EBV

[Guest guest]

ann, Steve and Gail,

I got this information from a friend with a BETTER medical background than mine,

regarding ann's posted EBV test results, this is an interpretation

based on " Infectious Diseases " , by Shulman, Phair, , and Warren.

Reference book in

" hard copy "

ann's results were:

VCA IgM 33 high

Ea IgG negative

VCA IgG 115 high Au

EBV NA ABS 143 high

Interpretation:

VCA IgM is transient. Separately, this can indicate an initial infection. But

this assay commonly

yields a false positive.

EA IgG reflects initial infection. But will disappear after generally 6

months.

VCA IgG persists for life following either initial acute Epstein Barr or

exposure to it.

EBV NA ABS indicates reactivation. Indicated by > than 100

Moderate titers of both VCA and EBV NA are characteristic of past disease.

Conclusion:

VCA IgG indicates past exposure to Epstein Barr or prior acute active Epstein

Barr.

A low positive VCA IgM and a negative EA IgG, implies this is not an initial

acute infection.

EBV NA indicates reactivation. However a value that yields 143 is considered

moderate.

Moderate titers of both VCA and EBV NA are characteristic of past disease. High

titers of > 200 in

EBV NA with or without abnormal high titers yield in VCA IgM would indicate

reactivation

of disease.

This indicates past exposure, and most likely past disease. Reactivation is low

borderline, but

would continue to monitor for possibilities of full reactivation.

(test yield results may slightly vary in laboratory calibration)

Marcia

[Guest guest]

yes i have a gland in my neck that swells up like a golf ball when i have

active EBV which i have had 3 times since the onset of my CFS..

[Guest guest]

> Let me ask you this, and anyone else who has tested positive

> for active EBV.

> Do you have to have swollen neck areas (lymph nodes?) just as

> if you had mono

> for you to also have EBV or can you have EBV active with

> nothing but fatigue

> as a consequence?

>

>

I occasionally get swollen lymph nodes in my armpits. Had YEARS of swollen

glands in throat, but hadn't for close to 4-5 years before tested positive

for EBV. Have crushing fatigue, but so do a ot of people I know who have

only Lyme, Sometimes I feel like that Chicken and egg joke, but where there

are 2 eggs....

tansy

[Guest guest]

Hi -

I'm not sure if you have to have swollen nodes with

active EBV, but mine are swollen when it is active.

The Valtrex seemed to help this - I was on it for

about two months.

Jennie

Message: 22

Date: Sun, 20 May 2001 21:28:14 EDT

From: jseaton357@...

Subject: EBV

In a message dated 5/20/01 3:23:47 PM Eastern Daylight

Time,

jfloyd123@... writes:

> I had an active EBV which we treated with

>

Let me ask you this, and anyone else who has tested

positive for active

EBV.

Do you have to have swollen neck areas (lymph nodes?)

just as if you

had mono

for you to also have EBV or can you have EBV active

with nothing but

fatigue

as a consequence?

__________________________________________________

[Guest guest]

>>Let me ask you this, and anyone else who has tested positive for active

>>EBV.

Do you have to have swollen neck areas (lymph nodes?) just as if you had

mono

for you to also have EBV or can you have EBV active with nothing but fatigue

as a consequence?>>

When I had mono, pre-CFS, I had no pain, no swollen lymph nodes that are

usually as much of a complaint as the fatigue. I was just completely

konked...kept buying more alarm clocks (ha!) then realized I really had a

health problem. Tested weak positive for EBV, and a close friend of mine

had just had it too, so it made sense I got it from him.

I told my current doc about that (as I don't have swollen lymph nodes, etc.

*now* either) and he says it's possible that I have an underreactive immune

system, and always have, I guess. Or differently reactive, anyway.

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

I don't know if you have to have swollen glands, but for what it's worth I

did when I had active EBV.

Cindi

jseaton357@...

05/20/01 06:28 PM

Please respond to

cc:

Subject: EBV

In a message dated 5/20/01 3:23:47 PM Eastern Daylight Time,

jfloyd123@... writes:

> I had an active EBV which we treated with

>

Let me ask you this, and anyone else who has tested positive for active

EBV.

Do you have to have swollen neck areas (lymph nodes?) just as if you had

mono

for you to also have EBV or can you have EBV active with nothing but

fatigue

as a consequence?

