7 month old daughter having seizures

[Guest guest]

Hello, new member here looking for some help.

My 7 month old daughter andria () started having seizures the

end of may. She had one and I caught the tail end of it, I thought

she was not breathing and called 911. By the time they got there she

snapped out of it. Since I didn't see the whole thing and no

twitching, I had no idea what it was. I took her to my pediatrician

and he told me that she was fine and that things just happen in sleep

sometimes. He said to bring her in if there was another problem. AT

no point was seizure mentioned nor were any tests done. My husbands

grandmother passed away and we went to her visitation a couple days

later seeing that she was fine and there was nothing to woory about

(per our doctor). My parents called me the day we were due to come

back and she had had a seizure at 6am, 7am, 8am and by the time they

called me she was at a hospital, the staff saw another seizure at 9am

and they put her in the critical care helicopter and sent her to

Children's Breckenridge hospital. She had received phenobarb and had

another one after that at 10am. We were ont he plane and almost back

by thispoint. I have to say the longest plane ride in the history of

the world.

She received a spinal tap, MRI, cat scan, EEG, numerous blood tests

(so many that every vein was blown with the exception of the one in

her head which is where she received her last catheter).

They said all test were negative and to make this long story a little

shorter. She was put on Dylantin. We were told that her EEG had

spikes and so she had to be on the med. We later found out this was

not the case. She started vomiting it up three weeks ago on a

thursday and by saturday she would not keep any of it donw. The

Neurologist told us that she would be ok until the following

Tuesday. (which means she was off of it thurs, fri,sat,sun,mon,tues

and then the tuesday after that so she would be off of it for over a

week.) She had a seizure that sunday at 12:15, we gave her the med

and then she had one at 3:30 with a follow up to the ER and an up on

the dosage.

She has been on the med since them and had another seizure this

sunday and of course it lasted for what seemed like forever. We have

been seeing doctor after docto9r, allergist and there is still no

answer.

Any help would be greatly appreciated. (I did talk to a Neurologist

from New York (his head nurse) and she told me that if all of the

tests were negative then it was most likely in her environment. I

have a new house and she had mentioned that all new stuff would have

the potential of posing a problem.

HELP???