Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 At 3:09 PM -0400 5/16/06, Brown, Carolyn J. (CMS/SC) wrote: >Mr. Freels, > >Your e-mail was forwarded to the Atlanta for a >response. Please contact Argartha >Russel-Director Maternal Child Health regarding >the eligibility requirements. Phone number >404-657-9093. > >The DMA-6A form must be completed at >application and at the annual redetermination of >eligibility. >Clinical information obtained from the DMA-6A is >used in the assessment to determine level of >care. > >The child must require institutional level of >care provided in a hospital, nursing facility or >intermediate care facility for the mentally >retarded as defined in the Code of Federal >Regulations 435.225((1). > >A current care plan must be completed at >application, and at annual redetermination of >eligibility. Dear Ms Brown, Thank you for your reply. I am aware of Georgia's requirements for maintaining Beckett elgibility, but I'm not asking about what those requirements are, but instead I'm asking where and how those requirements originated and what requirements exist in other states that also provide the Beckett deeming waiver. Attached pdfs are the documents which govern the Beckett program according to Georgia Medicaid's subcontractor who decides Beckett elgibility. See 42 C.F.R. § 435.225, 42 C.F.R. § 409.33, 42 C.F.R. § 440.10, and 42 C.F.R. § 440.150. I do not believe requesting information from Argartha will be productive. You see, I spoke with Ms last week and she said the Beckett required paperwork was determined by the Georgia Dept of Human Resources (DHR), and she gave me the contact name of Dowd at DHR. I had two or three conversations with Mr Dowd who told me DHR was not in charge of establishing Beckett elgibility policy but that responsibility was the responsibility of the Georgia Dept of Community Health (DCH), and then he specifically said Argartha was in charge of Beckett--despite Ms 's statement to me that Mr. Dowd was responsible for Beckett. This was followed by an email response from Mr Dowd that was sent to him by DCH: >From: Dowd <bddowd@...> >Sent: May 10, 2006 9:15 AM >dfreels@... >Subject: Deeming Waiver Annual Review > >The answer to your question asked yesterday was >received from The Department of Community >Health. Please see information below provided >by The Department of Community Health Policy >Unit. > > " An annual redetermination of eligibility has >always been required for " all " long term care >Medicaid programs which includes the >Beckett program. > >Also, Mrs. just made an honest error in >stating DHR establishes the policy. DCH/DMA >eligibility unit established all eligibility >policy according to federal guidelines - an at >least annual redetermination is a federal >requirement. " > >If you have additional questions feel free to contact me. > > Dowd >OFI Project Administrator/Medicaid >2 Peachtree ST, NW Ste 21-494 >Atlanta, GA 30303 >PH: 404-657-3592 > In trying to learn where these annual paperwork requirements originated, I have gone back through my Beckett paperwork and found a statement from the Georgia Medical Care Foundation (http://www.gmcf.org)--a DCH subcontractor who actually determines Beckett elgibility--where they state " In accordance with the 42 C.F.R. § 435.225, your request for long-term services under the Georgia Medicaid program will be denied unless additional medical information can justify the need for institutional care. For your review, please find attached a copy of the Level of Care Criteria used for this determination. " 42 C.F.R. § 435.225 is found at http://www.findlaw.com/casecode/cfr.html where you enter " 42 " then " 435 " then " 225. " Significantly, it never states anywhere that annual reviews are required nor does it state that continuous and perpetual re-verification of permanent brain-injury is also required. Therefore it must be that each participating state is self-determining its own " Level of Care Criteria " (LCC). The GMCF document also references 42 C.F.R. § 409.33, 440.10, and 440.150. No where in these references is there a demand for annual reviews. Again, see attached. Since these individual state LCC's must be approved by CMS, and are therefore on file with CMS, I would like for you--CMS--to forward to me a copy of each Beckett participating state's LCC (Level of Care Criteria). Thank you. Freels 2948 Windfield Circle Tucker, GA 30084-6714 mailto:dfreels@... [Code of Federal Regulations] [Title 42, Volume 3] [Revised as of October 1, 2005] From the U.S. Government Printing Office via GPO Access [CITE: 42CFR435.225] [Page 124] TITLE 42--PUBLIC HEALTH CHAPTER IV--CENTERS FOR MEDICARE & MEDICAID SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES (CONTINUED) PART 435_ELIGIBILITY IN THE STATES, DISTRICT OF COLUMBIA, THE NORTHERN MARIANA ISLANDS, AND AMERICAN SAMOA--Table of Contents Subpart C_Options for Coverage as Categorically Needy Sec. 435.225 Individuals under age 19 who would be eligible for Medicaid if they were in a medical institution. (a) The agency may provide Medicaid to children 18 years of age or younger who qualify under section 1614(a) of the Act, who would be eligible for Medicaid if they were in a medical institution, and who are receiving, while living at home, medical care that would be provided in a medical institution. ( If the agency elects the option provided by paragraph (a) of this section, it must determine, in each case, that the following conditions are met: (1) The child requires the level of care provided in a hospital, SNF, or ICF. (2) It is appropriate to provide that level of care outside such an institution. (3) The estimated Medicaid cost of care outside an institution is no higher than the estimated Medicaid cost of appropriate institutional care. © The agency must specify in its State plan the method by which it determines the cost-effectiveness of caring for disabled children at home. [55 FR 48608, Nov. 21, 1990] the elgibility requirements At 4:15 PM -0400 5/15/06, Hain, Ginni M. (CMS/CMSO) wrote: >Mr. Freels, Good afternoon! > >Gale Arden asked me to find the right person to answer your excellent >questions below. That person is Bob Tomlinson, copied here. Bob has >many areas of expertise, among them the requirements for the >redetermination process. He will be getting back to you directly with >answers. Thanks for asking, and we hope to be able to clarify in the >near future. > >Bob - Good afternoon! I talked with Marty about this and he tells me >you're very busy with the DRA provisions these days, but that we're >hopeful you can work in an answer to Mr. Freels' questions below. We >would appreciate any help you can give him in understanding the >redetermination requirements. Would you please copy me on your response >so we can learn, too? Thanks! > > >Ginni Hain >Director >Division of Eligibility, Enrollment and Outreach >Disabled and Elderly Health Programs Group >Center for Medicaid and State Operations >Centers for Medicare and Medicaid Services >7500 Security Blvd. >Baltimore, MD 21244 >410-786-6036 > >>>>> Beckett elgibility question >>>>> >>>>>Ms Arden, >>>>> >>>>>I called last week and left you a voice mail but haven't heard back >>>>>yet so thought I would follow-up with an email. >>>>> >>>>>I understand you are the Director of the Disabled, Elderly Health >>>>>Programs Group (http://ds1.psc.dhhs.gov/hhsdir/eeKey.asp?Key=31216) >>>>>and that your responsibilities include overseeing the Beckett >>>>>deeming waiver and other waiver programs. >>>>> >>>>>If you do not have oversight of the Beckett deeming >>>waiver, can >>>>>you please tell me who does and/or forward this email to them. >>>>> >>>>>My son Jimmy is a Georgia Medicaid recipient via the Beckett >>>>>deeming waiver. He is twelve years old and suffers from mid-brain >>>>>injury that has impaired his mobility, balance, and speech. He was >>>>>diagnosed with cerebral palsy just before his first birthday. > >>>> >>>>>According to neurologists cerebral palsy is a permanent disability >>>>>from which it is impossible to recover and from which it is also >>>>>impossible to make substantial improvements in motor function. >>>>> >>>>>Despite this, we are annually required by Georgia Medicaid to >>>>>re-document through a lengthy process the fact that he still has a >>>>>brain-injury and that his abilities are so limited that he is still >>>>>classified as disabled. This documentation mandated by the state >>>>>includes written statements from his physician(s), therapists, and >>>>>copies of his IEP (Individualized Education Plan) which is part of >>>>>IDEA (Individuals with Disabilities Education Act). We easily >>>>>compiled nearly 100 pages of documentation during his last >>>>>re-elgibility submission, which is typical not only for Jimmy but >>>>>thousands of other Georgia children with impaired neurological >>>>>functioning. >>>>> >>>>>If the physicians credentialed with expertise have declared him >>>>>unable to improve, why then are we required to re-invent the wheel >>>>>every twelve months? This seems like a waste of valuable time and >>>>>resources for all concerned: the child, the parents, the >>therapists, >>>>>the teachers, the special education people, the doctor(s), and the >>>>>Medicaid reviewers. >>>>> >>>>>Is this annual requirement to re-document disability