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Just to comment on the wonderful post by Elaine on

psychoneuroimmunology, most especially on 5th chakra. It is the chakra at

which we " sound our note in the universe " , and according to the work of the

late ph , the 5th chakra is attuned to the 3rd is this sense:

3rd chakra aggresses out whereas 5th chakra being a spiritual chakra above

heart aggresses " in. " When we cannot speak out for ourselves or make

ourselves be heard (esp. lest we step on someone elses foot), this in the

area the blue, sounding out chakra where we will most likely manifest the

resultant " charge " of energy.

I think all body-mind health care workers know this stuff, and all have

different terminology and ways of expressing their case. Let's not get all

bound up in the language and semantics of the message. Especially if it

looks to some like somebody said your are responsible for your illness.

Change the perspective. Nobody is saying anybody is at fault. The message

is, if Iv'e got it, I want to find a way which is acceptable and which makes

sense to me to help myself. If I'm helping myself, I'm being responsible FOR

my illness To to myself. Let's please stop getting sidetracked about petty

stuff and stick to the spirit of helping each other. That's what got us this

far, and look how many are better off for it! Soapbox ends.

Peace and Light, '

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Thank you all,

I just want to say how thankful I am to have this group. There are so

many talented and caring people here. It also feels good to be able to

express opinion and be able to agree or disagress in safety.

My internist wants to increase the beta blocker for my pulse. It is not

going down. It feels like I am standing still. I am not getting better

or worse. I saw the radiooncology doc (who wanted to do RAI) at work

yesterday and he scared me by saying they were seeing a lot of young

people with Hyper T untreated with congestive heart failure. Both the

docs want me to see an endocrinologist. I guess if I am going to try

the anti t. drugs, it is better to have someone who treats with them

frequently follow you.

I guess I am wondering how long to wait before trying the drugs? How

long can your heart take the tachycardia before you get CHF down the

line?

I think I just need some reassurance tonight.

Thanks,

Deb

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Dear Deb;

Why suffer with such terrible symptoms. The thyroid drugs, (i take tapazole)

do no irreversible damage, and they take about three weeks to kick in

anyway. The symptoms form a self-perpetuating wheel of anxiety and stress. I

sufferred too long with mine and was misdiaagnosed x-2 before somebody got

it right and started treating me with tapazole before I died from heart

failure. I thank God I found this group and therefore didn't run offf and

get the RAI like my endo said I should right off the bat. That would have

been irreversible and might not have turned out so well for me. Go on, start

with the drugs already. I couldn't take the inderal because I have asthma

and inderal can make asthma symptoms worse. So, I had to suffer a little

longer till my pulse got under control. Hang in there and keep on talking to

us. Wishing you the best.

Peace and Light,

;

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.....I thought asthma sufferers couldn't take antithyroid meds? I know

someone who was radiated as soon as she was diagnosed because she has

asthma. Glad you held out for the ATD meds! MOna

Re: mind body connection

Dear Deb;

Why suffer with such terrible symptoms. The thyroid drugs, (i take tapazole)

do no irreversible damage, and they take about three weeks to kick in

anyway. The symptoms form a self-perpetuating wheel of anxiety and stress. I

sufferred too long with mine and was misdiaagnosed x-2 before somebody got

it right and started treating me with tapazole before I died from heart

failure. I thank God I found this group and therefore didn't run offf and

get the RAI like my endo said I should right off the bat. That would have

been irreversible and might not have turned out so well for me. Go on, start

with the drugs already. I couldn't take the inderal because I have asthma

and inderal can make asthma symptoms worse. So, I had to suffer a little

longer till my pulse got under control. Hang in there and keep on talking to

us. Wishing you the best.

Peace and Light,

;

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,

I too suffer from asthma and cannot take some of the beta blockers but am

doing well on atenolol(sp). It has worked great on me and doesn't seem to

bother my asthma. I am being pressured to go with the RAI and I really don't

want to do that. My whole family, friends, doctor (kind of), even my dentist

is pressuring me to the RAI thing. He said he gave it to him Mom who

suffered from Graves and she is fine now. He says surgery is too risky and

now I am even more confused. I need to make some sort of decision soon

because this is my second bout with Graves after coming out a remission and

I am sicker now that I was before. Oh what's a girl to do! lol

I really need to do some research on both options and make a decision after

I graduate from school.

