Re: [MedicaidforHDOT] Dystonia

[Guest guest]

Dear ,

Thank you for your response and interest.

As far as I know, the one and only published mention of HBOT's effect on

Dystonia is by Dr. Harch, I believe on page 46, from the Proceedings from the

2nd International Symposium.... (Sorry, I have loaned out my copy, so I don't

have the exact name.)

If anyone knows of another, even a single published sentence, please, please

let me know. Not even the Dystonia Foundation is willing to print a single word,

why? Because, no other publications, no longitudinal double blind studies, etc.,

etc.. My remarkable pre/ post HDOT video, medical documentation, mentioning of

Dr.'s Harch and ' treatment of other patients means, nothing without

publication. Actually, Dr. McAllister, the Executive Director at the Dystonia

Foundation personally spoke with Dr. Harch. Still, he won't even place an

editorial comment in their newsletter.

Anyway, thanks. Sorry for my intense discouragement.

Joanne

________________________________________________________________

The best thing to hit the internet in years - Juno SpeedBand!

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[Guest guest]

What is HDOT?

MY mother suffers from dystonia as well.

Dee Dee and Bridget

[Guest guest]

It is another abreviation of HBOT

[Guest guest]

Ok it look's as if we should go back to 40 HBOT treatments and then taper

back down we stopped for a period. It looks as if the protocol we are useing now

is not effective..... I was looking at the past notes and so forth. Katy did

well at 1.5 ata with 100% oxygen whne we dropped down to 1.3 and did less

treatments is when all this started back up...... I dunno if this has anyhting

to

do with it but I will let you guy's know we are starting back with the original

treatment plan we started with..

Darin

[Guest guest]

Ed from what I gather from this posting is more HBOT at the original protocol

we started would be the best thing we could do. Is that your assumption.....I

may seem totally dumb to a lot of folk's here but I have to ask these

questions.... Sorry if this affends anyone......

Darin

[Guest guest]

Darin, I would certainly give Feldenkrais a try. Find a good practitioner and

do at least 6-8 sessions of Functional Integration. it doesn't sound as if Katy

is ready for ATM's, the self done side of Feldenkrais. Go to

http://www.feldenkrais.com to find a practitioner and read more. Where do you

live?

Best wishes and much love, Ken

Ken Gullan

Institute for Research Integration (IRI)

San Diego, CA 92106-2424

IRI is a 501C(3) non-profit corporation established to help children with

developmental difficulties.

To contact me off-list use kengullan@... or call 619-222-1104

[MedicaidforHDOT] Dystonia

OK I need some help here. Katy has always had this light or moderate turning

of the head to the left and sometimes the body to a cervical C. However it all

stopped for a long time. Recently she started this back up again it was once

thought that it was spasticity. They placed a baclofen pump and after HBOT it

was removed. However here lately she has had some episodes again and when we

were in the Hospital A neurologist called it Dystonia Here is a web address

for

those who would like to research it.

http://www.dystonia-foundation.org/health/default.asp?search=state & stateid=43#Da\

llas What IM looking for is someone

that know a little about this and a treatment that is available for this

disorder. We are still using HBOT. If anyone has any ideas or knows of a place

that

can help us with this Disorder please let me know.

Darin

[Guest guest]

Anyone know why I get the following message when I reply to a question. The

reply does get posted normally as far as I can tell. Copy of message is in red

below:

" The following lines in your email message did not appear to be

Lyris ListManager commands and were skipped:

> Darin, I would certainly give Feldenkrais a try. Find a good practitioner and

do at least 6-8 sessions of Functional Integration. it doesn't sound as if Katy

is ready for ATM's, the self done side of Feldenkrais. Go to

http://www.feldenkrais.com to find a practitioner and read more. Where do you

live?

> Best wishes and much love, Ken

> Ken Gullan

> Institute for Research Integration (IRI)

> San Diego, CA 92106-2424

> IRI is a 501C(3) non-profit corporation established to help children with

developmental difficulties.

