Re: HYPERTHYROIDISM AND PTU

[Guest guest]

Only Time will tell what RAI dose to a body

Raven

Josie Weber wrote:

,

That's quite a long time to take PTU. I was wondering why

you haven't tried

any other kind of treatment? I took PTU for about 10 mos.

and just got RAI.

My condition was so progressed that the pills just kept

me stable and I

still had a large goiter. The endo said the only way to

get rid of the

goiter is to take RAI or have surgery. I chose RAI because

I don't like the

idea of surgery and I think that surgery leaves u open for other

problems.

Well best of luck to you.

Josie

>From: "" <esuark@...>

>Reply-hyperthyroidismegroups

><hyperthyroidismegroups>

>Subject: Re: HYPERTHYROIDISM AND PTU

>Date: Thu, 4 Nov 1999 19:48:55 -0500

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>I took PTU from December 95 to December 98. I also added

the herb

>silymarin

>(milk thistle). The endo had no problem with me adding

silymarin. I have

>had no liver problems from PTU. My endo worked with the

doctor that

>invented PTU, and said there were no long term problems and

in the old days

>some people took PTU for as long as 20 years (why was my question).

I'm

>sure that there are many things that you can do to mimimize

any potential

>harm from PTU. You are right to ask these questions.

>

>

>

> Re: HYPERTHYROIDISM AND PTU

>

>

> >> I AM STARTING TO WORRY ABOUT LONG TIME EFFECTS FROM PTU.

> >> THERE MUST BE SOMEONE OUT THERE WITH SAME THYROID WOES.

> >

> >Hi : There are long-term associations between PTU

and liver damage,

>bone

> >marrow loss, etc. Nasty stuff in the long term....

> >

> >Me.

> >

> >

> >--

> >"The kingdom of God is within you and all around you,

> >not in mansions of wood and stone.

> >

> >Split a piece of wood and I am there.

> >Lift a stone and you will find Me."

> >

> >The Gospel of

> >

> >

> >

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[Guest guest]

> I AM STARTING TO WORRY ABOUT LONG TIME EFFECTS FROM PTU.

> THERE MUST BE SOMEONE OUT THERE WITH SAME THYROID WOES.

Hi : There are long-term associations between PTU and liver damage, bone

marrow loss, etc. Nasty stuff in the long term....

Me.

--

" The kingdom of God is within you and all around you,

not in mansions of wood and stone.

Split a piece of wood and I am there.

Lift a stone and you will find Me. "

The Gospel of

[Guest guest]

I took PTU from December 95 to December 98. I also added the herb silymarin

(milk thistle). The endo had no problem with me adding silymarin. I have

had no liver problems from PTU. My endo worked with the doctor that

invented PTU, and said there were no long term problems and in the old days

some people took PTU for as long as 20 years (why was my question). I'm

sure that there are many things that you can do to mimimize any potential

harm from PTU. You are right to ask these questions.

Re: HYPERTHYROIDISM AND PTU

>> I AM STARTING TO WORRY ABOUT LONG TIME EFFECTS FROM PTU.

>> THERE MUST BE SOMEONE OUT THERE WITH SAME THYROID WOES.

>

>Hi : There are long-term associations between PTU and liver damage,

bone

>marrow loss, etc. Nasty stuff in the long term....

>

>Me.

>

>

>--

> " The kingdom of God is within you and all around you,

>not in mansions of wood and stone.

>

>Split a piece of wood and I am there.

>Lift a stone and you will find Me. "

>

>The Gospel of

>

>

>

>------------------------------------------------------------------------

>Click on Instant Credit Card Approval at

>http://clickhere./click/1271

>

>

>-- Talk to your group with your own voice!

>-- VoiceChatPage?listName=hyperthyroidism & m=1

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>

[Guest guest]

Hi ,

I am 41 and was diagnosed in 1982. It comes and goes. I only take the

medication when I am really bad. Dont know which is better - not taking the

tablets or having the side effects.

