Re: Snagged first new spammer

[Guest guest]

In a message dated 4/17/2007 8:57:26 A.M. Eastern Daylight Time,

psalmon@... writes:

Oh it's the little things in life that bring me such joy lololololol

Yes, this makes me happy, too. When I got this, I realized that I haven't

heard much from our list lately. I hope that means that everyone is feeling

great!

Thanks for saving us from spam,

AntJoan

************************************** See what's free at http://www.aol.com.

[Guest guest]

Dear Kate,

Yes, it is nice to know something about you after all this time, in addition

to your thyroid levels.

Moving is one of the most stressful events in life, right up there with

divorce or death, so I can imagine that your state of health is being affected.

You sound like a very strong, capable person, so I know you'll come through

this OK.

Anyone else out there? . . .

AntJoan

************************************** See what's free at http://www.aol.com.

[Guest guest]

Hi Ant Joan

Yes it has been quiet. It's hard to distinguish the real members from the spam

sometimes.

I'm in the frantic process of moving - and showing my house, and having house

inspectors in...all the fun stuff.

My son and daughter are both expecting before Christmas so this is an

interesting time for me. It's a hard time too as my daughter's pregnancy is

high risk, as is her health in general. She is extremely ill and is diabetic.

She is recovering from surgery for ovarian cancer...so it's kind of a tense time

for me. My muscles are all in terrible spasms most of the time - and it isn't

something that I can change easily. My thyroid meds are consistant but I am

sure my levels are all over the place. Sometimes my heart races like crazy for

no apparent reason. That usually happens on a day that I'm having all sorts of

hyper symptoms. Then other days I simply can't stay awake or get warm...but I

do think it is mostly stress.

I hate packing! We've been here almost 18 years so there is an incredible

amount of 'stuff' to deal with. My kids are all grown up - and left home - and

have left stuff behind of course. My daughter in New York isn't likely to come

and get her stuff. My daughter in town has had to throw out stuff she wanted

already as she and her sig other have a tiny house and one child already. My

son lives in a tiny apartment - and somehow boy's stuff is big stuff (e.g. scuba

gear)....

Maybe others on the list have some personal stuff to contribute. It helps to

'know' who we are 'talking' with....

Kate

Re: Snagged first new spammer

In a message dated 4/17/2007 8:57:26 A.M. Eastern Daylight Time,

psalmon@... writes:

Oh it's the little things in life that bring me such joy lololololol

Yes, this makes me happy, too. When I got this, I realized that I haven't

heard much from our list lately. I hope that means that everyone is feeling

great!

Thanks for saving us from spam,

AntJoan

************************************** See what's free at http://www.aol.com.

[Guest guest]

I guess no one else is there for now - or at least no one else is talking

Tell me about you...

kate

Re: Snagged first new spammer

Dear Kate,

Yes, it is nice to know something about you after all this time, in addition

to your thyroid levels.

Moving is one of the most stressful events in life, right up there with

divorce or death, so I can imagine that your state of health is being

affected.

You sound like a very strong, capable person, so I know you'll come through

this OK.

Anyone else out there? . . .

AntJoan

************************************** See what's free at http://www.aol.com.

[Guest guest]

Hi all, I was a bit under the weather last week with a cold/flu thing.so

wasn't up to talking much.

My name is Patti and I've been on the list for a couple of years now I

think. I am now list moderator

I was dx'd about 15 years ago with hyperT..I'm one of the few that took RAI

treatment.

I have done well over the years, taking meds each day .

About 2 years ago I go Rocky Mt Tick fever along with another tick disease,

Ehrlichiosis. I am a mobile dog groomer here in the deep south, and though

I was/am very careful about ticks, it only takes one bite. Well, long story

short, I was sick for several months with that, and then my adrenals trashed

out. So now, besides having No thyroid, I have NO adrenals. Ain't life

grand. So besides synthroid, I'm now on bloody steroids. We have tried

" resting " the adrenals but nothing seems to help, so it looks like I'm on

steroids for life now too. I'm taking the lowest possible amount I can take,

about .5 of dex. So far my weight is doing ok, I really haven't gained

much, maybe 5lbs in two years. Right now I am attempting to cut back even

more, taking half a pill every other day.

But really, consider how sick others are with both thyroid and Addisions

[adrenal failure] I'm not all that bad off. I am still working full time,

infact I run two business's. I still ride my horses etc.There are some days

when I seem to crash a bit, but considering my work load, no one is

surprised. <wink>

I do have to watch " stressful' situations.things that would 'tax' the normal

person , can really hit me hard and take me down fast, so I must always be

prepared to take more steroids as needed, since my body won't produce more

on command..<sigh> sometimes I forget ! oh well...such is life.