> To contact me off-list use kengullan@... or call 619-222-1104

> No valid commands were found in your email message

This email message is simply a notification of how Lyris ListManager understood

your email message. If you want to resend your commands, send

them to lyris@... "

Best wishes and much love, Ken

Ken Gullan

Institute for Research Integration (IRI)

San Diego, CA 92106-2424

IRI is a 501C(3) non-profit corporation established to help children with

developmental difficulties.

To contact me off-list use kengullan@... or call 619-222-1104

[Guest guest]

Darin,

HBO itself is helpful to dystonia. I do not know if different nutritional

supplements are helpful.. .but you can try Gotu Kola.

Feldenkrais can help, but I prefer the Anat Baniel Method of Feldenkrais

( http://www.anatbanielmethod.com/ ) She was Moshe Feld's protege and

more. Here work is specifically different and superior to

Feld. Unfortunately, there are no Anat Baniel Certified Practicioners near

you .. ( http://www.anatbanielmethod.com/practitioners.html ).

I put a 12 minute presentation of Anat's work in my DVD which shows her

working with a CP boy. The changes are nothing less than astonishing.

Warm Regards,

Ed

At 02:53 PM 9/7/2003, you wrote:

>Darin, I would certainly give Feldenkrais a try. Find a good practitioner

>and do at least 6-8 sessions of Functional Integration. it doesn't sound

>as if Katy is ready for ATM's, the self done side of Feldenkrais. Go to

>http://www.feldenkrais.com to find a practitioner and read more. Where do

>you live?

>Best wishes and much love, Ken

>

>Ken Gullan

>Institute for Research Integration (IRI)

>San Diego, CA 92106-2424

>IRI is a 501C(3) non-profit corporation established to help children with

>developmental difficulties.

>To contact me off-list use kengullan@... or call 619-222-1104

> [MedicaidforHDOT] Dystonia

>

>

> OK I need some help here. Katy has always had this light or moderate

> turning

> of the head to the left and sometimes the body to a cervical C. However

> it all

> stopped for a long time. Recently she started this back up again it was

> once

> thought that it was spasticity. They placed a baclofen pump and after

> HBOT it

> was removed. However here lately she has had some episodes again and

> when we

> were in the Hospital A neurologist called it Dystonia Here is a web

> address for

> those who would like to research it.

>

>http://www.dystonia-foundation.org/health/default.asp?search=state & stateid=43#D\

allas

>What IM looking for is someone

> that know a little about this and a treatment that is available for this

> disorder. We are still using HBOT. If anyone has any ideas or knows of

> a place that

> can help us with this Disorder please let me know.

>

> Darin

>

>

>

[Guest guest]

Brain. 1994 Aug;117 ( Pt 4):859-76. Links

The behavioural and motor consequences of focal lesions of the basal

ganglia in man.

Bhatia KP, Marsden CD.

University Department of Clinical Neurology, Institute of Neurology,

London, UK.

The behavioural and movement disorders reported in 240 patients described

in the literature with lesions affecting the caudate nucleus, putamen and

the globus pallidus (lentiform nucleus) have been analysed. Reports were

classified into two groups: small or isolated lesions involving the said

nuclei alone; and large lesions with additional involvement of the adjacent

internal capsule and/or periventricular white matter. Amongst the 240

cases, dystonia was the most frequent movement disorder recorded (36%);

chorea (8%) and parkinsonism (6%) or dystonia-parkinsonism (3%) were

uncommon. The commonest behavioural disturbance was the syndrome of abulia

(apathy with loss of initiative and of spontaneous thought and emotional

responses) (13%); disinhibition was rare (4%). Confusion usually was

associated with intracerebral haemorrhage and depression was a relatively

non-specific finding. Aphasia was extremely rare with lesions confined to

these basal ganglia structures. Lesions of the caudate nucleus rarely

caused motor disorders but were more likely to cause behavioural problems.

