Guest guest Posted October 15, 2003 Report Share Posted October 15, 2003 Hi Zoe! A friend ( who has a son with Aspergers)and I had been looking into a place called Body Bio or something like it. Sounds like what Mark's ( I forget his last name )lab does. We had to put off finding more out about it for a while when my mother got sick. So, what we had figured out was that hopefully we could find a doctor game to try to figure out what all the data means. i have a doctor I think would be game, but how much would he charge to work on trying to interpret the data himself plus consult with Mark's place for help in interpreting I do not know. What I think I should need to know now is ABOUT how much is a kit - the most thorough one? I have to budget this thing and I see the checking out he metabolic stuff as the most intelligent next move for me to do for our son. Wanting to rule out inborn metabolic disorders, check the amino acids, etc... . I also want my doctor to do a 5 hr glucose tolerance and isn't there a celiac screen which does not exactly prove one has it, but would certainly give one incentive to do the diet and see if things imporve? So, aside from my doctor's cost, what would Mark's lab want, including consultation with my doctor? We will find the money; we just have to know how much we need. My husband allows no credit cards ( we have debit, but you know what I mean.), so we pay for everything up front. I have to do something, as the doc says the next time this dose of Topamax becomes ineffective, as they all seem to do, we will have to try something else. I don't want to!!! Not drugs anyhow. Thanks!! ( very much. I see you are so busy, I hate to bug you.) Joanie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 Zoe, The reason why I asked how much you are taking is because I have the book The Vitan-Nutrient Solution by Dr. Atkins and he states in his book that most of his patients have been able to wean off of meds and become seizure free by taking Taurine. Also, he states that the recommended dose is anywhere between 1.5 grams to 3 grams for it to be effective. I started on 500 mg twice a day and it worked great at first and then she had seizures again, so I recently started her on 750mg twice a day for a total of 1.5grams and I will see how she does on it, but from what I have read in my research, Taurine is supposed to be pretty safe, have you heard anything to the contrary. Thanks again Zoe. Grace zoe88025 <Zll51@...> wrote: Hi Grace, I started using it in 1998. I was taking 500mgs twice a day with meals. Within a few months, my simple partials stopped, the one thing that prevented me from getting my driver's license. I took more over time, as needed and stopped using it regularly a few years ago. I did go to Tucson and saw a neurologist involved in research on taurine. He said that after about two years the body tends to adapt (or readapt) itself so that supplements are no longer needed. I used taurine pretty regularly for about four years. Mark Schauss has information on how he used it for his daughter on his web page.* http://www.carbonbased.com/modules/news/article.php? storyid=5). You can also contact him from his page. Since he is on this list, maybe he will read this and jump in. Mark? Zoe > > > Hiya Zoe and all > > > > > > ANother, less contentious list, (Biofeedback can get like a > pissing > > match) > > > is autism-nf and add_adhd at groups. Do not limit to > > seizures..... > > > brain issues just express themselves differently. > > > > > > mjh > > > > > > > mjh > > http://foxhillfarm.us/FireBasil/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 Thee only side effects I heard of were peptic ulcer, which goes away when the taurine is stopped, and, I think,---it may increase stomach acid and possibly blood pressure. The does you mentioned sound about like what I've seen. There are so many things that will trigger seizures, I'd be very wary of what Atkins wrote. If she started having seizures again after being ok on the taurine, you may want to look at some other possible factors, her minerals and elctrolytes. Did Atkins write anything about any other vitamins (like B6) needed to properly assimilate the taurine? Maybe try a google search on " taurine " " side effects " . That should turn up some useful information. Zoe , Grace <foxyfoxgrace@y...> wrote: > Zoe, > > The reason why I asked how much you are taking is because I have the book The Vitan-Nutrient Solution by Dr. Atkins and he states in his book that most of his patients have been able to wean off of meds and become seizure free by taking Taurine. Also, he states that the recommended dose is anywhere between 1.5 grams to 3 grams for it to be effective. I started on 500 mg twice a day and it worked great at first and then she had seizures again, so I recently started her on 750mg twice a day for a total of 1.5grams and I will see how she does on it, but from what I have read in my research, Taurine is supposed to be pretty safe, have you heard anything to the contrary. Thanks again Zoe. > > Grace > > zoe88025 <Zll51@h...> wrote: > > Hi Grace, > I started using it in 1998. I was taking 500mgs twice a day with > meals. Within a few months, my simple partials stopped, the one thing > that prevented me from getting my driver's license. I took more over > time, as needed and stopped using it regularly a few years ago. I > did go to Tucson and saw a neurologist involved in research on > taurine. He said that after about two years the body tends to adapt > (or readapt) itself so that supplements are no longer needed. I used > taurine pretty regularly for about four years. > Mark Schauss has information on how he used it for his daughter on > his web page.