Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 I agree with Elaine about being impatient. I almost had RAI because I was led to believe it would fix all my problems - I didn't know it could worsen the eye disease. Thank goodness I didn't do RAI and I'm now in remission - have not taken meds for 2 1/2 years!!! AND my eyes are normal. I can feel the eye muscles act up when I'm stressed, too tired or if I have too much salt! Those of you wanting a quick fix because you're tired of dealing with all the symptoms and the ATDs, please just deal with it a little longer. Think about it - if you don't like the ATDs, why do you think you'll like taking hypo meds? FOR LIFE!! Ultimately it is your decision. I consider myself extremely fortunate and I'm grateful for people like Elaine, , Becky and others for being so supportive and answering my endless questions. Please, listen to the wealth of experience available here!! Take care, Mona Re: Re: More thoughts > Hi, > Just wondering where your doctor gets his statistics. Perhaps his patients > end up having RAI because he doesn't monitor them properly while on ATDs. > Used correctly and with proper monitoring before taking someone off the meds, > they work very well. More and more doctors are now using ATDs compared to a > decade ago. > And most people who are intolerant of one ATD have no problem with the other > one. One important GD symptom you should consider is that of impatience. > Hyperthyroidism causes people to rush. This is how I ended up having RAI. I > just wanted something quick to get things over with. That was by far the > stupidest thing I have ever done in my life, and I've regretted it since. > Best, Elaine > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 Hello, I thought most of people become impatient to seek RAI is that they are or are afraid to be bothered too much and too long from the recurrence and GD's horrible symptoms. I don't think anyone are willing to accept RAI at the very beginning. They just have no way to go. Nutrition maybe a nice way but from iThyroid it's only are appliable to very few people and very personally. People found they don't have much time and enery to find the right nutrition which is suitable for themselves, or even it's impossible to find nutrition solution. Recently I used Vitamin B complex and Calcium and multi Vitamin as daily supplemental. As expected it's not as good as ATDs. My heart race become higher and higher everyday. However, with RAI therapy, according to endo, most of GD's patients can be much better and as normal as before afte intake of hormone supplement. What I say above doesn't mean I support RAI or I will use RAI as option. Best wishes to all, > I agree with Elaine about being impatient. I almost had RAI because I was > led to believe it would fix all my problems - I didn't know it could > worsen the eye disease. Thank goodness I didn't do RAI and I'm now in > remission - have not taken meds for 2 1/2 years!!! AND my eyes are normal. > I can feel the eye muscles act up when I'm stressed, too tired or if I have > too much salt! > > Those of you wanting a quick fix because you're tired of dealing with all > the symptoms and the ATDs, please just deal with it a little longer. Think > about it - if you don't like the ATDs, why do you think you'll like taking > hypo meds? FOR LIFE!! > > Ultimately it is your decision. I consider myself extremely fortunate and > I'm grateful for people like Elaine, , Becky and others for > being so supportive and answering my endless questions. Please, listen to > the wealth of experience available here!! Take care, Mona > Re: Re: More thoughts > > > > Hi, > > Just wondering where your doctor gets his statistics. Perhaps his patients > > end up having RAI because he doesn't monitor them properly while on ATDs. > > Used correctly and with proper monitoring before taking someone off the > meds, > > they work very well. More and more doctors are now using ATDs compared to > a > > decade ago. > > And most people who are intolerant of one ATD have no problem with the > other > > one. One important GD symptom you should consider is that of impatience. > > Hyperthyroidism causes people to rush. This is how I ended up having RAI. > I > > just wanted something quick to get things over with. That was by far the > > stupidest thing I have ever done in my life, and I've regretted it since. > > Best, Elaine > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 In a message dated 5/23/2003 2:49:58 AM Eastern Daylight Time, winMoreLess@... writes: > Recently I used Vitamin B complex and Calcium and multi Vitamin as > daily supplemental. As expected it's not as good as ATDs. As I have said in several recent posts, the idea is USE THE ATDs TOGETHER WITH THE NUTRITION AND SUPPLEMENTS. No one here is advocating nutrition and supplementation alone. By using an ATD and beta blocker we can eliminate all symptoms of the illness and feel normal while we then begin to treat the underlying causes of the illness, which is an imbalance. This takes quite a while to get right and to take effect--months, at