Re: Hi, pls pray for Rosita

[Guest guest]

God Bless Rosita. They will give her oxygen and it sounds like antibiotics and

surgical closure of the site. Is there a pediatric dentist who can help to

prevent further infection if it is caused by teeth. Sometimes dental development

is affected by medical conditions. The tonsils and adenoids being large can also

effect tongue posture and cause a tongue thrust in swellowing which pushes

anterior teeth forward. Just a thought to investigate. Sue

Grace Pelawi <mathilda@...> wrote:Hi all, my name is Grace from

Indonesia. I don't post often here though I

read all your mails.

Our daughter is Rosita, 71/2 years, blind, osteopetrosis, VP shunt

implanted, non verbal but able to express what she wants in certain ways.

Recently, she frequently has swollen on her right cheek. 3 times in 4

months. According to CT Scan, these recurrent infections have been caused

by osteomyelitis (inflammation of bone and bone marrow, caused by infection)

on her gum. She once had only 4 teeth. In June 2003 1 fall out and the area

where it used to has remained open. These leaks have been where the

infections coming in. There are also some abses and fistulas surrounding

it.

To shorten the story, we plan to have surgery to remove the infected bone.

Actually she also had another problem, adenoid hypertrofi. Adenoid is a

mass of tissue at the back of the throat. If they become enlarged, breathing

can be restricted through the nose. For your information, it's been 3 years

that she has been having sleep apnea, which means she can't breathe during

sleep and has to use guedel (during sleeping) to bypass the airblock. She

seldom breathes through her nose, most of the time she breathes through her

mouth, that's explained why her upper palate is so hooked up. Anyway, the

ENT doctor seemed reluctant to perform the adenoid surgery at the same time

with the osteomyelitis. It's probably due to her narrow airway. The last

time she has the laringoscopy observation (2002), they have to put in

ventilator pasca surgery. Can you imagine for a child who can't breathe

through nose, and during surgery they put lots of equipment through her

little mouth, including intubation, doing the surgery on the gum, and don't

forget that the adenoid surgery is also done through mouth (the way like

when you want to eat avocado). Sooorrry, my English is not so good.

So pasca surgery is the crucial part. So far, we only schedule for

osteomyelitis. To do both osteomyelitis and adenoid removal is good to not

sedate the child twice, anyway the risk is higher. It's really a dilemma for

us for it means if this surgery succeed, she may have to go to another

surgery, that is adenoid removal, another sedation.. The surgery is

expected for next week.

Need your input and prayer as always.

Grace

[Guest guest]

Dear Grace,

My thoughts and prayers are with you and Rosita. I pray that all will

be well during her surgery and that God will give you the strength to

endure.

Love, Light and many Blessings be with you

Best Regards,

Hi all, my name is Grace from

Indonesia. I don't post often here though I

> read all your mails.

>

>

>

> Our daughter is Rosita, 71/2 years, blind, osteopetrosis, VP shunt

> implanted, non verbal but able to express what she wants in certain

ways.

> Recently, she frequently has swollen on her right cheek. 3 times

in 4

> months. According to CT Scan, these recurrent infections have been

caused

> by osteomyelitis (inflammation of bone and bone marrow, caused by

infection)

>

>

> on her gum. She once had only 4 teeth. In June 2003 1 fall out and

the area

> where it used to has remained open. These leaks have been where the

> infections coming in. There are also some abses and fistulas

surrounding

> it.

>

>

>

> To shorten the story, we plan to have surgery to remove the

infected bone.

> Actually she also had another problem, adenoid hypertrofi. Adenoid

is a

> mass of tissue at the back of the throat. If they become enlarged,

breathing

> can be restricted through the nose. For your information, it's

been 3 years

> that she has been having sleep apnea, which means she can't breathe

during

> sleep and has to use guedel (during sleeping) to bypass the

airblock. She

> seldom breathes through her nose, most of the time she breathes

through her

> mouth, that's explained why her upper palate is so hooked up.

Anyway, the

> ENT doctor seemed reluctant to perform the adenoid surgery at the

same time

> with the osteomyelitis. It's probably due to her narrow airway.

The last

> time she has the laringoscopy observation (2002), they have to put

in

> ventilator pasca surgery. Can you imagine for a child who can't

breathe

> through nose, and during surgery they put lots of equipment through

her

> little mouth, including intubation, doing the surgery on the gum,

and don't

> forget that the adenoid surgery is also done through mouth (the way

like

> when you want to eat avocado). Sooorrry, my English is not so

good.

>

>

>

> So pasca surgery is the crucial part. So far, we only schedule for

> osteomyelitis. To do both osteomyelitis and adenoid removal is good

to not

> sedate the child twice, anyway the risk is higher. It's really a

dilemma for

> us for it means if this surgery succeed, she may have to go to

another

> surgery, that is adenoid removal, another sedation.. The surgery

is

> expected for next week.

>

>

>

> Need your input and prayer as always.

>

>

>

> Grace

>

>

>

>