* http://www.carbonbased.com/modules/news/article.php? > storyid=5). You can also contact him from his page. Since he is on > this list, maybe he will read this and jump in. Mark? > Zoe > > > > > > > Hiya Zoe and all > > > > > > > > ANother, less contentious list, (Biofeedback can get like a > > pissing > > > match) > > > > is autism-nf and add_adhd at groups. Do not limit to > > > seizures..... > > > > brain issues just express themselves differently. > > > > > > > > mjh > > > > > > > > > > mjh > > > http://foxhillfarm.us/FireBasil/ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2005 Report Share Posted February 15, 2005 Zoe, The Atkins book talks about just about every supplement. I did do a search on Taurine and most stated that there were no side effects. was only taking 500mg twice a day and I just increased it to 750mg twice a day to see how she does. As far as her minerals and electrolites, all those tests came back normal but this doesn not mean that she doesn't need them so I also give her B6, Magnesium and a few others. Grace zoe88025 <Zll51@...> wrote: Thee only side effects I heard of were peptic ulcer, which goes away when the taurine is stopped, and, I think,---it may increase stomach acid and possibly blood pressure. The does you mentioned sound about like what I've seen. There are so many things that will trigger seizures, I'd be very wary of what Atkins wrote. If she started having seizures again after being ok on the taurine, you may want to look at some other possible factors, her minerals and elctrolytes. Did Atkins write anything about any other vitamins (like B6) needed to properly assimilate the taurine? Maybe try a google search on " taurine " " side effects " . That should turn up some useful information. Zoe , Grace <foxyfoxgrace@y...> wrote: > Zoe, > > The reason why I asked how much you are taking is because I have the book The Vitan-Nutrient Solution by Dr. Atkins and he states in his book that most of his patients have been able to wean off of meds and become seizure free by taking Taurine. Also, he states that the recommended dose is anywhere between 1.5 grams to 3 grams for it to be effective. I started on 500 mg twice a day and it worked great at first and then she had seizures again, so I recently started her on 750mg twice a day for a total of 1.5grams and I will see how she does on it, but from what I have read in my research, Taurine is supposed to be pretty safe, have you heard anything to the contrary. Thanks again Zoe. > > Grace > > zoe88025 <Zll51@h...> wrote: > > Hi Grace, > I started using it in 1998. I was taking 500mgs twice a day with > meals. Within a few months, my simple partials stopped, the one thing > that prevented me from getting my driver's license. I took more over > time, as needed and stopped using it regularly a few years ago. I > did go to Tucson and saw a neurologist involved in research on > taurine. He said that after about two years the body tends to adapt > (or readapt) itself so that supplements are no longer needed. I used > taurine pretty regularly for about four years. > Mark Schauss has information on how he used it for his daughter on > his web page.* http://www.carbonbased.com/modules/news/article.php? > storyid=5). You can also contact him from his page. Since he is on > this list, maybe he will read this and jump in. Mark? > Zoe > > > > > > > Hiya Zoe and all > > > > > > > > ANother, less contentious list, (Biofeedback can get like a > > pissing > > > match) > > > > is autism-nf and add_adhd at groups. Do not limit to > > > seizures..... > > > > brain issues just express themselves differently. > > > > > > > > mjh > > > > > > > > > > mjh > > > http://foxhillfarm.us/FireBasil/ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2005 Report Share Posted February 15, 2005 Zoe, The Atkins book talks about just about every supplement. I did do a search on Taurine and most stated that there were no side effects. was only taking 500mg twice a day and I just increased it to 750mg twice a day to see how she does. As far as her minerals and electrolites, all those tests came back normal but this doesn not mean that she doesn't need them so I also give her B6, Magnesium and a few others. Grace zoe88025 <Zll51@...> wrote: Thee only side effects I heard of were peptic ulcer, which goes away when the taurine is stopped, and, I think,---it may increase stomach acid and possibly blood pressure. The does you mentioned sound about like what I've seen. There are so many things that will trigger seizures, I'd be very wary of what Atkins wrote. If she started having seizures again after being ok on the taurine, you may want to look at some other possible factors, her minerals and elctrolytes. Did Atkins write anything about any other vitamins (like B6) needed to properly assimilate the taurine? Maybe try a google search on " taurine " " side effects " . That should turn up some useful information. Zoe , Grace <foxyfoxgrace@y...> wrote: > Zoe, > > The reason why I asked how much you are taking is because I have the book The Vitan-Nutrient Solution by Dr. Atkins and he states in his book that most of his patients have been able to wean off of meds and become seizure free by taking Taurine. Also, he states that the recommended dose is anywhere between 1.5 grams to 3 grams for it to be effective. I started on 500 mg twice a day and it worked great at first and then she had seizures again, so I recently started her on 750mg twice a day for a total of 1.5grams and I will see how she does on it, but from what I have read in my research, Taurine is supposed to be pretty safe, have you heard anything to the contrary. Thanks again Zoe. > > Grace > > zoe88025 <Zll51@h...> wrote: > > Hi Grace, > I started using it in 1998. I was taking 500mgs twice a day with > meals. Within a few months, my simple partials stopped, the one thing > that prevented me from getting my driver's license. I took more over > time, as needed and stopped using it regularly a few years ago. I > did go to Tucson and saw a neurologist involved in research on > taurine. He said that after about two years the body tends to adapt > (or readapt) itself so that supplements are no longer needed. I used > taurine pretty regularly for about four years. > Mark Schauss has information on how he used it for his daughter on > his web page.