Re: Re: Fw: B Complex Vitamins for Epilepsy

[Guest guest]

Ive been working stringently on a nutritional programme for my 4yr old sons epilepsy based on B6 complex and magnesium and yeast etc following Adelle advice if you are reading this please ring me..also if anyone can advise us further on this subject we would be extremely grateful Deborah mli

>From: "ziggyhindson"

>Reply- > >Subject: [ ] Re: Fw: B Complex Vitamins for Epilepsy >Date: Sun, 30 Dec 2001 10:05:22 -0000 > >This is great information Arnold - thankyou for sharing it. I will >read the book in whole and let you know how we get on. I intend to >supplement Astrid's B6 with the other B vits straight away as I have >read this in many places now. > >A quick update on us - Astrid began having seizures again yesterday - > on we go. > > > > > > Hi Deborah, > > > > Welcome to the list. > > I am attaching my story relating my experience with B vitamins . > > Read the WHOLE BOOK not just the index reference to epilepsy. > > Cure for Epilepsy Using B Complex Vitamins > > > > Over 21 years ago, in June 1978, I started taking a large dose of >the B Complex vitamins. The dosage was 20mg. B-1,B-2 etc.;B-12 20mcg >and folic acid at 400mcg. I immediately felt more energetic and >alive. I had gran mal epilepsy for the prior 25 years, since I had >entered puberty at age 13. In those days 20 mg was probably a >megadose, I'm not sure, today I take 50mg. because its more commonly >available. I had been taking anticonvulsant medication trade name >Mebroin including Phenobarbital and a smaller amount of Dilantin. I >was able to wean my way off the anticonvulsant medication in July of >1978. I have not taken any medication since, and have become a new >person. > > > > It was a difficult decision to stop the medication and every case >is different, but I feel it is important that other people are made >aware of my experience. In my case I was somewhat fortunate. I also >had severe acne at the time and had gone to see a leading >dermatologist affiliated with a top teaching hospital in New York >City about 4 years earlier.. He looked at my left foot, between the >third and next to smallest toe, where I had an annoying >itchy "athlete's foot" and said that by looking at my foot he could >tell that my skin would be all broken out on my face and my back. He >said I had Tuberous Sclerosis a disease which was responsible for >both the epilepsy and the bad skin I had. He said that the two >conditions had to be treated separately even though they were linked >together. He described it as a rare hereditary disease. He said the >Epilepsy had to be treated with anticonvulsant medication and the >acne could be treated with antibiotics. > > > > > > I was on this conventional treatment until 1978, when they took my >anticonvulsant drug off the market. I was switched to a larger >dosage of Dilantin, then the standard anticonvulsant remedy, which >didn't agree with me. I began to lose weight at a dangerous clip. My >doctors were worried and the tests said I had high cholesterol. The >doctor seemed to focus on food intake. I began to think it was time >to read fully that book "Let's Eat Right to Keep Fit" by Adelle >, that had been given to my by a friend who didn't like the >idea that I was taking so much medication. I knew she had something >to say about nutrition, but I never thought it was that important. > > > > Since at first in 1974, I didn't want to have to read the whole >book, I had looked up epilepsy and the citation directed me to a >page that indicated B-6 and Magnesium sometimes helped. Well it >didn't. I figured I was special and it wouldn't work for me. > > > > Four years later, when I Read the whole book, she said that >individual members of the B-Complex do not usually work in isolation >from the other members of the Complex!! > > > > I went to the Health Food Store and bought a bottle of the B- >Complex, I immediately felt a surge of energy, but I was worried >thinking maybe it was a placebo effect. Within one week >my "athlete's foot" condition began to clear up. I recalled what >that top dermatologist said, these conditions were really linked >together. Now the 'marker' for the > > > > underlying disease tuberous sclerosis was disappearing. I was >definitely doing something right. The Diagnostic capabilities of >modern high technology medicine are excellent. It's just that they >are not as good when it comes to treatments. > > > > I had the advantage of seeing my progress confirmed by >medical/scientific authority. You > > > > may not be as fortunate. If you cannot get your doctor to closely >monitor a trial with a more natural approach, try seeing a doctor >who is a member of the American College for Advancement in Medicine >(ACAM).Their phone# is 800-532-3688, their website is: > > > > www.acam.org > > > > They will provide a list of doctors in your geographical area who >might be open to helping you use a more natural approach, including >possible withdrawal from prescription medications. > > > > Since originally writing this account I have come to realize that >I simultaneously changed my diet to include many healthy foods that >were high in the B Complex vitamins, such as whole wheat bread, >wheat germ, brown rice, liver(this was before I became a vegetarian) >and brewers yeast.In truth I cannot be sure which worked the B >vitamins in a vtamin tablet or the food. From what I read now it may >have been the food. Regardless of what we have become used to it is >reasonable to say that "good health will never come out of a bottle" >you have to do everything. > > > > > > I hope my story is helpful to some of you who are looking for a >more natural way of treating your condition. It changed my life and >if I can inspire others who are only helped > > > > one tenth as much as I have been it will help partially repay the >friend who first interested me in the nutritional aspects of health >by giving me that book by Adelle . If anyone wants to contact >me I would be glad to offer any support I can. > > > > Sincerely, > > > > Arnold Gore > > > > Consumers Health Freedom Coalition > > > > Tel. 212-795-6460 > > > > E mail: nathealth@l... > Get your FREE download of MSN Explorer at http://explorer.msn.com.

