Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 For Pat V. Does your son drink any diet sodas, or us any type of artificial sweeteners. The artificial sweeteners convert to methyl alcohol and formaldehyde. If you don't already provide as many artificial preservative free foods and foods free of dyes, there is a possibility that it might help your son a little bit. Our nerve endings can become irritate with all the chemicals that we eat. The easiest way to accomplish this is to shop on the out side isles of the grocery store, and stay away from all the man made packaged foods. Good luck and best wishes. Virginia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Pat, I aggree if the negative stuff does not cease like yesterday, I'm willing to start a new HBO site that I would be willing to actively moderator. That would stop any negative post from getting posted regardless of who sends it. I hate censorship and it would delay all postings and I'd hate to duplicate the efforts to establish this community but there is a point ... The second part of your post. As an adult TBI victim I too would like to see more sharing of adult TBI victims. With all the car crashes there has to be a lot of us. I had my 5th TBI when I was 44. Wood ladder failed fell 12 feet whiplashing the back of my head into the ground. 3-days in the hospital, no clue about anything, including where I lived. Walking non-functioning zombie for 18 moths. The first 4 had no long term effect even though #4 was falling out of a car traveling at 35 MPH and hitting the road head first. However the four likely set the stage for #5. I really don't want #6. I had 45 treatments following a very non-strandard protocol. The results in my case were maybe as soon as first treatment and no question after treatment 5. It was clearly that the improvement was not permanent at that point. I experienced regressions each weekend without treatment. I'm now 13 months post HBO. I have had 3 minor regressions. The first was shortly after the end of treatment and my body pulled through without help. The second was 2 months post treatment and appeared to be triggered by a nasty cold. I recovered from that also without assistance. I am currently in my third with no apparent cause. This includes increase in headaches both frequency and pain level, forgetting things more frequently and more important things, using a wrong word more frequently and missing deadlines. I have decided that I will get additional treatments. I was trying to get a discussion on dosage going. I don't have any question HBO works, I just don't know what is likely to produce the best results. I have some strong opinions of what works and doesn't work but that is based on my own experience. I'm hoping to get other people's input. But so far I'm debating only with myself about the protocol trade-offs. I was hoping to use this information for my next series of treatments. I won't share my thoughts publically but I believe I already sent you a private email a couple days ago. If not let me know and I will. I would suggest that there is no one right answer and that you will need to make some important decision with your son. These would include pressure, length, frequency, duration, and air breaks. I would highly recommend the Textbook of Hyperbaric Medicine $139. You don't need to read it all but some of the Basic Aspects like Chapters 2, 3, 5, 6 8, & 9 would be helpful. Don't worry this is really only 41 pages with lots of non-reading images. Then there are Chapters on specific issues that would be of value like 16, 17, 22. I would also suggest the CD International Hyperbaric Medical Association has. It is free just send Anita your mailing address. I suspect your son's injury was more serious being comatose for 6 weeks. It does not surprise me that His progress was not as fast as mine. However, I would not give up. I would also catuion you against the more is better theory. I am convinced that oxygen toxicity is real. On your son's depression, is it possilble that it is frustration. I don't mean to split hairs. but I was EXTREMELY frustrated at my inability to function to the point that my life wasn't much longer. That was when I discovered HBO. I knew I should be able to do things but just could not. I would want to remember something and couldn't. I tried to write more stuff down but would lose the paper. It was this frustration not living up to my own standards that caused the frustration. Yeap, I was prescribed anti-depresants and read the warning that came with the pills. I talked to a friend and then made the executive decision NOT to take them. So I think the symptoms are similar but you will never get me to admit that it is depression and I don't think it is my ego I honestly think there is a differance between frustration and drepression and that is why there are two different words. I was also more impatient and angered more rapidly but I also got more at peace with myself so I was able to control the increase emotions. So when I was in a meeting and getting personally attacked on an issue I would lose it more rapidly internally but those in the room thought I was more mellow because I wasn't expressing it outwardly. It was very interesting going through the HBO and seeing this reverse. It takes more to set me off but I'm more likely set off if the person is deliberately trying to push my buttons. Lastly, I am an