least. However, ATDs usually have no side effects, and the beta blockers protect the heart. So, this usually gives us years to work with the alternative methods to bring ourselves back to health. Once someone has RAI, there is an 80-90% chance of being hypoT w/in 2 years, which means one has to take meds for life. It is difficult to find the correct dose of these meds, as our body's hormones fluctuate, and there are lots of symptoms of hypoT that are unpleasant. AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 In a message dated 5/23/2003 2:25:23 PM Eastern Daylight Time, etm1935@... writes: > Thank you, thank you, thank you, for the clarification. People > are not reading what we are saying here. Dear Elaine, Thank you, thank you for listening to what I said. Lately I feel I have been speaking to no one. People can stay on ATDs for years while they work to correct imbalances. Yes, it takes some effort to find your own balance, but it is worth the effort to preserve a vital organ. Take care, AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 In a message dated 5/23/2003 2:45:52 PM Eastern Daylight Time, winMoreLess@... writes: > people don't have time/energy to find their own solution, > which generally should be the responsibility of endos. In a perfect world, the endos would have the responsibility to heal us. Unfortunately, they are not about health, prevention or healing, but about drugs, surgery, and making money. Their " solutions " often work for them (e.g., keeping us a patient for life by relying on Synthroid forever), but do not work for us. I have found in all areas of health that I must be responsible for my own health, and oversee the work of all those I hire in the health profession. By listening to my own body, and researching carefully all options (the most benign ones first), I feel I have the best chance of staying healthy. Believe me, I wish the doctors would care for us and nurse us back to health, but they don't usually, and their " solutions " often cause more problems than they solve. AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 Thank you, thank you, thank you, for the clarification. People are not reading what we are saying here. There is no substitution for using ATDs. All other efforts are supplemental in the hope that they will benefit. BUT, Graves can almost always be controlled by ATDs and RAI is the very last resort that should be considered. Elaine (in remission) I am not young enough to know everything. -- Wilde Hello AntJoan On Friday, May 23, 2003, you wrote > In a message dated 5/23/2003 2:49:58 AM Eastern Daylight Time, > winMoreLess@... writes: >> Recently I used Vitamin B complex and Calcium and multi Vitamin as >> daily supplemental. As expected it's not as good as ATDs. > As I have said in several recent posts, the idea is USE THE ATDs TOGETHER > WITH THE NUTRITION AND SUPPLEMENTS. No one here is advocating nutrition and > supplementation alone. By using an ATD and beta blocker we can eliminate all > symptoms of the illness and feel normal while we then begin to treat the > underlying causes of the illness, which is an imbalance. This takes quite a while to > get right and to take effect--months, at least. However, ATDs usually have no > side effects, and the beta blockers protect the heart. So, this usually gives > us years to work with the alternative methods to bring ourselves back to > health. Once someone has RAI, there is an 80-90% chance of being hypoT w/in 2 > years, which means one has to take meds for life. It is difficult to find the > correct dose of these meds, as our body's hormones fluctuate, and there are lots > of symptoms of hypoT that are unpleasant. > AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 Dear Ant and Elaine, I don't think I misunderstand those ideas from you. I expressed it very clear: people don't have time/energy to find their own solution, which generally should be the responsibility of endos. It's the main reason while we cannot tolerate GD again we seek ultimate work-around solution: RAI. Find personal suitable solution is just like scientists try to find antibody solution to GD. It's difficult, not apply to everyone or most of people. That's the reason we rely on modern medication to treat various disease. I just discuss the psychology in using RAI here. RAI is last option most of people do agree. Best wishes, light_remote > Thank you, thank you, thank you, for the clarification. People > are not reading what we are saying here. > > There is no substitution for using ATDs. All other efforts are > supplemental in the hope that they will benefit. BUT, Graves can > almost always be controlled by ATDs and RAI is the very last > resort that should be considered. > > Elaine (in remission) > > I am not young enough to know everything. -- Wilde > > Hello AntJoan > > On Friday, May 23, 2003, you wrote > > > In a message dated 5/23/2003 2:49:58 AM Eastern Daylight Time, > > winMoreLess@h... writes: > > >> Recently I used Vitamin B complex and Calcium and multi Vitamin as > >> daily supplemental. As expected it's not as good as ATDs. > > > As I have said