Chorea has been described in only 6% of those with caudate lesions, and

dystonia in only 9%. The most significant behavioural disturbance described

in 28% of those with caudate lesions was the syndrome of abulia, sometimes

alternating with disinhibition (11%). Lesions of the lentiform nuclei

rarely caused abulia (10%) and did not produce disinhibition, but they

commonly caused dystonia (49%), particularly when the putamen was involved

(63%). Bilateral lesions of the lentiform nuclei, either of the globus

pallidus or of the putamen, caused parkinsonism (19%) or

dystonia-parkinsonism (6%) infrequently. The prominence of the behavioural

disturbance of abulia with caudate lesions emphasizes the more complex

cognitive role of this basal ganglia structure. The frequent occurrence of

dystonia and less commonly of parkinsonism with lentiform lesions emphasize

the motor roles of putamen and globus pallidus.

At 02:15 PM 9/7/2003, you wrote:

>OK I need some help here. Katy has always had this light or moderate turning

>of the head to the left and sometimes the body to a cervical C. However it

>all

>stopped for a long time. Recently she started this back up again it was once

>thought that it was spasticity. They placed a baclofen pump and after HBOT it

>was removed. However here lately she has had some episodes again and when we

>were in the Hospital A neurologist called it Dystonia Here is a web

>address for

>those who would like to research it.

>http://www.dystonia-foundation.org/health/default.asp?search=state & stateid=43#D\

allas

>What IM looking for is someone

>that know a little about this and a treatment that is available for this

>disorder. We are still using HBOT. If anyone has any ideas or knows of a

>place that

>can help us with this Disorder please let me know.

>

>Darin

>

>

>

[Guest guest]

Hi Darin,

I can look up a few more posts I have saved regarding dystonia. My

daughter was diagnosed as having chorea-athetosis in her upper body but

fits the dystonia definition. Below is one of the posts that I saved.

Quite a few parents are starting to use Artane for these. The best way is

to start with a very low dose. I started my daughter what they considered

low and ended up doing half. best wishes,

Hi. I was printing off things about dystonia for my new craniosacral

therapist, and thought some of this might be beneficial for those of you

who are experiencing difficulty having dystonia diagnosed in the presence

of cerebral palsy. This is some of what I found: Dystonia may: Occur

with volentary movements of other, unaffected bodily regions. This

phenomenon is known as overflow, and may develop as a dystonic condition

progresses. Occur even when an affected body part is at rest. This is

referred to as rest dystonia. Rest dystionia may occur as a further

progression of a dystonic condition. Interesting also- Children who

develop secondary dystonia as a resukt of birth trauma may not develop

symptoms for several years. (I believe I got it when I was about 13).

Symptoms may include: Dystonia during periods of rest Limitted range of

movement and fixed postures (why I still could not get rid of my hand

posturing or intoeing and have hamstring contractures have increased even

after rhizotomy) Potentially associated with the development of pain

(causalgia or reflex sympathetic dystrophy. (The neurologist at Toonto

Western told me I might have RSD). Interestingly, the site also says that

Secondary dystonia of the trunk or legs can be relieved by gentle touching

of the back of the neck or lumbar region. Its no wonder craniosacral

therapy is the only thing that currently keeps me sane, because they work

on the trunk, hips, legs, feet, neck area. Look on

<http://www.upledger.com/>www.upledger.com for more info on CST. I love it,

and its great for people with pain, brain injuries, traumas. If you want

more info, you can go to <http://www.wemove.org/>www.wemove.org and look up

secondary dystonia. All of this information came off that site, but I have

changed the wording a bit so I need not type forever. No intention to

plagerize. I just came back from a craniosacral session and need to rest

for a bit. I wanted to share.

[Guest guest]

one more..