Patti

[Guest guest]

Hi Patti

You sound like you are doing just grand, all things considered! Well done:-)

I too have been diagnosed with s as well as having Graves and yes,

have been struggling some but getting there. At first I was on too high a

dose of steroids and ended up in hospital suicidal (I can't explain how it

makes you feel) but now that my steroid dose is lowered I feel much better

tho i have noticed gradual weight gain. I am on 15mg per day (10mg a.m., 5

mg p.m.) although I got a cold recently and had to double that as I was

floored. Like you I feel I am doing well carrying on my job (part time

20-30hrs) as well as helping hubby on our smallholding and the usual running

after the family etc (you know how it is).

What I am learning though is to listen to my body and I know now if I am

pushing too hard I get tired and I am learning to just say I am off for a

sleep if I have to. Took a bit of getting used to but stops me " crashing

out " as I call it.

I have now been diagnosed with pernicious anaemia too. One thing that is

bothering me is I am having stomach pains and unsure if this is the steroids

- have you had this at all? It is all very confusing knowing whether

symptoms are caused by Graves or s sometimes. Unlike you, I never

took RAI, I changed dr and am now on block and replace therapy. Get so sick

of taking these tablets, eh?!

One thing I see is that you are taking your steroids every other day? My Dr

stressed to me how important it was to take the tablets at the right time

and never not to take them but that is interesting. I know when I am

needing to take my dinner time dose because by then I am very tired. The

morning tablet I take as soon as I waken and he told me always to take it as

soon as I waken.

Let me know how you get on and look after yourself:-)

hugs

Grace

RE: Snagged first new spammer

Hi all, I was a bit under the weather last week with a cold/flu thing.so

wasn't up to talking much.

My name is Patti and I've been on the list for a couple of years now I

think. I am now list moderator

I was dx'd about 15 years ago with hyperT..I'm one of the few that took RAI

treatment.

I have done well over the years, taking meds each day .

About 2 years ago I go Rocky Mt Tick fever along with another tick disease,

Ehrlichiosis. I am a mobile dog groomer here in the deep south, and though

I was/am very careful about ticks, it only takes one bite. Well, long story

short, I was sick for several months with that, and then my adrenals trashed

out. So now, besides having No thyroid, I have NO adrenals. Ain't life

grand. So besides synthroid, I'm now on bloody steroids. We have tried

" resting " the adrenals but nothing seems to help, so it looks like I'm on

steroids for life now too. I'm taking the lowest possible amount I can take,

about .5 of dex. So far my weight is doing ok, I really haven't gained

much, maybe 5lbs in two years. Right now I am attempting to cut back even

more, taking half a pill every other day.

But really, consider how sick others are with both thyroid and Addisions

[adrenal failure] I'm not all that bad off. I am still working full time,

infact I run two business's. I still ride my horses etc.There are some days

when I seem to crash a bit, but considering my work load, no one is

surprised. <wink>

I do have to watch " stressful' situations.things that would 'tax' the normal

person , can really hit me hard and take me down fast, so I must always be

prepared to take more steroids as needed, since my body won't produce more

on command..<sigh> sometimes I forget ! oh well...such is life.

Patti

[Guest guest]

Sorry for the confusion, I take .5 one day and then .25 the next day and

then back to .5 etc etc etc. In this way , hopefully , I am cutting my

steroid use down per week.

Infact my doctor said I could even try one pill every other day but I felt

that wouldn't be such a good idea, I was afraid of crashing.

Ok, your stomach. This is what I have found thru research etc. Its more to

do with 's then the steroids. Seems the adrenals help to regulate

stomach enzymes or some such thing, sorry to be so vague.but I found that I

was having some stomach 'issues' before I was dx'd. I would eat something

and it would just 'sit' there..and I would blow up and get very

uncomfortable. Not enough enzymes to start the digestive process I guess.

So if I get 'low' in the steroid dept, I will notice my stomach acting up. I

do take some Ultra Enzyme type supplement and that helps a lot.

I am on dex. Most folks are other forms that I can't recall at the

moment..and I have pushed to have him switch me over to the more 'natural

form' of cortisol replacement, which means taking pills 3 times a day to

follow the natural flow of our own cortisol production, but he felt the dex

would work best because I don't have, oh whats the word, when you have

adrenal failure of both the interior and exterior .....fill in the blank.

Sorry, brain dead today, been a long dam day and this is what happens when

I start running low on dex.

Really bad patients need to take a second drug, starts with an F.

