Guest guest Posted August 23, 2006 Report Share Posted August 23, 2006 In a message dated 8/23/2006 9:51:43 AM Eastern Daylight Time, AIMEECAKES@... writes: Is anyone allergic to tapezole and PTU? If so, I need your advice. I was diagnosed with hyperthyroid in 3/06 I think you should try the more benign solutions first, such as the naturopath herbs, etc. Also, go to iThryoid.com for advice on nutrition, supplements, etc., to balance the underlying causes of thyroid disease. It makes sense to explore all such options before doing anything drastic, such as RAI, which is not reversible. Also, while some people might do well on RAI, lots of people have bad effects from it, some not showing up for years, and you have no way of knowing how you will react. I hope you are taking a beta blocker to protect your heart in the meantime. Be well, AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2006 Report Share Posted August 23, 2006 I took it for 2 weeks before my RAI and developed a terrible itchy rash.My ears even got bright red like they were sunburned.Who knows what it did to my insides. I called my endo doc and she told me to stop taking it. I was told it is a dangerous drug. I had RAI 3 days later back in Dec. 05 and feel much better. Had no side effects from RAI, in fact, I even lost weight because I wasn't eating so much from being so hyPER. Had my labs checked every 6-8 weeks to catch any hyPO symptoms in time. I think about 2 months after RAI the doc put me on Synthroid.My labs are now normal. I've had no side effects from it at all. I guess Synthroid is like a natural substance your body produces anyways. Taking 1 pill a day for the rest of my life is no big deal because I take vitamins and a cholesterol pill every day too.Synthroid is not an expensive medication. People seem afraid to take RAI, but there is radiation in dental xrays etcc. and just going outside has radiation. I know many people that had RAI 15+ years ago and are doing fine.Ex president Bush and his wife had RAI. Also, having RAI probably saved my life. Before RAI my resting pulse was between 110-120. I'm sure I was close to having a heart attack soon. I also was hyperthyroid so long before being diagnosed that it started affecting my muscles. I got to the point I could barely walk. I can walk fine now. Take care. Amy Carman Chan <carchan@...> wrote: Is anyone allergic to tapezole and PTU? If so, I need your advice. I was diagnosed with hyperthyroid in 3/06. My Dr. prescribed me 20mg of tapezole. After taking the drug for 15 days, I started to break out in hives all over my body. The hives would travel all over my body. My Dr. decided to switch me to 50mg of PTU, 2x a day. I've been on PTU for 23 days and hives started to appear. I have no idea if the hives mean I am allergice to PTU also. Based on my previous allergic reaction, I decided to stop taking PTU. The hives has gotten worse. I am very disappointed since it feels like my only option is RAI. My test results put me in the mild category of hyperthyroidism. RAI seems like a drastic approach to my condition. Please help, I feel alone and feel like I have run out of options. --------------------------------- All-new - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2006 Report Share Posted August 23, 2006 I'm not allergic to anti-thyroid drugs, but I went to a naturopath and got a herbal ATD that was just as good at suppressing my thyroid levels. It is called Thyrocalm and is manufactured by Temperature Syndrome in NY. It's a very strong extract of bugleweed and lemongrass. I switched back to PTU only because I couldn't afford the herbals and they aren't covered by insurance. But, if you're allergic to both ATD's and your hyperthyroidism is mild, it's probably worth paying for the Thyrocalm because the stuff really works. Good luck! Nissa >Is anyone allergic to tapezole and PTU? If so, I need your advice. >I was diagnosed with hyperthyroid in 3/06. My Dr. prescribed me 20mg >of tapezole. After taking the drug for 15 days, I started to break >out in hives all over my body. The hives would travel all over my >body. My Dr. decided to switch me to 50mg of PTU, 2x a day. I've >been on PTU for 23 days and hives started to appear. I have no idea if >the hives mean I am allergice to PTU also. Based on my previous >allergic reaction, I decided to stop taking PTU. The hives has gotten >worse. I am very disappointed since it feels like my only option is >RAI. My test results put me in the mild category of hyperthyroidism. >RAI seems like a drastic approach to my condition. Please help, I >feel alone and feel like I have run out of options. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2006 Report Share Posted August 23, 2006 I had silver dollar hives all over my body from Tapazole but did ok on PTU. Have you contacted your doctor to let him/her know about the same problem with the PTU? Tammy Allergic to Tapezole and PTU Is anyone allergic to tapezole and PTU? If so, I need your advice. I was diagnosed with hyperthyroid in 3/06. My Dr. prescribed me 20mg of tapezole. After taking the drug for 15 days, I started to break out in hives all over my body. The hives would travel all over my body. My Dr. decided to switch me to 50mg of PTU, 2x a day. I've been on PTU for 23 days and hives started to appear. I have no idea if the hives mean I am allergice to PTU also. Based on my previous allergic reaction, I decided to stop taking PTU. The hives has gotten worse. I am very disappointed since it feels like my only option is RAI. My test results put me in the mild category of hyperthyroidism. RAI seems like a drastic approach to my condition. Please help, I feel alone and feel like I have run out of options. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2006 Report Share Posted August 23, 2006 In a message dated 8/23/2006 2:38:42 PM Eastern Daylight Time, michellelynn1980@... writes: Why do certain people have to keep bringing up that Ithyroid link? (Do they have any of their own books for sale there???) All they want to do is make people spend their money on those books and herbs and vitamins that will not cure hyperthyroid or Graves. I brought up the iThryoid site because it is our sister site, and also very helpful for anyone looking to address the underlying balances that cause thyroid disease. I have not written a book, nor do I own stocks in any supplement companies. I simply am trying to help people get well, after I was fortunate to get well by taking charge of my own health, in addition to using meds. I have been on this site since the beginning, and am proud that we have been supportive of one another, caring and kind. The above post was worded as an attack, and, as such, is not appreciated. Maybe the poster can't comprehend this, but I try to help people out of the kindness of my heart, not because I am trying to profit in any way. This kind of attack violates the spirit and purpose of this site. Good energy goes hand-in-hand with healing, while, conversely, attacking and accusing others of base motives is demeaning to the writer, as it speaks more to their own motives, than of the motives of those they attack (in psychological terms, this is known as projection). Have a nice day, AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2006 Report Share Posted August 23, 2006 So sorry to hear you are having a problem with hives. I know a few people that developed hives shortly after they started an ATD (have heard of it with both PTU and Tap.). It appeared to be due to too high of a starting dose of ATD. When they got off the ATD then began again at a lower dose their hives cleared up. Some of those are taking ATDs successfully, now months later, without the return of the hives. Also, making dietary changes can bring alot of relief. I too believe I had a mild case of hyperT. I have successfully been treating it with supplements and dietary changes. You can get alot of info on this at the ithyroid.com site AuntJoan mentioned. Also, there is a very informative thread " 101 " located on the thyroid board at mediboard.com. Hope this helps you some. Keep us posted on your progress. Kim Allergic to Tapezole and PTU Is anyone allergic to tapezole and PTU? If so, I need your advice. I was diagnosed with hyperthyroid in 3/06. My Dr. prescribed me 20mg of tapezole. After taking the drug for 15 days, I started to break out in hives all over my body. The hives would travel all over my body. My Dr. decided to switch me to 50mg of PTU, 2x a day. I've been on PTU for 23 days and hives started to appear. I have no idea if the hives mean I am allergice to PTU also. Based on my previous allergic reaction, I decided to stop taking PTU. The hives has gotten worse. I am very disappointed since it feels like my only option is RAI. My test results put me in the mild category of hyperthyroidism. RAI seems like a drastic approach to my condition. Please help, I feel alone and feel like I have run out of options. ________________________________________________________________________ Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2006 Report Share Posted August 23, 2006 Why do certain people have to keep bringing up that Ithyroid link? (Do they have any of their own books for sale there???) All they want to do is make people spend their money on those books and herbs and vitamins that will not cure hyperthyroid or Graves. If someone wants to do research, there are plenty of other groups and medical links that will give them the information they need to know. The thyroid is nothing to mess around with. > > So sorry to hear you are having a problem with hives. I know a few people that developed hives shortly after they started an ATD (have heard of it with both PTU and Tap.). It appeared to be due to too high of a starting dose of ATD. When they got off the ATD then began again at a lower dose their hives cleared up. Some of those are taking ATDs successfully, now months later, without the return of the hives. > > Also, making dietary changes can bring alot of relief. I too believe I had a mild case of hyperT. I have successfully been treating it with supplements and dietary changes. You can get alot of info on this at the ithyroid.com site AuntJoan mentioned. Also, there is a very informative thread " 101 " located on the thyroid board at mediboard.com. > > Hope this helps you some. Keep us posted on