Re: Vitamin and mineral (etc) deficiencies

December 21, 2002

Hi ,

I guess it depends on what type of tests you are thinking of, but if its testing

for the imbalances and deficiencies we have been talking about, then I would

push inspite of what your doctor has told you. What have you got to lose but an

imbalance and the ill health that is resulting from it. I would think answering

to any defiency and building the health of my child would be cause enough...what

a great side effect...if it just so happens to decrease or eliminate their

seizures. Not meaning to sound harsh , but the ultimate responsibility of

your childs health lies in your hands...not your doctors.

Just my opinion,

Lorinda

McLauchlan <slmclauchlan@...> wrote:Anyone:

With all the talk lately about deficiencies and lack of balance in various

things, I'm wondering, are all seizure types affected by these various

things? If you have a certain type of unbalance are you more likely to have

absence seizures, and with a different unbalance would you have grand mal,

and with another type of unbabalance would you have simple partial, and

another would give you complex partial? Are different areas of the brain

more likely to be involved with different types of deficiencies (ie. left or

right temporal lobe, ocipital lobe, etc.)?

I wonder this because the doctor keeps telling me that with my son's type of

seizure (simple partial with a definite focal point) certain things are

definitely not the cause. I wonder how far I should push for certain tests

with this DEFINITE unliklihood.

Any responses on this would be GREATLY appreciated.

Thanks.

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December 21, 2002

,

I'm not very diplomatic, am I. I'm aware of this and appologize. Sometimes I

look at my posts and wonder how my words get so jumbled up and why someone

hasn't bitten my head off yet. What I say really is meant with tenderness and

sympathy.

L.

Lorinda <lorindarose@...> wrote:

Hi ,

I guess it depends on what type of tests you are thinking of, but if its testing

for the imbalances and deficiencies we have been talking about, then I would

push inspite of what your doctor has told you. What have you got to lose but an

imbalance and the ill health that is resulting from it. I would think answering

to any defiency and building the health of my child would be cause enough...what

a great side effect...if it just so happens to decrease or eliminate their

seizures. Not meaning to sound harsh , but the ultimate responsibility of

your childs health lies in your hands...not your doctors.

Just my opinion,

Lorinda

McLauchlan wrote:Anyone:

With all the talk lately about deficiencies and lack of balance in various

things, I'm wondering, are all seizure types affected by these various

things? If you have a certain type of unbalance are you more likely to have

absence seizures, and with a different unbalance would you have grand mal,

and with another type of unbabalance would you have simple partial, and

another would give you complex partial? Are different areas of the brain

more likely to be involved with different types of deficiencies (ie. left or

right temporal lobe, ocipital lobe, etc.)?

I wonder this because the doctor keeps telling me that with my son's type of

seizure (simple partial with a definite focal point) certain things are

definitely not the cause. I wonder how far I should push for certain tests

with this DEFINITE unliklihood.

Any responses on this would be GREATLY appreciated.

Thanks.

_________________________________________________________________

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December 21, 2002

,

As a person with epilepsy who just recently discovered from piecing

historical events together along with the results of an MRI scan that my

disorder has nothing to do with a vitamin or mineral deficiency. It was

the result of a trauma to my brain before I was even born. I do not

mean to imply that your situation may not be the result of a

deficiency. However, if you don't know the cause of your epilepsy, I

would not simply assume it is a deficiency of certain nutrients. After

all, if the problem is not caused by a nutrient deficiency, you are not

likely to solve the problem by changing your diet.

I think the biggest challenge for people with epilepsy is to find out

first why they have the disorder. Then, find out - based on what caused

the problem in the first place, what your options are for solving it or

at least bringing it under control. For most of my life I believed a

lie concerning my epilepsy. I thought it was the result of a high

school football scrimage and running three miles home (uphill)

afterward. But, this was simply the event which triggered my disorder.

The true cause was much more sinister. It look a long time for me to

uncover the true cause. What proved very helpful to me was going online

and asking doctors who treat epilepsy what they thought about my

situation. Believe it or not, some doctors will actually respond to

questions via e-mail. If you're interested in online medical feedback,

check out the resources on our group website -

.

Good luck.

Lamar

McLauchlan wrote:

> Anyone:

> With all the talk lately about deficiencies and lack of balance in

> various

> things, I'm wondering, are all seizure types affected by these various

>

> things? If you have a certain type of unbalance are you more likely

> to have

> absence seizures, and with a different unbalance would you have grand

> mal,

> and with another type of unbabalance would you have simple partial,

> and

> another would give you complex partial? Are different areas of the

> brain

> more likely to be involved with different types of deficiencies (ie.

