Re: question? good and bad on HBOT treatment. any negative stories?

[Guest guest]

Dear Ricky

I am confident you will find on here an overwhelming number of parents whose

children have been treated with HDOT High Dosage Oxygen Treatment and with

positive results. I possess a large number of files from various people

reporting positive results. It would be interesting to discover the details of

the treatment referred to by the neurologist whose patient he/she alleges had no

significant result. I would like to see the complete report from the social

services concerning the case you mention. Very few neurologists know anything

about HDOT. It is not included in their training. HDOT is just oxygen under

pressure and at levels which cannot do any harm.

Yours

[ ] question? good and bad on HBOT treatment. any

negative stories?

Hi group.

My name is Rick.

I am a father of a epileptic and severe autistic boy. Giovanni is 12 years

old. Has had seizures since 4 months old. Diagnosed with autism 3.5 years old.

We the parents are recently going to start HBOT treatment here in the Ft.

Lauderdale, FL. at the Oceanic Hyperbaric Center.

I recently have had different opinons on this treatment. From our Neurologist

that has patients that the treatment has not done any significant effect what so

ever with their child. I also recently heard from a person who works with

children in social services for the disabled claim that one of his clients done

just two sessions and was severely negatively affected mentally and is now in a

mental institution. Like a side affect.

Has anybody on the group heard any bad things about this treatment of HBOT?

I as a parent am concerned and now very confused on who and what to believe

and do not want any harm to my son Giovanni he is my angel!

Please kindly advise

All the info and help is great appreciated.

Thank you

Ricky C.

Miami,fl

Giovanni,12yrs old, epileptic, autistic

__________________________________________________

[Guest guest]

Rick, We have only had positive results. MY daughter has had 3 40 session series

onf hbot. I reduced her epilepsy meds the last time and she has been well

controlled throughout the treatment. I believe it ihas positive results. Good

Luck. I haven't found a dr. who has better treatment than hbot. Sue

Ricky C <spearfisherallday@...> wrote: Hi group.

My name is Rick.

I am a father of a epileptic and severe autistic boy. Giovanni is 12 years old.

Has had seizures since 4 months old. Diagnosed with autism 3.5 years old.

We the parents are recently going to start HBOT treatment here in the Ft.

Lauderdale, FL. at the Oceanic Hyperbaric Center.

I recently have had different opinons on this treatment. From our Neurologist

that has patients that the treatment has not done any significant effect what so

ever with their child. I also recently heard from a person who works with

children in social services for the disabled claim that one of his clients done

just two sessions and was severely negatively affected mentally and is now in a

mental institution. Like a side affect.

Has anybody on the group heard any bad things about this treatment of HBOT?

I as a parent am concerned and now very confused on who and what to believe and

do not want any harm to my son Giovanni he is my angel!

Please kindly advise

All the info and help is great appreciated.

Thank you

Ricky C.

Miami,fl

Giovanni,12yrs old, epileptic, autistic

__________________________________________________

[Guest guest]

Dear Ricky,

It is very curious to me that the people giving you such negative feedback

are not the parents of a brain-injured child. They are, in fact,

professionals whose livelihood is in jeopardy if brain-injured children

actually recover---get completely well. I don't know these people

personally, so I could not call their personal ethics into question, but I

would strongly recommend getting information from parents who have actually

made the sacrifice to get hbot for their child and have been through

fighting for their child to be well.

You are in the right place to ask such a question of such people----I hope

their responses have far more weight than the previous information you've

gotten.

I am the mother of a child whose vision went from 20/100 to 20/35 in both

eyes after just 9 sessions. Every area of his development was greatly

accelerated by hbot. I also do other therapies in conjunction with

hbot----and I think that is the true magic---but I can honestly say hbot has

been a HUGE blessing for my son and is helping him along the pathway to

being completely well.

God bless Giovanni and his wonderful parents.

On 1/3/07, Ricky C <spearfisherallday@...> wrote:

>

> Hi group.

> My name is Rick.

> I am a father of a epileptic and severe autistic boy. Giovanni is 12 years

> old. Has had seizures since 4 months old. Diagnosed with autism 3.5 years

> old.

> We the parents are recently going to start HBOT treatment here in the Ft.

> Lauderdale, FL. at the Oceanic Hyperbaric Center.

>

> I recently have had different opinons on this treatment. From our

> Neurologist that has patients that the treatment has not done any

> significant effect what so ever with their child. I also recently heard from

> a person who works with children in social services for the disabled claim

> that one of his clients done just two sessions and was severely negatively

> affected mentally and is now in a mental institution. Like a side affect.

>

> Has anybody on the group heard any bad things about this treatment of

> HBOT?

> I as a parent am concerned and now very confused on who and what to

> believe and do not want any harm to my son Giovanni he is my angel!

>

> Please kindly advise

>

> All the info and help is great appreciated.

>

>

> Thank you

>

> Ricky C.

> Miami,fl

>

> Giovanni,12yrs old, epileptic, autistic

>

> __________________________________________________

>

[Guest guest]

To All, a very Happy New Year!