anti-durg (medicine) person. It clearly sounds like your son's issues all stem from the TBI like in my case. Solve the TBI issue and the issues will go away. I believe that all the drugs are hiddig the true issue and making it hard to see and treat the real issue of the TBI. Of course most of the drugs you likely cannot stop abruptly but I'd find out have to reduce and/or eliminate them. The drugs will likely complicate the treatment. In my case I was living on aspirin but refused anything else. When a neurologist told me long term frequent use of aspirin was bad and that if it need FDA approval today it would pass. I went cold turkey. It was tough and there were day when I didn't get out of bed to miniumize the head pain. In fact, I was lying in bed with my lap top when I stumbled into Hyperbarics. I found a study that took TBI viticms to high altitude and they 86% performed worse then the control group (non-TBI) even though the TBI were all 26-months post injury. I thought high altitude is low pressure is bad for TBI, is high pressure good for TBI. I did a google search on " brain injury " " high pressure " oxygen treatment and the rest is history. I'd be happy to carry on the discussion on the group in the hopes of getting more positive messages ore privately if you prefer. Good luck. Vosberg <pvosberg@...> wrote: After having been informed of this website and reading it for several days now, I was beginning to think this website was for something other than helping. I hope I am mistaken. I would like to hear from others who have been where I am going, if at all possible. My son, , is 25 and is 10 years post TBI, comatose for 6 weeks. He is remarkably good, no physical impairments other than a little awkward and off balance. His short term memory is horrendous and he suffers from constant impatience agitation, anger and depression. He has tried to commit suicide twice. He is a very unhappy soul. He has been on more meds that I care to recall. has had 40 HBOT treatments from HyperTec in Olney, TX (wonderful group of people) and I saw improvement in his impatience. I want to get him a LOT more treatments in the hopes that he can function better and therefore be a happier person. I would like to hear from anyone who is / was in a similar position and can give me some feedback. ie: does treatment help any with the kind of issues he has? Thank you, Pat Vosberg Tucker Rocky Accounts Payable 817/258-9209 817/258-9035- fax pvosberg@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 . thank you so much for your response. I keep so much bottled up regarding that just to have someone to talk to is like opening up a dam. There are so many things I need to say, would like to say, need to hear and would like to hear. You would think after 10 years I would be more accepting but I'm not. As a matter of fact, I refuse to accept his condition. And only because he is so unhappy. His condition doesn't bother me in the least. He is still sweet, kind, funny, at least when he can be. will never be able to be on his own the way he is and that bothers him a lot. I thought your comments on the treatments were very thoughtful. Since I am reasonably new to HBOT I have not thought of those issues. But since you brought it to my attention, it may even be something I will try with . I was going to have start treatments next week but finances do not allow so the plan now is to start the week following. is on a trial basis of Lithium, not seeing any improvement. On to the next drug.......thank goodness I have a Dr. who is willing to work with me. We both realize that we do not have any concrete answers but we keep trying. Did you have problems with drugs or alcohol before or after your TBI's? Thank you, Pat Vosberg Tucker Rocky Accounts Payable 817/258-9209 817/258-9035- fax pvosberg@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2004 Report Share Posted December 6, 2004 Very interesting...........he drinks diet sodas...................Thank you, Pat Vosberg Tucker Rocky Accounts Payable 817/258-9209 817/258-9035- fax pvosberg@... virginiaedward@... 12/03/2004 06:36 PM Please respond to medicaid medicaid cc: Subject: Re: [ ] Adult TBI For Pat V. Does your son drink any diet sodas, or us any type of artificial sweeteners. The artificial sweeteners convert to methyl alcohol and formaldehyde. If you don't already provide as many artificial preservative free foods and foods free of dyes, there is a possibility that it might help your son a little bit. Our nerve endings can become irritate with all the chemicals that we eat. The easiest way to accomplish this is to shop on the out side isles of the grocery store, and stay away from all the man made packaged foods. Good luck and best wishes. Virginia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2004 Report Share Posted December 6, 2004 Pat, In our nutrition program with Dawson, artificial sweeteners are the first thing off the list. Even my friend with diabetes said her doctor told her to absolutely stay away from artificial sweeteners because of the neurological damage posed by them. -- Donna Mom to 20 (serving mission in Spain), Katy 18 (leaving for BYU), Preston 15, Annie 13, Kent 12, Callie 8 (cured from dyslexia), Carson 6, Dawson 4 (brain injured--was severe now 91.3% of well!) Quote Link to comment Share on other sites More sharing options...
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