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so i've been saying how mad i was at my endo and how i was going to waltz in

there and make her answer all of my questions and chastize her for not seeing

me for so long.

well, she apologized first and foremost. then she said i could page her

anytime. then she said we could schedule a bunch of appointments and then i

could cancel them if i didn't need them. plus, i will be getting blood tests

every two weeks, and this time there is even a cbc on the lab form. i didn't

even get to make a fuss.

also, the reason she canceled my last appointment is because she has been

attending mind and body clinics dealing with autoimmune disorders in

washington. i even get to be in her pilot group.

she was enthusiastic about my alternative plan. she is all for accupunture,

but wants me to start meditation by myself until she does her group.

after taking 600mg ptu per day forever, my levels are now normal in the lower

range. ie, all of the symptoms i have been having could have been hypo. she

thinks my body would be more comfortable in the higher range of normal and

has dropped my ptu to 300mg per day!! yipee!

i feel a little guilty for doubting her. i just want to be able to believe

in her abilities as an expert on this disease. i know, even experts don't

know everything, but i feel we have better communication now after this last

visit. i am pleased too that she did not freak out about all the alternative

stuff i will be doing. she's even excited, although she warned me that my

thyroid was so out of whack that i may eventually want to consider RAI if i

can't heal myself. but i still believe that she will work with me no matter

what.

oh yeah, i want to start doing yoga. i cannot afford the classes. does

anyone know of a good tape or book that could get me started?

oh yeah, and my goiter (i hate that word) is smaller.

relieved,

mary wa state

(my levels are normal.... after years (well, i was diagnosed last summer, but

they think i've had graves for quite some time).. i can't believe

it!!!!!!!!!!))

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mary wa state

I only have one yoga tape--by Austin. It is very good. It does

wonders for you. At first, you will be stiff if you have not worked out in

a while. It is amazing that after only a few times you will loosen up and

be flexible.

I am going to a chiropractor on Saturday. I want to give my body the best

chance to heal. Now, if I can only get my eyes better. Still tearing ---I

hate this part the most. Destroys the self-esteem!

Take care and let me know how you like the yoga!

K.

endo visit today

>so i've been saying how mad i was at my endo and how i was going to waltz

in

>there and make her answer all of my questions and chastize her for not

seeing

>me for so long.

>well, she apologized first and foremost. then she said i could page her

>anytime. then she said we could schedule a bunch of appointments and then

i

>could cancel them if i didn't need them. plus, i will be getting blood

tests

>every two weeks, and this time there is even a cbc on the lab form. i

didn't

>even get to make a fuss.

>also, the reason she canceled my last appointment is because she has been

>attending mind and body clinics dealing with autoimmune disorders in

>washington. i even get to be in her pilot group.

>she was enthusiastic about my alternative plan. she is all for

accupunture,

>but wants me to start meditation by myself until she does her group.

>after taking 600mg ptu per day forever, my levels are now normal in the

lower

>range. ie, all of the symptoms i have been having could have been hypo.

she

>thinks my body would be more comfortable in the higher range of normal and

>has dropped my ptu to 300mg per day!! yipee!

>i feel a little guilty for doubting her. i just want to be able to believe

>in her abilities as an expert on this disease. i know, even experts don't

>know everything, but i feel we have better communication now after this

last

>visit. i am pleased too that she did not freak out about all the

alternative

>stuff i will be doing. she's even excited, although she warned me that my

>thyroid was so out of whack that i may eventually want to consider RAI if i

>can't heal myself. but i still believe that she will work with me no

matter

>what.

>oh yeah, i want to start doing yoga. i cannot afford the classes. does

>anyone know of a good tape or book that could get me started?

>oh yeah, and my goiter (i hate that word) is smaller.

>

>relieved,

>mary wa state

>(my levels are normal.... after years (well, i was diagnosed last summer,

but

>they think i've had graves for quite some time).. i can't believe

>it!!!!!!!!!!))

>

>------------------------------------------------------------------------

>Earn extra money at calypso.com by creating your own web store. For a

>limited time, join calypso.com and receive a FREE calypso whistle.