* http://www.carbonbased.com/modules/news/article.php? > storyid=5). You can also contact him from his page. Since he is on > this list, maybe he will read this and jump in. Mark? > Zoe > > > > > > > Hiya Zoe and all > > > > > > > > ANother, less contentious list, (Biofeedback can get like a > > pissing > > > match) > > > > is autism-nf and add_adhd at groups. Do not limit to > > > seizures..... > > > > brain issues just express themselves differently. > > > > > > > > mjh > > > > > > > > > > mjh > > > http://foxhillfarm.us/FireBasil/ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2005 Report Share Posted March 4, 2005 Zoe, Thank you so very much for your explanation, it helps me so much more than you know. You're great!!! Grace zoe88025 <Zll51@...> wrote: Hi Grace It's been known about since EEGs were invented (except, perhaps by many neurologists), that EEGs cannot prove or disprove epilepsy. The term " epilepsy " is a play on words. If you have an infection, we can look in your blood and find the bacteria. Epilepsy is just a term to describe someone with a seizure disorder. I write about seizure disorders, not epilepsy for good reason. Putting everyone with seizure disorders in the same group implies that medicine which works for one, will work for another. Better, in my book (since I'm not selling drugs) is to stick with terms that better describe the problem, seizures. Not eveyone who has abnormal EEGs have seizures, and not everyone who has seizures has abnormal EEGs. Why doesn't everyone who sustains severe brain trauma and injury develop seizures? We need to question this and to look at things that will trigger seizures. One good example being food intolerance; the reaction to food, odors, or some other stress, can trigger an increase in heart rate and respiration which in turn can trigger a seizure. This understanding is one reason that helps explain why behavioral methods, including neurofeedback are so often successful; they help the person retrain the nervous system to bring their responses to the stress (heart rate, etc.) back into the normal range, which can abort the seizure in progress, or condition the nervous system to prevent it from developing altogether. We have to keep in mind that the " electrical activity " measured by the EEGs is chemical. The EEG is also measuring the " Calcium waves " generated in the process of brain activity, one of the nutrient/electrolytes that creates the electrical charge. Every breath we take affects this balance in the brain, the reason why breath training has helped people learn to control their own seizure activity. The same can hold true with diet. We need to dump the parable of seizures as " electrical storms " and deal with what is going on during those " storms. " It looks to me like the AEDs are too often overkill. The reduce one electrolyte, like sodium, to such an extreme, another imbalance is created. It's good to hear is doing better. Have you also explored a diet with no grains at all? I'm having some good results making and using bean, nut, and buckweat flour. Lentil flour bread with lentil soup anyone? Zoe > Zoe, > > is doing better since we've been weaning her off of her meds and put her on supplements, reduced her carbs and added more green leafy vegetables and whole grain cereal as well as a few minor changes. > The strange thing about these AEDs is that they all do different and strange things, for example: on Trileptal, had an increase in partial or auras, I'm still not sure which because they are so close, if you recall it was at that time that I thought she was having seizures that were being triggered by lighting, food, etc. when we got her off of the Trileptal, it stopped, then on Zonegran, she started having more Tonic Clonic seizures like every two weeks and she was also hallucinating and became like a zombie who was in another world and since we stopped the zonegran, that's stopped, then on Lamictal, she had nystagmus, was doing some strange things when writing, had OCD and was having a hard time sleeping and now that we're weaning her off of it, she's sleeping better, her OCD is gone and I'm assuming that the nystagmus is also gone because her writing is back to normal. This is all too crazy for me and if I can help it, I will do everything I can to keep her away from > AEDs. Those AEDs have done nothing but cause havoc in our lives and even though my neuro wants to do an ambulatory EEG on , I don't care what those results are, I refuse to put her on any AED after the hell we've gone through. > > Grace Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2005 Report Share Posted March 17, 2005 Zoe, Did the diet help you control your seizures? I was thinking about trying the gluten free diet since is ASD to see if it helps, but when I had her tested for allergies, all her tests came back negative except for a mild allergy to mold which does not require treatment. I will check out those sites. Thanks alot Zoe! Grace zoe88025 <Zll51@...> wrote: Hi Grace and Elise, I went on gluten and lactose free diet about ten years ago as part of the trials to control seizures. It can seem very difficult at first but doesn't need to be. I am getting excellent bread using nut and bean flours along with brown rice (not necessary), buckwheat (not related to wheat), and sorguhm (it too is gluten free). Instead of yeast, I use 2 parts cereal and grain free baking powder to 1 part baking soda. Instead of sugar, I use cinnamon or other spices and also xylitol the sugar that is antibacterial. My small coffee grinder makes a great flour mill and will do about 1/4 cup at a time very well. It is important to sift the flour before using. It is also better to make the flour fresh as you are going to use it to keep the nutrients from being depleted by interaction with air. It is pretty quick and easy to make a batter and cook up some pancake bread for round sandwiches. This is my basic recipe: Sift together 1 cup brown rice flour 1/4 cup white bean flour 1/4 cup sorguhm flour 1/4 cup fresh buckwheat flour (not roasted) 1/4 cup almond or cashew flour 1 tsp baking powder 1/2 tsp baking soda 1/8 tsp salt or substitute Make 2 cups of hops tea or use other liquid and set aside: Mix in bowl 1/8 cup oil or flax substitute (see below) 1 tsp vanilla extract 2 eggs or substitute 1/4 cup liquid Blend the eggs and liquid on high speed until it is very frothy. Slowly add in the flour mixture and enough