new member and a few questions

[Guest guest]

Tina -

My daughter's MRI was normal. We had a test called MRS. It showed damage to

the corpus closum, this didn't show up on the MRI. Hope this helps,

[Guest guest]

Hello everyone,

My name is Tina and i just joined your little group. I have been married to

my wonderful husband for 5 years now and he has recently started having grand

mal then small seizures right behind that. He is 27 and as young teenager had

one or 2 seizures then didn't have any until right after we were married. He

and his Dr. decided when he was 18 that after 2 years of no seizures it was

safe to take him off his meds. (grrrrr!). So after the one he had when we got

married i tried to get him to go to the dr, but he is a trypical man and

wouldn't go. Now after 2 daughters later and small seizures he decided not to

tell me about, He had 2 grand mal and 2 small seizures in less than a 8 hour

period. But now he is on 500mg of Dilantin, 1500mg of Kepra, and 60mg of

Phenobarbotol(?). We have had a mri, eeg, and cat done but it says that there

isn't anything there. Can anyone please help me. We are both at wits ends with

this. Every week the dr just increases one of his meds. No other blood work

other than med levels has been performed. But he now realizes that he has to

take his meds or else. Also the meds make him feel " doped up " . But he

constantly has severe dizzy spells and is always sleepy. Since 3 weeks ago he

has had 1 small grand mal seizure and a small one. So the medicine is holding

the seizures at bay but these slipped in on him last week. I hope this made

sense. Any help would be greatly appreciated. thanks, tina

[Guest guest]

The MRS is a scan like the MRI. I know that only a few hosp around the US use

it. Loma in CA uses it. It is a fairly new proceedure. It scans more in

depth and picks up things that the MRI didn't.

I will try to find you more info,

[Guest guest]

MRS- Magnetic Resonance Spectroscopy

www.users.on.net/vision/spectroscopy.m

archneur.ama-assn.org

Try these,

[Guest guest]

Tina,

I see that someone else has explained to you how to get to the Bookmarks

section. But, just in case you should have difficulty, to get to the

s-Reiter website, just click on the link I give you below in this

message. It should take you right there. Then, you can read what

s-Reiter does and see if it makes sense to you. Not everyone

believes in a two-pronged approach to epilepsy treatment - utlilizing

the best that psychology and neurology have to offer. But, I have a

feeling most of those critics have never tried it. However, Dr. s

helped put an end to 34 years of drug treatment for me and improved my

overall quality of life in the process. You figure if people from all

over the world come to a little-known town like Santa , CA for

epilepsy treatment, that clinic must be doing something right. The fact

they have been around for more than 20 years is another indication that

they know what they are doing. Quite frankly, I am surprised they are

willing take as much time as they do with people who are not even

patients - be it via email or on the phone. If you get the opportunity

to speak with one of the doctors on the phone, I think you will be

impressed.

You will find the email address at the bottom of the home page. Anyway,

here's the link - www.andrewsreiter.org .

Good luck.

Lamar

tina wrote:

> Dear Lamar,

> God bless you, seizure free, my husband would love to be drug and

> seizure free. He feels so dependant on everyone but knows the

> consequences if he doesn't take his meds. When i found out he had

> been having small seizures and not telling me i was so furious.

> Concerned mad and just plain ole mad. And the only reason he could

> give me that he didn't tell me was he didn't want to worry me. But

> after calming down i told him that i loved him and wanted to spend the

> rest my life with him and not a memory. And to think if he had a

> seizure while driving and had the children with him what could have

> happened. I believe made the difference. I am going to check out

> those bookmarks tomorrow. It is late now and i have to go to bed.

> thanks for this info. tina

> Re: [ ] new member and a few questions

>

>

> Tina,

>

> Welcome to the group. My name is Lamar. I suffered with gran mals

> for

> 34 years before I finally got the help I really needed.

> Today, I am drug-free and nearly seizure-free. One of the things I

> found in my long journey toward victory over my epileptic disorder

> is

> that it is easy to be misdiagnosed. For most of my life I did not

> know

> why I was epileptic. I did not know what it was that triggered my

> seizures. If your husband does not know why he is epileptic and

> what it

> is that triggers his seizures, you need to take steps to find out.

> We

> have a lot of resources here in our Bookmarks section which may

> prove

> helpful.

>

> If you go to the Bookmarks section you will find a wide range of

> website

> links - including neurologist offices, epilepsy clinics and

> hospitals.

> My personal favorite is s-Rieter . You can go to this

> website

> and leave e-mail questions about your husband's condition and the

> head

> of the clinic's therapy research department will give you a personal

>

> response. But, that is not all. If you send a copy of your

> husband's

> medical record, the clinic will evaluate it for you for FREE. Why

> would

> a clinic bother to do that? Because they only treat people whose

> epileptic condition falls within their treatment parameters.

> s-Reiter specializes in treating only epilepsy - but within

> certain limitations. For example, the clinic rarely treats children

>

> under 8 years of age or people who have had brain surgery.

>

> Not all links in the Bookmarks section are epilepsy-specific.

> Consider

> the website called The Mind Spa . They do neurophyisical

> assessments.

> This is a precursor to EEG Biofeedback. If you ever wondered how

> well

> your brain functions, this examination can reveal a great deal. I

> speak

> from experience because I had this test done. Not only did I

> witness my

> brainwave patterns in real time on a computer screen, but I saw

> light

> patterns and sound rhythms change them for the better as well. You

> need

> not be epileptic to benefit from this examination. Athletes use it

> to

> enhance their athletic performance. College students use it to

> improve

> their academic performance - including boosting their IQ 3-4%.

> Business

> people use it to reduce stress.

>

> If your husband is serious about getting his seizure disorder under

> control, I believe we have resources - through our members and our

> Bookmark section - which can give provide him with the guidance and

> direction he needs. It simply takes a little time and effort to get

>

> acquainted.

>

> Good luck.

>

> Lamar

>

>

> tina wrote:

>

> > Hello everyone,

> > My name is Tina and i just joined your little group. I have

> been

> > married to my wonderful husband for 5 years now and he has

> recently

> > started having grand mal then small seizures right behind that.

> He is

> > 27 and as young teenager had one or 2 seizures then didn't have

> any

> > until right after we were married. He and his Dr. decided when

> he

> > was 18 that after 2 years of no seizures it was safe to take him

> off

> > his meds. (grrrrr!). So after the one he had when we got married

> i

> > tried to get him to go to the dr, but he is a trypical man and

> > wouldn't go. Now after 2 daughters later and small seizures he

> > decided not to tell me about, He had 2 grand mal and 2 small

> seizures

> > in less than a 8 hour period. But now he is on 500mg of Dilantin,

>

> > 1500mg of Kepra, and 60mg of Phenobarbotol(?). We have had a mri,

>

> > eeg, and cat done but it says that there isn't anything there.

> Can

> > anyone please help me. We are both at wits ends with this. Every

>

> > week the dr just increases one of his meds. No other blood work

> other

> > than med levels has been performed. But he now realizes that he

> has

> > to take his meds or else. Also the meds make him feel " doped up " .

>

> > But he constantly has severe dizzy spells and is always sleepy.

> Since

> > 3 weeks ago he has had 1 small grand mal seizure and a small one.

> So

> > the medicine is holding the seizures at bay but these slipped in

> on

> > him last week. I hope this made sense. Any help would be greatly

> > appreciated. thanks, tina

> >

> >

> >

[Guest guest]

Dear ,

What is an MRS? Did you have to go to a research hospital to have it? Did your

doctor suggest the test, or did you have to find out about it and then ask the

doctor to implement the MRS?

Carrol

chipperdona@... wrote: Tina -

My daughter's MRI was normal. We had a test called MRS. It showed damage to

the corpus closum, this didn't show up on the MRI. Hope this helps,

[Guest guest]

to Carrol and the rest of the group,

You know often times we read something and discard it. I would like to

re-post this list, take it seriously because your answer may be there.

Also, Carrol stated that her seizures are triggered by dehydration, stress

etc. Carrol there are two books out that I think would be beneficial. 1) A

new book by Don Colbert " TOXIC RELIEF " 2) THE BODIES CRY FOR WATER.

You must keep in mind, not all seizures have the same answer.

In my daughter's case it was dental amalgams, those silver things in our

mouths that contain up to 53% mercury.

However, here is the list again, chances are you are some where on there:

Also, go for the obvius things

1. Are you in a new home? (believe it or not riply, air tight doesn't

always mean healthy)

2. Dental work with amalgams

3. Recent vaccinations

4. Gut problems/too much gluten and cassein (milk and wheat)

5. Prepensity to have mold or fungas in the house?

6. Stress, loss of sleep?

7. Viral process (stealth?) www.ccid.org , CMV? Herpes 6?

8. Hows the digestive juices?

9. Drink water, what kind?

10. Flouride in your water, your use on teeth?

11. How many black fillings do you have?

12. rid the house of all organophosphates, cleaners, volitile chemicals,

green lawn person, work environment? etc

13. Any other health problems in the family?

14. Any thing wrong with the immune system?

15. Accident? Blow to head? Menengitis? Encephalitis? (as a child too?)

16. Vaccine injury as a child? Dpt or MMR? Are you mercury poisined?

17. What are your copper levels?

18. Zinc levels or other deficiencies?

19. Relaxation excercises, no tv watching (really-it outgasses)

20. What natural things do you take?

21. Diet too much carbos? Diet drinks?

22. Intake of protein, what kind?

23. Any fatty acid problems?

24. Coffee drinker?

Answer some of these things and see a connection?

Kathy

(mom of four kids, two autistic children, one with seizures or lets say,

much better controlled by answering the above questions )

----- Original Message -----

From: tina <asmile4u@...>

< @grou

[Guest guest]

Dear Kathy,

Thank you for your thoughtful answer to my questions. I have read " The Body's

Many Cries for Water " and found it to be very helpful and informative.

Currently I am using a rehydration formula by Elysia called, " Rehydration " and

it helps with the sodium and potassium balance in my body. We have also been

buying bottled water, because the minerals in our hard water seemed to

exacerbate my symptoms. (Specifically, I seemed to be struggling with a zinc and

copper imbalance.) A different filtration system by Brita is now being used on

our faucet, and though it tested well for our family, I'm introducing that water

to my system very gingerly.

In addition, I've elimated gluten (wheat, oats, rye and barley) from my diet, as

well as cow's milk. There is no question in my mind that dietary and

gastrointestinal factors are a key to my situation. I don't drink coffee or

alcohol, smoke or use toxic cleaners in my home, and I'm on a high protein, low

carbohydrate diet simply because I feel better when I don't eat carbs.

My nutritional supplementation has been monitored by a nutritionist/biochemist

and a GYN doctor who frequently runs blood tests. I take Taurine, gamma-linolic

acid, B-12 shots weekly, prescription sub-lingual B-comlex drops,

Acetyl-L-Carnitine, DMG, black cohosh, probiotics and some other general

supplements like Vitamins D, E and C. I struggle with B-12 and iron anemia, and

I believe it may well be due to a mal-absorption problem that I haven't been

able to solve.