[Guest guest]

In a message dated 5/31/01 7:35:53 AM Eastern Daylight Time,

rhbailey@... writes:

> Dear a,

>

> You wrote, " Now,obviously I am positive for EBV. But, does that mean it is

> active? "

>

> The three bottom tests you listed were IgG. Don't they indicate past

> infection? Isn't IgM the one that's supposed to indicate current, active

> infection?

>

> I don't understand all of this--how it's done. I especially don't understand

> the first line you listed-- " IMMUNOFIXATON : Diffuse, polyclonal reactions to

> all antisera: IgG, IgA, IgM, Kappa and Lambda. " Does that mean they did an

> IgM and just didn't list it?

>

> I hope someone can explain.

>

> Sue B.

> upstate New York

>

>

>

Thank you, Sue , for your reply. I am very confused about this test result

myself. My doctor said that he had never seen such high levels for EBV and he

said that the first test i listed showed that my body is mounting a huge

attack on something.

``KRISTINA``

So little trouble do men take in search for the truth;so readily do they

accept whatever comes first to hand. 

Thucydides 

[Guest guest]

Doris, thanks for the gamma globulin idea for EBV.

Has anyone had success with transfer factor for EBV, and if so which products?

Thanks,

[Guest guest]

,

I'm so sorry to hear about your situation. I know you are going

through a tough time and I wish you the best.

I'll add that I was given gamma globulin shots when I was a kid. I

think that is how I managed to go so long without major problems (I'm

42 now). I don't think it's a common treatment these days, but it

might help.

Good Health,

Cheryl

--- KCCOTNER@... wrote:

> Doris, thanks for the gamma globulin idea for EBV.

> Has anyone had success with transfer factor for EBV, and if so

> which products?

> Thanks,

>

__________________________________________________

[Guest guest]

<<< Has anyone had success with transfer factor for EBV, and if so which

products? Thanks, >>>

hi wendy! yes, the formula 560 (for hhv6) and 540 (for EBV).