Here's something that Anne Crownover posted a while back on

dystonia:

" First of all, there are two types of dystonia: One is with the big " D " and

that is a whole nother dx than dystonia with a small " d " , which is what my

son has been dx'd with. My understanding is that dystonia means that the

brain sends messages but the movements are not interpreted correctly and the

" filters " don't work properly. This is a very laypersons interpretation of

how it was explained to me. In other words, when I view athetoid, I view

constant movement, writhing, etc. When I think of dystonia, I see the

intent of movement but the inability to get that movement accomplished. As

with Ben, his school PT indicated that Ben would have to complete an " arc "

of movement before he could move to a somewhat controlled movement (ie: when

using flash cards, Ben will move his arm in a complete movement, rest his

hand somewhere and then move to touch the correct flash card, oftentimes

confusing his test givers because he inadvertantly may hit another card in

the process). With my son, you have to watch eye gaze, intent of movement

and where the hand rests and then ask him, " Is that your final answer? " (An

ongoing joke we have now with his school!) We have to continually remind

everyone about the dystonia.

I don't know if I have explained what you all wanted but it gives you an

idea of my interpretation of the difference between dystonia and athetoid.

[Guest guest]

I am getting the same message. Is it a glitch or has the list been

hacked? L

Ken Gullan - IRI wrote:

>Anyone know why I get the following message when I reply to a question. The

reply does get posted normally as far as I can tell. Copy of message is in red

below:

> " The following lines in your email message did not appear to be

>Lyris ListManager commands and were skipped:

>

>

>

>>Darin, I would certainly give Feldenkrais a try. Find a good practitioner and

do at least 6-8 sessions of Functional Integration. it doesn't sound as if Katy

is ready for ATM's, the self done side of Feldenkrais. Go to

http://www.feldenkrais.com to find a practitioner and read more. Where do you

live?

>>Best wishes and much love, Ken

>>Ken Gullan

>>Institute for Research Integration (IRI)

>>San Diego, CA 92106-2424

>>IRI is a 501C(3) non-profit corporation established to help children with

developmental difficulties.

>>To contact me off-list use kengullan@... or call 619-222-1104

>>No valid commands were found in your email message

>>

>>

>

>This email message is simply a notification of how Lyris ListManager understood

>your email message. If you want to resend your commands, send

>them to lyris@... "

>

>

>Best wishes and much love, Ken

>

>Ken Gullan

>Institute for Research Integration (IRI)

>San Diego, CA 92106-2424

>IRI is a 501C(3) non-profit corporation established to help children with

developmental difficulties.

>To contact me off-list use kengullan@... or call 619-222-1104

>

>

[Guest guest]

Hi Darin,

I am adult with Dystonia. There are multiple forms/ presentations of Dystonia

-- ranging from " writer's cramp " to being a completely contracted pretzel

person. My particular form is Segawa's.

Through a Gate Lab Analysis, we saw that the firing patterns of the neurons are

out of sync. The muscles are fine, awaiting the " spark " to move. Unfortunately,

the signals arrive too soon/ late resulting in posturing, tremors, abnormal

movements. etc..

For 9 years I diligently tried absolutely every available treatment, with little

to no carry over. I was to the point of being evaluated for an intrathecal

baclofin pump when God allowed me to find HDOT. HDOT combined with PT, it THE

ONLY treatment to provide any long term results.

My dystonia is progressive. As I have had new " break outs " , additional HDOT has

brought it under control. As old symptoms return, additional HDOT calms it down

again. I have completely stopped my Artane and drastically reduced the

Baclofin.

One doctor referred to it as a " Damed river " . A river was formed to flow in a

certain direction. When damed up the river develops little collateral

tributeries as some of the water seeps around the dam. When the dam is opened,

the water knows immediately how to flow correctly and rushes over to resume its

normal flow. Dystonia is a dam in the synaptic cleft, resulting in collateral

firing patterns producing tremors and abnormal movements/ use of other muscles

to produce movement. Some how HDOT opens up the dystonic dam and the neurons

fire as they were created to work.

Joanne

________________________________________________________________

The best thing to hit the internet in years - Juno SpeedBand!

