Re: Eager to join your group and share my story!

[Guest guest]

Sorry it took so long for you to get a diagnosis - how frustrating!

Is there anything wrong with your eyes now? If not, there's a good chance

you won't develop that problem at all as it is actually due to a different

type of antibody than the one that attacks the thyroid in Grave's disease.

While some people develop both (and some even have the eye disease while

their thyroid remains normal!), lots of people never experience any eye

problems. However, you should know, that radioactive iodine treatment (RAI)

can trigger eye problems for people who are susceptible to it.

Good luck with your treatment and rest assured that getting your thyroid

levels down will most likely put an end to the anxiety issues!

Nissa

On Tue, 20 May 2008 09:42:50 -0000, " bambleja " <bambleja@...> wrote:

> Hi everyone!. This is the first group that I'm joining, well one

> needs some support and suggestions. I was diagnosed with

> hyperthyroidism a little bit more than a month ago. It all started as

> dizziness, one day at work the room started spining and I really

> freaked out. I started having tingling sensations in my left arm and

> felt really sick in my stomach. So my fiance took me to the ER, where

> they only laughed at me, because I wasn't falling down with my eyes

> closed and could still walk straight. They've sent me home with

> nothing. I've only experiences very strong vertigo about a month ago

> before that when my wisdom teeth were pulled out, so I thought maybe

> the doc used too much of a numbing medicine of something. Everything

> was fine untill one day, when the hell broke loose. I was shoping at

> the department store and felt the sensation again, ran outside to get

> some fresh air and since then I've felt so surreal, like in the

> dream, lightheaded all the time, couldn't go to the public places I

> guess I've got some anxiety problems with the main underlying problem

> as well. So to make the story short every doc that I went to told me

> that I was fine, just experienced a lot of stress and was having

> panic attacks and symptoms of the anxiety. Had MRI which was fine,

> blood test fine, saw neurologist who told me I was fine. I couldn't

> believe what they've told me and deep down I knew something was

> wrong, so almost 6 months after doing my recearch online and reading

> a lot of books about anxiety I've deceided to do one more test to

> check my thyroid. And surprise surprise, my results showed

> hyperthyroidism!

> I don't know yet if I have Grave's disease or not, and I'm very

> scared to develope the thyroid eyes syndrome.

> I'm waitng for any thought suggestions that you can give me, what to

> eat to avoid, what tests to do etc.

> P.S. sorry if I made too many mistakes, english is my second language

> or took too much of your time.

> Good luck to you all.

[Guest guest]

>

> Sorry it took so long for you to get a diagnosis - how frustrating!

>

> Is there anything wrong with your eyes now? If not, there's a good

chance

> you won't develop that problem at all as it is actually due to a

different

> type of antibody than the one that attacks the thyroid in Grave's

disease.

> While some people develop both (and some even have the eye disease

while

> their thyroid remains normal!), lots of people never experience any

eye

> problems. However, you should know, that radioactive iodine

treatment (RAI)

> can trigger eye problems for people who are susceptible to it.

>

> Good luck with your treatment and rest assured that getting your

thyroid

> levels down will most likely put an end to the anxiety issues!

>

> Nissa

>

Hi Nissa,

Thank you so much for your responce. No, I don't have any problems

with my eyes yet, knock on the wood,other than some pressure, which I

guess could be from the computer, because I've spent a lot of time on

it yesterday. I'm hoping really hoping that I won't need the IRA, my

doc told me that my thyroid is normal size, just darker than it

should be, but she said it's because it's being too active.

I'm considering alternative health practitioners. Do you think this

could do me any good, or I'll just waist my money?

[Guest guest]

Hi there! I'm new to this too. I was diagnosed just over a month ago and am

currently taking tablets to level things out. Its interesting you talking about

the dizziness as I didn't know that was a symptom? A few weeks before I was

diagnosed, I also suffered terrible dizziness and was diagnosed then with

labyrinthitis. So maybe it wasn't that at all. I still feel dizzy at times,

but not as bad as before, I couldn't move my head without the room spinning. I

must ask my doctor about that.

I suggest you look at a website, ithyroid.com Its full of information you will

find invaluable. I am reading a little bit each day as its hard to take it all

in.

Also you might like to talk to your doctor about taking betablockers to protect

your heart. My doctor won't let me have them because I also have asthma, so I

have to suffer a pounding heart,.

I'd be interested to know how you get on with your problems as we have been

diagnosed at the same time, so please keep in touch.

Eager to join your group and share my story!

Hi everyone!. This is the first group that I'm joining, well one

needs some support and suggestions. I was diagnosed with

hyperthyroidism a little bit more than a month ago. It all started as

dizziness, one day at work the room started spining and I really

freaked out. I started having tingling sensations in my left arm and

felt really sick in my stomach. So my fiance took me to the ER, where

they only laughed at me, because I wasn't falling down with my eyes

closed and could still walk straight. They've sent me home with

nothing. I've only experiences very strong vertigo about a month ago

before that when my wisdom teeth were pulled out, so I thought maybe

the doc used too much of a numbing medicine of something. Everything

was fine untill one day, when the hell broke loose. I was shoping at

the department store and felt the sensation again, ran outside to get

some fresh air and since then I've felt so surreal, like in the

dream, lightheaded all the time, couldn't go to the public places I

guess I've got some anxiety problems with the main underlying problem

as well. So to make the story short every doc that I went to told me

that I was fine, just experienced a lot of stress and was having

panic attacks and symptoms of the anxiety. Had MRI which was fine,

blood test fine, saw neurologist who told me I was fine. I couldn't

believe what they've told me and deep down I knew something was

wrong, so almost 6 months after doing my recearch online and reading

a lot of books about anxiety I've deceided to do one more test to

check my thyroid. And surprise surprise, my results showed

hyperthyroidism!

I don't know yet if I have Grave's disease or not, and I'm very

scared to develope the thyroid eyes syndrome.

I'm waitng for any thought suggestions that you can give me, what to

eat to avoid, what tests to do etc.

P.S. sorry if I made too many mistakes, english is my second language

or took too much of your time.

Good luck to you all.

------------------------------------------------------------------------------

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Checked by AVG.

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[Guest guest]

Welcome to the group, Bambleja!

I had eye discomfort when things were really bad for me last year, and

even some vision changes, but it wasn't too bad. It all went away when

my thyroid was settled down. From my perspective, the natural

(alternative) approach (correction through diet and supplements) was

successful for me. When I talk to others who have undergone surgery or

other conventional methods, I'm always much happier about how my

treatment went, BUT I EMPHASIZE, it's not for everyone.

My suggestion would be to listen to your body, educate yourself, find a

good doctor (conventional or alternative, or both) who listens to you,

and get excited about your path of healing! My path was filled with

fear, a body that was moving too fast, lots of public embarrassments at

work, lots of scared, lonely nights in the shower crying because I was

losing so much hair and weight, and I couldn't regulate my body

temperature at all. There was one point where if I dropped down even

one or two more pounds to be below 110, I was going to have to quit my

job. And I love my job!

Then, something clicked. I found the right combination of supplements

and within a week, I was doing much, much better. I gained about 10

pounds in about a week to get closer to my normal weight. There were

still lingering problems, but those cleared up with attention to what I

was taking and shifting dosages as my body shifted.

There are a lot of good people in this group, who have used all kinds of

different treatment options. You're welcome to write anytime you have

questions or need support. A lot of these things are things only

another hyperthyroidism patient can relate to.

Take good care!

-Tana

> Thank you so much for your responce. No, I don't have any problems

> with my eyes yet, knock on the wood,other than some pressure, which I

> guess could be from the computer, because I've spent a lot of time on

> it yesterday. I'm hoping really hoping that I won't need the IRA, my

> doc told me that my thyroid is normal size, just darker than it

> should be, but she said it's because it's being too active.

> I'm considering alternative health practitioners. Do you think this

> could do me any good, or I'll just waist my money?

[Guest guest]

Hello my darlings,

Thank you so much for such warm posts.

Indeed, I'm trying to educate myself as much as I can about this

situation. This is very hard on my family too, since I'm only 25 and

I've changed so much during the last year, especially emotionally. My

partner is very suportive though, I'm so grateful for him, yesterday

he read that website for spouses and familys of those who suffer from

hyperthyroidism, after an hour of reading all those personal stories

he came to me and gave me a big hug. This was such a relief for me,

because he didn't really knew what I was going through, he thought

everything was fine with me, just I was going through a stressful

period of my life and everything will get better. I am a strong

believer that everything happens for a reason, I've gathered so much

information during the last year about anxiety, agorophobia,stress(I

thought I was first suffering from anxiety maybe even agorophobia)and

now about hyperthyroidism, who knows maybe one day I'll decide to

become a natural practitioner to help ppl just like me...lol..

Anyway I'm just curiuos how has hyperthyroidism affected your

everyday life? Do you feel anxious about going to public places, warm

places with lots of ppl,work etc? I'm in the process of looking for a

new job, because I've relocated back to europe, but sometimes I feel

that I'm so not ready to start it. I get tired so quickly and I'm

anxious all the time.

I was thinking to start taking all those vitamins listed in the

ithyroid, but couldn't find copper anywhere in my town, so I guess

I'll have to order it online.

Best of whishes to all of you.

[Guest guest]

Hi Bambleja

Before you start taking any supplements you need to find out what you

are deficient in, otherwise taking supplements may do more harm than

good. If you read iThyroid.com you will learn that it is about having

these minerals in balance. One way forward is to have a hair analysis

test. It's not foolproof but should tell you, for instance, if you are

deficient in copper.

Colin

>

>

> I was thinking to start taking all those vitamins listed in the

> ithyroid, but couldn't find copper anywhere in my town, so I guess

> I'll have to order it online.

> Best of whishes to all of you.

>

[Guest guest]

Hi Bambleja,

Wow, you're 25! I'm only 28! I think it's less common for younger

people to be diagnosed with hyperthyroidism, but clearly, it happens.

It's fantastic you have a supportive partner.

Hyperthyroidism affected my everyday life in severe ways. I spend

most of my waking time at work, and found that I became extremely

sensitive to everything. I would swing from being energetic to

exhausted, happy to miserable, fever to chills, back and forth over

and over again all in front of peers, managers, and directors in an

open cubicle environment. A few people I confided in tried to

understand, and others were just completely ridiculous about it and

offered less than divine responses. I definitely felt anxious, and

keeping my thoughts healthy and stable was a tremendous challenge.

All of that changed instantly as things calmed down. I'm still

employed at the same company, and those that were kind to me still

comment about how nice it is to see weight staying on my body.

I agree with Colin's statement about being VERY careful with

supplementation. I was short on both time and money (who am I

kidding, I still am), so for me, I purchased capsule forms of

vitamins/minerals, broke them apart, and only took a tiny, tiny bit

of them and sat back for half an hour or more and listened to my

body. If I reacted well, I'd bring up the dosage very slowly, and if

I reacted poorly, I wouldn't take it any longer. That practice still

works for me today as I adjust and slow down my intake of some

minerals while increasing others. A lighthearted way for me to look

at it is as if I was studying chemistry, with my own body as the

study tool! Of course, not everyone is as sensitive to themselves as

I can be, so it doesn't work like that for everyone. I did all of

that work very carefully, and understand completely that it is not

going to work for everyone like that. I'm just sharing what worked

for me.

Take good care of yourself, and keep in touch.

Hugs,

-Tana

[Guest guest]

Hello,

Thank you so much Tana and Colin for your responses, I really

appreciate it. I guess you too are right about the supplements,I

haven't started them yet and now I really don't know if I should. I was

trying to find clinic's where I could get my hair analysis done, but

I've only found the online ones where you are suppose to send a piece

of your hair and then they send you back the results, but I'm really

not sure if they are that good and the results will be accurate.What do

you think?

I'm really sorry Tana that some of your co-workers didn't treat you too

kindly and I'm really glad that you were able to keep the same job,

this only shows how strong you are.

I'm having a hard time controling my body's temperature. It seems that

when it's warm outside I'm feeling really hot and when it's on the cool

side, I'm very cold, I'm joking that my body's A/C is broked starts

working not when I need it to...LOL...

I'm trying to change my diet, although I've always eaten very healthy,

I was a personal trainer before all this had happened, but don't feel

like doing it anymore. I feel that I need more rest now and I try to

listen to my body and I'm sure that one day I'll start exercising like

I used to before. Some days are good, some bad, but not as bad as it

used to be, so I guess everythng is moving towards the right direction

I'm healing and who knows might be that life will be normal again.I

can't wait for that day to come.

Peace out,

Simona

[Guest guest]

Dear Simona

It's important to stress first that in the first instance you need to

control the hyperT with ATDs like carbimazole. Once things are broadly

under control you've got a few choices. First is the conventional

treatment of RAI, which I guess the majority here would advise against

if at all possible, since it will effectively kill off the thyroid and

lead to hypo symptoms. Second is long term control by low doses of

ATDs (and possibly combined with supplementing with artificial

thyroxin). Third is a range of 'alternative therapies', notably

supplements of various kinds. Whichever route you go down, you might

also look at your lifestyle and the stresses you have experienced as

these may well have triggered your symptoms. The way I would look at

it is that what you are trying to do is restore equilibrium to the

thyroid system (and probably other parts of the endocrine system). You

need to support your body and give it a chance to do this. Some say

that nutritional supplements only have a placebo effect but the real

lesson is the need for positive thinking - if you believe you can get

better you have a better chance of doing so.

In my view, if you are going to go down the route of supplementing

with minerals etc, then you need to do a hair analysis. An alternative

to doing it yourself online is to find yourself a nutritional

therapist who will help you and interpret results - the accuracy is

not 100% and depends on what is being tested for but is considerably

better than nothing. You said you wanted to alter your diet and they

will help you to do that. It would be helpful to have a nutritional

therapist who had some understanding of thyroid problems - but this is

not exactly mainstream and so is hard to find someone with this.