> left or

> right temporal lobe, ocipital lobe, etc.)?

>

> I wonder this because the doctor keeps telling me that with my son's

> type of

> seizure (simple partial with a definite focal point) certain things

> are

> definitely not the cause. I wonder how far I should push for certain

> tests

> with this DEFINITE unliklihood.

>

> Any responses on this would be GREATLY appreciated.

>

> Thanks.

>

December 21, 2002

They have found that vitamin B is very important to make the brain fuction

properly. It stimulates the cells to be more active. It is also easy to get

low of calicum because a lot of seizure meds wont toterate much dairy

products. Wish you all a Merry Christmas and Happy New Year.

December 21, 2002

In addition to the B vitamins, we find that minerals -- especially Calcium

and Magnesium plus amino acids like l-taurine -- important in helping my son

function better.

mjh

In a message dated 12/22/02 7:25:35 AM Eastern Standard Time,

writes:

> Message: 8

> Date: Sat, 21 Dec 2002 18:09:54 EST

> From: 42122@...

> Subject: Re: Vitamin and mineral (etc) deficiencies

>

> They have found that vitamin B is very important to make the brain fuction

> properly. It stimulates the cells to be more active. It is also easy to

> get

> low of calicum because a lot of seizure meds wont toterate much dairy

> products. Wish you all a Merry Christmas and Happy New Year.

>

December 22, 2002

Lorinda:

Apology accepted. I'm sometimes not very tactful either, so I understand.

Sometimes the words just come out.

Anyway, I guess I should push for the tests. In the back of my mind I know

I should just do it, but it's so hard for me when the doctor keeps saying

that it won't do any good. That's why I was wondering if there was any

evidence of certain deficiencies being linked to certain types of seizures.

That way I could throw that back at the doctor.

Thanks for the push.

>From: Lorinda <lorindarose@...>

>Date: Sat, 21 Dec 2002 09:24:27 -0800 (PST)

>

>,

>I'm not very diplomatic, am I. I'm aware of this and appologize. Sometimes

>I look at my posts and wonder how my words get so jumbled up and why

>someone hasn't bitten my head off yet. What I say really is meant with

>tenderness and sympathy.

>L.

> Lorinda <lorindarose@...> wrote:

>Hi ,

>I guess it depends on what type of tests you are thinking of, but if its

>testing for the imbalances and deficiencies we have been talking about,

>then I would push inspite of what your doctor has told you. What have you

>got to lose but an imbalance and the ill health that is resulting from it.

>I would think answering to any defiency and building the health of my child

>would be cause enough...what a great side effect...if it just so happens to

>decrease or eliminate their seizures. Not meaning to sound harsh ,

>but the ultimate responsibility of your childs health lies in your

>hands...not your doctors.

>Just my opinion,

>Lorinda

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December 22, 2002

Thanks for understanding . Its just cause I care.

On top of the challenge of having to find out what the cause is, we have the

other challenge of being treated like a whole being rather than a disorder. I

don't know how many times I've gone in to ask my doctor if he could help me look

into something and he has insisted that it has nothing to do with my disorder.

Then I have to gently remind him that there are other issues, that whether

directly related to my " disorder " or not, may be affecting my TOTAL well being.

You only have to become ill to know how the weakening of your system affects

your seizure threshold.

I also know what it is like looking for evidence to help my case...it can be

hell. I don't know where you would find the evidence you are looking for , it

sounds kinda far fetched. Im presuming that you are trying to get your

neurologist to do the testing for you? If so, I would go to a G.P.instead and

just tell him (not ask him) that you would like to have these tests run for your

child's general well being...and not even bring up the seizures. If he becomes

alittle stubborn.. there are other ways. I don't know what they are .. but I

know they exist.... I'm sure someone else in group knows how this can be

accomplished. I'm just a lowly student myself.

Lorinda

McLauchlan <slmclauchlan@...> wrote:Lorinda:

Apology accepted. I'm sometimes not very tactful either, so I understand.

Sometimes the words just come out.

Anyway, I guess I should push for the tests. In the back of my mind I know

I should just do it, but it's so hard for me when the doctor keeps saying

that it won't do any good. That's why I was wondering if there was any

evidence of certain deficiencies being linked to certain types of seizures.

That way I could throw that back at the doctor.

Thanks for the push.

>From: Lorinda

>Date: Sat, 21 Dec 2002 09:24:27 -0800 (PST)

>

>,

>I'm not very diplomatic, am I. I'm aware of this and appologize. Sometimes

>I look at my posts and wonder how my words get so jumbled up and why

>someone hasn't bitten my head off yet. What I say really is meant with

>tenderness and sympathy.

>L.

> Lorinda wrote: