Re: GD and Myasthenia gravis

[Guest guest]

In a message dated 6/18/01 10:40:07 AM Central Daylight Time, Fraserk@... writes:

Subj: GD and Myasthenia gravis

Date: 6/18/01 10:40:07 AM Central Daylight Time

From: Fraserk@... (Kate Fraser)

Reply-to: hyperthyroidism

Hyperthyroidism

Hi good folks. I have GD and had RAI but am no way recovered 18 months

later. Has any one of you encountered myasthenia gravis? I appear to

have many of the symptoms and was curious before my next blood work in

July. My doctor has suggested that I might research and come up with

ideas of what is wrong. I think that means she's out of ideas. Or

maybe just had enough. I dunno.

Curious,

Kate

Kate, what are the symptoms? does it go with Graves? an Amish man I know had it. He had his mercury fillings removed and got better.. Kim

[Guest guest]

Kim - it has an autoimmune disease with lots of symptoms - the ones that

I have that match are: muscular weakness (can't get up stairs without

resting half way), shortness of breath, difficulty swallowing, gagging,

choking, changed voice, my only facial changes are in my eyelids which

do not open when told to. I have been getting many muscle spasms

in my neck, legs, and in diaphram. I become weaker as the day goes

on.

There are web sites about it. Good to hear of someone who recovered.

K

palomino03@... wrote:

In a message

dated 6/18/01 10:40:07 AM Central Daylight Time,

Fraserk@... writes:

Subj:

GD and Myasthenia gravis

Date: 6/18/01

10:40:07 AM Central Daylight Time

From:

Fraserk@... (Kate Fraser)

Reply-to:

hyperthyroidism

Hyperthyroidism

Hi good folks.

I have GD and had RAI but am no way recovered 18 months

later.

Has any one of you encountered myasthenia gravis? I appear to

have many of

the symptoms and was curious before my next blood work in

July.

My doctor has suggested that I might research and come up with

ideas of what

is wrong. I think that means she's out of ideas. Or

maybe just had

enough. I dunno.

Curious,

Kate

Kate,

what are the symptoms? does it go with Graves? an Amish man

I know

had

it. He had his mercury fillings removed and got better.. Kim

[Guest guest]

Hi Kate,

what are your symptoms? could it just be that you're hypo? hypo can cause

symptoms similar to those of MG. A test for acetylcholine receptor antibodies

will show if you do have MG.

[Guest guest]

Hi Elaine (?)

Biggest symptom is inability to use legs - cant go up hills, can't use stairs,

etc. Others as listed on my posting all apply!

Thanks for any info,

Kate

daisyelaine@... wrote:

> Hi Kate,

> what are your symptoms? could it just be that you're hypo? hypo can cause

> symptoms similar to those of MG. A test for acetylcholine receptor antibodies

> will show if you do have MG.

>

>

>

>

[Guest guest]

Elaine - One more quick question... I have lab work scheduled in July and for

one test she has written 'ESR'. What is that test?

Thank you in advance

Kate

[Guest guest]

Hi Kate,

Graves' disease can cause these symptoms. We're all affected differently so

not everyone experiences muscle wasting, but some people experience such

severe muscle atrophy they have to crawl up stairs. The main muscles affected

are the thighs and shoulder girldle. Dr. Arem, in Thyroid Solution,

attributes some of this weakness to the deficiencies in vitamin B 6 that we

have. Even if you're in treatment and remission, these muscle problems will

persist until the nutrient deficiencies are corrected. probably has some

good ideas on what other nutrients can help rebuild muscle strength.

Myasthenia gravis is a disorder in which autoantibodies destroy the cell

receptors at the neuromuscular junction where nerve impulses tell muscles

what to do. With the connection severed, you end up unable to control these

muscles. The test for acetylcholine receptor antibodies will help in

diagnosing MG, but low titers of this antibody are seen in some patients with

Graves' disease for reasons that are unclear. In MG, the titers will be very

high. Hope this helps, Elaine

[Guest guest]

It's an erythrocyte sedimentation rate, which is also called a sed rate or a

Westergren (for the method we use). In this test, we fill a narrow tube with

blood to see how quickly the red cells settle in one hour. In inflammatory

conditions and infections, the blood settles quickly and the sed rate is

high. The test is helpful in ruling out and diagnosing connective tissue

disorders, like rheumatoid arthritis. It's generally normal in Graves'

disease.

[Guest guest]

My last SED several months ago was 16!! It was 53 when first diagnosed with

GD five years ago. Must be because of TED?

Re: GD and Myasthenia gravis

It's an erythrocyte sedimentation rate, which is also called a sed rate or a

Westergren (for the method we use). In this test, we fill a narrow tube with

blood to see how quickly the red cells settle in one hour. In inflammatory

conditions and infections, the blood settles quickly and the sed rate is

high. The test is helpful in ruling out and diagnosing connective tissue

disorders, like rheumatoid arthritis. It's generally normal in Graves'

disease.

[Guest guest]

Hi Elaine

Thank you so much for your info and ideas. As a matter of fact I have been

trying to find out about Hoffman's syndrome all morning with minimal success.

But yesterday after I wrote to you, I had a brilliant idea and figured out that

the SR of the ESR might be sedimentation rate and then I was away. One of the

interesting things she appears to be looking at is polymyostitis. She has also

ordered CBC /diff, creatine and uric acid as well as FT3, FT4, and TSH. Maybe

she is thinking after all. She sometimes is willing to share her ideas and

listen to mine and other times she doesn't answer my questions and avoids them

and will lie. My husband now comes with me every time and he has heard the lies

too. Vent,vent.