>Also learn how you can win up to $25! Click to

>1/1591/5/_/6563/_/950664101/

>

>-- Talk to your group with your own voice!

>-- VoiceChatPage?listName=hyperthyroidism & m=1

>

>

>

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,

Congrats on your recent communication with your doctor!! I couldn't

help but wonder if your doctor's increase in openness towards you might

not have been linked to her attending the clinic on autoimmune diseases!!

Sounds like you have a winner!!!

May I ask what you attribute your goiter's decrease in size?

Tina:)

so i've been saying how mad i was at my endo and how i was going to waltz in

there and make her answer all of my questions and chastize her for not seeing

me for so long.

well, she apologized first and foremost. then she said i could page her

anytime. then she said we could schedule a bunch of appointments and then i

could cancel them if i didn't need them. plus, i will be getting blood tests

every two weeks, and this time there is even a cbc on the lab form. i didn't

even get to make a fuss.

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i have no idea if the ptu helped my goiter or if it was the gradual change of

lifestyle. slowing down, eating better, drinking plenty of water, taking

vitamins including copper etc...

yes, i am very happy that my allopathic endocrinologist is seeking

alternative actions regarding autoimmune disorders. it has restored my faith

in the medical community (well, not totally, just a little)!

mary wa state

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deb

are you talking to me? i am on ptu. hey everybody. i had accupuncture

today and it felt soooooooooooooooooo cooooooooool. and i love her, she is

so awesome. i feel better all ready. i just loved how the needles make you

all tingly and superaware of your body.

mary wa state

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You are so lucky you have naturopathic endos up there. My brother is a

chiropractor in Porltland. I am down in Louisiana. Please tell me the

name of the drug you used.

Thank you,

Deb

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  • 8 years later...

Just a word of advice, when stopping HC please do it very slowly, my doc told me no more than 5mg a week and I have heard some people say they have been told no more than 5mg every 3 weeks, you could end up feeling worse if you rush this

i have not been feeling well since nov and have had some new bloodtests done recently. it looks as though my problems are testosteronebased. I have a very low level of testosterone. This was evidentlast april, but i chose to try and treat my thyroid myself thinkingthis was the problem. i was successful with this and regained fullhealth with the introduction of HC in august. i stopped taking thethyroid in september.however, i became ill again in nov and have steadily declined since. it seems the Hc is no longer having an effect on me even though iincreased from 15mg to 25mg.Anyway i have seen an endo in york today and have to say what anarrogant individual he was. this guy was angry at me for trying tohelp myself. when i mentioned DR Peatfield he said "i wont tell youwhat i think of barry peatfield" and the guy who has been struck off.i am a tough bloke and so wouldnt stand for it and i

give as good ashe frowned at me. if that prick knew what quality of life i have hadfor years he would understand why i had to treat myself. anyway i have to do as the NHS says or i go it alone.

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It sounds like you met a real piece of work in that endo!

I'm sure I read in the Adrenal Fatigue book by that full

recovery from adrenal fatigue can take many months, maybe even a year.

If thats the case, it could be that by stopping the adrenals/thyroid

meds in September, you didnt give them enough of a chance to work.

With the support of the medication you might have felt " cured " in

September, but it might just be that your body needed the support for

a while longer and wasnt able to cope when you hit a problem in November.

You've had a set-back and that can take some time to recover from. If

you started HC again in November, stopping it now might be premature.

Certainly in my own case, although the HC has had some impact, it is

slow progress.

I dont know how ill you are now or were then, but I would wonder about

the wisdom of stopping HC so soon after your november illness. It

seems to me that if you've had a set-back, your body needs all the

support it can get.

I hope you find a more sympathetic endo.

Marie

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hi marie

no i have never stopped the hc. been on it since aug, but in nov i

became ill again and this has gotten worse. i tried increasing the hc

but no difference.

it seems that there is more to my problems than adrenals. it is to do

with testosterone. this is the root of all my problems i think. so

now i am coming off hc so in 2 weeks i can have clear blood tests.

i will see what the endo is like next time.

ps. i will come off slowly, but i want to be fully off in 11 days.

down to 15mg today. i dont feel well and so i cant see there being

much more difference anyway.

