Re: Nutrition and Hope for epilepsy

[Guest guest]

Arnold,

Are you familiar with the side effects of seizure medication called

Lamictal? I went from being on Phenobarbitol and Dilantin to Tegretol...and

now Lamictal for seizure control. All those medications - with the

possible exception of Lamictal - adversely affect short-term memory.

I learned this the hard way - reading about the medication after I had

already been taking it. Are people actually able to substitute nutritional

supplements for seizure control medication? This sounds awfully risky.

Lamar

Arnold Gore wrote:

Hi

,I know how your feeling

and it feels difficult. I just want to point out at the beginning that

I WENT THROUGH THE SAME FEELINGS and went back on anticonvulsant

drugs from 1974 through April 1978. I then had my crisis in May/June '78

and have been off medication completely since July 4,1978. It's

always possible to still reverse the situation, just don't give up hope

and your interest in finding another way. As I recall you had a problem

with eating and this might very well be responsible in large measure for

a your nutrtional deficit resulting in seizures. Even if it isn't directly

controlling the seizure level, your overall health will improve immeasurably

if you start very consciously eating a healthy diet including mostly whole

foods, preferably organic. Your diet should include whole wheat bread,brown

rice, wheat germ, blackstrap molasses, liver and maybe even brewers yeast.

Brewers yeast is high in B Complex vitamins, but tastes ghastly and has

to be mixed with a strongly flavored drink such as a large glass of Orange

Juice. If you are allergic

to wheat as some people are, you will have to get the B vitamins from the

Rice,Liver(organically raised) and Brewers Yeast. You may be able to get

some of these from a B Complex vitamin, but I would try to back it up with

real food. Some people do not absorb vitamin pills as easily as from real

food. Out state of scientific knowledge in the tear 2001 thinks it has

identified the complete B Complex. Maybe, but if there are other elememts

and/or enzymes your body needs to digest and assimilate the nutrients it

will be in food, put there by the best chemist in the world. Regardless

of what course you take in the depths of your current despair, your improved

nutritional state will be a significant benefit and might even cure the

epilepsy as it did with me and many others. Don't lose hope. This may be

the opportunity you need to really concentrate on changing your fundamental

nutritional status.I would be glad to answer any specific questions you

have on this journey. You can do it! just give it a try.

Arnold Gore

Consumers Health Freedom Coalition

_

[Guest guest]

Hello to everyone and to Arnold gore. Its been sometime since I posted to the

site although I visit and read on a daily basis. I started having seizures

three years ago that progressed to grand mall eventually. Of course there was

no physical reason for the seizures that they could find and I did not want

to start on any medication. So I opted for a more holistic avenue. I had some

success but the seizures continued. Then I found out about Dr. s

parasite program and followed it. My grand mall seizures were reduced to 6

months apart and that was acceptable considering the alternative to taking

anticonvulsents.But now it seems that the grand malls are occurring again and

I just need a little support and words of encouragement from like minded

people. Today I fell down and hit my head and actually hit a closet mirror

and broke it. So needless to say I am sooooo depressed as I write this

everyone. I am going to start the parasite program all over and see what

happens.My diet is good but I just wonder were they are coming from. I am

thinking about going in for testing of sleep apnea because if I am sleep at

the time of a seizure they go to grand mall rather than when I am awake. Like

today I was sleep am was awakened by the seizure and got up to wash my face

and fell out. Like I said I just need some positive words and some support.

Thanks for listening everyone

Darrell

[Guest guest]

Arnold Gore do you have a email address

[Guest guest]

Darrell,

I want to encourage you to attack your epilepsy problem. I have

been on anti-convulsants for more than 30 years. Believe it or not,

just this week I found out that its the drugs I take for seizure control

that have given me ADD-like symptoms. My difficulty remembering information,

lack of organizational skills, slow response time, etc. is due to the medication.

In order for seizure medication to lessen electrical discharges in the

brain, it must put certain sections of the brain to sleep or slow down

the processing of information.

I suggest you do as I plan to do - re-educate your brain. Get

a neurophysical assessment. Take a look at your brainwave pattern

onscreen in realtime. Then, pursue either neurofeedback therapy or

some other kind which will facility the enhanced manufacture of seratonin

and other brain chemicals as well as build new neurological pathways in

your brain. This is what happens when a person re-educates their

brain. With this kind of therapy, there are NO adverse side effects.

Using medication you run the risk of developing lupus, diabetes or other

forms of disease in your later years.

We may may never be cured of epilepsy. But, many of us can teach

out brain not to have convulsions. Dr. Donna s has epilepsy.