I've looked at the majority of the considerations you mentioned and am still

working through some others. It's a great list, however, and it helped me to

rethink the processes I've undertaken. Thank you!

I'm very interested in what you wrote about viral considerations. How does one

go about finding the viruses you mentioned? Did you have research overseen by a

neurologist to look for these potential problems, or did you have to utilize

another doctor? Did your insurance cover such tests?

Thank you Kathy, for your time and thoughtful consideration.

Carrol

I will also look for " Toxic Relief, " since that is a new book to me.

Traceygrubbs@... wrote: to Carrol and the rest of the group,

You know often times we read something and discard it. I would like to

re-post this list, take it seriously because your answer may be there.

Also, Carrol stated that her seizures are triggered by dehydration, stress

etc. Carrol there are two books out that I think would be beneficial. 1) A

new book by Don Colbert " TOXIC RELIEF " 2) THE BODIES CRY FOR WATER.

You must keep in mind, not all seizures have the same answer.

In my daughter's case it was dental amalgams, those silver things in our

mouths that contain up to 53% mercury.

However, here is the list again, chances are you are some where on there:

Also, go for the obvius things

1. Are you in a new home? (believe it or not riply, air tight doesn't

always mean healthy)

2. Dental work with amalgams

3. Recent vaccinations

4. Gut problems/too much gluten and cassein (milk and wheat)

5. Prepensity to have mold or fungas in the house?

6. Stress, loss of sleep?

7. Viral process (stealth?) www.ccid.org , CMV? Herpes 6?

8. Hows the digestive juices?

9. Drink water, what kind?

10. Flouride in your water, your use on teeth?

11. How many black fillings do you have?

12. rid the house of all organophosphates, cleaners, volitile chemicals,

green lawn person, work environment? etc

13. Any other health problems in the family?

14. Any thing wrong with the immune system?

15. Accident? Blow to head? Menengitis? Encephalitis? (as a child too?)

16. Vaccine injury as a child? Dpt or MMR? Are you mercury poisined?

17. What are your copper levels?

18. Zinc levels or other deficiencies?

19. Relaxation excercises, no tv watching (really-it outgasses)

20. What natural things do you take?

21. Diet too much carbos? Diet drinks?

22. Intake of protein, what kind?

23. Any fatty acid problems?

24. Coffee drinker?

Answer some of these things and see a connection?

Kathy

(mom of four kids, two autistic children, one with seizures or lets say,

much better controlled by answering the above questions )

----- Original Message -----

From: tina <asmile4u@...>

< @grou

[Guest guest]

CArol

We found out my entire famiy is stealth virus infected. Generally speaking

it is from the polio sugar cube i had when a child. This can be passed on

to my children. And or, it is or seems to be communicable. Here is a

little ditty on it this morning of interest from the autism circles, and let

me reference, I think a lot of epleptics have this virus too. We had ours

tested with CCID at www.ccid.org . The reason I ultimately looked into the

virus, was the fact I was researching in a round about way on my mothers

cancer, myeloma. Seems as though autism and this cancer ARE CONNECTED

through this virus. I nearly fell off my chair when I read the report on

myeloma and autism connection. Both being an autoimmune type of response to

viruses and toxins. Many other vaccines are contaminated by animal

zoonotic viruses, and so if any vaccinatations you received, I would highly

suspect there contributors to seizures. (along with the neurotoxins).

> > http://hhv6.freeservers.com/editorialautism1.htm

> >

> > What Autism-Spectrum Activists Need to Know about HHV-6

> > People concerned about autism-spectrum diseases can't help but turn

their

> > attention to HHV-6. What they need to know is that HHV-6 is more of a

> > political matter than a scientific one. It is a virus tied up

politically

> in

> > a cover-up. Why is HHV-6 not the center of scientific attention in

> America?

> > Because it seems to be the cause of both AIDS and Chronic Fatigue

> Syndrome.

> > And that's just for starters. The odds are that it is also the cause of

a

> > whole array of immune disorders. Well-intentioned autism-spectrum

> activists

> > may think that the practical solution to this would be to just finance

> more

> > research into HHV-6. This is reasonable, but it doesn't take into

account

> the

> > sinister politics that are keeping a lid on research into the virus.

> > AIDS researchers (the HIV Mafia), and their fawning activists, hate the

> mere

> > mention of HHV-6 because all of the emerging science on HHV-6 shows that

> it

> > is the cause of immune destruction and not HIV. This means that HIV is

not

> > only a mistake but also a massive fraud because it has been deliberately

> > propped up by scientists who have elbowed out all reasonable competition

> to

> > the HIV theory of AIDS causation. HIV is the Big Lie of out time and

> anyone

> > suffering from any form of HHV-6 disease (including autism-spectrum) is

> > caught up in the massive collateral damage of this deceit.

> > Although HHV-6 is all too clearly responsible for Chronic Fatigue

> Syndrome,

> > or more correctly, Chronic Fatigue and Immune Dysfunction Syndrome, or

> even

> > or even more correctly, " Chronic AIDS, " activists and researchers in

this

> > area hate to admit that this links the CFS epidemic back to AIDS. Some

CFS

> > activists don't even want to admit that their epidemic is a contagious

> viral

> > one. So the mere mention of " AIDS, " sends them running to the hills.

Like

> we

> > said, HHV-6 is a political matter.

> > As if those political problems were not daunting enough, there is also

the

> > issue of animal transmission to deal with. The fact that many people who

> have

> > CFS and own pets seem to often have sick pets that are suffering a

similar

> > syndrome suggests that HHV-6 is being transmitted between people and

pets.

> > And as far as we're concerned, the allegation that HHV-6 is actually a

> form

> > of African Swine Fever Virus is still an open question, and one that

> > autism-spectrum investigators might want to look into. People with

> > autism-spectrum children may want to have their pets tested for HHV-6.

> They

> > might also be well advised to look at the epidemic of immune deficiency

> (and

> > apoptosis) that has been a problem in pigs in this country and around

the

> > world for the last two decades.

> >

> >

> > Tina M. Hendrix

> > Cure2000@...

> > Vice-President, California Coalition

> > Neuro-Immune Dysfunction Syndromes

> > Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity,

> CFS,

> > etc.

Too wierd for words....

Kathy

Re: [ ] new member and a few questions

>

> Dear Kathy,

> Thank you for your thoughtful answer to my questions. I have read " The

Body's Many Cries for Water " and found it to be very helpful and

informative. Currently I am using a rehydration formula by Elysia called,

" Rehydration " and it helps with the sodium and potassium balance in my body.

We have also been buying bottled water, because the minerals in our hard

water seemed to exacerbate my symptoms. (Specifically, I seemed to be

struggling with a zinc and copper imbalance.) A different filtration

system by Brita is now being used on our faucet, and though it tested well

for our family, I'm introducing that water to my system very gingerly.

>

> In addition, I've elimated gluten (wheat, oats, rye and barley) from my

diet, as well as cow's milk. There is no question in my mind that dietary

and gastrointestinal factors are a key to my situation. I don't drink

coffee or alcohol, smoke or use toxic cleaners in my home, and I'm on a high

protein, low carbohydrate diet simply because I feel better when I don't eat

carbs.

>

> My nutritional supplementation has been monitored by a

nutritionist/biochemist and a GYN doctor who frequently runs blood tests. I

take Taurine, gamma-linolic acid, B-12 shots weekly, prescription

sub-lingual B-comlex drops, Acetyl-L-Carnitine, DMG, black cohosh,

probiotics and some other general supplements like Vitamins D, E and C. I

struggle with B-12 and iron anemia, and I believe it may well be due to a

mal-absorption problem that I haven't been able to solve.

>

> I've looked at the majority of the considerations you mentioned and am

still working through some others. It's a great list, however, and it

helped me to rethink the processes I've undertaken. Thank you!

>

> I'm very interested in what you wrote about viral considerations. How

does one go about finding the viruses you mentioned? Did you have research

overseen by a neurologist to look for these potential problems, or did you

have to utilize another doctor? Did your insurance cover such tests?

>

> Thank you Kathy, for your time and thoughtful consideration.

>

> Carrol

>

>

>

> I will also look for " Toxic Relief, " since that is a new book to me.

> Traceygrubbs@... wrote: to Carrol and the rest of the group,

> You know often times we read something and discard it. I would like to

> re-post this list, take it seriously because your answer may be there.

> Also, Carrol stated that her seizures are triggered by dehydration, stress

> etc. Carrol there are two books out that I think would be beneficial. 1) A

> new book by Don Colbert " TOXIC RELIEF " 2) THE BODIES CRY FOR WATER.

> You must keep in mind, not all seizures have the same answer.

> In my daughter's case it was dental amalgams, those silver things in our

> mouths that contain up to 53% mercury.

> However, here is the list again, chances are you are some where on there:

> Also, go for the obvius things

> 1. Are you in a new home? (believe it or not riply, air tight doesn't

> always mean healthy)

> 2. Dental work with amalgams

> 3. Recent vaccinations

> 4. Gut problems/too much gluten and cassein (milk and wheat)

> 5. Prepensity to have mold or fungas in the house?

> 6. Stress, loss of sleep?

> 7. Viral process (stealth?) www.ccid.org , CMV? Herpes 6?

> 8. Hows the digestive juices?

> 9. Drink water, what kind?

> 10. Flouride in your water, your use on teeth?

> 11. How many black fillings do you have?

> 12. rid the house of all organophosphates, cleaners, volitile chemicals,

> green lawn person, work environment? etc

> 13. Any other health problems in the family?

> 14. Any thing wrong with the immune system?

> 15. Accident? Blow to head? Menengitis? Encephalitis? (as a child

too?)

> 16. Vaccine injury as a child? Dpt or MMR? Are you mercury poisined?

> 17. What are your copper levels?

> 18. Zinc levels or other deficiencies?

> 19. Relaxation excercises, no tv watching (really-it outgasses)

> 20. What natural things do you take?

> 21. Diet too much carbos? Diet drinks?

> 22. Intake of protein, what kind?

> 23. Any fatty acid problems?

> 24. Coffee drinker?

>

> Answer some of these things and see a connection?

>

> Kathy

> (mom of four kids, two autistic children, one with seizures or lets say,

> much better controlled by answering the above questions )

> ----- Original Message -----

> From: tina <asmile4u@...>

> < @grou

>

>

[Guest guest]

Lamar,

The Mind Spa that you were talking about, I pulled up the web page and it

sounds interesting. However, I am curious to how they work with you. Is it

like therapy were you go 2-3 times a week for a certain time or is it like a

one session deal? I realize this may depend upon the individuals goals.

Tracey

[Guest guest]

Dear Kathy,

This is very interesting. My father has been diagnosed with inoperable brain

cancer, and is now in hospice, waiting to die. (My parents think all of the

nutritional and " alternative " things I do are " bunk " so, " you can lead a horse

to water but you can't make him drink. " ) Prior to his diagnosis in March, Dad

and I were comparing some of our symptoms, because he had seizures for five

years before being diagnosed. It certainly makes me question many links between

his situation and mine . . .

