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what are you folks doing to treat " hyper- reactivity dysfunction " , other

than balancing brain/organs and detoxing?

reaction

What does a minus reaction number signify? Thanks Elly

.............................................

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Biofeedback>reduce stress in nerves, balance PNS/SNS etc. Look at ph if acid

correcet etc

K

reaction

>

>

> What does a minus reaction number signify? Thanks Elly

>

>

>

>

> ............................................

>

>

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  • 2 years later...

I think some people just don't know how to answer when confronted with a

statement like that and try to make a joke of it by saying that you're

lucky. You really need to loose your sense of smell/taste to realize just

how horrid it is. Ask these friends that when they get the flu or a cold

and can't smell/taste, how they feel.

My ENT told me years ago that mine would be permanent as has another ENT.

Since my last surgery six months ago it's returned about 85%. Everyone in

the family knows when I got it back because I was caught out sniffing all

the spices in the pantry - and I didn't care lol.

Try not to take it to heart too much, there's always a light at the end of

the tunnel, maybe not yet but in the future.

There's always hope.

Reaction

OK Guys,

Why, when I tell anyone that I can not taste or smell, do they proceed

to tell me how lucky I am or they make a joke? I am not feeling very

lucky:( nor do I find it amusing. I have gotten this response from

people that I genuinely feel are sensitive people. I am feeling a true

and deep sense of loss on a number of levels since I am told this may

be permanent.

The intent was good, but I received chocolates and scented candles for

Christmas (yes, they knew I could not taste or smell). While I am

grateful for the good will, what don't they get?

Just curious?

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Totally agree Jim. I still remember some years ago when my GP told me that

aspirin couldn't possibly bring on an asthma attack. I'm the sort of person

who won't take no for an answer. After all these doctors are humans and as

such can make mistakes too. There's answers out there, it's either a matter

of looking around or time.

Re: Re: Reaction

For many of us in this group, the doctor's conclusion that our anosmic

condition is permanent is

just plain unacceptable. We must keep researching on our own and trying new

things. For me,

aspirin desens is working. For others, irrigation or periodic shots have

worked. You just have to

do it yourself and not let ten minutes with the impersonal doctor control

your life.

Don't give up!

Jim

--- rmgold3 <golden-key@...> wrote:

---------------------------------

I too have had doctors minimize the situation. But I agree, somtimes

the less said the better.:)

Rose

>

>

> ---------------------------------

> OK Guys,

>

> Why, when I tell anyone that I can not taste or smell, do they

proceed

> to tell me how lucky I am or they make a joke? I am not feeling

very

> lucky:( nor do I find it amusing. I have gotten this response from

> people that I genuinely feel are sensitive people. I am feeling a

true

> and deep sense of loss on a number of levels since I am told this

may

> be permanent.

>

> The intent was good, but I received chocolates and scented candles

for

> Christmas (yes, they knew I could not taste or smell). While I am

> grateful for the good will, what don't they get?

>

> Just curious?

>

>

>

>

>

> ---------------------------------

> ! GROUPS LINKS

>

>

> Visit your group " samters " on the web.

>

>

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In a message dated 1/5/2006 10:01:15 P.M. US Mountain Standard Time, soniarobins@... writes:

There's answers out there, it's either a matterof looking around or time.

I agree too. Research is continuing and knowledge is accumulating.

By the way, if anyone lives near San Diego, consider participating in a study at the UCSD clinic. May as well deal with the professor doctors that "teach" the doctors and get paid for it.

Smell Loss (Anosmia) Research or, if you can't link

http://www-surgery.ucsd.edu/ent/Research/ct_anosmia.html

If you want to read through some good information available on their site:

Nasal Dysfunction Clinic or, if you can't link,

http://www-surgery.ucsd.edu/ent/DAVIDSON/NDC/booklet.htm

If you participate in the study, let us all know what you found out.

