Re: Refusal to take Medications is a last gasp effort to resist Harmful drugs

[Guest guest]

Arnold,

I don't think my daughter's refusal to take her meds is an instinct of self-preservation because she feels they are not good for her. Among those morning pills are a multi-vitiman, choline, and piracetam. But she does not function at age level, and frankly, she doesn't have a clue what she is taking. She just knows that I get very upset when she refuses to take her meds, and as the psychologists say, she knows she can control me,(by making me angry).

Terri

[Guest guest]

Can she verbally tell you how the medications make her feel

physically once she takes them?

Jeanne

> Arnold,

> I don't think my daughter's refusal to take her meds is an instinct

of self-preservation because she feels they are not good for her.

Among those morning pills are a multi-vitiman, choline, and

piracetam. But she does not function at age level, and frankly, she

doesn't have a clue what she is taking. She just knows that I get

very upset when she refuses to take her meds, and as the

psychologists say, she knows she can control me,(by making me angry).

>

> Terri

[Guest guest]

Jeanne,

No, she can't describe how she feels after taking her meds. She only

communicates about absolutes not abstracts. But the behavior is the same

not only with taking meds, but also with hair brushing, teeth brushing, etc.

That is what I was trying to get across to Arnold.

I admire people who try alternative treatments. I have done some of that

too, but my daughter HAS to take anti-seizure medication. I sort of got the

feeling he was suggesting I was giving her a bunch of junk she knew wasn't

good for her, and didn't need.

Terri

[Guest guest]

Do you receive any services to assist you in coping with the

behavior? 2176 Waiver or Therapeutic Support perhaps? You didn't

mention her age. I have a parent that goes to great lengths to

disguise the meds and it worked great for her. Take

Oreos.........split one apart and scrape off the cream and throw it

away.........grind medications using a med grinder and mix in with a

bit of canned icing. Put icing between two cookies and suddenly meds

are a cookie....then the child eats the cookie without a problem

(they also make sure that the child never gets cookies at any other

time, that way there won't be disinterest). I just wanted to share

this because I thought it was pretty original. Of course if you keep

your child away from sugar and stuff then it probably wouldn't be

helpful.

Jeanne

> Jeanne,

>

> No, she can't describe how she feels after taking her meds. She

only

> communicates about absolutes not abstracts. But the behavior is

the same

> not only with taking meds, but also with hair brushing, teeth

brushing, etc.

> That is what I was trying to get across to Arnold.

> I admire people who try alternative treatments. I have done some

of that

> too, but my daughter HAS to take anti-seizure medication. I sort

of got the

> feeling he was suggesting I was giving her a bunch of junk she knew

wasn't

> good for her, and didn't need.

>

> Terri

[Guest guest]

I worked with a young woman in her 20s for a while with multiple

disabilities whose brain was terribly damaged from her birth mother's

drug abuse during pregnancy (suspected stroke in utero). Her

behaviors were HORRIBLE, but I continued to work with her. Doctors

medicated her and medicated her and one doctor even decided that

putting her on high doses of Depakote would control her supposed

rapid cycling bi-polar disorder. She showed signs of stomache

discomfort so they prescribed propulsid...........then eventually med

time became a battle, more and more so every day. She was adamantly

refusing her meds, but she was non-verbal and therefore unable to

communicate the reason. She went to sleep one night and when the

staff went in to awaken her in the morning to start her routine she

had died during the night. The county she lived in practically

accused the agency of killing her because she had bruising from her

behaviours that sometimes lasted for hours at a time. (Luckily I had

documentation on video tape that I used to train new staff). Now

that we are able to look back a few years, propulsid is off the

market..........was she trying to tell us something? Or was it just

her time, we'll never know. It's such a difficult issue.

Jeanne

> Terri,

>

> It may seem very difficult to reconcile with all you are doing to

" help " your daughter, but her instinctive reaction-one of the few

instincts of self preservation she still has tell her that this

medication is not Good for me. When I was a kid I used to throw away

my " middle " pil (the one I took in the middle of the day) when i was

supposed to take it in school. The morning and evening pill my

parents could observe so I had to take it.

> Arnold Gore

> Comsumers Health Freedom Coalition

[Guest guest]

Jeanne,

My daughter is 10 years old. We are searching for help with behavior

modification. Haven't found anything that has helped yet. I am not

familiar with the 2176 Waiver you spoke of . We have seen psychologists who

only suggested respite care.

The refusal to take meds is just another power struggle. It is the same

with hair brushing, teeth brushing, etc. It is not every day with the meds

though, just when she is in one of her moods.

Terri

[Guest guest]

What funding streams would your daughter fall into.....MH???.....MR???

Jeanne

> Jeanne,

> My daughter is 10 years old. We are searching for help with

behavior

> modification. Haven't found anything that has helped yet. I am not

> familiar with the 2176 Waiver you spoke of . We have seen

psychologists who

> only suggested respite care.

>

> The refusal to take meds is just another power struggle. It is the

same

> with hair brushing, teeth brushing, etc. It is not every day with

the meds

> though, just when she is in one of her moods.

>

> Terri

[Guest guest]

Jeanne,

After her most recent evaluation, she was diagnosed with ADD, MMR, severe

language disorder, and a seizure disorder.

Terri