I wonder what connections there are between epilepsy, cancer and auto-immune

disorders. Dad had polio as a child and recovered, though he seemed to develop

a rebound response later in life, a condition which is little known by most

medical doctors. A rheumatologist that I have seen over the years has told me

repeatedly that he believes an auto-immune disorder will be revealed in my body

at any time. Could there be a relationship between my polio vaccine, Dad's

polio experience and the brain susceptibility that we both have demonstrated?

I'm asking these questions, in part, because I'm trying to brainstorm solutions.

I'm also asking these questions because I have found little to no help from the

doctors I have seen. Their only response has been to give me drugs, which opens

a whole " Pandora's Box " for me, and others. The insights I've gained from " real

people, " who are going through " real " struggles, have helped me far more than

those who purport to be " experts " on my situation. If I say any more about

that, I'll digress, and my only intention is to go forward.

What are your thoughts about the relationships between cancer, autism and

epilepsy? I value your input,

Thank you!

Carrol

<kblanco@...> wrote: CArol

We found out my entire famiy is stealth virus infected. Generally speaking

it is from the polio sugar cube i had when a child. This can be passed on

to my children. And or, it is or seems to be communicable. Here is a

little ditty on it this morning of interest from the autism circles, and let

me reference, I think a lot of epleptics have this virus too. We had ours

tested with CCID at www.ccid.org . The reason I ultimately looked into the

virus, was the fact I was researching in a round about way on my mothers

cancer, myeloma. Seems as though autism and this cancer ARE CONNECTED

through this virus. I nearly fell off my chair when I read the report on

myeloma and autism connection. Both being an autoimmune type of response to

viruses and toxins. Many other vaccines are contaminated by animal

zoonotic viruses, and so if any vaccinatations you received, I would highly

suspect there contributors to seizures. (along with the neurotoxins).

> > http://hhv6.freeservers.com/editorialautism1.htm

> >

> > What Autism-Spectrum Activists Need to Know about HHV-6

> > People concerned about autism-spectrum diseases can't help but turn

their

> > attention to HHV-6. What they need to know is that HHV-6 is more of a

> > political matter than a scientific one. It is a virus tied up

politically

> in

> > a cover-up. Why is HHV-6 not the center of scientific attention in

> America?

> > Because it seems to be the cause of both AIDS and Chronic Fatigue

> Syndrome.

> > And that's just for starters. The odds are that it is also the cause of

a

> > whole array of immune disorders. Well-intentioned autism-spectrum

> activists

> > may think that the practical solution to this would be to just finance

> more

> > research into HHV-6. This is reasonable, but it doesn't take into

account

> the

> > sinister politics that are keeping a lid on research into the virus.

> > AIDS researchers (the HIV Mafia), and their fawning activists, hate the

> mere

> > mention of HHV-6 because all of the emerging science on HHV-6 shows that

> it

> > is the cause of immune destruction and not HIV. This means that HIV is

not

> > only a mistake but also a massive fraud because it has been deliberately

> > propped up by scientists who have elbowed out all reasonable competition

> to

> > the HIV theory of AIDS causation. HIV is the Big Lie of out time and

> anyone

> > suffering from any form of HHV-6 disease (including autism-spectrum) is

> > caught up in the massive collateral damage of this deceit.

> > Although HHV-6 is all too clearly responsible for Chronic Fatigue

> Syndrome,

> > or more correctly, Chronic Fatigue and Immune Dysfunction Syndrome, or

> even

> > or even more correctly, " Chronic AIDS, " activists and researchers in

this

> > area hate to admit that this links the CFS epidemic back to AIDS. Some

CFS

> > activists don't even want to admit that their epidemic is a contagious

> viral

> > one. So the mere mention of " AIDS, " sends them running to the hills.

Like

> we

> > said, HHV-6 is a political matter.

> > As if those political problems were not daunting enough, there is also

the

> > issue of animal transmission to deal with. The fact that many people who

> have

> > CFS and own pets seem to often have sick pets that are suffering a

similar

> > syndrome suggests that HHV-6 is being transmitted between people and

pets.

> > And as far as we're concerned, the allegation that HHV-6 is actually a

> form

> > of African Swine Fever Virus is still an open question, and one that

> > autism-spectrum investigators might want to look into. People with

> > autism-spectrum children may want to have their pets tested for HHV-6.

> They

> > might also be well advised to look at the epidemic of immune deficiency

> (and

> > apoptosis) that has been a problem in pigs in this country and around

the

> > world for the last two decades.

> >

> >

> > Tina M. Hendrix

> > Cure2000@...

> > Vice-President, California Coalition

> > Neuro-Immune Dysfunction Syndromes

> > Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity,

> CFS,

> > etc.

Too wierd for words....

Kathy

Re: [ ] new member and a few questions

>

> Dear Kathy,

> Thank you for your thoughtful answer to my questions. I have read " The

Body's Many Cries for Water " and found it to be very helpful and

informative. Currently I am using a rehydration formula by Elysia called,

" Rehydration " and it helps with the sodium and potassium balance in my body.

We have also been buying bottled water, because the minerals in our hard

water seemed to exacerbate my symptoms. (Specifically, I seemed to be

struggling with a zinc and copper imbalance.) A different filtration

system by Brita is now being used on our faucet, and though it tested well

for our family, I'm introducing that water to my system very gingerly.

>

> In addition, I've elimated gluten (wheat, oats, rye and barley) from my

diet, as well as cow's milk. There is no question in my mind that dietary

and gastrointestinal factors are a key to my situation. I don't drink

coffee or alcohol, smoke or use toxic cleaners in my home, and I'm on a high

protein, low carbohydrate diet simply because I feel better when I don't eat

carbs.

>

> My nutritional supplementation has been monitored by a

nutritionist/biochemist and a GYN doctor who frequently runs blood tests. I

take Taurine, gamma-linolic acid, B-12 shots weekly, prescription

sub-lingual B-comlex drops, Acetyl-L-Carnitine, DMG, black cohosh,

probiotics and some other general supplements like Vitamins D, E and C. I

struggle with B-12 and iron anemia, and I believe it may well be due to a

mal-absorption problem that I haven't been able to solve.

>

> I've looked at the majority of the considerations you mentioned and am

still working through some others. It's a great list, however, and it

helped me to rethink the processes I've undertaken. Thank you!

>

> I'm very interested in what you wrote about viral considerations. How

does one go about finding the viruses you mentioned? Did you have research

overseen by a neurologist to look for these potential problems, or did you

have to utilize another doctor? Did your insurance cover such tests?

>

> Thank you Kathy, for your time and thoughtful consideration.

>

> Carrol

>

>

>

> I will also look for " Toxic Relief, " since that is a new book to me.

> Traceygrubbs@... wrote: to Carrol and the rest of the group,

> You know often times we read something and discard it. I would like to

> re-post this list, take it seriously because your answer may be there.

> Also, Carrol stated that her seizures are triggered by dehydration, stress

> etc. Carrol there are two books out that I think would be beneficial. 1) A

> new book by Don Colbert " TOXIC RELIEF " 2) THE BODIES CRY FOR WATER.

> You must keep in mind, not all seizures have the same answer.

> In my daughter's case it was dental amalgams, those silver things in our

> mouths that contain up to 53% mercury.

> However, here is the list again, chances are you are some where on there:

> Also, go for the obvius things

> 1. Are you in a new home? (believe it or not riply, air tight doesn't

> always mean healthy)

> 2. Dental work with amalgams

> 3. Recent vaccinations

> 4. Gut problems/too much gluten and cassein (milk and wheat)

> 5. Prepensity to have mold or fungas in the house?

> 6. Stress, loss of sleep?

> 7. Viral process (stealth?) www.ccid.org , CMV? Herpes 6?

> 8. Hows the digestive juices?

> 9. Drink water, what kind?

> 10. Flouride in your water, your use on teeth?

> 11. How many black fillings do you have?

> 12. rid the house of all organophosphates, cleaners, volitile chemicals,

> green lawn person, work environment? etc

> 13. Any other health problems in the family?

> 14. Any thing wrong with the immune system?

> 15. Accident? Blow to head? Menengitis? Encephalitis? (as a child

too?)

> 16. Vaccine injury as a child? Dpt or MMR? Are you mercury poisined?

> 17. What are your copper levels?

> 18. Zinc levels or other deficiencies?

> 19. Relaxation excercises, no tv watching (really-it outgasses)

> 20. What natural things do you take?

> 21. Diet too much carbos? Diet drinks?

> 22. Intake of protein, what kind?

> 23. Any fatty acid problems?

> 24. Coffee drinker?

>

> Answer some of these things and see a connection?

>

> Kathy

> (mom of four kids, two autistic children, one with seizures or lets say,

> much better controlled by answering the above questions )

> ----- Original Message -----

> From: tina <asmile4u@...>

> < @grou

>

>

[Guest guest]

Carrol,

Since ADD and ADHD is a concern in your family, you might consider

looking into EEG Biofeedback, also referred to as " neurofeedback. "

Spiking theta brainwave patterns is what causes the loss of information

in the memory recall process. When a person cannot remember information

they were just told it may not necessarily be that they did not heard

it. Instead, i tmay be that the information simply could not be

retrieved. It's in the brain, you just cannot find it. However,

neurofeedback therapy has been shown to facilitate the development of

new neuro pathways in the brain and less theta brainwave patterns.

This is not accomplished by eating special vitamins or going on a

special diet. As amazing as this may sound, it is accomplished by

playing special video games, along with exposure to light patterns and

sound rhythms. Had I not experienced this myself first-hand, I doubt I

would ever believe it. But, I had a neurophysical assessment once -

something of a precursor to neurofeedback. I saw my exposure - not to

video games - but just to light patterns and sound rhythms decrease my

theta brainwave patterns. I actually watched it happen on-screen, in

realtime. I was amazed.

Believe it or not, neurofeedback has been shown to re-educate the brain

- even increase a person's IQ by a small percentage.

Once again, just like taking B-complex vitamins or going on the

Ketogenic Diet, neurofeedback does not work wonders for everyone who

tries it. However, whether it works a lot, a little or not at all,

there is one good consulation - no adverse side-effects.

If you want to learn more about neurofeedback, visit The Mind Spa .

Lamar

Carrol Showalter wrote:

>

> Der Kathy,

> WOW! You really have had a difficult struggle. It's amazing and

> inspiring to see you working so hard for a solution and being so

> willing to help others as they struggle, too. What a testimony to

> your character!

>

> THANK YOU SO MUCH for what you have shared. It really makes me think

> and is giving me some new directions in which to focus my energy.

> While my father's situation is sealed by his own choice, I can still

> make a difference for myself and those around me who are willing to

> grow, too. My sister and daughter are struggling with undefined

> illness, and both are trying to find answers. My sister's resources

> are limited, and it grieves me to see her suffering so much.

> Likewise, at 19 years old, I think my daughter has a lot to offer this

> world and I don't want to see her potential hindered by physical

> limitations. Though neither have seizures, they are both younger than

> I am. Could it be that, if unarrested now, their bodies will respond

> like mine in due time? I have to keep looking and working for a

> solution.