As I have also mentioned in other posts, it is helpful to monitor

yourself by measuring basal temperature (first thing in the morning

when you wake) and also your resting pulse so you can monitor changes.

Google basal temperature test for more info.

Exercise can be hard but even walking is good for you if you can

manage it.

Hope this helps - the road ahead can be unclear but don't give up,

listen to advice but take control of your own future.

Colin

[Guest guest]

While I think Colin's advice is excellent...getting things under

control with anti-thyroid drugs and then deciding what you'll do

long-term after that point is very wise - who knows, you might even

go into remission!

The one thing I wanted to point out is that there have been recent

studies that show that taking ATD's and synthetic thyroxin is not

beneficial, better to even out your levels with ATD's alone. At least

according to the studies I've seen.

Nissa

[Guest guest]

Hi Nissa

I very much agree. In the UK the usual treatment is block and replace

and it left me in an artificial doctor-induced hypothyroid state. I

would not recommend either large doses of ATDs combined with synthetic

thyorixine in the long term although it might be helpful in the short

term to stabilise the position. Just using ATDs alone is better but

you can't rely on blood tests as a way to monitor this - self

monitoring through basal temperature and resting pulse is a better.

Colin

[Guest guest]

I don't think Simona is in the US - but I'm not sure where she's located.

Colin

[Guest guest]

Hi everyone!

No, I don't live in the US anymore, I'm in Ireland right now,I was

diagnosed in Lithuania though where I'm originaly from.

I don't know if the treatment in the US is a lot different than here.

I was prescribed Metizol this is the only drug that they had in my

country to treat hyperthyroidism, it contains 5mg of thiamazolum if

that says anything to you. I've started with 2 tablets 3 times a day,

now I'm on 2X2 and from the next week I'll be taking only 2 tablets

in the morning.I'm also taking beta blockers but only a quarter of a

tablet once or twice a day depending on how I'm feeling.

Colin, I did start taking my basal temperature today it was 36.6

celcium which is perfectly normal and my resting heart rate was

68bpm, usually it starts going up during the day it's either from the

food that I'm consuming or just all the experiences of the day.

Honestly I don't know how people live here, I mean in Ireland, who

become sick. There is a shortage of specialists, so probably I'll be

going back and forth to get all the tests done in my country, besides

they have way more natural health practitioners there. Although when

I asked my endocrinologist if a natural medicine could do any good

for me in my situation she gave me a " no " . If I wasn't a strong

believer in natural medicine I wouldn't even bother searching for it,

because according to my doctor I would only waist my money.

How long did it take for you to feel normal again?

I'm on my meds almost two months now, but I still don't feel normal.

I'm still very sensitive, even panicky sometimes, still get tired

very fast.

Peace out,

Simona

[Guest guest]

Hi Simona,

I hope you had a good weekend.

My doctor said that hair analysis wasn't very reliable, so in

combination with not a lot of time and money, we decided to stick with

the blood tests to just monitor the thyroid level. I still think it

would be kind of cool to see how it all works, especially now since the

" story " of my rise and fall in thyoid levels is now embedded in my hair.

Ah, the body temperature... I used to despise showers with a passion.

We make a lot of temperature adjustments internally when we move from a

cold bathroom into a warm shower, and then as the shower water slowly

gets colder, and then back out into the cold bathroom air. I loathed

it! I also went through a space of time at work where I'd wear a

sweater for a while, then take it off, then put it back on, etc., all

just trying to stabilize. It can get better though, once the thyroid

levels normalize.

I like how you joke about how your body's A/C is broken... that's an

excellent sign. Finding humor in a very frightening situation is

something I believe will help you in the long run. My Rate of Perceived

Misery scale (instead of Rate of Perceived Exertion) remains one of my

favorite lighthearted approaches to what was very scary at the time.

When you're hyper, it can be like you are exercising when you aren't,

you know? I think it's smart of you to wait until you get better before

doing more strenous physical activity. If you read through

ithyroid.com, I believe that was also very physically active in

general. Hyperthyroidism can sneak up on anyone, regardless of health

status.