Flornuf or whatever its call. I don't have to do that.

Sorry for the lack of GREAT information.I'm just tired. Gotta cook dinner

and feed the horses too...and my feet hurt !

Patti

[Guest guest]

Hi Patti

I see - that explains some - yes I understand the brain tiredness - you sound

like you are doing a lot. Well at least I know why I am having stomach pains:-)

I agree with you that you are better doing things the way you are with your

steroids, taking them alternating doses as you reduce them rather than take a

day, miss a day as I would be afraid of crashing too.

My dr has said that he is about to start me on Flurinef which is the other drug

you talked about - it is something to do with the internal and external cortex

of the adrenals. I am hoping when I go on that that I feel less tired as I am

tired of being tired!!? Lol

Keep your chin up, I think you are doing great, probably too much Lol. Look

after yourself and keep in touch.

Gotta go now as late here and I am getting sleepy.

Grace

----Original Message----

From: psalmon@...

Date: 19/04/2007 23:21

<hyperthyroidism >

Subj: RE: Snagged first new spammer

Sorry for the confusion, I take .5 one day and then .25 the next day and

then back to .5 etc etc etc. In this way , hopefully , I am cutting my

steroid use down per week.

Infact my doctor said I could even try one pill every other day but I felt

that wouldn't be such a good idea, I was afraid of crashing.

Ok, your stomach. This is what I have found thru research etc. Its more to

do with 's then the steroids. Seems the adrenals help to regulate

stomach enzymes or some such thing, sorry to be so vague.but I found that I

was having some stomach 'issues' before I was dx'd. I would eat something

and it would just 'sit' there..and I would blow up and get very

uncomfortable. Not enough enzymes to start the digestive process I guess.

So if I get 'low' in the steroid dept, I will notice my stomach acting up. I

do take some Ultra Enzyme type supplement and that helps a lot.

I am on dex. Most folks are other forms that I can't recall at the

moment..and I have pushed to have him switch me over to the more 'natural

form' of cortisol replacement, which means taking pills 3 times a day to

follow the natural flow of our own cortisol production, but he felt the dex

would work best because I don't have, oh whats the word, when you have

adrenal failure of both the interior and exterior .....fill in the blank.

Sorry, brain dead today, been a long dam day and this is what happens when

I start running low on dex.

Really bad patients need to take a second drug, starts with an F.

Flornuf or whatever its call. I don't have to do that.

Sorry for the lack of GREAT information.I'm just tired. Gotta cook dinner

and feed the horses too...and my feet hurt !

Patti

[Guest guest]

Thank you ! Internal and external cortex of the adrenals and the drug is

Flurinef. Sorry to sound soooo dam spacey but some days I swear my brain is

on overload.

I have had the adrenal test twice a year for 2 years and they can't get a

dam response out of them. I was SO hoping that if they rested I could stop

the steroids. No such luck though.

Oh I know the feeling about being tired, I get sick of listening to myself

say I'm tired.I feel sorry for those around me !

Its about time for bed for me too..I have another long day tomorrow.

Patti

[Guest guest]

My heart goes out to you. So tired and work yet to do and your feet sore too.

That's exactly how I feel at the end of the day. Maybe it is thyroid related???

Kate

RE: Snagged first new spammer

Sorry for the confusion, I take .5 one day and then .25 the next day and

then back to .5 etc etc etc. In this way , hopefully , I am cutting my

steroid use down per week.

Infact my doctor said I could even try one pill every other day but I felt

that wouldn't be such a good idea, I was afraid of crashing.

Ok, your stomach. This is what I have found thru research etc. Its more to

do with 's then the steroids. Seems the adrenals help to regulate

stomach enzymes or some such thing, sorry to be so vague.but I found that I

was having some stomach 'issues' before I was dx'd. I would eat something

and it would just 'sit' there..and I would blow up and get very

uncomfortable. Not enough enzymes to start the digestive process I guess.

So if I get 'low' in the steroid dept, I will notice my stomach acting up. I

do take some Ultra Enzyme type supplement and that helps a lot.

I am on dex. Most folks are other forms that I can't recall at the

moment..and I have pushed to have him switch me over to the more 'natural

form' of cortisol replacement, which means taking pills 3 times a day to

follow the natural flow of our own cortisol production, but he felt the dex

would work best because I don't have, oh whats the word, when you have

adrenal failure of both the interior and exterior .....fill in the blank.

Sorry, brain dead today, been a long dam day and this is what happens when

I start running low on dex.

Really bad patients need to take a second drug, starts with an F.

Flornuf or whatever its call. I don't have to do that.