I tried not to get stressed I think that makes the situation worse.

regards

HYPERTHYROIDISM AND PTU

IS THERE ANYONE WHO HAS HYPER-T AND TAKES PTU FOR EIGHT YEARS OR MORE?

I AM A FEMALE 31 YEARS OLD AND WAS DIAGNOSED 9 YEARS AGO WITH HYPER-T

AND A GOITER.

I TAKE 50MG PTU A DAY, IT GOES UP AND DOWN LIKE A ROLLERCOASTER

SOMETIMES.

I CAN UP TO THREE OR FOUR TIMES THAT AMOUNT A DAY WHEN IT ACTS UP.

I AM FINALLY GOING FOR A SECOND OPINION ON NOV. 23.

I DON'T NOW IF ANY OTHER TREATMENT WILL HELP. I STARTING TO GET TIRED

OF HOW I AM FEELING LATELY.

WHY HAVEN'T I GONE FOR A SECOND OPINION, MY ENDO JUSTS WANTS TO TREAT

ME WITH MEDICATION.

I AM STARTING TO WORRY ABOUT LONG TIME EFFECTS FROM PTU.

THERE MUST BE SOMEONE OUT THERE WITH SAME THYROID WOES.

TRACY

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[Guest guest]

I've only been on PTU for 1 year. Started at 75mg/day now at

12.5mg/day. The Endo checks my liver with every blood test.

Wondered if anyone had a comment regarding PTU -> liver related ->

cholesterol.

I'm a runner and have always had normal Chol. (156) the two years

before Graves (119 before that) . Now I'm 210-225 and wonder if it is

because I'm

on PUT which affects the liver which affects chol.

Any comments?

" teresa lam " <teres-@...> wrote:

original article:hyperthyroidism/?start=29

65

> Hi ,

>

> I am 41 and was diagnosed in 1982. It comes and goes. I only take the

> medication when I am really bad. Dont know which is better - not

taking the

> tablets or having the side effects.

>

> I tried not to get stressed I think that makes the situation worse.

>

> regards

>

>

> HYPERTHYROIDISM AND PTU

>

>

> IS THERE ANYONE WHO HAS HYPER-T AND TAKES PTU FOR EIGHT YEARS OR MORE?

>

> I AM A FEMALE 31 YEARS OLD AND WAS DIAGNOSED 9 YEARS AGO WITH HYPER-T

> AND A GOITER.

> I TAKE 50MG PTU A DAY, IT GOES UP AND DOWN LIKE A ROLLERCOASTER

> SOMETIMES.

> I CAN UP TO THREE OR FOUR TIMES THAT AMOUNT A DAY WHEN IT ACTS UP.

> I AM FINALLY GOING FOR A SECOND OPINION ON NOV. 23.

> I DON'T NOW IF ANY OTHER TREATMENT WILL HELP. I STARTING TO GET TIRED

> OF HOW I AM FEELING LATELY.

> WHY HAVEN'T I GONE FOR A SECOND OPINION, MY ENDO JUSTS WANTS TO TREAT

> ME WITH MEDICATION.

> I AM STARTING TO WORRY ABOUT LONG TIME EFFECTS FROM PTU.

> THERE MUST BE SOMEONE OUT THERE WITH SAME THYROID WOES.

>

> TRACY

>

>

[Guest guest]

,

That's quite a long time to take PTU. I was wondering why you haven't tried

any other kind of treatment? I took PTU for about 10 mos. and just got RAI.

My condition was so progressed that the pills just kept me stable and I

still had a large goiter. The endo said the only way to get rid of the

goiter is to take RAI or have surgery. I chose RAI because I don't like the

idea of surgery and I think that surgery leaves u open for other problems.

Well best of luck to you.