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I wonder if there is anyone famous that has Samters??? Maybe then we could get the attention we deserve.  Rex Youngrex@...On Jan 5, 2006, at 9:06 PM, wrote: Totally agree Jim. I still remember some years ago when my GP told me that aspirin couldn't possibly bring on an asthma attack.  I'm the sort of person who won't take no for an answer. After all these doctors are humans and as such can make mistakes too.  There's answers out there, it's either a matter of looking around or time. Re: Re: Reaction For many of us in this group, the doctor's conclusion that our anosmic condition is permanent is just plain unacceptable. We must keep researching on our own and trying new things. For me, aspirin desens is working. For others, irrigation or periodic shots have worked. You just have to do it yourself and not let ten minutes with the impersonal doctor control your life. Don't give up! Jim --- rmgold3 <golden-key@...> wrote: --------------------------------- I too have had doctors minimize the situation. But I agree, somtimes the less said the better.:) Rose > > > --------------------------------- > OK Guys, > > Why, when I tell anyone that I can not taste or smell, do they proceed > to tell me how lucky I am or they make a joke? I am not feeling very > lucky:( nor do I find it amusing. I have gotten this response from > people that I genuinely feel are sensitive people. I am feeling a true > and deep sense of loss on a number of levels since I am told this may > be permanent. > > The intent was good, but I received chocolates and scented candles for > Christmas (yes, they knew I could not taste or smell). While I am > grateful for the good will, what don't they get? > > Just curious? > > > >   >     > --------------------------------- >   ! GROUPS LINKS > >   >     Visit your group "samters" on the web. >    >    

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I know how you feel. I hang out my bedding every week just waiting for the day I can crawl in bed and smell it. I even hang it out when it's 0 outside. (i dry it first).

Try not to feel offended. No one understands how devastating it is unless they deal with it. I used to get frustrated because my husband didn't understand my constant headaches, but I then realized that unless he has one everyday there would be no way he could understand it.

Chances are they're really trying to help lift your spirits.

Tami

Reaction

OK Guys,Why, when I tell anyone that I can not taste or smell, do they proceed to tell me how lucky I am or they make a joke? I am not feeling very lucky:( nor do I find it amusing. I have gotten this response from people that I genuinely feel are sensitive people. I am feeling a true and deep sense of loss on a number of levels since I am told this may be permanent.The intent was good, but I received chocolates and scented candles for Christmas (yes, they knew I could not taste or smell). While I am grateful for the good will, what don't they get?Just curious?

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That's the kind of thinking we need!!! I heard Lohan was rushed to the hospital with an asthma attack... Sorry, I live in LA, these things really do make the news. Personally I'm sick of the, 'gee, you're always sick' from co-workers or people who look at you funny cuz they think you do drugs or something. I'll head up any effort to get this to the doctors on the talk shows or whomever can get us help. Rex Young <rex@...> wrote: I wonder if there is anyone famous that has Samters??? Maybe then we could get the attention we deserve. Rex Young rex@... On Jan 5, 2006, at 9:06 PM, wrote: Totally agree Jim. I still remember some years ago when my GP told me thataspirin couldn't possibly bring on an asthma attack. I'm the sort of personwho won't take no for an answer. After all these doctors are humans and assuch can make mistakes too. There's answers out there, it's either a matterof looking around or time.-----Original Message-----From: samters [mailto:samters ]

On Behalf OfJim BrownSent: Friday, 6 January 2006 2:56 PMsamters Subject: Re: Re: ReactionFor many of us in this group, the doctor's conclusion that our anosmiccondition is permanent isjust plain unacceptable. We must keep researching on our own and trying newthings. For me,aspirin desens is working. For others, irrigation or periodic shots haveworked. You just have todo it yourself and not let ten minutes with the impersonal doctor controlyour life.Don't give up!Jim--- rmgold3 <golden-key@...> wrote:---------------------------------I too have had doctors minimize the situation. But I agree, somtimes the less said the better.:)Rose> > > ---------------------------------> OK Guys,> > Why, when I tell anyone that I can not taste or smell, do they proceed > to tell me how lucky I am or they make a joke? I am not feeling very > lucky:( nor do I find it amusing. I have gotten this response from > people that I genuinely feel are sensitive people. I am feeling a true > and deep sense of loss on a number of levels since I am told this may > be permanent.> > The intent was good, but I received chocolates

and scented candles for > Christmas (yes, they knew I could not taste or smell). While I am > grateful for the good will, what don't they get?> > Just curious?> > > > > > ---------------------------------> ! GROUPS LINKS> > > Visit your group "samters" on the web.> >