Sorry for the lack of GREAT information.I'm just tired. Gotta cook dinner

and feed the horses too...and my feet hurt !

Patti

[Guest guest]

I am a mobile dog groomer and I spent a lot of time standing on my feet in

the trailer on a rather hard floor. I have mats but still, yikes, at the end

of the day my feet will be burning. I am going to try to find some new mats

and double them up a bit and see if that helps. I don't' think it thyroid

related, probably just from standing for long long hours without a break.

I feel I'm one of the lucky ones.I can at least function and work.

Patti

[Guest guest]

In a message dated 4/19/2007 11:44:46 A.M. Eastern Daylight Time,

Fraserk@... writes:

I guess no one else is there for now - or at least no one else is talking

Tell me about you...

kate

Dear Kate,

I guess we started something! Good to hear from everyone.

As everyone probably knows, I had Graves disease in 1996, and consider

myself cured. I joined this list to help and inspire others, and to help

persuade

people to try meds, supplements and other methods to cure themselves, rather

than do the RAI.

I live in Brooklyn, NY, with my husband, but spent my childhood in Buffalo,

NY. I used to be a writer/editor, but went to graduate school in 1998, and

became a psychotherapist. I highly recommend changing careers in midlife, it

was the best thing I ever did. I now work in a clinic part time, and also

have a private practice in my home, where I built offices in my basement.

Helping others and continually learning, I have a richness, meaning and

fulfillment in my life that I have always yearned for. Also, helping others

takes my mind off of myself, and my own problems and issues--especially things

I

can do nothing about, such as losses and aging.

I work out almost every day, and eat well, trying to keep in shape, and to

keep my health. I have lots of friends and a small, but close, family.

I usually don't talk about myself, so this was kind of a weird experience

for me. How'd I do?

Take care,

AntJoan

************************************** See what's free at http://www.aol.com.

[Guest guest]

Hi Ant Joan

It's nice to know you. Funny how we all try to keep our anonymity on a 'support

forum'. But it's great to hear about who you are.

So you live in Brooklyn. I think I've been through there. The first time I

went to New York City was the Christmas when I was 13. My older brother had

drowned that previous summer and my folks couldn't face Christmas at home. We

stayed with friends in Manhatten. It was a good trip. The next time was with

my husband when we finally made it to visit my eldest daughter who lives on Long

Island. That was a summer visit and went really well. Since historically we

have not had a great relationship it was a good thing to do. Then just March

this year I bought a motorcycle on EBay and had to drive to 'Yorkland Heights'

which is just north of the Bronx to pick it up. The weather was ugly and we

went down on one day, stayed put one day, and then back the next. Fun drive

but too long. I think I'm feeling my age nowadays. When I set still for any

length of time I get really stiff and sore.

Congratulations on changing your occupation midlife. I did that a little

earlier. I started out accounting but realized that computers were the way of

the future. So, back to school for me. I had two children then and was a

'single parent'. I switched and it was a good move. When I had such a

terrible time at my last job (high stress) my doctor suggested changing

occupation again. I just looked at him and couldn't believe what he was

suggesting. It had been a hard switch to computers and I sure wasn't prepared

for another major change. This was during the time that I was for sure hyper,

before I was diagnosed.

Thank you for sharing,

Kate

Re: Snagged first new spammer

In a message dated 4/19/2007 11:44:46 A.M. Eastern Daylight Time,

Fraserk@... writes:

I guess no one else is there for now - or at least no one else is talking

Tell me about you...

kate

Dear Kate,

I guess we started something! Good to hear from everyone.

As everyone probably knows, I had Graves disease in 1996, and consider

myself cured. I joined this list to help and inspire others, and to help

persuade

people to try meds, supplements and other methods to cure themselves, rather

than do the RAI.

I live in Brooklyn, NY, with my husband, but spent my childhood in Buffalo,

NY. I used to be a writer/editor, but went to graduate school in 1998, and

became a psychotherapist. I highly recommend changing careers in midlife, it

was the best thing I ever did. I now work in a clinic part time, and also

have a private practice in my home, where I built offices in my basement.

Helping others and continually learning, I have a richness, meaning and

fulfillment in my life that I have always yearned for. Also, helping others

takes my mind off of myself, and my own problems and issues--especially things

I

can do nothing about, such as losses and aging.

I work out almost every day, and eat well, trying to keep in shape, and to

keep my health. I have lots of friends and a small, but close, family.

I usually don't talk about myself, so this was kind of a weird experience

for me. How'd I do?

Take care,

AntJoan

************************************** See what's free at http://www.aol.com.