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OK, I see - I misunderstood. It was thyroid hormone you stopped but

not HC?

I cant comment on testosterone issues; its not something I know

anything about. However, I thought that hormones (HC, DHEA,

oestrogen, progesterone etc) could affect test results for a long time

after you stopped taking them. You might want to look into that

before you have your tests done because it might skew the results of

your adrenal testing.

You mentioned being on thyroid hormone for a while, and that it helped

you. Are you sure you dont still need it? As you probably know, that

could have an impact on everything, including your testosterone

presumably.

Will they test your thyroid function when you get tested in a few weeks?

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one more thing; if low testosterone is what you suspect, did you try

supplementing with DHEA? DHEA is an adrenal hormone and is necessary

in and of itself, but it also converts to testosterone (amongst other

things).

You may already know this, but if not, its one thing you could try if

your test results show low testosterone.

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You

know - you actually DON'T have to do what the NHS says and you CAN do it alone.

You did it before and you can do it again. We have over 900 members mainly

because the majority could not get well under the NHS diagnosing and treatment

regime - this is an appalling state of affairs. Are you telling us that you

stopped taking ANY thyroid hormone replacement in September last year and that

you have taken none since. If this is the case, why did you do this? For some

people, once they have found they had low adrenal reserve and treated this

appropriately, then their thyroid symptoms went away and their thyroid function

became normal again, but this is quite uncommon, and you are probably feeling

so bad again now because you need to start your thyroid hormone replacement

again. It doesn't automatically follow that once your adrenals are functioning

OK again, that all your other glands start to function normally too. Have you

had any recent thyroid function tests - if so, post the results with the

reference ranges here - if not, arrange to get these asap.

Give

us the low down on the symptoms you are suffering right now and what signs are

you showing. Have you taken your basal temperature recently, if not, take this

for 4 to 5 days before you get out of bed.. Why do you believe the HC has

stopped working?

Your

arrogant endo has a right to dislike doctors such as Dr Peatfield, after all, his

patients that remain ill under his care are flocking to see Dr Peatfield and

other doctors like him because Dr P knows how to make them well again, and your

endo does not.  The important thing is that WE know what we think about Dr P

and know he has given normal health back to hundreds of sufferers of this DD who

the NHS have failed abysmally. Good for you though for sticking up for him.

Luv -

Sheila

i have not been

feeling well since nov and have had some new blood

tests done recently. it looks as though my problems are testosterone

based. I have a very low level of testosterone. This was evident

last april, but i chose to try and treat my thyroid myself thinking

this was the problem. i was successful with this and regained full

health with the introduction of HC in august. i stopped taking the

thyroid in september.

 

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yes it could be that the thyroid was doing something and by stopping

it in sep i fell down in nov.

my bloods for thyroid 3 weeks ago do show an improved picture when i

first thought i had a thyroid problem last april.

tsh is 2.6

T4 is 15

T3 is 6.2 (3.5-6.5)

so this tells me all is ok with the thyroid (well the high T3 result does)

i am still going to get clean for the next few weeks and then start

again. its along journey and i have been ill for 16 yrs now. i can

wait a bit longer i think.

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yes i was using this and all was well in sep when i was tested.

however i stopped taking it when i began to wobble in nov. someone

said it can cause too much estrogen.

thanks for input molly.

>

> one more thing; if low testosterone is what you suspect, did you try

> supplementing with DHEA? DHEA is an adrenal hormone and is necessary

> in and of itself, but it also converts to testosterone (amongst other

> things).

>

> You may already know this, but if not, its one thing you could try if

> your test results show low testosterone.

