Guest guest Posted December 28, 2001 Report Share Posted December 28, 2001 hello everyone... i've been listening in on the email (when i've had access to the net), and decided i need to a bit more posting for myself... you seem like the kind of folks i should be talking to ;-) well, first thing is to please forgive me if i ever say things that someone else already said (including myself) and if i can't remember something that someone already told me.... okay? i feel so bad that i do that... next is, i've got a " mass " in my left temporal lobe that seems to be causing my seizures.... they did a few tests on me at dartmouth and still can't tell me anything more than that: its a mass. the MRI showed it as about the size of a walnut and looking rather encapsulated... nobody seems to be concerned about it's being malignant, so i'll try *not* to obsess on that for now ;-) until recently the word on my end has been " go go go, get the damn thing cut out! " ... but in the wake of a ton of neuro-psyche testing and a WADA test (ever have one of those?? oh so much fun.) the docs are giving me a rather scarey dialogue.... that they absolutely possibly feel that removal of the tumor will most likely probably result in a loss of memory and the ability to learn to varying degrees of severity... maybe(!).... they want another WADA test (insert screaming here).... they said that the first test was a bit inconclusive becaus of *my* bad reaction to the medication (sodium amytal), i'd gone into convulsions on the operating table and the majority of the testing was taking place 'post ictal'.... lucky for me i was listening, while the numbers were being tossed around... after they'd put my left hemispher asleep, that's when i passed out and then went into a seizure upon waking... they did all of the neuro-psyche testing anyway and then put my right side asleep and tested that side... so i'm laying there with no access to the right half of my friggin brain, unable to move (or recognize as my own) the left side of my body, and i'm hearing them throw these numbers around, talking OVER my body (dont ya just love that?!) as if i weren't there: " we've gotta redo the left side, it was too much " " we used 125 on the left, 75(!) on the right... we'll do the left again with 100 " and so they did... lovely.... and now they're telling me after all of this that my risking the stroke was for nothing, they want to redo the whole damn test..... and even after they finally do the damn thing properly, it will serve as no real indicator of the amount of ability i *am* going to loose as a result of the extra tissue they'll remove during the operation..... sorry for bitching.... i've just found all of this out and i'm still pretyt angry about it all... hell, i wouldn't be surprised if i wasn't really making much sense just yet..... one of the terms that was throw over my head was " amydalo-hippocampectomy " ... is there anyone out there that had this procedure done to them?... at this point i'm so disgusted that i just want to tell the whole doctor-hood to go to hell.... i'm on tegretol and it's been controlling my seizures since last march.... no grand mals except for the ones the doctors gave me in hospital... but do i want to stay on it for the rest of my life?? (having a child of my own is a dream of mine)..... i just don't know what to do for now.... jules _________________________________________________________________ Testen Sie MSN Messenger für Ihren Online-Chat mit Freunden: http://messenger.msn.de Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.