Guest guest Posted January 11, 2002 Report Share Posted January 11, 2002 , I'll bet with the supplements you'll find that your allergies to just about everything get better. I don't get hives the way I used to and I'm allergic to cats, dogs, dust and dust mites. We've got a houseful of most of those things! The only reason we don't have the three cats anymore is that they made themselves unwelcome (spraying; I don't think they liked each other much). My daughter's doing the supplement, too, and she can wear little cheapie earrings now whereas she couldn't do that before. Her ears would get all gross and fester if she just left them in overnight. When my son does the supplement like he's supposed to, his chronic runny and stuffy nose practically disappears. He's 21yrs old, so you know 'he knows best.' So wasn't doing the supplement for a long time there. Now he's back on (just this week). I think it's got a lot to do with balancing the nutrients that you're putting into your body correctly. Donna http://trak.to/life www.reliv.com Take control of your health! Alison wrote: That's encouraging. Thank you. I must get to grips with the supplement side of things now really. Re: Elaine - help! > > > > > > > > > > > > > Hiya , > > > > > Sorry for the delay in answering - Chrismas crept up on me. > > > > > > > > > > To answer your question about my experience with ATDs and low white > > > blood > > > > > cell counts: > > > > > > > > > > I was put on a high dose of ATDs initially and I had a sore throat > > > within > > > > a > > > > > week... went back to the docs, and they told me to stop taking the > > > tablets > > > > > and gave me a blood test to see if my white blood cells were within > > > range. > > > > > I was very thyrotoxic at this stage (I think it was August/September > > > > 2000) - > > > > > the blood test showed that my neutrophil count was below the normal > > > range > > > > so > > > > > they tried me on the alternative ATD = PTU or to give it the full > (and > > > > > mispelt? name) propilthyoracil. > > > > > Again I got a sore throat and the second blood test showed I still > had > > a > > > > low > > > > > blood cell count. They took me off this second lot of ATDs and gave > > me > > > > > antibiotics for the sore throat. I had to wait about six weeks to > see > > > the > > > > > specialist. > > > > > > > > > > This was an awful time for me as I was just VERY hyper and only > taking > > > > Beta > > > > > blockers; I had refused RAI and told the doctors that if I really > > > couldn't > > > > > do ATDs, then I would have surgery. I am sure I was already down in > > the > > > > > books as a "difficult patient". > > > > > > > > > > When I did finally get to see the endocrinologist, he said surgery > was > > > not > > > > > an option as my thyroid gland was very dense and very small, so it > > would > > > > be > > > > > impossible to find a surgeon who would operate on me as I might > bleed > > to > > > > > death on the table. By this point I just didn't believe half of the > > > stuff > > > > > they said, and I am still not sure how much of what they told me was > > > > > pressure to go forward with the RAI and how much was useful and > > truthful > > > > > information. I was basically told that I would have to have RAI, > that > > I > > > > had > > > > > no other options. > > > > > > > > > > AT this point I dragged out my old medical records and pointed to > the > > > fact > > > > > that my neutrophil count had been low BEFORE I ever was even > diagnosed > > > and > > > > > long before I had taken and ATD. Also, my neutrophil count did not > go > > > up > > > > > and down with the administration and withdrawal of ATDs, it just > > stayed > > > > > consistently low. > > > > > > > > > > I guessed from this that I was not facing the life threatening > > > > > agranulocytosis and argued my case tearfully with an intern who went > > and > > > > > checked with his boss who agreed with me and put me back on ATDs > "for > > > > > another go". Having access to and understanding of my own medical > > > records > > > > > has been invaluable to me.The sad thing is, I lost two months to > > really > > > > > horrible hyperthyroidism, whilst I was waiting to see the > speciallist. > > > > > > > > > > This board was SO helpful during that period, Elaine advised me that > a > > > low > > > > > neutrophil count can in fact be one of the symptoms of Graves' > Disease > > > in > > > > > the first place. Others advised me that even if my neutrophil count > > > could > > > > > be attributed to my use of ATDs, that possibly the dose was just too > > > high > > > > > for me and I should try reducing the dose rather than not using ATDs > > at > > > > all > > > > > (I think conventional medicene sees this as too risky - I was told > > that > > > > > current research shows that the incidence of agranulocytosis is not > > dose > > > > > related: that is, it doesnt' make any difference how much you take, > if > > > you > > > > > are going to react like that to the drug, you'll react to a little > or > > to > > > > > alot.) > > > > > > > > > > Anyway - I went back on ATDs and am (one year on) now on a > > maintainance > > > > > dose. My neutrophil count finally came back to normal and stayed > > there > > > > > about four months ago. I am not sure if that is an indication that > I > > am > > > > > heading for remission or not. Think it must be a good sign. > > > > > > > > > > I still have alot of health problems biting at my heels that I feel > > may > > > be > > > > > unrelated to my thyroid problem, but am glad that I stood my ground > > and > > > > > argued. > > > > > > > > > > In your position I would always go for the blood test if I could get > > > one - > > > > > the more information you can have available to you the better I > > reckon. > > > > > > > > > > Hope Christmas was grand for you and that all is wellll. > > > > > DAWN ROSE > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2002 Report Share Posted January 11, 2002 I'll look forward to that, then. I'd really like to have a dog again. It has been suggested to me that being on HRT might help with the allergies too. What do you reckon to that? Re: Elaine - help! > > > > > > > > > > > > > Hiya , > > > > > Sorry for the delay in answering - Chrismas crept up on me. > > > > > > > > > > To answer your question about my experience with ATDs and low white > > > blood > > > > > cell counts: > > > > > > > > > > I was put on a high dose of ATDs initially and I had a sore throat > > > within > > > > a > > > > > week... went back to the docs, and they told me to stop taking the > > > tablets > > > > > and gave me a blood test to see if my white blood cells were within > > > range. > > > > > I was very thyrotoxic at this stage (I think it was August/September > > > > 2000) - > > > > > the blood test showed that my neutrophil count was below the normal > > > range > > > > so > > > > > they tried me on the alternative ATD = PTU or to give it the full > (and > > > > > mispelt? name) propilthyoracil. > > > > > Again I got a sore throat and the second blood test showed I still > had > > a > > > > low > > > > > blood cell count. They took me off this second lot of ATDs and gave > > me > > > > > antibiotics for the sore throat. I had to wait about six weeks to > see > > > the > > > > > specialist. > > > > > > > > > > This was an awful time for me as I was just VERY hyper and only > taking > > > > Beta > > > > > blockers; I had refused RAI and told the doctors that if I really > > > couldn't > > > > > do ATDs, then I would have surgery. I am sure I was already down in > > the > > > > > books as a "difficult patient". > > > > > > > > > > When I did finally get to see the endocrinologist, he said surgery > was > > > not > > > > > an option as my thyroid gland was very dense and very small, so it > > would > > > > be > > > > > impossible to find a surgeon who would operate on me as I might > bleed > > to > > > > > death on the table. By this point I just didn't believe half of the > > > stuff > > > > > they said, and I am still not sure how much of what they told me was > > > > > pressure to go forward with the RAI and how much was useful and > > truthful > > > > > information. I was basically told that I would have to have RAI, > that > > I > > > > had > > > > > no other options. > > > > > > > > > > AT this point I dragged out my old medical records and pointed to > the > > > fact > > > > > that my neutrophil count had been low BEFORE I ever was even > diagnosed > > > and > > > > > long before I had taken and ATD. Also, my neutrophil count did not > go > > > up > > > > > and down with the administration and withdrawal of ATDs, it just > > stayed > > > > > consistently low. > > > > > > > > > > I guessed from this that I was not facing the life threatening > > > > > agranulocytosis and argued my case tearfully with an intern who went > > and > > > > > checked with his boss who agreed with me and put me back on ATDs > "for > > > > > another go". Having access to and understanding of my own medical > > > records > > > > > has been invaluable to me.The sad thing is, I lost two months to > > really > > > > > horrible hyperthyroidism, whilst I was waiting to see the > speciallist. > > > > > > > > > > This board was SO helpful during that period, Elaine advised me that > a > > > low > > > > > neutrophil count can in fact be one of the symptoms of Graves' > Disease > > > in > > > > > the first place. Others advised me that even if my neutrophil count > > > could > > > > > be attributed to my use of ATDs, that possibly the dose was just too > > > high > > > > > for me and I should try reducing the dose rather than not using ATDs > > at > > > > all > > > > > (I think conventional medicene sees this as too risky - I was told > > that > > > > > current research shows that the incidence of agranulocytosis is not > > dose > > > > > related: that is, it doesnt' make any difference how much you take, > if > > > you > > > > > are going to react like that to the drug, you'll react to a little > or > > to > > > > > alot.) > > > > > > > > > > Anyway - I went back on ATDs and am (one year on) now on a > > maintainance > > > > > dose. My neutrophil count finally came back to normal and stayed > > there > > > > > about four months ago. I am not sure if that is an indication that > I > > am > > > > > heading for remission or not. Think it must be a good sign. > > > > > > > > > > I still have alot of health problems biting at my heels that I feel > > may > > > be > > > > > unrelated to my thyroid problem, but am glad that I stood my ground > > and > > > > > argued. > > > > > > > > > > In your position I would always go for the blood test if I could get > > > one - > > > > > the more information you can have available to you the better I > > reckon. > > > > > > > > > > Hope Christmas was grand for you and that all is wellll. > > > > > DAWN ROSE > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2002 Report Share Posted January 11, 2002 Well, I guess it makes sense that balancing out your hormones would lessen your sensitivities. Don't know why HRT would be any different, unless there's something in that you're sensitive to. I don't totally trust drugs in any form, though, I'll use them if I have to. If you can do it naturally, that's always best in my opinion. Less chance of doing more damage than you're fixing. By the way, I don't think Thyroidism has affected your sense of humor