However, she has not had a seizure in 25+ years. She taught her brain

not to go into convulsions. This woman has dedicated her life to

teaching others how to be seizure-free. You can check out her

website at www.andrewsreiter.com

..

Lamar

perfc2@... wrote:

Hello to everyone and to Arnold gore. Its been

sometime since I posted to the

site although I visit and read on a daily basis. I started having

seizures

three years ago that progressed to grand mall eventually. Of course

there was

no physical reason for the seizures that they could find and I

did not want

to start on any medication. So I opted for a more holistic avenue.

I had some

success but the seizures continued. Then I found out about Dr.

s

parasite program and followed it. My grand mall seizures were reduced

to 6

months apart and that was acceptable considering the alternative

to taking

anticonvulsents.But now it seems that the grand malls are occurring

again and

I just need a little support and words of encouragement from like

minded

people. Today I fell down and hit my head and actually hit a closet

mirror

and broke it. So needless to say I am sooooo depressed as I write

this

everyone. I am going to start the parasite program all over and

see what

happens.My diet is good but I just wonder were they are coming

from. I am

thinking about going in for testing of sleep apnea because if I

am sleep at

the time of a seizure they go to grand mall rather than when I

am awake. Like

today I was sleep am was awakened by the seizure and got up to

wash my face

and fell out. Like I said I just need some positive words and some

support.

Thanks for listening everyone

Darrell

_

[Guest guest]

Darrell, Lamar--

Curiouser & curiouser Darrell: what is the " parasite program " ? & Lamar (or

everyone else): does Donna s pursue the neurofeedback or biofeedback

program?

Everybody (Lamar, Zoe, Katharina): you've pretty much convinced me to try

the s/Reiter program. I feel almost guilty about b*tching to everyone

& to myself about my simple partial seizures. I know it could be much worse

-- but it also could be better, right?

~Aja

>From: Lamar <lamar@...>

>Reply-

>

>Subject: Re: [ ] Nutrition and Hope for epilepsy

>Date: Wed, 09 May 2001 17:14:07 -0400

>

>Darrell,

>

>I want to encourage you to attack your epilepsy problem. I have been on

>anti-convulsants for more than 30 years. Believe it or not, just this

>week I found out that its the drugs I take for seizure control that have

>given me ADD-like symptoms. My difficulty remembering information, lack

>of organizational skills, slow response time, etc. is due to the

>medication. In order for seizure medication to lessen electrical

>discharges in the brain, it must put certain sections of the brain to

>sleep or slow down the processing of information.

>

>I suggest you do as I plan to do - re-educate your brain. Get a

>neurophysical assessment. Take a look at your brainwave pattern

>onscreen in realtime. Then, pursue either neurofeedback therapy or some

>other kind which will facility the enhanced manufacture of seratonin and

>other brain chemicals as well as build new neurological pathways in your

>brain. This is what happens when a person re-educates their brain.

>With this kind of therapy, there are NO adverse side effects. Using

>medication you run the risk of developing lupus, diabetes or other forms

>of disease in your later years.

>

>We may may never be cured of epilepsy. But, many of us can teach out

>brain not to have convulsions. Dr. Donna s has epilepsy.

>However, she has not had a seizure in 25+ years. She taught her brain

>not to go into convulsions. This woman has dedicated her life to

>teaching others how to be seizure-free. You can check out her website

>at www.andrewsreiter.com .

>Lamar

>

>

>perfc2@... wrote:

>

> > Hello to everyone and to Arnold gore. Its been sometime since I posted

> > to the

> > site although I visit and read on a daily basis. I started having

> > seizures

> > three years ago that progressed to grand mall eventually. Of course

> > there was

> > no physical reason for the seizures that they could find and I did not

> > want

> > to start on any medication. So I opted for a more holistic avenue. I

> > had some

> > success but the seizures continued. Then I found out about Dr. s

> > parasite program and followed it. My grand mall seizures were reduced

> > to 6

> > months apart and that was acceptable considering the alternative to

> > taking

> > anticonvulsents.But now it seems that the grand malls are occurring

> > again and

> > I just need a little support and words of encouragement from like

> > minded

> > people. Today I fell down and hit my head and actually hit a closet

> > mirror

> > and broke it. So needless to say I am sooooo depressed as I write this

> >

> > everyone. I am going to start the parasite program all over and see

> > what

> > happens.My diet is good but I just wonder were they are coming from. I

> > am

> > thinking about going in for testing of sleep apnea because if I am

> > sleep at

> > the time of a seizure they go to grand mall rather than when I am

> > awake. Like

> > today I was sleep am was awakened by the seizure and got up to wash my

> > face

> > and fell out. Like I said I just need some positive words and some

> > support.