in several recent posts, the idea is USE THE ATDs TOGETHER > > WITH THE NUTRITION AND SUPPLEMENTS. No one here is advocating nutrition and > > supplementation alone. By using an ATD and beta blocker we can eliminate all > > symptoms of the illness and feel normal while we then begin to treat the > > underlying causes of the illness, which is an imbalance. This takes quite a while to > > get right and to take effect--months, at least. However, ATDs usually have no > > side effects, and the beta blockers protect the heart. So, this usually gives > > us years to work with the alternative methods to bring ourselves back to > > health. Once someone has RAI, there is an 80-90% chance of being hypoT w/in 2 > > years, which means one has to take meds for life. It is difficult to find the > > correct dose of these meds, as our body's hormones fluctuate, and there are lots > > of symptoms of hypoT that are unpleasant. > > > AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2003 Report Share Posted May 25, 2003 Hi AntJoan, You may feel that no-one is listening, but your experience, and the experience of others on this board, have been a lifesaver for me. While my gut instinct was that there had to be a better solution than RAI - it was the information and support from this board and iThyroid that has enabled me to slowly get better. I feel that I am almost ready now to come off the ATD's, and I will be very happy when that happens. So AntJoan please don't despair - although you may feel that nobody is listening I'm sure that there are heaps of us that are! I always read your posts as I find them interesting. Stay well, >From: AntJoan@... >Reply-hyperthyroidism >hyperthyroidism >Subject: Re: Re: Opinion from one in remission >Date: Fri, 23 May 2003 14:46:31 EDT > >In a message dated 5/23/2003 2:25:23 PM Eastern Daylight Time, >etm1935@... writes: > > > Thank you, thank you, thank you, for the clarification. People > > are not reading what we are saying here. > >Dear Elaine, > >Thank you, thank you for listening to what I said. Lately I feel I have >been >speaking to no one. People can stay on ATDs for years while they work to >correct imbalances. Yes, it takes some effort to find your own balance, >but it >is worth the effort to preserve a vital organ. > >Take care, >AntJoan > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 In a message dated 5/26/2003 12:23:59 AM Eastern Daylight Time, anna_vanw@... writes: > Stay well, Dear , Thank you so much for your kind words. I was feeling like a broken record, preaching to save thyroids. And then someone accused me of trying to " scare " people. I tried to explain my motivations, and then I thought, maybe I am trying to scare people. Because radiating one's thyroid IS scary. The doctors portray it as a benign solution, but it is neither benign nor a solution. People in the US are taught to want an easy solution--just take a pill, you will get well, lose weight, etc. Yet I have learned there are no easy solutions. If we want to accomplish ANYTHING it takes work, and, as these are OUR bodies, it is our work. The doctors don't care (at least most of them don't). THEY want an easy solution (and lots of our cash). Our health is up to us. Take care and have a nice holiday, AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 AntJoan, I can only speak for myself. I had the RAI, but not because it was an easy solution to my problem. I had it because the Endo gave me 2 choices. RAI or Surgery. It was my ignorance of this as to the decision I made. If I had to do it over, I would have had a long question and answer session with my Endo before making that decision. I have learned so much since my RAI. If only I had known that before RAI. But, I am a positive person and I am thinking positive concerning all this. I am going to be one of those people that do good on RAI. I have learned from you and other people like you, so all of you keep up the good work. Best of luck to all of us, that our problems get taken care of. Betty PS If your are expecting an answer from me, and you don't get it, please email me back with a friendly reminder. " To err is human; to forgive, divine. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 In a message dated 5/26/2003 8:10:01 AM Eastern Daylight Time, thebetzz@... writes: > Best of luck to all of us, that our problems get taken care of. > Betty Dear Betty, Thanks for the greeting. I totally understand--my endo pushed RAI also, and everywhere I read, it was pushed as a solution. I thank God I am so stubborn--I know others are not, and this is why I feel the need to tell others that the medical community has the incorrect approach. I wish you and everyone the best of health. (Also, sometimes they don't manage to kill off the entire thyroid the first time around, as they really only guess as to the dosage of RAI. For those of you who still have some thyroid function left, and the endos are pushing for another round, count yourselves lucky, and work with what you have left to regain health.) AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 In a message dated 5/26/2003 