>

> Likewise, after years of teaching and school administration, I have

> often loathed the educational response to " ADD " or " ADHD. " One child

> who was labeled (I hate that protocol in itself) " PDD, " clearly had a

> sensitivity to food dyes and chemicals in childrens' junk foods. Yet,

> every day his parents sent him to lunch with soda, chips or Cheetos,

> red Jello and, if they provided protein at all, lunch meat full of

> nitrates. We talked to the parents and watched helplessly as they put

> him on Ritalin and sent him through peripheral evaluations to no

> avail. Could the things I learn now make me a better teacher or

> school administrator when I am able to work again? I sure hope so!

>

> I will check into the information you mentioned and again, THANK YOU

> for your generous transparency. It is helpful and refreshing.

>

> Sincerely,

> Carrol

>

> <kblanco@...> wrote: Carrol

> I think they are related. In my own family, can you imagine my

> scenario?

> My father-Depression/bi polar (though not diagnosed)

> My Mom-Multiple Myeloma, ADD

> Me, CFS and ADD

> Husband, OCD and some shadowings of CFS

> Four Kids-Two autistic, one with seizures, one child ADD, another

> child OCD

> My Sister-CFS, Thyroid Problems

> Her kids-Tics, Emotional problems, Metabolic Problems

> My Brothers-Dyslexia, Alcoholism, OCD, ADD, There kids-Tics, Immune

> Problems, learning disorders, autoimmune problems, diabitis

>

> As they say...get the picture?

>

> The problem is, I think we are going to find out, though dredged

> through the

> mud of reason and or lack of exposure of what " LABS " have done, , that

> we

> are probably either are toxically loaded, virally loaded and or have

> parents

> who were, and they gave us a sort of MIASM of these at risk for bad

> health

> problems. I believe, and have talked to many researchers, that many

> cancers

> are viral and toxic, seizures and autism, viral and toxic, other

> diseases,

> viral and toxic. The two work together to form ADDUCTS on our genes,

> or

> little dysregulations or stampings of misbehavior, proteins and

> enzymes

> (even brain proteins), and metabolic dysfunction, let alone immune

> dysfunction.

>

> Read www.ccid.org and see why I put my mothers cancer and autism

> together!

> Read clinical conditions, then click on MYELOMA (I think they have two

>

> articles). Read how they say " complex neurological conditions are

> often

> seen in family members, even a mother with two autistic children " .

> Are they

> talking to me? Or about me? BOTH.

>

> That is why I got my whole family tested. My son with seizures and

> autism

> is HIGH strong positive, as well as my ADD daughter, and my other

> daughter

> with autism, and my mother with MM. All others had MODERATE positive,

> which

> means less affect systemically, but still can progress to STRONG

> positive.

> We are all on either natural antivirals or the real mccoys. The kids

> are

> doing GREAT. There is something to this when you can see a noticable

> effect. There is a group called THE STEALTH VIRUS

> PATIENT . I would try to get on there and ask away,

> lots

> of researchers etc.

>

> These are all connected in the scheme of things. We have to start

> thinking, what set us apart from our fellows? Obviously, I am not

> taling

> about car accident victims and or blunt blow to head scenarios, but

> yes,

> that is another way to destroy a brain. Probalby has a lot to do with

> our

> viral and toxic load, our glutathione levels, our APO levels, our

> Interluekin levels, our NK cell levels, etc etc et c. I would

> advocate all,

> and prove me wrong, that most people on this list are not STRONG

> POSITIVE.

> Polio reactions and post polio ME are often strong positive folks.

> Alot of

> people don't even know they have this monster. That's becuase it

> doesn't

> evoke a strong inflammatory reaction, but nevertheless can do more

> damage

> than that, especially to the CNS. When is it that an immune system

> CAN go

> awry. IMHO, infants and seniors. WHY? I'll tell you why...this is

> just in

> regards to mercury toxicity, but put in that addition, viral load.....

>

> The elderly have decreased protective glutathione and infants HAVE

> IMMATURE

> PHYSIOLOGY and METABOLISM. (creeps).. The aged are more susceptible

> to

> oxidative toxicants and becuase of that reduced ability to handle

> viruses,

> and INFANTS DO NOT MAKE BILE in the early months of life and are

> UNABLE to

> remove mercury through bilary transport, the MAJOR ROUTE for MERCURY

> REMOVAL. They also do not have a fully developed RENAL SYSTEMS. This

>

> basically gives toxicants and viruses the go ahead to do their deed.

>

> So what the glorious leaders in medicine do, is ATTACK those age

> groups by

> known NEUROTOXICANTS, VIRUSES in combination with accompyaning

> CONTAMINATION

> CELL LINES, and WHALA, they wonder why we have an epidemic of autism,

> seizures, ALS, Parkinsons, MS, Lupus, Fibromyalgia, ME, CFS, etc etc

> etc?

>

> Even a dumb mom can figure this one out.....

>

>

> Not kidding...

>

> Kathy

> Re: [ ] new member and a few questions

> >

> >

> > >

> > > Dear Kathy,

> > > Thank you for your thoughtful answer to my questions. I have read

> " The

> > Body's Many Cries for Water " and found it to be very helpful and

> > informative. Currently I am using a rehydration formula by Elysia

> called,

> > " Rehydration " and it helps with the sodium and potassium balance in

> my

> body.

> > We have also been buying bottled water, because the minerals in our

> hard

> > water seemed to exacerbate my symptoms. (Specifically, I seemed to

> be

> > struggling with a zinc and copper imbalance.) A different

> filtration

> > system by Brita is now being used on our faucet, and though it

> tested well

> > for our family, I'm introducing that water to my system very

> gingerly.

> > >

> > > In addition, I've elimated gluten (wheat, oats, rye and barley)

> from my

> > diet, as well as cow's milk. There is no question in my mind that

> dietary

> > and gastrointestinal factors are a key to my situation. I don't

> drink

> > coffee or alcohol, smoke or use toxic cleaners in my home, and I'm

> on a

> high

> > protein, low carbohydrate diet simply because I feel better when I

> don't

> eat

> > carbs.

> > >

> > > My nutritional supplementation has been monitored by a

> > nutritionist/biochemist and a GYN doctor who frequently runs blood

> tests.

> I

> > take Taurine, gamma-linolic acid, B-12 shots weekly, prescription

> > sub-lingual B-comlex drops, Acetyl-L-Carnitine, DMG, black cohosh,

> > probiotics and some other general supplements like Vitamins D, E and

> C. I

> > struggle with B-12 and iron anemia, and I believe it may well be due

> to a

> > mal-absorption problem that I haven't been able to solve.

> > >

> > > I've looked at the majority of the considerations you mentioned

> and am

> > still working through some others. It's a great list, however, and

> it

> > helped me to rethink the processes I've undertaken. Thank you!

> > >

> > > I'm very interested in what you wrote about viral considerations.

> How

> > does one go about finding the viruses you mentioned? Did you have

> research

> > overseen by a neurologist to look for these potential problems, or

> did you

> > have to utilize another doctor? Did your insurance cover such

> tests?

> > >

> > > Thank you Kathy, for your time and thoughtful consideration.

> > >

> > > Carrol

> > >

> > >

> > >

> > > I will also look for " Toxic Relief, " since that is a new book to

> me.

> > > Traceygrubbs@... wrote: to Carrol and the rest of the group,

> > > You know often times we read something and discard it. I would

> like to

> > > re-post this list, take it seriously because your answer may be

> there.

> > > Also, Carrol stated that her seizures are triggered by

> dehydration,

> stress

> > > etc. Carrol there are two books out that I think would be

> beneficial. 1)

> A

> > > new book by Don Colbert " TOXIC RELIEF " 2) THE BODIES CRY FOR

> WATER.

> > > You must keep in mind, not all seizures have the same answer.

> > > In my daughter's case it was dental amalgams, those silver things

> in our

> > > mouths that contain up to 53% mercury.

> > > However, here is the list again, chances are you are some where on

>

> there:

> > > Also, go for the obvius things

> > > 1. Are you in a new home? (believe it or not riply, air tight

> doesn't

> > > always mean healthy)

> > > 2. Dental work with amalgams

> > > 3. Recent vaccinations

> > > 4. Gut problems/too much gluten and cassein (milk and wheat)

> > > 5. Prepensity to have mold or fungas in the house?

> > > 6. Stress, loss of sleep?

> > > 7. Viral process (stealth?) www.ccid.org , CMV? Herpes 6?

> > > 8. Hows the digestive juices?

> > > 9. Drink water, what kind?

> > > 10. Flouride in your water, your use on teeth?

> > > 11. How many black fillings do you have?

> > > 12. rid the house of all organophosphates, cleaners, volitile

> chemicals,

> > > green lawn person, work environment? etc

> > > 13. Any other health problems in the family?

> > > 14. Any thing wrong with the immune system?

> > > 15. Accident? Blow to head? Menengitis? Encephalitis? (as a

> child

> > too?)

> > > 16. Vaccine injury as a child? Dpt or MMR? Are you mercury

> poisined?

> > > 17. What are your copper levels?

> > > 18. Zinc levels or other deficiencies?

> > > 19. Relaxation excercises, no tv watching (really-it outgasses)

> > > 20. What natural things do you take?

> > > 21. Diet too much carbos? Diet drinks?

> > > 22. Intake of protein, what kind?

> > > 23. Any fatty acid problems?

> > > 24. Coffee drinker?

> > >

> > > Answer some of these things and see a connection?

> > >

> > > Kathy

> > > (mom of four kids, two autistic children, one with seizures or

> lets say,

> > > much better controlled by answering the above questions )

> > > ----- Original Message -----

> > > From: tina <asmile4u@...>

> > > < @grou

> > >

> > >

[Guest guest]

Carrol

I think they are related. In my own family, can you imagine my scenario?

My father-Depression/bi polar (though not diagnosed)

My Mom-Multiple Myeloma, ADD

Me, CFS and ADD

Husband, OCD and some shadowings of CFS

Four Kids-Two autistic, one with seizures, one child ADD, another child OCD

My Sister-CFS, Thyroid Problems

Her kids-Tics, Emotional problems, Metabolic Problems

My Brothers-Dyslexia, Alcoholism, OCD, ADD, There kids-Tics, Immune

Problems, learning disorders, autoimmune problems, diabitis

As they say...get the picture?

The problem is, I think we are going to find out, though dredged through the

mud of reason and or lack of exposure of what " LABS " have done, , that we

are probably either are toxically loaded, virally loaded and or have parents

who were, and they gave us a sort of MIASM of these at risk for bad health

problems. I believe, and have talked to many researchers, that many cancers

are viral and toxic, seizures and autism, viral and toxic, other diseases,

viral and toxic. The two work together to form ADDUCTS on our genes, or

little dysregulations or stampings of misbehavior, proteins and enzymes

(even brain proteins), and metabolic dysfunction, let alone immune

dysfunction.

Read www.ccid.org and see why I put my mothers cancer and autism together!

Read clinical conditions, then click on MYELOMA (I think they have two

articles). Read how they say " complex neurological conditions are often

seen in family members, even a mother with two autistic children " . Are they

talking to me? Or about me? BOTH.

That is why I got my whole family tested. My son with seizures and autism

is HIGH strong positive, as well as my ADD daughter, and my other daughter

with autism, and my mother with MM. All others had MODERATE positive, which

means less affect systemically, but still can progress to STRONG positive.