liquid to get the thickness need for pancakes. Fry pancakes as you usually do and let cool. Makes great sandwich bread and keeps well in the refigerator. Flax substitute for eggs and/or oil, take from " The Allergy Cookbook " : Bring 1/3 cup of water to boil and add 1TBLspn of flax seeds. Turn heat down and slow boil for about five minutes until liquid is like egg white. When it cools use 1/3 cup liquid for one egg or for oil substitute. Link to more gluten free recipes from an autism list: http://www.gfrecipes.com/sorghum.txt http://www.gfrecipes.com/sorghum.txt > > > > > This made a big stir in the press a few months > > > > ago. > > > > > It has been know for quite some time that the > > > > > majority of autistic kids have larger heads in > > > the > > > > > first year or so of life, this is the first > > > study > > > > to > > > > > link it to an immune reaction - duh. I think > > > the > > > > > childhood autism / epilepsy stuff is linked. > > It > > > > is > > > > > a medical issue, an imbalance somewhere in the > > > > body > > > > > or brain itself that affects the brain. I'm > > > > trying > > > > > to figure out what my son's imbalance is. > > He's > > > > come > > > > > a long ways with the supplemental / > > nutritional > > > > > interventions I've done, but he still has a > > ways > > > > to > > > > > go. > > > > > > > > > > > > > > > > > > > > > > > > > From: " Kari J. Kindem " > > <kari@k...> > > > > > Date: Mon Nov 15, 2004 8:50 am > > > > > Subject: Doctors examine post > > > mortem > > > > > autistic brains, find immune reaction swelling > > > in > > > > > brain > > > > > > > > > > > > > > > ADVERTISEMENT > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > http://www.nzherald.co.nz/storyprint.cfm?storyID=3610371 > > > > > > > > > > > > > > > Doctors examine post mortem > > autistic > > > > > brains, find immune reaction swelling in brain > > > > > > > > > > > > > > > > > > > > > > 15.11.2004 - 1.00pm - By JEREMY > > > > LAURANCE > > > > > > > > > > > > > > > Doctors have taken a step towards > > > > > identifying the cause of autism, the rapidly > > > > > increasing brain disorder that leaves > > sufferers > > > > with > > > > > difficulties in social interaction. > > > > > > > > > > A study of brain tissue taken from > > > > > affected patients has revealed that an immune > > > > system > > > > > reaction leading to swelling of the brain > > could > > > > lie > > > > > behind the condition. If confirmed, doctors > > > > believe > > > > > they could develop a test for autism and > > > possibly > > > > a > > > > > treatment to prevent the inflammation. > > > > > > > > > > At present the condition cannot be > > > > > diagnosed until the first signs of problems in > > > > > communication appear, normally in the second > > > year > > > > of > > > > > life. > > > > > > > > > > Professor Pardo-Villamizar > > of > > > > > Hopkins University School of Medicine, > > who > > > > led > > > > > the study, said: " These findings open new > > > > > possibilities for understanding the dynamic > > > > changes > > > > > that occur in the brain of autistic patients > > > > during > > > > > childhood and adulthood. Although they may > > lend > > > > > themselves to the development of new medical > > > > > treatments for autism, much more research > > would > > > be > > > > > needed to establish the validity of this > > > > approach. " > > > === message truncated === > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2005 Report Share Posted March 17, 2005 Hi Grace, My intolerance to gluten is " acquired, " not a true allergy. I had damage to my intestinal tract from antibiotics. I don't think person doesn't have to be allergic to have a reaction to gluten, it could also be system overload, you may be going beyond your body's ability to produce the type of protein needed to digest the gluten. On that score and other diet issues, I find it works best to plan a trial diet, WELL PLANNED, and allow lots of time to see if what you are trying is helping or not. It is also important to look at why something may not be working, discovering other factors. There is a lot of hoopla going on about gluten intolerance and whether or not some people are " really " allergic. That may be totally irrelevant to 's situation or anyone else's. Trust your instincts on this. A few more very important links for you on this. Please post what you try so we all can learn from it too. The gluten free diet does help me a lot and was a big help in getting my seizures under control. Zoe http://www.celiac.com/st_prod.html?p_prodid=78 This article is long, but so well thought out this Italian physician became one of my heros. Check out their index for other information too. http://www.panix.com/~donwiss/hoggan/ Links to articles on gluten by Ron Hoggan > Zoe, > > Did the diet help you control your seizures? I was thinking about trying the gluten free diet since is ASD to see if it helps, but when I had her tested for allergies, all her tests came back negative except for a mild allergy to mold which does not require treatment. I will check out those sites. Thanks alot Zoe! > > Grace Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2005 Report Share Posted April 16, 2005 Zoe, is back to her happy, normal self thank God. She has always had a very short attention span and I have not been able to figure it out, however, lately with the supplements I have her on, and since I took her off the meds, her attention span seems a little better. I wouldn't even know where to start to try to figure out what could be the culprit. We did go for allergy testing to see if she had any allergies and everything came back normal except for a mild allergy to a certain type of fungus. As far as that Homeopah, they did tell me to stop giving it to her, but said that most people who take that Calm Jr. don't have the reaction did, but maybe don't don't sell alot, if any of it since both times I went there, they had nobody in the office. I have always been a little leary of herbs, I do feel more comfortable with vitamins. Before I gave the Calm Jr. to , I did do a net search on every herb in it and they all sounded harmless and led me to believe that they would help her symptoms and this is why I decided to give it to her, but obviously her body did not agree. I'm thinking about giving her L-Tyrosine since it helps improve memory and increase mental alertness, it also helps promote the healthy functioning of the thyroid since she has hypothyroidsm and it also helps overcome depression which she doesn't have, but it wouldn't hurt. What do you think? Grace Grace zoe88025 <Zll51@...