>

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Sheila

these are my thyroid results from 3 weeks ago

tsh 2.6

t4 15

t3 6.2

i stopped the thyroid when i got going on the HC as i felt that was

doing everything for me. it was only when i went onto the Hc that i

fully got my health back. the thyroid earlier in the summer helped,

but not fully.

so i stopped the thyroid in sep and became ill in nov. would this be

a normal time lag or does this not fit. in nov i became very stressed

from something and so i thought this is what made me ill again. i

increased the hc, but it didnt really help - 15mg was my ideal dose

before you see. since then the stress has gone, but i havent

recovered, just got worse.

this doc wants to see what my bloods will be when i am clean, so i

will do this.

one other thing: in sep when we went to get our blood results for the

fertility checks (we are trying for a baby and so have been to see the

specialist) my sperm count had rocked from sub normal to normal and i

noticed my testosterone was mid range. my tsh was 0.2 and t3 was 7 i

think. the docs were a bit worried about this, but i felt fine. my

t4 was still low however - 14 i think. so i think i probably stopped

the thyroid because i was feeling good and the thyroid seemed to be

doing well.

it could well be that stopping the thyroid meds is what has made me go

backwards. even so my temps have never been higher recently - always

around 36.8 - 36.9 C. Since i have started to reduce the HC i can see

them coming down and my temp is now around 36.6 C

all the symptoms are back: brain fog, tired, dryer skin, more fat on

stomach, loosing muscle mass, not hungrey or thirsty, poor breathing,

lower libido, cold hands.

the problem i have is working out what is causing the low

testosterone. it is now at 7 and the range is 10-32. last april it

was 10.9 and when i was doing the thyroid in september it was 18. so

it does show that the thyroid did increase this hormone. however,

there may be one final obstacle to over come. i only have one working

testicle and so we need to work out if this is the problem for the low

Test. or is it the thyroid. it may be that i have the answer already,

but i will see what this endo does for me.

>

> You know - you actually DON'T have to do what the NHS says and you

CAN do it alone. You did it before and you can do it again. We have

over 900 members mainly because the majority could not get well under

the NHS diagnosing and treatment regime - this is an appalling state

of affairs. Are you telling us that you stopped taking ANY thyroid

hormone replacement in September last year and that you have taken

none since. If this is the case, why did you do this? For some people,

once they have found they had low adrenal reserve and treated this

appropriately, then their thyroid symptoms went away and their thyroid

function became normal again, but this is quite uncommon, and you are

probably feeling so bad again now because you need to start your

thyroid hormone replacement again. It doesn't automatically follow

that once your adrenals are functioning OK again, that all your other

glands start to function normally too. Have you had any recent thyroid

function tests - if so, post the results with the reference ranges

here - if not, arrange to get these asap.

>

>

>

>

>

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Hi again

My reading of your situation is that the adrenal/thyroid support you

had in place in august/september was working for you and you should

probably have continued taking it. Its possible that by stopping the

thyroid meds too soon, you were stressing your adrenals BUT because

they were working overtime to keep you going, you may not have felt

unwell in september/october.

When the stressful event occured in November, your adrenals crashed

and brought back all your old symptoms and some. The lack of thyroid

medication seems to be showing in your blood tests and in your

symptoms. Your TSH is quite a bit higher than it was when you were

feeling well (0.2 compared to 2.6 is a big jump) and your T3 is lower

than when you were feeling well. As T3 is the active hormone, this

reduction could explain all of your symptoms (including low

testosterone). It seems to suggest that what you did last summer was

working and that you need more thyroid medication.

If it were me, I'd go back to that regime, because it seems like you

had it sorted back then.

The status of your thyroid will have a knock-on effect on all your

other hormones, testosterone included. Its possible that by resolving

your thyroid and adrenal issues, your testosterone levels will come

back to where they need to be. It seems like thats what happened last

year.

BTW, if your adrenals still need the HC, then dropping it will affect

your body temperature as well. If your body temp is dropping as you

reduce your HC, I would suggest thats an indication that you NEED the

HC. Also, low cortisol levels will affect your ability to absorb

thyroid hormone.