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Someone famous just might do the trick and

if not, at least people then would be more aware of it and perhaps understand

what others are going through. I wonder how we could go about it though?

There’s a morning show on television

in Australia

that has an American correspondent on it twice in the mornings to talk about

what’s happening in Hollywood etc. Maybe I could get the ball rolling by

emailing the television show and getting them to forward it to him? Worth

a try I guess

From: samters [mailto:samters ] On Behalf Of Rex Young

Sent: Saturday, 7 January 2006

2:09 AM

samters

Subject: Re: Re:

Reaction

I wonder if there is anyone famous that has Samters??? Maybe then we

could get the attention we deserve.

Rex Young

rex@...

On Jan 5, 2006, at 9:06 PM, wrote:

Totally agree Jim. I still

remember some years ago when my GP told me that

aspirin couldn't possibly bring on an asthma

attack. I'm the sort of person

who won't take no for an answer. After all these

doctors are humans and as

such can make mistakes too. There's answers out

there, it's either a matter

of looking around or time.

Re: Re: Reaction

For many of us in this group, the doctor's

conclusion that our anosmic

condition is permanent is

just plain unacceptable. We must keep researching

on our own and trying new

things. For me,

aspirin desens is working. For others, irrigation

or periodic shots have

worked. You just have to

do it yourself and not let ten minutes with the

impersonal doctor control

your life.

Don't give up!

Jim

--- rmgold3 <golden-key@...> wrote:

---------------------------------

I too have had doctors minimize the situation. But

I agree, somtimes

the less said the better.:)

Rose

>

>

> ---------------------------------

> OK Guys,

>

> Why, when I tell anyone that I can not taste

or smell, do they

proceed

> to tell me how lucky I am or they make a

joke? I am not feeling

very

> lucky:( nor do I find it amusing. I have

gotten this response from

> people that I genuinely feel are sensitive

people. I am feeling a

true

> and deep sense of loss on a number of levels

since I am told this

may

> be permanent.

>

> The intent was good, but I received

chocolates and scented candles

for

> Christmas (yes, they knew I could not taste

or smell). While I am

> grateful for the good will, what don't they

get?

>

> Just curious?

>

>

>

>

>

> ---------------------------------

> ! GROUPS LINKS

>

>

> Visit your group " samters " on the

web.

>

>

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how about this one...?

you tell someone you cannot smell and they find something very " smelly " and

say " oh you

must be able to smell this! " because they do not believe you.

if i had a dollar evrytime that had happened...

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That happens to me all the time and also if I'm out with my sister in law

and we happen to pass by a perfume counter it's " oh smell this " - maybe one

day she'll remember.

Re: Reaction

how about this one...?

you tell someone you cannot smell and they find something very " smelly "

and say " oh you

must be able to smell this! " because they do not believe you.

if i had a dollar evrytime that had happened...

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I think like said, people just

don’t know how to react so they make a joke. Unfortunately for you

(and many others) that joke gets really old really fast! But joking is a

natural defense mechanism. I lost my sense of smell and taste for fortunately

only a few months (so far my second surgery has fixed it), but they were really

long months! I even found I joked about it some but I was

miserable. Of course for me, being a horse person, the jokes at the barn

were not so bad because there really are things that I wish I couldn’t

smell! However I am glad I can smell them again and I really hope it

stays that way (surgery was only 3 weeks ago…) and I wish the best of

luck to everyone else. I drove my husband nuts because I made him smell or

taste everything whenever I cooked because I couldn’t smell it or taste it

to make sure it was right! I must admit I think before that I would have

had trouble understanding the concept of not being able to smell. I have

also been lucky in that my ENT is fabulous and agrees that having a stuffy nose

and no sense of smell and taste is not acceptable and I feel he really is

working with me to fix the problem and keep it fixed. At least we have

all found a great support group here!