Thanks,

Carolann

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Carolann...don't let anyone rush you into a decision. If you've come out of

remission, go back on the meds. I went out of remission before (don't think

I was ever in remission - quacky doc). I'm on 50mg/day of PTU right now and

suddenly my eyes are bothering me - usually a sign of stress or going hyper

- may have to increase meds again. REgardless of what happens I will NEVER

have RAI after a year of research, BB's, and corresponding with people that

have experienced RAI. Some people don't have problems after the " cocktail "

but I have TED (extremely mild) that could worsen and I don't want to take

the chance, EVER. Remember, it's not a QUICK FIX. I interviewed a surgeon

last year that specializes in thyroidectomies in the event my body forces me

into another path. Our ATDs have to be constantly monitored and adjusted

and so will the thyroid replacement meds. If you're interested, I can make

out a list of articles I found that you can access to help you with a

decision. I have a three inch file on Graves disease, TED, RAI vs surgery,

etc. A book you should consider reading is " Healing Options " by Kate Flax,

simple and informative - I learned a few more interesting facts.

Why are you sicker now? Did they allow you to go too hyper? I'd love to

take a little pill because it's noninvasive but the long lasting effects

could be horrific...or not - it's 50-50. I don't like the odds!! Do what's

best for you not what your family, dentist, doctor, neighbor, etc. thinks is

best - they're not living with Graves! Whatever you decide, the decision of

treatment should ultimately be yours. Best of luck, Mona

RE: mind body connection

,

I too suffer from asthma and cannot take some of the beta blockers but am

doing well on atenolol(sp). It has worked great on me and doesn't seem to

bother my asthma. I am being pressured to go with the RAI and I really don't

want to do that. My whole family, friends, doctor (kind of), even my dentist

is pressuring me to the RAI thing. He said he gave it to him Mom who

suffered from Graves and she is fine now. He says surgery is too risky and

now I am even more confused. I need to make some sort of decision soon

because this is my second bout with Graves after coming out a remission and

I am sicker now that I was before. Oh what's a girl to do! lol

I really need to do some research on both options and make a decision after

I graduate from school.

Thanks,

Carolann

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Dear Mona,

Thanks for the reply and for the offering of the information. I would LOVE

it if you could provide me some info about RAI. I feel really scared when I

even think about doing that. But what are the options? My levels are high

now and I just started tapazol about ten days ago and don't feel any better

yet. It amazes me how quick people are to want to take the quick fix (or

what they think is). My dentist freaked me out yesterday because he said you

could think of Graves as a sort of cancer in the body because it reeks such

havoc...and he said that I need to make a decision fast because all it does

it makes you sicker and sicker...any info you can help me with would be so

appreciated. I have TED as well....not that severe, puffiness under the eyes

and when the doc measured my eyes in the office, they were like almost 21

and I think the norm is 18, or something like that. I know it seems trite to

say but all I want is for this disease to go away....I have suffered with

asthma all my life and never as scared as I do now having Graves....that may

sound silly because asthma is serious but I have it under control and am ok

with it mostly. I am so scare Mona....and aside from this group there is no

one to talk to, listen to, relate to...so on. I am really grateful I have

these emails to read each day when I come home from school. They keep me

connected to a source of hope and camaraderie that I can't find anywhere

else. I hope your doing well and please...keep me posted.

Thanks so much

Carolann

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Dear Carolann,

Lots of us on this board had Graves and were scared. (Does misery love

company?) When I had it, I was determined to get better, and equally

determined not to destroy my thyroid through RAI. Your meds should kick in

soon--try the tofu, broccoli, copper and other suggestions from this board if

you haven't yet. Also breathing, yoga, etc. Your meds may need to be

adjusted, but they should work for you--they worked before. You are not

alone--we are all with you.

AntJoan

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RE: mind body connection

Dear Mona,

Thanks for the reply and for the offering of the information. I would LOVE

it if you could provide me some info about RAI. I feel really scared when I

even think about doing that. But what are the options? My levels are high

now and I just started tapazol about ten days ago and don't feel any better

yet. It amazes me how quick people are to want to take the quick fix (or

what they think is). My dentist freaked me out yesterday because he said you

could think of Graves as a sort of cancer in the body because it reeks such

havoc...and he said that I need to make a decision fast because all it does

it makes you sicker and sicker...any info you can help me with would be so

appreciated. I have TED as well....not that severe, puffiness under the eyes

and when the doc measured my eyes in the office, they were like almost 21

and I think the norm is 18, or something like that. I know it seems trite to

say but all I want is for this disease to go away....I have suffered with

asthma all my life and never as scared as I do now having Graves....that may

sound silly because asthma is serious but I have it under control and am ok

with it mostly. I am so scare Mona....and aside from this group there is no

one to talk to, listen to, relate to...so on. I am really grateful I have

these emails to read each day when I come home from school. They keep me

connected to a source of hope and camaraderie that I can't find anywhere

else. I hope your doing well and please...keep me posted.