[Guest guest]

Sha,

Are you getting any kind of medical guidance regarding giving your

daugthter Vitamin B complex? The vitamins might not have anything to do

with why your daughter is having seizures - one way or the other. It

may not be causing the problem. It may not be helping to control the

problem. It all depends upon " why " your daughter is having seizures.

There are many different types of epilepsy. There are many different

causes. When it comes to epilepsy, there is no such thing as a

" one-size-fits-all " solution. I personally found this out the hard way

when I decided it would not hurt for me to skip a few days of taking my

doctor-prescribed Tegretol. I collapsed on day at work in front of a

computer screen. When I woke up I was in an ambulance on the way to a

hospital. That one act of stupidity facilitated the end of a 15 year

carreer in investment banking. Please believe me when I say it is

unwise to try to figure out what's best for yourself or your child

without professional guidance.

Here are some suggestions for your consideration:

1) If you do not have a copy of your daughter's medical record, request

one from your doctor and read what it says.

2) Use the website resources on our group website to get qualified

second opinions from qualified professionals who specialize in treating

epilepsy - . (For

example, s-Reiter ) It costs nothing to have your doctor forward

a copy of your daughter's medical record for their review to another

doctor for a second opinion. Many doctors will give you an assessment

of your daughter's situation for FREE if you just take the time to

request the medical record get sent. Just because the opinion comes

without charge does not mean it is without value. You can learn a great

deal by gathering second opinions from medical professionals.

Knowledge is power. You need expert information. Here is a

cost-effective way to accumulate it.

3) If you have not read the book, Epilepsy: A New Approach, I suggest

you go to the local public library and check it out. It too may provide

you with valuable information you may not already possess.

4) Doctors are imperfect people - just like you and me. They need all

the help they can get when it comes to making the right diagnosis

regarding epilepsy. By keeping a journal on your child - what happens

during a seizure, adverse reactions to drugs, etc. - you provide them

with important information which may prove crucial in helping your

daughter.

When it comes to healthcare, we all need to be looking at the " big

picture. " That means you should be concerned with more than just

halting seizures. You also want to make sure that the means you are

using to halt seizures is not causing other problems. It took me 34

years to discover that taking prescription drugs for the control of gran

mal seizures was doing damage to me in ways that had nothing to do with

epilepsy. That is why I say it is so important to learn and understand

one's epilepsy. Knowing the truth concerning an individual's epileptic

condition is crucial to uncovering the best way to deal with it. The

better informed you are about your child's epilepsy, the better equipped

you are to enhance her overall quality of life.

Good luck.

Lamar

shat345 wrote:

> Hello Arnold or anyone:

>

> I started my daughter on vitamin b complex-50 mg in september and in

> october i saw increase in various types of seizures. Any ideas if b

> complex increases seizures?

>

>

> Thanks

> sha

>

>

> >

> > Hi ,

> >

> > Since you started to get seizures at age 15, something changed in

> your life or your diet to allow additional stresses to manifest as

> epilepsy. Focus back to see what it was.

> >

> > In my case at age 13 it was B vitamins, see my story below.

> >

> > You'll find some good ideas on this list.

> >

> > Cure for Epilepsy Using B Complex Vitamins

> >

> > Over 21 years ago, in June 1978, I started taking a large dose of

> the B Complex vitamins. The dosage was 20mg. B-1,B-2 etc.;B-12 20mcg

> and folic acid at 400mcg. I immediately felt more energetic and

> alive. I had gran mal epilepsy for the prior 25 years, since I had

> entered puberty at age 13. In those days 20 mg was probably a

> megadose, I'm not sure, today I take 50mg. because its more commonly

> available. I had been taking anticonvulsant medication trade name

> Mebroin including Phenobarbital and a smaller amount of Dilantin. I

> was able to wean my way off the anticonvulsant medication in July of

> 1978. I have not taken any medication since, and have become a new

> person.