10:54:06 AM Eastern Daylight Time, AntJoan@... writes: > > > I wish you and everyone the best of health. (Also, sometimes they don't > manage to kill off the entire thyroid the first time around, as they really > only > guess as to the dosage of RAI. For those of you who still have some thyroid > > function left, and the endos are pushing for another round, count yourselves > > lucky, and work with what you have left to regain health.) > > AntJoan > AntJoan, You touched on a good thing here. I have been thinking about what that second round. Between you and me (no Dr.'s) if they tell me that i need a second round, do I really need it? Can I do like you said and work with what I have left? Of course I don't know what is left right now. I am 27 days post RAI. In my case, I have 2 nodules that needs to be gotten rid of. The Endo told me that he was hoping that the RAI would kill off the nodules and make the rest of my thyroid start working again. The nodules are on my right side and my left side wasn't working at all. The nodules were working overtime to make up for my left side. I appreciate any info. Betty PS If your are expecting an answer from me, and you don't get it, please email me back with a friendly reminder. " To err is human; to forgive, divine. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 In a message dated 5/26/2003 12:11:33 PM Eastern Daylight Time, thebetzz@... writes: > The Endo told me that he was hoping that the RAI would kill off the nodules > > and make the rest of my thyroid start working again. Dear Betty, I don't know anything about nodules, but I'm sure others on this board do. To get more info, I think you can post on iThyroid.com. I had straight Graves disease, which might have been less complicated than what you have. Also, Elaine has a site that might be able to help (sorry, I don't know the address, she'll probably reply here and let you know). Now that you've had the RAI, you probably can use supplements, nutrition and meds to manage your symptoms (if you have any), while you do the research to figure out what to do next. Again, I'm sorry I don't know the answer. Take care, and feel good, AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 Thank you AntJoan, I appreicate the help and I will check out ithyroid now. Betty PS If your are expecting an answer from me, and you don't get it, please email me back with a friendly reminder. " To err is human; to forgive, divine. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 > Hi Remote You wrote " However, with RAI therapy, according to endo, most of GD's patients > can be much better and as normal as before afte intake of hormone > supplement. " > > > That's what my endo told me too. Then when I started having problems after the > RAI all she said was 'it's not your thyroid'! Duh, of course not. But the > problems were caused directly or indirectly by the use of RAI. > She then refused to treat other problems because they did not involve my > non-existant thyroid. In a way I could understand, but I had truly believed > that all would go back to normal after the RAI. There was such an incredible > change in her attitude I was stunned. I had asked my husband to come with me > on my appointments and he had heard the about face too and was furious. Never > saw her again of course. > My point is that endo's seem to push the RAI without detailing any problems and > without taking any responsibility for other problems they create. We all are > responsible for what is done to our bodies. > Kate > > light_remote wrote: > >> Hello, >> >> I thought most of people become impatient to seek RAI is that they >> are or are afraid to be bothered too much and too long from the >> recurrence and GD's horrible symptoms. >> I don't think anyone are willing to accept RAI at the very beginning. >> They just have no way to go. >> >> Nutrition maybe a nice way but from iThyroid it's only are appliable >> to very few people and very personally. People found they don't have >> much time and enery to find the right nutrition which is suitable for >> themselves, or even it's impossible to find nutrition solution. >> Recently I used Vitamin B complex and Calcium and multi Vitamin as >> daily supplemental. As expected it's not as good as ATDs. My heart >> race become higher and higher everyday. >> >> However, with RAI therapy, according to endo, most of GD's patients >> can be much better and as normal as before afte intake of hormone >> supplement. >> >> What I say above doesn't mean I support RAI or I will use RAI as >> option. >> >> Best wishes to all, >> >> >> >> > I agree with Elaine about being impatient. I almost had RAI >> because I was >> > led to believe it would fix all my problems - I didn't know it >> could >> > worsen the eye disease. Thank goodness I didn't do RAI and I'm now >> in >> > remission - have not taken meds for 2 1/2 years!!! AND my eyes are >> normal. >> > I can feel the eye muscles act up when I'm stressed, too tired or >> if I have >> > too much salt! >> > >> > Those of you wanting a quick fix because you're tired of dealing >> with all >> > the