Rick,

I am the father of a very severely brain injured girl (, died for 35

minutes, and was resuscitated) who is now 11 years old.

Your neurologist is not just wrong, he is very, very wrong.

When I first came across HBOT for (when she was three), I " knew " it

could not work (I trained as a neurobiologist).

I spent the next 2 years trying to find other therapies to help her with

her severe disabilities and very weak health. I finally came across two

papers from the mid 70's discussing the reversal of the ischemic penumbra,

and then I " knew " HBOT had to have some fundamental benefit for .

We went to Neubauer's clinic and I have to say, the months we spent there

are some of the most joyful memories in my life. REbecca greatly responded

in the first couple of days, so we knew we were going someplace with

her. I would not count on such a quick and definitive response.

HBOT did help her greatly, and does help many children. From this, I spent

a lot of time, money, and effort trying to educate physicians on a lot of

myths and fake science regarding HBOT.

First, HBOT is safe. THat was my own primary concern with this and every

other new therapy.

In a study of over 1,500 patients, with over 55,000 HIGH PRESSURE (2.4 ATA

for 2 hours) sessions, the top three greatest issues were

1 discomfort of enclosed chamber (claustrophobia)

2 ear discomfort (from having a cold, etc)

3 sinus discomfort (same)

" From a 10 year study of 1,505 patients receiving 52,758 2-hour HBOT

sessions at 2.4 ATA once or twice daily.

inability to equalize middle ear pressure 0.37%

paranasal sinus blocks 0.09%

confinement anxiety 0.05%

oxygen convulsions 0.009%

pulmonary oxygen toxicity 0.00%

permanent ocular refractive changes 0.00% "

However, it should also be noted that some bright children learn to use

their deficits to deal with movement, etc. (like children using spasticity

to help their walking) and the improvements from HBOT (decreased

spasticity) can lead to challenges in the short term.

Second, when physicians quote things like your did, they are simply

ignorant, and have no idea whatsoever that they are talking about. As an

example, there was an anti-HBOT letter published on the side effects of

HBOT just after I sponsored the 2nd Int'l Symposium of HBTO for the Brain

Injured Child with Dr. Neubauer.

the letter claimed to show how a child suffered from an oxygen embolism

from HBOT. The problem with that statement? An oxygen bubble is virtually

impossible to have in the human body. the serum naturally holds oxygen

until it is exhaled because the pressures used to treat our kids is only

equal to 16 feet of depth - at which you could not even get a nitrogen bubble.

the issue your dr is trying to infer is oxidative stress from the

HBOT. HOwever, if he had ever read anything in his HBOT 101 text book, he

would know that HBOT causes the body to release a flood of superoxide

dismutate that actually decreases free radicals in their bodies to a safer

lever than they have in their daily lives.

So, his statement is very ignorant, if not fully negligent.

Third, HBOT really helps many kids; but all children respond

differently. But, you should look more for fundamental health improvements

and fundamental movement gains rather than something specific. Brain

injuries are simply complex.

fourth, HBOT is NOT THE SOLUTION, but a FUNDAMENTAL BASIS FOR IMPROVEMENT

gains including gains that come from other required therapies.

RE: HBOT for your child, look at this as a journey, not a quick stop. Many

of us have kids that are fairly severely brain injured. So, we have to

look at large numbers of treatments for our kids.

Further, since Giovanni has autism, you should first have him checked for

heavy metals, and have him begin or complete chelation before starting

HBOT. Otherwise you will be helping your son,

has had about 500 sessions so far and there is no reason for us to

stop. She still gains (because a HBOT promotes an 800% increase in natural

stem cells - confirmed last year in a publication by U Penn Med School).

remains fully disabled (cannot walk, speak, sit up on her own,

etc). But, she does attend regular school (which she otherwise could not)

where she has many friends and gets legitimate straight " A's " (she has a

148 IQ). She has a very strong physical constitution and rarely gets

colds, and when she does she runs right through them. Before HBOT she used

to get pneumonia 3 times year and get buried with a common cold.

We had a woman severe TBI victim who was veternarian come to the clinic

last year and she had minimal improvements up until about 80 HBOT's. Then,

in the next 100 sessions she took off like a rocket. Today, after 240

sessions, she speaks fairly clearly, she walks briskly without a cane or

walker, and she can even tie her own shoes.

One of the things that happens is parents sometimes give up with a few

sessions (for good reasons given the expense of HBOT), when it might be

possible for kids to do well after many more sessions. Of course, there is

always the chance they will not respond despite many more treatments. And,

that is the biggest problem with HBOT. There is no test to predetermine

whether Giovanni will do well with HBOT. (Other than Dr. Harch does

SPECT scan - 1 HBOT dive - and second SPECT scan regimen and predicts

possible response rates.)

I hope this helps and Giovanni does very well.

PS Please give Dr. Neubauer my best regards!

Ed Nemeth

At 09:23 AM 1/3/2007, you wrote:

>Hi group.

>My name is Rick.

>I am a father of a epileptic and severe autistic boy. Giovanni is 12 years

>old. Has had seizures since 4 months old. Diagnosed with autism 3.5 years old.

