Re: omega 3 /alpha linolenic acid

March 28, 2004

Joanie,

That is exactly how I feel, I would love to try diets and supplements for

my daughter and they probably would help, but when I get the idea in my

head and I start to ask questions from the groups, everyone has a

different opinion and so I get confused and give up, so i end up doing

nothing. I wish you better luck than I've had.

Grace

On Sun, 28 Mar 2004 02:38:18 -0000 " joanie46115 " <bjwilson@...>

writes:

Hi one more time,

I read where we are getting far too much omega 6 in ratio to omega

3. Or maybe we just don't get enough omega 3. Whatever, I got some

today.

Any of you up to date on alpha linlenic acid and use it? My friend

whose son has Aspergers was telling me about the mercury connection

and the ALA and some chelation program. I think the info is over at

the group autism mercury. I want to go look into it all, but

there is the overwhelming thing when I run into all this scientific

process talk. I am not stupid, but it takes time to learn a bit at a

time so you can reason whether a treatment or idea makes sense. I

have studied archives of groups for hours on end until I worry I have

blood clots in my legs from sitting at this computer! Mostly,I feel

like my son is running out of time and I often waste so much time

searching in vain.

Joanie

March 28, 2004

Joanie,

I have complex partial seizures. But right now I have to be real

careful on my sodium. My trileptal is taking away my sodium.

I have used flax oil capsules for over a year now. I did start with

fish oil and I changed because of the mercury. My seizure have

changed alot. I had 230 auras a month and they have gone now. I had

at least 10 to 12 seizures a month and now down to 1 a month and

sometimes not even. I used to have a seizure every 12 days and now I

can go without a seizure a month or 2 months. Because of my sodium I

will be changing my meds around in june so I shall see if I can get

rid of that one seizure after that. I buy them from walmart. I used

the flax oil with cottage cheese but I could not deal with the taste

of cottage cheese. So I stopped. Once in a while I grind the seeds

up and sprinkle it in my food or my families food they could use it

also. But it has to be used up right away and refridgerated. It is

also good for memory. best of luck

> Hi one more time,

>

> I read where we are getting far too much omega 6 in ratio to omega

> 3. Or maybe we just don't get enough omega 3. Whatever, I got

some

> today.

>

> Any of you up to date on alpha linlenic acid and use it? My

friend

> whose son has Aspergers was telling me about the mercury

connection

> and the ALA and some chelation program. I think the info is over

at

> the group autism mercury. I want to go look into it all, but

> there is the overwhelming thing when I run into all this

scientific

> process talk. I am not stupid, but it takes time to learn a bit

at a

> time so you can reason whether a treatment or idea makes sense. I

> have studied archives of groups for hours on end until I worry I

have

> blood clots in my legs from sitting at this computer! Mostly,I

feel

> like my son is running out of time and I often waste so much time

> searching in vain.

>

> Joanie

March 28, 2004

> Joanie,

>

> That is exactly how I feel, I would love to try diets and

supplements for

> my daughter and they probably would help, but when I get the idea

in my

> head and I start to ask questions from the groups, everyone has a

> different opinion and so I get confused and give up, so i end up

doing

> nothing. I wish you better luck than I've had.

>

> Grace

Dear Grace,

Don't be too hard on yourself. I have, in the past, with an older

child tried diets for allergies ad asthma and a lot of other

approaches - and I spent a LOT of money and still don't know what

actually helped. He still has to use some medicine for allergies, but

his asthma is gone for now. I am hesitant to hadn over money. Try

this try that and it cost money to try. I have to be very confident

before i spend money and I just don't feel real confident in my level

of understnading much of what is discussed here. It is no failure on

your part, because it takes TIME to understand and study and a person

may not be free to give the necessary time to get the understanding

and even then, maybe never enough to be able to judge a particular

treatment. I am not joking that my legs ache from the hours I sit

studying adn chasing leads all over the net and my eyes are bleary

from reading until the wee hours and I don't have enough rest. I

sometimes feel like the computer is a ball and chain and I am wasting

time. I don't like wasting time AND money! UNfortunately, the

nature of our children's problem is complex and there is not one

bandaid that fits all, is there?

Keep on trying!

Joanie

March 28, 2004

> > Joanie,

> >

> > That is exactly how I feel, I would love to try diets and

> supplements for

> > my daughter and they probably would help, but when I get the idea

> in my

> > head and I start to ask questions from the groups, everyone has a

> > different opinion and so I get confused and give up, so i end up

> doing

> > nothing. I wish you better luck than I've had.