symptoms and the ATDs, please just deal with it a little >> longer. Think >> > about it - if you don't like the ATDs, why do you think you'll like >> taking >> > hypo meds? FOR LIFE!! >> > >> > Ultimately it is your decision. I consider myself extremely >> fortunate and >> > I'm grateful for people like Elaine, , Becky and others >> for >> > being so supportive and answering my endless questions. Please, >> listen to >> > the wealth of experience available here!! Take care, Mona >> > Re: Re: More thoughts >> > >> > >> > > Hi, >> > > Just wondering where your doctor gets his statistics. Perhaps his >> patients >> > > end up having RAI because he doesn't monitor them properly while >> on ATDs. >> > > Used correctly and with proper monitoring before taking someone >> off the >> > meds, >> > > they work very well. More and more doctors are now using ATDs >> compared to >> > a >> > > decade ago. >> > > And most people who are intolerant of one ATD have no problem >> with the >> > other >> > > one. One important GD symptom you should consider is that of >> impatience. >> > > Hyperthyroidism causes people to rush. This is how I ended up >> having RAI. >> > I >> > > just wanted something quick to get things over with. That was by >> far the >> > > stupidest thing I have ever done in my life, and I've regretted >> it since. >> > > Best, Elaine >> > > >> > > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 Hi Ant Joan, I wanted to add too that you have helped countless people. You've been a true inspiration in helping people understand what may have triggered their GD and how lifestyle changes can help in maintaining remission after using ATDs. Keep up the good work, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 Hi, Nodules in mutated thyroid tissue frequently occur after radioiodine. Dr. Francis Greenspan recommends evaluating patients post-RAI annually for nodules. My web site is http://daisyelaine_co.tripod.com/gravesdisease/ and I have a few articles discussing thyroid nodules on www.suite101.com Just do a search there for thyroid nodules. Best to you, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 In a message dated 5/26/2003 4:07:40 PM Eastern Daylight Time, daisyelaine@... writes: > Keep up the good work, Elaine Thanks, Elaine. I appreciate those who wrote back to me when I felt bad and let me know my ranting has done some good. Elaine, I don't know if is involved in the site anymore, so that leaves you our resident expert. You patiently answer all questions, and are much more knowledgable than most medical professionals. As someone wrote recently, there is a disclaimer at the iThryoid site asking people to consult a professional, but speaks of seeking out a nutritionist, not an MD, as MDs have no interest in, or knowledge of the nutritional approach to healing. Do you know if is still around, either here or at iThyroid? He may be involved in his cancer research now rather than this. Any word? Hope everyone had a good holiday, AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 In a message dated 5/26/2003 4:17:18 PM Eastern Daylight Time, etm1935@... writes: > I also want to mention > that I have refused RAI and am in remission. I did take PTU and > Tapazole (different times) and did not have any problems with > either ATD. Congratulations! Did you have Graves disease? How long did it take to go into remission? AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 Joan, yes, Graves Disease. I have had two bouts, one following my husband's death, clearly a crisis-driven onset of Graves, tremendous loss of weight, anger, nervousness, caught early by my regular physician who sent me to an endo who never ever suggested RAI, put me on PTU, monitored my condition for a bit more than a year, at which time I went into remission. The second bout was approximately seven years later and much more severe. It was preceded by noticeable TED which is what led me to seek medical advice. By the time the HMO I was using referred me to an endo (not my original endo, I was now covered by a different insurance system), I was experiencing muscle wasting, diarrhea, TED, extremely rapid heart, etc. The new endo immediately suggested RAI. I knew of my previous experience and I was unwilling to accept that as a solution. I began using PTU, eventually the TED was severe enough that I was experiencing double vision, I did undergo orbital radiation and a short term use of prednisone and have gratefully had no eye problems since. The endo eventually switched me to Tapazole because it has a longer life and I waned from that about a year ago. I currently have no Graves symptoms. I believe that both Graves bouts were driven by crisis situations in my life, the death of my husband, and later the possible loss of health insurance coverage without likelihood of being accepted by another insurance company. As it is, the HMO did survive long enough for me to reach Medicare. But it remained a serious worry and took its toll on my health with another bout with Graves. The only major changes I have made in my life were to watch for iodine. I don't want ANY