Surf the web up to FIVE TIMES FASTER!

Only $14.95/ month - visit www.juno.com to sign up today!

[Guest guest]

By reducing inflammation and restoring circulation

www.hbot4u.com

Re: [MedicaidforHDOT] Dystonia

>

> Hi Darin,

> I am adult with Dystonia. There are multiple forms/ presentations of

Dystonia -- ranging from " writer's cramp " to being a completely contracted

pretzel person. My particular form is Segawa's.

>

> Through a Gate Lab Analysis, we saw that the firing patterns of the

neurons are out of sync. The muscles are fine, awaiting the " spark " to

move. Unfortunately, the signals arrive too soon/ late resulting in

posturing, tremors, abnormal movements. etc..

>

> For 9 years I diligently tried absolutely every available treatment, with

little to no carry over. I was to the point of being evaluated for an

intrathecal baclofin pump when God allowed me to find HDOT. HDOT combined

with PT, it THE ONLY treatment to provide any long term results.

>

> My dystonia is progressive. As I have had new " break outs " , additional

HDOT has brought it under control. As old symptoms return, additional HDOT

calms it down again. I have completely stopped my Artane and drastically

reduced the Baclofin.

>

> One doctor referred to it as a " Damed river " . A river was formed to flow

in a certain direction. When damed up the river develops little collateral

tributeries as some of the water seeps around the dam. When the dam is

opened, the water knows immediately how to flow correctly and rushes over to

resume its normal flow. Dystonia is a dam in the synaptic cleft, resulting

in collateral firing patterns producing tremors and abnormal movements/ use

of other muscles to produce movement. Some how HDOT opens up the dystonic

dam and the neurons fire as they were created to work.

>

> Joanne

>

> ________________________________________________________________

> The best thing to hit the internet in years - Juno SpeedBand!

> Surf the web up to FIVE TIMES FASTER!

> Only $14.95/ month - visit www.juno.com to sign up today!

>

>

> _._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._.

> Join the International Hyperbaric Medical Association

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>

> Unrestricted downloads of 50+ pdf files on HBOT efficacy

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>

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>

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>

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..

>

>

[Guest guest]

Oops, sorry. HDOT is high dose oxygen treatment. It is HBOT, just a more

descriptive, easier understood approach as suggested my Dr. .

Anyway, has your Mom received HBOT for her dystonia?

Joanne

________________________________________________________________

The best thing to hit the internet in years - Juno SpeedBand!

Surf the web up to FIVE TIMES FASTER!

Only $14.95/ month - visit www.juno.com to sign up today!

[Guest guest]

Interesting description of your problem. Based on that only, and I know nothing

else about dystonia, I would think that Feldenkrais and a rebounder may be of

help. Also, I would try some type of frequency therapy like the electro

accuscope or the scenar. Don't know but would like to know if any of these

therapies were part of your " absolutely every available therapy " . I ma not

being disrespectful in mentioning these and am truly sympathetic with your

plight but am trying to learn more about it.

Best wishes and much love, Ken

Ken Gullan

Institute for Research Integration (IRI)

San Diego, CA 92106-2424

IRI is a 501C(3) non-profit corporation established to help children with

developmental difficulties.

To contact me off-list use kengullan@... or call 619-222-1104

Re: [MedicaidforHDOT] Dystonia

Hi Darin,

I am adult with Dystonia. There are multiple forms/ presentations of Dystonia

-- ranging from " writer's cramp " to being a completely contracted pretzel

person. My particular form is Segawa's.

Through a Gate Lab Analysis, we saw that the firing patterns of the neurons

are out of sync. The muscles are fine, awaiting the " spark " to move.

Unfortunately, the signals arrive too soon/ late resulting in posturing,

tremors, abnormal movements. etc..

For 9 years I diligently tried absolutely every available treatment, with

little to no carry over. I was to the point of being evaluated for an

intrathecal baclofin pump when God allowed me to find HDOT. HDOT combined with

PT, it THE ONLY treatment to provide any long term results.