your progress. > Kim > > Allergic to Tapezole and PTU > > > Is anyone allergic to tapezole and PTU? If so, I need your advice. > I was diagnosed with hyperthyroid in 3/06. My Dr. prescribed me 20mg > of tapezole. After taking the drug for 15 days, I started to break > out in hives all over my body. The hives would travel all over my > body. My Dr. decided to switch me to 50mg of PTU, 2x a day. I've > been on PTU for 23 days and hives started to appear. I have no idea if > the hives mean I am allergice to PTU also. Based on my previous > allergic reaction, I decided to stop taking PTU. The hives has gotten > worse. I am very disappointed since it feels like my only option is > RAI. My test results put me in the mild category of hyperthyroidism. > RAI seems like a drastic approach to my condition. Please help, I > feel alone and feel like I have run out of options. > > > > _____________________________________________________________________ ___ > Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2006 Report Share Posted August 23, 2006 Why was what I wrote deleted in this reply? Where it shows Aimeecakes writes.....it was all deleted and then it starts out again with the person that wrote: Is anyone allergic to tapezole etc...It looks like I wrote that message. > > In a message dated 8/23/2006 9:51:43 AM Eastern Daylight Time, > AIMEECAKES@... writes: > Is anyone allergic to tapezole and PTU? If so, I need your advice. > I was diagnosed with hyperthyroid in 3/06 > > I think you should try the more benign solutions first, such as the > naturopath herbs, etc. Also, go to iThryoid.com for advice on nutrition, supplements, > etc., to balance the underlying causes of thyroid disease. It makes sense to > explore all such options before doing anything drastic, such as RAI, which is > not reversible. Also, while some people might do well on RAI, lots of people > have bad effects from it, some not showing up for years, and you have no way > of knowing how you will react. > > I hope you are taking a beta blocker to protect your heart in the meantime. > > Be well, > AntJoan > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2006 Report Share Posted August 23, 2006 It's a free world, . If you don't like what is written here, please feel free not to read. FYI, the guy who started up this group also developed the Ithyroid.com site. So there's the connection. You're right, thyroid disease is serious stuff. And we need to do as much as we can to look after ourselves. I believe knowledge is power. We have a right to check out all sorts of information and process it, picking out what we feel is beneficial for ourselves. Discuss it with our doctors. Why you object to someone being given a link to another resource is curious. You sound as if you're full of rage. I hope you're feeling better soon. K Allergic to Tapezole and PTU > > > Is anyone allergic to tapezole and PTU? If so, I need your advice. > I was diagnosed with hyperthyroid in 3/06. My Dr. prescribed me 20mg > of tapezole. After taking the drug for 15 days, I started to break > out in hives all over my body. The hives would travel all over my > body. My Dr. decided to switch me to 50mg of PTU, 2x a day. I've > been on PTU for 23 days and hives started to appear. I have no idea if > the hives mean I am allergice to PTU also. Based on my previous > allergic reaction, I decided to stop taking PTU. The hives has gotten > worse. I am very disappointed since it feels like my only option is > RAI. My test results put me in the mild category of hyperthyroidism. > RAI seems like a drastic approach to my condition. Please help, I > feel alone and feel like I have run out of options. > > > > __________________________________________________________ ___ > Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2006 Report Share Posted August 23, 2006 Carman, Have you tried a generic version of tapezole like methimazole? Sometimes people react differently to the generic version of drugs than to the " original " . Maybe you might not break out in hives with a generic drug. If you have tried the generic but not the " original " , then try tapezole. Good luck. --Bruce Carman Chan <carchan@...> wrote: Is anyone allergic to tapezole and PTU? If so, I need your advice. I was diagnosed with hyperthyroid in 3/06. My Dr. prescribed me 20mg of tapezole. After taking the drug for 15 days, I started to break out in hives all over my body. The hives would travel all over my body. My Dr. decided to switch me to 50mg of PTU, 2x a day. I've been on PTU for 23 days and hives started to appear. I have no idea if the hives mean I am allergice to PTU also. Based on my previous allergic reaction, I decided to stop taking PTU. The hives has gotten worse. I am very disappointed since it feels like my only option is RAI. My test results put me in the mild category of hyperthyroidism. RAI seems like a drastic approach to my condition. Please help, I feel alone and feel like I have run out of options. --------------------------------- Stay in the know. Pulse on the new .com. Check it out. Quote Link to comment Share on other sites More sharing options...
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