Re: Re: Diet for Lupus and MS/Patty and everyone advise please

[Guest guest]

, like you I am a freak when it comes to prescription meds but I have also been lucky enough not to require too much also. I know they are good for short term but I also know they do not take care of the problem in most cases....they just mask the symptoms. Are there not any herbs you could take for pain? My deciding factor has always been to look up the drug and read about its side effects. If they are not too bad then I will consider them but if the list goes on and on and includes many of the symptoms I am trying to correct then I vitoe them on the spot. I hope this helps. jackie

----- Original Message -----

From: carina063@...

Sent: Friday, April 20, 2001 12:33 PM

Subject: Re: Diet for Lupus and MS/Patty and everyone advise please

i guess I didn't pay to much attention to the diet thing back then, i was hoping that once the implants were gone and some time had passed that all would be well...ha wrong. I am coming up on five months explant and while my head is so much better I feel like i am so much more achey and tired than I was before. Do you think that the fact that I am recovering could be why I am so tired now? I mean when I had the implants in I never slept, I was constantly up, and slept for never more than 2 hours at a time at night. My dilemna now is that instead of going down my ANA has actually gone up, so I am thinking that I am dealing with Lupus, and the women I have spoken to seem to have gotten better with a combination of diet and meds. I want to feel better and I am wondering if Diet and natural means are really the best way by themselves, I mean I just don't know, you still have the brain thing, after three years, I don't want to wait three years to feel better.....If taking lupus meds will make me well I think I may have to try. On the other hand I am so afraid of meds, and tend to not do well on them, I can no longer take Ibuprofen as I get stomach aches.....Vicodin I can tolerate well, but if I take too many it makes me very sleepy and it is addictive. Ahhhhh what to do?????What would you do if you had the High ANA would you try meds or not?I think I already know your answerany other opinions appreciated here.In @y..., "Patty" <faussettdp@m...> wrote:> Diet makes all the difference in the world to me. That, and my herbal> supplements. I posted about the MS diet on here once before. Message> number 1498, please look at it, . (Just go to the bottom of this> email, and look for the link for archives. Once you get there, just enter> the message number in the search box.)> > I have found that there are certain foods that my body just doesn't like me> to eat anymore. Chocolate, corn tortilla chips, sugar, some breads, foods> with red food coloring, lots of meats, lots of saturated fats. I must> continually watch what I put in my mouth.> > I have been back on my herbs and other supplements like clockwork since I> got back from Tucson, and my head is clear again. I know it is something> that I am taking that is working, but I do not know what that "something"> is. I have a few clues, but I can't say for sure.> > I think the molybdenum supplements have been very helpful. I take 250 mcg> three times a day of that. I also take gingko biloba three times a day along> with all my other many herbs. But I won't go without my gingko, milk> thistle, olive leaf extract, siberian gingseng or Vitamin C anymore.> > I am also taking large doses of caprylic acid three times a day in case this> is a candida issue.> > I drink a quart of ozonated water upon rising every morning, more later> whenever I think about it and have an empty stomach! I also do ozone> insufflation in my ear, funnel over my liver, and vaginal and rectal> insufflations. Unfortunately, I have not been as consistent with those as I> need to be. I am truly thankful for my ozone machine, though.> > The ONE and ONLY prescription drug I allow myself to take that I think has> made a big difference is Hydergine (ergoloid mesylates). These are supposed> to be extremely safe, a vasodilator. I got these off the Internet through> Hong Kong, so I don't need a doctor to prescribe them for me. These are in> the class of drugs called nootropics, or "smart drugs" and include> vinpocetine, pirecetam or pramiracetam. If I understand it correctly, they> are supposed to protect your brain from the effects of aging. I can say> that since taking them, I have noticed a difference.> > Yup, it's a lifestyle change. What a ride.> Patty> ----- Original Message -----> From: <carina063@h...>> < @y...>> Sent: Thursday, April 19, 2001 1:13 PM> Subject: Diet for Lupus and MS> > > > i was talking to a friend of my sisters who has had lupus for years> > and years, really bad at one time and in the hospital a few times (no> > implants) but she did tell me that what has helped her the most was a> > diet that she follows and it is a book called "the muliple sclerosis> > diet" by Dr.Roy Swank. I just ordered it off amazon.com and plan to> > get started on it asap. It seems that it would work for any of us> > with autoimmune stuff. Thought I would pass on the info.

[Guest guest]

,

Let me point out to you that my rheumatoid factor also went UP after

explant, before it went down, and I felt very sick yet even a year after

explant. This stuff takes time. Cells have to be replaced, the immune

system needs to shut off its attacks, stuff needs to get cleared out. I

wish I could say that this works like you would expect it to, (that is, you

get the implants out, get better), but I don't think this is the case. I

have heard too many stories of women actually getting worse before they get

better. Your healing will have lots of ups and downs, and I do believe that

all of us experience that. It doesn't ever seem to be a smooth steady

upward transition to better health.

In my case, I knew I was not feeling better, even though I had done alot of

natural medicine therapies, but I refused to give in to the traditional

medical model based on using various prescription drugs. I knew that going

natural would take longer, but I also felt the gains would be more

permanent. Please understand, this is just me. I just wanted to live by my

principles, and those were that if God didn't provide it in the beginning,

then it was unnecessary, and even harmful.