>We the parents are recently going to start HBOT treatment here in the Ft.

>Lauderdale, FL. at the Oceanic Hyperbaric Center.

>

>I recently have had different opinons on this treatment. From our

>Neurologist that has patients that the treatment has not done any

>significant effect what so ever with their child. I also recently heard

>from a person who works with children in social services for the disabled

>claim that one of his clients done just two sessions and was severely

>negatively affected mentally and is now in a mental institution. Like a

>side affect.

>

>Has anybody on the group heard any bad things about this treatment of HBOT?

>I as a parent am concerned and now very confused on who and what to

>believe and do not want any harm to my son Giovanni he is my angel!

>

>Please kindly advise

>

>All the info and help is great appreciated.

>

>

>Thank you

>

>Ricky C.

>Miami,fl

>

>Giovanni,12yrs old, epileptic, autistic

>

>__________________________________________________

>

[Guest guest]

All of the children that we have treated have had positive outcomes ranging

from reduction of medications to reduction of seizures incidences to

elimination of seizures with elimination of all medications. Units of

treatments range from 40 treatments to 200 treatments thus far.

Judy

>From: Sue DuPart <gaduparts@...>

>Reply-medicaid

>medicaid

>Subject: Re: [ ] question? good and bad on HBOT treatment.

>any negative stories?

>Date: Wed, 3 Jan 2007 12:55:30 -0800 (PST)

>

>Rick, We have only had positive results. MY daughter has had 3 40 session

>series onf hbot. I reduced her epilepsy meds the last time and she has been

>well controlled throughout the treatment. I believe it ihas positive

>results. Good Luck. I haven't found a dr. who has better treatment than

>hbot. Sue

>

>Ricky C <spearfisherallday@...> wrote: Hi group.

>My name is Rick.

>I am a father of a epileptic and severe autistic boy. Giovanni is 12 years

>old. Has had seizures since 4 months old. Diagnosed with autism 3.5 years

>old.

>We the parents are recently going to start HBOT treatment here in the Ft.

>Lauderdale, FL. at the Oceanic Hyperbaric Center.

>

>I recently have had different opinons on this treatment. From our

>Neurologist that has patients that the treatment has not done any

>significant effect what so ever with their child. I also recently heard

>from a person who works with children in social services for the disabled

>claim that one of his clients done just two sessions and was severely

>negatively affected mentally and is now in a mental institution. Like a

>side affect.

>

>Has anybody on the group heard any bad things about this treatment of HBOT?

>I as a parent am concerned and now very confused on who and what to believe

>and do not want any harm to my son Giovanni he is my angel!

>

>Please kindly advise

>

>All the info and help is great appreciated.

>

>

>Thank you

>

>Ricky C.

>Miami,fl

>

>Giovanni,12yrs old, epileptic, autistic

>

>__________________________________________________

>

[Guest guest]

Dear friends.....

Thank you for the great info and awesome encouragment regarding HBOT.

sincerely,

RIcky

Donna Bateman <donna.bateman@...> wrote:

Dear Ricky,

It is very curious to me that the people giving you such negative feedback

are not the parents of a brain-injured child. They are, in fact,

professionals whose livelihood is in jeopardy if brain-injured children

actually recover---get completely well. I don't know these people

personally, so I could not call their personal ethics into question, but I

would strongly recommend getting information from parents who have actually

made the sacrifice to get hbot for their child and have been through

fighting for their child to be well.

You are in the right place to ask such a question of such people----I hope

their responses have far more weight than the previous information you've

gotten.

I am the mother of a child whose vision went from 20/100 to 20/35 in both

eyes after just 9 sessions. Every area of his development was greatly

accelerated by hbot. I also do other therapies in conjunction with

hbot----and I think that is the true magic---but I can honestly say hbot has

been a HUGE blessing for my son and is helping him along the pathway to

being completely well.

God bless Giovanni and his wonderful parents.

On 1/3/07, Ricky C <spearfisherallday@...> wrote:

>

> Hi group.

> My name is Rick.

> I am a father of a epileptic and severe autistic boy. Giovanni is 12 years

> old. Has had seizures since 4 months old. Diagnosed with autism 3.5 years

> old.

> We the parents are recently going to start HBOT treatment here in the Ft.

> Lauderdale, FL. at the Oceanic Hyperbaric Center.

>

> I recently have had different opinons on this treatment. From our

> Neurologist that has patients that the treatment has not done any

> significant effect what so ever with their child. I also recently heard from

> a person who works with children in social services for the disabled claim

> that one of his clients done just two sessions and was severely negatively

> affected mentally and is now in a mental institution. Like a side affect.

>

> Has anybody on the group heard any bad things about this treatment of

> HBOT?

> I as a parent am concerned and now very confused on who and what to

> believe and do not want any harm to my son Giovanni he is my angel!

>

> Please kindly advise

>

> All the info and help is great appreciated.

>

>

> Thank you

>

> Ricky C.

> Miami,fl

>

> Giovanni,12yrs old, epileptic, autistic

>

> __________________________________________________

>