Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 Marilyn, One more thing, I am also really trying hard to make sure that eats right. Grace foxhillers@... wrote: In a message dated 11/5/2004 4:45:42 AM Eastern Standard Time, writes: Date: Thu, 4 Nov 2004 10:56:29 -0800 (PST) From: Grace <foxyfoxgrace@...> Subject: Re: inositol Elise, How long has Josiah been off of the Depakote. I heard that most AEDs take anywhere from 4 to 6 weeks sometimes longer to be totally out of your system. If and when we finally decide to take off of all her meds, weI plan to give about 2 months to be sure that it's not the meds or withdrawl seizures. After two months, if she's still having seizures then we'll decide on where to go from there. Either way it's not easy! Grace .. .. >>> Grace In 1985 we began to wean Charlie off of dilantin and phenobarbital. It took over six months to do that. It was without any incidence of seizure. Very slow is the wy to go to avoid withdrawl seizures. And, don't forget extra nutritional support during that period . mjh http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 MJH, What is a good amount of Cal/Mag to give ? I have done alot of research and keep getting different doses. She's 5'1 and 134 lbs. Keep in mind that I can only give her these twice a day as she's at school all day and gets home at 4 pm. Thanks for your help! Grace foxhillers@... wrote: In a message dated 11/8/2004 7:36:22 AM Eastern Standard Time, writes: Message: 17 Date: Mon, 08 Nov 2004 07:01:42 -0000 From: " amkurious " <amkurious@...> Subject: Question for Lori Hi Lori M. In reading your post to Arnold you said " I know it is also important to avoid constipation at any cost to prevent seizures " . That's the first time I've heard the association...did a doctor actually tell you that??? It's been an issue for my child...hmm. I just posted for the first time tonight to thank everyone for all the valuable info. (*along with my daughter's history) I learn something almost everyday. I'll be curious to hear Arnold's answer about the Piracetum because my daughter has CP too...I think it's considered a drug. (The fact that it's no longer available here makes me think that it must have actually helped that's why it's no longer available!) Can I ask what are you giving your child on a daily basis? Thanks Lori Sophie .. .. >>>>> Both seizures and constipation can be caused by a LACK of Magnesium OR an imbalance between Calcium and Magnesium. mjh http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 Have you read the books I have suggested to you over the past year? THese can be very valuable to you as you make that transition. mjh My house is starting to look like a bookstore, but I get so confused because one book will suggest certain supplements and another will suggest others and they each suggest different doses so I worry about whether I'm giving her too much or not enough. I'm getting to a point where I am getting broke just buying these supplements. has been so good in taking supplements without fuss, but after awhile she'll probably tell me " enough " because I'm adding new ones all the time and pretty soon I will own Vitamin world. Grace Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2004 Report Share Posted November 10, 2004 MJH, My endo doc does not prescribe Armour thyroid and I called a couple of others and they also do not. They'll prescribe another synthetic med but not Armour thyroid because as they said, they don't know what's in it. I want her off of the Synthroid, but I don't know what else I can do. I will check that site but just the coconut virgin oil is not going to do it, is it? Grace foxhillers@... wrote: In a message dated 11/9/2004 3:36:08 PM Eastern Standard Time, writes: Date: Tue, 9 Nov 2004 10:46:55 -0800 (PST) From: Grace <foxyfoxgrace@...> Subject: Re: Constipation and Health Carla, My daughter, has hypothyroidsm like you and she's currently on Synthroid. She also started having seizures two weeks before her 12th birthday and after she was put on shythroid. I asked her endo doc if he thought that synthroid might be the cause for her seizures since one of the side effects of synthroid is seizures and he said absolutely not. You said that armour thyroid is all natural, where do I get it from. Do you feel that the armour thyroid is what helped you with your seizures. You said that when you got on the right thyroid meds, were you ever on the synthroid? I want to switch her to the armour thyroid, anyone else on it? Is it common for a person with thyroid problems to also have seizures, do you know??? Thanks for the help! Grace .. .. >>> Grace Armour thyroid is a prescription medicine I have been taking for ten years. O do not have seizures. I would not consider taking Synthroid. ANother option for dealing with hypothyroidism is by including viring coconut in the diet (and, it is also a healthy brain fat.) Read about the thyroid effect at www.tropicaltraditions.com mjh http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 NO, it is NOT the right ratio. The ratio is 2 Calcium to 1 Magnesium up to 1 Calcium to 1 Magnesium. If there is a Mg imbalance to begin with, additional Mg may be needed short term to bring the Ca and Mg into balance. MJH, Explain what this means by telling me what amounts I should be giving her. I don't understand this ratio thing when it comes to calcium and magnesium. Thanks! Grace Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2004 Report Share Posted December 2, 2004 MJH, ususally