sexy Mature Artist) Email:

> Esma1999@...

>

>

>

>

>

>

>

>

> ---------------------------------

>

[Guest guest]

Ian is a ladies man already!! He has the girls fighting over him on the bus for

who gets to sit next him and he ends up in the middle of 2 girls!! He loves it.

Yeah he had some group lessons and some just him. He didn't like the group

lessons too much, he said that the other kids would take his time and waste it

on them. He wanted the whole time just for him, and not for someone else. He

was suppose to be just him, but sometimes they would throw it as a group.

I am sure he will find something he is interested in, or wants to do and try it

out. He is just going through a hard time right now mentally with the SMA. He

is such a bright boy and he told me the other night before putting the bipap on

" the fight is on now with my weak legs. I will win before I loose mom. " So I

think the whole idea of him not being able to walk is bothering him the most.

He goes and goes, falls, gets help back up and goes on like that. he is

refusing to loose the battle of SMA right now. And for him the battle is to

keep walking!!! He knows why he needs the breathing equipment, but that doesn't

bother him too much. It is the all of asudden falling every few steps and not

being able to walk as far or anything like that anymore that is bothering him

the most.

I sure hope they come up with a treatment or cure soon. It is breaking his

heart loosing what walking ability he had.

thanks again for the support and ideas.

Missy

<mongomustgolf@...> wrote:

Hi Missy-

Did Ian take group lessons or private? Bryce takes

group lessons - right now with 2 to 4 other kids (all

girls - but, hey, the boy is a born ladies man,

afterall ;>) Anyway, aside from the group lessons

costing less - Bryce also enjoys the comradarie of the

whole thing...when Bryce is a little older, we've

thought about canoe-ing / 2 person kyacking (sp?) as

another fun activity/sport...though I hope Ian changes

his mind about horseback riding! I think guitar

lessons would be great - as I like to think (from the

male point of view) - the main reason for learning to

play a guitar is to, of course, woo women - which I'm

sure Ian will do plenty of in his time.

Regarding the baseball thing - as an AB child, I

played T-ball, and 4 years of baseball - never really

getting too good at it (and truthfully, never really

enjoying playing all that much) - I've explained to

Bryce if he isn't having fun playing ball to just let

me know - like I did to my Dad - and we won't play

" professionally " anymore. I still love watching

baseball (especially in the shade with a beer & hot

dog in hand) - but just because I stopped playing, I

still stayed an avid fan (of the Cleveland Indians -

back in the 70's & 80's when they were absolutely

horrible - if you can believe that) - and stayed

active with baseball in my teens as an umpire and a

paid scorer for men's softball. The point is, you

certainly don't have to be the one playing the sport

to really enjoy it - though its tough to try to

explain that to a young boy.

Mitch

--- missy <ianpaul2@...> wrote:

> Hi Mitch,

> Ian did 2 seasons of t-ball also. He loves

> baseball, but can't make it around the bases

> anymore, and is too heavy for me to carry that

> distance. He is out of t-ball age here, and I don't

> trust him in real baseball either. My oldest son

> did that last year, and is not in it this year. For

> one they are too much for winning the game, and not

> for the fun of it. Also Mitchel got hit with the

> ball too many times from the pitcher. I don't want

> to put Ian in that dangeer.

>

> Now for horseback riding, Ian breaks my heart with

> this this year. He did great last year, just reg

> horseback riding, not theroputic. We held on to him

> and he did the rest on his own. He has about 4

> first place ribbons from the horse shows he did last

> year. It got too cold so he stopped for the winter.

> Now why he breaks my heart is because he doesn't

> want to do it this year again. He did so good, just

> like a real cowboy that he wants to be when he grows

> up. He said he already knows how, and doesn't need

> to take anymore lessons. So I can't force him, but

> the opportunity is always there if he wants to go

> back. I hope he does because that is the one thing

> that put a huge smile on his face, and he truly

> loved to do.

>

> I think it is because he can't do t-ball/baseball

> this year and he is just upset about that, so

> doesn't want to do anything. I feel bad though

> because Mitch is in Karate, and I would like to have

> Ian doing something also. We are trying to find a

> place around here that does guitar lessons because

> Ian has talked about wanting to learn how to do

> that.

>

> Ian is also very upset with things this year too

> because so many changes have happend recently. He

> is now using the cough assist, bipap, neb when

> needed, and has a pulse ox on him all night. He

> went just about 5 years being diagnosed with just a

> manual chair and a walker. Now he gets all these

> new machines and can't even get the power chair

> through ins yet, which he is upset about.

>

> Sorry this is so long. I just hope that after he

> gets use to it all and excepts it all that he will

> be interested in doing something again. Hopefuly

> horseback riding. He is a natural at it!!!

> Thank you for your reply. I am glad your son is

> doing good with all that. It is nice to see them

> out there doing the things like tball and all. I

> just think Ian is at that hard time with the SMA

> that he doesn't want to except the facts that he is

> weakening so fast and all of a sudden. I don't want

> to except it, so I can't even imagein how he feels.

> Thanks to that stupid school this is all happening

> so fast.

> Thanks again I will stop now before I bor you if I

> didn't already.

> Missy

>

> <mongomustgolf@...> wrote:

> Hi Missy: I read your email and immediately thought

> of my son Bryce. Bryce is in the midsts of his

> second

> season of T-ball. Yes, he isn't the quickest one

> around the bases, but he seems to have fun - though

> he

> seems to know he can't do some of the things the

> other

> kids can - but he tries like hell! Aside from the

> baseball, he also rides a horse once a week at a

> therapeutic riding center and he loves it. I highly

> recommend horseback riding for anyone willing to

> give

> it a try. For Bryce in particular, it helps him

> tone

> and learn to control his hip & thigh muscles and to

> work on good posture (all things of particular

> significance to him and how SMA has affected his

> body). Those in chairs can ride " Chariot Style " and

> many kids do. Anyway, its a sport like any other -

> one that most supposed " normal " kids don't ever get

> to

> do - much less become proficient at it. Also, it is

> something where for the most part, you are equal

> with

> all other riders - SMA or not. Bryce's favorite

> part

> of his hour long lessons is the part where they get

> to

> trot & go fast! I see us involved with this for a

> long, long time - as it provides so many positives

> they can't all really be fully described. Anyway,

> if

> you have any q's about " hippotherapy " (which is the

> term for therapeutic horseback riding

> lessons)...just

> let me know...Mitch

>

> --- missy <ianpaul2@...> wrote:

>

> > Hi sounds like you make a lot out of your

> > life, and very active with things. That is great.

>

> >

> > I am Mom to Ian age 7.5 type 2/3. He can walk

> some,

> > not any real distance or anything and falls a lot,

> > but he is still going. He has some resp problems

> > that just have come up this year. But over all he

> > is doing good. I sure hope he looks at life the

> way

> > you do and finds ways to be apart of sports and

> all

> > like you have. He loves baseball, and soccer,

> > basketball also, but really no way of him being on

> a

> > reall team anymore. We still play as a family and

> > all so the kids can have fun, but to Ian its not

> the

> > real thing. I sure hope he looks at life the way

> > you do when he gets older. Right now with him it

> is

> > just more of a mental struggle on him dealing with

> > the fact he can't do things like the other kids,

> and

> > that is the hardest part of the whole SMA for him.

> > Anyways Thank you for sharing about yourself. I

> > like to here things like this, to here that there

> is

> > those chances out there for my son when he is

> older.

> > Thanks again.

> > Missy

> >

> > Lemieux <iambacon@...> wrote:

> > Hey

> >

> > I'm I'm 23 from Windsor, Ontario (5 mins

> from

> > Detroit, Mich.),

> > single male, I have SMA II and have never walked.

> > I've lived in

> > Western & Eastern Canada and England. I love to

> > travel and meet new

> > people and I am a Baseball and Basketball addict

> > (Toronto).

> >

> > I'm at college for advertising and I work for the

> > college basketball

> > team as a statistician and announcer. I also

> coach

> > a girls (13 & 14)

> > softball team.

> >

> > I play in and am the president of a wheelchair

> floor

> > hockey league in

> > Michigan that allowed males and females aged 10+

> > (one player is 60) to

> > play competitive floor hockey.

> >

> > I'm a movie and music addict and also like art,

> > drawing etc.

> >

> > I've added my photos (wolfmanjoe25 aka Chris)

> >

> > Feel free to add me to any IM program:

> >

> > AIM: WCHLLemieux

> > Y!: wolfmanjoe25

> > MSN: iambacon at gmail dot com

> >

> >

> >

> >

> > A FEW RULES

> >

> > * The list members come from many backgrounds,

> ages

> > and beliefs So all

> > members most be tolerant and respectful to all

> > members.

> >

> > * Some adult language and topics (like sexual

> > health, swearing..) may

> > occur occasionally in emails. Over use of

> > inappropriate language will

> > not be allowed. If your under 16 ask your

> > parents/gaurdian before you

> > join the list.

> >

> > * No SPAMMING or sending numerous emails unrelated

> > to the topics of

> > spinal muscular atrophy, health, and the daily

> > issues of the disabled.

> >

> > Post message:

>

>

=== message truncated ===

__________________________________

Discover

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A FEW RULES

* The list members come from many backgrounds, ages and beliefs So all

members most be tolerant and respectful to all members.

* Some adult language and topics (like sexual health, swearing..) may

occur occasionally in emails. Over use of inappropriate language will

not be allowed. If your under 16 ask your parents/gaurdian before you

join the list.

* No SPAMMING or sending numerous emails unrelated to the topics of

spinal muscular atrophy, health, and the daily issues of the disabled.

Post message:

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---------------------------------

[Guest guest]

Would you write me offline? I'm a 24 year old guy too dealing with candida.

>

> Thanks for the responses! I will keep off the fruit. I have some of the

bacon from Whole Foods that I'll just have with some sliced tomatoes or

something for breakast until eggs seem appetizing again.

>

> But I have to say, a year on the diet has exteremly changed my life, I just

would like to have a glass of wine with dinner the odd time, maybe once a month

if that. And it'll definitely be from Frogpond since they're the only

certified organic winery in Ontario.

>

> Thanks!

>

> Mitch

>