Guest guest Posted December 31, 2005 Report Share Posted December 31, 2005 Darin- Her spirit flows through your kindness extended to others. One day you will be with her and see how she is living a better life. Best wishes for your strength and peace in 2006. sue Darin <Bry8825@...> wrote: It has been two years since Kaltyn past and everyday I run into another family that is having trouble getting the services they need for there children. One of them being the MDCp or Katy Beckett waiver. I have one child that I have been fighting for for some time. She is a small girl and God I love her dearly. her family is very dedicated to her. Well Recently I decided January 1st I will be forming a organization to help families with these crisis. It came to me the other nite I have to get involved the time of sitting back is over. We will call the organization Angels fighting for Disability Rights. It will be in Memory of Kaltyn Katyn Lamb Bruce and Little Giovani and all the other special children that made such a impact on my life the last few years. If I left someone out Im sorry just could not remember everyone at the moment. What Our priamry goal will be is first to make sure the families get qualified for MDCP or Kalty Beckett. Then we will help the families look at the services they have to see if there is something that should be covered that is not. Try ot releave some of the finiancial burdens that lay upon them. Many of you don't no but in January of 2005 I was at the lowest point in my life I felt that I had done nothing since Kaltyns passing in her long legacy that she left behind for me to follow. I tried to take my own life. I never told anyone about this but now that Im ok I thinks it's ok. I decided to move forward and let nothing stand in my way. One day I will open a center that is my goal but in the meantime I will be building this organization to help families. In the last two years we have helped over 20 to 30 families qualify for MDCP and other services without a agency or organization to help fight. So I no if we put a name behind it we will go far. My life is at a turning point I had a choice to make and Im making that choice. I moving on in the name of those childrent hat have passed and those that are still standing fighting the fight. We will not fail. Some wise man called me the other day and shed some light on what is happening in my life. I belive it . There has been great sadness in my family the last few years. They felt is was a spiritual attack by satan himself trying to stop me from moving forward to help these kid's. Call it what you want but I do belive it. There may be some outlandish remarks made by some from me saying that but I tell you. The only way to beat this thing is head on face your fears and move on. If anyone is interested is helping with this your free to contact me. We have confirmation from a few places that will allow us to have big benifits to raise money for the foundation. Many have asked why my wife does not travel with me when I go out of town. Well many of you don't no that she has a siorder called Late onset 21 Hydroylase deficency. She takes alot of medication. The disorder causes her to gain weight aroud her midsecction and she is very emabarasesd by it. There are other issues as well. However she is the most levelheaded one of our family and is fighting as much as I am for the kid's. She is the finacial smart one of outr family. She is a real trooper and is my life. Many don'e see that because she is not with me alot. But she is my rock my strength. We look forward to the new year and the new foundation that is comming to birth. Please pray for the child I was telling you about we have fought for some time to get her on MDCp the state is really fighting this one. By the way Im doing fine and Im more geared in the right direction now more than ever. I have not yet began to fight for our kid's. We only had one child but there are more out there that need our help that is why God only gave us one. He knew I had many more out there that needed help. Darin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2005 Report Share Posted December 31, 2005 I love to hear of your dedication to these children. You are very special. Darin <Bry8825@...> wrote: It has been two years since Kaltyn past and everyday I run into another family that is having trouble getting the services they need for there children. One of them being the MDCp or Katy Beckett waiver. I have one child that I have been fighting for for some time. She is a small girl and God I love her dearly. her family is very dedicated to her. Well Recently I decided January 1st I will be forming a organization to help families with these crisis. It came to me the other nite I have to get involved the time of sitting back is over. We will call the organization Angels fighting for Disability Rights. It will be in Memory of Kaltyn Katyn Lamb Bruce and Little Giovani and all the other special children that made such a impact on my life the last few years. If I left someone out Im sorry just could not remember everyone at the moment. What Our priamry goal will be is first to make sure the families get qualified for MDCP or Kalty Beckett. Then we will help the families look at the services they have to see if there is something that should be covered that is not. Try ot releave some of the finiancial burdens that lay upon them. Many of you don't no but in January of 2005 I was at the lowest point in my life I felt that I had done nothing since Kaltyns passing in her long legacy that she left behind for me to follow. I tried to take my own life. I never told anyone about this but now that Im ok I thinks it's ok. I decided to move forward and let nothing stand in my way. One day I will open a center that is my goal but in the meantime I will be