> > Thanks for listening everyone

> > Darrell

> >

> >

[Guest guest]

Aja,

You're right, it could be better. And why shouldn't you bitch? It

isn't easy or fun to have your life chronically disrupted by seizures-

-you have plenty to bitch about. Why don't you ask Donna about the

neurofeedback? When I spoke with her a couple of years ago by phone,

it sounded like they have state of the art equipment. Write her. I'm

thinking you'll be as imressed (and relieved!)as I was to know

someone out there really knows what you are going through and ways to

deal with it.Go for it!

Zoe

[Guest guest]

Aja, Lamar,

I am glad you can see some value in the s/Reiter Programme for yourself. I am glad it will help you.

I found some people here who work hard to change their lives and they deserve to get whatever support I can give them.

I think if they only have the right information they could judge their own situation from a different point of view, and make the right decision, whereas without any information they think they have no choice. And it makes them so hopeless.

It seems you had had the impression that you were caught forever in this situation with having seizures. You are not!

Best wishes to you!

Katharina

[Guest guest]

Katharina,

I am really impressed with your extensive knowledge concerning epilepsy

and the way you reach out to others. If I recall correctly, you actually

get on a plane and travel to help folks. Is that correct? That's

why I was curious to know if you were a doctor, nurse or some kind of therapist.

Are you by any chance the person who set up this group? It wouldn't

surprise me any if you were.

If Dr. s is willing to participate in a FREE Internet phone conference

call, would you like to participate? Have you ever used the phone?

Lamar

TVA12082208@... wrote:

Aja, Lamar,

I am glad you can see some

value in the s/Reiter Programme for

yourself. I am glad it will

help you.

I found some people here

who work hard to change their lives and they deserve

to get whatever support

I can give them.

I think if they only have

the right information they could judge their own

situation from a different

point of view, and make the right decision,

whereas without any information

they think they have no choice. And it makes

them so hopeless.

It seems you had had the

impression that you were

caught forever in this situation

with having seizures. You are not!

Best wishes to you!

Katharina

[Guest guest]

Lamar,

No, I am not the one who founded this beautiful newsgroup, you honour me too much, fact is, two years ago I did not even know such a group existed, and why I went into it has very tragic reasons.

I would humbly accept the offer to participate with the PhoneConference. And meeting Dr. Donna on the phone would be a dream! Only you would have to show me from scratch how to do it. I have never done that before. Right now, I am battling with the new telephone system, I am glad I can get into the internet, I am still playing skip the rope with all the wires and electric lines scattered over the floor here. Next Monday we will have to do some more distributing of connections with the partner I share these rooms with. I hope everything goes well.

And, again, I want to ask your attention for the experts here who do not carry an academic title, or at least never mentioned of it. A title is not the essential here.

Do you plan more conferences with more people from this group? It would be worth while listening to them!

After my daughter had her accident, hence scars in the brain, hence seizures, meds, status, change of meds, behavioral problems, wrong and incomplete diagnostics, wrong and incomplete treatment etc. etc. - you know all that - I did not understand the slightest bit of what was happening to her, or with her, or inside of her, I just could not comprehend the change she went through. I attributed it to whatever reason I could find, but I did not hit the truth at that time. My questions to those in charge of her treatment were brushed off. I had to find out all by myself, no help, no group, no nothing. Ask the mothers or any other person here on the board, how glad they were, when they finally found this board. They will understand me.

And I myself went through a change, too, I must tell you that. If you have someone severely ill, and you love him/her, life is like you are in an elevator together with that person: If the elevator goes up with that person, you go up. If the elevator goes down with that person, you go down. I know, one can try to lead one's own life, but not completely. And if you just lack the information what is going on, and if you do not have the perspective of an improvement, it is pretty rough. But the stubborn Kraut-crazy I am, even if I hung my wings now and then, I did not give up.

I have learned not to look at titles, because all those who were in charge of my daughter's treatment had titles. They were nurses, docs and specialists (she never had a therapist), as you mentioned. But what they lacked in our case was: commitment to their work and dedication to their clients. And believe me, I have learned more, in this special field, from the mothers and members here, from my own private studies and involvement, than from docs, RNs or specialists, even at university. Sad to say that.

Others may have had better experiences, I am glad for them, if they did, but mine had been being left alone in a life with the distressing consequences of my daughter's accident.

There were times, when I only read the postings, and did not dare to post myself, only once in a while did I make a contribution. I was totally inexperienced what was the custom in such groups. But I felt deeply related to the few groups I read. It was good to see how people supported each other. It really helped heal my wounds. And I also made good friends with a few.