> >

> > It was a difficult decision to stop the medication and every case

> is different, but I feel it is important that other people are made

> aware of my experience. In my case I was somewhat fortunate. I also

> had severe acne at the time and had gone to see a leading

> dermatologist affiliated with a top teaching hospital in New York

> City about 4 years earlier.. He looked at my left foot, between the

> third and next to smallest toe, where I had an annoying

> itchy " athlete's foot " and said that by looking at my foot he could

> tell that my skin would be all broken out on my face and my back. He

> said I had Tuberous Sclerosis a disease which was responsible for

> both the epilepsy and the bad skin I had. He said that the two

> conditions had to be treated separately even though they were linked

> together. He described it as a rare hereditary disease. He said the

> Epilepsy had to be treated with anticonvulsant medication and the

> acne could be treated with antibiotics.

> >

> >

> > I was on this conventional treatment until 1978, when they took my

> anticonvulsant drug off the market. I was switched to a larger

> dosage of Dilantin, then the standard anticonvulsant remedy, which

> didn't agree with me. I began to lose weight at a dangerous clip. My

> doctors were worried and the tests said I had high cholesterol. The

> doctor seemed to focus on food intake. I began to think it was time

> to read fully that book " Let's Eat Right to Keep Fit " by Adelle

> , that had been given to my by a friend who didn't like the

> idea that I was taking so much medication. I knew she had something

> to say about nutrition, but I never thought it was that important.

> >

> > Since at first in 1974, I didn't want to have to read the whole

> book, I had looked up epilepsy and the citation directed me to a

> page that indicated B-6 and Magnesium sometimes helped. Well it

> didn't. I figured I was special and it wouldn't work for me.

> >

> > Four years later, when I Read the whole book, she said that

> individual members of the B-Complex do not usually work in isolation

> from the other members of the Complex!!

> >

> > I went to the Health Food Store and bought a bottle of the B-

> Complex, I immediately felt a surge of energy, but I was worried

> thinking maybe it was a placebo effect. Within one week

> my " athlete's foot " condition began to clear up. I recalled what

> that top dermatologist said, these conditions were really linked

> together. Now the 'marker' for the

> >

> > underlying disease tuberous sclerosis was disappearing. I was

> definitely doing something right. The Diagnostic capabilities of

> modern high technology medicine are excellent. It's just that they

> are not as good when it comes to treatments.

> >

> > I had the advantage of seeing my progress confirmed by

> medical/scientific authority. You

> >

> > may not be as fortunate. If you cannot get your doctor to closely

> monitor a trial with a more natural approach, try seeing a doctor

> who is a member of the American College for Advancement in Medicine

> (ACAM).Their phone# is 800-532-3688, their website is:

> >

> > www.acam.org

> >

> > They will provide a list of doctors in your geographical area who

> might be open to helping you use a more natural approach, including

> possible withdrawal from prescription medications.

> >

> > Since originally writing this account I have come to realize that

> I simultaneously changed my diet to include many healthy foods that

> were high in the B Complex vitamins, such as whole wheat bread,

> wheat germ, brown rice, liver(this was before I became a vegetarian)

> and brewers yeast.In truth I cannot be sure which worked the B

> vitamins in a vtamin tablet or the food. From what I read now it may

> have been the food. Regardless of what we have become used to it is

> reasonable to say that " good health will never come out of a bottle "

> you have to do everything.

> >

> >

> > I hope my story is helpful to some of you who are looking for a

> more natural way of treating your condition. It changed my life and

> if I can inspire others who are only helped

> >

> > one tenth as much as I have been it will help partially repay the

> friend who first interested me in the nutritional aspects of health

> by giving me that book by Adelle . If anyone wants to contact

> me I would be glad to offer any support I can.

> >

> > Sincerely,

> >

> > Arnold Gore

> >

> > Consumers Health Freedom Coalition

> >

> > Tel. 212-795-6460

> >

> > E mail: nathealth@l...

> >

> >

> >

> >

[Guest guest]

Dear Sha,

B-complexes can be a problem because of all of the different formulations. Be

sure that what you are using is free of all common allergens: wheat, dairy,

eggs, soy, yeast, etc. Some of the brands are very hard on the stomach, which

would exacerbate seizure activity. I prefer to use a sublingual tincture that I

buy at a compounding pharmacy. That way, it doesn't have to go through the

stomach to be processed, and it seems to agree with me much better than other

products.

Others in this group have mentioned problems with B-6 toxicity, but they will

have to give you information about that, since I don't know much about it. In

the meantime, I hope my comments help a little bit.

Best wishes,

Carrol

shat345 <shalinithondamuthur@...> wrote:Hello Arnold or anyone:

I started my daughter on vitamin b complex-50 mg in september and in

october i saw increase in various types of seizures. Any ideas if b

complex increases seizures?