> wrote: Hi Grace, How frustrating, but thankfully your husband figured it out! You can run into the same problems with supplemnts too. A naturopath gave me something to try once for fatigue and it threw me into seizures. I think it had phenylalanine in it. Scared me pretty good. Everything needs to be looked at with caution. It is not safe to trust a product just because it is " natural " or is not a drug. Two years ago I tried the amino acid arginine after reading an article about it. I took 1/8 of a teaspoon. I went into extreme hysteria, crying, shouting at my friend, a very serious inflamatory reaction to it. On the other hand, I have found a lot of benefit using lysine, another amino acid. Wish there were an easier way to learn. I was very disappointed that the naturopath did not fully understand how the supplements or herbs affect the nervous system. I have gotten very leery of alternative practioners, as they too often are repeating what they read in a book or learned in school/training without real understanding of the disorders or the treatments. Just because something or another is a " good " traditional remedy, does not mean it is good for everyone. I'm lucky in this respect that I have no family. I only try things out on myself. I'd be very anxious if I had a child and was in your situation. There are lots of ways to find information on the net, and many pharmacies now have herb references on hand. The physicians here all have those kinds of manuals as so many people here use non-drug treatments. Also keep in mind your goals and objectives. I see a lot of people, including alternative health practioners, using herbs like drugs. To me, this misses the point. The objective, mine anyway, is to find the " imbalance " and correct it so the condition, seizures, whatever, is overcome. Do you keep a log on 's ADD episodes? Are you tracking what times of the day she does best, worst? Are there any foods likely to set her off? If there is something metabolic triggering her seizures, maybe something similar is affecting her ability to be attentive as well, i.e., maybe the " distraction " is a reaction to something going on in her body. If so, there may be something you can do with diet that will help her balance out. What threw up a red flag to me here is that you wrote she was always crying, that may well be a sign of some physical distress. If a kid, or adult, is suffering from an electrolyte imbalance, or mild acidosis or alkalosis, we have no way to know or express it, we have reactions, like hyperness, confusion, or weeping. It is a real shame in our culture that we lost the ability to be in touch with our bodies and confuse very normal responses to physical distress as " mental. " There can be no " mental " state without there being a physical state. They are not separate, but interlinked. Don't we wish there were some easy answers? Keep tracking and posting what you find, we all learn from it. Zoe > Zoe, > > Thanks for your help! I just learned a real lesson on herbs and how they can cause problems if they are not right for you. I went to this Homeopath for a consultation and I decided at that time to wait until was off her meds before deciding what we should do to help her naturally. Well, we started talking about 's ADD and she recommended this herb concoction called Calm Jr. and after reading the pamphlet she gave me, I decided to give it a try since had all the symptoms it stated that it was good for. To make a story short, two weeks later, started acting really strange, irritable, mean, wouldn't listen to a word I said, was waking up three to four times at night and looked so tired and was always crying. I wasn't thinking about the herb capsules and was driving myself crazy wondering if maybe this is the way she was going to be off the meds since we just took her off of it two weeks ago, then my husband said what about the herbs we just put her > on and that made sense since this was the only change we had just made, so we took her off and thank God she's back to her happy normal self, but I was really worried for awhile there. It was a mixture of about 10 herbs in one capsule and she had me give 3 capsules twice a day. When I called her to tell her what was happening, she said that noone ever complained about this product, I don't know whether this is true or not, but the fact is that it didn't work for . Herbs are a litle more tricky than supplements even the more common ones, so you do have to do your homework or work with a real professional when trying them specially on children. > > Grace Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2005 Report Share Posted April 16, 2005 First do a search on tyrosine and seizures--and things that might lead it to trigger a seizue-increased respiration, sleep disturbance, etc.