I received so many good things from this group, so now I feel strengthened to put in what I have learned.

Best regards to you!

Katharina

In einer eMail vom 11.05.01 01:56:28 (MEZ) - Mitteleurop. Sommerzeit schreibt lamar@...:

Katharina, I am really impressed with your extensive knowledge concerning epilepsy and the way you reach out to others. If I recall correctly, you actually get on a plane and travel to help folks. Is that correct? That's why I was curious to know if you were a doctor, nurse or some kind of therapist. Are you by any chance the person who set up this group?

It wouldn't surprise me any if you were. If Dr. s is willing to participate in a FREE Internet phone conference call, would you like to participate? Have you ever used the phone? Lamar

[Guest guest]

Dear Donna,

Below is a message from the EpilepsyCured group. It's from

Katharina. I did not ask Katharina's permission to send this message

to you since it was listed on a public forum. However, I doubt she

would mind. I send this message as proof doing the phone conference

call is important.

Sincerely,

Lamar

TVA12082208@... wrote:

Lamar,

No, I am not the one who

founded this beautiful newsgroup, you honour me too

much, fact is, two years

ago I did not even know such a group existed, and

why I went into it has very

tragic reasons.

I would humbly accept the

offer to participate with the PhoneConference.

And meeting Dr. Donna on

the phone would be a dream! Only you would have to

show me from scratch how

to do it. I have never done that before.

Right now, I am battling

with the new telephone system, I am glad I can get

into the internet, I am

still playing skip the rope with all the wires and

electric lines scattered

over the floor here.

Next Monday we will have

to do some more distributing of connections with the

partner I share these rooms

with. I hope everything goes well.

And, again, I want to ask

your attention for the experts here who do not

carry an academic title,

or at least never mentioned of it.

A title is not the essential

here.

Do you plan more conferences

with more people from this group? It would be

worth while listening to

them!

After my daughter had her

accident, hence scars in the brain, hence seizures,

meds, status, change of

meds, behavioral problems, wrong and incomplete

diagnostics, wrong and incomplete

treatment etc. etc. - you know all that - I

did not understand the slightest

bit of what was happening to her, or with

her, or inside of her, I

just could not comprehend the change she went

through. I attributed it

to whatever reason I could find, but I did not hit

the truth at that time.

My questions to those in charge of her treatment were

brushed off. I had to find

out all by myself, no help, no group, no nothing.

Ask the mothers or any other

person here on the board, how glad they were,

when they finally found

this board. They will understand me.

And I myself went through

a change, too, I must tell you that. If you have

someone severely ill, and

you love him/her, life is like you are in an

elevator together with that

person: If the elevator goes up with that person,

you go up. If the elevator

goes down with that person, you go down. I know,

one can try to lead one's

own life, but not completely. And if you just lack

the information what is

going on, and if you do not have the perspective of

an improvement, it is pretty

rough. But the stubborn Kraut-crazy I am, even

if I hung my wings now and

then, I did not give up.

I have learned not to look

at titles, because all those who were in charge of

my daughter's treatment

had titles. They were nurses, docs and specialists

(she never had a therapist),

as you mentioned. But what they lacked in our

case was:

commitment to their work

and dedication to their clients.

And believe me, I have learned

more, in this special field, from the mothers

and members here, from my

own private studies and involvement, than from

docs, RNs or specialists,

even at university. Sad to say that.

Others may have had better

experiences, I am glad for them, if they did, but

mine had been being left

alone in a life with the distressing consequences of

my daughter's accident.

There were times, when I

only read the postings, and did not dare to post

myself, only once in a while

did I make a contribution. I was totally

inexperienced what was the

custom in such groups. But I felt deeply related

to the few groups I read.

It was good to see how people supported each other.

It really helped heal my

wounds. And I also made good friends with a few.

I received so many good things

from this group, so now I feel strengthened to

put in what I have learned.

Best regards to you!

Katharina

In einer eMail vom 11.05.01

01:56:28 (MEZ) - Mitteleurop. Sommerzeit schreibt

lamar@...:

Katharina, I

am really impressed with your extensive knowledge concerning

epilepsy and

the way you reach out to others. If I recall correctly, you

actually get

on a plane and travel to help folks. Is that correct? That's

why I was curious

to know if you were a doctor, nurse or some kind of

therapist.

Are you by any chance the person who set up this group?

It wouldn't

surprise me any if you were. If Dr. s is willing to

participate

in a FREE Internet phone conference call, would you like to

participate?

Have you ever used the phone? Lamar