Yes, I am hypo having had RAI in Mar of 99. Not once since then has my thyroid

replacement been right. I am so frustrated. I appear to be extremely sensitive

to synthroid. A daily dosage of .075 leaves me hyper and .0625 leaves me hypo.

Then staying on at .0625 and adding just one .075 per week was tried. In the

end, when she reached the point of 6*.075 and 1* .0625 per week my TSH

increased. Go figure. So I am taking .075 of eltroxin for something

different. I am sure this imbalance can't be helping my body and i know it

isn't helping me emotionally. My anxiety is right up there. And despite 2

different anti depressants taken simultaneously I am spinning down. (Yes I have

contacted the doctor and must get off the phone so he can call back.) I feel

somewhat as if I have been on a roller coaster for all this time! And so,

enough already. If this is it, the best I can expect, then tell me please. Yada

yada yada.

I will continue on my search for information on Hoffman's syndrome. Is there

another name?

Thanks again,

Kate

daisyelaine@... wrote:

> It's an erythrocyte sedimentation rate, which is also called a sed rate or a

> Westergren (for the method we use). In this test, we fill a narrow tube with

> blood to see how quickly the red cells settle in one hour. In inflammatory

> conditions and infections, the blood settles quickly and the sed rate is

> high. The test is helpful in ruling out and diagnosing connective tissue

> disorders, like rheumatoid arthritis. It's generally normal in Graves'

> disease.

>

>

>

>

[Guest guest]

Hi Kate,

The only name I know of for this condition is Hoffman's syndrome. did you go

to the www.throidmanager.org/thyroidbook.htm site. Check in the hypoT

chapter there.

I sympathize with how you feel. I was kept hypo for many years after RAI.

Once I started paying attention to what was going on, I realized I had many

options besides a token dose of levothyroxine. Don't give up until you're

feeling as good as can be.

I probably should mention too that fibromyalgia is associated with

hypothyroidism caused by RAI. A number of treated patients have it. Several

recent studies indicate that approprite thyroid hormone replacement can help

with this. Unfortunately, many people are kept hypo.

Also, the hyper symptoms you mention can be from associate nutritional

deficiencies. B vitamin and magnesium deficiencies can get me feeling hyper.

Some of your other meds can be interfering with thyroid hormone absorption.

Check that out in the thyroidmanager on line book too. Persistence seems to

be the key in regaining health after RAI.

[Guest guest]

Hi Mona,

I never heard of it specifically used for GO, but it does measure

inflammation and the congestive eye disorder is an inflammatory process. Good

going.

[Guest guest]

That makes sense, Elaine. It's my understanding that any trauma to the body is a trigger for Fibromyalgia, Lupus, Chronic Fatigue, MS, any of the autoimmune diseases, really. I've heard it several times. I don't know why thyroidism would be any different.

Donna

http://trak.to/lifewww.reliv.comTake control of your health!

Re: GD and Myasthenia gravis

Hi Kate,The only name I know of for this condition is Hoffman's syndrome. did you go to the www.throidmanager.org/thyroidbook.htm site. Check in the hypoT chapter there.I sympathize with how you feel. I was kept hypo for many years after RAI. Once I started paying attention to what was going on, I realized I had many options besides a token dose of levothyroxine. Don't give up until you're feeling as good as can be.I probably should mention too that fibromyalgia is associated with hypothyroidism caused by RAI. A number of treated patients have it. Several recent studies indicate that approprite thyroid hormone replacement can help with this. Unfortunately, many people are kept hypo. Also, the hyper symptoms you mention can be from associate nutritional deficiencies. B vitamin and magnesium deficiencies can get me feeling hyper. Some of your other meds can be interfering with thyroid hormone absorption. Check that out in the thyroidmanager on line book too. Persistence seems to be the key in regaining health after RAI.

[Guest guest]

Thanks very much for the wonderful reference. I hadn't happened onto that site

yet. Have had to cut holidays short because I'm so weak and sleep all the time.

Went to clinic today to get blood drawn. I could hardly get my act together to

get there. It's frightening.

I was checked for fibromyalgia by the same doctor who said once a while ago I

couldn't be hyper as I wasn't losing weight

I intend to plug my husband into that site before I go back to sleep.

Thanks for your consistantly wonderful help and thoughts.

Kate

daisyelaine@... wrote:

> Hi Kate,

> The only name I know of for this condition is Hoffman's syndrome. did you go

> to the www.throidmanager.org/thyroidbook.htm site. Check in the hypoT

> chapter there.

>

> I sympathize with how you feel. I was kept hypo for many years after RAI.

> Once I started paying attention to what was going on, I realized I had many

> options besides a token dose of levothyroxine. Don't give up until you're

> feeling as good as can be.

> I probably should mention too that fibromyalgia is associated with

> hypothyroidism caused by RAI. A number of treated patients have it. Several

> recent studies indicate that approprite thyroid hormone replacement can help

> with this. Unfortunately, many people are kept hypo.

> Also, the hyper symptoms you mention can be from associate nutritional

> deficiencies. B vitamin and magnesium deficiencies can get me feeling hyper.

> Some of your other meds can be interfering with thyroid hormone absorption.

> Check that out in the thyroidmanager on line book too. Persistence seems to

> be the key in regaining health after RAI.

>

>

>

>