building this organization to help families. In the last two years we have helped over 20 to 30 families qualify for MDCP and other services without a agency or organization to help fight. So I no if we put a name behind it we will go far. My life is at a turning point I had a choice to make and Im making that choice. I moving on in the name of those childrent hat have passed and those that are still standing fighting the fight. We will not fail. Some wise man called me the other day and shed some light on what is happening in my life. I belive it . There has been great sadness in my family the last few years. They felt is was a spiritual attack by satan himself trying to stop me from moving forward to help these kid's. Call it what you want but I do belive it. There may be some outlandish remarks made by some from me saying that but I tell you. The only way to beat this thing is head on face your fears and move on. If anyone is interested is helping with this your free to contact me. We have confirmation from a few places that will allow us to have big benifits to raise money for the foundation. Many have asked why my wife does not travel with me when I go out of town. Well many of you don't no that she has a siorder called Late onset 21 Hydroylase deficency. She takes alot of medication. The disorder causes her to gain weight aroud her midsecction and she is very emabarasesd by it. There are other issues as well. However she is the most levelheaded one of our family and is fighting as much as I am for the kid's. She is the finacial smart one of outr family. She is a real trooper and is my life. Many don'e see that because she is not with me alot. But she is my rock my strength. We look forward to the new year and the new foundation that is comming to birth. Please pray for the child I was telling you about we have fought for some time to get her on MDCp the state is really fighting this one. By the way Im doing fine and Im more geared in the right direction now more than ever. I have not yet began to fight for our kid's. We only had one child but there are more out there that need our help that is why God only gave us one. He knew I had many more out there that needed help. Darin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2005 Report Share Posted December 31, 2005 Thak you so mcuh Sue I really apreciate it. I no she is living a better life. Her loves flows thorugh me everyday guideing me in all that I do. I want you to no your encouragement helps me and you will never no how much it is apreciated. i look at you at times as famly. I don't really no you but when I read your post it is like having a sister that i never had. Thanks for being there. Darin/ Re: [ ] A new Start......... > Darin- Her spirit flows through your kindness extended to others. One day > you will be with her and see how she is living a better life. Best wishes > for your strength and peace in 2006. sue > > Darin <Bry8825@...> wrote: It has been two years since Kaltyn > past and everyday I run into another family that is having trouble getting > the services they need for there children. One of them being the MDCp or > Katy Beckett waiver. I have one child that I have been fighting for for > some time. She is a small girl and God I love her dearly. her family is > very dedicated to her. > > Well Recently I decided January 1st I will be forming a organization to > help families with these crisis. It came to me the other nite I have to > get involved the time of sitting back is over. We will call the > organization Angels fighting for Disability Rights. It will be in Memory > of Kaltyn Katyn Lamb Bruce and Little Giovani and all the > other special children that made such a impact on my life the last few > years. If I left someone out Im sorry just could not remember everyone at > the moment. > > What Our priamry goal will be is first to make sure the families get > qualified for MDCP or Kalty Beckett. Then we will help the families look > at the services they have to see if there is something that should be > covered that is not. Try ot releave some of the finiancial burdens that > lay upon them. > > Many of you don't no but in January of 2005 I was at the lowest point in > my life I felt that I had done nothing since Kaltyns passing in her long > legacy that she left behind for me to follow. I tried to take my own life. > I never told anyone about this but now that Im ok I thinks it's ok. > > I decided to move forward and let nothing stand in my way. One day I will > open a center that is my goal but in the meantime I will be building this > organization to help families. > > In the last two years we have helped over 20 to 30 families qualify for > MDCP and other services without a agency or organization to help fight. So > I no if we put a name behind it we will go far. > > My life is at a turning point I had a choice to make and Im making that > choice. I moving on in the name of those childrent hat have passed and > those that are still standing fighting the fight. We will not fail. Some > wise man called me the other day and shed some light on what is happening > in my life. I belive it . There has been great sadness in my family the > last few years. They felt is was a spiritual attack by satan himself > trying to stop me from moving forward to help these kid's. Call it what > you want but I do belive it. > > There may be some outlandish remarks made by some from me saying that but > I tell you. The only way to beat this thing is head on face your fears and > move on. > > If anyone is interested is helping with this your free to contact me. We > have confirmation from a few places that will allow us to have big > benifits to raise money for the foundation. > > Many have asked why my wife does not travel with me when I go out of town. > Well many of you don't