Guest guest Posted April 9, 2004 Report Share Posted April 9, 2004 ***Attention *** New email address Please update your address book My new email is bhunte@... Re: [ ] -CARNITINE > Hi > has sunflower and canola oils as her fat sources. We tried MCT but > that caused increased seizures. > > I have tried supplementing Carnitine again . . . wondering if that is > contributing to the complete lack of sz control that we have had over the > last 2 months. We did 100mg with breakfast for a week, then added 100mg > with dinner also. so far she seems to be tolerating it. > > She has been med free (finally got rid of the last 5mg of Lamictal - > yippee!!!!!!) for 3 days, and last night was the first in weeks with no > seizures. Hopefully it is not just a one-off as I am so sleep deprived that > it isn't funny at the moment. Dropping the Lamictal and adding the > Carnitine probably balances out as far as calorie needs go so I'll cross > fingers! I'll have to think of what to do to finetune the diet alone now, > and hopefully have something good to report seizure wise when we see the > neuro again in 6 weeks otherwise she will want to add another med (Tiagabine). > > Take care > Jill > > > At 07:29 AM 10/04/2004, you wrote: > > Hi Jill, > > Been meaning to ask you what 's fat source is on the diet - isn't it > >long chain fats only that carnitine deficiency causes a problem with - like > >if MCT oil was used, there might not be the same problems with the fat > >metabolism etc? > > > > > > > > ----- Original Message ----- > > From: " Jill " <jill@...> > > > > > Hi > > > for constipation issues on the diet, you could try adding some Carnitine > >or > > > Taurine. > > > Jill > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2004 Report Share Posted April 9, 2004 Ladies, what is MCT? ***Attention *** New email address Please update your address book My new email is bhunte@... Re: [ ] -CARNITINE > Hi > has sunflower and canola oils as her fat sources. We tried MCT but > that caused increased seizures. > > I have tried supplementing Carnitine again . . . wondering if that is > contributing to the complete lack of sz control that we have had over the > last 2 months. We did 100mg with breakfast for a week, then added 100mg > with dinner also. so far she seems to be tolerating it. > > She has been med free (finally got rid of the last 5mg of Lamictal - > yippee!!!!!!) for 3 days, and last night was the first in weeks with no > seizures. Hopefully it is not just a one-off as I am so sleep deprived that > it isn't funny at the moment. Dropping the Lamictal and adding the > Carnitine probably balances out as far as calorie needs go so I'll cross > fingers! I'll have to think of what to do to finetune the diet alone now, > and hopefully have something good to report seizure wise when we see the > neuro again in 6 weeks otherwise she will want to add another med (Tiagabine). > > Take care > Jill > > > At 07:29 AM 10/04/2004, you wrote: > > Hi Jill, > > Been meaning to ask you what 's fat source is on the diet - isn't it > >long chain fats only that carnitine deficiency causes a problem with - like > >if MCT oil was used, there might not be the same problems with the fat > >metabolism etc? > > > > > > > > ----- Original Message ----- > > From: " Jill " <jill@...> > > > > > Hi > > > for constipation issues on the diet, you could try adding some Carnitine > >or > > > Taurine. > > > Jill > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2004 Report Share Posted April 9, 2004 Hi has sunflower and canola oils as her fat sources. We tried MCT but that caused increased seizures. I have tried supplementing Carnitine again . . . wondering if that is contributing to the complete lack of sz control that we have had over the last 2 months. We did 100mg with breakfast for a week, then added 100mg with dinner also. so far she seems to be tolerating it. She has been med free (finally got rid of the last 5mg of Lamictal - yippee!!!!!!) for 3 days, and last night was the first in weeks with no seizures. Hopefully it is not just a one-off as I am so sleep deprived that it isn't funny at the moment. Dropping the Lamictal and adding the Carnitine probably balances out as far as calorie needs go so I'll cross fingers! I'll have to think of what to do to finetune the diet alone now, and hopefully have something good to report seizure wise when we see the neuro again in 6 weeks otherwise she will want to add another med (Tiagabine). Take care Jill At 07:29 AM 10/04/2004, you wrote: > Hi Jill, > Been meaning to ask you what 's fat source is on the diet - isn't it >long chain fats only that carnitine deficiency causes a problem with - like >if MCT oil was used, there might not be the same problems with the fat >metabolism etc? > > > > ----- Original Message ----- > From: " Jill " <jill@...> > > > Hi > > for constipation issues on the diet, you could try adding some Carnitine >or > > Taurine. > > Jill > > > > > > > Quote Link to comment Share on other sites More sharing options...
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