K.

Reaction

OK Guys,

Why, when I tell anyone that I can not taste or

smell, do they proceed

to tell me how lucky I am or they make a joke? I

am not feeling very

lucky:( nor do I find it amusing. I have gotten

this response from

people that I genuinely feel are sensitive people.

I am feeling a true

and deep sense of loss on a number of levels since

I am told this may

be permanent.

The intent was good, but I received chocolates and

scented candles for

Christmas (yes, they knew I could not taste or

smell). While I am

grateful for the good will, what don't they get?

Just curious?

Link to comment
Share on other sites

Thanks!!!!

Rose

>

> I think some people just don't know how to answer when confronted

with a

> statement like that and try to make a joke of it by saying that

you're

> lucky. You really need to loose your sense of smell/taste to

realize just

> how horrid it is. Ask these friends that when they get the flu or

a cold

> and can't smell/taste, how they feel.

>

> My ENT told me years ago that mine would be permanent as has

another ENT.

> Since my last surgery six months ago it's returned about 85%.

Everyone in

> the family knows when I got it back because I was caught out

sniffing all

> the spices in the pantry - and I didn't care lol.

>

> Try not to take it to heart too much, there's always a light at

the end of

> the tunnel, maybe not yet but in the future.

>

> There's always hope.

>

> Reaction

>

> OK Guys,

>

> Why, when I tell anyone that I can not taste or smell, do they

proceed

> to tell me how lucky I am or they make a joke? I am not feeling

very

> lucky:( nor do I find it amusing. I have gotten this response from

> people that I genuinely feel are sensitive people. I am feeling a

true

> and deep sense of loss on a number of levels since I am told this

may

> be permanent.

>

> The intent was good, but I received chocolates and scented candles

for

> Christmas (yes, they knew I could not taste or smell). While I am

> grateful for the good will, what don't they get?

>

> Just curious?

>

>

>

>

>

>

>

>

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  • 3 years later...

Hi Bee,

I cheated on the diet on Friday with alcohol. I'm so mad at myself for doing it

but I was out with friends and I just did it anyway. WOW...big mistake. I had

about 6 shots of organic vodka total with water and lemon. Saturday

morning...was horrible. I had diareha all morning and had a huge flare up in

vaginal itching. Almost unbearable. Sunday morning I did a coffee enema which

helped but now today I am still feeling massive vaginal itchiness with tons of

discharge now which I usually never have. I guess I just want reassurance that I

didn't totally mess up all my hard work for the last 7 months. Will this pass in

a few days or am I back to the beginning? Is there anything I should do to help

get this alcohol I cheated with out of me? Sorry if these are dumb questions.

I'm just really mad I even cheated.

Thanks Bee...it is wonderful having you to go to!

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>

> Hi Bee,

>

> I cheated on the diet on Friday with alcohol. I'm so mad at myself for doing

it but I was out with friends and I just did it anyway. WOW...big mistake. I had

about 6 shots of organic vodka total with water and lemon. Saturday

morning...was horrible. I had diareha all morning and had a huge flare up in

vaginal itching. Almost unbearable. Sunday morning I did a coffee enema which

helped but now today I am still feeling massive vaginal itchiness with tons of

discharge now which I usually never have. I guess I just want reassurance that I

didn't totally mess up all my hard work for the last 7 months. Will this pass in

a few days or am I back to the beginning? Is there anything I should do to help

get this alcohol I cheated with out of me? Sorry if these are dumb questions.

I'm just really mad I even cheated.

> Thanks Bee...it is wonderful having you to go to!