a mandate from >>>>>you, your office, or CMS? >>>>> >>>>>What annual requirements do other states have to maintain >>elgibilty? > >>>>What oversight do you have in those states? >>>>> >>>>>If the Georgia requirements do originate with you, your office, or >>>>>CMS, could you please send me documentation of this >>requirement? You >>>>>can send me pdfs. >>>>> >>>>Thank you for your help and assistance. ---------- -- Freels 2948 Windfield Circle Tucker, GA 30084-6714 770-491-6776 (phone) 404-725-4520 (cell) 815-366-7962 (fax) mailto:dfreels@... http://www.freelanceforum.org/df Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 At 3:09 PM -0400 5/16/06, Brown, Carolyn J. (CMS/SC) wrote: >Mr. Freels, > >Your e-mail was forwarded to the Atlanta for a >response. Please contact Argartha >Russel-Director Maternal Child Health regarding >the eligibility requirements. Phone number >404-657-9093. > >The DMA-6A form must be completed at >application and at the annual redetermination of >eligibility. >Clinical information obtained from the DMA-6A is >used in the assessment to determine level of >care. > >The child must require institutional level of >care provided in a hospital, nursing facility or >intermediate care facility for the mentally >retarded as defined in the Code of Federal >Regulations 435.225((1). > >A current care plan must be completed at >application, and at annual redetermination of >eligibility. Dear Ms Brown, Thank you for your reply. I am aware of Georgia's requirements for maintaining Beckett elgibility, but I'm not asking about what those requirements are, but instead I'm asking where and how those requirements originated and what requirements exist in other states that also provide the Beckett deeming waiver. Attached pdfs are the documents which govern the Beckett program according to Georgia Medicaid's subcontractor who decides Beckett elgibility. See 42 C.F.R. § 435.225, 42 C.F.R. § 409.33, 42 C.F.R. § 440.10, and 42 C.F.R. § 440.150. I do not believe requesting information from Argartha will be productive. You see, I spoke with Ms last week and she said the Beckett required paperwork was determined by the Georgia Dept of Human Resources (DHR), and she gave me the contact name of Dowd at DHR. I had two or three conversations with Mr Dowd who told me DHR was not in charge of establishing Beckett elgibility policy but that responsibility was the responsibility of the Georgia Dept of Community Health (DCH), and then he specifically said Argartha was in charge of Beckett--despite Ms 's statement to me that Mr. Dowd was responsible for Beckett. This was followed by an email response from Mr Dowd that was sent to him by DCH: >From: Dowd <bddowd@...> >Sent: May 10, 2006 9:15 AM >dfreels@... >Subject: Deeming Waiver Annual Review > >The answer to your question asked yesterday was >received from The Department of Community >Health. Please see information below provided >by The Department of Community Health Policy >Unit. > > " An annual redetermination of eligibility has >always been required for " all " long term care >Medicaid programs which includes the >Beckett program. > >Also, Mrs. just made an honest error in >stating DHR establishes the policy. DCH/DMA >eligibility unit established all eligibility >policy according to federal guidelines - an at >least annual redetermination is a federal >requirement. " > >If you have additional questions feel free to contact me. > > Dowd >OFI Project Administrator/Medicaid >2 Peachtree ST, NW Ste 21-494 >Atlanta, GA 30303 >PH: 404-657-3592 > In trying to learn where these annual paperwork requirements originated, I have gone back through my Beckett paperwork and found a statement from the Georgia Medical Care Foundation (http://www.gmcf.org)--a DCH subcontractor who actually determines Beckett elgibility--where they state " In accordance with the 42 C.F.R. § 435.225, your request for long-term services under the Georgia Medicaid program will be denied unless additional medical information can justify the need for institutional care. For your review, please find attached a copy of the Level of Care Criteria used for this determination. " 42 C.F.R. § 435.225 is found at http://www.findlaw.com/casecode/cfr.html where you enter " 42 " then " 435 " then " 225. " Significantly, it never states anywhere that annual reviews are required nor does it state that continuous and perpetual re-verification of permanent brain-injury is also required. Therefore it must be that each participating state is self-determining its own " Level of Care Criteria " (LCC). The GMCF document also references 42 C.F.R. § 409.33, 440.10, and 440.150. No where in these references