We are all on either natural antivirals or the real mccoys. The kids are

doing GREAT. There is something to this when you can see a noticable

effect. There is a group called THE STEALTH VIRUS

PATIENT . I would try to get on there and ask away, lots

of researchers etc.

These are all connected in the scheme of things. We have to start

thinking, what set us apart from our fellows? Obviously, I am not taling

about car accident victims and or blunt blow to head scenarios, but yes,

that is another way to destroy a brain. Probalby has a lot to do with our

viral and toxic load, our glutathione levels, our APO levels, our

Interluekin levels, our NK cell levels, etc etc et c. I would advocate all,

and prove me wrong, that most people on this list are not STRONG POSITIVE.

Polio reactions and post polio ME are often strong positive folks. Alot of

people don't even know they have this monster. That's becuase it doesn't

evoke a strong inflammatory reaction, but nevertheless can do more damage

than that, especially to the CNS. When is it that an immune system CAN go

awry. IMHO, infants and seniors. WHY? I'll tell you why...this is just in

regards to mercury toxicity, but put in that addition, viral load.....

The elderly have decreased protective glutathione and infants HAVE IMMATURE

PHYSIOLOGY and METABOLISM. (creeps).. The aged are more susceptible to

oxidative toxicants and becuase of that reduced ability to handle viruses,

and INFANTS DO NOT MAKE BILE in the early months of life and are UNABLE to

remove mercury through bilary transport, the MAJOR ROUTE for MERCURY

REMOVAL. They also do not have a fully developed RENAL SYSTEMS. This

basically gives toxicants and viruses the go ahead to do their deed.

So what the glorious leaders in medicine do, is ATTACK those age groups by

known NEUROTOXICANTS, VIRUSES in combination with accompyaning CONTAMINATION

CELL LINES, and WHALA, they wonder why we have an epidemic of autism,

seizures, ALS, Parkinsons, MS, Lupus, Fibromyalgia, ME, CFS, etc etc etc?

Even a dumb mom can figure this one out.....

Not kidding...

Kathy

Re: [ ] new member and a few questions

>

>

> >

> > Dear Kathy,

> > Thank you for your thoughtful answer to my questions. I have read " The

> Body's Many Cries for Water " and found it to be very helpful and

> informative. Currently I am using a rehydration formula by Elysia called,

> " Rehydration " and it helps with the sodium and potassium balance in my

body.

> We have also been buying bottled water, because the minerals in our hard

> water seemed to exacerbate my symptoms. (Specifically, I seemed to be

> struggling with a zinc and copper imbalance.) A different filtration

> system by Brita is now being used on our faucet, and though it tested well

> for our family, I'm introducing that water to my system very gingerly.

> >

> > In addition, I've elimated gluten (wheat, oats, rye and barley) from my

> diet, as well as cow's milk. There is no question in my mind that dietary

> and gastrointestinal factors are a key to my situation. I don't drink

> coffee or alcohol, smoke or use toxic cleaners in my home, and I'm on a

high

> protein, low carbohydrate diet simply because I feel better when I don't

eat

> carbs.

> >

> > My nutritional supplementation has been monitored by a

> nutritionist/biochemist and a GYN doctor who frequently runs blood tests.

I

> take Taurine, gamma-linolic acid, B-12 shots weekly, prescription

> sub-lingual B-comlex drops, Acetyl-L-Carnitine, DMG, black cohosh,

> probiotics and some other general supplements like Vitamins D, E and C. I

> struggle with B-12 and iron anemia, and I believe it may well be due to a

> mal-absorption problem that I haven't been able to solve.

> >

> > I've looked at the majority of the considerations you mentioned and am

> still working through some others. It's a great list, however, and it

> helped me to rethink the processes I've undertaken. Thank you!

> >

> > I'm very interested in what you wrote about viral considerations. How

> does one go about finding the viruses you mentioned? Did you have

research

> overseen by a neurologist to look for these potential problems, or did you

> have to utilize another doctor? Did your insurance cover such tests?

> >

> > Thank you Kathy, for your time and thoughtful consideration.

> >

> > Carrol

> >

> >

> >

> > I will also look for " Toxic Relief, " since that is a new book to me.

> > Traceygrubbs@... wrote: to Carrol and the rest of the group,

> > You know often times we read something and discard it. I would like to

> > re-post this list, take it seriously because your answer may be there.

> > Also, Carrol stated that her seizures are triggered by dehydration,

stress

> > etc. Carrol there are two books out that I think would be beneficial. 1)

A

> > new book by Don Colbert " TOXIC RELIEF " 2) THE BODIES CRY FOR WATER.

> > You must keep in mind, not all seizures have the same answer.

> > In my daughter's case it was dental amalgams, those silver things in our

> > mouths that contain up to 53% mercury.

> > However, here is the list again, chances are you are some where on

there:

> > Also, go for the obvius things

> > 1. Are you in a new home? (believe it or not riply, air tight doesn't

> > always mean healthy)

> > 2. Dental work with amalgams

> > 3. Recent vaccinations

> > 4. Gut problems/too much gluten and cassein (milk and wheat)

> > 5. Prepensity to have mold or fungas in the house?

> > 6. Stress, loss of sleep?

> > 7. Viral process (stealth?) www.ccid.org , CMV? Herpes 6?

> > 8. Hows the digestive juices?

> > 9. Drink water, what kind?

> > 10. Flouride in your water, your use on teeth?

> > 11. How many black fillings do you have?

> > 12. rid the house of all organophosphates, cleaners, volitile

chemicals,

> > green lawn person, work environment? etc

> > 13. Any other health problems in the family?

> > 14. Any thing wrong with the immune system?

> > 15. Accident? Blow to head? Menengitis? Encephalitis? (as a child

> too?)

> > 16. Vaccine injury as a child? Dpt or MMR? Are you mercury poisined?

> > 17. What are your copper levels?

> > 18. Zinc levels or other deficiencies?

> > 19. Relaxation excercises, no tv watching (really-it outgasses)

> > 20. What natural things do you take?

> > 21. Diet too much carbos? Diet drinks?

> > 22. Intake of protein, what kind?

> > 23. Any fatty acid problems?

> > 24. Coffee drinker?

> >

> > Answer some of these things and see a connection?

> >

> > Kathy

> > (mom of four kids, two autistic children, one with seizures or lets say,

> > much better controlled by answering the above questions )

> > ----- Original Message -----

> > From: tina <asmile4u@...>

> > < @grou

> >

> >

[Guest guest]

Der Kathy,

WOW! You really have had a difficult struggle. It's amazing and inspiring to

see you working so hard for a solution and being so willing to help others as

they struggle, too. What a testimony to your character!

THANK YOU SO MUCH for what you have shared. It really makes me think and is

giving me some new directions in which to focus my energy. While my father's

situation is sealed by his own choice, I can still make a difference for myself

and those around me who are willing to grow, too. My sister and daughter are

struggling with undefined illness, and both are trying to find answers. My

sister's resources are limited, and it grieves me to see her suffering so much.

Likewise, at 19 years old, I think my daughter has a lot to offer this world and

I don't want to see her potential hindered by physical limitations. Though

neither have seizures, they are both younger than I am. Could it be that, if

unarrested now, their bodies will respond like mine in due time? I have to keep

looking and working for a solution.

Likewise, after years of teaching and school administration, I have often

loathed the educational response to " ADD " or " ADHD. " One child who was labeled

(I hate that protocol in itself) " PDD, " clearly had a sensitivity to food dyes

and chemicals in childrens' junk foods. Yet, every day his parents sent him to

lunch with soda, chips or Cheetos, red Jello and, if they provided protein at

all, lunch meat full of nitrates. We talked to the parents and watched

helplessly as they put him on Ritalin and sent him through peripheral

evaluations to no avail. Could the things I learn now make me a better teacher

or school administrator when I am able to work again? I sure hope so!

I will check into the information you mentioned and again, THANK YOU for your

generous transparency. It is helpful and refreshing.

Sincerely,

Carrol

<kblanco@...> wrote: Carrol

I think they are related. In my own family, can you imagine my scenario?

My father-Depression/bi polar (though not diagnosed)

My Mom-Multiple Myeloma, ADD

Me, CFS and ADD

Husband, OCD and some shadowings of CFS

Four Kids-Two autistic, one with seizures, one child ADD, another child OCD

My Sister-CFS, Thyroid Problems

Her kids-Tics, Emotional problems, Metabolic Problems

My Brothers-Dyslexia, Alcoholism, OCD, ADD, There kids-Tics, Immune

Problems, learning disorders, autoimmune problems, diabitis

As they say...get the picture?

The problem is, I think we are going to find out, though dredged through the

mud of reason and or lack of exposure of what " LABS " have done, , that we

are probably either are toxically loaded, virally loaded and or have parents

who were, and they gave us a sort of MIASM of these at risk for bad health

problems. I believe, and have talked to many researchers, that many cancers

are viral and toxic, seizures and autism, viral and toxic, other diseases,

viral and toxic. The two work together to form ADDUCTS on our genes, or

little dysregulations or stampings of misbehavior, proteins and enzymes

(even brain proteins), and metabolic dysfunction, let alone immune

dysfunction.

Read www.ccid.org and see why I put my mothers cancer and autism together!

Read clinical conditions, then click on MYELOMA (I think they have two

articles). Read how they say " complex neurological conditions are often

seen in family members, even a mother with two autistic children " . Are they

talking to me? Or about me? BOTH.

That is why I got my whole family tested. My son with seizures and autism

is HIGH strong positive, as well as my ADD daughter, and my other daughter

with autism, and my mother with MM. All others had MODERATE positive, which

means less affect systemically, but still can progress to STRONG positive.

We are all on either natural antivirals or the real mccoys. The kids are

doing GREAT. There is something to this when you can see a noticable

effect. There is a group called THE STEALTH VIRUS

PATIENT . I would try to get on there and ask away, lots

of researchers etc.

These are all connected in the scheme of things. We have to start

thinking, what set us apart from our fellows? Obviously, I am not taling

about car accident victims and or blunt blow to head scenarios, but yes,

that is another way to destroy a brain. Probalby has a lot to do with our

viral and toxic load, our glutathione levels, our APO levels, our

Interluekin levels, our NK cell levels, etc etc et c. I would advocate all,

and prove me wrong, that most people on this list are not STRONG POSITIVE.

Polio reactions and post polio ME are often strong positive folks. Alot of

people don't even know they have this monster. That's becuase it doesn't

evoke a strong inflammatory reaction, but nevertheless can do more damage

than that, especially to the CNS. When is it that an immune system CAN go

awry. IMHO, infants and seniors. WHY? I'll tell you why...this is just in

regards to mercury toxicity, but put in that addition, viral load.....

The elderly have decreased protective glutathione and infants HAVE IMMATURE

PHYSIOLOGY and METABOLISM. (creeps).. The aged are more susceptible to

oxidative toxicants and becuase of that reduced ability to handle viruses,

and INFANTS DO NOT MAKE BILE in the early months of life and are UNABLE to

remove mercury through bilary transport, the MAJOR ROUTE for MERCURY

REMOVAL. They also do not have a fully developed RENAL SYSTEMS. This

basically gives toxicants and viruses the go ahead to do their deed.