+++Hi . No, you wouldn't have messed up all your hard work, since the

nutrition you are getting is still helping you. It usually takes 3 days to

detoxify, so you should feel better soon. No, you wouldn't be back at the

beginning.

Please do not kick yourself my dear. Just put it behind you. Onward and

upward!

Luv, Bee

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>

> > Hi Bee,

>>

> Bee, how damaging is cheating? I am surprised this person had such an extreme

reaction after 7 months of the diet when I have only been on it for 4.5 months

and my body seems to have been pretty lenient with the cheats so far.

>

+++Hi Nate. The nutrition you are consuming is still doing its job for you, and

cheats can cause problems, but they don't put you back to the beginning unless

you go off the diet and supplements for a longer time.

It goes without saying that it is better not to cheat. The consistent intake of

" proper nutrients " are that give your body what it needs to heal itself, so keep

that in mind.

All the best, Bee

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  • 3 months later...

Dear Xiao,What has your therapist said about these reactions?What are you doing when you are addressing core tendon guard?  Are you doing the four corners of the core (near shoulders and hips)?  If so, this is part of the neurostructural technique and you need to use a certain touch.  If you are using a more digging technique and your fingers are too vertical, you could be using to " pointed " a touch and you need to make your fingers more flat.  You could be soliciting a more protective response in your child and therefore causing the withdrawal.  I did this also when I first started and before learning the technique better.  You can ask your therapist to review these again with you with the therapist hand over your hand so you can get a better feel for it.

Also, how often are you doing all of these exercises?  Are they all on the same day at the same time?  Sometimes doing too many too often can be overstimulating and overwhelming to the body.I would highly recommend a reflex class if you can make it and if not, then you can purchase the manual separately online.  This will make it easier for your therapist to communicate with you on your home program and for us to answer your questions here also.  The Extension-contraction of sides I am guessing could be the spinal galant reflex, but I can't be sure so it would be easier to help you if we're able to communicate with a common reference.  The manual will also give you step by step instructions on the reflexes.  If you can, I'd recommend purchasing the Integration of Dynamic and Postural Reflexes.  The next class in the Bay Area is scheduled Feb. 18-21 and will be taught by Svetlana herself on Reflex Integration and Learning Skills.  This class will also cover many of the Dynamic and Postural reflexes.

Also, if I remember correctly, I think you live in the South Bay.  Scholer, an OT in San organizes monthly support group meetings.  You can contact her and get some additional support at the meetings.  It's a great way to network and get some additional hands-on practice in refining your techniques when you're working on your child.

HTH,ValOn Tue, Dec 15, 2009 at 10:32 PM, xiao xu <xh16882003@...> wrote:

 

Dear friends,

 

I'm brand new to Masgutova Method and just started the first therapy sessions ten days ago. My therapist did assessment for my son first, and then did massage for him. She finally showed me the following exercises and asked me to practice them for the week.

 

1. Core Tendon Guard

2. Foot Tendon Guard

3. Embracing Squeezing.

4. Sensory Stimulation for Babinski; Sensory-Motor Stimulation for Babinski; Feet Rotation --According to pattern

5. Integrating Exercises--Extension-contraction of the body sides.

 

Next day, my son's OT mentioned that he was very withdraws, more hyperactive and unable to engage. Two days later when I started practice, his teacher told me that he laughed a lot without reasons. This reaction still continues this week. However, he is not too distractive likes last week.

 

Did your kids have the similar reactions when started? I wondered if I did incorrect position when I stroked.

 

Please share your experience and any suggestions will be appreciated!

 

Xiao

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  • 1 year later...
Guest guest

That is a very small dose. Are you taking the companion nutrients? Make sure you also include unrefined Celtic Sea Salt. Salt loading should help. You can find how to do that if you go to FILE then New Members Doc. Also make sure you are drinking plenty of pure water daily..(at least half your body weight in ounces). Kathleen

reaction

I am taking one drop of lugols 5% iodine which is 6.25mgs. I feel cold and tired after I take it and I dislike the taste. Is it possible to get too much? Is this just die off stuff? joyce

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