-- I'm just thinking, that may be one of the other " good " ones that exacerbated my seizures.Check it out! Here's a link to a google search results list on this: http://www.google.com/search?hl=en & q=%22tyrosine%22+%22seizures% 22 & btnG=Google+Search And one result: Aspartame .... In addition, both phenylalanine and tyrosine (which the body makes from ... shown links to headaches and epileptic seizures from aspartame consumption. ... " Aspartic acid is a neuroexciter affecting the central nervous system (CNS) in high concentrations. In addition, both phenylalanine and tyrosine (which the body makes from phenylalanine), appear to interfere with neurotransmission. " http://www.innvista.com/health/nutrition/diet/saspart.htm Zoe > > Zoe, > > > > Thanks for your help! I just learned a real lesson on herbs and > how they can cause problems if they are not right for you. I went to > this Homeopath for a consultation and I decided at that time to wait > until was off her meds before deciding what we should do to > help her naturally. Well, we started talking about 's ADD > and she recommended this herb concoction called Calm Jr. and after > reading the pamphlet she gave me, I decided to give it a try since > had all the symptoms it stated that it was good for. To make > a story short, two weeks later, started acting really > strange, irritable, mean, wouldn't listen to a word I said, was > waking up three to four times at night and looked so tired and was > always crying. I wasn't thinking about the herb capsules and was > driving myself crazy wondering if maybe this is the way she was going > to be off the meds since we just took her off of it two weeks ago, > then my husband said what about the herbs we just put her > > on and that made sense since this was the only change we had just > made, so we took her off and thank God she's back to her happy normal > self, but I was really worried for awhile there. It was a mixture of > about 10 herbs in one capsule and she had me give 3 capsules > twice a day. When I called her to tell her what was happening, she > said that noone ever complained about this product, I don't know > whether this is true or not, but the fact is that it didn't work for > . Herbs are a litle more tricky than supplements even the > more common ones, so you do have to do your homework or work with a > real professional when trying them specially on children. > > > > Grace > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2005 Report Share Posted April 16, 2005 Zoe, Tyrosine is recommended for epilepsy according to the book " Prescription for Nutritional Healing " . I have done a search on L-Tyrosine and it sounds pretty safe to take, but I will search tyrosine and seizures to make sure. Thanks Zoe! Grace zoe88025 <Zll51@...> wrote: First do a search on tyrosine and seizures--and things that might lead it to trigger a seizue-increased respiration, sleep disturbance, etc.-- I'm just thinking, that may be one of the other " good " ones that exacerbated my seizures.Check it out! Here's a link to a google search results list on this: http://www.google.com/search?hl=en & q=%22tyrosine%22+%22seizures% 22 & btnG=Google+Search And one result: Aspartame .... In addition, both phenylalanine and tyrosine (which the body makes from ... shown links to headaches and epileptic seizures from aspartame consumption. ... " Aspartic acid is a neuroexciter affecting the central nervous system (CNS) in high concentrations. In addition, both phenylalanine and tyrosine (which the body makes from phenylalanine), appear to interfere with neurotransmission. " http://www.innvista.com/health/nutrition/diet/saspart.htm Zoe > > Zoe, > > > > Thanks for your help! I just learned a real lesson on herbs and > how they can cause problems if they are not right for you. I went to > this Homeopath for a consultation and I decided at that time to wait > until was off her meds before deciding what we should do to > help her naturally. Well, we started talking about 's ADD > and she recommended this herb concoction called Calm Jr. and after > reading the pamphlet she gave me, I decided to give it a try since > had all the symptoms it stated that it was good for. To make > a story short, two weeks later, started acting really > strange, irritable, mean, wouldn't listen to a word I said, was > waking up three to four times at night and looked so tired and was > always crying. I wasn't thinking about the herb capsules and was > driving myself crazy wondering if maybe this is the way she was going > to be off the meds since we just took her off of it two weeks ago, > then my husband said what about the herbs we just put her > > on and that made sense since this was the only change we had just > made, so we took her off and thank God she's back to her happy normal > self, but I was really worried for awhile there. It was a mixture of > about 10 herbs in one capsule and she had me give 3 capsules > twice a day. When I called her to tell her what was happening, she > said that noone ever complained about this product, I don't know > whether this is true or not, but the fact is that it didn't work for > . Herbs are a litle more tricky than supplements even the > more common ones, so you do have to do your homework or work with a > real professional when trying them specially on children. > > > > Grace > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2005 Report Share Posted April 16, 2005 Thanks Grace, I'll look into it more also. Zoe > > > Zoe, > > > > > > Thanks for your help! I just learned a real lesson on herbs and > > how they can cause problems if they are not right for you. I went > to > > this Homeopath for a consultation and I decided at that time to > wait > > until was off her meds before deciding what we should do > to > > help her naturally. Well, we started talking about 's ADD > > and she recommended this herb concoction called Calm Jr. and after > > reading the pamphlet she gave me, I decided to give it a try since > > had all the symptoms it stated that it was good for. To > make > > a story short, two weeks later, started acting really > > strange, irritable, mean, wouldn't listen to a word I said, was > > waking up three to four times at night and looked so tired and was > > always crying. I wasn't thinking about the herb capsules and was > > driving myself crazy wondering if maybe this is the way she was > going > > to be off the meds since we just took her off of it two weeks ago, > > then my husband said what about the herbs we just put her > > > on and that made sense since this was the only change we had > just > > made, so we took her off and thank God she's back to her happy > normal > > self, but I was really worried for awhile there. It was a mixture > of > > about 10 herbs in one capsule and she had me give 3 > capsules > > twice a day. When I called her to tell her what was happening, she > > said that noone ever complained about this product, I don't know > > whether this is true or not, but the fact is that it didn't work > for > > . Herbs are a litle more tricky than supplements even the > > more common ones, so you do have to do your homework or work with a > > real professional when trying them specially on children. > > > > > > Grace > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2005 Report Share Posted April 17, 2005 Zoe, I read a couple of the searches you sent me as well as some of my own and I've decided not to give it to , at least, not right now. Tyrosine is mainly used for depression and since she doesn't seem deppressed to me, I'm not going to make things worse, I will leave well enough alone. Thanks for all your help! You're the best! Grace zoe88025 <Zll51@...