Re: [MedicaidforHDOT] Documentation of Pennsylvania case

September 29, 2003

Y'know, I have to agree with what Darin is saying here. We've only

done one round of HBOT in a chamber a few minutes from our home and

it was still incredibly disruptive to our lives. My husband and I

and several family members committed to making this happen but my

other child had no choice - he was simply along for the ride - and it

was disruptive for all involved. The Catch-22 is this -- how do we

know how many treatments our child will need? I agree that it is

wise to start with a commercial chamber to make sure that your child

benefits but once you've ascertained that, it becomes a slippery

slope. At up to $10,000 a pop, I can understand why parents might

very quickly decide they are better off to invest in a chamber at

home than to do multiple rounds at a commercial facility. None of us

go into this knowing what the endpoint is and I cannot help but think

that it would be easy to get three or four rounds into this, figure

out that your child needs long-term HBOT and then be sorry that you

hadn't taken the $30,000 you've already spent and put it into a home

chamber.

Lynn

> In a message dated 9/28/2003 8:18:40 PM Central Daylight Time,

> rhartsoe@s... writes:

> . I think the thing that amazes me most is how

> many people say they cannot afford it yet can come up with 10 to 20

thousand

> dollars for an inflatable chamber which delivers less than the

ultimate and

> never give the victim the opportunity to have full hbot. One

person told

> me they financed it. So what? You can finance HBOT also. So why

not do

> regular hbot first and then use the inflatable chamber for

maintenance which

> is Baro-Therapy and the ultimate program available. I can assure

you we

> have MD's who will work with you to determine which is best for

your child

> or victim if you want to do it.

>

> let me chime on this for a minute. Your saying regular HBOT

is best by

> far. Ok folks then if your able to finace the $20,000. for the

portable then

> finace the the $52,000. for the Sechrist with 100% oxygen. It is

not hard to

> finance.. There comes a time in life when you have to have a sense

of a normal

> life.. What you guy's dont understand it's not the traveling

by itself

> that causes these people to seek out the Portable Chambers. Some

people like

> traveling and yet some have JOBS. You have to be able to live a

normal life

> hold down a Job and so forth. IF there was a clinic in every town I

could see

> your argument .

>

> However these people are trying there best. They don't have what

you have or

> I have or others have. They don't have the ability to jump up and

say hey Im

> going to install a chamber today. It is easy for us to critisise

these people

> because we have the ultimate choice for hyperbarics. I myself can

walk into

> another room and treat Katy at home with 100% O2 in a monplace

Chamber. You can

> drive a few minutes and treat your grandson. That is a big

difference. These

> people have JOBS they have homes and other children. How many jobs

do you know

> that will let these people off for two months... Don't get me wrong

I agree

> with you totally. They need HBOT in a Mono OR Multiplace facilty

first. But

> please don't question anyone's efforts no mater what they do. There

trying hte best

> they can for there loved one.. Rather it be portabel or what....Oh

the thing

> that amazes you about how people can come up with 10 to 20 thousand

dollars to

> pay for a hyperbaric chamber. Well they look at it like this that

is a one

> time fee of 10 to 20 htousand dollars rather sevral fees of 100.00

a pop or even

> 200.00 a pop. Some people have over 200 treatments. We have to make

this

> available and affordable. When I first got into hyperbarics with

Katy I remember

> someone sayng this was going to happen if HBOT was not made

available to the

> public all over it would come to people building there own chambers

or

> installing them at home.

>

> I have remained quite and will continue to do so on the list. I

just saw this

> post and had to comment.

>

> PS>>>>

>

> I think it is time we all put on in our home. That would start a

whole new

> movement... IF everyone in the U.S. put a chamber in the goverment

would surely

> pay attention then.

>

September 29, 2003

I all so agree, if we all had money to just run and jump it would be great. All

so it is the cost of 40 to 300 hundred dives that get you it is not that we do

not want to help our loved one's but it is that the home chambers are ours and

we can use them all we want with a one time fee. 40ty dives at $150.00 dollars

is $6,000.00 dollars think of that and even if you had your own chamber then the

$10,000.00 would pay for the chamber even if it was not a 100% chamber. You are

still trying and they are still getting the oxygen even if it is not as much.

There is nothing more that I would love to see and that is that my son be a 100%

chamber but we would haft to travel so far to get that done. Some people can not

take traveling that well and some just do not want to go that far. It would be

great if all states had a place that was easy to get to and affordable.