My dystonia is progressive. As I have had new " break outs " , additional HDOT

has brought it under control. As old symptoms return, additional HDOT calms it

down again. I have completely stopped my Artane and drastically reduced the

Baclofin.

One doctor referred to it as a " Damed river " . A river was formed to flow in a

certain direction. When damed up the river develops little collateral

tributeries as some of the water seeps around the dam. When the dam is opened,

the water knows immediately how to flow correctly and rushes over to resume its

normal flow. Dystonia is a dam in the synaptic cleft, resulting in collateral

firing patterns producing tremors and abnormal movements/ use of other muscles

to produce movement. Some how HDOT opens up the dystonic dam and the neurons

fire as they were created to work.

Joanne

[Guest guest]

I agree that Anat is wonderful, as are many of the original students and

protégé's of Moshe. However, other more recent graduates are also getting some

incredible results and should not be dismissed because they were not trained by

Anat. I would also consider Bowen therapy

http://www.bowtech.com/publicMain.jsp?bodyContent=publicHomeBody.jsp

and/or Body Talk http://www.bodytalksystem.com/practitioners.htm for some things

that may produce some surprising results.

Best wishes and much love, Ken

Ken Gullan

Institute for Research Integration (IRI)

San Diego, CA 92106-2424

IRI is a 501C(3) non-profit corporation established to help children with

developmental difficulties.

To contact me off-list use kengullan@... or call 619-222-1104

[MedicaidforHDOT] Dystonia

>

>

> OK I need some help here. Katy has always had this light or moderate

> turning

> of the head to the left and sometimes the body to a cervical C. However

> it all

> stopped for a long time. Recently she started this back up again it was

> once

> thought that it was spasticity. They placed a baclofen pump and after

> HBOT it

> was removed. However here lately she has had some episodes again and

> when we

> were in the Hospital A neurologist called it Dystonia Here is a web

> address for

> those who would like to research it.

>

>http://www.dystonia-foundation.org/health/default.asp?search=state & stateid=43#D\

allas

>What IM looking for is someone

> that know a little about this and a treatment that is available for this

> disorder. We are still using HBOT. If anyone has any ideas or knows of

> a place that

> can help us with this Disorder please let me know.

>

> Darin

[Guest guest]

Ken,

I do not dismiss Feldenkrais, or its practicioners. But, the " guild " has

gotten very stale. I do not know of many (if any) other protege's of

Moshe. She was the one. What Anat brought to the table is the

neurological aspect to Feldenkrais. This of course is important because

our kids ahve neurological injuries.

Perhaps there are other Feld practicioners who can do well for our kids,

but I have not met them. I have brought to a few and could not

discern the value for her. I have heard from time to time that their are

other practicioners who are exceptionally talented, but no one to date has

been able to name one. (that has been a puzzler to me).

I have heard good things about Bowen therapy also. But, do not konw much

first hand.

Warm REgards,

Ed Nemeth

At 10:31 PM 9/7/2003, you wrote:

>I agree that Anat is wonderful, as are many of the original students and

>protégé's of Moshe. However, other more recent graduates are also getting

>some incredible results and should not be dismissed because they were not

>trained by Anat. I would also consider Bowen therapy

>http://www.bowtech.com/publicMain.jsp?bodyContent=publicHomeBody.jsp

>and/or Body Talk http://www.bodytalksystem.com/practitioners.htm for some

>things that may produce some surprising results.

>Best wishes and much love, Ken

>

>Ken Gullan

>Institute for Research Integration (IRI)

>San Diego, CA 92106-2424

>IRI is a 501C(3) non-profit corporation established to help children with

>developmental difficulties.

>To contact me off-list use kengullan@... or call 619-222-1104

> [MedicaidforHDOT] Dystonia

> >

> >

> > OK I need some help here. Katy has always had this light or moderate

> > turning

> > of the head to the left and sometimes the body to a cervical C.