> wrote: Hi Grace, Two conflicting reports. Tyrosine is used as a stimulant and can have side effects that may affect seizure threshold. The first is from Ray Sahelian's web site. I read the restlessness, insomnia, and heart irregularities as the possibility of increasing the risk of seizures. The second is from a pharmacy--no easy answers. Zoe " Tyrosine Side effects Overstimulation, restlessness, anxiety, insomnia, heart rhythm irregularities are some common side effects that occur from high doses of tyrosine. These can occur in sensitive individuals in as low a dose as 200 mg. " http://www.raysahelian.com/tyrosine.html ----- Are there any side effects or interactions? L-tyrosine has not been reported to cause any serious side effects. However, it is not known whether long-term use of L-tyrosine, particularly in large amounts (such as more than 1,000 mg per day) is safe. For that reason, long-term use of L-tyrosine should be monitored by a doctor. Vitamin B6, folic acid, and copper are necessary for conversion of L- tyrosine into neurotransmitters. Are there any drug interactions? Certain medicines may interact with L-tyrosine. Refer to drug interactions for a list of those medicines. http://www.numarkpharmacists.com/hn/Supp/Tyrosine.htm#Side-Effects > > > > Zoe, > > > > > > > > Thanks for your help! I just learned a real lesson on herbs > and > > > how they can cause problems if they are not right for you. I > went > > to > > > this Homeopath for a consultation and I decided at that time to > > wait > > > until was off her meds before deciding what we should do > > to > > > help her naturally. Well, we started talking about 's > ADD > > > and she recommended this herb concoction called Calm Jr. and > after > > > reading the pamphlet she gave me, I decided to give it a try > since > > > had all the symptoms it stated that it was good for. To > > make > > > a story short, two weeks later, started acting really > > > strange, irritable, mean, wouldn't listen to a word I said, was > > > waking up three to four times at night and looked so tired and > was > > > always crying. I wasn't thinking about the herb capsules and was > > > driving myself crazy wondering if maybe this is the way she was > > going > > > to be off the meds since we just took her off of it two weeks > ago, > > > then my husband said what about the herbs we just put her > > > > on and that made sense since this was the only change we had > > just > > > made, so we took her off and thank God she's back to her happy > > normal > > > self, but I was really worried for awhile there. It was a > mixture > > of > > > about 10 herbs in one capsule and she had me give 3 > > capsules > > > twice a day. When I called her to tell her what was happening, > she > > > said that noone ever complained about this product, I don't know > > > whether this is true or not, but the fact is that it didn't work > > for > > > . Herbs are a litle more tricky than supplements even > the > > > more common ones, so you do have to do your homework or work with > a > > > real professional when trying them specially on children. > > > > > > > > Grace > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2005 Report Share Posted April 17, 2005 It's really so difficult to know what to do, and scarey to have to take risks in dealing with seizures. I screwed myself up more than a few times " experimenting " when learning to bring mine under control. thought of myself as the " Sorcerer's apprentice. " We have to be so cautious. Mark Schauss' comments are a real help too. Also, don't forget your pharmacist may be a great ally. You can ask her or him how to find out if norepinephrine (or anything else you are looking into) will lower the seizure threshold. Zoe > > > > > Zoe, > > > > > > > > > > Thanks for your help! I just learned a real lesson on herbs > > and > > > > how they can cause problems if they are not right for you. I > > went > > > to > > > > this Homeopath for a consultation and I decided at that time to > > > wait > > > > until was off her meds before deciding what we should > do > > > to > > > > help her naturally. Well, we started talking about 's > > ADD > > > > and she recommended this herb concoction called Calm Jr. and > > after > > > > reading the pamphlet she gave me, I decided to give it a try > > since > > > > had all the symptoms it stated that it was good for. > To > > > make > > > > a story short, two weeks later, started acting really > > > > strange, irritable, mean, wouldn't listen to a word I said, was > > > > waking up three to four times at night and looked so tired and > > was > > > > always crying. I wasn't thinking about the herb capsules and > was > > > > driving myself crazy wondering if maybe this is the way she was > > > going > > > > to be off the meds since we just took her off of it two weeks > > ago, > > > > then my husband said what about the herbs we just put her > > > > > on and that made sense since this was the only change we had > > > just > > > > made, so we took her off and thank God she's back to her happy > > > normal > > > > self, but I was really worried for awhile there. It was a > > mixture > > > of > > > > about 10 herbs in one capsule and she had me give 3 > > > capsules > > > > twice a day. When I called her to tell her what was happening, > > she > > > > said that noone ever complained about this product, I don't > know > > > > whether this is true or not, but the fact is that it didn't > work > > > for > > > > . Herbs are a litle more tricky than supplements even > > the > > > > more common ones, so you do have to do your homework or work > with > > a > > > > real professional when trying them specially on children. > > > > > > > > > > Grace > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2005 Report Share Posted April 18, 2005 Zoe, For now, I will leave things the way they are. I'm always willing to take chances with myself, but when it comes to , I always research and think twice before trying anything new on her. As you know, is developmentally delayed and doesn't question anything I give her, she depends on me to do my research and the right thing by her. I always mean well when trying to help her, but kick myself when and if things don't work out because I feel that I've let her down, it's the old guilt trip. Anyway, thanks again for everything and the great advice. Grace zoe88025 <Zll51@...