Re: [MedicaidforHDOT] CP-Only 40 treatments now?

June 10, 2003

Every brain injury is different. For most CP children, a block of forty

treatments is how the protocol starts. One must evaluate the changes

during the treatment period as well as the changes after the treatment

period. Most children benefit from another round of 40 two to three months

later. After 80 treatments it becomes very individualized. We recommend

that if there has been significant improvement during the first two blocks

of therapy, then it might be advantagious to have the child get anywhere

between 10 to 20 treatments during physiologic or developmental growt

spurts. Now, depending on the age of the child, any given CP child could

go well over 200 treatments over the course of several years.

KP Stoller, MD, FAAP

Assistant Clinical Prof, UNM HSC Dept Pediatrics

Simply Hyperbarics

www.simplyhyperbarics.com

> Hi all,

> I was on the phone to a friend who is going to have HBO treatements for

> her daughter who has CP. In the course of the conversation she said

> they were going to do 40 because she was told that's all anyone

> recommends. If you see improvment you see most of it in that time

> frame. I know I read a post from Dr. Harch about a child who saw

> changes within the first 40 and the next 108 didn't result in any

> further changes. So is that the protocal now? Basically 40 and maybe

> wait a year? One center told me that's what most of their clients

> started doing. From what other parents are telling me this seems to be

> the case. It used to be do a ton of treatments but there was discussion

> about emotional complications with too many at the first symposium.

> thanks,

>

> _._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._.

> Join the International Hyperbaric Medical Association

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> HDO-documentation/files/ and

> http://www.drneubauerhbo.com/papers.htm

>

> Download your state EPSDT program

> http://www.hcfa.gov/medicaid/stateplan/Map.asp by doing a search on the

> word " ameliorate " . State Medicaid websites

> http://www.medi-cal.ca.gov/RelSites_Oth_States.asp . Medicaid waiver

> programs: http://www.geocities.com/HotSprings/Villa/1029/medicaid.html

>

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>

> HBOT can save billions of dollars and millions of heartaches. Subscribe

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June 10, 2003

,

The challenge with such generalities right now is while many parents (like

me) are dogmatic on HBOT as a helpful generic treatment for our kids, very,

very few are able to pursue therapies optimally. Mostly it comes down to

financial and travel issues in determining the HBOT program for their child.

With that said, I believe the more optimal method to pursuing HBOT is to

get a SPECT scan, complete 40 sessions, and get a second SPECT scan. Then,

wait two months or so and observe your child's changes.

why?

The SPECT scans will demonstrate the specific metabolic / blood flow

changes in the child's brain.

The observations during the HBOT, and very importantly two months after the

HBOT completion will enable the parent to see some of the improvements that

will hopefully occur.

The McGill study showed that 82% of its study kids improved during the two

months of HBOT only an average of 15 times their base improvement rate

(with pt alone). But, what is not determined, is if a child, who doesn't

make much improvement during that time, can make improvements with another

40, or 80 sessions. Certainly, many near drowning kids seem to need many

more sessions to make good improvements as compared to child with less

injuries.

In the end, it has to come down to a parental determination.

But, I would not wait a year to start the next batch of sessions. I would

(optimally) pursue HBOT for 40 sessions, take 2 - 3 months off (rest),

pursue 40 more sessions take 2-3 months off then possibly pursue 20 session

blocks.

As a general note MORE IS NOT BETTER!!

Further, note that while the child is having HBOT, it is great for them to

get ancillary therapies. Movement therapies, myofacial, cranial sacral,

speech, etc.

HBOT will make the brain healthier for most kids, but the other issues are

how to help that child overcome their bad movement habits, as well as

attain higher developmental levels. HBOT can only help, but movement and

other therapies are required to be successful.

Take care.

Best Wishes,

Ed Nemeth

At 02:44 PM 6/10/2003, you wrote:

>Hi all,

>I was on the phone to a friend who is going to have HBO treatements for her

>daughter who has CP. In the course of the conversation she said they were

>going to do 40 because she was told that's all anyone recommends. If you

>see improvment you see most of it in that time frame. I know I read a post

>from Dr. Harch about a child who saw changes within the first 40 and the

>next 108 didn't result in any further changes. So is that the protocal

>now? Basically 40 and maybe wait a year? One center told me that's what

>most of their clients started doing. From what other parents are telling

>me this seems to be the case. It used to be do a ton of treatments but

>there was discussion about emotional complications with too many at the

>first symposium.

>thanks,

>

>_._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._.

>Join the International Hyperbaric Medical Association

>http://www.hyperbaricmedicalassociation.org/forms/Friends_of_IHMA_Join.pdf

>

>Unrestricted downloads of 50+ pdf files on HBOT efficacy

>medicaid/files/ ,

>HDO-documentation/files/ and

>http://www.drneubauerhbo.com/papers.htm

>

>Download your state EPSDT program

>http://www.hcfa.gov/medicaid/stateplan/Map.asp by doing a search on the

>word " ameliorate " . State Medicaid websites

>http://www.medi-cal.ca.gov/RelSites_Oth_States.asp . Medicaid waiver

>programs: http://www.geocities.com/HotSprings/Villa/1029/medicaid.html

>

>Find a hyperbaric clinic http://www.netnet.net/mums/hbolist.htm

>

>HBOT can save billions of dollars and millions of heartaches. Subscribe to

> by sending a blank email to

>mailto:medicaid-subscribe

>

>Unsubscribe? Click here mailto:medicaid-unsubscribe .

>

June 10, 2003

Hi ,

Generally the better way is to continue with follow up assessments,

brain imaging and ongoing evaluations with the individual patient - they

are all individuals, " no two alike " . It would be very unfair to give a

" text-book " answer to your question of: " Does one size fit all? "

(obviously No).

As Ed (and others) have pointed out, if you start and end a treatment

session with SPECT scans and other brain imaging this is the best way to

really know if a person needs the treatment, a very helpful manner to

assist in establishing the proper protocol for that individual patient

and to avoid the " guessing-game " . It is also the better way to

establish the need for re-starting HBOT after a long break in the

routine. Some may need more treatments than others.

Lane , PhD

June 11, 2003

Dear list,

I must be crazy, I can not imagine why anyone would not continue HDOT until

capillaries have grown to every part of the brain lacking them. When I

first heard of HDOT I understood immediately why this would help my son and

next week we will complete our 700th treatment. This is not a fast process,

however it is one that works. My son has autism which means for one reason

or another there are no little tiny blood vessels supplying oxygen to his

right front temporal lobe. This is where the five senses are controlled by

the brain! They call that autism. Now with CP It is the mid brain that

doesn't have the necessary supply of oxygen to control physical function.

The severity depends on the lack. With mental retardation it is the cortex.

I have said this before " Brain injuries are all the same just different

parts of the brain lacking blood " (Which is where the brain gets it's

oxygen)

It takes lots of treatments to grow those tiny capillaries. Unless you stop

seeing improvement after trying " 40 in a row " then I think you are not using

your common sense if you quit. I too was told to do 40 then wait 3 to 6

months and do another 40 then maybe in another year try again. He then went

on to say it would be too expensive any other way. My son would be 80

before we got him well. Maybe someday we'll stop seeing improvements, when

that happens we'll do 100 more. I once spoke to a lady on the phone who

said she wasn't going to do anymore than 40 each year because a doctor told

her not to, she said she saw improvements but the doctor said it did all it

could! She would not try anymore even though she saw improvements! This

just makes me mad!!!

Everyone is different, maybe it doesn't work on some but don't stop if it is

working! It won't hurt, just help!