is there a demand for annual reviews. Again, see attached. Since these individual state LCC's must be approved by CMS, and are therefore on file with CMS, I would like for you--CMS--to forward to me a copy of each Beckett participating state's LCC (Level of Care Criteria). Thank you. Freels 2948 Windfield Circle Tucker, GA 30084-6714 mailto:dfreels@... [Code of Federal Regulations] [Title 42, Volume 3] [Revised as of October 1, 2005] From the U.S. Government Printing Office via GPO Access [CITE: 42CFR435.225] [Page 124] TITLE 42--PUBLIC HEALTH CHAPTER IV--CENTERS FOR MEDICARE & MEDICAID SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES (CONTINUED) PART 435_ELIGIBILITY IN THE STATES, DISTRICT OF COLUMBIA, THE NORTHERN MARIANA ISLANDS, AND AMERICAN SAMOA--Table of Contents Subpart C_Options for Coverage as Categorically Needy Sec. 435.225 Individuals under age 19 who would be eligible for Medicaid if they were in a medical institution. (a) The agency may provide Medicaid to children 18 years of age or younger who qualify under section 1614(a) of the Act, who would be eligible for Medicaid if they were in a medical institution, and who are receiving, while living at home, medical care that would be provided in a medical institution. ( If the agency elects the option provided by paragraph (a) of this section, it must determine, in each case, that the following conditions are met: (1) The child requires the level of care provided in a hospital, SNF, or ICF. (2) It is appropriate to provide that level of care outside such an institution. (3) The estimated Medicaid cost of care outside an institution is no higher than the estimated Medicaid cost of appropriate institutional care. © The agency must specify in its State plan the method by which it determines the cost-effectiveness of caring for disabled children at home. [55 FR 48608, Nov. 21, 1990] the elgibility requirements At 4:15 PM -0400 5/15/06, Hain, Ginni M. (CMS/CMSO) wrote: >Mr. Freels, Good afternoon! > >Gale Arden asked me to find the right person to answer your excellent >questions below. That person is Bob Tomlinson, copied here. Bob has >many areas of expertise, among them the requirements for the >redetermination process. He will be getting back to you directly with >answers. Thanks for asking, and we hope to be able to clarify in the >near future. > >Bob - Good afternoon! I talked with Marty about this and he tells me >you're very busy with the DRA provisions these days, but that we're >hopeful you can work in an answer to Mr. Freels' questions below. We >would appreciate any help you can give him in understanding the >redetermination requirements. Would you please copy me on your response >so we can learn, too? Thanks! > > >Ginni Hain >Director >Division of Eligibility, Enrollment and Outreach >Disabled and Elderly Health Programs Group >Center for Medicaid and State Operations >Centers for Medicare and Medicaid Services >7500 Security Blvd. >Baltimore, MD 21244 >410-786-6036 > >>>>> Beckett elgibility question >>>>> >>>>>Ms Arden, >>>>> >>>>>I called last week and left you a voice mail but haven't heard back >>>>>yet so thought I would follow-up with an email. >>>>> >>>>>I understand you are the Director of the Disabled, Elderly Health >>>>>Programs Group (http://ds1.psc.dhhs.gov/hhsdir/eeKey.asp?Key=31216) >>>>>and that your responsibilities include overseeing the Beckett >>>>>deeming waiver and other waiver programs. >>>>> >>>>>If you do not have oversight of the Beckett deeming >>>waiver, can >>>>>you please tell me who does and/or forward this email to them. >>>>> >>>>>My son Jimmy is a Georgia Medicaid recipient via the Beckett >>>>>deeming waiver. He is twelve years old and suffers from mid-brain >>>>>injury that has impaired his mobility, balance, and speech. He was >>>>>diagnosed with cerebral palsy just before his first birthday. > >>>> >>>>>According to neurologists cerebral palsy is a permanent disability >>>>>from which it is impossible to recover and from which it is also >>>>>impossible to make substantial improvements in motor function. >>>>> >>>>>Despite this, we are annually required by Georgia Medicaid to >>>>>re-document through a lengthy process the fact that he still has a >>>>>brain-injury and that his abilities are so limited that he is still >>>>>classified as disabled. This documentation mandated by the state >>>>>includes written statements from his physician(s), therapists, and >>>>>copies of his IEP (Individualized Education Plan) which is part of >>>>>IDEA (Individuals with Disabilities Education Act). We easily >>>>>compiled nearly 100 pages of documentation during his last >>>>>re-elgibility