Thanks so much

Carolann

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By the way Carol, I would never equate Graves to Cancer. It can definitely

cause problems but with patience, a good doctor, good support BB, and a some

knowledge you can eventually lead a normal LONG LIFE!

RE: mind body connection

Dear Mona,

Thanks for the reply and for the offering of the information. I would LOVE

it if you could provide me some info about RAI. I feel really scared when I

even think about doing that. But what are the options? My levels are high

now and I just started tapazol about ten days ago and don't feel any better

yet. It amazes me how quick people are to want to take the quick fix (or

what they think is). My dentist freaked me out yesterday because he said you

could think of Graves as a sort of cancer in the body because it reeks such

havoc...and he said that I need to make a decision fast because all it does

it makes you sicker and sicker...any info you can help me with would be so

appreciated. I have TED as well....not that severe, puffiness under the eyes

and when the doc measured my eyes in the office, they were like almost 21

and I think the norm is 18, or something like that. I know it seems trite to

say but all I want is for this disease to go away....I have suffered with

asthma all my life and never as scared as I do now having Graves....that may

sound silly because asthma is serious but I have it under control and am ok

with it mostly. I am so scare Mona....and aside from this group there is no

one to talk to, listen to, relate to...so on. I am really grateful I have

these emails to read each day when I come home from school. They keep me

connected to a source of hope and camaraderie that I can't find anywhere

else. I hope your doing well and please...keep me posted.

Thanks so much

Carolann

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Hello Mona; No problem with ATD's for people with asthma, It's the

propanalol or beta-blocking agents which should be used cautiously in people

with asthma. I suppose some asthmatic people could use it, but for me, it

increases asthma symptoms in me so I can't use it. Thanks for your support.

'

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Hi Carolann; Thanks for the tip about Atenolol. I had not heard of it being

used for us (hyper-T's) before. I don't need it now, but hope to remember

the name in case of a future flare-up. In four months time or so, on the

list of supps. I've come down from 60mg. Tapazole per day to 5mg daily. Endo

wants another complete blood w/i ten days. I feel better than I can remember

for a long time too. The endo will just say I've gone into remission again

(the last remission was hypo) but I have a feeling that the supplements are

really making the change and if that's the case I will be staying above hypo

and just sailin along. I'm going to be sure to let everybody know if I'm

another success story.

Peace and Light,

'

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Deb, Hi, It's me Eileen (Swan). Don't wait. Why wait? Why wait for anything?

Decide. Yes, i think i'll try the anti-T and do make the space. The anti-T gave

me

the feeling of not being well but covering it up. And as I say, I like space and

air

flowing and I like FengShui. So continue the supplements and anti-T. When

things are stable....I found I went hypo and went far within 2 months on a low

dose so I stopped...but when you become stable take a little less for 3

months...cause you probably will get tested TSH every 3 months...and see if it

bounces back to hyperT...and see what symptoms come back right away after

dropping to less-if any. Watch for the supplements to make the body well again.

and watch the heart doesn't palpitate as you get lower anti-T. That makes sense.

Swan

On 11 Apr 00, at 21:07, debspiritwalker@... wrote:

Thank you all,

I just want to say how thankful I am to have this group. There are so

many talented and caring people here. It also feels good to be able to

express opinion and be able to agree or disagress in safety.

My internist wants to increase the beta blocker for my pulse. It is not

going down. It feels like I am standing still. I am not getting better

or worse. I saw the radiooncology doc (who wanted to do RAI) at work

yesterday and he scared me by saying they were seeing a lot of young

people with Hyper T untreated with congestive heart failure. Both the

docs want me to see an endocrinologist. I guess if I am going to try

the anti t. drugs, it is better to have someone who treats with them

frequently follow you.

I guess I am wondering how long to wait before trying the drugs? How

long can your heart take the tachycardia before you get CHF down the

line?

I think I just need some reassurance tonight.