Josie

>From: " " <esuark@...>

>Reply-hyperthyroidismegroups

><hyperthyroidismegroups>

>Subject: Re: HYPERTHYROIDISM AND PTU

>Date: Thu, 4 Nov 1999 19:48:55 -0500

>MIME-Version: 1.0

>From hyperthyroidism-return-2938-wjosie Thu Nov 04 16:53:13 1999

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>

>I took PTU from December 95 to December 98. I also added the herb

>silymarin

>(milk thistle). The endo had no problem with me adding silymarin. I have

>had no liver problems from PTU. My endo worked with the doctor that

>invented PTU, and said there were no long term problems and in the old days

>some people took PTU for as long as 20 years (why was my question). I'm

>sure that there are many things that you can do to mimimize any potential

>harm from PTU. You are right to ask these questions.

>

>

>

> Re: HYPERTHYROIDISM AND PTU

>

>

> >> I AM STARTING TO WORRY ABOUT LONG TIME EFFECTS FROM PTU.

> >> THERE MUST BE SOMEONE OUT THERE WITH SAME THYROID WOES.

> >

> >Hi : There are long-term associations between PTU and liver damage,

>bone

> >marrow loss, etc. Nasty stuff in the long term....

> >

> >Me.

> >

> >

> >--

> > " The kingdom of God is within you and all around you,

> >not in mansions of wood and stone.

> >

> >Split a piece of wood and I am there.

> >Lift a stone and you will find Me. "

> >

> >The Gospel of

> >

> >

> >

> >------------------------------------------------------------------------

> >Click on Instant Credit Card Approval at

> >http://clickhere./click/1271

> >

> >

> >-- Talk to your group with your own voice!

> >-- VoiceChatPage?listName=hyperthyroidism & m=1

> >

> >

>

>

>------------------------------------------------------------------------

>Click on Instant Credit Card Approval at

>http://clickhere./click/1271

>

>

>-- Create a poll/survey for your eGroup!

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>

______________________________________________________

[Guest guest]

> My endo worked with the doctor that invented PTU, and said there were no long

> term problems

Try these:

Propylthiouracil Induced Lung Disease

http://www.pneumotox.com/pneumotox/propylthiouracil.html

FrosstPropylthiouracilHyperthyroidism Therapy

http://www.rxmed.com/monographs/propyl.html

Fifty Years of Experience with Propylthiouracil-Associated Hepatotoxicity: What

Have We Learned?

http://endo.edoc.com/jcem/v82n6/1727-abs-frame.html

Alterations in Liver Biochemical Tests at Diagnosis and After Propylthiouracil

Therapy in Hyperthyroidism

http://www.tubitak.gov.tr/journals/medical/content/vol26/no6/95274.html

TAPAZOLE®

http://www.rxmed.com/monographs/tapazole.html

Carbimazole and the Thioamide/Thioureylene family

http://members.tripod.com/alkam/THIOAM.HTM

Antithyroid Drugs

http://the-thyroid-society.org/faq/24.html

That should do for a start....

Me.

[Guest guest]

Hi Josie

How do you feel after the RAI? They dont recommend that in Australia unless

you are 60+. I am scared of surgery too.

Re: HYPERTHYROIDISM AND PTU

>

>

> >> I AM STARTING TO WORRY ABOUT LONG TIME EFFECTS FROM PTU.

> >> THERE MUST BE SOMEONE OUT THERE WITH SAME THYROID WOES.

> >

> >Hi : There are long-term associations between PTU and liver damage,

>bone

> >marrow loss, etc. Nasty stuff in the long term....

> >

> >Me.

> >

> >

> >--

> > " The kingdom of God is within you and all around you,

> >not in mansions of wood and stone.

> >

> >Split a piece of wood and I am there.

> >Lift a stone and you will find Me. "

> >

> >The Gospel of

> >

> >

> >

> >------------------------------------------------------------------------

> >Click on Instant Credit Card Approval at

> >http://clickhere./click/1271

> >

> >

> >-- Talk to your group with your own voice!

> >-- VoiceChatPage?listName=hyperthyroidism & m=1

> >

> >

>

>

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