I read what your endo said about alternative medicine for

hyperthyroidism. I think it's a challenge for some in the medical

profession to consider things like diet and supplements as a causative,

preventative, or corrective factor in illnesses. It's a realm that is

extremely individual based on a patient's own chemical makeup, and it

isn't easy to follow a+b+c=d for every single person that walks in the

door. Right now a conventional treatment path may look like, a;

hyperthyroidism diagnosis + b; kill the thyroid by either surgery or

radiation + c; supplement daily with thyroid hormone for the rest of

their life = d; " success " . I don't think it's wise to eliminate an

entire realm of medicine's approach in your path to healing (if you and

your doctor aren't working well together, that's a different story)...

so you could possibly have a hybrid like where you are slowly testing

supplements to see if they help, and checking in with your endo for

bloodwork to confirm your tracking of things like blood pressure, heart

rate, weight, body temperature, etc.

For me, my doctor was at first giving me a supplement that sped me up

even more... it was a combo that had selenium in it, and up I went! I

was one pound away from quitting my job last December... I had vowed

that if my weight dropped to 110 I would be leaving the company (my

ideal weight was 122). I started taking copper (and its helpers), and

within a week, things were starting to stabilize. I gained almost eight

pounds in about ten days! It was awesome! I was on-top-of-the-world

thrilled. It wasn't simple or easy, and things kept shifting on me once

the minerals were brought in balance, but it worked for me.

A week after that big stretch of improvement, I had a blood test

scheduled. My doctor was amazed by my progress on all of the physical

exams, and it was a tense couple of days waiting for the results to come

back. My TSH was at the very lowest end of ... NORMAL! I was so

happy. My latest test was completely normal (March), and I've been

carrying an extra five to seven pounds just for fun!

I must emphasize, though, that this is only my story. Every single

person on earth may have a story and progression different than mine.

If you want to go the supplement route, it's important that you move

slowly and carefully, so you don't make anything worse.

I'm looking forward to hear how you are progressing.

Thank you, AntJoan, for writing your post last Saturday. That was

cool.

Take care, everyone!

-Tana

[Guest guest]

Hi everyone!

Ok, I have this really serious question.

I have been feeling quiet good lately, but for the last couple of days

I am extremely tired, it feels that I need to stay in bed all day long,

I just drag myself to the bathroom and then back to bed. Has this

happened to any of you? I don't have fever.I am really confused why is

this happening because I'm still taking my meds and haven't done

anything differently. Are my hormones messing with me?

Peace out,

Simona

[Guest guest]

Hi Simona!

You know, your fatigue may be a sign that your meds are working...

that's good! If you think about the cascade of hormone production, the

thyroid triggers the adrenal glands (located in the lower back just

above the kidneys) to produce their own mix of a bunch of hormones. If

our thyroid is hyper, then the adrenals by relationship are asked to

work harder than normal. Essential vitamins critical to the adrenal

function may be depleted as a result of this overproduction, and we are

robbed of our ability to produce cortisol and other important energy

driving hormones. A balanced thyroid may show its personality with a

veil of depleted adrenal glands in the form of fatigue.

For me, before I got help, there was one weekend I remember very well.

Something inside just shut almost completely down. It was all I could

do to drag myself to the staircase and yell at my kids to get in bed for

the night. My yell was a whisper, and my roommate at the time had to

help me. It was scary. I called into work that Monday and was barely

able to drive myself to the doctor.

Take extra good care of yourself, sleep when you want to... and then

write to us and tell us how you are doing when you wake up! [] Just

kidding, you don't have to write, but we'd like you to.

Hugs, -Tana

>

> Hi everyone!

>

> Ok, I have this really serious question.

> I have been feeling quiet good lately, but for the last couple of days

> I am extremely tired, it feels that I need to stay in bed all day

long,

> I just drag myself to the bathroom and then back to bed. Has this

> happened to any of you? I don't have fever.I am really confused why is

> this happening because I'm still taking my meds and haven't done

> anything differently. Are my hormones messing with me?

>

> Peace out,

> Simona

>

[Guest guest]

Hi girls,

Thank you for posting all your answers for me, I really appreciate

you taking some time from your busy schedules'.

Well everything is going pretty good right now, I am taking a lot of

rest. Those two days were a total challange for me all I wanted was

rest, and my mom was giving me a hard time, saying maybe I also have

something else besides hyperthyroidism.She is a quite good persuader

and started planning on going to see my doc if things won't change.

But they did, thank God. Well it turned out that my other hormones

probably came into a role,giving me the hardest PMS that I've ever

had...lol...Now I'm feeling pretty good, although I have some aches

in my legs,but I am not complaining, because my heart rate started to

slow down and I am not taking beta blockers anymore...hurray!!!So

maybe this was also because of my thyroid hormones, might be they are

slowing down as well. keeping my fingers crosed...

I have been eating a lot of good stuff like cauliflower, cabbages,

flax seeds, drinking lemon balm and motherwort teas, etc.

