Re: Valproic Acid (Depakane, Depakote)

June 13, 2001

>It is our strong desire to treat our son's seizures through nutrition,

>and have already started toward that goal. Our dilemma is, how do you

>graciously turn down the drs. recommendations without being considered

>irresponsible parents?

Maybe tell them you need to thoughtfully consider their advice and that you

will get back to them in the future??

June 14, 2001

It is our strong desire to treat our son's seizures through nutrition,

and have already started toward that goal. Our dilemma is, how do you

graciously turn down the drs. recommendations without being considered

irresponsible parents? We understand the side effects of the drugs, and

we explained our concern to the drs. But their thoughts were the danger

of the seizures outweigh the side effects of the drugs. So, we thought

we could have him on a low dosage of the medicine, while at the same time

build him up nutritionally hoping not to have him on the drugs long. Has

anyone rejected drug treatment and took a chance with your child

nutritionally? How did you handle the seizures? What were your paths?

Where do you go for a hair analysis? I live in St. Louis.

Thank you,

Bianca

June 14, 2001

Bianca,

We had our then 3 1/2 year old daughter Tasya on Depakote for 1 1/2 years

using nutritional means to build her up concurrently. The neuro's are right

that the seizures are dangerous, even life threatening, but they are sadly

wrong if they don't mandate nutritional intervention as a co-factor in

overall treatment of the disorder. Our neuro said that nutrition is okay to

play with but drugs are the only " proven " method of controlling seizure

activity. Of course, the neurologist won't talk to me anymore as Tasya is

off meds (since November 2000), and has only had two waking petite mal's

since and a few small bursts while asleep on occasion, but very mild ones.

I am one of the lucky ones as I run a company that has 12 medical advisors

and resources to do more research than the average person could hope to do.

You can read about my daughters on going saga at my website

http://www.carbonbased.com/EpilepsyJourney.htm .

Hopefully this helps.

In health,

Mark Schauss

[ ] Re: Valproic Acid (Depakane, Depakote)

> It is our strong desire to treat our son's seizures through nutrition,

> and have already started toward that goal. Our dilemma is, how do you

> graciously turn down the drs. recommendations without being considered

> irresponsible parents? We understand the side effects of the drugs, and

> we explained our concern to the drs. But their thoughts were the danger

> of the seizures outweigh the side effects of the drugs. So, we thought

> we could have him on a low dosage of the medicine, while at the same time

> build him up nutritionally hoping not to have him on the drugs long. Has

> anyone rejected drug treatment and took a chance with your child

> nutritionally? How did you handle the seizures? What were your paths?

>

> Where do you go for a hair analysis? I live in St. Louis.

>

> Thank you,

> Bianca

>

> _

>

June 14, 2001

Look up www.doctorsdata.com and your doctor should

be able to send it to them. If not them Great Smokies Lab

or Great Plains Lab. Also check amino acids, Mark on

the list should tell you more about that with cellmates.

For me, since my child is autistic, the first thing was to

get all wheat and milk products off. This improved seizures

by at least 50%. Then looking at phenolic foods because he has

PST deficiency (not enough sulphar, which detoxes the body) and even

diets such as FEINGOLD www.feingold.org . Then doing semi

to full paleo diet (www.paleo.org ). Then adding nutrition

with healing the gut (which is the first thing to be addressed in

epilepsy imho), things like L-Glutamine, Aloe Vera (mannatech or other

aloe products), Microhydin (alkalaizes the body), Mitochondrial

Cocktails (Vit A, E, K, C and Nicatinamide), for me

also addressing a carnatine deficiency, Fatty acids such

as Lauric Acids, OMEGA 369 balance, No transfats

(no Mceedees), Homeopathic Mecurials (to remove

mercury since most if not all autistic children are mercury

poisined from vaccinations or environment), Homeopathic

FGF (www.biomedd.com ), and now looking into chelation

We are also on the stealth protocol involving anti virals (www.ccid.org ),

and

I am looking into RIFE treatments to zap buggers and viruses.

Kathy