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Yes Molly it may be that the thyroid was helping me.

the tsh when on thyroid meds does collapse and so this isnt a valid

indicator. my t3 is still very high at present and so this says the

thyroid is working. any way i need to clear my system of meds and

then get retested and see what the endo says. i know a fair bit about

all this and so it will be up to me if i follow his advice or go back

to what i was previously doing.

regards

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Wow -

for somebody who has been off levothyroxine since last September, your FT3 is

amazingly high (even though you have not posted the reference range, which you

should). Your FT4 could do with being higher and your TSH should be around 1.0

or even less so that looks like it is creeping up. The time lag from September

to November would be around the time that was needed to get the thyroxine out

of your system as it has a long half life, and that is why you probably started

to go downhill again because gradually, you are getting some of the symptoms of

hypothyroidism back, but unless your local laboratory has a much wider

reference range for your FT3 than I have for mine, this does look at the top of

the range. Can you get the reference range for this please.

After

stopping the HC, you will not have got all of this product out of your system -

you need to have stopped HC for at least 6 weeks before you have further

adrenal testing. Also, no matter what your doctor says, you should stop HC very

slowly because stopping too quickly could cause you all sorts of problems and

one of these is that your adrenals might become so stressed they might not be

able to cope. I would seriously warn you not to do this within 11 days just to

please your doctor - your health is important, so be patient.

Your

temperatures are probably higher because of the HC and perhaps you actually

need a small increase, though as you are having to cut down now, it is best to

wait until your blood has been tested.

It

really worries me when NHS endocrinologists tell their patients to reduce and

stop their HC just to have the NHS cortisol test. The NHS ONLY test to see

whether you have 's Disease or Cushing's Syndrome and as you know you

have neither, you are going to be putting yourself through an awful lot of

worry and distress, with probably more hypothyroid symptoms arising (and low

adrenal reserve again) for nothing. I know of nobody where the NHS has

recognised low adrenal reserve and helped the patient by giving them HC - I

only know of those who were diagnosed with 's disease. I believe this

endocrinologist is trying to prove a point to himself - and seriously, are you

prepared to allow him to do this? I can almost state categorically that the

test will be a waste of time and you will be told you do not have cortisol

deficiency and to stay off HC. What happens is they take your blood early in

the morning - and then they give you an injection of Synacthen, they wait for

about half an hour and then take another blood sample, and I believe another

blood sample after an hour. They are looking to see what effect the synacthen

has on your adrenals - but synacthen will make even a dead donkey kick. I hear

time and again, that after such an injection, people can feel absolutely

terrific for up to 48 hours, because the synacthen has really boosted the

adrenals and cortisol production becomes fine, but as it leaves the system, the

adrenals go down again and back come all the symptoms. Is your endocrinologist

wanting you to stop your HC to test your cortisol or to test your testosterone?

Reading

Dr Hertoghe's 'The Hormone Handbook' he states " The daily production of

testosterone in young healthy men is 7 mgs a day, an amount 20 to 30 times

higher than in women. In young me, a circadian rhythm of serum testosterone has

been documented with a 20% higher level of testosterone in the morning than in

the evening. Testosterone production is greatly stimulated by the pituitary

hormone luteinizing hormone (LH). In individuals who don't produce LH,

testosterone levels are very low (less than 20% of normal). The testicles

mainly produce testosterone; however, a small amount is produced by the adrenal

glands and in other tissues such as the fat cells by conversion from adrenal

androgens such as DHEA and androstenedione into testosterone. " He goes on

to say " …intense physical activity such as frequent sexual

intercourse, long-distance running, and other strenuous activities burns

greater amounts of testosterone and can thereby deeply deplete androgen levels.

Intense emotional stress blocks the release of LH, and this testosterone secretion

as LH is the main endogenous stimulator of this production. Positive emotions

such as happiness and sexual pleasure may temporarily increase testosterone in young

individuals. Foods high in protein or saturated fat, increase testosterone

production, but sweets (sugars, chocolate, etc) and a high-cereal fibre diet

can reduce testosterone levels " .