I know this may sound weird, but what do you think everyone: Do

people with hyperthyroidism before they got it felt rage at being

left out? This is just something to think about and maybe share or

not, I mean if you don't have time kind of stuff it's ok.. ...

Peace out,

Simona

[Guest guest]

Hi Simona,

I've been wondering how you are doing... thank you for writing!

My personality was very different before, during, and after

hyperthyroidism. Every emotion, including rage, was amplified and

uncontrollable at times. My performance evaluation delivered by a very

keen and observant eye was proof of that, and a source of embarrassment,

for sure. But things are going much better now... I'm happier, more

stable, and can do more with less. It used to require everything I had

to just get to work and do the minimum. Now, I can act with ambition

again, looking at challenges as fun things, and feeling good about life

in general again.

It will come to you, too.

I would suggest keeping an eye on the pain in your legs. When my

thyroid went hyper, my parathyroid was affected, which affected the

water content in my body. I would carry water weight in my legs at a

very uncomfortable level. I would stop drinking water, and it wouldn't

hurt as much. It might be different for you, though.

Take extra good care of yourself!

-Tana

>

> Hi girls,

> Thank you for posting all your answers for me, I really appreciate

> you taking some time from your busy schedules'.

> Well everything is going pretty good right now, I am taking a lot of

> rest. Those two days were a total challange for me all I wanted was

> rest, and my mom was giving me a hard time, saying maybe I also have

> something else besides hyperthyroidism.She is a quite good persuader

> and started planning on going to see my doc if things won't change.

> But they did, thank God. Well it turned out that my other hormones

> probably came into a role,giving me the hardest PMS that I've ever

> had...lol...Now I'm feeling pretty good, although I have some aches

> in my legs,but I am not complaining, because my heart rate started to

> slow down and I am not taking beta blockers anymore...hurray!!!So

> maybe this was also because of my thyroid hormones, might be they are

> slowing down as well. keeping my fingers crosed...

> I have been eating a lot of good stuff like cauliflower, cabbages,

> flax seeds, drinking lemon balm and motherwort teas, etc.

> I know this may sound weird, but what do you think everyone: Do

> people with hyperthyroidism before they got it felt rage at being

> left out? This is just something to think about and maybe share or

> not, I mean if you don't have time kind of stuff it's ok.. ...

>

> Peace out,

> Simona

>

[Guest guest]

Hello there,

guess who's here again

I don't know, I just love coming to this web site and sharing my

experiences and thoughts, maybe because I think that there is someone

who is going or went through the same thing as me.

Thank you Tana for sharing your experience with water. I don't know I

might be drinking too much, but I've always had, maybe this was my

first mistake, maybe I've flushed all my nutrients with it, but

everyone is saying just stay hydrated, ugh don't know what to even

think.

Today a very strange thing happened to me... I snaped at my

boyfriend, we were at the store, he was looking for a sponge, and I

lost my temper. Don't know even what happened I got so pissed

suddenly and so scared at the same time.He said he thought I was

going to hit him. Oh my gosh this is so scary, it came out of

nowhere, I was in a such a good mood. I don't know what is going on.

What do you think could this be because of some kind of nutrient

deficiency? I was having headaches for the last couple of days, and

now I am starting to think maybe there is something wrong going on

with my head, although I had an MRI done only 4 months ago, they were

looking for MS in the first place, because I felt lightheaded a lot.

I am trying to take it slow, but at the same time I am so anxious to

start living a normal life again. I am trying to stay away from the

negative thoughts, but on the other hand I am thinking why is it

taking so long, it's my seventh week on my meds and I've improved

only a little bit and a new day brings new aches and pains and mood

swings.

I don't think that I could have osteoporosis.My calcium was in normal

range, although my potassium was low and I took some meds to get

potassium and magnium levels up, so maybe I could have depleted the

calcium.Oh well this is all so hard...

I asked about that rage thing, because I've read a book recently

where the author writes that she thinks we get all the dis-eases

because of our thoughts, and ppl feeling rage at being left out get

hyperthyroidism. I know, this is crazy, but for some reason this

suits me perfectly.

Peace out,

Simona

[Guest guest]

Hi Kate and everyone!

Thank you so much for thinking and asking about me. You are the

greatest. Well I do have some news.

Today I got my test results back, and guess what? I am hypo now!!!!

This is the answer why I have been feeling so tired lately with aches

in my legs, and my thyroid got bigger which I never had before,and I

am feeling lightheaded, cold and shaky most of the time. My TSH is

50, that's a lot I suppose, and my T4 is 9.5. The doctor just told me

not to worry,and cut off the medicine. It's good that I listened to

my intuition and went to get my test done, because according to my

doctor I was suppose to do it in a month and a half, can you image my

results then.