Thanks,

Deb

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Hi .....my friend was told she couldn't take ATDs with her asthma so

they radiated her immediately. It took about a year for her to stablize and

she still having weight problems. Makes one wonder about the knowledge

level of the doc! Mona

Re: mind body connection

Hello Mona; No problem with ATD's for people with asthma, It's the

propanalol or beta-blocking agents which should be used cautiously in people

with asthma. I suppose some asthmatic people could use it, but for me, it

increases asthma symptoms in me so I can't use it. Thanks for your support.

'

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Thanks Swan,

My endo appt is in June. I called today to move it up, but that was his

first available. Oh well, I guess I wanted to hurry up after I made a

decision to try the anti meds.

Deb

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Dear Elaine:

I agree 100%.

mind body connection

>Psychoneuroimmunology (PNI) is a scientific discipline developed at

>Harvard in the 80's. Since, there has been a tremendous outpouring of

>research proving exactly how emotions affect the immune system and

>contribute to the development of disease. Specifically, in stress,

>even what's encountered in studying for final exams, interferon levels

>drop to 0. Interferon is a cytokine released in the immune response.

>Normally we have some and normally interferons cause the production of

>Natural Killer lymphocytes, (NK cells). NK cells stop autoreactive T

>cells from going on to produce autoantibodies and they kill tumor

>cells in their early formative stages. Normally the immune system

>protects us, but in times of stress, the system fails. Joan Borysenko,

>in her book and audio series on healing, describes this in great

>detail. She also explains why diseases occur after not during times of

>great stress.

>

>As for Louise Hays, although I've only read one of her books, I find

>that she is interpreting the Tantric traditon of chakras when she

>makes her declarations. According to many energy healing disciplines

>dating back thousands of years, the thyroid is governed by the 5th

>chakra (reservoir of vital energy), and imbalances occur when

>expression is stifled or we feel powerless or held back. Dr. Rudolph

>Ballentine (of the Holistic Healing Center in NY) in his book, Radical

>Healing, explains that this is why women are more prone to autoimmune

>thyroid disease. Many GD patients I've interviewed report being in

>relationships with controlling men or having controlling parents, or

>they've had teachers who made them feel that what they had to say

>wasn't important. Not that all of us have these problems, but they

>have been found to be contributing factors. Acupuncture, Reikki, and

>any of the forms of energy healing work by correcting imbalances in

>energy flow and work at restoring 5th chakra balance.

>

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Guest guest

Carolann.....I, along with many others can relate to your fear. Once you

become more knowledgeable and you've lived with Graves for a while and your

thyroid levels are stablized you'll relax a bit. I still resent taking meds

everyday and when the TED flares up I can get a little depressed but we

learn to deal with it and appreciate life more. Your dentist never should

have compared Graves to cancer or any other disease. He's not an expert or

an Endo. Very soon you will become the expert because you live with it

everyday. I have four books at home and STACKS of articles on RAI, surgery,

Graves, T3/T4/TSH, medication, research, TED, the list goes on and plus I

access two websites for info. Currently I'm on a quest to improve my diet.

Please be patient....it takes time for the meds to work and if TAP doesn't

work for you, PTU is available. DOn't let others push you into a

decision....your brain and emotions are a bit jumbled right now because your

thyroid levels are off. Wait until you're calmer and clearheaded before you

make any serious decisions. Believe me, we all want this disease to go

away....I certainly do. Instead, we learn to cope, continue to live and be

thankful for each good moment. There are others that have bigger problems

than me and I try to remember that. However, it doesn't mean we're not

important and that Graves is a tiny problem. It's a royal pain in the

tooka!! I'll have a list of those articles by Monday to post so hang in

there and know that others share your concerns and fear and want to help.

Too bad we can't all reach in for a big hug!!! You're not alone, you have

all of us who have experienced the same problems. I'm on my 4th doc!! It's

a struggle sometimes but remind myself that we're never given more than we

can handle. I question this statement sometimes and pray alot!!! Know that

people care about you and want to help. Take care, Mona

RE: mind body connection

Dear Mona,

Thanks for the reply and for the offering of the information. I would LOVE

it if you could provide me some info about RAI. I feel really scared when I

even think about doing that. But what are the options? My levels are high

now and I just started tapazol about ten days ago and don't feel any better

yet. It amazes me how quick people are to want to take the quick fix (or

what they think is). My dentist freaked me out yesterday because he said you

could think of Graves as a sort of cancer in the body because it reeks such

havoc...and he said that I need to make a decision fast because all it does

it makes you sicker and sicker...any info you can help me with would be so

appreciated. I have TED as well....not that severe, puffiness under the eyes

and when the doc measured my eyes in the office, they were like almost 21

and I think the norm is 18, or something like that. I know it seems trite to

say but all I want is for this disease to go away....I have suffered with

asthma all my life and never as scared as I do now having Graves....that may

sound silly because asthma is serious but I have it under control and am ok

with it mostly. I am so scare Mona....and aside from this group there is no

one to talk to, listen to, relate to...so on. I am really grateful I have

these emails to read each day when I come home from school. They keep me

connected to a source of hope and camaraderie that I can't find anywhere

else. I hope your doing well and please...keep me posted.

