Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Grace, Sorry to hear about the seizure, I know how dissapointed you must be. God bless, Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Grace, What dosage of Zonegran is on and how much does she weigh? In health, Mark Schauss www.southwoodresearch.org [ ] Success Shortlived Hello Everyone, After three weeks on Zonegran, was sitting at the dinner table eating her lunch today and said mommy I'm having a seizure. I believe she had a partial. We like this med because she seems to sleep much better on it than the Trileptal and she seems a little more alert. The downside to it is that I started noticing that her OCD (obsessive compulsive disorder) is coming back like she used to have before any meds, also her runny nose seems to be slowly going away but now she's been having a cough like she's trying to clear her throat, she also seems to be going into thinking mode more often specially if she has something on her mind which is quite often because of her OCD, I know this is thinking mode because she snaps right out of it when I call her name, besides, she knows when a seizure is coming and lets me know. I'm sort of afraid to tell the neuro this because he may want to raise her med which could make the symptoms worse and after trileptal I'm afraid of raising it period. My question is, if all she has is an occasional partial is that so bad? Anybody else on meds and still living with partials, please let me know? Any comments or advice would be greatly appreciated. God bless! Grace On Tue, 23 Mar 2004 12:08:53 EST canthang4nutn@... writes: > << but I mostly wanted to share the info because I know that some > parents > have also noticed their children have jerks so I thought that maybe > theirs is > also due to their meds. Take care! >> > > Hi Grace, yes, that's a great idea! You never know if it will help > just one > child out there! Good luck, pray the success continues! > Love > Barbara > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Mark, Mcihelle weighs 121 lbs and is on 25mg twice a day. Grace On Wed, 24 Mar 2004 15:27:55 -0800 " Mark Schauss " <schauss@...> writes: Grace, What dosage of Zonegran is on and how much does she weigh? In health, Mark Schauss www.southwoodresearch.org [ ] Success Shortlived Hello Everyone, After three weeks on Zonegran, was sitting at the dinner table eating her lunch today and said mommy I'm having a seizure. I believe she had a partial. We like this med because she seems to sleep much better on it than the Trileptal and she seems a little more alert. The downside to it is that I started noticing that her OCD (obsessive compulsive disorder) is coming back like she used to have before any meds, also her runny nose seems to be slowly going away but now she's been having a cough like she's trying to clear her throat, she also seems to be going into thinking mode more often specially if she has something on her mind which is quite often because of her OCD, I know this is thinking mode because she snaps right out of it when I call her name, besides, she knows when a seizure is coming and lets me know. I'm sort of afraid to tell the neuro this because he may want to raise her med which could make the symptoms worse and after trileptal I'm afraid of raising it period. My question is, if all she has is an occasional partial is that so bad? Anybody else on meds and still living with partials, please let me know? Any comments or advice would be greatly appreciated. God bless! Grace On Tue, 23 Mar 2004 12:08:53 EST canthang4nutn@... writes: > << but I mostly wanted to share the info because I know that some > parents > have also noticed their children have jerks so I thought that maybe > theirs is > also due to their meds. Take care! >> > > Hi Grace, yes, that's a great idea! You never know if it will help > just one > child out there! Good luck, pray the success continues! > Love > Barbara > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 Grace, Since I'm not an MD what I say here is not medical advise (got to say this to avoid legal probs) but that is a very low dose of Zonegran. Tasya, who is 60 pounds is on 200 mg a day and has never had a problem with it. I would ask your neuro about the dosing. Mark [ ] Success Shortlived Hello Everyone, After three weeks on Zonegran, was sitting at the dinner table eating her lunch today and said mommy I'm having a seizure. I believe she had a partial. We like this med because she seems to sleep much better on it than the Trileptal and she seems a little more alert. The downside to it is that I started noticing that her OCD (obsessive compulsive disorder) is coming back like she used to have before any meds, also her runny nose seems to be slowly going away but now she's been having a cough like she's trying to clear her throat, she also seems to be going into thinking mode more often specially if she has something on her mind which is quite often because of her OCD, I know this is thinking mode because she snaps right out of it when I call her name, besides, she knows when a seizure is coming and lets me know. I'm sort of afraid to tell the neuro this because he may want to raise her med which could make the symptoms worse and after trileptal I'm afraid of raising it period. My question is, if all she has is an occasional partial is that so bad? Anybody else on meds and still living with partials, please let me know? Any comments or advice would be greatly appreciated. God bless! Grace On Tue, 23 Mar 2004 12:08:53 EST canthang4nutn@... writes: > << but I mostly wanted to share the info because I know that some > parents have also noticed their children have jerks so I thought that > maybe theirs is > also due to their meds. Take care! >> > > Hi Grace, yes, that's a great idea! You never know if it will help > just one child out there! Good luck, pray the success continues! > Love > Barbara > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 Mark, He started out on a low dose because she's very sensitive to fast increases and while we were at the hospital hooked to a VEEG and he had started her on Zonegran, she showed no seizure activity at all for two days. We're supposed to go see him at the begining of April and it's very likely that he may want to raise it some, we'll see. Thanks Mark for your opinion. Grace On Thu, 25 Mar 2004 08:58:54 -0800 " Mark Schauss " <schauss@...> writes: Grace, Since I'm not an MD what I say here is not medical advise (got to say this to avoid legal probs) but that is a very low dose of Zonegran. Tasya, who is 60 pounds is on 200 mg a day and has never had a problem with it. I would ask your neuro about the dosing. Mark [ ] Success Shortlived Hello Everyone, After three weeks on Zonegran, was sitting at the dinner table eating her lunch today and said mommy I'm having a seizure. I believe she had a partial. We like this med because she seems to sleep much better on it than the Trileptal and she seems a little more alert. The downside to it is that I started noticing that her OCD (obsessive compulsive disorder) is coming back like she used to have before any meds, also her runny nose seems to be slowly going away but now she's been having a cough like she's trying to clear her throat, she also seems to be going into thinking mode more often specially if she has something on her mind which is quite often because of her OCD, I know this is thinking mode because she snaps right out of it when I call her name, besides, she knows when a seizure is coming and lets me know. I'm sort of afraid to tell the neuro this because he may want to raise her med which could make the symptoms worse and after trileptal I'm afraid of raising it period. My question is, if all she has is an occasional partial is that so bad? Anybody else on meds and still living with partials, please let me know? Any comments or advice would be greatly appreciated. God bless! Grace On Tue, 23 Mar 2004 12:08:53 EST canthang4nutn@... writes: > << but I mostly wanted to share the info because I know that some > parents have also noticed their children have jerks so I thought that > maybe theirs is > also due to their meds. Take care! >> > > Hi Grace, yes, that's a great idea! You never know if it will help > just one child out there! Good luck, pray the success continues! > Love > Barbara > > > > Quote Link to comment Share on other sites More sharing options...
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