What do you think girls, should I still use supplementation, because

this hypo thing is new for me. I was gathering all the information

about hyperthyroidism, and wasn't expecting to go hypo so fast.

What do you think is this a good sign or not? Do you think this will

have any affect on me getting pregnant?

Any suggestions, experiences and thoughts are welcome.

Good luck to all of you.

Peace out,

Simona

[Guest guest]

Ohnestly, I have no idea. I was taking my medicine , drinking lemon

balm tea, eating broccoli and cauliflower, but I really doubt this was

the reason. My doctor said, I either am very sensitive to the drugs

that they've preascribed ( I suspect that the dose was too big for

me), or I have thyroiditis which indicates such fast transfer from

hyper to hypo. It all happened only in 2 months.

What do you think is it bad? they told me it's better to be in this

position than I was before with T4 at 40.7.

What's strange that my heart rate is still above 85, and with hypo it

should be below 80.

[Guest guest]

Hi,

Well I don't want to jump to any conclusions at this time, besides I

don't know if that really matters. What I know at this time that

doctors can also make mistakes and some of them really don't care

about their patients. At the moment I am dealing with two doctors, one

in Ireland and one back in my country where I was originally diagnosed

and received the treatment including anti-thyroid drugs and beta

blockers. The doctor in Ireland is only a GP. They both told me that

it is pretty common to go from hyper to hypo. I am just a little bit

disapointed with the doctor from my country. I don't think that she

considered all the right things like my weight, age before giving me

the dose, besides she didn't want to do the antibody test, and when I

asked whether we should have it done, she told me there is no purpose,

because it is going to be high. So I don't know where from, but she

said it's probably going to be Grave's disease, and now with the

recent results she is telling that maybe it's thyroiditis. So excuse

me, but I don't think she gets a damn thing what she is doing and she

is considered a very good specialist, endo by the way. For somone who

doesn't know anything about the thyroid disease she only told me, if

my skin becomes very dry and hair starts to fall of probably you are

going hypo and should have the test redone. I didn't have any of these

symptoms and went hypo. Didn't gain weight either, but felt very

tired, which can also be a symptom of hyper, and pain in my legs.

So I will see what happens after the three week period when I will

have my blood test again.

Kate,

I really don't want to start the yoyo thing, but I don't know if one

can do much to avoid it. I can't do the test every week or day. I'll

try though do my best listening to my body as I did before, because if

I have listened to the doc I would still have been taking anti-thyroid

drugs,sinking into hypo state even deeper,waiting for august when I

was supposed to have my blood test done.

Now again my GP is telling me to go have a thyroid ultra sound scan,

because my thyroid became enlarged, and the endo says I don't need it

because she did it two months ago,and everything was normal. So I

don't know, I also think that I don't really need it, but who

knows...

Sorry,if today I sounded angry or a little bit depressed, it just

isn't that easy to deal with thyroid problems and I want to feel

normal again so very very much.

Peace out,

Simona

[Guest guest]

Hi Simona!

I'm glad that Kate called out to you and I'm glad that you wrote.

You're right, everyone, even doctors, can make mistakes. I'm so sorry

you feel as though some doctors don't really care about their patients.

I can say that I have certainly felt like that myself on occasion. But,

I've also had very good doctors that do care about their patients.

I thought it was interesting about how the original doctor didn't want

to do an antibody test... I was very hyper yet had no antibodies. I

also liked your 'polite' objection to her diagnosis that changed from

Grave's disease to thyroiditis. []

Keep fighting for yourself, and for information. I suspect that if I

went the course of your medication, my body would have responded

similarly to yours... we are relatively young, and our bodies function

well for the most part in other aspects. We don't need a hurricane to

water our garden, so to speak. I wish I had more to offer in terms of

guidance on how to handle that medicine, but I don't.

I believe you'll find a way, Simona! Have you spent some time on

ithyroid.com yet? There is a lot of info there, and if nothing else you

may have some things to try a little bit here and there. I believe

you'll get back to normal, and feel better than you have ever felt.

Someone at work (new to the company, who doesn't know what I went

through or who I was before) was teasing me the other day, saying that

if we were on the Titanic, I'd be the most likely person to exclaim with

joy, " Ooh, I have never seen a shark up close before! " He asked me at

what point does life start to suck for me... I really enjoyed that. I

certainly wasn't always that way, and don't live every minute of my life

like that, but he lives happily thinking I do, haha.

I would say definitely get this under control before you plan to become

pregnant... for me, I noticed that in my second phase of menstruation,

the higher levels of progesterone would speed my thyroid up. Every

month during the hard times, I knew exactly when I ovulated because the

rollercoaster would begin all over again. If I'm not mistaken,

pregnancy is marked by higher levels of progesterone throughout the

whole term, so it may make for a very uncomfortable pregnancy to say the

least. I have no idea if it would affect an unborn baby in any way,

but I wouldn't want to chance it.