no that she has a siorder called Late onset 21 > Hydroylase deficency. She takes alot of medication. The disorder causes > her to gain weight aroud her midsecction and she is very emabarasesd by > it. There are other issues as well. > > > However she is the most levelheaded one of our family and is fighting as > much as I am for the kid's. She is the finacial smart one of outr family. > She is a real trooper and is my life. Many don'e see that because she is > not with me alot. But she is my rock my strength. > > We look forward to the new year and the new foundation that is comming to > birth. Please pray for the child I was telling you about we have fought > for some time to get her on MDCp the state is really fighting this one. > > > By the way Im doing fine and Im more geared in the right direction now > more than ever. I have not yet began to fight for our kid's. We only had > one child but there are more out there that need our help that is why God > only gave us one. He knew I had many more out there that needed help. > > Darin > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2005 Report Share Posted December 31, 2005 I tried to reach today on the MDCp have her call me. I was working on her cituation today and was talking to some folks in Austin. After the first I may be taking a trip to austiin on her behalf. I kinda went off on them today when I told them how long we waited to get Kaltyn on MDCp and 4 months after being on the program we lost her. I told them desrves time to spend with her child and she can't because she is allways being a full time caregiver she needs help. Darin Re: [ ] A new Start......... I love to hear of your dedication to these children. You are very special. Darin <Bry8825@...> wrote: It has been two years since Kaltyn past and everyday I run into another family that is having trouble getting the services they need for there children. One of them being the MDCp or Katy Beckett waiver. I have one child that I have been fighting for for some time. She is a small girl and God I love her dearly. her family is very dedicated to her. Well Recently I decided January 1st I will be forming a organization to help families with these crisis. It came to me the other nite I have to get involved the time of sitting back is over. We will call the organization Angels fighting for Disability Rights. It will be in Memory of Kaltyn Katyn Lamb Bruce and Little Giovani and all the other special children that made such a impact on my life the last few years. If I left someone out Im sorry just could not remember everyone at the moment. What Our priamry goal will be is first to make sure the families get qualified for MDCP or Kalty Beckett. Then we will help the families look at the services they have to see if there is something that should be covered that is not. Try ot releave some of the finiancial burdens that lay upon them. Many of you don't no but in January of 2005 I was at the lowest point in my life I felt that I had done nothing since Kaltyns passing in her long legacy that she left behind for me to follow. I tried to take my own life. I never told anyone about this but now that Im ok I thinks it's ok. I decided to move forward and let nothing stand in my way. One day I will open a center that is my goal but in the meantime I will be building this organization to help families. In the last two years we have helped over 20 to 30 families qualify for MDCP and other services without a agency or organization to help fight. So I no if we put a name behind it we will go far. My life is at a turning point I had a choice to make and Im making that choice. I moving on in the name of those childrent hat have passed and those that are still standing fighting the fight. We will not fail. Some wise man called me the other day and shed some light on what is happening in my life. I belive it . There has been great sadness in my family the last few years. They felt is was a spiritual attack by satan himself trying to stop me from moving forward to help these kid's. Call it what you want but I do belive it. There may be some outlandish remarks made by some from me saying that but I tell you. The only way to beat this thing is head on face your fears and move on. If anyone is interested is helping with this your free to contact me. We have confirmation from a few places that will allow us to have big benifits to raise money for the foundation. Many have asked why my wife does not travel with me when I go out of town. Well many of you don't no that she has a siorder called Late onset 21 Hydroylase deficency. She takes alot of medication. The disorder causes her to gain weight aroud her midsecction and she is very emabarasesd by it. There are other issues as well. However she is the most levelheaded one of our family and is fighting as much as I am for the kid's. She is the finacial smart one of outr family. She is a real trooper and is my life. Many don'e see that because she is not with me alot. But she is my rock my strength. We look forward to the new year and the new foundation that is comming to birth. Please pray for the child I was telling you about we have fought for some time to get her on MDCp the state is really fighting this one. By the way Im doing fine and Im more geared in the right direction now more than ever. I have not yet began to fight for our kid's. We only had one child but there are more out there that need our help that is why God only gave us one. He knew I had many more out there that needed help. Darin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2006 Report Share Posted January 1, 2006 Darin- we ALL struggle with the challenges of parenting and guiding a special disabled child. The internet connections are my greatest comfort, motivation, and encouragement. I learn and apply ideas from other parents