So what the glorious leaders in medicine do, is ATTACK those age groups by

known NEUROTOXICANTS, VIRUSES in combination with accompyaning CONTAMINATION

CELL LINES, and WHALA, they wonder why we have an epidemic of autism,

seizures, ALS, Parkinsons, MS, Lupus, Fibromyalgia, ME, CFS, etc etc etc?

Even a dumb mom can figure this one out.....

Not kidding...

Kathy

Re: [ ] new member and a few questions

>

>

> >

> > Dear Kathy,

> > Thank you for your thoughtful answer to my questions. I have read " The

> Body's Many Cries for Water " and found it to be very helpful and

> informative. Currently I am using a rehydration formula by Elysia called,

> " Rehydration " and it helps with the sodium and potassium balance in my

body.

> We have also been buying bottled water, because the minerals in our hard

> water seemed to exacerbate my symptoms. (Specifically, I seemed to be

> struggling with a zinc and copper imbalance.) A different filtration

> system by Brita is now being used on our faucet, and though it tested well

> for our family, I'm introducing that water to my system very gingerly.

> >

> > In addition, I've elimated gluten (wheat, oats, rye and barley) from my

> diet, as well as cow's milk. There is no question in my mind that dietary

> and gastrointestinal factors are a key to my situation. I don't drink

> coffee or alcohol, smoke or use toxic cleaners in my home, and I'm on a

high

> protein, low carbohydrate diet simply because I feel better when I don't

eat

> carbs.

> >

> > My nutritional supplementation has been monitored by a

> nutritionist/biochemist and a GYN doctor who frequently runs blood tests.

I

> take Taurine, gamma-linolic acid, B-12 shots weekly, prescription

> sub-lingual B-comlex drops, Acetyl-L-Carnitine, DMG, black cohosh,

> probiotics and some other general supplements like Vitamins D, E and C. I

> struggle with B-12 and iron anemia, and I believe it may well be due to a

> mal-absorption problem that I haven't been able to solve.

> >

> > I've looked at the majority of the considerations you mentioned and am

> still working through some others. It's a great list, however, and it

> helped me to rethink the processes I've undertaken. Thank you!

> >

> > I'm very interested in what you wrote about viral considerations. How

> does one go about finding the viruses you mentioned? Did you have

research

> overseen by a neurologist to look for these potential problems, or did you

> have to utilize another doctor? Did your insurance cover such tests?

> >

> > Thank you Kathy, for your time and thoughtful consideration.

> >

> > Carrol

> >

> >

> >

> > I will also look for " Toxic Relief, " since that is a new book to me.

> > Traceygrubbs@... wrote: to Carrol and the rest of the group,

> > You know often times we read something and discard it. I would like to

> > re-post this list, take it seriously because your answer may be there.

> > Also, Carrol stated that her seizures are triggered by dehydration,

stress

> > etc. Carrol there are two books out that I think would be beneficial. 1)

A

> > new book by Don Colbert " TOXIC RELIEF " 2) THE BODIES CRY FOR WATER.

> > You must keep in mind, not all seizures have the same answer.

> > In my daughter's case it was dental amalgams, those silver things in our

> > mouths that contain up to 53% mercury.

> > However, here is the list again, chances are you are some where on

there:

> > Also, go for the obvius things

> > 1. Are you in a new home? (believe it or not riply, air tight doesn't

> > always mean healthy)

> > 2. Dental work with amalgams

> > 3. Recent vaccinations

> > 4. Gut problems/too much gluten and cassein (milk and wheat)

> > 5. Prepensity to have mold or fungas in the house?

> > 6. Stress, loss of sleep?

> > 7. Viral process (stealth?) www.ccid.org , CMV? Herpes 6?

> > 8. Hows the digestive juices?

> > 9. Drink water, what kind?

> > 10. Flouride in your water, your use on teeth?

> > 11. How many black fillings do you have?

> > 12. rid the house of all organophosphates, cleaners, volitile

chemicals,

> > green lawn person, work environment? etc

> > 13. Any other health problems in the family?

> > 14. Any thing wrong with the immune system?

> > 15. Accident? Blow to head? Menengitis? Encephalitis? (as a child

> too?)

> > 16. Vaccine injury as a child? Dpt or MMR? Are you mercury poisined?

> > 17. What are your copper levels?

> > 18. Zinc levels or other deficiencies?

> > 19. Relaxation excercises, no tv watching (really-it outgasses)

> > 20. What natural things do you take?

> > 21. Diet too much carbos? Diet drinks?

> > 22. Intake of protein, what kind?

> > 23. Any fatty acid problems?

> > 24. Coffee drinker?

> >

> > Answer some of these things and see a connection?

> >

> > Kathy

> > (mom of four kids, two autistic children, one with seizures or lets say,

> > much better controlled by answering the above questions )

> > ----- Original Message -----

> > From: tina <asmile4u@...>

> > < @grou

> >

> >

[Guest guest]

It's not as hard as you think. It is just plain obvious. I was talking to

another researcher who is proving a hypothosis at the moment that food

degredation and mineral loss and pesticides in combination as well as tran

fats are actually changing our genetic structure. Why do you think we have

so many obese people? I looked into that one, and found they have an

ongoing MEASLES adenovirus in them (changes saity genes)! And they wonder,

why the epidemic (my favorite line nowadays?). This along with our lovely

food choices and our decline mentally, or are ability to handle stress and

our blunted brains and personalities by those toxicants and viruses, we are

finally reaping our harvest of stupidity.

I feel sorry for educators who have to mop up this ignorance by and from the

makers of stupid chemicals, foods and medical biologic industries. They are

no longer the people in our world looking out for us....get over it as they

say. But more wisely, get real. The real fact is these people make

products to have you either dependent on them, sick by them, and or addicted

to them.

I see the same thing when I see an autistic child with their mother in the

store. Cookies, candies, Diet pop, transfats, gluten, gluten and more

gluten, casein (milk) products, cheeze...whilst the kid is screaming and

tantruming for their fixes (it actually is, it is like cocaine to these

children). So all that mother is doing is being the childs pimp.

Not to get all judgemental, becuase I have been there, done that. But then

I finally realized, the only person that can heal my kids are GOD and ME.

Not doctors, not anything close to it. I read read read read read

everyday, and I try to assimulate it, and use it, then bring it to my health

food store, and my very special internet friends, most of them independent

scientists and researchers, and get the go ahead. The ones with white coats

that earn my trust are the ones that admitidly say, you know, I don't know

anything about that but I am willing to look at it. Anyone else is fired,

becuase I am the consumer, I just take my feet and let my boots do the

walking. This has always brought me great doctors and naturopaths who

admitedly, tell me, I educate them LOL....

Here is an illustrious illustration of how much they are looking over us

(NOT)...

WATER VS COKE

This was forwarded to me by Lee Clifford, MS, CCN, one of the Academy's

professors. Water and Coke. . . interesting!! We all know that water is

important but I've never seen it described like this before.

1. 75% of Americans are chronically dehydrated. (Likely applies to half the

world population)

2. In 37% of Americans, the thirst mechanism is so weak that it is often

mistaken for hunger.

3. Even MILD dehydration will slow down one's metabolism as much as 3%.

4. One glass of water shuts down midnight hunger pangs for almost 100% of

the dieters studied in a U-Washington study.

5. Lack of water, the #1 trigger of daytime fatigue.

6. Preliminary research indicates that 8-10 glasses of water a day could

significantly ease back and joint pain for up to 80% of sufferers.

7. A mere 2% drop in body water can trigger fuzzy short-term memory, trouble

with basic math, and difficulty focusing on the computer screen or on a

printed page.

8. Drinking 5 glasses of water daily decreases the risk of colon cancer by

45%, plus it can slash the risk of breast cancer by 79%, and one is 50% less

likely to develop bladder cancer. Are you drinking the amount of water you

should every day?

COKE

You'll never drink it again:

1. In many states (in the USA) the highway patrol carries two gallons of

Coke in the trunk to remove blood from the highway after a car accident.

2. You can put a T-bone steak in a bowl of coke and it will be gone in two

days.

3. To clean a toilet: Pour a can of Coca-Cola into the toilet bowl and

........Let the " real thing " sit for one hour, then flush clean. The citric

acid in Coke removes stains from vitreous china.

4. To remove rust spots from chrome car bumpers: Rub the bumper with a

crumpled-up piece of Reynolds Wrap aluminum foil dipped in Coca-Cola.

5. To clean corrosion from car battery terminals: Pour a can of Coca-Cola

over the terminals to bubble away the corrosion.

6. To loosen a rusted bolt: Applying a cloth soaked in Coca-Cola to the

rusted bolt for several minutes.

7. To remove grease from clothes: Empty a can of coke into a load of greasy

clothes, add detergent, And run through a regular cycle. The Coca-Cola will

help loosen grease stains. It will also clean road haze from your

windshield.

FYI:

1. The active ingredient in Coke is phosphoric acid. Its Ph is 2.8. It !

will dissolve a nail in about 4 days.

2. To carry Coca-Cola syrup (the concentrate) the commercial truck must use

the Hazardous material place cards reserved for highly corrosive materials.

3. The distributors of coke have been using it to clean the engines of their

trucks for about 20 years! Still Want To Drink Up?????????

Just an illustration of the products they think make us cool or with it, or

whatever.

I don't trust anyone but myself anymore.....and God

Grin

Kathy

Re: [ ] new member and a few questions

> >

> >

> > >

> > > Dear Kathy,

> > > Thank you for your thoughtful answer to my questions. I have read

" The

> > Body's Many Cries for Water " and found it to be very helpful and

> > informative. Currently I am using a rehydration formula by Elysia

called,

> > " Rehydration " and it helps with the sodium and potassium balance in my

> body.

> > We have also been buying bottled water, because the minerals in our hard

> > water seemed to exacerbate my symptoms. (Specifically, I seemed to be

> > struggling with a zinc and copper imbalance.) A different filtration

> > system by Brita is now being used on our faucet, and though it tested

well

> > for our family, I'm introducing that water to my system very gingerly.

> > >

> > > In addition, I've elimated gluten (wheat, oats, rye and barley) from

my

> > diet, as well as cow's milk. There is no question in my mind that

dietary

> > and gastrointestinal factors are a key to my situation. I don't drink

> > coffee or alcohol, smoke or use toxic cleaners in my home, and I'm on a

> high

> > protein, low carbohydrate diet simply because I feel better when I don't

> eat

> > carbs.

> > >

> > > My nutritional supplementation has been monitored by a

> > nutritionist/biochemist and a GYN doctor who frequently runs blood

tests.

> I

> > take Taurine, gamma-linolic acid, B-12 shots weekly, prescription

> > sub-lingual B-comlex drops, Acetyl-L-Carnitine, DMG, black cohosh,

> > probiotics and some other general supplements like Vitamins D, E and C.

I

> > struggle with B-12 and iron anemia, and I believe it may well be due to

a

> > mal-absorption problem that I haven't been able to solve.

> > >

> > > I've looked at the majority of the considerations you mentioned and am

> > still working through some others. It's a great list, however, and it

> > helped me to rethink the processes I've undertaken. Thank you!