Thanks

sha

>

> Hi ,

>

> Since you started to get seizures at age 15, something changed in

your life or your diet to allow additional stresses to manifest as

epilepsy. Focus back to see what it was.

>

> In my case at age 13 it was B vitamins, see my story below.

>

> You'll find some good ideas on this list.

>

> Cure for Epilepsy Using B Complex Vitamins

>

> Over 21 years ago, in June 1978, I started taking a large dose of

the B Complex vitamins. The dosage was 20mg. B-1,B-2 etc.;B-12 20mcg

and folic acid at 400mcg. I immediately felt more energetic and

alive. I had gran mal epilepsy for the prior 25 years, since I had

entered puberty at age 13. In those days 20 mg was probably a

megadose, I'm not sure, today I take 50mg. because its more commonly

available. I had been taking anticonvulsant medication trade name

Mebroin including Phenobarbital and a smaller amount of Dilantin. I

was able to wean my way off the anticonvulsant medication in July of

1978. I have not taken any medication since, and have become a new

person.

>

> It was a difficult decision to stop the medication and every case

is different, but I feel it is important that other people are made

aware of my experience. In my case I was somewhat fortunate. I also

had severe acne at the time and had gone to see a leading

dermatologist affiliated with a top teaching hospital in New York

City about 4 years earlier.. He looked at my left foot, between the

third and next to smallest toe, where I had an annoying

itchy " athlete's foot " and said that by looking at my foot he could

tell that my skin would be all broken out on my face and my back. He

said I had Tuberous Sclerosis a disease which was responsible for

both the epilepsy and the bad skin I had. He said that the two

conditions had to be treated separately even though they were linked

together. He described it as a rare hereditary disease. He said the

Epilepsy had to be treated with anticonvulsant medication and the

acne could be treated with antibiotics.

>

>

> I was on this conventional treatment until 1978, when they took my

anticonvulsant drug off the market. I was switched to a larger

dosage of Dilantin, then the standard anticonvulsant remedy, which

didn't agree with me. I began to lose weight at a dangerous clip. My

doctors were worried and the tests said I had high cholesterol. The

doctor seemed to focus on food intake. I began to think it was time

to read fully that book " Let's Eat Right to Keep Fit " by Adelle

, that had been given to my by a friend who didn't like the

idea that I was taking so much medication. I knew she had something

to say about nutrition, but I never thought it was that important.

>

> Since at first in 1974, I didn't want to have to read the whole

book, I had looked up epilepsy and the citation directed me to a

page that indicated B-6 and Magnesium sometimes helped. Well it

didn't. I figured I was special and it wouldn't work for me.

>

> Four years later, when I Read the whole book, she said that

individual members of the B-Complex do not usually work in isolation

from the other members of the Complex!!

>

> I went to the Health Food Store and bought a bottle of the B-

Complex, I immediately felt a surge of energy, but I was worried

thinking maybe it was a placebo effect. Within one week

my " athlete's foot " condition began to clear up. I recalled what

that top dermatologist said, these conditions were really linked

together. Now the 'marker' for the

>

> underlying disease tuberous sclerosis was disappearing. I was

definitely doing something right. The Diagnostic capabilities of

modern high technology medicine are excellent. It's just that they

are not as good when it comes to treatments.

>

> I had the advantage of seeing my progress confirmed by

medical/scientific authority. You

>

> may not be as fortunate. If you cannot get your doctor to closely

monitor a trial with a more natural approach, try seeing a doctor

who is a member of the American College for Advancement in Medicine

(ACAM).Their phone# is 800-532-3688, their website is:

>

> www.acam.org

>

> They will provide a list of doctors in your geographical area who

might be open to helping you use a more natural approach, including

possible withdrawal from prescription medications.

>

> Since originally writing this account I have come to realize that

I simultaneously changed my diet to include many healthy foods that

were high in the B Complex vitamins, such as whole wheat bread,

wheat germ, brown rice, liver(this was before I became a vegetarian)

and brewers yeast.In truth I cannot be sure which worked the B

vitamins in a vtamin tablet or the food. From what I read now it may

have been the food. Regardless of what we have become used to it is

reasonable to say that " good health will never come out of a bottle "

you have to do everything.

>

>

> I hope my story is helpful to some of you who are looking for a

more natural way of treating your condition. It changed my life and

if I can inspire others who are only helped

>

> one tenth as much as I have been it will help partially repay the

friend who first interested me in the nutritional aspects of health

by giving me that book by Adelle . If anyone wants to contact

me I would be glad to offer any support I can.

>

> Sincerely,

>

> Arnold Gore

>

> Consumers Health Freedom Coalition

>

> Tel. 212-795-6460

>

> E mail: nathealth@l...

>

>

>

>