> wrote: It's really so difficult to know what to do, and scarey to have to take risks in dealing with seizures. I screwed myself up more than a few times " experimenting " when learning to bring mine under control. thought of myself as the " Sorcerer's apprentice. " We have to be so cautious. Mark Schauss' comments are a real help too. Also, don't forget your pharmacist may be a great ally. You can ask her or him how to find out if norepinephrine (or anything else you are looking into) will lower the seizure threshold. Zoe > > > > > Zoe, > > > > > > > > > > Thanks for your help! I just learned a real lesson on herbs > > and > > > > how they can cause problems if they are not right for you. I > > went > > > to > > > > this Homeopath for a consultation and I decided at that time to > > > wait > > > > until was off her meds before deciding what we should > do > > > to > > > > help her naturally. Well, we started talking about 's > > ADD > > > > and she recommended this herb concoction called Calm Jr. and > > after > > > > reading the pamphlet she gave me, I decided to give it a try > > since > > > > had all the symptoms it stated that it was good for. > To > > > make > > > > a story short, two weeks later, started acting really > > > > strange, irritable, mean, wouldn't listen to a word I said, was > > > > waking up three to four times at night and looked so tired and > > was > > > > always crying. I wasn't thinking about the herb capsules and > was > > > > driving myself crazy wondering if maybe this is the way she was > > > going > > > > to be off the meds since we just took her off of it two weeks > > ago, > > > > then my husband said what about the herbs we just put her > > > > > on and that made sense since this was the only change we had > > > just > > > > made, so we took her off and thank God she's back to her happy > > > normal > > > > self, but I was really worried for awhile there. It was a > > mixture > > > of > > > > about 10 herbs in one capsule and she had me give 3 > > > capsules > > > > twice a day. When I called her to tell her what was happening, > > she > > > > said that noone ever complained about this product, I don't > know > > > > whether this is true or not, but the fact is that it didn't > work > > > for > > > > . Herbs are a litle more tricky than supplements even > > the > > > > more common ones, so you do have to do your homework or work > with > > a > > > > real professional when trying them specially on children. > > > > > > > > > > Grace > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2005 Report Share Posted April 19, 2005 Zoe, Thanks again for the great encouraging words and the tears they helped bring out. You truly are a great person. Grace zoe88025 <Zll51@...> wrote: Dear Grace, Go easy on yourself. You are a wonderful mom. What sort of parent would you be if you were unwilling to take risks, especially in uncharted territory? No one can fault you for taking a well thought out risk, ever. Pat yourself on the back for all the extraordinary efforts you take for your children, not just . Zoe > > > > > > Zoe, > > > > > > > > > > > > Thanks for your help! I just learned a real lesson on > herbs > > > and > > > > > how they can cause problems if they are not right for you. I > > > went > > > > to > > > > > this Homeopath for a consultation and I decided at that time > to > > > > wait > > > > > until was off her meds before deciding what we > should > > do > > > > to > > > > > help her naturally. Well, we started talking about > 's > > > ADD > > > > > and she recommended this herb concoction called Calm Jr. and > > > after > > > > > reading the pamphlet she gave me, I decided to give it a try > > > since > > > > > had all the symptoms it stated that it was good for. > > To > > > > make > > > > > a story short, two weeks later, started acting > really > > > > > strange, irritable, mean, wouldn't listen to a word I said, > was > > > > > waking up three to four times at night and looked so tired > and > > > was > > > > > always crying. I wasn't thinking about the herb capsules and > > was > > > > > driving myself crazy wondering if maybe this is the way she > was > > > > going > > > > > to be off the meds since we just took her off of it two weeks > > > ago, > > > > > then my husband said what about the herbs we just put her > > > > > > on and that made sense since this was the only change we > had > > > > just > > > > > made, so we took her off and thank God she's back to her > happy > > > > normal > > > > > self, but I was really worried for awhile there. It was a > > > mixture > > > > of > > > > > about 10 herbs in one capsule and she had me give 3 > > > > capsules > > > > > twice a day. When I called her to tell her what was > happening, > > > she > > > > > said that noone ever complained about this product, I don't > > know > > > > > whether this is true or not, but the fact is that it didn't > > work > > > > for > > > > > . Herbs are a litle more tricky than supplements > even > > > the > > > > > more common ones, so you do have to do your homework or work > > with > > > a > > > > > real professional when trying them specially on children. > > > > > > > > > > > > Grace > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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