> > >

> > > I'm very interested in what you wrote about viral considerations. How

> > does one go about finding the viruses you mentioned? Did you have

> research

> > overseen by a neurologist to look for these potential problems, or did

you

> > have to utilize another doctor? Did your insurance cover such tests?

> > >

> > > Thank you Kathy, for your time and thoughtful consideration.

> > >

> > > Carrol

> > >

> > >

> > >

> > > I will also look for " Toxic Relief, " since that is a new book to me.

> > > Traceygrubbs@... wrote: to Carrol and the rest of the group,

> > > You know often times we read something and discard it. I would like to

> > > re-post this list, take it seriously because your answer may be there.

> > > Also, Carrol stated that her seizures are triggered by dehydration,

> stress

> > > etc. Carrol there are two books out that I think would be beneficial.

1)

> A

> > > new book by Don Colbert " TOXIC RELIEF " 2) THE BODIES CRY FOR WATER.

> > > You must keep in mind, not all seizures have the same answer.

> > > In my daughter's case it was dental amalgams, those silver things in

our

> > > mouths that contain up to 53% mercury.

> > > However, here is the list again, chances are you are some where on

> there:

> > > Also, go for the obvius things

> > > 1. Are you in a new home? (believe it or not riply, air tight doesn't

> > > always mean healthy)

> > > 2. Dental work with amalgams

> > > 3. Recent vaccinations

> > > 4. Gut problems/too much gluten and cassein (milk and wheat)

> > > 5. Prepensity to have mold or fungas in the house?

> > > 6. Stress, loss of sleep?

> > > 7. Viral process (stealth?) www.ccid.org , CMV? Herpes 6?

> > > 8. Hows the digestive juices?

> > > 9. Drink water, what kind?

> > > 10. Flouride in your water, your use on teeth?

> > > 11. How many black fillings do you have?

> > > 12. rid the house of all organophosphates, cleaners, volitile

> chemicals,

> > > green lawn person, work environment? etc

> > > 13. Any other health problems in the family?

> > > 14. Any thing wrong with the immune system?

> > > 15. Accident? Blow to head? Menengitis? Encephalitis? (as a child

> > too?)

> > > 16. Vaccine injury as a child? Dpt or MMR? Are you mercury

poisined?

> > > 17. What are your copper levels?

> > > 18. Zinc levels or other deficiencies?

> > > 19. Relaxation excercises, no tv watching (really-it outgasses)

> > > 20. What natural things do you take?

> > > 21. Diet too much carbos? Diet drinks?

> > > 22. Intake of protein, what kind?

> > > 23. Any fatty acid problems?

> > > 24. Coffee drinker?

> > >

> > > Answer some of these things and see a connection?

> > >

> > > Kathy

> > > (mom of four kids, two autistic children, one with seizures or lets

say,

> > > much better controlled by answering the above questions )

> > > ----- Original Message -----

> > > From: tina <asmile4u@...>

> > > < @grou

> > >

> > >

[Guest guest]

Tracey,

First of all, The Mind Spa is located in Atlanta, GA. I don't think

it is a franchise where you will find other identical facilities in

other cities. But, they may know of similar facilities in other

places. I would send an email and ask.

I only went one time to The Mind Spa. That was for a neurophysical

assesssment. I not only saw my theta brainwaves onscreen in real time,

but I saw my heart rate analyzed as well. It was a fascinating

experience for me. Imagine being able to see what is going on inside

your body and your brain while you are hooked up to a computer system

and lounging in a large chair. If you ever questioned the idea that a

human being is an electro-chemical creatiion of God, this experience

would erase all doubts. If you ever wondered if your mind could be

positively affected by light and sound devices, this experience would

erase all doubts.

Since there are no adverse side-effects to this type of therapy, I would

have loved to have followed up my neurophysical assessment with regular

EEG Biofeedback training sessions. These would have lasted for about 30

minutes and cost me $40/session. But, I was not able to commit to it

financially long enough to see any real lasting results. So, I did not

even start.

However, had I been able to afford it, I would not have hesitated. I

think it takes about 20 sessions before you see any real lasting

results. If you have numerous family members which could benefit from

this type of therapy, the most cost-effective thing to do is purchase

your own biofeedback machine and use it in your home to treat those who

need it. My initial goal was to start treatments at The Mind Spa,

become proficient with the equipment and purchase a unit for use in my

home. The Mind Spa actually sells biofeedback units for home use.

Unfortunately, I was unable to follow-through on that plan. At the time

I a lady friend of mine had me convinced I was ADD. I now know I do

not have ADD. Nevertheless, if I could afford a biofeedback machine, I

would not hesitate to purchase one. If nothing else, it's a relaxing

way to relieve stress. And, who would not welcome a little stress

relief in their life?

There's a book called Megabrain Power by Hutchison which you

might find interesting reading. Also, here's another website you might

want to visit - Megabrain Zones .

Lamar

Traceygrubbs@... wrote:

> Lamar,

> The Mind Spa that you were talking about, I pulled up the web page and

> it

> sounds interesting. However, I am curious to how they work with you.

> Is it

> like therapy were you go 2-3 times a week for a certain time or is it

> like a

> one session deal? I realize this may depend upon the individuals

> goals.

> Tracey

[Guest guest]

There is also another clinic like the mind spa. It is called the brain gym.

[Guest guest]

Carrol,

No, I never received any neurofeedback treatment from s-Reiter.

The closest I ever came to a neurofeedback session was the nuerophysical

assessment I received at The Mind Spa .

I am glad you contacted Dr. s. As I have said before,

s-Reiter is one clinic which I believe puts the needs of the

patient first and foremost. Maybe there are a lot of clinics out there

that treat ONLY epilepsy. Maybe there are a lot of clinics out there

that will spend hours on the phone with people who are not even patients

discussing their illness. Maybe there are a lot of clinics that will

request a review of one's medical records for FREE just to determine if

they qualify for their clinic's treatment. Maybe there are a lot of

clinics that do ongoing research on epilepsy as non-profit foundations

and write best-selling books on epilepsy as well. I don't know what all

is out there. All I know is that in my 35-year journey as a diagnosed

epileptic, I have only run across one clinic that does ALL those

things. That clinic is s-Reiter . But, more important than all

that is the fact they transformed my life for the better. I hope they

can do the same for you.

Lamar

Carrol Showalter wrote:

>

> Dear Lamar,

> Actually, I don't know of anyone in my family who is ADD or ADHD. I

> was just exposed frequently to this diagnosis as an educator and, more

> often than not, I questioned the diagnosis. In most situations, I saw

> life-style issues as problems, more than the need for a drug to

> alleviate the behavior. By " life-style, " I mean to include issues

> such as sleep deprivation, dietary quandaries, emotionally turbulent

> home environments, etc. Many times I saw wonderful parents with the

> best intentions given an ADD or ADHD diagnosis for their child so that

> prescription drugs could be administered. Most often, I felt that

> these parents needed encouragement and counseling (including

> nutritional) to help their child without drugs. I can't tell you the

> number of times a parent told me that they felt Ritalin or another

> similar drug had taken away their child's personality!

>

> On the other hand, I am very interested in neuro-feedback. While I

> believe that the majority of my problem is physiological, I also

> recognize occasional emotional and mental triggers to seizures. Did

> you undergo any neuro-feedback sessions while at s-Reiter?

>

> I did talk with Donna J. s at the s-Reiter clinic

> yesterday. I will be sending her my medical tests and evaluations and

> she will let me know if I am someone their program can help. After

> months of medical discouragement and frustration, it is encouraging to

> learn of potentially new or different approaches and options!

>

> I'm interested in hearing more about the Mind Spa and other options

> like this. Thank you!

>

> Carrol

>

[Guest guest]

Brain Gym to my knowledge is an exercise program. I learned about it through

the epilepsy foundation. It is done in groups usually at specially scheduled

times.... " Brain Gym is a trademarked program of 26 targeted physical

activities that improve learning abilities. Built upon more than 80 years of

research, " www.braingym.org

[Guest guest]

,

Where is the Brain Gym located? Is it a franchise? Do they sell " brain

machines " for home use? Have you used them? If so,

did it help you in any way?

Lamar

chipperdona@... wrote:

> There is also another clinic like the mind spa. It is called the

> brain gym.

>

>

>

[Guest guest]

Dear Lamar,

Actually, I don't know of anyone in my family who is ADD or ADHD. I was just

exposed frequently to this diagnosis as an educator and, more often than not, I

questioned the diagnosis. In most situations, I saw life-style issues as

problems, more than the need for a drug to alleviate the behavior. By

" life-style, " I mean to include issues such as sleep deprivation, dietary

quandaries, emotionally turbulent home environments, etc. Many times I saw

wonderful parents with the best intentions given an ADD or ADHD diagnosis for

their child so that prescription drugs could be administered. Most often, I

felt that these parents needed encouragement and counseling (including

nutritional) to help their child without drugs. I can't tell you the number of

times a parent told me that they felt Ritalin or another similar drug had taken

away their child's personality!

On the other hand, I am very interested in neuro-feedback. While I believe that

the majority of my problem is physiological, I also recognize occasional

emotional and mental triggers to seizures. Did you undergo any neuro-feedback

sessions while at s-Reiter?

I did talk with Donna J. s at the s-Reiter clinic yesterday. I will

be sending her my medical tests and evaluations and she will let me know if I am

someone their program can help. After months of medical discouragement and

frustration, it is encouraging to learn of potentially new or different

approaches and options!

I'm interested in hearing more about the Mind Spa and other options like this.

Thank you!

Carrol

Lamar <lamar@...> wrote: Carrol,

Since ADD and ADHD is a concern in your family, you might consider

looking into EEG Biofeedback, also referred to as " neurofeedback. "

Spiking theta brainwave patterns is what causes the loss of information

in the memory recall process. When a person cannot remember information

they were just told it may not necessarily be that they did not heard

it. Instead, i tmay be that the information simply could not be

retrieved. It's in the brain, you just cannot find it. However,

neurofeedback therapy has been shown to facilitate the development of

new neuro pathways in the brain and less theta brainwave patterns.

This is not accomplished by eating special vitamins or going on a

special diet. As amazing as this may sound, it is accomplished by

playing special video games, along with exposure to light patterns and

sound rhythms. Had I not experienced this myself first-hand, I doubt I

would ever believe it. But, I had a neurophysical assessment once -

something of a precursor to neurofeedback. I saw my exposure - not to

video games - but just to light patterns and sound rhythms decrease my

theta brainwave patterns. I actually watched it happen on-screen, in

realtime. I was amazed.

Believe it or not, neurofeedback has been shown to re-educate the brain

- even increase a person's IQ by a small percentage.

Once again, just like taking B-complex vitamins or going on the

Ketogenic Diet, neurofeedback does not work wonders for everyone who

tries it. However, whether it works a lot, a little or not at all,

there is one good consulation - no adverse side-effects.

If you want to learn more about neurofeedback, visit The Mind Spa .

