Guest guest Posted June 17, 2009 Report Share Posted June 17, 2009 Hi to the list: I planned a week-long trip to DC to lobby for the bill that Duncan wrote to all of us about; he said the best time to come would be the last two weeks in June. I made plane reservations, wrote to friends who agreed to let me stay with them, arranged for boarding for my two dogs and my cat. I wrote to my own congressman, Rep. Jim Oberstar, and got an appointment to see him. Bill said he would get to work making appointments for me to get in to see congressmen with medical backgrounds and those from Minnesota, but that was two weeks ago. I have not been able to get in touch with him, and as far as I can tell, no new legislation has been introduced, similar to HR 7299 which was introduced last year to provide HBOT treatment for iraq war veterans returning with TBI. Has anyone heard from Bill, or know what is going on? I have had to cancel my trip; I would feel like a fool going ahead with a trip at this point with no itinerary other than an appointment with my own Congressman--something I could do at home in Duluth, MN. It's very puzzling. I'm disappointed, as I hoped to be able to contribute in some way to getting HBOT treatment for veterans--a first step toward making it more available for the rest of us. By canceling, I'm avoiding some of the expenses of the trip. I still have to pay for the plane tickets, but at least I will get a credit, which I can use on NWA flight at a later date. I'm more than a little frustrated by the situation. I would like to think that Duncan is legitimate; he has a web site, and his posts here to the list have been appropriate. Perhaps someone on the list can speak to that who knows him. If not, at least I will not spend money needlessly on a fool's errand; however, if so, I'm worried about his health and whereabouts. Best regards, , MD TBI survivor From: <kjo649698verizon (DOT) net> Subject: [ ] Re: HBOT and DMSO injections medicaid Date: Tuesday, June 16, 2009, 10:45 PM My daughter is about to be treated for radiation damage in prep for sugery in the irradiated area. The doctor at the wound center in a major reputable hospital advised 90 min at 2.4ATA with 2 short air breaks (4 weeks of treatments before surgery, 2 weeks after). He said that 2.4 ATA is about the maximum for any wound-type protocol (i.e. not including treating divers for the bends), but it definitely depends upon the nature of the damage and the specifics of the patient. I hope that helps. > > Everyone got caught on the DMSO part of this message. What about the 1.7ATA?? > > , I am just another mother who has researched HBOT, but 1.7 sounds WAY TOO HIGH to me -- especially to start. Our son will start HBOT in Sept (90 days post stem cell re-infusion) and he will start at 1.4 or 1.5 and will probably not go higher than that, unless after many treatments he doesn't make any progress (and by many I mean 80 to 120 treatments). Can you explain why your doctor is suggesting 1.7 to start and where it is that you are going? Can you elaborate on what your son is being treated for? > > -- Jinger > > > > From: jenny.georgiou > Sent: Monday, June 15, 2009 7:08 AM > medicaid > Subject: [ ] HBOT and DMSO injections > > > > > > Dear All, > > We are going to start HBOT on my son next week. We are going to do 100% at 1.7 ATA 2 hours per day. The Clinic is also suggesting DMSO injections during the time (4 weeks) that we will be doing the therapy. > > My questions are : > > 1. Has anyone done DMSO with or without HBOT and what are your experiences ? > > 2. Does it interfere with the AC protocol (we are on DMSA/ALA) ? > > Love to hear everyones thoughts. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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