and we learn a more deep connection than parents of normal children. The intimacy that I experience with these parents is far greater than that of parents of my normal child. Parents can discuss how different marriage is than single life and how we are drawn more to others. Having lost a child is a leap beyond most people's journey through life at your age. My husband and I started to see a counselor and we are just beginning to unpeal the layers. I get questioned by the counselor about my following things on the internet and him explaining that there is so much out there that can be Snake and Oil sales. I have copied a couple of medical research articles to show him next time about hbot. It is hard to be ahead developmentally of others and waiting for my husband to get where I am. I know that these sites are a great source of motiviation for me. Hang in there and you will eventually hit a place that the realization of your value to others now is due to the struggle you encountered and grew in awareness of others. The bottom line is that we are made to love oneanother. I'll pray for you. Sue Darin <Bry8825@...> wrote: Thak you so mcuh Sue I really apreciate it. I no she is living a better life. Her loves flows thorugh me everyday guideing me in all that I do. I want you to no your encouragement helps me and you will never no how much it is apreciated. i look at you at times as famly. I don't really no you but when I read your post it is like having a sister that i never had. Thanks for being there. Darin/ Re: [ ] A new Start......... > Darin- Her spirit flows through your kindness extended to others. One day > you will be with her and see how she is living a better life. Best wishes > for your strength and peace in 2006. sue > > Darin <Bry8825@...> wrote: It has been two years since Kaltyn > past and everyday I run into another family that is having trouble getting > the services they need for there children. One of them being the MDCp or > Katy Beckett waiver. I have one child that I have been fighting for for > some time. She is a small girl and God I love her dearly. her family is > very dedicated to her. > > Well Recently I decided January 1st I will be forming a organization to > help families with these crisis. It came to me the other nite I have to > get involved the time of sitting back is over. We will call the > organization Angels fighting for Disability Rights. It will be in Memory > of Kaltyn Katyn Lamb Bruce and Little Giovani and all the > other special children that made such a impact on my life the last few > years. If I left someone out Im sorry just could not remember everyone at > the moment. > > What Our priamry goal will be is first to make sure the families get > qualified for MDCP or Kalty Beckett. Then we will help the families look > at the services they have to see if there is something that should be > covered that is not. Try ot releave some of the finiancial burdens that > lay upon them. > > Many of you don't no but in January of 2005 I was at the lowest point in > my life I felt that I had done nothing since Kaltyns passing in her long > legacy that she left behind for me to follow. I tried to take my own life. > I never told anyone about this but now that Im ok I thinks it's ok. > > I decided to move forward and let nothing stand in my way. One day I will > open a center that is my goal but in the meantime I will be building this > organization to help families. > > In the last two years we have helped over 20 to 30 families qualify for > MDCP and other services without a agency or organization to help fight. So > I no if we put a name behind it we will go far. > > My life is at a turning point I had a choice to make and Im making that > choice. I moving on in the name of those childrent hat have passed and > those that are still standing fighting the fight. We will not fail. Some > wise man called me the other day and shed some light on what is happening > in my life. I belive it . There has been great sadness in my family the > last few years. They felt is was a spiritual attack by satan himself > trying to stop me from moving forward to help these kid's. Call it what > you want but I do belive it. > > There may be some outlandish remarks made by some from me saying that but > I tell you. The only way to beat this thing is head on face your fears and > move on. > > If anyone is interested is helping with this your free to contact me. We > have confirmation from a few places that will allow us to have big > benifits to raise money for the foundation. > > Many have asked why my wife does not travel with me when I go out of town. > Well many of you don't no that she has a siorder called Late onset 21 > Hydroylase deficency. She takes alot of medication. The disorder causes > her to gain weight aroud her midsecction and she is very emabarasesd by > it. There are other issues as well. > > > However she is the most levelheaded one of our family and is fighting as > much as I am for the kid's. She is the finacial smart one of outr family. > She is a real trooper and is my life. Many don'e see that because she is > not with me alot. But she is my rock my strength. > > We look forward to the new year and the new foundation that is comming to > birth. Please pray for the child I was telling you about we have fought > for some time to get her on MDCp the state is really fighting this one. > > > By the way Im doing fine and Im more geared in the right direction now > more than ever. I have not yet began to fight for our kid's. We only had > one child but there are more out there that need our help that is why God > only gave us one. He knew I had many more out there that needed help. > > Darin > > Quote Link to comment Share on other sites More sharing options...
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