Guest guest Posted April 19, 2004 Report Share Posted April 19, 2004 I am new here too and this might be a really silly question but what is SCD? What type of diet is that? Is it like the ketogenic diet?? I have been looking at doing an atkins type diet for my son who is having a hard time controlling seizures. Thanks, mindymw <corkyjane@...> wrote: Hello, I'm new here. I saw the SCD thread and wanted to share our experience with you a bit. My daughter is 6 years old. She was diagnosed a year ago with autism, high functioning. At 15 months old, she began to have tonic clonic and absence seizures. She has been on depakene since she was 2 years old that controls them and she hasn't had any breakthrough seizures since she's been medicated. Someone told me about the diet and I blew it off. I thought it looked too hard. (I am not a cooking fan). Also, the docs told me that altering her diet would be traumatic. My kids ate mac n' cheese, pizza, chicken nuggets, and all the other usual " kid food " suspects. I decided to try SCD for the whole family because I thought it couldn't hurt. I didn't care what the doctors said about altering her diet because they never even asked me what she was eating anyway. What could be traumatic about getting my kid to eat more vegetables and eat less sugar? I thought that's what they wanted us to do? Anyway, armed with the idea that I had nothing to lose except less picky kids, we tried it. After 5 days on the intro diet, we went in for an EEG and the results were surprising. The ped. neurologist told me that her seizures had localized in the rolando region of the brain. He said the prognosis for outgrowing them was excellent. They had been getting worse only one year before...enough for him to ask for an MRI to rule out a tumor. So, this was my first inkling that food can affect the brain. Anyway, so he was pleased and said we can start thinking about getting her off depakene the next time we meet and on to something milder. He sounded confident that this was a typical pattern for a child to outgrow seizures and this was just as he predicted. I don't know, maybe he's right. Maybe I'm right. It's too hard to know at this point. I think I will stay with SCD since, it's a well-balanced diet and my kid is eating whole foods now anyway. I don't want to go back to eating all the old foods we used to now! Our next visit to the ped. neur. is next month. I am hoping we can get her off the depakene. As much as I think it's helping her, I also wonder if it's causing many of her problems. Brain fog, fatigues easily, hand tremors? Anyway, that's where we're at now. I didn't realize this board existed and am looking forward to reading through the archives to learn and asking questions as well! Mindy from Oregon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2004 Report Share Posted April 19, 2004 SCD is the Specific Carbohydrate diet - there is a group I think for it like the ketogenic group, but I haven't gone into it too far, as my son is doing ok on keto for now, Hill ----- Original Message ----- From: " Goad " <valerie_toolbox@...> I am new here too and this might be a really silly question but what is SCD? What type of diet is that? Is it like the ketogenic diet?? I have been looking at doing an atkins type diet for my son who is having a hard time controlling seizures. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2004 Report Share Posted April 19, 2004 The specific carbohydrate diet was propelled by Elaine Gottschall's book, " Breaking the Vicious Cyle " . There is a website, geared for ASD kids mostly(autism spectrum disorder) that explains a lot. www.pecanbread.com The book I was able to find at the library. The author cured her daughter's severe ulcerative colitis decades ago (and the accompanying seizures were cured). It has recently become popular with parents of ASD kids, many who are believed to have gastrointestinal issues. It's not a low carbohydrate diet, but it eliminates specific carbs. Those with diahrea or constipation issues usually have great success with it as well, but my daughter did not have BM problems so I can't attest to that aspect. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2004 Report Share Posted April 20, 2004 Mindy, Glad that you've decided to join us and great to hear that SCD is working so well for your family, please let us know how it goes at the next neuro visit. Good Luck and God Bless! Grace On Mon, 19 Apr 2004 18:37:47 -0000 " mindymw " <corkyjane@...> writes: > Hello, I'm new here. I saw the SCD thread and wanted to share our > experience with you a bit. My daughter is 6 years old. She was > diagnosed a year ago with autism, high functioning. At 15 months > old, she began to have tonic clonic and absence seizures. She has > been on depakene since she was 2 years old that controls them and > she hasn't had any breakthrough seizures since she's been > medicated. Someone told me about the diet and I blew it off. I > thought it looked too hard. (I am not a cooking fan). Also, the docs > > told me that altering her diet would be traumatic. My kids ate mac > > n' cheese, pizza, chicken nuggets, and all the other usual " kid > food " suspects. I decided to try SCD for the whole family because I > > thought it couldn't hurt. I didn't care what the doctors said about > > altering her diet because they never even asked me what she was > eating anyway. What could be traumatic about getting my kid to eat > > more vegetables and eat less sugar? I thought that's what they > wanted us to do? Anyway, armed with the idea that I had nothing to > > lose except less picky kids, we tried it. After 5 days on the intro > > diet, we went in for an EEG and the results were surprising. The > ped. neurologist told me that her seizures had localized in the > rolando region of the brain. He said the prognosis for outgrowing > them was excellent. They had been getting worse only one year > before...enough for him to ask for an MRI to rule out a tumor. So, > > this was my first inkling that food can affect the brain. Anyway, > so he was pleased and said we can start thinking about getting her > off depakene the next time we meet and on to something milder. He > sounded confident that this was a typical pattern for a child to > outgrow seizures and this was just as he predicted. I don't know, > maybe he's right. Maybe I'm right. It's too hard to know at this > point. I think I will stay with SCD since, it's a well-balanced > diet and my kid is eating whole foods now anyway. I don't want to > go back to eating all the old foods we used to now! Our next visit > > to the ped. neur. is next month. I am hoping we can get her off the > > depakene. As much as I think it's helping her, I also wonder if > it's causing many of her problems. Brain fog, fatigues easily, hand > > tremors? Anyway, that's where we're at now. I didn't realize this > > board existed and am looking forward to reading through the archives > > to learn and asking questions as well! > Mindy from Oregon > > > > Quote Link to comment Share on other sites More sharing options...
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