complains of headaches and this is why I gave her Ibuprophen. The reason I believe it is the pain med is because after I give it to her, about 1/2 to 1 hour later she'll have the first one then again at about an hour and this will go on for about 4 to 5 hours which is approx. the time it takes for it to come out of her system. Once this started, I began giving her water hoping to flush it out faster. This doesn't happen when I don't give her pain meds after she's had grand mals. I spoke to 's neuro yesterday and explained that I wanted to try off the meds to see if she is better or worse off and after I told him about the side effects she's had, he agreed that does not do well with AEDs. So, I will be taking her to see a nutritionist to hopefully put her on a good diet, maybe the Atkins diet, and as far as supplements, he didn't seem to be at all into them. He said that all you need is to eat well. When I asked him about cal/mag, he told me that I should be giving her very little of those as she gets them from her foods and they could be dangerous. He's an old doc who believes in home remedies but not much in supplements as he feels it is a multi-billion dollar business and they don't care if it is the right thing for you or not and you have to take them at your own risk. I told him that somehow I felt more comfortable with supplements than these FDA approved drugs that we're finding out are not safe at all and are hurting people more than helping, if not killing them. I got the book from Dr. Atkins about supplements and I also got the one " Prescription for healing " and I was afraid to mention that to him as he would say that those are way to high for her, so I'm back to wondering what's right anymore. We will begin weaning her off of her meds tonight and I will be taking my time. He wanted to do it a little faster than I am. Funny, how when he put her on it, he wanted to increase it faster and I wouldn't, but now he want's to decrease it faster and I don't. Change scares me a little and this is why I'd rather take my time. Wish me luck! Grace foxhillers@... wrote: In a message dated 12/1/04 1:00:00 PM Eastern Standard Time, writes: > Date: Tue, 30 Nov 2004 08:18:36 -0800 (PST) > From: Grace <foxyfoxgrace@...> > Subject: Re: Re: Seizures due to pain meds > > > > I've noticed that after has had a grand mal seizures that if I give > her pain med like Tylenol or Ibuprophen for headaches that she has more > seizures after taking the med. If I don't give her anything then the seizures > stop, but everytime I've given her pain meds she will have anywhere from three > to many partial seizures after that. Has anyone noticed this with their > children? I've gotten to the point that I'm afraid to give her anything for > pain, but I also know that she has to have some kind of relief when she's in > pain, what do I do? I believe that this only happens after she's had grand mals > as I've given the pain meds before not realizing this and she was fine with > it. Your help or advice will be greatly appreciated. > > Grace > .. .. >>>This can and does happen with prescribed pain meds too, an increase in seizure activity. What kind of pain does she have and what other pain relief methods have you tried? After Charlie's seizures and as soon as he can swallow, I give him Magnesium and B6 as these are eaten up by the seizure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2004 Report Share Posted December 13, 2004 MJH, You are talking to a mom who truly agrees with you! Grace >>> Sophie Is a getting enough Magnesium and B6 (plus B complex)? Even females without seizures report relief of PMS and other menstrual symptoms with adequate levels of those water soluble nutrients. I understand also that over the counter pain relievers and prescription pain drugs can also trigger seizure activity... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2004 Report Share Posted December 28, 2004 MJH, Thanks for the help! We seem to be doing OK with all of your suggestions except she likes bagels and I bough her the multi-grain kind because it's high in fiber and is doing a pretty good job keeping her regular. Also, we just found out that we needed to increase her thyroid medication a little so maybe now, we'll see some of that weight come off. She's eating the same foods she was before, but lately is when she started gaining weight so I'm assuming that it was her thyroid that was not working properly. I even added more vegetables to her diet and grated flaxseed. Thanks again for all your help and I hope that Charlie is doing well! Grace foxhillers@... wrote: In a message dated 12/27/04 6:28:03 PM Eastern Standard Time, writes: > Message: 19 > Date: Mon, 27 Dec 2004 11:40:16 -0800 (PST) > From: Grace <foxyfoxgrace@...> > Subject: Re: Arnold > > Arnold, > > Do you know of a good nutrition book that might have good recipes that will > better help me increase her B complex. I will be seeing a nutritionist in > February and was thinking about asking her to put on a modified Atkins > diet. She also has hypothyroidsm and has gained a bit of weight so this > might help her too. I have been working on her nutrition, but I think we need > some help to do better. > > Grace > .. .. >>> Grace Charlie is on Depakote and gained over 50 pounds. Lost most of it in two years..... high lean protein, high healthy brain fats, low grains, low salt, no processed or prepared foods, no caffeine. He also was hypothyroid. mjh Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.