my daughter is taking the 560. i'm on an antiviral that just came out

in june - Valcyte. i was on just one a day of 560 when i started

valcyte. had almost immediate improvement - i suspect the valcyte is

hitting the EBV. i plan to try another new one that's due out this

year - hmmm, starts with a " T " - may hit both EBV and HHV6.

~~~~~~~~~~~~~~~~~~~~~~~~~

" Would they have found nothing, unless nothing was what they wanted to

find? " - Agent Dales, X-Files

@}{~{<<~~~~~~~~~~~~~~~~~~~~

@}{~{<<~~~~~~~~~~~~~~~~~~~~

debbie s. - dlsherman@...

[Guest guest]

hi

EBV when becomes chronic and reactivates resolves by itself but it takes a

lot of time....

I am in the same situation

I am bedridden and totally exhausted, like the first time I got the

mononucleosis.

This reactivation was due to intake of antibiotics AND STRESS.

Is it the first time you have the EBV?

I have it since 25 years and have had several hard reactivations

would also appreciate some ideas about nutrition, supplements.

I think Andy in this e.group has also EBV and had the chance to see agood

immunologist, some suggestions?

thank you

Elena

Re: EBV

>

> ,

>

> I'm so sorry to hear about your situation. I know you are going

> through a tough time and I wish you the best.

>

> I'll add that I was given gamma globulin shots when I was a kid. I

> think that is how I managed to go so long without major problems (I'm

> 42 now). I don't think it's a common treatment these days, but it

> might help.

>

> Good Health,

> Cheryl

>

> --- KCCOTNER@... wrote:

> > Doris, thanks for the gamma globulin idea for EBV.

> > Has anyone had success with transfer factor for EBV, and if so

> > which products?

> > Thanks,

> >

>

>

> __________________________________________________

>

[Guest guest]

Jennie,

Are any of those anti-virals better than the other? Do you feel as longf as

you cycle them, you don't run into the problem of being on one the whole

time? (i.e. the anti-virals work differently enough that the alternating

doesn't builsd up an immunity)

Jim

[Guest guest]

Hello -

I take antivirals for my EBV and HHV6. I alternate

Valtrex, Acyclovir, and Isoprinosine,one month on

each, and I only take them Mon-Fri with the weekends

off. I also take Moducare regularly for immune system

balancing. When I get swollen glands I take raw

Thymus extract until they feel better. All this seems

to help - I definitely am able to function longer than

before the antivirals.

Good luck - Jennie

--- wrote:

>

> Message: 1

> Date: Wed, 28 Nov 2001 21:36:23 -0300

> From: " dominique " <solisima@...>

> Subject: RE: Re: EBV

>

> hi

> EBV when becomes chronic and reactivates resolves by

> itself but it takes a

> lot of time....

>

> I am in the same situation

>

> I am bedridden and totally exhausted, like the first

> time I got the

> mononucleosis.

>

> This reactivation was due to intake of antibiotics

> AND STRESS.

> Is it the first time you have the EBV?

> I have it since 25 years and have had several hard

> reactivations

>

> would also appreciate some ideas about nutrition,

> supplements.

> I think Andy in this e.group has also EBV and had

> the chance to see agood

> immunologist, some suggestions?

> thank you

> Elena

>

>

>

>

__________________________________________________

[Guest guest]

Jim -

It seems to me that Valtrex has worked the best for

me. I don't notice that they stop working - I still

herx a little each time I change types, so I think

they are doing slightly different things. I do think

the Moducare has been the most beneficial for me. I

recently stopped taking for a month (on the advice of

my physician), and within a week old symptoms returned

- I think I'm going to take it all the time as my

system really seems to need it.

Hope this helps - Jennie

Message: 6

Date: Thu, 29 Nov 2001 16:22:38 EST

From: jschm111@...

Subject: Re: EBV

Jennie,

Are any of those anti-virals better than the other?

Do you feel as

longf as

you cycle them, you don't run into the problem of

being on one the

whole

time? (i.e. the anti-virals work differently enough

that the

alternating

doesn't builsd up an immunity)

Jim

__________________________________________________

[Guest guest]

Valtrex is the only thing that has really helped my

EBV, and I've tried transfer factor, kutapressin, and

several other anti-virals. But that's me - maybe

tranfer factors will help you.

Best, Jennie

--- wrote:

> Date: Tue, 26 Feb 2002 04:17:50 EST

> From: ShyGuyHi@...

> Subject: Transfer Factors 540 for EBV

>

> I recently tested positive for Epstein-Barr Virus

> when getting a PCR test. I

> was wondering if anyone knows or has any info on

> Transfer Factors 540, and

> it's success in treating EBV? I am currently using

> Kutapressin at 2cc

> everyday which is seeming to help a little bit. I

> still looking for the best

> way to treat this EBV, which I think could be the or

> one of the underlining

> problems which is causing my CFS. Are these

> Transfer Factors for real? What

> does Dr. Cheney think of them? Any suggestions or

> info on EBV would be much

> appreciated.

>

> Thanks,

>

>

>

>