Some women really do need to use prescription drugs for comfort. This is

something you have to research and decide, and be convinced of. Dr. Kolb

has info on the Plaquenil on her site.

This is really an effort to find what works for each of us. Some of us may

find that our healing can follow in the path of others before us, but

sometimes we have to blaze our own trail. It has taken me a long time to

get to where I am now, but I am totally and completely satisfied with the

fact that I have never had to take any steroids along the way. I would just

worry what the side effects were doing to me.

My decision to go naturally has seemed to pay off, with a much, much lower

rheumatoid factor now. And I haven't had to worry about screwing up my

liver along the way. And I know that eating healthy foods can only do me

good. I cheat like everyone else, no doubt, but the effort to eat better

has enriched our whole family's health as well.

Let us know what you decide, and if you do decide to take plaquenil, how it

feels.

Love,

Patty

----- Original Message -----

From: <carina063@...>

< >

Sent: Friday, April 20, 2001 12:33 PM

Subject: Re: Diet for Lupus and MS/Patty and everyone advise

please

> i guess I didn't pay to much attention to the diet thing back then, i

> was hoping that once the implants were gone and some time had passed

> that all would be well...ha wrong. I am coming up on five months

> explant and while my head is so much better I feel like i am so much

> more achey and tired than I was before. Do you think that the fact

> that I am recovering could be why I am so tired now? I mean when I

> had the implants in I never slept, I was constantly up, and slept for

> never more than 2 hours at a time at night. My dilemna now is that

> instead of going down my ANA has actually gone up, so I am thinking

> that I am dealing with Lupus, and the women I have spoken to seem to

> have gotten better with a combination of diet and meds. I want to

> feel better and I am wondering if Diet and natural means are really

> the best way by themselves, I mean I just don't know, you still have

> the brain thing, after three years, I don't want to wait three years

> to feel better.....If taking lupus meds will make me well I think I

> may have to try. On the other hand I am so afraid of meds, and tend

> to not do well on them, I can no longer take Ibuprofen as I get

> stomach aches.....Vicodin I can tolerate well, but if I take too many

> it makes me very sleepy and it is addictive. Ahhhhh what to do?????

>

> What would you do if you had the High ANA would you try meds or not?

> I think I already know your answer

> any other opinions appreciated here.

>

>

>

>

>

> In @y..., " Patty " <faussettdp@m...> wrote:

> > Diet makes all the difference in the world to me. That, and my

> herbal

> > supplements. I posted about the MS diet on here once before.

> Message

> > number 1498, please look at it, . (Just go to the bottom of

> this

> > email, and look for the link for archives. Once you get there, just

> enter

> > the message number in the search box.)

> >

> > I have found that there are certain foods that my body just doesn't

> like me

> > to eat anymore. Chocolate, corn tortilla chips, sugar, some

> breads, foods

> > with red food coloring, lots of meats, lots of saturated fats. I

> must

> > continually watch what I put in my mouth.

> >

> > I have been back on my herbs and other supplements like clockwork

> since I

> > got back from Tucson, and my head is clear again. I know it is

> something

> > that I am taking that is working, but I do not know what that

> " something "

> > is. I have a few clues, but I can't say for sure.

> >

> > I think the molybdenum supplements have been very helpful. I take

> 250 mcg

> > three times a day of that. I also take gingko biloba three times a

> day along

> > with all my other many herbs. But I won't go without my gingko,

> milk

> > thistle, olive leaf extract, siberian gingseng or Vitamin C anymore.

> >

> > I am also taking large doses of caprylic acid three times a day in

> case this

> > is a candida issue.

> >

> > I drink a quart of ozonated water upon rising every morning, more

> later

> > whenever I think about it and have an empty stomach! I also do

> ozone

> > insufflation in my ear, funnel over my liver, and vaginal and rectal

> > insufflations. Unfortunately, I have not been as consistent with

> those as I

> > need to be. I am truly thankful for my ozone machine, though.

> >

> > The ONE and ONLY prescription drug I allow myself to take that I

> think has

> > made a big difference is Hydergine (ergoloid mesylates). These are

> supposed

> > to be extremely safe, a vasodilator. I got these off the Internet

> through

> > Hong Kong, so I don't need a doctor to prescribe them for me. These

> are in

> > the class of drugs called nootropics, or " smart drugs " and include

> > vinpocetine, pirecetam or pramiracetam. If I understand it

> correctly, they

> > are supposed to protect your brain from the effects of aging. I

> can say

> > that since taking them, I have noticed a difference.

> >

> > Yup, it's a lifestyle change. What a ride.

> > Patty

> > ----- Original Message -----

> > From: <carina063@h...>

> > < @y...>

> > Sent: Thursday, April 19, 2001 1:13 PM

> > Subject: Diet for Lupus and MS

> >

> >

> > > i was talking to a friend of my sisters who has had lupus for

> years

> > > and years, really bad at one time and in the hospital a few times

> (no

> > > implants) but she did tell me that what has helped her the most

> was a

> > > diet that she follows and it is a book called " the muliple

> sclerosis

> > > diet " by Dr.Roy Swank. I just ordered it off amazon.com and plan

> to

> > > get started on it asap. It seems that it would work for any of us

> > > with autoimmune stuff. Thought I would pass on the info.

>

>

>

>