> >

> > Grace

> Dear Grace,

>

> Don't be too hard on yourself. I have, in the past, with an older

> child tried diets for allergies ad asthma and a lot of other

> approaches - and I spent a LOT of money and still don't know what

> actually helped. He still has to use some medicine for allergies, but

> his asthma is gone for now. I am hesitant to hadn over money. Try

> this try that and it cost money to try. I have to be very confident

> before i spend money and I just don't feel real confident in my level

> of understnading much of what is discussed here. It is no failure on

> your part, because it takes TIME to understand and study and a person

> may not be free to give the necessary time to get the understanding

> and even then, maybe never enough to be able to judge a particular

> treatment. I am not joking that my legs ache from the hours I sit

> studying adn chasing leads all over the net and my eyes are bleary

> from reading until the wee hours and I don't have enough rest. I

> sometimes feel like the computer is a ball and chain and I am wasting

> time. I don't like wasting time AND money! UNfortunately, the

> nature of our children's problem is complex and there is not one

> bandaid that fits all, is there?

>

> Keep on trying!

>

> Joanie

I just had to respond here because I can totally relate to the search, the

questions and the

confusion on what to use and what will work and where to turn. I don't have any

words of

wisdom so I usally lurk and learn what I can. I have tried so much and when

a still

has her seizures I think I can't take it anymore, I stop and give up and do

nothing but

seizures stare me in the face and when I gain an ounce of energy I am at it

again

researching and if I have extra money I try something new that I learn about.

To top it off

we just took her out of school so we will be homeschooling so now I am in search

for the

best curriculum. You know it helps me to know there are others out there on a

similar

journey. It seems I could have written the above two posts.

March 29, 2004

yes it is hard. But what works for one may not work for another.

That is the chance we take. Everyone means well and are just trying

to make suggestions. I have tried omega 3 and I had a positive

response.

I have been through 6 brain surgeries, many drug studies, ketogenic

diet as an adult, VNS, and many different drugs. I have had epilepsy

for 34 years and still fighting. Don't give up hope. Yes you will

get down and depressed but usually I pick myself up and start the

research again. There is hope.

It just seems the natural way always has helped me more. All the

things I have tried have helped decrease my seizures little by

little and I am still not sorry that I have tried them. I put a post

about flax which is omega 3 and I heard many, many good things about

it. Please check my post. What I do is write them done the positive

things that people give you. I always seem to fall back on them

when I have no options left. When things look hopeless I try one of

them. But never do several at a time you will not know which one

helped. Don't give up keep pushing. A rainbow will come some day.

In , " dhenudevi " <puregreenforest@c...>

wrote:

>

> > > Joanie,

> > >

> > > That is exactly how I feel, I would love to try diets and

> > supplements for

> > > my daughter and they probably would help, but when I get the

idea

> > in my

> > > head and I start to ask questions from the groups, everyone

has a

> > > different opinion and so I get confused and give up, so i end

up

> > doing

> > > nothing. I wish you better luck than I've had.

> > >

> > > Grace

> > Dear Grace,

> >

> > Don't be too hard on yourself. I have, in the past, with an

older

> > child tried diets for allergies ad asthma and a lot of other

> > approaches - and I spent a LOT of money and still don't know

what

> > actually helped. He still has to use some medicine for

allergies, but

> > his asthma is gone for now. I am hesitant to hadn over money.

Try

> > this try that and it cost money to try. I have to be very

confident

> > before i spend money and I just don't feel real confident in my

level

> > of understnading much of what is discussed here. It is no

failure on

> > your part, because it takes TIME to understand and study and a

person

> > may not be free to give the necessary time to get the

understanding

> > and even then, maybe never enough to be able to judge a

particular

> > treatment. I am not joking that my legs ache from the hours I

sit

> > studying adn chasing leads all over the net and my eyes are

bleary

> > from reading until the wee hours and I don't have enough rest.

I

> > sometimes feel like the computer is a ball and chain and I am

wasting

> > time. I don't like wasting time AND money! UNfortunately, the

> > nature of our children's problem is complex and there is not one

> > bandaid that fits all, is there?

> >

> > Keep on trying!

> >

> > Joanie

>

> I just had to respond here because I can totally relate to the

search, the questions and the

> confusion on what to use and what will work and where to turn. I

don't have any words of

> wisdom so I usally lurk and learn what I can. I have tried so

much and when a still

> has her seizures I think I can't take it anymore, I stop and give

up and do nothing but

> seizures stare me in the face and when I gain an ounce of energy

I am at it again

> researching and if I have extra money I try something new that I

learn about. To top it off

> we just took her out of school so we will be homeschooling so now

I am in search for the

> best curriculum. You know it helps me to know there are others out

there on a similar

> journey. It seems I could have written the above two posts.

>

March 29, 2004

Joannie,

You sound alot like me with the searching, the funny thing is that while

I'm getting so frustrated with all the searching and reading, my husband

thinks that maybe I have a boyfriend (lol) because I'm on the computer so

much either answering my emails or researching. I explained to him that

my groups are what's keeping me sane otherwise I'd probably be so

depressed. Thanks Joannie for being there! God Bless!

Grace

On Sun, 28 Mar 2004 23:32:36 -0000 " joanie46115 " <bjwilson@...>