________________________________________________________________________

>

________________________________________________________________________

>

>

>

>

[Guest guest]

Jennie,

You may be interested to note that Valtrex, also known as

Valciclovir, is a better way of delivering the antiviral drug Aciclovir, at

least through using the oral method. This means Valtrex tablets given orally

can achieve blood concentrations of Aciclovir that can only be achieved

using intravenous Aciclovir. As a result, Valtrex tablets, dose for dose,

are more effective than Aciclovir tablets.

The listed applications for both Aciclovir and Valtrex include,

Varicella-Zoster (Chicken Pox and Shingles), Herpes Simplex infections of

the skin and mucous membranes; it is also used topically in the eye and to

treat Cold Sores.

It is also used for treating genital Herpes including initial and recurrent

cases.

Generally, it is well tolerated by immunocompetent adults, but

some care needs to be taken with those who have impaired renal function.

Regards,

Andy

Transfer Factors 540 for EBV

> >

> > I recently tested positive for Epstein-Barr Virus

> > when getting a PCR test. I

> > was wondering if anyone knows or has any info on

> > Transfer Factors 540, and

> > it's success in treating EBV? I am currently using

> > Kutapressin at 2cc

> > everyday which is seeming to help a little bit. I

> > still looking for the best

> > way to treat this EBV, which I think could be the or

> > one of the underlining

> > problems which is causing my CFS. Are these

> > Transfer Factors for real? What

> > does Dr. Cheney think of them? Any suggestions or

> > info on EBV would be much

> > appreciated.

> >

> > Thanks,

> >

> >

> >

> >

> ________________________________________________________________________

> >

> ________________________________________________________________________

> >

> >

> >

> >

[Guest guest]

Just checking in briefly again Drew. Yes EBV is quite common, and the

Dowsers have assumed radiation could switch it on by attacking the

white blood cells where it lives. EBV is well established in Britain,

but less so in US, while US has good knowledge of mycoplasma and the

same effect.

By the way, I posted about ultra high monitor resolution possibly

being helpful, and Prio glasses. I have obtained such glasses

and

am making some progress with an ultra high res monitor. Shall inform

if successful.

People may remember my previous post saying electrosensitivity may be

a form of motion sickness hypothetically.

/message/2315

After writing that I discovered this is the main opinion in Europe.

Prof Johannson has written it, and the leading body taking over from

the Report has said the same thing. Electrosensitivity, for

whatever reason, does resemble motion sickness.

We will not know for a while why. But consider the following. If you

live 100m from a mobile phone tower, many people essentially get

motion sickness according to the symptoms listed in 3 studies now of

health under mobile phone towers: Santini, one Spanish I think and a

new Polish this year. Whatever the reasons, it does seem that we are

looking at a firm pattern. Maybe EMR sets off your directional north/

south sense giving motion disorientation? There are many other

possibilities. I guess we just need to avoid the stuff.

EBV treatment is notoriously difficult. Trigger avoidance, posisbly

via shielding. I know triggers are now almost not avoidable if that

sounds stupid, but maybe with advertisement of these research results

that will change. By the way, with these new Prio lenses to stop VDU

effects I have written an excessive number of emails with no loss of

concentration. Its too early to make any claims however. I believe

time may fall in our favor on this issue.

Good luck

rowster

> Good luck with the treatment Drew. There`s quite a lot of material

around on how, if you get EBV, it can then cause ME/CFS and trigger

allergies, chemical sensitivity, electrosensitivity / EMF problems

etc. I don`t however think I`ve seen anything suggesting it could

happen the other way round though (EMF causing EBV).

[Guest guest]

Can you find someone to test you for lyme disease, via Igenex labs? It

sure sounds like a strong possibility, and RNA can be elevated in

lyme. THe knee problems are classic too.

>

> When I first finally went to the doctor (Aug. 2003) complaining of

the severe fatigue (I also had legs and arms pain, muscle twitching,

night sweats, insomnia, low-grade fever, very mild sore throat..) she

right away sent me in for bloodwork specially a mono-spot. I tested

positive for mononuceosis. She was actually surprised that I wasn't in

bed with a higher fever, a painful sore throat etc.etc.. She guessed

my immune system must've been fighting it real well. Nevertheless, she

then ordered the EBV test to which I tested positive with an

indication of a recent exposure or " infection " (6 months back or

less). Since then I've been seen by a neurologist (nothing came out of

that but a second opinion of CFS) then an infectious disease spec.

(tried anti-viral...) nothing. I went to see a rheumatologist because

I developed bad knee pain..He sent for some blood-work ehich came back

with an abnormal high rheumatoid factor but i was not presenting

otherwise the clinical picture of

> rheumatoid arthritis. He did hand me a pamphlet on Fibromyalgia. To

this day I don't know why my RF is high. Are there any other CFS

sufferers out there with a high rheumatoid factor?

> My symptoms wax and wane but in general I seem to be getting worse

with time. I had to quit my job and am recently waiting to see if I

can get LT disabilityfrom my co.'s insurance. I am 33!! I take a

plethora of supplements like most everyone on this group 2

antidepressants and klonopin. I also have asthma so I have meds for

that as well. Insomnia is at its worst right now. I need to take

something very strong and theb I cannot get up in the am. (mind u I

have a 3 year old and my husband is away during the week).

> i also had a positive tilt table test but theheart doc insists on

treating it with just increasing salt and h2o intake. i have passed

out only a couple of times..with one scary one inthe shower.

> How do I defeat EBV virus?

> Lourdes

>

>

> ---------------------------------

> Relax. virus scanning helps detect nasty viruses!

>

>

[Guest guest]

> In , " Lourdes J. Quevedo " wrote:

>>

>> When I first finally went to the doctor (Aug. 2003) complaining of

> the severe fatigue (I also had legs and arms pain, muscle twitching,

> night sweats, insomnia, low-grade fever, very mild sore throat..) she

> right away sent me in for bloodwork specially a mono-spot. I tested

> positive for mononuceosis. She was actually surprised that I wasn't in

> bed with a higher fever, a painful sore throat etc.etc.. She guessed

> my immune system must've been fighting it real well. Nevertheless, she

> then ordered the EBV test to which I tested positive with an

> indication of a recent exposure or " infection " (6 months back or

> less).....How do I defeat EBV virus?

>

My son got mono about six weeks ago. Frantic, I put a post up here.

Rich fired back a quick recommendation for a handful of supplements

that seem to have pulled the rug right out from under the virus. He

was literally 50% better in 12 hours flat. It was amazing.

Here's what my son is taking:

1. L-Lysine (IIRC, about 1 mg/day)

2. N-Acetyl-L-Cysteine (about 2 mg/day)

3. B6

4. Magnesium

He's also been avoiding high-argenine foods like nuts and chocolate,

though we've lifted that a little in the last week.

I'm sure Rich will have more to add, but if you're looking to calm

down an EBV outbreak, this has worked well for us.

Sara

[Guest guest]

Hi, Lourdes.

I agree with Jill. I don't know where you live or whether you have

had exposure to ticks or other biting insects, but pain in a joint

on one side of the body, associated with the other symptoms you

mentioned, especially the neurological ones, is a strong indicator

for Lyme disease. The Epstein-Barr virus reactivation may be

secondary to Lyme disease. Most of us have latent Epstein-Barr

virus in our B lymphocytes from infection earlier in our lives, and

it reactivates when the glutathione level goes low enough in these

cells to allow disulfide bonds to form in the glycoprotein-B

molecules of the virus. There is evidence that Lyme disease lowers

the glutathione level. Make sure that you get a good test, such as

the Igenex Western Blot test, not one from a conventional lab that

just follows CDC guidelines and misses many cases of Lyme disease.

If you do have long-term Lyme disease, it's a tough one to defeat,

but at least you would know what you are fighting and could focus

the treatment better.

Rich

> >

> > When I first finally went to the doctor (Aug. 2003) complaining

of

> the severe fatigue (I also had legs and arms pain, muscle

twitching,

> night sweats, insomnia, low-grade fever, very mild sore throat..)

she

> right away sent me in for bloodwork specially a mono-spot. I tested

> positive for mononuceosis. She was actually surprised that I

wasn't in

> bed with a higher fever, a painful sore throat etc.etc.. She

guessed

> my immune system must've been fighting it real well. Nevertheless,

she

> then ordered the EBV test to which I tested positive with an

> indication of a recent exposure or " infection " (6 months back or

> less). Since then I've been seen by a neurologist (nothing came

out of

> that but a second opinion of CFS) then an infectious disease spec.

> (tried anti-viral...) nothing. I went to see a rheumatologist

because

> I developed bad knee pain..He sent for some blood-work ehich came

back

> with an abnormal high rheumatoid factor but i was not presenting

> otherwise the clinical picture of

> > rheumatoid arthritis. He did hand me a pamphlet on

Fibromyalgia. To

> this day I don't know why my RF is high. Are there any other CFS

> sufferers out there with a high rheumatoid factor?

> > My symptoms wax and wane but in general I seem to be getting

worse

> with time. I had to quit my job and am recently waiting to see if I

> can get LT disabilityfrom my co.'s insurance. I am 33!! I take a

> plethora of supplements like most everyone on this group 2

> antidepressants and klonopin. I also have asthma so I have meds for

> that as well. Insomnia is at its worst right now. I need to take

> something very strong and theb I cannot get up in the am. (mind u I

> have a 3 year old and my husband is away during the week).

> > i also had a positive tilt table test but theheart doc insists

on

> treating it with just increasing salt and h2o intake. i have passed

> out only a couple of times..with one scary one inthe shower.

> > How do I defeat EBV virus?

> > Lourdes

> >

> >

> > ---------------------------------

> > Relax. virus scanning helps detect nasty viruses!

> >

> >

[Guest guest]

Hi, Sara.

I think you must mean grams instead of milligrams on the lysine and

the NAC dosages, right? I'm really glad that your son bounced back

so fast.

In Lourdes's case, I think it's more likely that she has Lyme

disease with a reactivation of EBV, because she's 33 and has the

knee symptom. But if it is just EBV, then I think these treatments

would help her, too.

Rich

> >>

> >> When I first finally went to the doctor (Aug. 2003) complaining

of

> > the severe fatigue (I also had legs and arms pain, muscle

twitching,

> > night sweats, insomnia, low-grade fever, very mild sore

throat..) she

> > right away sent me in for bloodwork specially a mono-spot. I

tested

> > positive for mononuceosis. She was actually surprised that I

wasn't in

> > bed with a higher fever, a painful sore throat etc.etc.. She

guessed

> > my immune system must've been fighting it real well.

Nevertheless, she

> > then ordered the EBV test to which I tested positive with an

> > indication of a recent exposure or " infection " (6 months back or

> > less).....How do I defeat EBV virus?

> >

>

> My son got mono about six weeks ago. Frantic, I put a post up

here.

> Rich fired back a quick recommendation for a handful of

supplements

> that seem to have pulled the rug right out from under the virus.

He

> was literally 50% better in 12 hours flat. It was amazing.

>

> Here's what my son is taking:

>

> 1. L-Lysine (IIRC, about 1 mg/day)

> 2. N-Acetyl-L-Cysteine (about 2 mg/day)

> 3. B6

> 4. Magnesium

>

> He's also been avoiding high-argenine foods like nuts and

chocolate,

> though we've lifted that a little in the last week.

>

> I'm sure Rich will have more to add, but if you're looking to

calm

> down an EBV outbreak, this has worked well for us.

>

> Sara

>

[Guest guest]

On Mar 3, 2006, at 8:22 PM, rvankonynen wrote:

> Hi, Sara.

>

> I think you must mean grams instead of milligrams on the lysine and

> the NAC dosages, right? I'm really glad that your son bounced back

> so fast.

Uh. yeah. Geez, I'm having a brain-dead week. Turned in a report in

my systems engineering class that used " millions " instead of

" billions " all the way through. Just a rounding error? Hardly.

ly, I'm still a little weak and scattered after my adventure

with SAMe. It's been eight days, and I'm only about 80% back. And I

need that last 20% -- am starting to fall a bit behind in my school

work. Still can't suck down B12/glutathione shots fast enough -- I'm

doing them every 3-4 days, and am getting a slow rise out of them,

but at this rate, it could take months to get back where I was.

Not quite sure what to do next...

Sara

[Guest guest]

>

> > Hi, Sara.

> >

> > I think you must mean grams instead of milligrams on the lysine and

> > the NAC dosages, right? I'm really glad that your son bounced back

> > so fast.

>

> Uh. yeah. Geez, I'm having a brain-dead week. Turned in a report in

> my systems engineering class that used " millions " instead of

> " billions " all the way through. Just a rounding error? Hardly.

>

> ly, I'm still a little weak and scattered after my adventure

> with SAMe. It's been eight days, and I'm only about 80% back. And I

> need that last 20% -- am starting to fall a bit behind in my school

> work. Still can't suck down B12/glutathione shots fast enough -- I'm

> doing them every 3-4 days, and am getting a slow rise out of them,

> but at this rate, it could take months to get back where I was.

>

> Not quite sure what to do next...

>

> Sara

>

[Guest guest]

welcome to the group. i am sure that someone here has lots of info for you. this is a very resourceful group. hope t hear from you again soon. evelynjrabstg <jrabstg@...> wrote: My name is jrab and I need help. I have Epstine Barr Virus and I am a single Mother of two. I need support, I need understanding. My health is getting worse and worse and I don't know what to do any more. I live in a rural area where there are not a lot of resources. There is not even a

yoga studio for 40mi. I know EBV can lead to cancer and that is one of my greatest fears but I want to do as much as I can to prevent getting to that point or is it unavoidable? Any suggestions are welcome. I don't always check my e-mail everyday but I do at least once a week.

Get your email and see which of your friends are online - Right on the new .com

[Guest guest]

according to my understanding with the vit c up to bowl protocol you can

eradicte it,google it and there is enough info

>

> Can it be eradicated, or is it always dormant, waiting to surface?

>

>

>