Lamar

Carrol Showalter wrote:

>

> Der Kathy,

> WOW! You really have had a difficult struggle. It's amazing and

> inspiring to see you working so hard for a solution and being so

> willing to help others as they struggle, too. What a testimony to

> your character!

>

> THANK YOU SO MUCH for what you have shared. It really makes me think

> and is giving me some new directions in which to focus my energy.

> While my father's situation is sealed by his own choice, I can still

> make a difference for myself and those around me who are willing to

> grow, too. My sister and daughter are struggling with undefined

> illness, and both are trying to find answers. My sister's resources

> are limited, and it grieves me to see her suffering so much.

> Likewise, at 19 years old, I think my daughter has a lot to offer this

> world and I don't want to see her potential hindered by physical

> limitations. Though neither have seizures, they are both younger than

> I am. Could it be that, if unarrested now, their bodies will respond

> like mine in due time? I have to keep looking and working for a

> solution.

>

> Likewise, after years of teaching and school administration, I have

> often loathed the educational response to " ADD " or " ADHD. " One child

> who was labeled (I hate that protocol in itself) " PDD, " clearly had a

> sensitivity to food dyes and chemicals in childrens' junk foods. Yet,

> every day his parents sent him to lunch with soda, chips or Cheetos,

> red Jello and, if they provided protein at all, lunch meat full of

> nitrates. We talked to the parents and watched helplessly as they put

> him on Ritalin and sent him through peripheral evaluations to no

> avail. Could the things I learn now make me a better teacher or

> school administrator when I am able to work again? I sure hope so!

>

> I will check into the information you mentioned and again, THANK YOU

> for your generous transparency. It is helpful and refreshing.

>

> Sincerely,

> Carrol

>

> <kblanco@...> wrote: Carrol

> I think they are related. In my own family, can you imagine my

> scenario?

> My father-Depression/bi polar (though not diagnosed)

> My Mom-Multiple Myeloma, ADD

> Me, CFS and ADD

> Husband, OCD and some shadowings of CFS

> Four Kids-Two autistic, one with seizures, one child ADD, another

> child OCD

> My Sister-CFS, Thyroid Problems

> Her kids-Tics, Emotional problems, Metabolic Problems

> My Brothers-Dyslexia, Alcoholism, OCD, ADD, There kids-Tics, Immune

> Problems, learning disorders, autoimmune problems, diabitis

>

> As they say...get the picture?

>

> The problem is, I think we are going to find out, though dredged

> through the

> mud of reason and or lack of exposure of what " LABS " have done, , that

> we

> are probably either are toxically loaded, virally loaded and or have

> parents

> who were, and they gave us a sort of MIASM of these at risk for bad

> health

> problems. I believe, and have talked to many researchers, that many

> cancers

> are viral and toxic, seizures and autism, viral and toxic, other

> diseases,

> viral and toxic. The two work together to form ADDUCTS on our genes,

> or

> little dysregulations or stampings of misbehavior, proteins and

> enzymes

> (even brain proteins), and metabolic dysfunction, let alone immune

> dysfunction.

>

> Read www.ccid.org and see why I put my mothers cancer and autism

> together!

> Read clinical conditions, then click on MYELOMA (I think they have two

>

> articles). Read how they say " complex neurological conditions are

> often

> seen in family members, even a mother with two autistic children " .

> Are they

> talking to me? Or about me? BOTH.

>

> That is why I got my whole family tested. My son with seizures and

> autism

> is HIGH strong positive, as well as my ADD daughter, and my other

> daughter

> with autism, and my mother with MM. All others had MODERATE positive,

> which

> means less affect systemically, but still can progress to STRONG

> positive.

> We are all on either natural antivirals or the real mccoys. The kids

> are

> doing GREAT. There is something to this when you can see a noticable

> effect. There is a group called THE STEALTH VIRUS

> PATIENT . I would try to get on there and ask away,

> lots

> of researchers etc.

>

> These are all connected in the scheme of things. We have to start

> thinking, what set us apart from our fellows? Obviously, I am not

> taling

> about car accident victims and or blunt blow to head scenarios, but

> yes,

> that is another way to destroy a brain. Probalby has a lot to do with

> our

> viral and toxic load, our glutathione levels, our APO levels, our

> Interluekin levels, our NK cell levels, etc etc et c. I would

> advocate all,

> and prove me wrong, that most people on this list are not STRONG

> POSITIVE.

> Polio reactions and post polio ME are often strong positive folks.

> Alot of

> people don't even know they have this monster. That's becuase it

> doesn't

> evoke a strong inflammatory reaction, but nevertheless can do more

> damage

> than that, especially to the CNS. When is it that an immune system

> CAN go

> awry. IMHO, infants and seniors. WHY? I'll tell you why...this is

> just in

> regards to mercury toxicity, but put in that addition, viral load.....

>

> The elderly have decreased protective glutathione and infants HAVE

> IMMATURE

> PHYSIOLOGY and METABOLISM. (creeps).. The aged are more susceptible

> to

> oxidative toxicants and becuase of that reduced ability to handle

> viruses,

> and INFANTS DO NOT MAKE BILE in the early months of life and are

> UNABLE to

> remove mercury through bilary transport, the MAJOR ROUTE for MERCURY

> REMOVAL. They also do not have a fully developed RENAL SYSTEMS. This

>

> basically gives toxicants and viruses the go ahead to do their deed.

>

> So what the glorious leaders in medicine do, is ATTACK those age

> groups by

> known NEUROTOXICANTS, VIRUSES in combination with accompyaning

> CONTAMINATION

> CELL LINES, and WHALA, they wonder why we have an epidemic of autism,

> seizures, ALS, Parkinsons, MS, Lupus, Fibromyalgia, ME, CFS, etc etc

> etc?

>

> Even a dumb mom can figure this one out.....

>

>

> Not kidding...

>

> Kathy

> Re: [ ] new member and a few questions

> >

> >

> > >

> > > Dear Kathy,

> > > Thank you for your thoughtful answer to my questions. I have read

> " The

> > Body's Many Cries for Water " and found it to be very helpful and

> > informative. Currently I am using a rehydration formula by Elysia

> called,

> > " Rehydration " and it helps with the sodium and potassium balance in

> my

> body.

> > We have also been buying bottled water, because the minerals in our

> hard

> > water seemed to exacerbate my symptoms. (Specifically, I seemed to

> be

> > struggling with a zinc and copper imbalance.) A different

> filtration

> > system by Brita is now being used on our faucet, and though it

> tested well

> > for our family, I'm introducing that water to my system very

> gingerly.

> > >

> > > In addition, I've elimated gluten (wheat, oats, rye and barley)

> from my

> > diet, as well as cow's milk. There is no question in my mind that

> dietary

> > and gastrointestinal factors are a key to my situation. I don't

> drink

> > coffee or alcohol, smoke or use toxic cleaners in my home, and I'm

> on a

> high

> > protein, low carbohydrate diet simply because I feel better when I

> don't

> eat

> > carbs.

> > >

> > > My nutritional supplementation has been monitored by a

> > nutritionist/biochemist and a GYN doctor who frequently runs blood

> tests.

> I

> > take Taurine, gamma-linolic acid, B-12 shots weekly, prescription

> > sub-lingual B-comlex drops, Acetyl-L-Carnitine, DMG, black cohosh,

> > probiotics and some other general supplements like Vitamins D, E and

> C. I

> > struggle with B-12 and iron anemia, and I believe it may well be due

> to a

> > mal-absorption problem that I haven't been able to solve.

> > >

> > > I've looked at the majority of the considerations you mentioned

> and am

> > still working through some others. It's a great list, however, and

> it

> > helped me to rethink the processes I've undertaken. Thank you!

> > >

> > > I'm very interested in what you wrote about viral considerations.

> How

> > does one go about finding the viruses you mentioned? Did you have

> research

> > overseen by a neurologist to look for these potential problems, or

> did you

> > have to utilize another doctor? Did your insurance cover such

> tests?

> > >

> > > Thank you Kathy, for your time and thoughtful consideration.

> > >

> > > Carrol

> > >

> > >

> > >

> > > I will also look for " Toxic Relief, " since that is a new book to

> me.

> > > Traceygrubbs@... wrote: to Carrol and the rest of the group,

> > > You know often times we read something and discard it. I would

> like to

> > > re-post this list, take it seriously because your answer may be

> there.

> > > Also, Carrol stated that her seizures are triggered by

> dehydration,

> stress

> > > etc. Carrol there are two books out that I think would be

> beneficial. 1)

> A

> > > new book by Don Colbert " TOXIC RELIEF " 2) THE BODIES CRY FOR

> WATER.

> > > You must keep in mind, not all seizures have the same answer.

> > > In my daughter's case it was dental amalgams, those silver things

> in our

> > > mouths that contain up to 53% mercury.

> > > However, here is the list again, chances are you are some where on

>

> there:

> > > Also, go for the obvius things

> > > 1. Are you in a new home? (believe it or not riply, air tight

> doesn't

> > > always mean healthy)

> > > 2. Dental work with amalgams

> > > 3. Recent vaccinations

> > > 4. Gut problems/too much gluten and cassein (milk and wheat)

> > > 5. Prepensity to have mold or fungas in the house?

> > > 6. Stress, loss of sleep?

> > > 7. Viral process (stealth?) www.ccid.org , CMV? Herpes 6?

> > > 8. Hows the digestive juices?

> > > 9. Drink water, what kind?

> > > 10. Flouride in your water, your use on teeth?

> > > 11. How many black fillings do you have?

> > > 12. rid the house of all organophosphates, cleaners, volitile

> chemicals,

> > > green lawn person, work environment? etc

> > > 13. Any other health problems in the family?

> > > 14. Any thing wrong with the immune system?

> > > 15. Accident? Blow to head? Menengitis? Encephalitis? (as a

> child

> > too?)

> > > 16. Vaccine injury as a child? Dpt or MMR? Are you mercury

> poisined?

> > > 17. What are your copper levels?

> > > 18. Zinc levels or other deficiencies?

> > > 19. Relaxation excercises, no tv watching (really-it outgasses)

> > > 20. What natural things do you take?

> > > 21. Diet too much carbos? Diet drinks?

> > > 22. Intake of protein, what kind?

> > > 23. Any fatty acid problems?

> > > 24. Coffee drinker?

> > >

> > > Answer some of these things and see a connection?

> > >

> > > Kathy

> > > (mom of four kids, two autistic children, one with seizures or

> lets say,

> > > much better controlled by answering the above questions )

> > > ----- Original Message -----

> > > From: tina <asmile4u@...>

> > > < @grou

> > >

> > >

[Guest guest]

Dear Lamar, I tryed the mindspa web site and couldn't get anything to come

up. I got the site but nothing I clicked on seemed to respond. Gail Pike

[Guest guest]

Thank you !

Carrol

chipperdona@... wrote: There is also another clinic like the mind spa. It

is called the brain gym.

[Guest guest]

Gail,

I just went to The Mind Spa website after reading your message below.

Everything worked fine for me. Try it again - www.themindspa.com .

Lamar

gpike90805@... wrote:

> Dear Lamar, I tryed the mindspa web site and couldn't get anything

> to come

> up. I got the site but nothing I clicked on seemed to respond. Gail

> Pike

>

>

>