Re: [MedicaidforHDOT] Need Case Study

[Guest guest]

Found this one in the archives. Hope it helps.

>My name is toni Brende and my son athan, 3 1/2, has PVL, Spastic

>Quad CP, Microcephally, and Corpus Collosum Hypoplasia. We have had

>80 HBO treatments and plan to continue whne we can. HBOT has been the

>only treatment that has brought athan any " change " thus far. A

>new center is opening up here in the KC area and I have asked for

>permission to get MO medicaid to reimburse for treatmetns. I am just

>doing my own reasearch for now, sort of seeing what all they are

>going to want from a center and from the referring doctor, me,

>everything.

>I need info on what others have done, how far they have gotten, Etc.

>I am very eager to make this happen, as I know there are plenty of

>other parents out there like myself that don't have, and can't afford

>private health insurance and have medicaid as their only hope.

>My personal e-mail is tonni69@... and my home phone number is

>816-461-0930. I will make this happen, but I also know that I will

>need your help.

>I appreciate any and all help any of you can give me and have

>requested daily bulk posts be sent to my e-mail.

>Thank you.

>Tonni Brende

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Freels

2948 Windfield Circle

Tucker, GA 30084-6714

770/491-6776 (phone and fax)

720/269-5289 (efax, sends fax as email attachment)

mailto:dfreels@...

http://www.freelanceforum.org/df

[Guest guest]

I appreciate your inquiry. Unfortunately, although we have treated a large

number of patients with neurologic injury including CP, I have no experience

personally with the condition ;your child has. HBO may be helpful but I would

not be very optimistic but it would be worh considering.

If I can be of further assistance please let me know.

Thanks again

Ralph Potkin, MD

Medical Director

[Guest guest]

Rheumatology (Oxford). 1999 Oct;38(10):978-83.

Rheumatic disorders developed after hepatitis B vaccination.

Maillefert JF, Sibilia J, Toussirot E, Vignon E, Eschard JP, Lorcerie B,

Juvin R, Parchin-Geneste N, Piroth C, Wendling D, Kuntz JL, Tavernier C,

Gaudin P.

Department of Rheumatology, Dijon University Hospital, France.

OBJECTIVE: To obtain an overview of rheumatic disorders occurring after

hepatitis B vaccination. METHODS: A questionnaire was sent to rheumatology

departments in nine French hospitals. Criteria for entry were rheumatic

complaints of 1 week's duration or more, occurrence during the 2 months

following hepatitis B vaccination, no previously diagnosed rheumatic disease

and no other explanation for the complaints.

RESULTS: Twenty-two patients were included. The observed disorders were as

follows: rheumatoid arthritis for six patients; exacerbation of a previously

non-diagnosed systemic lupus erythematosus for two; post-vaccinal arthritis

for five; polyarthralgia-myalgia for four; suspected or biopsy-proved

vasculitis for three; miscellaneous for two.

CONCLUSIONS: Hepatitis B vaccine might be followed by various rheumatic

conditions and might trigger the onset of underlying inflammatory or

autoimmune rheumatic diseases. However, a causal relationship between

hepatitis B vaccination and the observed rheumatic manifestations cannot be

easily established. Further epidemiological studies are needed to establish

whether hepatitis B vaccination is associated or not with an incidence of

rheumatic disorders higher than normal.

PMID: 10534549 [PubMed - indexed for MEDLINE]

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed & list_ui

ds=10534549 & dopt=Abstract

[MedicaidforHDOT] Need Case Study

I have a 3 month old patient with Agenesis of the Corpus Collosum

with blindness and hearing loss.

I am looking for HBOT case studies to support treatment and allow

the parents to make an informed decision.

I have received one report from MUMS of a boy with this

diagnosis but was being treated with HBOT for a foot wound and

became dysgenesis a few months after treatment.

If you have any information, please send it my way.

Thanks,

Grant, President

ProHBO

chris@...

www.prohbo.com

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http://www.drneubauerhbo.com/papers.htm

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[Guest guest]

I know of someone that may be able to help you, i have forwarded your

email to her today...