submission, which is typical not only for Jimmy but >>>>>thousands of other Georgia children with impaired neurological >>>>>functioning. >>>>> >>>>>If the physicians credentialed with expertise have declared him >>>>>unable to improve, why then are we required to re-invent the wheel >>>>>every twelve months? This seems like a waste of valuable time and >>>>>resources for all concerned: the child, the parents, the >>therapists, >>>>>the teachers, the special education people, the doctor(s), and the >>>>>Medicaid reviewers. >>>>> >>>>>Is this annual requirement to re-document disability a mandate from >>>>>you, your office, or CMS? >>>>> >>>>>What annual requirements do other states have to maintain >>elgibilty? > >>>>What oversight do you have in those states? >>>>> >>>>>If the Georgia requirements do originate with you, your office, or >>>>>CMS, could you please send me documentation of this >>requirement? You >>>>>can send me pdfs. >>>>> >>>>Thank you for your help and assistance. -- Freels 2948 Windfield Circle Tucker, GA 30084-6714 770-491-6776 (phone) 404-725-4520 (cell) 815-366-7962 (fax) mailto:dfreels@... http://www.freelanceforum.org/df Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 Amy you are in Nebraska right? We lived there for 10 years and our son had the waiver for the last couple and I had a good friend who had a son with CP. Both of our kids got on waiver at the same time due to having g tubes placed at the same time. Without the tube my friends son didn't qualify and he was in a wheel chair and had more issues then my son! Not sure if that helps you any! Sam 6 Cvid, GSD Sent from my BlackBerry Smartphone provided by Alltel Beckett program Hi everyone, I was wondering if anyone has been approved for the Beckett Program with a PIDD and no other serious issues? I have been told to see if Nick qualifies but just get put on hold at the DHHS office. Nick has CVID, Asthma, Reflux, IBS for his main dx's. I am not sure if that is enough for a qualification since it says that it is for kids who would normally be institutionalized. Anyone here have the waiver? Amy, mom to Nick 6 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 Thanks , I wish I would have known about the program when Nick was tube fed and on TPN. I called medicaid begging for help and was turned away back then. I guess you just have to know the right thing to ask for, huh? Frustrating.. Amy Beckett program Hi everyone, I was wondering if anyone has been approved for the Beckett Program with a PIDD and no other serious issues? I have been told to see if Nick qualifies but just get put on hold at the DHHS office. Nick has CVID, Asthma, Reflux, IBS for his main dx's. I am not sure if that is enough for a qualification since it says that it is for kids who would normally be institutionalized. Anyone here have the waiver? Amy, mom to Nick 6 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 Yes it took many phone calls to get to the right program! They almost seem to hide it! I actually got Sam on it only because they had sent him to headstart and said they would have to evaluate him and the person I spoke with was so frustrated for me that she helped me get through it! Now if his ibs or anything like that is uncontroled you might qualify! People with uncontrolled diabetes can qualify! So might want to just yet anyway! Sent from my BlackBerry Smartphone provided by Alltel Re: Beckett program Thanks , I wish I would have known about the program when Nick was tube fed and on TPN. I called medicaid begging for help and was turned away back then. I guess you just have to know the right thing to ask for, huh? Frustrating.. Amy Beckett program Hi everyone, I was wondering if anyone has been approved for the Beckett Program with a PIDD and no other serious issues? I have been told to see if Nick qualifies but just get put on hold at the DHHS office. Nick has CVID, Asthma, Reflux, IBS for his main dx's. I am not sure if that is enough for a qualification since it says that it is for kids who would normally be institutionalized. Anyone here have the waiver? Amy, mom to Nick 6 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 It really depends on the state that you are in. They are VERY different in each state. Here in OK there is a max of medical bills of $40k per year. Since my son's are more than that he did not qualify. Weird huh?? But that is all the legislature would put up for the program. BARBIE ________________________________ From: Amy <mom2lilnick@...