> However

> > it all

> > stopped for a long time. Recently she started this back up again it

> was

> > once

> > thought that it was spasticity. They placed a baclofen pump and after

> > HBOT it

> > was removed. However here lately she has had some episodes again and

> > when we

> > were in the Hospital A neurologist called it Dystonia Here is a web

> > address for

> > those who would like to research it.

> >

>

>

>http://www.dystonia-foundation.org/health/default.asp?search=state & stateid=43#D\

allas

>

> >What IM looking for is someone

> > that know a little about this and a treatment that is available for

> this

> > disorder. We are still using HBOT. If anyone has any ideas or knows of

> > a place that

> > can help us with this Disorder please let me know.

> >

> > Darin

>

>

>

[Guest guest]

Hi Ken,

Thanks for your inquiry.

Yes, Feldenkrais was tried, although, to be honest, it seemed pretty much like

my other physical therapy. Perhaps my " practitioner " was inexperienced.

I'm not familiar with a rebounder. However, if it is resisting against

attached bungi cords and/ or range of motion with attached bungi cords: then

yes, that too.

I have not heard of either electro accuscope or scenar. Please could you

explain?

I have done every type of PT, aquatic therapy, myofascial treatment,

biofeedback, various medications, facet & epidural blocks, various pieces of

modified gym equipment, etc., etc., etc. that have been suggested.

I'm open to others.

Thanks! Joanne

________________________________________________________________

The best thing to hit the internet in years - Juno SpeedBand!

Surf the web up to FIVE TIMES FASTER!

Only $14.95/ month - visit www.juno.com to sign up today!

[Guest guest]

In a message dated 2/21/04 6:54:07 PM Pacific Standard Time,

hbo@... writes:

I have a 42 yearold woman diagnosed 3 years ago with Dystonia. Does anyone

have any suggestions as to the protocol?

Thanks.

EVelyne LLorente

e I can tell you from experence My little one had Dystonia as well she

very very spaztic as wel when we started HBOT. Now I can tell you what we did

was we started HBOT at 1.5 for ten sessions then went to 1.75 for ten then

back to 1.5 for the rest of the time she did HBOT and her Dystonia was nearly

gone. We lost her recently to other complications however she made great

progress

from HBOT. HBOT is the only thing that we found for her that helped with the

Dystonia. They sometimes refer paitents to Baclofen pumps for this problem.

However Kaltyn didn't do very well on the Baclofen pump she became very

lathargic. HBOT worked so well that we purchaed a Chamber for her and it was a

very

costly investment but he right choice. I can only tell you that HBOT is the only

known help for this disorder. However the Medical Community looks at it as

Experimentla and investigational, this will all change very soon. We all

together on the list and off the list are working very hard to get this

recognized as

a proven treatment. I have devoted my life to proveing this therapy. Kaltyn

would have wanted that. The medical examiner told me out of his own wouth that

the therapies that Kaltyn was receiveing was what let us keep her for the six

years we had her after her accident. This is an amazeing treatment. I will say

a prayer for you and lift you up every day and add you to the many that ore

on the prayer list. Feel free to contact e at home or by email I will be gald

to talk with you at any time. If I can help you in amyway IM right here beside

you through your Journey. God has not left yur side either. Though you may ask

why you have this disorder question not. For God has a purpose for you. I

didn't realize that to uch myself when Kaltyn was going through her battle. But

I

can see so cleary now her purpose. It is very hard ot explain. But God is

with you and he has not forsaken you. But the answer to your question is I owuld

do a round of Forty treatments at 1.5 ATA at 100 % oxygen that is my sugestion

Im not a Dr. However I went through what you are going through with my

Daughte, even puechased a chamver and made altercations to my house for htis

Chamber

in all it was around $95,000. IM not saying htis wrong Im just saying if I

made that kind of investment it must have made a big difference.

With much Love and Prayers sent you way,

Darin