Are you taking any minerals/vitamins at this time? I would suggest to

look at what is in your current supplement, look at what you are

feeling, consider the effect of the medicines you are on, and try

adjusting just a little bit. ithyroid has tips for both hyper and hypo,

and I know that even at this date, if I work at it I can purposefully

speed myself up or slow myself down if I work at it for a few days. I

like to maintain a steady state, personally!

You can do this, Simona. Keep reaching out for people that have

experience with your medicines and take good care of yourself.

Hugs,

Tana

[Guest guest]

Hello,

Thank you both Kate and Tana for supporting and encouraging me!!!

So Tana what kind of conclusions can you make about my doctor, who

decided that my antibodies are going to be high just because I am

hyper?... LOL...It's ok, I am not mad at her... well,just a tiny bit,

but I forgive her, because apparently she still doesn't know that you

can be hyper without your antibodies being the same, and I do...LOL...

I am in a good mood today,although I still have some pressure in my

eyes and my legs still ache, but I feel pretty good.

Well Tana, if I would happen to be on the Titanic I would definately

like to be there with you and your attitude

I am starting my supplement list,and I am planning to get hair

analysis, but I don'thave the money just yet. I've added some

copper,little dose for a while, calcium+D, B complex, Magnesium, will

add selenium and Iron soon. Also I am planning to get wheat grass

powder and spirulina,but probably I'll do that after my hair test.

Tana, you said you know how to slow or speed yourself down. Can you

share how you do that? Is it from foods or supplements?

Yes, I will definately take care of myself first before becoming

pregnant, don't wanna put myself or my baby at risk.

I am reading a lot about hypo and hyper conditions, and I am very

glad that I came across this webside, it was very helpfull for me,

because to get any kind of a dis-ease is very scary at first, but on

the other hand I feel that I am becoming a wiser, more focused, more

patient person, and who knows where life will bring be from here

Peace out,

Simona

[Guest guest]

Hi Simona!

You have such a sense of humor... haha. How are you feeling today?

Ok, so I was reading through your supplement list. How did you feel

when you took the copper? I noticed a terrible body odor that would

stay with me during each first part of my menstrual cycle when I first

started copper. It was awful. How did you feel with selenium and

iron? Selenium will make your thyroid accelerate, if I'm not mistaken.

Since you're hypo now because of meds, it may take some back and forth

before you get everything squared away. Make careful notes of changes

and what caused the change so you can adjust as you need to. I love

spirulina... it's fantastic for the lymphatic system, apparently, and I

just feel better all around when I take it.

I can't make myself hyper or hypo in a few days (thank goodness), but if

I want to speed things up a little bit to drop a few pounds I've let

accumulate, I'll bring up my intake of selenium, iodine, manganese,

chromium, grapefruit seed extract, and coconut oil, and shift my diet

for a few days to just veggies and protein. My energy will rebound, and

I can get back to where I'm comfortable. To gain a few pounds back,

I'll slow down on the selenium and the other acclerants, and bring in

more copper, iron, and sulphur. I'll also allow myself to dip a little

bit and eat a candy bar here and there. I'll also bring in a little bit

of brown rice. My system is very responsive nowadays, and I can tell if

I comfortably want to skip a meal or eat more meals depending on what is

demanding of me in my life. One thing I took away from being hyper last

year was that what I want for my body, I go get it! We've only got the

one body... it deserves lots of love!

I also have celiac disease (can't eat wheat/gluten), and the ingestion

of wheat creates antibodies that travel into glands sometimes. It's

been documented that a person with celiac disease may have antibodies in

their thyroid that will remain there for up to three months and make

them have a hyper thyroid. Yuck.

I accidentally ate some wheat a couple weeks ago, and went through the

pain and misery of that stuff hurting my intestines. The past few days,

though, I feel like I'm moving back into hyper territory, which fits the

antibody theory. Thankfully, it won't last since as soon as those

antibodies leave, I won't have the hyper symptoms. It isn't severe, but

it is familiar. The mood swings, the energy and skin changes, etc. The

feeling sometimes that I could have superhuman strength, shaky hands and

muscle twitches... it all kind of scares me again. I just bring in a

little more copper and remind myself that this will pass. It's not

nearly as bad as it was before, and now I know how to help myself. And

to forgive myself for when my personality swings into hyper mode.

I hope you are doing ok. Kate, you may have mentioned this somewhere

along the way, but do you still have trouble with your thyroid at any

time?

Take care,

-Tana