> Sent: Tue, October 13, 2009 9:11:14 AM Subject: Beckett program Hi everyone, I was wondering if anyone has been approved for the Beckett Program with a PIDD and no other serious issues? I have been told to see if Nick qualifies but just get put on hold at the DHHS office. Nick has CVID, Asthma, Reflux, IBS for his main dx's. I am not sure if that is enough for a qualification since it says that it is for kids who would normally be institutionalized. Anyone here have the waiver? Amy, mom to Nick 6 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 I Live in South Carolina. Blake had been on Beckett Waiver from the age of 3 to the age of 15(when SSI approved him right off the cuff when left the whole scene because he could not deal with Blake's medical issues) At the time of getting approved, we underwent all kinds of meetings & had to prove that the cost of caring for Blake at home would be less that putting him in an institution. He had to meet certain criteria....they needed to make sure that all other agencies would NOT be better off to care for the child.Not only did Blake have to endure these people prodding but so did & myself!!!! We had to prove to the agencies that we were fit and able parents to care for this child....who by the way did not meet any other agencies approval except for the Intermediate nursing care through DHEC. We even had to have a physical done through Vocational Rehabilitation to have them say that " He could function as an adult with all of his ongoing issues, in the work force. " What....he was 3 yrs. old......they believed that with severe asthma, lung disease, Immune Dysfunctions, feeding tube and he could not even talk yet......that he could go to work!!!! I was furious.....and this is the key....if you get denied....go at them again in an appeal!!!! They want you to " fight for the right of the child " . I went through the court system & got a darn good judge...... He understood the therapy, the tube feeding, the child not being able to breathe without the use of a nebulizer....HE DID understand......He has a son just like Blake....but he admitted his son was NOT as bad as Blake & he told the Vocational worker they needed to adopt a program for the children who " may not make it to adult hood " ....which is what he said may be Blake's case alone!!!! We were approved. Amy doesn't you little one have Mito....I would think that alone qualifies him....i have a friend who has a 3 yr. old & he is on KB because of his mito.....KB is based soley on your child's income!! Good Luck Mom to Blake The Greatest Adventure of MY Lifetime!!!! " Children are like butterflies in the wind. Some fly higher than others, BUT each one flies the best they can!!!! " From: Amy <mom2lilnick@...> Subject: Beckett program Date: Tuesday, October 13, 2009, 10:11 AM Hi everyone, I was wondering if anyone has been approved for the Beckett Program with a PIDD and no other serious issues? I have been told to see if Nick qualifies but just get put on hold at the DHHS office. Nick has CVID, Asthma, Reflux, IBS for his main dx's. I am not sure if that is enough for a qualification since it says that it is for kids who would normally be institutionalized. Anyone here have the waiver? Amy, mom to Nick 6 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 Thanks .. No, Nick doesn't have mito. He does have some weird things going on with his muscles and the enzymes that go with those, but I don't think it is bad enough to even look at mito. Beckett program Date: Tuesday, October 13, 2009, 10:11 AM Hi everyone, I was wondering if anyone has been approved for the Beckett Program with a PIDD and no other serious issues? I have been told to see if Nick qualifies but just get put on hold at the DHHS office. Nick has CVID, Asthma, Reflux, IBS for his main dx's. I am not sure if that is enough for a qualification since it says that it is for kids who would normally be institutionalized. Anyone here have the waiver? Amy, mom to Nick 6 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 Thanks .. No, Nick doesn't have mito. He does have some weird things going on with his muscles and the enzymes that go with those, but I don't think it is bad enough to even look at mito. Beckett program Date: Tuesday, October 13, 2009, 10:11 AM Hi everyone, I was wondering if anyone has been approved for the Beckett Program with a PIDD and no other serious issues? I have been told to see if Nick qualifies but just get put on hold at the DHHS office. Nick has CVID, Asthma, Reflux, IBS for his main dx's. I am not sure if that is enough for a qualification since it says that it is for kids who would normally be institutionalized. Anyone here have the waiver? Amy, mom to Nick 6 Quote Link to comment Share on other sites More sharing options...
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