extra iodine in anything I ingest. I enjoy seafood but am a bit more careful about the amounts I eat than I was previously. I have always taken vitamins and minimal supplements. Never once was I told that RAI could and probably would exacerbate my TED. It was during a final argument that was probably going to result in my leaving the endo that my HMO " gatekeeper " physician authorized a visit to a neurologist. That neurologist confirmed my suspicion that TED would be exacerbated if I were thrown into a hypo condition. What else would have occurred after RAI? It is astonishing to me that the suggestion was ever made to someone suffering with TED. I am grateful that the same " gatekeeper " physician allowed me to see specialists dealing in eye diseases, they were the physicians who recommended the orbital radiation, they did cure the double vision. The only fallout of that may be an earlier occurrence of cataracts (within ten years of radiation), something at my age that wasn't a great worry (I tend to think someone my age probably is headed for them anyway <smile>). I continue on vitamins, supplements, rarely exceed the RDAs for any of them, often take less than recommended of the less known items. I do take a small amount of copper, selenium, anti-oxidants, one-a-day-type-vitamins, and increased to double intake of calcium because of the Graves effect on bones. I come from a family that has suffered from allergies, arthritis and thyroid problems. Two sisters are naturally hypoT, never had RAI, both take synthroid. Both say they are slugs. I have always said that if I had my druthers, it is better to be hyperactive than a slug. My sisters agree. I have not participated in yoga or any other calming exercises, suspect they might help. I am again stressing over recent loss of income and increased living expenses, something which might possibly force me to return to the job market. I am trying to hold down panic since I do believe drastic lifestyle changes can bring on crisis-driven Graves bouts. Elaine Hello AntJoan On Monday, May 26, 2003, you wrote > In a message dated 5/26/2003 4:17:18 PM Eastern Daylight Time, > etm1935@... writes: >> I also want to mention >> that I have refused RAI and am in remission. I did take PTU and >> Tapazole (different times) and did not have any problems with >> either ATD. > Congratulations! Did you have Graves disease? How long did it take to go > into remission? > AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2003 Report Share Posted May 27, 2003 In a message dated 5/26/2003 8:46:51 PM Eastern Daylight Time, etm1935@... writes: > Joan, yes, Graves Disease. I have had two bouts, one following > my husband's death, clearly a crisis-driven onset of Graves, > tremendous loss of weight, anger, nervousness, Dear Elaine, Thanks for the interesting post, which I'm sure will be helpful to lots of folks w/Graves. The symptoms you describe remind me of my bout with the disease. The only good thing was that I could eat heaps of the foods I had avoided for years due to their fat content, and I would still wake up thinner the next day. I hated being ill, but I sure enjoyed the Fettucini Alfredo! Take care and be well, AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2003 Report Share Posted May 27, 2003 Hi Ant Joan, I haven't heard a word from since his wife passed away. With such a terrible loss, he may be avoiding any aspect of medicine for a while. Do you think we need to write and encourage him to return? I must admit being remiss in that I didn't send a condolence card, not knowing his snail mail address. Perhaps if someone has it, it wouldn't be too late to show him our support. Or even via email. This is more in your line of work so let me know your thoughts, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2003 Report Share Posted May 27, 2003 In a message dated 5/27/2003 4:59:22 PM Eastern Daylight Time, daisyelaine@... writes: > I haven't heard a word from since his wife passed away. Dear Elaine, After his wife passed away, I think wrote to say he would dedicate time to continue his cancer research. I don't know what his plans were for the thyroid sites. I sent my condolences to him at this site, but I don't know if he still visits here. It is a good idea for us to reach out to him--he certainly gave to all of us, and he might need us now. I don't know his snail mail, either. Maybe, if he reads this, he will know he is in our thoughts, and will let us know how to reach him. Take care, AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2003 Report Share Posted May 27, 2003 Hi Joan, Hopefully, he will see this. He devoted so much time and energy to patients with hyperthyroidism and has helped so many people. In case he doesn't still read the board, I'll email him tonight. Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 In a message dated 5/27/2003 10:26:24 PM Eastern Daylight Time, daisyelaine@... writes: > , I'll email him tonight. Elaine Thanks, Elaine. Best, AntJoan Quote Link to comment Share on other sites More sharing options...
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