negatively. You're hilarious with your golden eagle! I know you've got to be as frustrated as the rest of us with our doctors, but humor is also a great healer. Good for you! Donna http://trak.to/life www.reliv.com Take control of your health! Alison wrote: I'll look forward to that, then. I'd really like to have a dog again. It has been suggested to me that being on HRT might help with the allergies too. What do you reckon to that? Re: Elaine - help! > > > > > > > > > > > > > Hiya , > > > > > Sorry for the delay in answering - Chrismas crept up on me. > > > > > > > > > > To answer your question about my experience with ATDs and low white > > > blood > > > > > cell counts: > > > > > > > > > > I was put on a high dose of ATDs initially and I had a sore throat > > > within > > > > a > > > > > week... went back to the docs, and they told me to stop taking the > > > tablets > > > > > and gave me a blood test to see if my white blood cells were within > > > range. > > > > > I was very thyrotoxic at this stage (I think it was August/September > > > > 2000) - > > > > > the blood test showed that my neutrophil count was below the normal > > > range > > > > so > > > > > they tried me on the alternative ATD = PTU or to give it the full > (and > > > > > mispelt? name) propilthyoracil. > > > > > Again I got a sore throat and the second blood test showed I still > had > > a > > > > low > > > > > blood cell count. They took me off this second lot of ATDs and gave > > me > > > > > antibiotics for the sore throat. I had to wait about six weeks to > see > > > the > > > > > specialist. > > > > > > > > > > This was an awful time for me as I was just VERY hyper and only > taking > > > > Beta > > > > > blockers; I had refused RAI and told the doctors that if I really > > > couldn't > > > > > do ATDs, then I would have surgery. I am sure I was already down in > > the > > > > > books as a "difficult patient". > > > > > > > > > > When I did finally get to see the endocrinologist, he said surgery > was > > > not > > > > > an option as my thyroid gland was very dense and very small, so it > > would > > > > be > > > > > impossible to find a surgeon who would operate on me as I might > bleed > > to > > > > > death on the table. By this point I just didn't believe half of the > > > stuff > > > > > they said, and I am still not sure how much of what they told me was > > > > > pressure to go forward with the RAI and how much was useful and > > truthful > > > > > information. I was basically told that I would have to have RAI, > that > > I > > > > had > > > > > no other options. > > > > > > > > > > AT this point I dragged out my old medical records and pointed to > the > > > fact > > > > > that my neutrophil count had been low BEFORE I ever was even > diagnosed > > > and > > > > > long before I had taken and ATD. Also, my neutrophil count did not > go > > > up > > > > > and down with the administration and withdrawal of ATDs, it just > > stayed > > > > > consistently low. > > > > > > > > > > I guessed from this that I was not facing the life threatening > > > > > agranulocytosis and argued my case tearfully with an intern who went > > and > > > > > checked with his boss who agreed with me and put me back on ATDs > "for > > > > > another go". Having access to and understanding of my own medical > > > records > > > > > has been invaluable to me.The sad thing is, I lost two months to > > really > > > > > horrible hyperthyroidism, whilst I was waiting to see the > speciallist. > > > > > > > > > > This board was SO helpful during that period, Elaine advised me that > a > > > low > > > > > neutrophil count can in fact be one of the symptoms of Graves' > Disease > > > in > > > > > the first place. Others advised me that even if my neutrophil count > > > could > > > > > be attributed to my use of ATDs, that possibly the dose was just too > > > high > > > > > for me and I should try reducing the dose rather than not using ATDs > > at > > > > all > > > > > (I think conventional medicene sees this as too risky - I was told > > that > > > > > current research shows that the incidence of agranulocytosis is not > > dose > > > > > related: that is, it doesnt' make any difference how much you take, > if > > > you > > > > > are going to react like that to the drug, you'll react to a little > or > > to > > > > > alot.) > > > > > > > > > > Anyway - I went back on ATDs and am (one year on) now on a > > maintainance > > > > > dose. My neutrophil count finally came back to normal and stayed > > there > > > > > about four months ago. I am not sure if that is an indication that > I > > am > > > > > heading for remission or not. Think it must be a good sign. > > > > > > > > > > I still have alot of health problems biting at my heels that I feel > > may > > > be > > > > > unrelated to my thyroid problem, but am glad that I stood my ground > > and > > > > > argued. > > > > > > > > > > In your position I would always go for the blood test if I could get > > > one - > > > > > the more information you can have available to you the better I > > reckon. > > > > > > > > > > Hope Christmas was grand for you and that all is wellll. > > > > > DAWN ROSE > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2002 Report Share Posted January 11, 2002 I have never heard of HRT helping with allergies - but if it does, great! I still think HRT is controversial, and am a little queasy about using it now. Arlene Re: Elaine - help! I'll look forward to that, then. I'd really like to have a dog again. It has been suggested to me that being on HRT might help with the allergies too. What do you reckon to that? Quote Link to comment Share on other sites More sharing options...
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