" …approximately

even four seconds, one testosterone-producing Lydia cell dies in the testicles

without being replaced. Of the 700 million healthy Lydia cells at age 18, only

about one-third will remain at age 70-80 and the free testosterone levels will

decrease by more than 50% in the urine and blood. Consequently, over time, men

will experience the mental and physical symptoms of testosterone deficiency,

while their height and size remains comparable to what it was in their

twenties. An aging body still needs as much testosterone and other hormones as

young adult bodies of the same size and height. Sadly, again, the body can no

longer produce the amount of testosterone that he needs to stay young and

healthy and consequently his health goes downhill. "

He

believes that the BEST choice of treatment is the transdermal route. The

transdermal route is the number one choice because it completely bypasses the

first passage through the liver (where normally it would be broken down) and

may provide a longer action. To optimise testosterone activity and

treatment you should eat enough calories - follow a Paleolithic diet; fruit, vegetables,

meat, poultry, eggs fish. Add a well balanced, mixed amino acid supplement and

eat organic foods. Avoid alcohol, vinegar, caffeinated drinks. Avoid sugar,

sweets, soft drinks, cookies, bread, pastas and other cereals. Avoid cerial

fibre (whole grain bread, bran flakes). Avoid milk products.

Avoid

overweight, obesity. Avoid excessive chronic stress (especially prolonged)

including strenuous physical activites. Avoid tobacco smoking. Avoid marijuana,

other drugs. Avoid or reduce the dose of any beta-blockers.

Dr

Hertoghe goes on the state that there is need to correct any other hormone

abnormalities that influence testosterone. Under Strong Stimulator of

testosterone/DHT is Growth Hormone and Androgen. Under Mild Stimulators is

Thyroid hormone (where he says thyroid hormones increase testosterone levels,

by stimulating testosterone production by the testicles. On the other hand,

thyroid hormones, especially in excess, can reduce testosterone levels and subsequent

effects by slowing down the conversion of testosterone to DHT and increasing the

conversion of testosterone to estradiol. Strong Testosterone Inhibitors are glucocorticoids

at high doses, Estradiol and other estrogens and Mild Inhibitors are Cortisol

at low doses, melatonin, progesterone and thyroid hormone.

Not

sure whether any of this helps, but hope it does - if I carry on I will be

writing out his book - which is massive.

I

wish you could read this book, he has loads to say about the causes, symptoms,

signs, treatment of low testosterone.

Luv -

Sheila

Sheila

these are my thyroid results from 3 weeks ago

tsh 2.6

t4 15

t3 6.2

the problem i have is working out what is causing the low

testosterone. it is now at 7 and the range is 10-32. last april it

was 10.9 and when i was doing the thyroid in september it was 18. so

it does show that the thyroid did increase this hormone. however,

there may be one final obstacle to over come. i only have one working

testicle and so we need to work out if this is the problem for the low

Test. or is it the thyroid. it may be that i have the answer already,

but i will see what this endo does for me.

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Have you seen the

following File which we have on our forum 'Funny' Thyroid Function Tests.doc. This

gives you reasons why some thyroid function tests might seem strange, as yours

do. I guess if he wants you off HC to test for testosterone, then you will have

to stop it, but I am still concerned that you are doing this far too quickly.

Can you put off the appointment to a later date to give you the necessary time

to do this decrease slowly?

Luv -

Sheila

he wants me off HC because he said it will affect the bloods i will

have. so i think he is talking about testosterone testing.

>

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thanks i will have a look sheila.

i am ok coming off the HC. i am down to 15 and dont have any bad

symptoms - apart from not feeling well anyway which was the case

before coming off.

> Have you seen the following File which we have on our forum

>

<http://f1.grp.fs.com/v1/cMSBSdkU1ZFf1R0jZaok9apcSKMw0lR9DGF84sHKI7esd2

>

SK1jdgzT77OlNUmePVOhfz2jTXgc_5vUBCsdo3Gw/%27Funny%27%20Thyroid%20Function%20

> so i think he is talking about testosterone testing.

>

>

>

> >

>

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Hi,

I hope this all goes well for you, but I didn't 'crash' symptoms

wise until a couple of months after I stopped adrenal supps- and that

was after a very slow taper over 3 months.

Subject: Re: Endo visit today

thanks i will have a look sheila.

i am ok coming off the HC. i am down to 15 and dont have any bad

symptoms - apart from not feeling well anyway which was the case

before coming off.

>

>

>

> >

>

------------------------------------

TPA is not medically qualified. Consult with a qualified medical

practitioner before changing medication.

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