Thanks so much

Carolann

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Thanks so much Mona and to everyone else that had caring words of advise and

wisdom. I just came home from a long day it was a pleasure to read. I am

going to play catch on all my emails from this group. It is always such

interesting info and really teaches me a lot.

Thanks so much

Carolann

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  • 3 years later...

In a message dated 12/31/03 6:17:03 PM Eastern Standard Time,

gdanen@... writes:

I was just diagnosed with colorectal cancer and

if there is a non-invasive cure, I'd like to know about it.

Besides other wonderful treatments found on this list, you might want to look

into Carnivora, which is best used for digestive system cancers from what I

understand.

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In a message dated 12/31/03 6:17:03 PM Eastern Standard Time,

gdanen@... writes:

I was just diagnosed with colorectal cancer and

if there is a non-invasive cure, I'd like to know about it.

Besides other wonderful treatments found on this list, you might want to look

into Carnivora, which is best used for digestive system cancers from what I

understand.

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Hi, my name is Gerry, and I am new to this group.

> Mind Body Connection

>

>

> Hi All

>

> A couple of years ago I ridiculed the mind body connection.

> However now I see a proof of that connection in allopathic

> medicine. Stress will kill by upsetting body chemistry. The

> present system has Doctors telling patients that they must do

> as they tell them (slash, burn, radiate or poison) or they

> will die a horrible death. Patients then have added stress

> from Doctors literally scarring them to death as well as the

> stress added by the hostile slash, burn, radiate or poison.

Any practical suggestions? I was just diagnosed with colorectal cancer and

if there is a non-invasive cure, I'd like to know about it.

Gerry Danen

http://www.danen.org/h/ref/ref_cancer.shtml

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Hi, my name is Gerry, and I am new to this group.

> Mind Body Connection

>

>

> Hi All

>

> A couple of years ago I ridiculed the mind body connection.

> However now I see a proof of that connection in allopathic

> medicine. Stress will kill by upsetting body chemistry. The

> present system has Doctors telling patients that they must do

> as they tell them (slash, burn, radiate or poison) or they

> will die a horrible death. Patients then have added stress

> from Doctors literally scarring them to death as well as the

> stress added by the hostile slash, burn, radiate or poison.

Any practical suggestions? I was just diagnosed with colorectal cancer and

if there is a non-invasive cure, I'd like to know about it.

Gerry Danen

http://www.danen.org/h/ref/ref_cancer.shtml

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Hi Gerry Welcome

Did your doctor scare you into doing drugs?

Do you believe that taking a poison will cure you?

If they succeed in scaring you into believeing they have

a solution you are probably in a stressed mode.

Doctors and Drugs have no cure, i'm sure you have

witnessed others that are not here today because of their

'system'.

Relax and start studying - You will find the most

successful protocol which does not rely on ANY artificial supplements

is the Budwig protocol.

http://www.cancertutor.com/Cancer/Budwig.html

http://www.curezone.com/diseases/cancer/cancer_dr_budwig.html

This protocol is not just for cancer but for almost

ALL diseases because it works on the causes at the quantum

energy level. After syudying you will know more than the doctors

about diseases.

Rick

> Hi, my name is Gerry, and I am new to this group.

>

> > Mind Body Connection

> >

> >

> > Hi All

> >

> > A couple of years ago I ridiculed the mind body connection.

> > However now I see a proof of that connection in allopathic

> > medicine. Stress will kill by upsetting body chemistry. The

> > present system has Doctors telling patients that they must do

> > as they tell them (slash, burn, radiate or poison) or they

> > will die a horrible death. Patients then have added stress

> > from Doctors literally scarring them to death as well as the

> > stress added by the hostile slash, burn, radiate or poison.

>

> Any practical suggestions? I was just diagnosed with colorectal

cancer and

> if there is a non-invasive cure, I'd like to know about it.

>

> Gerry Danen

> http://www.danen.org/h/ref/ref_cancer.shtml

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